people with rare diseases
After experiencing issues with my peripheral vision and sensitivity to light I had multiple tests and scans leading to my diagnosis of Acute Zonal Occult… Continue reading We tend to take our eyes for granted until they go wrong.Read full story
Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!Share your story
20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch
On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!
In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases