Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
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Every year, thousands of events are
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In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts… Continue reading Webinar: How to Raise Awareness Among Healthcare Providers
Today is Rare Disease Day! We are inviting everyone to share their colours and raise awareness for the 300 million people living with a rare… Continue reading Press Release: Mark Rare Disease Day 2023
20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch
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