28 February is Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
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Siempre había estado ahí
Lo que no había cambiado en ella era su esperanza; aquella que hoy hacía su aparición y la que se esfumaba en cuanto decían su… Continue reading Siempre había estado ahí
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Sia Strong
In 2019 our daughter was diagnosed with epilepsy. We noticed a decline in abilities and trouble with walking so we had further testing done. An… Continue reading Sia Strong
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Shiloh
Shiloh was born on June 18,2019. He has been diagnosed with around 40 conditions since then and is currently participating in the Undiagnosed Diseases Network… Continue reading Shiloh
Read full storyWhat's your story?
Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
Share your storyThousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
CONNECTING THE WORLDWIDE RARE DISEASE COMMUNITY WITH 100 DAYS TO RARE DISEASE DAY 20 November 2021, Paris Today marks the launch of the global awareness… Continue reading Press Release: 100 Days to Rare Disease Day 2022
The rare disease community and its supporters come together to share the message: Rare is many. Rare is strong. Rare is proud! Today, 28 February,… Continue reading Many, Strong, Proud: Connecting Rare Disease Day Across Continents
The official Rare Disease Day 2021 video launches today and is already available in 36 languages, kicking off the international patient-led movement that puts rare diseases… Continue reading Out Now! Rare Disease Day 2021 video is here!
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28 February 2022 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Do you want to start a conversation about rare diseases with children?
A Friendship Story tells the story of a young boy who overcomes the challenges of his rare disease.
Available in in 20 different languages for free at: https://cutt.ly/4TS2e7E
#rarediseaseday
Pausant was diagnosed with chronic myeloid leukemia more than 20 years ago.
"To me, being an advocate is learning how to speak up for yourself. I am now part of my healthcare team."
Read his story: http://cutt.ly/IEjq8fl
#rarediseaseday
📢Let's talk #SocialJustice and health.
🌍Register: https://bit.ly/30T4Wjo
#UHCDay Event - Strengthening Care Systems for #healthequity. In partnership with @CSOs4UHC @UHC2030
13 December. 14.00 - 15.30 CET.
@eurordis @FlaminiaRdi @UHC_Day @raredisorders @rarediseaseday
Join the Global Chain of Lights for Rare Disease Day!
Learn how you can light up a building in your area by downloading our building illuminations toolkit: https://cutt.ly/bTSNULY
#LightUpForRare #RareDiseaseDay
How can you use Rare Disease Day to advance your advocacy objectives?
Don't miss out on our Rare Disease Day capacity building webinar today at 2pm (CET).
This event will be streamed live on our Facebook page at http://www.facebook.com/rarediseaseday