Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
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Every year, thousands of events are
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20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch
On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!
In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases
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28 February 2023 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
✨There are many different kinds of events you can organise for #RareDiseaseDay!
👉 Light up monuments and buildings: https://cutt.ly/99EU8Hp
👉 Light up your home: https://cutt.ly/T9EIpbZ
👉 Post your event: https://www.rarediseaseday.org/post-your-event/
👉 Events near you: https://www.rarediseaseday.org/category/events/
Did you know? There are an estimated 200 rare cancers. For people living with a rare disease, searching for a diagnosis can be challenging. 👉 To learn more, click here : http://www.rarediseaseday.org/ Follow EURACAN’s tweets, and don’t hesitate to like or retweet !
It's #TakeoverThursday with our Portugal National Alliance partner, ✨ RD-Portugal ✨
In only two years, RD-Portugal has 32 associations, a scientific committee of 36 members, a project reaching over 3300 students and much more...
Check them out 👉 https://raras.pt
🚨 WEBINAR REMINDER 🚨
⏰ Don’t forget to register for the upcoming “How to Raise Awareness Among Healthcare Providers” webinar!
🗓️ 31 January
📌 Online 5.30-7.30 PM (CET)
👉 Register here: https://cutt.ly/f2LNhGO
#RareDiseaseDay
Did you know? Five-year survival rate is lower for patients with a rare cancer than for those diagnosed with a more common cancer.
👉 To learn more, click here : http://www.rarediseaseday.org/ Follow EURACAN’s tweets, and don’t hesitate to like or retweet!