28 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
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Kathryn gets Answers
After years and years wondering if there was a genetic condition that was behind why Kathryn was unique – right before her 16th birthday we… Continue reading Kathryn gets Answers
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Irene 9p22
Durante el embarazo no sospechamos que Irene vendría con una enfermedad rara hasta el día de su nacimiento, los médicos nos comentaron que sus rasgos… Continue reading Irene 9p22
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My Story My Journey (قصتي رحلتي)
Hello 👋 My name is Omaima but you can call me om , I’m from Kuwait city 🥰🇰🇼 Have arteriovenous malformation (avm ) left leg… Continue reading My Story My Journey (قصتي رحلتي)
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Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
Share your storyThousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch
On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!
In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases
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Rare Disease Day Follow 2,242 41,685
28 February 2023 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
It's #TakeoverThursday with our Portugal National Alliance partner, ✨ RD-Portugal ✨
In only two years, RD-Portugal has 32 associations, a scientific committee of 36 members, a project reaching over 3300 students and much more...
Check them out 👉 https://raras.pt
🚨 WEBINAR REMINDER 🚨
⏰ Don’t forget to register for the upcoming “How to Raise Awareness Among Healthcare Providers” webinar!
🗓️ 31 January
📌 Online 5.30-7.30 PM (CET)
👉 Register here: https://cutt.ly/f2LNhGO
#RareDiseaseDay
Did you know? Five-year survival rate is lower for patients with a rare cancer than for those diagnosed with a more common cancer.
👉 To learn more, click here : http://www.rarediseaseday.org/ Follow EURACAN’s tweets, and don’t hesitate to like or retweet!
#RareDiseaseDay is on 02/28. Testicular cancers are rare but they are the most common solid malignancy in men between 15 and 49 years old. 95% of testicular cancers are germ cell tumors. They are subdivided based on histology in 2 categories: seminoma (55%) and non-seminoma (45%)
🎉 Introducing a new #RareDiseaseDay partner organisation in Tanzania...
✨ ALI KIMARA RARE DISEASE FOUNDATION (AKRDF) ✨
👉 Find out more: https://cutt.ly/h9ghQMM
👉 Find a Rare Disease Day partner in your country: https://lnkd.in/gk6hbAF
@AliKimara