Olivia is 5 years old and was just recently diagnosed with Ataxia Telengieactia (AT). This disease effects her mobility, immune system, speech and make her at greater risk for cancer. There is currently

Parry–Romberg syndrome is a rare disease characterized by progressive shrinkage and degeneration of the tissues beneath the skin, usually on only one side of the face but occasionally extending to other

When my daughter was diagnosed in March of 2018, I had no idea what Mowat-Wilson syndrome was at all, but all of Khloe's doctors gave us a lot of good websites to go and read up about it. Life with MWS