Days to go!
Rare disease day 2021
28 February

Meet your community

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300 million

people with rare diseases

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103

Countries with events

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Thousands

of Events Worldwide

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1,200

Stories to discover

NEWS VIEW ALL

Meet our heroes!

6 continents, 6 portraits, 6 heroes, 6 lives. Rare Disease Day shines a light on the global and dive...

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Long diagnosis, misdiagnosis, or no diagnosis – how rare diseases go under the r...

If you have a rare disease, the search for a diagnosis can often feel like the longest detective inv...

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Rare Disease Day's new webinar series!

We are excited to announce our Rare Disease Day webinar series, which started on Wednesday 21st Octo...

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“No one would believe me”: A common feeling for people living with a rare diseas...

For some, the day we learned of our rare disease diagnosis is a happy day. Odd, isn’t it?Imagine hav...

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The power of art – painting a brighter future for people living with a rare dise...

Art events are powerful tools to raise awareness for people living with a rare disease. This year Ra...

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World landmarks shining a light for Rare Disease Day – individual and local effo...

A real highlight from Rare Disease Day this year was seeing the spectacular sight of buildings and m...

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Thank you for making Rare Disease Day 2020 a success!

Saturday 29 February was the 13th edition of Rare Disease Day. The campaign continues to grow each y...

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Solidarity with the rare disease community affected by COVID-19

Today as thousands of events place take place around the world to mark the occasion of Rare Disease ...

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Today is Rare Disease Day 2020

Rare Disease Day is today, 29 February as it is a leap year. The rarest day of the year dedicated to...

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Meet Lubin

Lubin, aged 12, is from Juvisy, France and is living with spinal muscular atrophy (SMA) which affect...

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EVENTS VIEW ALL

Rare Disease Day
Casa Hunter

29 Feb 2020

Racefor7 2020 COIMBATORE
Organization for Rare Diseases India

08 Mar 2020
Coimbatore, Tamilnadu

RACEFOR7 2020 MYSURU
Organization for Rare Diseases India

08 Mar 2020
Mysuru, Karnataka

Rare Disease Day: Vilnius
Coordinating Center for Rare Diseases

23 Jan - 20 Mar 2020
Lithuania

Stronger Together
Tripoli Children's Hospital

29 Feb 2020
Tripoli , Libya

Corrida Rara 2020
ArELA_MG

29 Feb 2020
Belo Horizonte , Brasil

Rare Disease Day / Día de las Enfermedades Poco Frecuentes
ATUERU (Asociación Todos Unidos por las Enfermedades Raras en Uruguay)

28 Feb - 01 Mar 2020
Montevideo , Uruguay

LAND's Family Day
LAND Lebanese Association for Neuromuscular Diseases

14 Mar 2020
Baabda

Rare Disease Day 2020
Center for medical genetics and immunology of Clinical center of Montenegro

28 Feb 2020
Podgorica, Montenegro , Montenegro

RARE RUN BOLOGNA 2020
FIORI DI CAMPO onlus

15 Mar 2020
BOLOGNA , ITALY

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Rare disease day is organised by
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With the support
of
AFM Téléthon logo Chan Zuckerberg Initiative logo European Commission for acknowledgements - DG-Health-and-Consumers