28 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
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people with rare diseases
600+
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106
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Journey to where I am Today
I was between early 20’s when, I was told that they had found a match something that was rather unspexpected , because the DD study… Continue reading Journey to where I am Today
Read full story
Not Too Rare To Care
Hi, my name is Jayme and I am 26 years old. When I was born in 1996, my Mom along with Doctors knew there was… Continue reading Not Too Rare To Care
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Katie’s Story
I was diagnosed with CMTC when I was 5 months old. At 29 years old, I have lived with markings down the right side of… Continue reading Katie’s Story
Read full storyWhat's your story?
Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
Share your storyThousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch
On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!
In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases
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Rare Disease Day Follow 2,249 41,735
28 February 2023 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
🎉 Introducing a new #RareDiseaseDay partner organisation for 2023...
✨ La Fondation Internationale TIerno et MAriam (FITIMA) ✨
🎉 We are thrilled to be working with them this year!
👉 Find out more: https://fitima.org/
@FITIMABFGN
✨There are many different kinds of events you can organise for #RareDiseaseDay!
👉 Light up monuments and buildings: https://cutt.ly/99EU8Hp
👉 Light up your home: https://cutt.ly/T9EIpbZ
👉 Post your event: https://www.rarediseaseday.org/post-your-event/
👉 Events near you: https://www.rarediseaseday.org/category/events/
Did you know? There are an estimated 200 rare cancers. For people living with a rare disease, searching for a diagnosis can be challenging. 👉 To learn more, click here : http://www.rarediseaseday.org/ Follow EURACAN’s tweets, and don’t hesitate to like or retweet !
It's #TakeoverThursday with our Portugal National Alliance partner, ✨ RD-Portugal ✨
In only two years, RD-Portugal has 32 associations, a scientific committee of 36 members, a project reaching over 3300 students and much more...
Check them out 👉 https://raras.pt
🚨 WEBINAR REMINDER 🚨
⏰ Don’t forget to register for the upcoming “How to Raise Awareness Among Healthcare Providers” webinar!
🗓️ 31 January
📌 Online 5.30-7.30 PM (CET)
👉 Register here: https://cutt.ly/f2LNhGO
#RareDiseaseDay