28 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Share your colours Download materials300M
people with rare diseases
600+
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106
countries involved
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Mi búsqueda y lucha por un diagnóstico
Un cúmulo de despropósitos. Los médicos siguen diciendo que sólo tienen una sospecha y que no hay derecho a un diagnóstico, y no lo puedo… Continue reading Mi búsqueda y lucha por un diagnóstico
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Keep Searching for Answers
It took us 14 years to get a correct diagnosis. I first had signs that something troublesome was going on in 2004. I was passed… Continue reading Keep Searching for Answers
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Mijn leven als eendje
Het syndroom van Camurati Engelmann is een zeldzame, genetische ziekte die gekenmerkt wordt door hyperostose van de lange beenderen, schedel, wervelkolom en het bekken en… Continue reading Mijn leven als eendje
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Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
Share your storyThousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!
In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases
Today, 28 February 2022, is Rare Disease Day; the day dedicated to raising awareness for the 300 million people living with a rare disease around… Continue reading Press Release: Share Your Colours for Rare Disease Day
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Rare Disease Day Follow 2,202 41,480
28 February 2023 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
✨ UPCOMING SERIES ✨
📅 Every Tuesday and Thursday, we will give our National Alliance partners a chance to reach out to the international rare disease community via our social media and share their work!
👉 Get ready for @ChildYouthCareZ tomorrow!
#RareDiseaseDay
📢 We have inspiring news: Rare Disease Day is now on TikTok!
👉We are calling all rare disease patients and young people to join our network.
Check out our TikTok page account 👇 and follow us!
@rarediseasedayofficial
#YoungPatients #YoungAdvocates #RareDiseaseDay #raredisease
✨T-97 until #RareDiseaseDay
Even though #RareDiseaseDay is patient-led, families, caregivers, healthcare professionals, researchers, clinicians & policymakers act for people living with a rare disease. They belong to our #community
#RareDisease #ShareYourColours #LightUpForRare
📢 POSTER RELEASE 📢
🎉 We are delighted to announce the launch of this year's official #RareDiseaseDay poster!
👉 Available in both digital and printable formats, download the poster NOW: https://cutt.ly/nTTAz83
#RareDiseaseDay #ShareYourColours #LightUpForRare #RareDisease
🎉100 days until #RareDiseaseDay 2023 and the launch of the global community-driven movement that raises awareness and generates change for the 300 million people living with a rare disease!
🖥️ Watch and share the official Rare Disease Day 2023 video NOW: https://cutt.ly/sMJWQYz