In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases

Today, 28 February 2022, is Rare Disease Day; the day dedicated to raising awareness for the 300 million people living with a rare disease around… Continue reading Press Release: Share Your Colours for Rare Disease Day

On 28 February 2022, the rare disease community is coming together for Rare Disease Day to spread hope and solidarity across the world with a… Continue reading Join the Global Chain of Lights!

Today is the launch of the official Rare Disease Day 2022 video in over 40 languages! This video kicks off the international patient-led campaign and… Continue reading Official 2022 Global Video Launch

Meet Vasco, Jelena, Wafic, Nada, Tshepiso, and Taka: our Rare Disease Day 2022 superheroes! Although they live with different diseases, come from different countries, and… Continue reading MEET OUR 2022 SUPERHEROES

We are thrilled to announce the return of the Rare Disease Day capacity-building webinar series, following last year’s huge success. In this year’s webinar series,… Continue reading Rare Disease Day Webinar Series Returns for 2022

A global grassroots campaign led by people living with a rare disease and their families has successfully secured the adoption of the first-ever UN Resolution… Continue reading Resolution for People Living with a Rare Disease adopted by the United Nations

CONNECTING THE WORLDWIDE RARE DISEASE COMMUNITY WITH 100 DAYS TO RARE DISEASE DAY 20 November 2021, Paris Today marks the launch of the global awareness… Continue reading Press Release: 100 Days to Rare Disease Day 2022

The rare disease community and its supporters come together to share the message: Rare is many. Rare is strong. Rare is proud! Today, 28 February,… Continue reading Many, Strong, Proud: Connecting Rare Disease Day Across Continents

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