Rare Disease Day ® 2021

Rare disease day 2021

28 February

The official Rare Disease Day 2021 video

Meet our six heroes from six continents all living with a rare disease
Share this video and SUPPORT the community!

Meet your community

300 million

people with rare diseases

103

Countries with events

Thousands

of Events Worldwide

1,200

Stories to discover

NEWS VIEW ALL

Many, Strong, Proud: Connecting Rare Disease Day Across Continents

The rare disease community and its supporters come together to share the message: Rare is many. Rare...

Out Now! Rare Disease Day 2021 video is here!

The official Rare Disease Day 2021 video launches today and is already available in 36 languages, ki...

How sport can be a valuable therapy for rare diseases

For Charlotte from the UK, who has a rare genetic disorder called Osteogenesis imperfecta, sport has...

Meet our heroes!

6 continents, 6 portraits, 6 heroes, 6 lives. Rare Disease Day shines a light on the global and dive...

Long diagnosis, misdiagnosis, or no diagnosis – how rare diseases go under the r...

If you have a rare disease, the search for a diagnosis can often feel like the longest detective inv...

Rare Disease Day's new webinar series!

We are excited to announce our Rare Disease Day webinar series, which started on Wednesday 21st Octo...

“No one would believe me”: A common feeling for people living with a rare diseas...

For some, the day we learned of our rare disease diagnosis is a happy day. Odd, isn’t it?Imagine hav...

The power of art – painting a brighter future for people living with a rare dise...

Art events are powerful tools to raise awareness for people living with a rare disease. This year Ra...

World landmarks shining a light for Rare Disease Day – individual and local effo...

A real highlight from Rare Disease Day this year was seeing the spectacular sight of buildings and m...

Thank you for making Rare Disease Day 2020 a success!

Saturday 29 February was the 13th edition of Rare Disease Day. The campaign continues to grow each y...

EVENTS VIEW ALL

Lesch Nyhan Virtual Meeting

BRC

27 Feb - 28 Feb 2021
West Roxbury

Online Conference dedicated to the Rare Disease Day

Center for Rare Diseases Research of the School of Medicine, New Vision University

28 Feb 2021
Georgia

Rare Glow over Athens

95, Rare Alliance Greece

28 Feb 2021
Athens

Online conference on Rare Diseases

Social Fund "Omirge sen" (Believe in Life) in Kazakhstan

28 Feb 2021

Austria is shining in the colors of the rare diseases – “Austrian Chain of Light...

Pro Rare Austria

28 Feb 2021
Vienna, Salzburg, Linz , Austria

CONFERENCIA ¿Qué es la uveitis?

ALER

04 Mar 2021
LEON , ESPAÑA

CONFERENCIA

ALER

03 Mar 2021
LEON , ESPAÑA

Ciné-Débat Le Tiroir - La vie cachée

Filière de Santé maladies rares AnDDI-Rares

09 Mar 2021
France

RD 2021 with the First Lady of North Macedonia

Association of citizens for rare diseases LIFE WITH CHALLENGES

27 Feb 2021
Skopje

RD 2021 at our government

Association of citizens for rare diseases LIFE WITH CHALLENGES

26 Feb 2021
Bitola

Lesch Nyhan Disease International Virtual Meeting

Boston Rare Connections

27 Feb - 28 Feb 2021
Boston , USA

Rare Disease Day at PEMEX Central South Hospital

Genetics Department

28 Feb 2021
Mexico City , Mexico

Il·luminació per al Dia mundial de les malalties minoritàries o rares

Servei de salut comunitària de l'Ajuntament de Terrassa

28 Feb 2021
Terrassa (Barcelona) , Spain

Colour Flair for Rare

NorthernIreland Rare Disease Partnership

24 Feb - 27 Mar 2021
Northern Ireland , United Kingdom

Belfast City Hall Light Up

Northern Ireland Rare Disease Partnership

28 Feb 2021
Northern Ireland , United Kingdom

Prevention is better than cure- free consultation of Renji hospital

Center for Reproductive Medicine, Renji Hospital, School of Medicine, Shanghai Jiao Tong University, Shanghai, China

28 Feb 2021
Shanghai , China

Gaucher disease awareness lecture

Kurdistan rare disease center

28 Feb 2021
Erbil , Iraq

Rare Always present

Libyan Medical Students and Young Doctors Association - Misurata

28 Feb 2021
Misrata , Libya

Rare Disease Day ARMENIA

Armenian Hematology Association

03 Mar 2021
Yerevan , Armenia

Virtual "Rare Coffee & Cake" for Rare Disease

Alternating Hemiplegia of Childhood (AHC UK)

28 Feb - 07 Mar 2021
Virtual All over the world , United Kingdom

RARE DISEASES, PAST, PRESENT AND FUTURE. Our videos are now out!

Division of Natural Sciences at the German Archaeological Institute (DAI), Berlin

28 Feb 2021
Online

RDD Telemedicine (Japan)

01 Feb - 07 Mar 2021
Online / Community Book Cafe at Mitaka-City

RDD Kanagawa

NPO Kanagawa Prefecture Nanbyo Patient Group Association

28 Mar 2021
Online

RDD Niigata (Japan)

NPO Niigata Nanbyo Support Network

22 Feb - 06 Apr 2021

RDD Matsumoto (Japan)

Medical Center for Nanbyo Diseases, Shinshu University Hospital

20 Feb 2021
Online / Shinshu University Hospital

RDD Gifu (Japan)

NPO Gifu Prefecture Nanbyo Patient Association

23 Jan - 28 Mar 2021
Online / 30 libraries in Gifu Prefecture

RDD Shizuoka (Japan)

NPO Shizuoka Prefecture Nanbyo Patient Association

24 Feb - 02 Mar 2021
Shizuoka Prefecture General Social Welfare Hall

RDD Aichi (Japan)

NPO Aichi Prefecture Nanbyo Patient Association

13 Feb - 18 Feb 2021
Kanayama Sogo Sta. / Aichi prefecture Library / Nagoya City Library

RDD Ishikawa (Japan)

RDD Ishikawa Executive Committee

20 Feb - 28 Feb 2021
Ishikawa Prefectural Government Building, 19th Floor Observation Lobby / Online

RDD Mie (Japan)

Rare Nanbyo Patient Group Mie

27 Feb 2021
Kuwana Media Live 1F

RDD Tokyo (Japan)

RDD Japan secretariat / ASrid

28 Feb 2021

20 years of care for butterfly children

DEBRA ČR

28 Feb - 31 Dec 2021
Brno , Česko

Visibilizacion de Enfermedades poco frecuentes Sanra Fe

Red EPOF Santa Fe

28 Feb 2021
Santa Fe , Argentina

Rare Disease Awareness Day 2021

Asia Pacific University SPE Student Chapter with support of Malaysian Rare Disorders Society

28 Feb 2021
Virtual, Malaysia

Light up at Tower 42

Tower 42

28 Feb 2021
London , United kingdom

The UAE Rare Disease Day 2021 Events

UAE Rare Disease Society

26 Feb - 27 Feb 2021
United Arab Emirates

Rare Disease Day In Mauritius

LUPUS ALERT

01 Feb - 28 Feb 2021
Mauritius

RARE RUN BOLOGNA - Virtual Edition

Fiori di Campo odv

28 Feb 2021
BOLOGNA , Italia

e-portal Launching Ceremony of the Ek-Sath! With patients having Rare Inherited ...

Aga Khan University

01 Mar 2021
Karachi , Pakistan

Phelan-McDermid Syndrome Foundation Australia Global High Tea

Phelan-McDermid Syndrome Foundation Australia

28 Feb 2021
Sydney , Australia

Perlan light up for rare disease

Godvild

26 Feb - 28 Feb 2021
Reykjavik , Iceland

Illumination de l'Hôtel de Ville de Basse-Terre en Guadeloupe aux couleurs de la...

Ville de Basse-Terre (Guadeloupe)

26 Feb - 28 Feb 2021
Basse-Terre , Guadeloupe

UILDM ACCENDE LE LUCI SULLE MALATTIE RARE ANCHE A BRINDISI

UILDM - UNIONE ITALIANA LOTTA ALLA DISTROFIA MUSCOLARE

28 Feb 2021
BRINDISI , ITALY

Nadir Hastalıklar

Nadir Hastalıklar Ağı

24 Feb 2021
Turkey

Rare Moms Talk Rare Diseases – Rare Disease Day 2021 IG Live

SmashSMARD

28 Feb 2021
United States

Webinário Doenças Raras no Brasil – Avanços e Desafios

FEDRANN - Federação das Assoc de Doenças Raras do N, NO e OE é

28 Feb 2021
Fortaleza , Brasil

Austria is shining in the colors of the rare diseases – “Austrian Chain of Light...

Pro Rare Austria

25 Feb - 28 Feb 2021
Vienna, Linz, Salzburg , Austria

Panel Discussion on Rare Diseases - Care for Rare

TerraBiz Group

05 Mar 2021
Online , Pakistan

WHAT DOES RARE MEAN TO ME

HWTH Health Awareness Campaign

28 Feb 2021
United Kingdom

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

Centrum Kultury i Sportu w Pruszczu Gdańskim

28 Feb 2021
Pruszcz Gdański , Polska

IP.ASSI avanti nella RICERCA…contro la pandemia

IGB-CNR

06 Mar 2021
Naples , Italy

IGMM Shining a light on XLH Rickets - a rare bone disease

MRC Institute of Genetics & Molecular Medicine (IGMM), University of Edinburgh

02 Mar 2021
Edinburgh , United Kingdom

Međunarodni dan rijetkih bolesti uz eTwinning

II. osnovna škola Čakovec

23 Feb - 03 Mar 2021
Čakovec

Webinaire: Parcours de soins des patients atteints de MR en Guadeloupe : état de...

Plateforme de coordination des maladies rares de la Guadeloupe - KARUKERARES

26 Feb 2021
POINTE-A-PITRE , GUADELOUPE

Rare Disease Day in Libya

Tripoli children 's hospital in Libya

28 Feb 2021
Tripoli , Libya

Cuidando das Pessoas com Doenças Raras e Apoio aos Familiares

Conselho Municipal de Saúde da Cidade de São Paulo / MUNICIPAL HEALTH COUNCIL OF THE CITY OF SÃO PAULO

26 Feb 2021
Sao Paulo, SP , BRAZIL

Bietti's Crystalline Dystrophy (BCD) Awareness Campaign

Invincible Vision

15 Feb - 31 Mar 2021
United States

Dia mundial das Doenças Raras - ASPEC BRASIL

ASPEC - Associção de Paraparesias Espasticas Correlatas do Brasil

26 Feb - 28 Feb 2021
On line , Brasil

National Palace of Culture in Sofia will be lit in blue, purple, pink and green

National Patients' Organization

28 Feb 2021
Sofia , Bulgaria

DÍA MUNDIAL DE LAS ENFERMEDADES RARAS

INDEPF

28 Feb 2021
CAMPO DE CRIPTANA, CIUDAD REAL , SPAIN

Accendiamo le luci sulle Malattie Rare - La fontana monumentale della Piazza A. ...

RETE REGIONALE A.MA.RE PUGLIA

28 Feb 2021
BARI , ITALIA

Nadir Çağrı Kampanyası

Pulmoner Hipertansiyon ve Skleroderma Hasta Derneği

25 Feb - 25 Mar 2021
Türkiye , Türkiye

Nadir Hastalıklar Ağı - Nadir Hastalıklar Günü Online Basın Toplantısı

Nadir Hastalıklar Ağı

25 Feb 2021
Türkiye , Türkiye

Iluminación Plaza de España

Federación Española de Enfermedades Raras

28 Feb 2021
Sevilla , Spain

Iluminación fuente cuatro estaciones

Federación Española de Enfermedades Raras

28 Feb 2021
Sevilla , Spain

Muralla de Puerta Pilar

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Muralla Parques infantiles

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Muralla Puente Real Badajoz

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Plaza Alta Badajoz

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Puerta Palma

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Ayuntamiento de Cáceres

Federación Española de Enfermedades Raras

28 Feb 2021
Cáceres , Spain

Iluminación Ayuntamiento de Valladolid

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación del Congreso de los Diputados

Federación Española de Enfermedades Raras

28 Feb 2021
Madrid , Spain

Austria is shining in the colors of the rare diseases – “Austrian Chain of Light...

Pro Rare Austria

25 Feb - 28 Feb 2021

Gründung Zentrum für Interstitielle und Seltene Lungenerkrankungen (ZISLE)

Asklepios Fachkliniken München-Gauting

28 Feb 2021
München, Gauting , Germany

Webinar

FFO / Unge Funksjonshemmede

28 Feb 2021

Online information campaign about rare diseases

Nasjonal kompetansetjeneste for sjeldne diagnoser

25 Feb - 27 Feb 2021

Good morning Norway - Tv-program

Nasjonal kompetansetjeneste for sjeldne diagnoser

25 Feb 2021

Ligting up the Hospital

Nasjonal kompetansetjeneste for sjeldne diagnoser

22 Feb - 28 Feb 2021
Oslo University hospital

Rare Disease Day gardening activity

FITIMA Guinea

26 Feb 2021

Rare Disease Day Educational outing

FITIMA Burkina

27 Feb 2021

National Conference RARE DISEASES DAY 2021

Institute of Mother and Child, Centre of Reproductive Health and Medical Genetics in cooperation with Pediatric Society from Moldova, State University of Medicine and Pharmacy ”N. testemitanu”, Asscoeciation of PKU Children

26 Feb 2021
Chisinau , Moldova

NEL SALENTO TELETHON ACCENDE LE LUCI SULLA RARITA

Coordinamento provinciale Lecce Fondazione Telethon

28 Feb 2021

IV Edizione "Rare Abilità"

Associazione di Volontariato "Area Celsi"

24 Feb - 04 Mar 2021
Fasano , Fasano

III Всероссийский форум по орфанным заболеваниям

Всероссийский союз пациентов

26 Feb - 27 Feb 2021
Москва , Россия

RDD Shiga (Japan)

Shiga NANBYO regional center

28 Feb 2021
Shiga Prefecture NANBYO Support Center

RDD Osaka (Japan)

RDD Osaka Executive Committee

28 Feb 2021

RDD Osaka Meisei Gakuen High school (Japan)

Osaka Meisei Gakuen High school

20 Feb 2021

RDD Hyogo Prefectural Rehabilitation Center at Nishi-Harima (Japan)

Hyogo Prefectural Rehabilitation Center at Nishi-Harima

26 Feb 2021
Hyogo Prefectural Rehabilitation Center at Nishi-Harima

RDD Kakogawa Minami High school (Japan)

Kakogawa Minami High school

30 Jan 2021
Kakogawa Minami High school

RDD Nara (Japan)

Nara NANBYO regional center

28 Feb 2021
Nara City Western Civic Center

RDD Oakayama (Japan)

Comprehensive Support Network for Intractable Diseases

21 Mar 2021
Okayama prefecture southern part Health center

RDD Tottori (Japan)

Psychoro

28 Feb 2021

RDD Hiroshima (Japan)

Hiroshima NANBYO regional center

28 Feb 2021
Hiroshima Prefectural Health and Welfare Center

RDD Yamaguchi (Japan)

Orange-no-kai (Yamaguchi Prefecture Idiopathic Osteonecrosis of the Femoral Head Friendship Association)

07 Mar 2021

RDD Tokushima (Japan)

Tokushima Prefectural Koryu-Plaza for the Disabled

14 Feb - 28 Feb 2021
Tokushima Prefectural Exchange Plaza for the Disabled

RDD Ehime (Japan)

Ehime NANBYO regional center

27 Feb 2021

RDD Fukuoka (Japan)

NANBYO NET.RDing Fukuoka

07 Feb - 28 Feb 2021

RDD Kitakyushu (Japan)

02 Feb - 26 Feb 2021
Kitakyushu City Hall

RDD Saga (Japan)

Saga Prefecture NANBYO Support Network

26 Feb 2021

RDD Kumamoto (Japan）

Kumamoto NANBYO regional center

19 Feb - 01 Mar 2021
Kumamoto Health Cenber

RDD Kagoshima (Japan)

Kagoshima NANBYO Support Network

28 Feb 2021

RDD Satsuma- rare disease (Japan)

Kagoshima Prefecture Association of the Severely Neurological Intractable Diseases

28 Feb - 31 Mar 2021

RDD Okinawa (Japan)

NPO Ambitious

28 Feb 2021

RDD Ishigakijima (Japan)

Private school A and T

31 Mar 2021

RDD Job Fit (Japan)

Japan A.S. Friendship Association

25 Feb 2021

RDD Kids (Japan）

RDD Kids Office (in MECP2 Duplication Syndrome Patients Family Association)

13 Feb 2021

RDD NABYO Cafe (Japan)

Kanto NANBYO Cafe Network

13 Mar 2021

RDD rare cancer (Japan)

Japan Rare Cancer Patient Network

01 Feb - 28 Feb 2021

RDD SCD MSA (Japan)

SCD MSA patient group

15 Mar 2021

Oncology and Rare Diseases

A.S.C.O - Tecnológico de Monterrey

28 Feb - 01 Mar 2021
Monterrey, Mexico City , Mexico

ENFERMEDADES RARAS:repercusiones orales y aspectos histopatológicos

Cátedra de Anatomía Patológica A-FO-UNC

27 Feb 2021
Còrdoba , Argentina

Cápsula del tiempo de los Pacientes, una década para conquistar Derechos

Alianza Argentina de Pacientes - ALAPA

01 Mar 2021
Ciudad de Buenos Aires , Argentina

UILDM ACCENDE LE LUCI SULLE MALATTIE RARE

UILDM - Unione Italiana Lotta alla Distrofia Muscolare

28 Feb 2021
Montecatini Terme, Montale, Agliana, San Marcello Piteglio, Serravalle Pistoiese, Uzzano, Monsummano Terme, Ponte Buggianese, Miggiano, Francavilla Fontana, Martina Franca, Taranto, San Donaci, Bergamo, Legnano, L'Aquila, Torino , Italy

Rare Disease Awareness Day

Oman Society for Genetic Medicine

27 Feb 2021
Muscat , Oman

Rare Disease Awareness Day 2021

Oman Society for Genetic Medicine

25 Feb 2021
Muscat , Oman

Inherited metabolic diseases:Rare but United in Arms!

KRIKOS ZOIS

06 Mar - 07 Mar 2021
VIRTUAL , GREECE

Move2Advocate Pledge2Move

Move2Advocate

28 Feb 2021
United States

Malattie rare e Covid-19: un bilancio dopo un anno di pandemia

Forum A-Rare

26 Feb - 27 Feb 2021
online , Italy

Conferences Virtuelles

Association Aux Pas Du Coeur

27 Feb - 28 Feb 2021
Abidjan , Cote d'Ivoire

Wellbeing for those affected by myotubular and centronuclear myopathy

Myotubular Trust

06 Mar 2021
LONDON , United Kingdom

Rare Disease Day public awareness afternoon

Maladies Rares SPM

28 Feb 2021

The Challenge

Ataxia Care Project

15 Feb - 01 Sep 2021
Melbourne to Sydney , Worldwide virtual challenge

Accendiamo le luci sulle malattie rare

Associazione Rete Malattie Rare OdV

28 Feb 2021
San Donà di Piave (VE) , Italia

Digital Poster

Nadir Hastalıklar Ağı

25 Feb - 28 Feb 2021
İzmir , Türkiye

İzmir Kent Konseyi Dünya Nadir Hastalıklar Günü Etkinliği

Nadir Hastalıklar Ağı

27 Feb 2021
İzmir , Turkey

Rares desease day

Sciences City at Tunis

28 Feb 2021
Tunis , Tunisia

Nós e os Outros: O Caminho a Fazer

ANDO Portugal

28 Feb 2021
Online , Portugal

Rare Disease Day In Iran

Rare Diseases Foundation of Iran (RADOIR)

26 Feb 2021
Tehran , Iran

Symposium about Rare Diseases

CHU Liège in Belgium

26 Feb 2021
Belgium

Rare Disease Day illuminations in Poland

Foundation of Borys the Hero

Summer Picnic

Muscular Dystrophy Northern Inc

28 Feb 2021
Orewa, Auckland , New Zealand

Evento de Concientización de las Enfermedades Raras en la UAG

Universidad Autónoma de Guadalajara

22 Feb - 26 Feb 2021
Zapopan , México

RDD GBS CIDP (Japan)

GBS (GUILLAIN-BARRÉ SYNDROME) PATIENT GROUP

28 Feb 2021

RDD GBS CIDP (Japan)

GBS (Guillain-Barré syndrome) patient group

28 Feb 2021

In Basilicata Telethon accende le luci sulla rarità

Coordinamento Telethon Basilicata

28 Feb 2021
Basilicata

NADİR HASTALIKLARDA GENETİĞİN ROLÜ

BEFEMDER Behçet ve Ailevi Akdeniz Ateşi Hasta Derneği

27 Feb 2021
çevimiçi , Türkiye

SMA Awareness Day

SANEM/SNS - in collaboration with Biologix

28 Feb 2021
Saudi Arabia

Rare Disease Weekend

SOCIEMUVEM

26 Feb - 28 Feb 2021
Minatitlán , México

Healthcare and Advocacy Careers in Rare Diseases

Mission San Jose High School Students for Rare Diseases Club

26 Feb 2021
United States

Rare Disease Day Celebration

Kids In Motion Pediatric Therapy and Wellness

22 Feb - 28 Feb 2021
MANDAN , United States

Accendiamo le luci sulle malattie rare - Rocca Rangoni Spilamberto MO

AISW-ER, AST

27 Feb - 28 Feb 2021
Spilamberto , ITALIA

Accendiamo le luci sulle malattie rare

Forum A-Rare

27 Feb - 28 Feb 2021
Torino , Italy

Research for the CURE

Charlotte and Gwenyth Gray Foundation

28 Feb - 01 Mar 2021
Los Angeles , United States

Journée Internationale des Maladies Rares - Zoé Action

Zoé Action

28 Feb 2021

Guapos por dentro y por fuera (ataxia telangiectasia)

AEFAT

23 Feb - 02 Mar 2021
España

Rare Disease Day 2021 in Nepal

Individual patient advocate

23 Feb - 28 Feb 2021

Virtual Run for Rare

Firefly Fund

26 Feb - 28 Feb 2021
USA

Ada Apa Dengan Cinta?

WAUlahh by Malaysia RD Youth

20 Feb 2021
Kuala Lumpur , Malaysia

RDD HAMAMATSUCHO Building (Tokyo, Japan)

RDD HAMAMATSUCHO Building executive committee

10 Mar 2021

Sällsynta dagen - Ta del av fakta, livsberättelser, intervjuer och musik, var du...

Ågrenska

28 Feb - 28 Feb 2022
Hovås , Sweden

RDD CHIBA Children Hospital (Japan)

CHIBA Prefecture Children Hospital

10 Feb - 28 Feb 2021

RDD CHIBA (Japan)

Chiba Nishi Regional Comprehensive Multi-Professional Group

07 Mar 2021

RDD SAITAMA western part (Japan)

Nimokaka Club

20 Feb - 28 Feb 2021

RDD Futaba Mirai Gakuen (Fukushima)

Futaba Mirai Gakuen

28 Feb 2021

RDD SAKATA-NISHI Highschool (Yamagata, Japan)

Sakata Nishi high school

30 Jan - 28 Feb 2021
Sakata Nishi high school

RDD TSURUOKA (Yamagata, Japan)

RDD Tsuruoka executive committee

27 Feb 2021
Tsuruoka City Advanced Research and Industrial Support Center, Tsuruoka, Yamagata

RDD IWATE (Japan)

Iwate NANBYO regional center

28 Feb 2021

RDD Hokkaido (Japan)

Hokkaido NANBYO regional center

26 Feb 2021
Hokkaido Prefectural Government, Sapporo, Hokkaido

Rare is Beautiful - Let's Break The Stigma

Australian Sickle cell Advocacy Inc

28 Feb 2021
Melbourne, Australia

Mi autoestima y resiliencia: Reconozco y acepto mi lugar en el mundo

APPEL

27 Feb 2021

Cómo ser un buen cuidador, pero cuidándome

APPEL

25 Feb 2021

La historia de Piper, un pajarito valiente

APPEL

25 Feb 2021

Nel prisma della rarità

Associazione Linfa odv

28 Feb 2021
Padova

Webinaire Maladies Rares : quels parcours pour les patients ?

AP-HP.Nord Université de Paris

02 Mar 2021
France

Raise Awareness for KLS in Times Square

Kleine-Levin Syndrome Foundation

28 Feb 2021
Manhattan, New York , United States

TV Tower in Tbilisi illuminated with the colours of rare disease day

GSIEM

28 Feb 2021
Tbilisi

IncontRARE le RASopatie

Associazione Nazionale Sindrome di Noonan e RASopatie ODV

27 Feb 2021
WEBINAR ON LINE , ITALIA

Rare Disease Day Bay Area

27 Feb - 28 Feb 2021
UK, Toronto, NYC, Chicago, Las Vegas, Los Angeles, Bay Area , United States

BARRILETEADA POR LAS ENFERMEDADES RARAS

FUNDACION LAUTARO TE NECESITA

28 Feb 2021
Bs As , Argentina

ILLUMINIAMO LA RARITA’

A.Ma.R.A.M Aps

26 Feb - 28 Feb 2021
Puglia - Basilicata - Calabria , Italia

Education for students

National organization for rare diseases of Serbia

28 Feb 2021
online , Serbia

Share with rare

National organization for rare diseases of Serbia

01 Feb - 28 Feb 2021
online , Serbia

Webinar sulle malattie rare ed il diritto alla salute

Centro per la Tutela del Diritto Alla Salute degli Ammalati Ematologici ed Oncologici "Pablo Amato" O.D.V.

27 Feb 2021
Siracusa , Italia

Meet rare heroes

Slovak Alliance for Rare Diseases

19 Feb - 06 Mar 2021
Pezinok , Slovensko

RaccontRare: l'Epidermolisi Bollosa dalla voce di pazienti, ricercatori e clinic...

Le Ali di Camilla

28 Feb 2021
Online , Italy

LAND's online meeting on Rare Disease Day;

LAND

19 Feb 2021

Care for Rare awareness campaign

Aljawhara center/Arabian Gulf University

22 Feb - 07 Mar 2021

Afternoon Tea Virtual Event

RARE Ireland

28 Feb 2021
Ireland

RARE/D LIVE 2021 - RARE CANCERS - LIVE PODCAST RECORDING

The Whitworth Group

28 Feb 2021
United Kingdom

Webinar: Rare is beautiful, let's break the stigma!

Australian Sickle cell Advocacy Inc

28 Feb 2021
Melbourne Australia

Rare Disease Day with HAE Junior

HAE Junior

15 Feb - 28 Feb 2021

Who AMMA is and rare disease representss

AMMA

21 Feb - 28 Feb 2021

Ilumination, and chorus concert Casa de la Vall

AMMA

28 Feb 2021
Andorra La Vella

No Somos Raros,Somos Increíbles

ADAIDF

26 Feb - 28 Feb 2021
Illescas, Toledo , España

Iluminación de la Fuente de Cibeles

Federación Española de Enfermedades Raras

28 Feb 2021
Madrid , Spain

Iluminación del Ayuntamiento de Valladollid

Federación Española de Enfermedades Raras

28 Feb 2021
Valladolid , Spain

Iluminación de la Cúpula del Milenio

Federación Española de Enfermedades Raras

28 Feb 2021
Valladolid , Spain

Iluminación del Ayuntamiento de Cáceres

Federación Española de Enfermedades Raras

28 Feb 2021
Cáceres , Spain

Iluminación del Ayuntamiento de Badajoz

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación de la Plaza de Don Juan de Austria

Federación Española de Enfermedades Raras

28 Feb 2021
Sevilla , Spain

Iluminación de la Plaza de España d