3 online lectures on ARVC research with following Q&A
A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...
In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...
Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...
La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...
This year we look forward to celebrating #RareDiseaseDay2022! Come enjoy a chat 7 pm EST, February 28, 2022. Speak with...
Subir más de 2.000 escalones
Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...
W 2022 roku Dzień Chorób Rzadkich obchodzimy 28 lutego. Aby szerzyć wiedzę na temat tych chorób, chcielibyśmy zaprosić Państwa do...
Join us for the virtual Rare Disease Day 1q44 Run & Walk. You can choose to run or walk the...
Die 4. Praxis-Werkstatt für Epidermolysis bullosa richtet sich wieder an Betroffene und deren Angehörige, Fachkreise, Freunde, Förderer und Interessierte gleichermaßen....
2022 will be the fifth Rare Disease Day (dubbed Rare Showcase) to be observed in Ghana being championed by the...
We will organize a press conference on 25th February 2022 online to promote the RDD Campaign in Romania and to...
The event will be organized in partnership by the Romanian National Alliance for Rare Diseases will organize a common national...
The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...
Učenici Posebnog razrednog odjela i učenici 1. razreda osnovne škole ( Tin Ujević Krivodol ) kroz eTwinning projekt ACCEPTING OUR...
Press Conference to launch Rare Diseases Campaign in Malta
Je m'appelle Clémence GUALY, j'ai 26 ans, je suis atteinte d'une Cardiomyopathie Hypertrophique depuis ma naissance, j 'ai été opérée...
Indonesia CARE for RARE Diseases proudly present SpectacuRARE Fest 2022. All event will be a virtual event. Webinar | IG...
www.rarascomciencia.com.br
Gogohope Virtual Sport Challenge is created with the objective to inspire and motivate everyone especially our MLDA patients to be...
1) Activities to learn about diseasesPicture book reading Thinking about illness and life2) Pray for the convergence of coronaMaking underlay...
Presentation and sharing of experiences by members of member organizations (patient groups)
Program (tentative) -Support System for Intractable Diseases in the Corona Era -Spiritual care -Live music performance by musicians -Medication counseling...
Meeting aimed at disseminating research activities on rare diseases carried out in the Valencian Community.++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++Jornada destinada a dar a conocer...
Multiple System Atrophy (MSA) Online International Exchange Meeting1〉Opening remarks (10 minutes) Panel discussion (60 minutes)[Theme] "International Treatment Research and Patients...
In recent years, intractable disease cafes have been gradually spreading from the Kyushu area to the Kanto and other regions...
RDD2021 introductionPatients testimonial Mr. and Mrs. WakuiParticipants: Only those who work at Hamamatsucho Building
Ciné-débats gratuits, 100% digitaux. L’objectif est d’inviter chacun à ouvrir les yeux sur les maladies rares dans une démarche bienveillante...
Date: March 9 – 10, 2021 Time: 11am – 2pm EST Registration: https://bit.ly/39szgDs
What do you know about Rare Diseases? Today, 28 February, is the very well-known Rare Disease Day; the day dedicated...
In RDD Yamaguchi, we will express the theme of RDD Japan 2021, "Your want to know rare, I want to...
Held online-livePatients’ testimonial Discuission; What we can do for welfare and care, etc.
Simposio iberoamericanoAtención integral en Enfermedades RarasEl caso de los Trastornos Hereditarios del Tejido Conectivo«Un marco estratégico para Latinoamérica»Hashtag: #THTC2021El simposioEl...
Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of...
Nuove ricerche sull’Incontinentia pigmenti ai tempi del COVID-19 In occasione della Giornata Mondiale Malattie rare, l’Associazione Italiana Incontinentia pigmenti ONLUS (IPASSI)...
The challenges facing patients with inherited metabolic diseases (IMDs) in Greece are many and formidable and are highlighted due to...
El pasado sábado 6 de marzo de 2021 la Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios, organizó un encuentro...
Coping Through Covid and BeyondA health and wellbeing presentation, delivered by Dr Christianna Kyriacou, Counselling Psychologist, Royal Brompton Hospital. A...
2DO FORO DE TAMIZ NEONATAL Y ENFERMEDADES RARASEn el marco del Día Mundial y Nacional de las Enfermedades Raras 28...
There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their...
Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare...
Conferenza Stampa conclusiva "Giornata delle malattie rare: UNIAMO le forze", Mar 4, 2021 11:00 AM in Rome. Link per registrarsi https://zoom.us/webinar/register/WN_Y4FEbnWGSFWSEhuhquaHjQ
This week the world shares in raising the awareness on Rare diseases. Being aware means early diagnosis and effective treatment.#Rareismany#Rareisproud#Rareisstrongالاسبوع...
Para conmemorar el Día Mundial contra el Cáncer (4 de febrero) y el #RareDiseaseDay (28 de febrero), trataremos el Tumor de...
The Psi. Paulina Peña, director of AcceSalud, will be a speaker at this important forum. La Psi. Paulina Peña, directora...
Be a part of History. Join the call for the United Nations to adopt a Resolution for Persons and Families Living with a...
New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
El próximo 4 de marzo se presentará el cluster de enfermedades raras - CER.Para más información consulte la página de Facebook...
Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org
En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021.La Lic. Jacqueline Tovar Presidenta...
Focus on rare disease: Prime time — gene therapy for rare disordersSixth annual seminar showcasing rare disease research.Wednesday, March 3...
Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org
Hello-Barev!Scientific event, organised by AHA, aim to discuss the following topics: Hemophagocytic Lymphohistiocytosis, Vexas Syndrome, MGUS, Primary Immunodeficiencies, Rare Fungal Infections,...
Desde el Ministerio de Salud de la Nación de Argentina conmemoramos el Día Internacional de las Enfermedades Poco Frecuentes con un...
A l’occasion de la Journée Internationale des Maladies Rares, vous êtes conviés au premier webinaire des Rendez-Vous du GHU organisé par...
On 2 March, people living with XLH, a rare genetic bone disease, as well as scientists, staff and students from...
Conference aimed at learning the communication tools and strategies through social networks to improve the visibility of the research carried...
Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
A l'occasion de la journée internationale des maladies rares 2021 et dans la continuité de l' action de sensibilisation et de mobilisation de l'opinion...
Fecoer organizará el 2 de Marzo el Foro Virtual "Soy Raro, soy Único". Para más información consulte la página de Facebook...
Monday, March 1, 13 PM. remotely there will be a conference on Youtube ′′ Genetics Revolution - are we ready...
Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway...
Pak-IMD Net: Patient Support Group Meeting: Living Better with IMD’s in PakistanEngaging patients & families of patients with inherited metabolic...
The patient organization “95” Rare Alliance Greece has among its objectives the Education and Empowerment of patients with Rare Diseases,...
L'obiettivo di Rarity on Wheels "Rarità su ruote" promossa da ll' Associazione Nazionale Un Filo per la Vita si svilupperà attraverso...
Giornata Nazionale IICB – 1 MARZO 2021 Il racconto della Comunità di Un Filo per la Vita Onlus fatto attraverso...
We are excited to announce that we will be hosting our first ever Virtual Conference, running from 1st - 6th March...
Cerramos una semana de acciones con un acto emblemático. A las 11 horas izaremos la bandera de la Unión Latinoamericana de...
In occasione della prossima Giornata Nazionale dell’IICB Un Filo per la Vita Onlus desidera realizzare una grande campagna dedicata al...
Maine Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
From 02/02/2021 until 01/03/2021 BORDIS is committed to create awareness on rare diseases by sharing information on rare diseases and...
More information to come in the following days!
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
On Sunday 28 February, on the occasion of the 14th Rare Desease Day, the "Together we illuminate the rarity" event...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
We are celebrating Rare Disease Day 2021 by showcasing the rare disease community in UAE. Families, professionals and academics will share...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Virtual Musical RariTea – 28th February 2021 @3pm RariTea is the NIRDP campaign to encourage people to get together and...
l CIBERER organiza la décima edición de la Jornada Investigar es Avanzar con motivo del Día Mundial de las Enfermedades Raras el...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
The Illness Challenge Foundation (ICF) plans to continue raising public awareness on rare diseases through public events and media coverage....
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Il gruppo dei volontari del Coordinamento Telethon della Basilicata, guidato dalla Coordinatrice regionale Eliana Clingo, ha chiesto alle amministrazioni comunali...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Serán iluminados con el color violeta (referente de los colores de FADEPOF)CABA, Buenos Airess:•Palacio Lezama•Usina del Arte•Planetario•Torre Monumental•Floralis•Puente de la...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
10 guide turistiche per 8 tour "Rari" nel centro storico di Padova.Domenica 28 febbraio dalle 14 alle 17 con partenza...
We will iluminate the old parliement of Andorra, with the colors that represents the rare disease. Other emblematic building will be...
Social media campaign held by RARE Diseases Lesotho Association. Throughout Sunday we will be posting videos of what makes us...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim
Campagna “Accendiamo le luci sulle malattie rare”: i monumenti più rappresentativi di diverse città italiane si illumineranno con i colori...
The celebration of 11th Rare Disease Day Thailand is scheduled on Sunday, 28th February 2021, from 8:30 a.m.-4 p.m. at...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
"Rare is sometimes painful, often unseen.Always present.Rare is brave, determined, finds joy in the little things"In our event, we focus...
The KLS Community has come together to spread awareness of Kleine-Levin Syndrome and Rare Disease. All members of the community were...
Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make the...
Presenting a unique run/walk/bicycle ride for 7000 meters at 7:00AM on 28 February 2021Your Venue, Your Choice! Run on your own,...
In occasione della Giornata delle Malattie Rare, Le Ali di Camilla e il Centro di Medicina Rigenerativa “Stefano Ferrari” dell’Università...
The following locations/landmarks in Queensland will be illuminated to mark 2021 Rare Disease Day:- Mackay Fountain- Story Bridge - Victoria Bridge - Reddacliff...
La Asociación Española de Esclerodermia, Fundación Ahuce y Asociación Conciertos Solidarios organizan la IV edición de la gala MONÓLOGOS SOLIDARIOS POR EL DIA MUNDIAL DE LAS...
“Baking is done out of love, to share with family and friends, to see them smile.”JOIN US! Let’s make chocolate...
Move2Advocate, Pledge2Move VIRTUAL CELEBRATION!! On Rare Disease Day, Next Sunday February 28, 2021, will you move with us?! Here's what...
O Instituto Nacional de Saúde Doutor Ricardo Jorge, em colaboração com a DGS, a Comissão Interministerial de Coordenação da Estratégia...
Die Coronavirus-iCovid 19 hat begonnen, auch Kinder ernsthaft zu treffen. Das Multisystem-Entzündungssyndrom (MIS-C) bei Kindern gefährdet die Gesundheit von Kindern,...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
This event took place on Feb 28 and lead by Pro. Sun Yun, director of the Department of Reproductive Medicine of Renji Hospital. The...
يوم توعوي، عبر منصة الزوم، موجه للجمهور، يهدف الى زيادة وعي المجتمع الأمراض النادرة، التي ليست نادرة في السعودية، وكيفية...
PMSF Australia is hosting its 8th High Tea event. This year we have decided to go GLOBAL. Join from any...
The National Conference on Rare Diseases and Digital Health on 28.02.2021 had over 300 participants. Mr. Cristian Bușoi, Member of the European Parliament presented EU4Health. A...
Acıbadem Mehmet Ali Aydınlar Üniversitesi ACURARE-Rare Diseases and Orphan Drugs Application and Research CenterRare Immune System Diseases During The Pandemic...
On February 28, 2021, at 13:00 EET in front of the National Palace of Culture in Sofia, Bulgaria, patients with...
Il 28 febbraio 2021 avrà luogo l'evento PADOVA SI ILLUMINA. In tale occasione, dalle 18.30 verrà illuminato il Palazzo della Ragione della città di...
OUR VOICE for RARE digital 2021 This fundraising event aims at informing our population about rare diseases, and at raising money for research.Our...
"In the prism of rarity” will be held on Sunday 28 February at 11.30 am live on our Facebook page...
In occasione del RARE DISEASE DAY, il coordinamento provinciale Lecce Fondazione Telethon ha deciso di aderire all’iniziativa di UNIAMO “Accendiamo...
Social Fund "Omirge sen" (Believe in Life) in Kazakhstan organized today (28 Febr.) the online Conference dedicated to the Rare Desiese Day ...
On February 28, 2021 the Center for Rare Diseases Research Center of the School of Medicine, New Vision University organized...
The following landmark in New South Wales will be illuminated to mark 2021 Rare Disease Day:- Newcastle Clock Tower Illuminations organised by Andrew...
El día 01 de marzo se llevará a cabo una videoconferencia con una Dra especialista en genética, dirigida a estudiantes...
En février, les projecteurs se braquent sur la résilience des personnes vivant avec une maladie rare!Voilà, nous lançons la 6e...
The colours and the logo of Rare Disease Day will be projected from 6.00 pm to 10 pm on 28th February...
For more information: [email protected] prévoyons un après-midi sensibilisation grand-public, avec divers animations, entre 14h00 et 17h00 :- Atelier sur la gestion...
Lançamento do 1º CURSO A DISTÂNCIA: “SINAIS DE ALERTA DE DOENÇAS E SÍNDROMES RARAS PARA EDUCAÇÃO BÁSICA E ATENÇÃO PRIMÁRIA...
Join us on Sunday 28th of February as we celebrate our beneficiaries and every 1 in 2000 citizens who go...
Representantes de la Comunidad de ER en nuestra Ciudad junto a autoridades locales participarán del Izamiento de Nuestra Enseña Patria...
Here we are again continuously for the sixth year with all the challenge either in the hospital itself or the...
Illuminations for Rare Disease Day 2021 in Poland:- Neptun's Fountain, Gdansk | LINK- Stadion Gdańsk, Gdańsk | LINK- Dyrekcja Building of the...
Hong Kong will host a round table on RD Drug Policy on 28 Feb. Academia, health economist ,Sociologist and pharma...
Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the...
- le Chu d'Amiens s'associe à la filière AnDDI Rares et propose un ciné débat gratuit en ligne,- l'hôtel de ville...
Pendant la journée du 28 février, nous aurons exceptionnellement ce dimanche là ,une thématique sur l 'Ictère (jaunisse ) et...
2/28/21 is #RareDiseaseDay2021 around the world I partnered with SkyView Atlanta this year to host a family outing for our special...
Evento solidario para dar a connocer y visualizar las colagenopatias tipo II.Este acto se hara el día 28 de Febrero,...
We celebrate the Rare Disease Day (Día Mundial de las Enfermedades raras) including doctors of every department, nurses, social workers, lab...
Il Forum Toscano delle Associazioni per le Malattie Rare celebra la RDD 2021 con la campagna di sensibilizzazione "LA TOSCANA...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Get to know about rare disease from speakers who will bring their unique perspective. Dr Neelam Ismail, a family medicine resident...
Lanzamiento de video poco frecuente “Mi Bandera 2021” con canción de bandera cantada por Attaque77 y otros artistas.
China's very first official white paper on rare diseases: "Rare Diseases Diagnosis, Treatment and Security" will be published by the...
Rare Diseases Montenegro are pleased to invite you to the online conference that will be organized on Rare Disease Day,...
The Adenomyosis Advice Association is working hard on this year's Rare Disease Day 2021 campaign and in this our 10th...
https://www.rarediseaseday.org/downloads
The colours and the logo of the World Rare Diseases Day will be projected from 6.00 pm to 10 pm...
[ENG] On the occasion of the Rare Disease Day 2021, Dúshlán is organizing an online event on Feb. 28h, from 11h...
For the first time, we are going to do a charity event for Rare Disease Day in the online virtual...
We will light the top of tower 42 in rare dieseaae day colours in 28th Feb 2021!
Thank you councillor Emlyn Dole. Leader @CarmsCouncil for arranging County Hall #Carmarthen #Wales to be lit up to mark Rare...
On the 2021 RD Day a building of the Czech Ministry of Health will lit in the colours of the RD...
On Rare Disease Day we will make the exciting announcement of our SMA research project!We hope to help to increase...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
The following locations/landmarks in New Zealand will be illuminated to mark 2021 Rare Disease Day:- Oamaru Opera House, New Zealand- Michael...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Thanks to UILDM's branch of Martina Franca and to the positive answer of the local authorities, three monuments will be enlighted...
Under the slogan: "MAKE YOURSELF VISIBLE", and within the framework of the International Campaign for Dissemination and Awareness for Rare...
Our Rare AHC Event:A Virtual "Rare Coffee & Cake" for International Rare Disease Day 2021 and collecting funds for Alternating Hemiplegia of...
Being mind-full. Wellness for people living with a Rare DiseaseWe welcome everyone to join us online to iscuss mental health...
Northern Ireland Rare Disease Partnership (NIRDP) are really excited to share that the Iconic Belfast City Hall, in Northern Ireland will...
The following locations/landmarks in Victoria will be illuminated to mark 2021 Rare Disease Day:- AAMI Park Melbourne - Wodonga Water Tower - Crown...
In Catania Aismac photo contest the subject of de Chiari tree in Piazza Martiri della Libertà.Fotografare l'albero di Chiari.Concorso fotografico AISMAC...
The following locations/landmarks in Canada will be illuminated to mark 2021 Rare Disease Day:- CN Tower in Toronto, Canada- Calgary Tower, Canada-...
The following locations/landmarks in the United Kingdom will be illuminated to mark 2021 Rare Disease Day:- Bradford City Hall, Bradford- Macmillan...
The purpose of the event is to enhance awareness about the centers of excellence for rare endocrine diseases in Greece there...
The Chinese Organization for Rare Diseases (CORD) plans three simultaneous charity sales in Beijing, Hunan and Hangzhou. The proceeds will...
Church of St. John the Evangelist in the Municipality of Logatec, in Slovenia, was lit up to raise awareness of...
Thanks to the work of UILDM branches (UILDM - Unione Italiana Lotta alla Distrofia Muscolare) we will have 19 monuments...
To coincide with Rare Disease Day on 28th February, Andrew Roach Talent and Ingenious Fools are pleased to announce that...
TV Tower in Tbilisi will be illuminated with colours of rare diseases in order to spread awareness of rare diseases.
In occasione della “Giornata delle malattie rare – Rare Disease Day”, Arcoiris Onlus ha il piacere di invitarvi al tour virtuale della mostra Per Gioco....
Este año en OMER hemos decidido sumarnos a las actividades del Rare Disease Day, a través de un evento dirigido a...
The following locations/landmarks in the United States will be illuminated to mark 2021 Rare Disease Day: - Niagara Falls, New York - The Helmsley...
Texas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day:- Paranaple Convention Centre- Launceston Town HallIllumination organised by Andrew Bannister.
We hope to see plenty of members and any others at our beach picnic at Orewa this Sunday in support...
Domenica 28 febbraio, STORIE RARE –Noi i veri protagonisti!!! | Intervista a due bambini metabolici (pubblicazione sulle pagine Social di AISMME...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Koronavirüs hastaliginin çocukları da ciddi şekilde etkilemeye başladı.Çocuklarda Multisystem Inflammatory Syndrome (MIS-C), COVID-19 ile enfekte kullanım sağlığını riske atıyor.Pandeminin başladığı...
The following location in South Australia will be illuminated to mark 2021 Rare Disease Day:- Adelaide OvalIllumination organised by Andrew Bannister.
Bijnierpatienten in Nederland en Europa ervaren vaak problemen, bij het tijdig en juist diagnositiceren van hun aandoeningen/ziekten.Door het platform: ENDO-ERN...
1 abanderado niño y 1 adulto con EPOF serán los abanderados de las EPOF en el arrío de la Bandera...
Delaware Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
The Swedish Association of Chronic Oedema, member organization of EURORDIS, has decided to organize a Webinar on Dercum´s disease with...
What does RARE mean to me? - HWTH Health Awareness Campaign
The following locations/landmarks in Perth will be illuminated to mark 2021 Rare Disease Day:- Optus Stadium - Bell Tower Perth - Fremantle...
For the first time, the iconic Werribee Mansion will be illuminated in the colours of Rare Disease Day from 7.30pm...
Webinário Doenças Raras no Brasil Avanços e Desafios - Domingo 28/02 às 10h pelo canal do YouTube da FEDRANN (https://www.youtube.com/channel/UCAGDOBFEBSTX-NmEmo9RWyA)Abertura...
Australian Sickle Cell Advocacy Inc will be hosting a panel of discussion with 5 people living with rare diseases in...
10 Jahre Kongenitaler Hyperinsulinismus e.V.Zum Tag der Seltenen Erkrankung begehen wir den 10. Jahrestag unserer Vereinsgründung.Mit unseren Mitgliedern möchten wir...
During the last 13 years, we have with great success commemorated Rare Disease Day in Colombia, in a public event...
We would like to inform you that Farmaceutski fakultet, Novi Sad will mark the International Day of Rare Diseases in...
The Joint Organization of the Disabled and Young Disabled People invites you to a webinar on Rare Disease Day 2021....
On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech...
February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse...
When the disease is rare, it is hard to find others in the same situation. For Rare Disease Day 2021,...
A Rare Disease and Mental Health Chat with David Ross, Chelsea Streit and special guest The Mata sisters from @Looms4LupusThis...
Il 28 Febbraio 2021 il Comune di Jesolo (VE) illuminerà la biblioteca comunale in Piazzetta Jesolo e la scritta "JESOLO" in Piazza...
Il 28 Febbraio 2021 il Comune di San Donà di Piave (VE) illuminerà il Municipio in Piazza Indipendenza con i...
La Fontana monumentale di Piazza A. Moro di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare...
La Torre dell'Orologio della Città Metropolitana di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare la...
The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day:- Telstra TowerIllumination organised by Andrew Bannister.
El próximo domingo 28 de febrero, pacientes, familias y asociaciones que conformamos la Red EPOF Santa Fe estaremos visibilizando enfermedades...
February 28, 2021 is Rare Disease Day.My son, Archie, was diagnosed at birth via the newborn screening test with a...
We are really pleased to announce our virtual Rare Disease Day event. We are holding a virtual Afternoon Tea with...
Virtual tour of the exhibition "Per Gioco". The collection of antique toys of the Capitoline Superintendence..The exhibition focuses on the...
O Tito tem a doença rara Neurofibromatose Tipo 1 (NF1), e é a personagem principal deste livro infantil. Nesta história,...
The Allliance Algérienne contre les Maladies Rares will organise an online forum on Rare Diseases. More information to come!
The Association of Rare Disease Patients registered in Bosnia and Herzegovina is organizing an online event to mark the Rare...
On Rare Disease Day join us for a 2-hour special virtual meeting of our international Stargardt's Community, bringing together people living...
La Fondation Maladies Rares vous invite à participer à la Journée internationale des maladies rares pour soutenir les 3 millions de personnes...
La Cité des sciences à Tunis, célèbre le dimanche 28 février 2021 la journée internationale des maladies rares, et ceci...
Foro realizado desde hace 4 años con la intención de ayudar a visibilizar a las enfermedades poco frecuentes en el...
Poster ExhibitionPoster exhibition by member organizations of the Kagoshima NANBYO Support NetworkIntroduction of the 10th anniversary of the Kagoshima NANBYO...
On February 28, 4 p.m., a free yoga session will be available on Elena Boriani's youtube channel and will remain...
Held "online-live" Dialogue with patient families (By invitation only)
Kurdistan rare disease center in cooperation with Sanofi Genzyme recognized international rare disease day by conducting a lecture about Gaucher disease...
Together with the Vita Club Salzburg we are going into the second round again this year, we will show you...
Message from a person with a rare and incurable diseaseMrs. Aya Nakajima, mother of a son with congenital central alveolar...
Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.
Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.
New Center for Research and Treatment of Pulmonary Rare Diseases. Cooperation between University Hospital of Ludwig-Maximilians-University Munich and Asklepios Fachkliniken...
"Que história é que eu quero contar?" foi a pergunta que a Lia Silva colocou a si mesma acerca de como...
Recordatorio durante todo el día de que la Distonia es una Enfermedad Rara pero no por ello es invisible, requiriendo...
RARE CANCER – how rare is rare?’ 11am-1pm GMT Sunday 28th February 2021Join our live audience for a special podcast...
An all day online event with activites for children and parents. -story telling. 5 actors are reading the stories in an...
28 FEBBRAIO 2021 RARE DISEASE DAY: Mondo Charge aderisce alla giornata internazionale di sensibilizzazione sulle malattie rare con la campagna...
As we cannot meet for our traditional RARE RUN BOLOGNA we orginized a Special Edition: the VIRTUAL RARE RUN BOLOGNA
Lighting from 5pm to midnight on the Terrassa City Council in the colors green-pink-blue for the day of minority diseases. Highlighted...
Rare diseases are not as uncommon as they seem. More than 300 million people are affected by a rare disease,...
Over 300 million people are living with a rare disease worldwide. Rare diseases are currently affecting 3.5% – 5.9% of...
By using the Rare Disease Day colours to light up Technopolis (Gazi), an industrial museum and a major cultural venue...
This year the Lithuanian Rare Diseases Community has joined the global chain of lights. Lithuanian Child Neurology Association and Hospital...
Thanks to the active management of Mujer México (saludmaterna.org), the deputies will once again illuminate the frontispiece of the beautiful...
illumination of the maqam echahid monument during the night of February 28 with the logo of the RDD2021
Rare Diseases: Beyond Covid 19Online event / Sunday / 28.2.21 / 19:30Registration
Each bone tells a story. Each story is a bridge between past, present and future.Watch these short videos to: 1. Know...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Medical lecture on intractable neurological diseasesLecturer: Shinno Clinic Dr. Susumu Kamino, DirectorLecture title: "Let's learn about intractable neurological diseases!"1:30 p.m....
The FMDSA would like to bring awareness to #RareDiseaseDay by inviting you to submit a picture wearing your favorite zebra print...
The Charlotte and Gwenyth Gray Foundation was founded in 2015 by Kristen and Gordon Gray when their oldest daughter Charlotte was diagnosed...
Now that it is difficult to get together at the Corona disaster, we will collect your voices and create a...
Infinity Family Car ClubNitroxx ArubaTeam X-pa Aruba Family and Friends did organized a drive by on 28 febr 2021.Media was there...
On the occasion of celebrating the Day of Rare Diseases in 2021, NORBS is organizing an educational program for students of...
[EN]LBioMiT & CNC (Center for Neuroscience & Cell Biology) Communication Office celebrate RDD2021! With interventions of scientists, doctors, patients & their caregivers,...
1. Explanation of the purpose of the project Guest; Yukiko Nishimura (RDD Japan chief secretariat)2. (Discussion) First, let's learn about...
Nuestro comité Científico representado por dos grandes referentes de nuestro País,Dr. Victor Raggio ...
Os animamos a grabar un vídeo con nuestro lema: LA INVESTIGACIÓN, NUESTRO CAMINO A LA ESPERANZA. Podéis hacérnoslo llegar por...
The following locations/landmarks in Estonia will be illuminated to mark 2021 Rare Disease Day:- TV Tower EstoniaDisclaimer: Illuminations organised by Andrew Bannister...
Program of RDD Tokyo (Feb. 28, 13pm-19pm (JST)) 13:00 Opening performance / Ayako Ozawa (Singing and storytelling by people with...
Con motivo del día mundial de las enfermedades raras, vamos a preparar desde FEDER una serie de acciones online en...
Online streaming of mini-concerts and greeting messages from concerned parties!
Online-social small event
11:00 - 12:30 Talk show-1 Let's become a disaster preparedness person" - Mr. Toru Terukina12:30 - 13:00 Break (RDD Japan...
En este día tan especial se iluminarán en la ciudad de Rosario diferentes edificios gubernamentales, entre ellos el PALACIO VASALLO,...
Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en...
Nurture the Hope! Together to increase the awareness on SMA disease leaving no patient behind.
La nostra organizzazione di volontariato unitamente all'Associazione Consumatori e Cittadini Italiani organizza un webinar sui diritti di welfare di cui...
O webinário #SomosTodosRaros busca levar identificação com a causa para diferentes públicos, pois somos todos ÚNICOS em nossa individualidade e podemos...
ENG: Our event's mission is to gather Polish medical students and people living with rare diseases (as well as their...
For the celebration of the fourteenth International Rare Disease Day that is held every year the 28th of February, students...
Sabato 27 febbraio, dalle ore 18 alle 19 | STORIE RARE – Facciamo che “io ero”…Storie per stare insieme | Letture per...
Tisztelettel és szeretettel meghívjuk a Ritka Betegségek Világnapja alkalmából szervezett programjainkra, melyeket a RIROSZ, a Ritka és Veleszületett Rendellenességgel Élők...
Dit jaar hebben we aandacht voor erfelijke (zeldzame hematologische) kankers. Een geneticus vertelt wat het is en een clinicus vertelt...
Apresentaremos um vídeo com as pessoas integrantes do grupo POLICONDRITE AMIGOS - REDE BRASILEIRA PELA POLICONDRITE RECIDIVANTE, conscientizando sobre o...
Online social events Organizing coloring book projects
We are going to have 2 event for Rare Disease Day 2021 1. “Illuminates Building For Indonesia’s Rare Disease Day...
Webinar concerning Rare DiseasesMetabolic diseases are rare diseases.Implementation of the Belgian Rare Disease Plan, updateRegister Now!
Ziua Internațională a Bolilor Rare 2021 Anul 2021 marchează cel de-al 14-a an în care comunitatea internațională a bolilor rare...
Oman Society for Genetic Medicine is organizing a virtual awareness event for public on 27th February 2021.
12:30 Opening / Watching RDD Japan video13:00 Opening remarks13:05 Self-introduction of participants13：30 Break / Watching RDD Japan video13：40 Let's learn...
We shall be holding a virtual event on 27th February, 2021 at 10.00amTheme: Rare in a Covid WorldKindly check out...
Sehr geehrte Damen und Herren, sehr geehrte Selbsthilfeaktive, sehr geehrte Interessierte, gerne möchte ich Sie heute nochmals auf...
We are organizing the Rare Day for the second time in Mali. This event will gather scientists, patients and officials...
V Fórum internacional de Doenças Raras - Uberlandia Brasil - dia 27/02/2021. ingressos gratuitos em https://www.sympla.com.br/v-forum-internacional-de-doencas-raras-de-uberlandia__1107076participem!!
Dear colleagues, ladies and gentlemen, The Center for Rare Diseases (ZSE) of the Ulm University Hospital would like to cordially...
Rare Disease Day Bay Area is 2-day Livestream event on Twitch, featuring a Raid Train on Saturday and Sunday with over...
Making people aware of rare Nanbyo diseases;9:40 Registration10:00 Opening remarks10:10 Performance10:40 Workshop12:00 Break13:00 Watch RDD2021 Special Video Program "Children's Feelings,...
We helped in organization of a meeting with experts in rare disease (doctors, Ministry of Health, researchers, and psychologist)Around 16 organizations...
we are happy to announce that on February 27 and 28 we will hold the so-expected Bilateral Seminar with the...
On 27 February 2021, the Cyprus Alliance for Rare Disorders in collaboration with the Cyprus Medical Association will be hosting...
Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare...
Three reports with three different focuses of rare disease in China will be released on RDD 2021 by the...
Mi autoestima y resiliencia: Reconozco y acepto mi lugar en el mundo Jóvenes y adultos.
In occasione della giornata Mondiale delle Malattie Rare il giorno 27 febbraio l'Associazione Nazionale Sindrome di NOONAN e RASopatie ODV,...
Ladies and gentlemen,on behalf of the Organizers, I have the pleasure to invite you to participate in the International Symposium...
Tarih:27 şubatsaat:21:00yer;zoomFebruary 28 Rare diseases event Başkent University Social Work Department lecturer, one of the authors of Rare Diseases in...
La tienda Trek - Bike junto a varios patrocinadores estan invitando a participar en un COLAZO ENTRE AMIGOS, de 82...
Harvinaisten ilta on verkossa toteutettava koko illan ohjelma! Harvinaisten illan aikana kuulemme mm. opiskelusta harvinaisen sairauden kanssa, minkälaista on kun diagnoosin...
İzmir Kent Konseyi'nin Değerli Paydaşları ve İzmir Kamuoyuna 28 Şubat Dünya Nadir Hastalıklar Farkındalık Günü etkinlikleri çerçevesinde, İzmir Kent Konseyi...
In the International Rare Disease Day 2021, Trazando lo Invisible invites you to the virtual and free event: "Hablemos de...
Due to the covid 19 pandemic we are organizing two virtual conferences from February 27 to 28, 2021 from 8:30...
Campaign "Let's turn on the lights on rare diseases": the most representative monuments of various Italian cities will light up...
Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Rare Disease Day 2021.On February 27, 2021, at the Colussi SNC Pharmacy in Martignacco (UD), there will be an information...
The green colour and the logo of the World Rare Diseases Day will be projected from 6.00 pm on 27th...
Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
El día 27/2 se realizará un webinar destinado a estudiantes de odontología y a odontólogos para que conozcas aspecos etiológicos,...
Diretta Facebook ore 16 con il dr. Squitieri che risponderà alle domande dei giovani sulla malattia di Huntington e sugli...
For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...
For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...
JOURNEE MONDIALE DES MALADIES RARES: 28 FEVRIER 2021Organisée par la Société Maliennede Génétique Humaine (SMGH)27 Février 2021,Grande Salle de réunion...
Para el Día Mundial de las EPOF lanzaremos un video junto al cantante Nahuel Penissi. La canción elegida es Avanzar. El...
l'Alliance Algerienne contre les Maladies Rares participe au Forum virtuelle Magrebin des maladies rares hebergé par l'Alliance des Maladies raresau Maroc(AMRM) et...
El Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (Creer), dependiente del Imserso, organiza...
Estimados amigos y compañeros: Como coordinadores del área IBIMA-RARE nos corresponde el honor y tenemos el placer de daros la...
On Friday 26 February 2021 we will run a virtual event directed to secondary school years 10, 11 and 12....
The last day of February is recognized worldwide as Rare Disease Day. We at SickKids, are proud to join the many...
Le Centre Hospitalier Cayenne organisera la Journée Internationale des maladies rares en Guyanne le 26 Février entre 10:00h et 12:00h. Affiche
Rare Disease Day In IranFriday 26th Feb., 2021RARE IS STRONG! RARE IS PROUD!Rare Diseases Foundation of Iran (RADOIR) is participating with a...
La Sociedad Científica de Estudiantes de Medicina de la Universidad Veracruzana en Minatitlán, a través de los Comités Permanentes de...
Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will show support for Rare Disease...
ILLUMINIAMO LA RARITA’L’Associazione Amaram Aps di Altamura, grazie alla collaborazione dei suoi referenti di zona e dei suoi soci attivi...
Looking to raise awareness and share key knowledge on rare diseases, the Cyprus Alliance for Rare Disorders is organising an...
Już po raz czwarty Instytut Biochemii i Biofizyki PAN organizuje sympozjum w Międzynarodowym Dniu Chorób Rzadkich. Tym razem wydarzenie „Dzień...
A l'occasion de la journée mondiale des maladies rares, plusieurs monuments se pareront en région des couleurs de la journée...
The UAE Rare Disease Society celebrates Rare disease day 2021 with a variety of events.1. An online webinar on 24.02.2021 directed...
Venerdì 26 febbraio, dalle ore 17.30 alle 19 | Non solo SNE: l’importanza del prelievo su cartoncino a domicilio per il...
On 26.02.2021, the Medical University of Timisoara has illuminated in the colours of RDD as a solidarity event of patients with...
Introduction of activities of the Hokkaido NANBYO regional center RDD2021 panel display Others
2/26/2021 From 12:00 to 13:30 there will be an expert discussion via zoom “Progress of Rare Diseases Treatment and Upcoming Improvements” organised...
Dia Mundias das Doenças Raras 2021A associação de Paraparesias Espaastica Correlatas do Brasil ira promover nos dia 26 a 28...
This Round Table is currently being prepared and will be organized by a newspaper Zdravotnický deník (specializes in healthcare issues)...
We will have an online tea party using Zoom. Please bring your own tea and favorite snacks by your computer...
Welcome to the fourth SEE RARE RUN VIRTUAL RACE! This year, we have two distance options: 5K or 5 miler! SEE RARE RUN...
Florida Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
Programa do Segundo Seminário do Conselho Municipal de Saúde/Secretaria Municipal de Saúde – Cuidando das Pessoas com doenças Raras e...
Online race, 5K and 10K for men and women, for raising awareness and funds for ECHS1 Deficiency and Mitochondrial Disease.
https://meet.google.com/vgb-vhvc-jyu
(1) Screening of contents provided by RDD Japan (2) Online lecture (3) Screening of a video introducing our rehabilitation center...
Georgia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
This year the Genetic Support Network of Victoria (GSNV), Australia will hold a virtual event to raise awareness amongst the general...
Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Inter-Institutional virtual event organized by civil associations of patients and their families with the support of the pharmaceutical industry that...
Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...
We had the opportunuty to gather around 15 rare disease organization at the government of North Macedonia to have a...
The Mission San Jose High School Students For Rare Diseases Club is kick-starting the year with a Rare Disease Day...
Le 26 février, à l'occasion de la Journée des Maladies Rares 2021 (28/02/21), le Centre des Maladies Rares du CHU...
Tag der Seltenen Erkrankungen in Mainz
Tennessee Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Форум проводится по инициативе Всероссийского союза пациентов и Всероссийского общества орфанных заболеваний. При поддержке Министерства здравоохранения Российской Федерации и Министерства...
The 26th of February the Rare Disease Foundation of Iran will celebrate Rare Disease Day with an online event. More information...
Join the GSNV in celebration of Rare Disease Day with a virtual journey showing the power of alliances that build...
Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
A special issue of the bulletin which we dedicate to describing what entails such holistic care for a person with...
Rare Fair 2021 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and...
The president of FEMEXER will be a speaker at this important forum. El presidente de FEMEXER, David Peña, será ponente...
The CMID, Coordination Center of the Interregional Network for Rare Diseases of Piedmont and Valle D'Aosta, organizes in collaboration with...
International Rare Disease Day is an annual celebration' day held each year on the last day of February. This year in Tunisia...
La Asociación Española de Paraparesia Espástica Familiar – AEPEF, participa en el Día Mundial de las enfermedades raras de una...
Le vendredi 26 février de 12h00 à 13h30 (CET), la nouvelle plateforme de prise en charge des maladies rares du...
Alabama Rare, Children's of Alabama, The University of Alabama at Birmingham, and the Alabama Genomic Health Initiative will host the...
Gran congreso Internacional sobre Enfermedades raras o poco frecuentes, en donde participarán. Organizaciones, médicos y pacientes en el marco de...
The press conference - Equitable access for care for people living with rare diseases through the National Plan for Rare...
Firefly Fund is challenging you to Run for Rare starting on World Rare Disease Day, Feb. 28. Over the next month, we...
Join Share4Rare’s webinar with live Q&As with renowned experts in the field of psychology and neuromuscular conditions. During an hour-long...
PROGRAMME OF THE EVENT On February 26, 2021, together with the movement of the orphan community "Orphan Bell" we will hold...
Rare disease day in IcelandTo honor rare disease patients all over the world Perlan Museum together with Gódvild will light...
A national conference on Rare Disease Day is traditional scientific event already in Moldova for the end of February, organized...
Join us for a Rare Disease Day WebinarThe Oxford-Harrington Rare Disease Centre (OHC) is pleased to present a guest lecture...
For RDD we planned an event for the 3rd postal stamp for rare diseases. The first was for children with rare...
Campaña de información a la ciudadanía a través de las redes sociales, de entrevistas de radio ,correos electrónicos y diarios digitales...
Fortune Favours presents The Rare Beer Challenge; a fundraiser for Rare Disorders NZ. We've asked Wellington breweries to use weird...
Join us for a Rare Disease Day WebinarFriday, February 2610 -11 am ET 3 - 4 pm GMTThe Oxford-Harrington Rare...
Il Convegno è rivolto agli operatori del SSN ai diversi livelli, ricercatori, referenti delle associazioni e a tutti gli stakeholder...
Rare Disease Day at Iowa State University is a completely virtual event hosted on Zoom by the ISU's Rare Disease...
Nadir Çağrı Kampanyası Türkiye’de bilinmeyen ve fark edilmeyen nadir yaşamlara dikkat çekmek, toplumda empati ve bilinç yaratmak amacıyla, “Sağlıklı birey,...
Part I: Actual Balancing of Treatment and Work in Various Diseases (Roundtable Discussion)Part 2: Information exchange meetings by disease (breakout...
Wisconsin Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
This is the 4th Rare Disease Day to be observed in Ghana being organized by Rare Disease Ghana Initiative. This...
Bugün, Nadir Hastalıklar Günü’ne dikkat çekmek üzere, Nadir Hastalıklar Ağı olarak çevrimiçi bir basın toplantısı düzenledik. Kurulduğumuz günden bugüne dek...
#FEMEXEResillientCarousel of videos of the allied associations of FEMEXER (from February 25 to 28, 24 hours a day on the...
On the occasion of World Rare Disease Day, we invite you to participate in a Facebook Live session with Dr....
We are inviting everyone to a webinar to be held on 25 February 2021 (Thursday, 4:00 PM) in observance of...
New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
Cette journée dédiée aux maladies rares permet de sensibiliser la population sur ces maladies et leurs impacts sur la vie...
Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
İzmir ili Dijital billboard ve toplu taşıma araçlarında videomuz yayınlanacak.
WALK FOR RARE is a virtual walk to raise awareness about rare diseases in Portugal. Join us and show how rare...
La historia de Piper, un pajarito valiente. Descubriendo el miedo y cómo ser fuertes.
Rare Diseases Awareness Day for Health Professionals This event was organised by members of Oman Society of Genetic Medicine mainly to...
Cómo ser un buen cuidador, pero cuidándome. Evento dirigido a padres y madres.
We are showing a new documentary about Rare in Iceland and how the system is working ore not working in the...
#AnkaraKentKonseyi Halk Sağlığı Çalışma Grubu tarafından organize edilen "Ankara Kent ve Sağlık Buluşmaları" Nadir Hastalıklar başlığı altında 24 Şubat Çarşamba günü...
Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Online. Public registration coming soon!For more information please see the Black Pearl Awards website or email [email protected]
Il 28 febbraio 2021 si celebrerà l’annuale giornata mondiale sulle Malattie Rare. L’Azienda Ospedale Università di Padova [AOUP] è la...
PERCORSI RARI INSIEMEMERCOLEDI’ 24 FEBBRAIO ORE 16-18 su piattaforma ZoomLe associazioni Amaram aps, Assieme onlus, Aid Kartagener onlus, Vite da...
El Nano Rare Diseases Day es un evento organizado en el marco del Día Mundial de las Enfermedades Minoritarias donde se darán a...
GeneRare:Getting to Know Genetic and Rare DiseasesMeetings on Rare Diseases and new genomics addressed to health promotion, prevention and responsible...
Tercer simposio, que se desarrolla con participación de personas con enfermedades raras, familiares, red comunitaria y profesionales de salud e...
Nevada Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Cumbre Nacional de Enfermedades RarasEs hora de construir oportunidades por un mundo sin barreras.
New Hampshire Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
"Thinking about Coexistence Week" Paintings, photographs, paper cutouts, picture postcards, calligraphy, calligraphy, haiga, stained glass, pottery, puzzles, floral arrangements, kumihimo,...
Tygerberg Hospital and Stellenbosch University will celebrate Rare Disease Day on 24 February 2021 and with #28FactsFor28Days on social media.
Kansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Actual discussion: Santa Survila, Ivars Balodis interviewing Baiba Ziemele, head of Latvian Alliance of Rare Diseases. Available support for people...
On 24 February 2021, the President of the Cyprus Alliance for Rare Disorders, Mr Charalambos Papadopoulos, will be giving a livestreamed...
Rare diseases are characterized by a large number of broad and diverse disorders and symptoms, majority having identified genetic origin....
Arizona Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Virtual Parliamentary EventRare Disease Day is an opportunity for the rare community to come together to raise awareness of the...
O Observatório de Doenças Raras (ODR) da Universidade de Brasília realiza, desde 2012, um evento alusivo ao Dia Mundial das...
EN EL MARCO DE LA CONMEMORACIÓN DEL DÍA MUNDIAL Y NACIONAL DE LAS ENFERMEDADES RARAS SE ILUMINARÁN EL FRONTISPICIO DE...
Colorado Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
IV edizone di "Rare Abilità", adesione alla campagna Nazionale con l' illuminazione di Palazzo di Città (Fasano -BR) e momenti...
The NYSCF Research Institute's Live Conversations with ExpertsUnlocking Rare Disease Treatments with Stem CellsFebruary 24, 2021 at 5:00 PM ETRegister...
Massachusetts Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Indiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
COLOUR FLAIR FOR RARERare Disease Day 2021Delighted to share our #RareDiseaseDay Colouring Challenge to raise awareness. Its a very simple...
The excitement is continued! In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce...
Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening...
The future of rare diseases starts today - Recommendations from the Rare 2030 Foresight StudyThis event will be the culmination...
webinar: https://stream.lifesizecloud.com/extension/7692222/50fd52a8-e9c6-4268-ad33-1fcd476f6a75 La celebrazione della Giornata mondiale delle Malattie Rare assume quest’anno, anch’esso unico e raro, una connotazione ancora più...
In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce that SMA Malaysia will...
Since 2016 every year in February the Department of Skin and Venereal Diseases of the Lithuanian University of Health Sciences...
Il 23 febbraio 2021 dalle ore 10 alle ore 13 avrà luogo online l’evento Medicina e arte. I colori della...
Cuidarse por fuera, pero también ser “guapos” por dentro, siendo solidarios. Es el objetivo de la campaña #GuaposPorDentroYPorFuera que lanzamos desde Aefat,...
Khim Lamichhane, a patient advocate from Nepal, has organised several events to raise awareness for people living with a Rare...
The students of the 2nd Primary School Čakovec (II. osnovna škola Čakovec) through the eTwinning project Teachers for Europe: Democratic...
West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to attend the webinar on "Improving...
Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
North Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
This year campaign moved in social media for continuing our activities initiated in 2013 and will focus on:*Press Releases in...
Exhibition at the following facilities. 1) Niigata Prefectural LibraryFebruary 25 - March 7, 2021 2) Honport Niigata City Library March 4 - April...
Asociación Mexicana de Amigos Metabólicos, AC, se suma a la celebración de los “50 años del Instituto Nacional de Pediatría”...
With the slogan "I am rare alone, together we are strong", we invite all schools on this day to join us in...
We are interviewing our parents of children with rare diseases to bring awareness in our community.
Como cada año, los alumnos de la Facultad de Medicina de la Universidad Autónoma de Guadalajara (UAG), en colaboración con...
Young researchers will present the equipment acquired with FEDER funds and its applicability in their research on Rare Diseases.+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++En esta...
L’Orchestra Asclepio, composta da medici, studenti di medicina e operatori sanitari, rende omaggio ad uno dei luoghi più significativi della...
Gaucher disease is a little known rare genetic disease. When the diagnosis is early and the treatment begins in time, the quality...
In the Philippines, National Rare Disease Week, which is held every last week of February, places the concerns of the...
Liebe Patientinnen und Patienten, liebe Angehörige und Interessierte,anlässlich des Welt Enzephalitis Tages am 22. Februar 2021 laden wir Sie herzlich...
https://youtu.be/jWhpqb1PnhUACCENSIONE DELL’ARENA DI VERONA IN OCCASIONE DELLA GIORNATA MONDIALE DELLE MALATTIE RARE - In occasione della giornata mondiale delle malattie rare che...
This February we're flipping the script and encouraging South Africans to share their rare stories in an effort to stimulate a...
Light it up for Rare Diseases! The National Alliance for Rare Diseases Support - Malta in collaboration with the Mdina...
Due to the COVID-19 pandemic, gathering events will not be possible in 2021. Thus, the rare disease community has decided...
Online. This is a closed event for the accepted applicants from the Council of National Alliance members.For more information please...
XIV GIORNATA MONDIALE MALATTIE RARE "AIUOLE DELLA RARITÀ"LUNEDÌ ’ 22 FEBBRAIO ORE 10. 00 Ospedale Pediatrico Giovanni XXIII di Bari...
On the occasion of the rare diseases day, Dravet Italia Onlus Is promoting a campaign aimed at raising awareness on...
Khyber Pakhtunkhwa province has 36 million population. Most of the families prefer to marry within their closer relatives which has...
This year, an online event in honor of the rare is dedicated to highlighting the importance of networking for medical...
Social media campaign with video about people with rare diseases: we live with same dreams, needs, emotions as everyone else....
Visibilizar, concientizar y difundir información acerca de las enfermedades raras o poco frecuentes y la salud auditiva en México, principales...
Sheffield Autism Research Lab (ShARL) will be publishing a Rare Disease Day blog series and informative videos about our ongoing...
This year's Rare Disease Day in Slovakia is about solidarity and positive examples, which our society needs so much. In...
We will be sharing interviews with parents abotu the impact of have SCN2A and why it needs further funding and...
Due to the pandemic, public authorities and other known persons has send a litle video explaining what is a rare...
If you still haven't heard of Rare Diseases, this is your chance to get to know better. The untold and...
The Georgian Foundation for Genetic and Rare Diseases (GeRaD) conducted a wide campaign in social media, TV and radio to...
On World Rare Disease Day, we will post stories and videos from CdLS families. It will be a special day...
#February is Rare disease month,Kush was the first child in Sydney and the first child in India Diagnosed with FoxG1...
Webinar - INBORN ERRORS OF METABOLISM: MORE KNOWLEDGE, BETTER FUTUREOrganizer: Association of Inherited Metabolic Diseases 'Aspida Zois' (Life Shield)Co-organizer: Cyprus Pediatric...
Sabato 20 febbraio, dalle ore 10 alle ore 13 | Evento conclusivo “Pillole Rare in … malattie rare. Facciamo centro.” (organizzato da...
Recognizing the difficulties caused by the pandemic, the social distancing and the inclusion of us parents, we organize an introductory...
Ada Apa Dengan Cinta?All individuals with rare disorders (RD): - don't have romantic feelings - don't want to have relationships...
1) Panel exhibition Date: February 20 to February 28, 2021 Location: Ishikawa Prefectural Government Building, 19th Floor Observation Lobby 2) Online Opinion Exchange "Let's connect...
After 1 year of the open day, now we continue of the awareness of rare disease in Rwanda.We hope to...
ALEM Association to Fight Multiple Sclerosis of Medellin Colombia commemorates the World Day of Rare Diseases with the realization of...
Lecture and social event for families of patients with FAP (Familial Adenomatous Polyposis)1. Opening remarks2. Lecture by Researcher3. Information Exchange4. Learning...
Este sábado, por Zoom te contaremos sobre las tarjetas de emergencia que hemos creado para Marfan, Loeys-Dietz y Ehlers-Danlos. Cómo...
Program (tentative) Introduction of RDD Study tour by high school students Exchange of opinions with high school students from other...
Webinar about resilient organizations, and within this framework we will share what the experience of 2020 was like and the...
Opening - Introduction of social issues related to rare and incurable diseases2. special lecture webinar My Face, My Style -...
La Agrupación Bomberos Zapadores de la Ciudad de Rosario, Prov. de Santa Fe, realizará un triple descenso utilizando la técnica...
On the 19th of February 2021, the Lebanese Association for Neuromuscular Diseases hosted a webinar on Rare Disease Day alongside...
Meet rare heroes: • Anna, Alkaptonuria: "I am no longer lonely with my rarity - science has intervened!" • Ingrid,...
Panel Exhibition NANBYO ”Senryu" exhibition Senryu: a seventeen‐syllable poem that is often satirical of the times.
An accurate and early diagnosis is essential in the prognosis of rare diseases! Come to know more about genetics and...
I Conference of Rare Diseases in Panama is an academic and social event organized by CASPH from Faculty of Medicine of...
The largest light initiative for the International Day of Rare diseases has already started in five cities of Ukraine!From yesterday...
Os presentamos la nueva canción de Alex García a.k.a. AlexPunto0, uno de nuestros héroes que vive con una enfermedad rara.Alex nos ha...
Colloquium organised by The National Alliance for Rare Diseases Support - Malta and the University of Malta Biobank entitled: “Patients...
Los invitamos a la I Jornada de Enfermedades Raras del 18 al 20 de febrero organizado por CASPH en colaboración...
ندعوكم للمشاركة في مسابقة " نادر ونادرة للأشخاص ذوي الإعاقة" الفئات المستهدفة: فئة ذوي المهارات المتعددة- فئة ذوي المهارات اللفظية...
It is a fundraising event celebrating the Rare Disease Day and part of the proceeds will be donated to the...
California Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Advocating for Rare Disease Patients on Malta National Television TVAM
Press Conference to launch of the MDS research project in collaboration with Malta Association of Biomedical Science (MABS), RDM will...
Webinar su zoom dalle 19 alle 20:30 sulla talassemia organizzato da FareComunicazione con il patrocinio di UNIAMO e il contributo non condizionato...
Parent Project organizes every year an International Conference entirely dedicated to Duchenne and Becker muscular dystrophy. This is an event...
El día 17 de Febrero estaremos en #Btvinforma en Bolivia tv a las 10 de la mañana!Los invitamos a ver el...
Presentamos los datos de impacto de la pandemia en este colectivo que suma alrededor de 3 millones de personas en...
Conferenza di lancio della Campagna “SHINE A LIGHT ON XLH” – Accendi la luce sull’XLH. Campagna per evidenziare i benefici apportati...
CALL FOR PARTNERS | NATIONAL RARE DISEASE WEEK 2021This year we're going 100% virtual! Due to the pandemic, social media...
This is a video introducing RDD Japan 2021. I made it simply with BGM only. Please use it for the...
IV Concurso de Relatos Cortos sobre Enfermedades Raras “Mi Experiencia Personal con la ER” Bases: https://www.adisen.es/noticias-y-actividades/iv-concurso-de-relatos-cortos-sobre-enfermedades-raras-mi-experiencia-personal-con-la-er-2/Pueden participar personas afectadas por...
On the occasion of the activities organized to commemorate Rare Disease Day, Adisen, the National Association of Addison and Other Endocrine...
[email protected] [email protected] para este Martes 16 de Febrero a las 19:00 hrs. a nuestro Tercer Conversatorio: "Hablando de Epofs: Una...
An RDD press seminar held jointly with Pfizer Japan Inc.
Light it up for Rare Diseases! The National Alliance for Rare Diseases Support - Malta together with the Ministry for Gozo will...
HAE Junior patient organisation joins Rare Disease Day 2021 with a digital campaign in Czech language about the rare condition Hereditary...
Virtual fundraising challenge in sports routine or fitness routine to fundraise for Ataxia, ataxia research and climate change. Based on...
The third week of #S4RMonth will be dedicated to give visibility to childhood cancer and the different research projects on...
15.02.2021 - Launching the RDD Campaign with an exhibition of art works realized by children at NoRo Center. We have attended...
Program: Launch a live monthly support call program for patients and families: https://invinciblevision.org/calls-sign-up/ Launch the new Invincible Vision website and...
In line with our 2021 Rare Disease campaign and leading up to the 28th of February!!Week 1: We will be...
Rare Disease Day commemoration is jointly organized by Ali Kimara Rare Disease Foundation (AKRDF) and Tanzania Society of Human Genetics...
Love For Kids, Inc. is proud to honor children with rare conditions in partnership with musicians from Texas Music Network...
RDD Japan panel exhibition
Please get to know ME! Part 1: Let's learn about various diseases!Online Exchange Meeting for Families with Rare Diseases "Regional...
Display of RDD panels Display of books related to intractable diseases
We will dedicate the second week of the month to the registry of patients with COVID-19 and rare diseases. The current global pandemic situation has...
There will be three public webinar series hosted by University College Dublin in collaboration with Queen's University Belfast during February to...
Living with PNHThe German filmmaker Julia Stromberg captured the life of a patient with the rare blood disorder PNH as...
[email protected] [email protected] para este Jueves 11 de Febrero a las 19:00 hrs. a nuestro Segundo Conversatorio: "Hablando de Epofs: Una...
La intendencia de Soriano intervendrá las letras corpóreas que identifican las localidades del departamento con los colores de las enfermedades...
1er Concurso de Dibujo Debra México “Mi Vida con EB” Celebrando el Día Internacional de los Padecimientos RarosMándanos un dibujo con...
RDD2021 panel exibition
Webinar su zoom dalle 19 alle 20:30 con il patrocinio di UNIAMO e il contributo non condizionato di Chiesi.
In conjunction with the celebration of World Rare Disease Day 2021, a talk program was held on 9 February 2021 (Tuesday)...
Todos invitados para el Martes 09 de Febrero a las 19:00 hrs. a nuestro Primer Conversatorio: "Hablando de Epofs: Una...
World of Rare Disease Pop QuizFeatured on the NI Science Festival Schools & Educators ProgrammeTuesday 9 February - Thursday 11...
The Chilean Federation of Uncommon Diseases (FENPOF) comprises leaders of rare disease associations that seek to create awareness and promote...
In order to create awareness, the coming weeks we will ask our members via social media to send in pictures related...
Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...
This is an exhibition in the Virtual World Second Life. Community Virtual Library https://www.facebook.com/CommunityVirtualLibrary and Conrado F. Asenjo Library https://www.upr.edu/biblioteca-rcm made...
#VivirConMarfan La experiencia de pacientes con síndrome de Marfan y sus cuidadores.Ponentes:Giuliana Pachano. Ecuatoriana, mamá de Victoria de 9 años,...
For the 8th RDD Fukuoka event, we will focus on radio broadcasting on YouTube. We will take the "change" from...
Interesting activities will be held in February 2021 aimed at raising awareness of rare diseases in Georgia. CDKL5, Dravet syndrome,...
En conmemoración del Día Mundial y Nacional de las Enfermedades Raras, se llevará a cabo nuetsro Primer Simposio Latinoamericano Virtual...
PRIMER SIMPOSIO LATINOAMERICANO DE ENFERMEDADES LISOSOMALES 6 Y 13 DE FEBRERO 2021 En commemoración del Día Mundial y Nacional de las...
Iniciativa Pensemos en Cebras México Trabajando y commemorando.En commemoración del Día Mundial y Nacional de las Enfermedades Raras 2021, se...
SpectacuRARE Fest 2021 is an online event.We will talk about "Living with a Rare Disease" on zoominar, IG live, FB...
Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...
FEBRERO MES DE LAS ENFERMEDADES RARASLa fundación AYOUDAS Panamá da inicio a sus actividades y campaña de difusión masiva para...
All of Greece, the whole world, is becoming one route!The race is organized by MDA Hellas (Association for the care...
The event is aimed at people with rare diseases, doctors, family members and friends.To participate, you just have to send...
En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021Mujer México y la Iniciativa...
Help Raise Awareness for RARE by carrying HOPE with you! HOPE represents the dreams and aspirations of the beneficiaries of...
En el marco del mes internacional de las enfermedades raras y huérfanas (ERH), se ha convocado al evento internacional: Retos y oportunidades para...
We share our colours, our stories of people with the rare disease XLH (X-linked hypophosphatemia), daily on our social media...
RDD Japan 2021 panel display
DAY ON RARE DISEASES AND NEONATAL SCREEN EXTENDED FROM FEBRUARY 1-28, 2021. The Pensemos en Cebras México and Mujer México...
RDD2021 kick-off live On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the...
MED13L is a very rare syndrome that is characterized by intellectual disability, speech and language impairment, motor developmental delay with...
Press Conference to launch Rare Diseases Campaign in Malta in front of the Parliament Building in Valletta
https://www.instagram.com/p/CKwAxZ3Bkph/?igshid=1qbexuin9yqz0We would like to invite you to participate in the "Small, large draws" drawing contest organized by the Phelan-McDermid Association,...
To mark Rare Disease Day 2021, the European CMT Federation is hosting a global ‘Faces of CMT’ Photography competition in...
Per far comprendere a chi non le vive quali siano le sfide che le persone che convivono con la CMT devono...
We are very honoured that the RD Day 2021 is held under the auspices of our current minister of health, professor...
The idea is that people who are living with rare diseases get gifts, in such a way that people who don't...
"Rare Cancers Awareness Month RARE CANCERS AWARENESS MONTH 2021" Program ～Rare is Many! Let's learn about rare cancer～February is Rare...
1) Exhibition at Community Book Cafe at Mitaka-City Date: February 1 ~ February 28, 2021 2) Seminar on Telemedicine Date: February 1 ~ February 28, 2021 Lectures by...
Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's...
RaDiOrg organised a full digital media campaign with 2 objectives: raising awareness on rare diseases towards the larger public and stakeholders &...
Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...
On February 1, we started with the national campaign "LEARNING ABOUT RARE DISEASES".Loleska Gordana and "Life with Challenges" and Super...
This is our 6th year hosting the Rare Disease Day virtual race to raise awareness and to benefit the National...
Rare in the City in front of the Parliament Building under the patronage of the Hon. Speaker of the House...
Announcing our “Move for A Diagnosis” event that will run throughout the month of February, until Rare Disease Day on...
Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...
II Concurso Fotografía ‘Rare Disease Day’ de Yo NemalínicaPor segundo año lanzamos nuestro #concursofotografico ‘Rare Disease Day’, sumándonos así a...
Родительский проект по оказанию помощи пациентам с миодистрофией Дюшенна/Беккера мы поддерживаем #RareDiseaseDay наше мероприятие «мы делимся об этом дне в...
Lo scopo del convegno è quella di promuovere l'integrazione tra vari settori attuando sinergie nella ricerca clinica e traslazionale attraverso...
We will mobilise the media as well as the social media to raise awareness about rare diseases in Mauritius.
the Alliance is organizing a promotional campaign for the RDD 2012 throughout the month of February oover medias
Trazando lo Invisible is a non-profit organization in Mexico with the goal of raising awareness about invisible disabilities. In february,...
Podrà participar en el concurs qualsevol persona major de 16 anys i resident al Principat d’Andorra. No poden participar els...
Exhibition at the Department of General Studies Presentation HallActivity Report (Presentation)
The catch phrase is To the medical professionals and to all people, give ale and kindness!Project 1: #Yell to the...
SOLIDARITY MUSICAL PROJECT - THE HAKA OF MARAVALMaRaVal calls on Valais musicians and singers to show solidarity: we call on...
Rare disease patients are considered 'invisibile' due to the marginalization, discrimination and stigma still often associated with rare diseases. They live...
In conjunction with Rare Disease Day 2021, there will be a virtual run held to bring awareness of rare disease...
1) Interview with a newspaper reporter and a Parkinson's disease patient (Video letter)2) Nanbyo Book Fair at 30 libraries in Gifu Prefecture
To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition.Get your cameras out...
To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition.Ask your...
[EN]For RDD 2021, Mitochondrial Biomedicine and Theranostics Lab has created the Rare Energies Raffle!Acquiring a raffle ticket you may win...
Stichting SpierKracht Netherlands reaches out global. Covid 19 has quarantined a lot of families in the house. With our 2021...
ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...
ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...