28 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Share your colours Download materials300M
people with rare diseases
600+
events worldwide
106
countries involved
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We tend to take our eyes for granted until they go wrong.
After experiencing issues with my peripheral vision and sensitivity to light I had multiple tests and scans leading to my diagnosis of Acute Zonal Occult… Continue reading We tend to take our eyes for granted until they go wrong.
Read full story
We thought it was just MS?
I was diagnosed with Neuromyelitis Optica 03/12/2019. It’s been one crazy journey. I remember going to the GP, hardly being able to walk & trying… Continue reading We thought it was just MS?
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Journey to where I am Today
I was between early 20’s when, I was told that they had found a match something that was rather unspexpected , because the DD study… Continue reading Journey to where I am Today
Read full storyWhat's your story?
Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
Share your storyThousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch
On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download materials webinar for your Rare Disease Day campaign! This… Continue reading Register for the #RareDiseaseDay Download Materials Webinar!
In the run up to Rare Disease Day 2022, we gathered a team of expert speakers from all around the world to tackle an important… Continue reading How to speak to young children about rare diseases
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Rare Disease Day Follow 2,256 41,860
28 February 2023 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Thank you @raredisorders for joining the #LightUpForRare movement and raising awareness on #RareDiseaseDay!
What about you, are you ready to #LightUpForRare 💜💙💚 on 28 February 2023?
Rare Disease Day 2023 Canadian Illuminations #LightUpForRare #Canada4Rare @rarediseaseday
February 28:
Calgary Tower
CN Tower
Edmonton High Level Bridge
Niagara Falls
3D Toronto Sign at Nathan Phillips Square
❓ Did you know that 1 in 5 cancers is rare?
🤝 We are one community that shares the same fight for:
✅ more awareness,
✅ greater equity as well as
✅ advocating for a brighter future.
Join us in marking #WorldCancerDay!
#RareDiseaseDay #ShareYourColours #CancerDay #Support
On #RareDiseaseDay, the rare disease community will #LightUpForRare!
Join the ✨ Global Chain of Lights ✨ by:
🔦 Illuminating a monument
🔦 Lighting up your home
🔦 Posting your pictures with the hashtag #LightUpForRare
👉 https://cutt.ly/jYNFp5X
👉 https://cutt.ly/UYNFkKV
👐 Happy Rare Disease Month from @ACHSEeV
Around #RareDiseaseDay on 28 February, there will be many events in Germany. @ACHSEeV Rare Diseases Germany is calling out again to #ShareYourColours for #RareDiseases #Awareness #RareIsMany
➡️
Tag der Seltenen Erkrankungen 2023 | ACHSE e.V.
Die ACHSE koordiniert den internationalen Rare Disease Day 2023 bundesweit und wirbt mit vielfältigen Aktionen. Machen Sie mit.
kurzelinks.de
🎉 Today marks the first day of Rare Disease Awareness Month 2023!
📣 Join us this month to raise awareness for the 300 million people living with a rare disease worldwide!
👉 Find out how you can get involved: https://cutt.ly/w9tI5Pb