The day of diagnosis - Lichen Sclerosus

By Ann, Lichen, United States, February 23, 2021

It was just one year since I had given birth to my first and only child.  I thought I was going to have three children, but this diagnosis changed everything.  Having a normal vagina, I took it for granted.  Never did I think there was such a dibilating disease that could drastically affect me, let alone literally changing my future in the blink of an eye.  Realizing that I was no longer "normal," and would have difficulty with intimate relations for the rest of my life - I was only 36!  This couldn't possibly be happning.  There HAS to be a cure!  Not only is there no current cure, but controlling it is limited, as nobody is focused on this rare disorder.  Learning that fact made this so much harder.  Then I though, well, it's not cancer, it's not going to kill me.  No, it won't.  It has taught me to be strong, it has taught me to adapt to life's ever-changing notion of "normal," and it has made me realize that I am not alone in this journey.  There are so many diseases that are ignored, or not important enough to matter.  This is one of them.  I matter.  My disease matters.  Science matters.  There has to be a cure.  We cannot ignore the struggles of so many.

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