28 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Share your colours Download materials300M
people with rare diseases
600+
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106
countries involved
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When your body screams listen!
A diagnosis…It’s the first time I have decided to tell my story, why you ask? Because during my non stop journey during these long years… Continue reading When your body screams listen!
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mother and son
Hello, I’m Kim and I live in Belgium. In 1998 I was diagnosed with neurofibromatosis. The doctors never told my parents how important follow-up is.… Continue reading mother and son
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How Medical Gaslighting Nearly Took My Life
Hi!! I’m Bella, a 16yo from CT, with a plethora of chronic illnesses. Growing up, I was always the kid out sick, but we never… Continue reading How Medical Gaslighting Nearly Took My Life
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Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
Share your storyThousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!
In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases
Today, 28 February 2022, is Rare Disease Day; the day dedicated to raising awareness for the 300 million people living with a rare disease around… Continue reading Press Release: Share Your Colours for Rare Disease Day
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Rare Disease Day Follow 2,212 41,460
28 February 2023 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
🎞️ The 2023 official #RareDiseaseDay video is out NOW!
✨ 20-seconds and subtitled in 37 languages!
👉 Watch it NOW on our YouTube page @rarediseaseday and share it everywhere:
💡 Remember to use the hashtag #RareDiseaseDay
Rare Disease Day 2023 video 20 sec
cutt.ly
🔴 Use the Rare Disease Day logo to support #RareDiseaseDay activities!
🌏 The logo symbolises a global partnership in the search to improve the lives of those affected by rare diseases.
👉 Download it here: https://www.rarediseaseday.org/downloads/
👉 Find out more: https://cutt.ly/P1ONakS
📣 Don't wait until #RareDiseaseDay on February 28 to show your support for the rare disease community!
👉 Download, share and adapt the #RareDiseaseDay pledge cards in 8 different languages NOW: https://cutt.ly/cYCUyc9
#RareDiseaseDay
📢Did you know?
In Zimbabwe, rare disease patients are scattered in small pockets across the country making it difficult to identify, support and collect data on their different conditions. Contact us if you know of someone living with a rare disease.
#RareDiseasesinZimbabwe
Access to Information is very important, and here at CYC we aim to do all that we can to improve the quality of life of families living with a rare disease. Contact us or share our contact information with someone who needs it.
#rarediseases #healthawareness