28 Februaryis Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

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85
days
to go

300M

people with rare diseases

600+

events worldwide

106

countries involved

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Join the community. Help us build awareness. Share your photos, videos and experiences!

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When your body screams listen!

A diagnosis…It’s the first time I have decided to tell my story, why you ask? Because during my non stop journey during these long years… Continue reading When your body screams listen!

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mother and son

Hello, I’m Kim and I live in Belgium. In 1998 I was diagnosed with neurofibromatosis. The doctors never told my parents how important follow-up is.… Continue reading mother and son

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How Medical Gaslighting Nearly Took My Life

Hi!! I’m Bella, a 16yo from CT, with a plethora of chronic illnesses. Growing up, I was always the kid out sick, but we never… Continue reading How Medical Gaslighting Nearly Took My Life

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What's your story?

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!

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Thousands of events
in over 100countries

Every year, thousands of events are
organised across the world.

In the news

On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!

In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases

Today, 28 February 2022, is Rare Disease Day; the day dedicated to raising awareness for the 300 million people living with a rare disease around… Continue reading Press Release: Share Your Colours for Rare Disease Day

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