29 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Share your colours Download materials300M
people with rare diseases
600+
events worldwide
106
countries involved
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Katie’s Story
My name is Katie and I was diagnosed with CMTC when I was 5 months old. I am now 30 years old and have lived… Continue reading Katie’s Story
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Annarita e la sua passione per la danza oltre la disabilitÃ
Mi chiamo Annarita ho 27 anni e sono residente a Pagani, un paese in provincia di Salerno. Il destino ha voluto che proprio il giorno… Continue reading Annarita e la sua passione per la danza oltre la disabilitÃ
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Melodies of Resilience: Chapman’s Undiagnosis Disease and Musical Triumph
Chapman, an extraordinary 12-year-old blind pianist, has embarked on an incredible journey since his birth. Born in Hong Kong and currently residing in London, Chapman… Continue reading Melodies of Resilience: Chapman’s Undiagnosis Disease and Musical Triumph
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Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
Share your storyThousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts… Continue reading Webinar: How to Raise Awareness Among Healthcare Providers
Today is Rare Disease Day! We are inviting everyone to share their colours and raise awareness for the 300 million people living with a rare… Continue reading Press Release: Mark Rare Disease Day 2023
20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch
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