Research brings hope to people living with a rare disease
28 february
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2017 events
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2017 Rare Disease Day Video!
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Living rare
Tammy - United Kingdom
Hi everyone!My name is tammy I'm in my early 30s and have a rare condition called eosinophilic gastroenteritis. Whilst people may age and back in my teens it's been hard to admit that I'm not like anyone
My eleven years with N
Andy - United Kingdom
My time associated to NETS The below story is my eleven years in full. This should hopefully explain the highs and lows during my time with NETS and the value of PRRT TREATMENT. Hello, Ladies and Gentlemen,
How I'm Using my Talents
Dustin - United States
Many people perceive one's senior year of high school to be a time in which teenagers are creating memories that will last a lifetime with friends they've had for the majority of their life; however, I
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News
Today is Rare Disease Day 2017!
Today is Rare Disease Day 2017!
Today is #RareDiseaseDay 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than ever for rare diseases!  With the theme of research, and...
27 Feb 2017
Meet Geoffray
Meet Geoffray
Geoffray and his sister (who is 8 years older than he is) have suffered from poor sight since birth, without a precise diagnosis. Geoffray had to wait until the age of 13, in 1996, before meeting Dr H...
25 Jan 2017
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