Conoce la historia de Analy, una pequeña que fue diagnosticada con el Síndrome de Primrose. Sus padres tienen la esperanza de que al compartir su experiencia se genere un cambio y conciencia en la sociedad. 

Bobby was born at 28 weeks. After everything was brushed off as premature. Then I looked at other parents of premature infants and said, no I disagree. I was met with help & walls from different ends.

BOY WITH RARE GENETIC DISEASE RELEASES CHARITY SINGLE FOR RARE DISEASE DAYA fourteen year old boy from Essex, with the rare Norrie disease, has released a single called Unique to raise money for the charity