Research brings hope to people living with a rare disease
28 february
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
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Ledderhose disease
Claudia - United Kingdom
Hello, I'm 18 years old and I've been dealing with this disease for 10 years. Ledderhose disease (or plantar fibtomatosis) causes the thickening in the plantar fascia, causing lumps to grow on the foot/feet.
Rare since 12
Lauren - United States
I am currently 15 years old and am living a fairly normal life. I hang out with my friends, spend time with family, and go to school, but life wasn't always this way. At 12 years old, I was diagnosed with
Ellie Rose, syndrome de
Emilie - France
Ellie Rose est née le 28 mars 2012. Elle est née après terme,. Elle était toute molle, dormait tout le temps et mangeait peu. Elle a été nourrie pendant 6 semaines par sonde nano-gastrique et des examens
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News
Today is Rare Disease Day 2017!
Today is Rare Disease Day 2017!
Today is #RareDiseaseDay 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than ever for rare diseases!  With the theme of research, and...
27 Feb 2017
Meet Geoffray
Meet Geoffray
Geoffray and his sister (who is 8 years older than he is) have suffered from poor sight since birth, without a precise diagnosis. Geoffray had to wait until the age of 13, in 1996, before meeting Dr H...
25 Jan 2017
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