Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2019 events
Tell your story!
Dear Jordyn-Ann, Our Little
Carolyn - United States
optic nerve hypoplasia,CHD5, DOCK 10
Dear Jordyn-Ann,Before you were born, we went through one of the most difficult tragedies imaginable, we lost your brother. His name was Jaxson and he is now an angel looking down on you. He had severe
The diagnostic odyssey,
bianca - Canada
Peroxisome biogenesis disorder
Hello! We are a family from Quebec, and we are happy to introduce our beautiful family through PBD Canada. My name is Bianca and I am the proud mother of three beautiful children, two of which have received
The Walking Dead.
Tyrone - United States
Undiagnosed
I have been living with a fecal odor for over 10 years now. I have tried everything to fight against the odor to no avail. I'm constantly harassed, teased by people and it hurts so deeply. There is nothing