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2nd Global Summit on Biomedical Engineering and Systems (GSBES2023)

25 May 2023 to 27 May 2023 Brussels, Belgium

Dear Colleagues, It is a great pleasure to announce that The Scientistt will host the 2nd Global Summit on Biomedical...

International Conference on Neurology and Brain Disorders

23 Mar 2023 to 24 Mar 2023 paris, France

Scisynopsis Group is organising and inviting you for the “International Conference on Neurology and Brain Disorders” at Paris, France on...

Steps for Skye 2022

1 Aug 2022 to 31 Aug 2022 Ballarat, Australia

STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...

Mosa Conference

21 Jun 2022 to 22 Jun 2022 Maastricht, Netherlands

The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...

Annual Golf Outing

8 Jun 2022 Cleveland, United States

Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.

On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...

POLAND SYNDROME AWARENESS DAY PUB LUNCH

30 Apr 2022 Sydney, NSW, Australia

12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.

In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...

In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...

𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...

LIGHTING UP THE MUNICIPAL LIBRARY OF KOZANI

28 Mar 2022 Kozani, Greece

“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.

Open seminar around the rare diseases

25 Mar 2022 to 26 Mar 2022 Sant Julià de Lòria, Andorra

The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...

La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...

RDD AOZORA REPUBLIC (YAMANASHI)

12 Mar 2022 Hokuto, Yamanashi, Japan

WEBINAR Patient Family Exchange Meeting

FEMEXER y ULAPA invitan

11 Mar 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...

Neues aus der ARVC-Forschung (News from ARVC research)

9 Mar 2022 Munich (Online), Germany

3 online lectures on ARVC research with following Q&A

Educational lecture for students

7 Mar 2022 Online, Serbia

Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...

Charity Basketball Match. Partit en benefici d'AMMA

6 Mar 2022 Andorra La Vella, Andorra

Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...

RareDIG Rare Disease Day 2022

6 Mar 2022 Montreal, Canada

More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....

IPASSI: what's new?

5 Mar 2022 Naples, Italy

A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...

Rare Disease Day Celebration

5 Mar 2022 Atlanta, United States

Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!

RDD CHIBA

5 Mar 2022 Chiba, Japan

WEBINAR Online Well Festa 2022 with RDD in Chiba

Selten sind viele

4 Mar 2022 to 5 Mar 2022 Freiburg im Breisgau, Germany

Online – Veranstaltung

Tag der Seltenen Erkrankungen in Mainz

4 Mar 2022 Mainz, Germany

Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...

A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...

As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...

Rare Disease Day - Lombardia

3 Mar 2022 Milano, Italy

L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...

H4B Boston Living Rooms of Rare

3 Mar 2022 Boston, United States

In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...

IT, innovation and Rare Diseases webinar

3 Mar 2022 Buenos Aires, Argentina

Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...

Semana de las Enfermedades Raras

2 Mar 2022 to 4 Mar 2022 La Paz, Bolivia

El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...

An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...

A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...

Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...

In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...

Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.

“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...

Illumination of Sport & Culture Centre of Pruszcz Gdański in honour of Rare Disease Day in Poland

Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France

Lighting up Palazzo Regione Sicilia

28 Feb 2022 Palermo, Italy

Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.

Lighting up Fuente de la puerta – Spain

28 Feb 2022 Sevilla, Spain

Illumination of Fuente de la puerta in honour of Rare Disease Day in Spain

Lighting up Fontana di Diana Siracusa

28 Feb 2022 Siracusa, Italy

Illumination of Fontana di Diana Siracusa in honor of Rare Disease Day in Italy.

Illumination of Palazzo Comunale di Zagarolo in honor of Rare Disease Day in Italy.

Lighting up Palazzo della Loggia

28 Feb 2022 Venice, Italy

Illumination of Palazzo della Loggia in honor of Rare Disease Day in Italy.

“95” Rare Alliance Greece illuminates the building of the region of Kozani, in honor of Rare Disease Day, Greece.

Illumination of Kopuła Stadionu Miejskiego in honour of Rare Disease Day in Poland

Lighting Up Boathouse Row

28 Feb 2022 to 1 Mar 2022 Philadelphia, United States

The City of Philadelphia is lighting up historic Boathouse Row in the colors of Rare Disease Day. This event is...

Lighting up Chiostro dei Minori Osservanti

28 Feb 2022 Messina, Italy

Illumination of Chiostro dei Minori Osservanti in honor of Rare Disease Day in Italy.

Jet d'eau in purple

28 Feb 2022 Geneva, Switzerland

The famous Geneva Jet d’eau will be illuminate in purple the night of February 28 – thanks to the SIG...

Lights on Rare Disease - Trapani

28 Feb 2022 Trapani, Italy

Lights on Rare Disease – Trapani will light up of rare disease colours

“95” Rare Alliance Greece illuminates the stone clock in the municipality of Piraeus in honor of Rare Disease Day in...

Lighting up George Roberts Bridge - Australia

28 Feb 2022 Townsville, Australia

Illumination of George Roberts Bridge in honor of Rare Disease Day in Australia.

Awareness & Management of Rare Diseases

28 Feb 2022 Guntur, India

Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...

Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain

Hacettepe University Rare Disease Day

28 Feb 2022 Ankara, Turkey

Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...

Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain

#LightUpForRare - Serbia

28 Feb 2022 Belgrade, Serbia

Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...

Illumination of Mieczysław Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in Poland

Rare Diseases UAE-Israel Virtual Conference

28 Feb 2022 Abu-Dhabi, United Arab Emirates

On-line conference. Rare Diseases UAE-Israel Virtual Conference Program

Lighting up Willis Tower; Willis Towers Watson

28 Feb 2022 Chicago, United States

Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.

Ospedale Incontra Filo Diretto con l'Ematologo

28 Feb 2022 Alessandria, Italy

In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...

Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.

LIGHTING UP THE TOWN HALL OF VEROIA

28 Feb 2022 Veroia, Greece

“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.

Lighting up Fremantle Prison

28 Feb 2022 Fremantle, Australia

Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.

Illumination of Sede del Municipio X (Ostia e dintorni) di Roma Capitale in honor of Rare Disease Day in Italy.

Lighting up Parlamento Andaluz – Spain

28 Feb 2022 Sevilla, Spain

Illumination of Parlamento Andaluz in honour of Rare Disease Day in Spain

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Lighting up Teatro Massimo - Palermo

28 Feb 2022 Palermo, Italy

Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Corbetta

28 Feb 2022 Corbetta , Italy

Illumination of Palazzo Comunale di Corbetta in honor of Rare Disease Day in Italy.

Lighting up Governor Mario M. Cuomo Bridge

28 Feb 2022 New York, United States

Illumination of Governor Mario M. Cuomo Bridge in honor of Rare Disease Day in USA.

Illumination of Acque del fiume della città di Ceprano in honor of Rare Disease Day in Italy.

Illumination of Fontana del Nettuno di Piazza Duomo – Trento in honor of Rare Disease Day in Italy.

Lighting up Fontana di Piazza San Leonardo

28 Feb 2022 Treviso, Italy

Illumination of Fontana di Piazza San Leonardo in honor of Rare Disease Day in Italy.

Lighting up Minnesota Bridge Anthony Falls

28 Feb 2022 Minneapolis, United States

Illumination of Minnesota Bridge Anthony Falls in honor of Rare Disease Day in USA.

Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.

Life’s a Polyp with Zeke and Katie explores the rare disease Familial Adenomatous Polyposis and all it involves including ostomies,...

Lighting up Empire State Building - United-States

28 Feb 2022 New York, United States

Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.

Lighting up Chiesa Madre

28 Feb 2022 Aci Sant'Antonio , Italy

Illumination of Chiesa Madre in honor of Rare Disease Day in Italy.

Lighting up Fontana di Piazza Ordelaffi

28 Feb 2022 Cesena, Italy

Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.

Lighting up Hôtel Groslot – France

28 Feb 2022 Orléans, France

Illumination of Hôtel Groslot in honour of Rare Disease Day in France

“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...

Illumination of Monumento ai Caduti sul Lavoro – LECCO in honor of Rare Disease Day in Italy.

3rd Annual Rare Disease Flag Raising Ceremony

28 Feb 2022 to 28 Jan 2022 Ottawa, Canada

Flag raising ceremony at Ottawa City Hall, including hot drinks, donuts, vendors, and ‘NEW’ this year, a skate-a-thon on the...

Journée Internationale des Maladies Rares

28 Feb 2022 Amiens, France

L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...

Wydarzenie jest organizowane cyklicznie z okazji Dnia Chorób Rzadkich. Zapraszamy naukowców, lekarzy, diagnostów laboratoryjnych, pacjentów i inne osoby zainteresowane tematem.

Lighting up Neckarfront Tübingen – Germany

28 Feb 2022 Tübingen, Germany

Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany

Lighting up Arena di Verona

28 Feb 2022 Verona, Italy

Illumination of Arena di Verona in honor of Rare Disease Day in Italy.

Illumination of Cyprus Telecommunications Authority – Electra Building in honor of Rare Disease Day in Cyprus.

Lighting up Little Fletcher Bridge- Australia

28 Feb 2022 Townsville, Australia

Illumination of Little Fletcher Bridge in honor of Rare Disease Day in Australia.

Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain

Lighting up Palazzo Municipale Surbo (Le)

28 Feb 2022 Surbo , Italy

Illumination of Palazzo Municipale Surbo (Le) in honor of Rare Disease Day in Italy.

Lighting up Castello Medievale

28 Feb 2022 Lecce, Italy

Illumination of Castello Medievale in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Lecco

28 Feb 2022 Lecco, Italy

Lights on Rare Disease – Lecco will light up of rare disease colours

Der Haupteingang des Krankenhauses wird in den Farben des Rare Disease Day erleuchten und so auf die Arbeit der Klinik...

Lighting up Porte de Bourgogne – France

28 Feb 2022 Bordeaux, France

Illumination of Porte de Bourgogne in honour of Rare Disease Day in France

Lighting up Torre comunale di Lacco Ameno

28 Feb 2022 Naples, Italy

Illumination of Torre comunale di Lacco Ameno in honor of Rare Disease Day in Italy.

Lighting up palazzo comunale di Valderice

28 Feb 2022 Valderice, Italy

Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy

Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Lighting up Ex Convento dei Cappuccini

28 Feb 2022 Verres, Italy

Illumination of Ex Convento dei Cappuccini in honor of Rare Disease Day in Italy.

Lighting up Municipio di Aci Sant'Antonio

28 Feb 2022 Aci Sant'Antonio , Italy

Illumination of Municipio di Aci Sant’Antonio in honor of Rare Disease Day in Italy.

Illumination of Opera architettonica di Rotonda Foschini in honor of Rare Disease Day in Italy.

Lighting up Teatro Comunale di Carpi

28 Feb 2022 Carpi, Italy

Illumination of Teatro Comunale di Carpi in honor of Rare Disease Day in Italy.

Illumination of City Hall Hradec Králové in honour of Rare Disease Day in Czech Republic.

The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!

Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.

Anglicare WA Lights Up and hosts a Rare Aware Light Projection Show

28 Feb 2022 Perth, Western Australia, Australia

Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...

Lighting up Fontana Piazza Umberto I

28 Feb 2022 Calascibetta , Italy

Illumination of Fontana Piazza Umberto I in honor of Rare Disease Day in Italy.

Rare Disease Day 2022 Poster Presentation

28 Feb 2022 Peshawar, Pakistan

In the year 2021-2022, Rare Disease Genetics and Genomics Research at Centre for Omic Sciences, Islamia College Peshawar has successfully...

Foro Enfermedades Raras GDL

28 Feb 2022 to 4 Mar 2022 Guadalajara, Mexico

Este foro busca ayudar a la visibilización de estas condiciones, proponer alternativas para mejorar el diagnóstico y manejo de las...

Lighting up NoRo Center

28 Feb 2022 Zalău, Romania

Illumination of NoRo Center in honor of Rare Disease Day in Romania.

Lighting up Wodonga Water Tower

28 Feb 2022 Wodonga, Australia

Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.

Lighting up Sede de Emuasa – Spain

28 Feb 2022 Murcia, Spain

Illumination of Sede de Emuasa in honour of Rare Disease Day in Spain

Lighting up Wrocław - Poland

28 Feb 2022 Wrocław, Poland

Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...

In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...

En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...

Lighting up Launceston Town Hall

28 Feb 2022 to 1 Mar 2022 Launceston Tasmania, Australia

Illumination of Launceston Town Hall in honor of Rare Disease Day in Australia.

Illumination of Ayuntamiento de Lorca in honour of Rare Disease Day in Spain

Lighting up Parque de la Flrorida – Spain

28 Feb 2022 Gasteiz, Spain

Illumination of Parque de la Flrorida in honour of Rare Disease Day in Spain

Show your support for #RareDiseaseDay by lighting up your home, office, or school on 28 February! By coming together to...

Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...

Lighting up Ayuntamiento de Reocin – Spain

28 Feb 2022 Puente San Miguel, Spain

Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain

Lighting up Castelo de Leiria – Leiria

28 Feb 2022 Leiria, Portugal

Illumination of Castelo de Leiria in honor of Rare Disease Day in Portugal.

Lighting up Palazzo Comunale di Trevignano Romano

28 Feb 2022 Trevignano Romano , Italy

Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.

To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...

Lighting up Brant Street Pier - Canada

28 Feb 2022 Burlington, Canada

Illumination of Brant Street Pier in #RareDiseaseDay colours

Lighting up Istituto comprensivo

28 Feb 2022 Lecce, Italy

Illumination of Istituto comprensivo in honor of Rare Disease Day in Italy.

Lighting up Museu do Traje – Viana do Castelo

28 Feb 2022 Viana do Castelo, Portugal

Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.

This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...

Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...

Lighting up Ayuntamiento de Talavera – Spain

28 Feb 2022 Talavera de la Reina, Spain

Illumination of Ayuntamiento de Talavera in honour of Rare Disease Day in Spain

On the 28th of February, Trinity College Dublin will be lit up in purple as we celebrate Rare Disease Day...

Illumination of Burg und Kloster Oybin in honour of Rare Disease Day in Germany

NMD Pharma Lights Up INCUBA/Skejby

28 Feb 2022 Aarhus, Denmark

For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...

Lighting up Comune in Sant'Antonio Abate

28 Feb 2022 Sant'Antonio Abate, Italy

Illumination of Comune in Sant’Antonio Abate in honor of Rare Disease Day in Italy.

Skin Story Art Contest

28 Feb 2022 to 31 Mar 2022

Art Contest – Send your drawings by March 31 – By post: Fondation René Touraine // Hôpital Necker – Enfants...

Facciamo luce sulle malattie rare

28 Feb 2022 Pomigliano d’Arco , Italy

Illuminazione

The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...

Illumination of Vecchia Sede Comunale in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Rieti

28 Feb 2022 Rieti, Italy

Illumination of Palazzo Municipale di Rieti in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Taranto

28 Feb 2022 Taranto, Italy

Illumination of Palazzo Municipale di Taranto in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Merate

28 Feb 2022 Merate , Italy

Illumination of Palazzo Municipale di Merate in honor of Rare Disease Day in Italy.

Lighting up North Carolina Wells Fargo Bank and Bank of America

28 Feb 2022 North Carolina, United States

Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.

On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most...

Support for the Rare

28 Feb 2022 Demir Hisar, North Macedonia

During the classes we gave a support for the Rare through out different kind of activities like singing songs, playing...

Rare Disease Day- Charity Concert

28 Feb 2022 to 6 Mar 2022 Onlilne Event, Worldwide

Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022  to Sunday 06.03.2022 at...

A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...

Illumination of Chiesa Madre SS Pietro e Paolo – Galatina (LE) in honor of Rare Disease Day in Italy.

Lighting Up for Rare - US Bank Stadium

28 Feb 2022 Minneapolis, United States

By partnering with US Bank Stadium in Minneapolis to Light Up For Rare for a 2nd year, the Yaya Foundation...

Lighting up Tour Bellanda – France

28 Feb 2022 Nice, France

Illumination of Tour Bellanda in honour of Rare Disease Day in France

🙌🏻 𝐃𝐢́𝐚 𝐌𝐮𝐧𝐝𝐢𝐚𝐥 𝐝𝐞 𝐥𝐚𝐬 𝐄𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬 𝐑𝐚𝐫𝐚𝐬 💜💜💜👚 👚👚 Los invitamos al FORO: 𝐄𝐥 𝐚𝐛𝐨𝐫𝐝𝐚𝐣𝐞 𝐝𝐞 𝐥𝐚𝐬 𝐩𝐞𝐫𝐬𝐨𝐧𝐚𝐬 𝐜𝐨𝐧 𝐞𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬...

“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...

Lighting up Municipio Teglio Veneto

28 Feb 2022 Venice, Italy

Illumination of Municipio Teglio Veneto in honor of Rare Disease Day in Italy.

Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um...

Lighting up AAMI Park

28 Feb 2022 Melbourne, Australia

Illumination of AAMI Park in honor of Rare Disease Day in Australia.

Lighting up Municipio di Verbania

28 Feb 2022 Verbania, Italy

Illumination of Municipio di Verbania in honor of Rare Disease Day in Italy.

Lighting up Reddacliff Place Steam sculptures

28 Feb 2022 Brisbane City, Australia

Illumination of Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.

Lighting up Monumento ai caduti

28 Feb 2022 Frosinone, Italy

Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.

Lighting up La Rotonda

28 Feb 2022 Vincenza, Italy

Illumination of La Rotonda in honor of Rare Disease Day in Italy.

Lighting up Monumento ai Caduti sul lavoro

28 Feb 2022 Rocchette, Italy

Illumination of Monumento ai Caduti sul lavoro in honor of Rare Disease Day in Italy.

Rare Disease in Newcastle: Progress and Future Priorities

28 Feb 2022 Newcastle upon Tyne, United Kingdom

A free, open-to-all online event to: • To showcase our new Newcastle Centre for Rare Disease Research, highlighting our mission...

Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany

Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France

Lighting up William Grundt Memorial Library

28 Feb 2022 Kalgoorlie, Australia

Illumination of William Grundt Memorial Library in honor of Rare Disease Day in Australia.

Lighting up Koombana Bay Footbridge

28 Feb 2022 Bunbury , Australia

Illumination of Koombana Bay Footbridge in honor of Rare Disease Day in Australia.

Lighting up Marienkirche Neubrandenburg – Germany

28 Feb 2022 Neubrandenburg, Germany

Illumination of Marienkirche Neubrandenburg in honour of Rare Disease Day in Germany

Lighting up San Mames Estadio – Spain

28 Feb 2022 Bilbo, Spain

Illumination of San Mames Estadio in honour of Rare Disease Day in Spain

Light up event

28 Feb 2022 Harare, Zimbabwe

This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...

LIGHT UP FOR RARE

28 Feb 2022 Bergamo, Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” illuminating Porta San Giacomo. We are grateful to our branch...

Rare Disease Day

28 Feb 2022 Cape Town, South Africa

The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...

Lighting up Iconic Shine Dome

28 Feb 2022 Canberra, Australia

Illumination of Iconic Shine Dome in honor of Rare Disease Day in Australia.

Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland

LIGHTING UP THE OLD TOWN HALL OF MITILINI

28 Feb 2022 Mitilini, Greece

“95” Rare Alliance Greece illuminates the Οld Τown Ηall of Mitilini in honor of Rare Disease Day in Greece.

Illumination of Ayuntamiento de Huelva in honour of Rare Disease Day in Spain

Illumination of Municipality of San Michele al Tagliamento in honor of Rare Disease Day in Italy.

Lighting up Greenbrier - United-States

28 Feb 2022 White Sulphur Springs, United States

Illumination of Greenbrier in honor of Rare Disease Day in the United-States.

Lights on Rare Disease - Cuneo

28 Feb 2022 Cuneo, Italy

Lights on Rare Disease – Cuneo will light up of rare disease colours

RARE DISEASES RUN 2022

28 Feb 2022 to 6 Mar 2022 Krefeld, Germany

Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating the “Palazzo della Regione” in Piazza Unità d’Italia....

Lighting up l'Ours Pompon – France

28 Feb 2022 Dijon, France

Illumination of l’Ours Pompon in honour of Rare Disease Day in France

Lighting up Tančící dům - Ginger and Fred

28 Feb 2022 Prag , Czech Republic

Illumination of Tančící dům – Ginger and Fred in honour of Rare Disease Day in Czech Republic.

Lighting up Ayuntamiento Jabalquito – Spain

28 Feb 2022 Jabalquinto, Spain

Illumination of Ayuntamiento Jabalquito in honour of Rare Disease Day in Spain

Lighting up Palazzo di Città di Fasano

28 Feb 2022 Bari, Italy

Illumination of Palazzo di Città di Fasano in honor of Rare Disease Day in Italy.

The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...

Lighting up AA Fanum House

28 Feb 2022 Basingstoke, United Kingdom

The Automobile Association are lighting up their head office to represent Pontine Tegmental Cap Dysplasia and Lola who is a...

Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.

Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain

Lighting up The Drum Theatre

28 Feb 2022 Dandenong , Australia

Illumination of The Drum Theatre in honor of Rare Disease Day in Australia.

Illumination of Budynek Instytutu Biochemii i Biofizyki PAN w Warszawie in honour of Rare Disease Day in Poland

Lighting up Manly Town Hall

28 Feb 2022 Manly, Australia

Illumination of Manly Town Hall in honor of Rare Disease Day in Australia.

Lighting up Castel dell'Ovo

28 Feb 2022 Napoli, Italy

Illumination of Castel dell’Ovo in honor of Rare Disease Day in Italy.

SickKids Rare Disease Day 2022

28 Feb 2022 Toronto, Canada

The last day of February is recognized as Rare Disease Day. We at SickKids, are proud to join the many...

Lighting up Sede Comunale di Caggiano

28 Feb 2022 Caggiano, Italy

Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.

Lighting up Municipio di Ischia

28 Feb 2022 Ischia, Italy

Illumination of Municipio di Ischia in honor of Rare Disease Day in Italy.

Share your colors

28 Feb 2022 Norwich, United States

We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.

Lighting up Ospedale Pediatrico Meyer

28 Feb 2022 Florence, Italy

Illumination of Ospedale Pediatrico Meyer in honor of Rare Disease Day in Italy.

Lighting up Townsville Sign - Australia

28 Feb 2022 Townsville, Australia

Illumination of Townsville Sign in honor of Rare Disease Day in Australia.

Lighting up the City Hall in Písek

28 Feb 2022 Písek, Czech Republic

Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.

Lighting up Porta a Monte

28 Feb 2022 Frosinone, Italy

Illumination of Porta a Monte in honor of Rare Disease Day in Italy.

Lighting up Opera Wrocławska

28 Feb 2022 Wrocław, Poland

Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.

LIGHT UP FOR RARE - Palazzo della Loggia

28 Feb 2022 Brescia, Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” by illuminating “Palazzo della Loggia”. We are grateful to our...

Lighting up Bytów's town hall - Poland

28 Feb 2022 Bytów, Poland

Illumination of Bytów’s town hall in honour of Rare Disease Day in Poland

Opening of Noah’s Ark Cafe

28 Feb 2022 Sydney, Australia

We are opening our cafe for the very first time and asking our customers to get out their animal prints...

Illumination of Torre Normanna – Rutigliano (Ba) in honor of Rare Disease Day in Italy.

Lighting up The Big Banana

28 Feb 2022 Newcastle, Australia

Illumination of The Big Banana Fun Park in honor of Rare Disease Day in Australia.

Light up

28 Feb 2022 to 1 Mar 2022 Kruševac, Serbia

U 7 pm biće osvetljena Gradska kuća opštine Kruševac

light up Roanoke Tower

28 Feb 2022 Roanoke, United States

https://roanoketower.com/tower-lights/ Light up of city building

Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...

Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain

On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...

Illumination of Ayuntamiento de Cuenca in honour of Rare Disease Day in Spain

Lights on Rare Disease - L'Aquila

28 Feb 2022 L'Aquila, Italy

Lights on Rare Disease – L’Aquila will light up of rare disease colours

Lighting up Zakim Bridge

28 Feb 2022 Boston, United States

Illumination of Zakim Bridge in honor of Rare Disease Day in USA.

Rare Disease Day Awareness and Wellness Walk

28 Feb 2022 Shreveport, LA, United States

Awareness and wellness walk where ribbons will be handed out in the colors of rare disease day!

Lighting up the Theater in Litvínov

28 Feb 2022 Litvínov, Czech Republic

Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.

Lighting up Historical Arches

28 Feb 2022 North Carolina, United States

Illumination of Historical Arches in honor of Rare Disease Day in USA.

Illumination of Palazzo del Municipio ( lato via Garibaldi) in honor of Rare Disease Day in Italy.

Lighting up Clermont Auvergne Opéra - France

28 Feb 2022 Clermont-Ferrand, France

Illumination of Clermont Auvergne Opéra in honour of Rare Disease Day in France

Lighting up Palazzo Santo Stefano

28 Feb 2022 Padova, Italy

Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.

Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.

Illumination of Museo de Arte Contemporáneo / Fundación Díaz Caneja de Palencia in honour of Rare Disease Day in Spain

Lighting up the Consortium Lounge - Australia

28 Feb 2022 Wollongong , Australia

Illumination of the Consortium Lounge in honor of Rare Disease Day in Australia.

Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...

Rare Diseases Run

28 Feb 2022 to 6 Mar 2022 Berlin, Germany

MANY, STRONG, PROUD – ein Lauf zum „Tag der seltenen Erkrankungen“! Vom 28.2.-6.3 findet der Rare Diseases Run als virtueller...

Lighting up Porta San Giacomo

28 Feb 2022 Bergamo, Italy

Illumination of Porta San Giacomo in honor of Rare Disease Day in Italy.

Illumination of Estátua D. José I – Terreiro do Paço in honor of Rare Disease Day in Portugal.

Lighting up Rotunda dos Peixes – Setúbal

28 Feb 2022 Setúbal, Portugal

Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.

Illumination of Ayuntamiento de A Guarda in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Marbella in honour of Rare Disease Day in Spain

La marcha paciente EPOF

28 Feb 2022 varias, Argentina

Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...

Lighting up Rocchetta

28 Feb 2022 Bologna, Italy

Illumination of Rocchetta in honor of Rare Disease Day in Italy.

Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...

Illumination of Edifício da Câmara Municipal – Castelo Branco in honor of Rare Disease Day in Portugal.

Lighting up Comune di carpi

28 Feb 2022 Modena, Italy

Illumination of Comune di carpi in honor of Rare Disease Day in Italy.

The objective of the event is to disseminate, among the community of the Autonomous University of Guadalajara and its students...

Lighting up Statua del Villano

28 Feb 2022 Livorno, Italy

Illumination of Statua del Villano in honor of Rare Disease Day in Italy.

Lighting up Monumento alla "Mamma Ciociara"

28 Feb 2022 Frosinone, Italy

Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.

Lighting up Richmond Reserve

28 Feb 2022 Geelong , Australia

Illumination of Richmond Reserve in honor of Rare Disease Day in Australia.

“95” Rare Alliance Greece illuminates the monument in the Three Admirals’ Square in honor of Rare Disease Day in Pylos,...

Illumination of Collegiata di Saint Gilles di Verrès in honor of Rare Disease Day in Italy.

Lighting up Tête carrée – France

28 Feb 2022 Nice, France

Illumination of Tête carrée in honour of Rare Disease Day in France

Illumination of Basse-Terre’s town hall in honour of Rare Disease Day in France

Lighting up Palazzo Municipale di Olgiate Molgora

28 Feb 2022 Olgiate Molgora, Italy

Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.

Lighting up Joondalup Drive Bridge

28 Feb 2022 Joondalup , Australia

Illumination of Joondalup Drive Bridge in honor of Rare Disease Day in Australia.

Lighting up Pruszcz Gdański's town hall - Poland

28 Feb 2022 Pruszcz Gdański, Poland

Illumination of Pruszcz Gdański’s town hall in honour of Rare Disease Day in Poland   fot. Janina Wilkos-Gad

Lighting up old Melbourne's GPO - Australia

28 Feb 2022 Melbourne, Australia

Illumination of old Melbourne’s GPO in honor of Rare Disease Day in Australia.

Memorial a los que ya se fueron: los hijos de Olivia

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Con todo respeto y cariño, dedicamos este video a la amada memoria de Elizabeth, Valente y Emmanuel Martínez Pérez, los...

Nadir Hastalıklar Günü

28 Feb 2022 to 1 Mar 2022 Ankara, Turkey

Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...

RARE DISEASE DAY 2022 at IndoUSrare

28 Feb 2022 Herndon, United States

We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...

Be Rare Spirit Day

28 Feb 2022 San Antonio, United States

Be Rare Spirit Day, which was planned, organized, and hosted by Abigail Villarreal will take place at Thomas Jefferson High...

Lighting up Monash Park Tree

28 Feb 2022 Shepparton, Australia

Illumination of Monash Park Tree in honor of Rare Disease Day in Australia.

Lighting up Scultura in ferro di Via Roma

28 Feb 2022 Grosseto, Italy

Illumination of Scultura in ferro di Via Roma in honor of Rare Disease Day in Italy.

Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.

Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...

Illuminations in the Twin Cities

28 Feb 2022 to 1 Mar 2022 Minneapolis, United States

With the help of Beck-Fahrner syndrome families, six Minnesota landmarks will be joining the global chain of lights by illuminating...

Illumination of Municipio di Fossalta di Portogruaro in honor of Rare Disease Day in Italy.

Lighting up Ars Electronica Center

28 Feb 2022 Linz, Austria

Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.

El énfasis debe ser sobre las personas, no sobre las cifras

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...

Lighting up Alamo Quarry Market - United States

28 Feb 2022 San Antonio, United States

Illumination of the Alamo Quarry Market smoke stacks in honor of Rare Disease Day in the United States.

PompAbility Film Premieres

28 Feb 2022 to 28 Mar 2022

Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....

Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain

Lighting up the Castle Hněvín in Most

28 Feb 2022 Most, Czech Republic

Illumination of Castle Hněvín in honour of Rare Disease Day in Czech Republic.

Rare Diseases in Khyber Pakhtunkhwa, Pakistan

28 Feb 2022 Peshawar , Pakistan

In 2021 we were able to perform whole exome sequencing of more one hundred index patients with Rare Disease in...

Lighting up Theater Dessau – Germany

28 Feb 2022 Dessau-Roßlau, Germany

Illumination of Theater Dessau in honour of Rare Disease Day in Germany

Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...

Lighting up Federation Square

28 Feb 2022 Melbourne, Australia

Illumination of Federation Square in honor of Rare Disease Day in Australia.

Oxford-Harrington Rare Disease Centre Webinar

28 Feb 2022 Virtual, United Kingdom

The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...

Lighting up Ulivo al centro di Falvaterra

28 Feb 2022 Falvaterra , Italy

Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.

Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.

rare is precious

28 Feb 2022 to 6 Mar 2022 Muscat, Oman

Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...

LIGHTING UP THE RIO - ANTIRRIO BRIDGE

28 Feb 2022 Antirrio, Greece

“95” Rare Alliance Greece illuminates the Rio – Antirrio Bridge in honor of Rare Disease Day in Greece.

Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...

Lighting up Pont de Recouvrance – France

28 Feb 2022 Brest, France

Illumination of Pont de Recouvrance in honour of Rare Disease Day in France

Lighting up Torre Campanaria (Il Campanone)

28 Feb 2022 Pesaro and Urbino, Italy

Illumination of Torre Campanaria (Il Campanone) in honor of Rare Disease Day in Italy.

Lighting up Baylor College of Medicine - United-States

28 Feb 2022 Houston, United States

Illumination of the Baylor College of Medicine in honor of Rare Disease Day in the United-States.

Lights on Rare Disease - Pistoia

28 Feb 2022 Pistoia, Italy

Lights on Rare Disease – Pistoia will light up of rare disease colours

Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland       fot. redwedding.pl – Piotr Połoczański

Illumination of Saint Denis’ town hall in honour of Rare Disease Day in France

Lighting up Chiesa di San Sebastiano

28 Feb 2022 Pescara, Italy

Illumination of Chiesa di San Sebastiano in honor of Rare Disease Day in Italy.

RARE DISEASES AWARENESS IN RWANDA

28 Feb 2022 to 29 Mar 2022 Kigali, Rwanda

In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...

Nano Rare Disease Day

28 Feb 2022 Barcelona, Spain

Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...

A Friendship Story

28 Feb 2022 Talamona, Italy

This lesson plan is a proposal that we address to the teachers of our schools. The goal is to help...

Illuminazione della Torre dell’Orologio e la Fontana di Bellerofonte in onore della Giornata delle Malattie Rare

Illumination of Ayuntamiento de Baeza in honour of Rare Disease Day in Spain

Lights on Rare Disease - Reggio Emilia

28 Feb 2022 Reggio Emilia, Italy

Lights on Rare Disease – Fontana del Teatro Valli will light up of rare disease colours

Illumination of Ayuntamiento de Vitoria in honour of Rare Disease Day in Spain

Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...

Rare disease day illumination

28 Feb 2022 Adelaide , Australia

Parliament house will illuminate blue, green and purple for rare disease day.

Illumination of Fuente de los Patos de Alhama de Murcia in honour of Rare Disease Day in Spain

Lighting up Eastern Goldfields Community Centre

28 Feb 2022 Kalgoorlie, Australia

Illumination of Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.

UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” illuminating of green the Mole Antonelliana. We are grateful to...

Lights on Rare Disease - Potenza

28 Feb 2022 Potenza, Italy

Lights on Rare Disease – Potenza will light up of rare disease colours

#Челябинскредкий / Chelyabinsk light up for rare

28 Feb 2022 Челябинск, Russian Federation

Загорается для редких💥 Light up for rare 💥 Челябинск первый из российских городов присоединится к глобальной акции в поддержку людей...

Lighting up City Hall Annex

28 Feb 2022 Toowoomba City, Australia

Illumination of City Hall Annex in honor of Rare Disease Day in Australia.

Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.

Lighting up Torre Civica

28 Feb 2022 Calascibetta, Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up San Francisco’s City Hall

28 Feb 2022 San Francisco, United States

Illumination of San Francisco’s City Hall in honor of Rare Disease Day in USA.

Illumination of Edifício dos Paços do Concelho – Funchal in honor of Rare Disease Day in Portugal.

Lighting up Sir Albert Abbott Administration Building

28 Feb 2022 to 7 Mar 2022 Mackay Queensland, Australia

Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.

Illumination of “El Capitolio” (Capitol of Puerto Rico) – San Juan – in honor of Rare Disease Day in Puerto...

Lighting up Palazzo Comunale di Tricase

28 Feb 2022 Lecce, Italy

Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.

Frida our Mermaid Señorita

28 Feb 2022 Larchmont, United States

Reading of OEIS heritage

Lighting up Frost Tower – United States

28 Feb 2022 San Antonio, United States

Illumination of the Frost Tower in honor of Rare Disease Day in the United States.

Illumination of Edifício dos Paços do Concelho – Portalegre in honor of Rare Disease Day in Portugal.

Illumination of Besucherzentrum der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Join our Rare Disease Day virtual panel discussion as BioNews columnists from a variety of our rare communities participate in...

Shining a Light on Genetic Diagnosis

28 Feb 2022 Edinburgh, United Kingdom

Shining a Light on Genetic Diagnosis, Monday 28 February, 6-7.30pm Institute of Genetics and Cancer, the University of Edinburgh, in...

Lighting up Roldán - Argentina

28 Feb 2022 Roldán, Argentina

Illumination of Roldán in honour of Rare Disease Day in Argentina

LIGHTING UP THE CLOCK TOWER

28 Feb 2022 TUNIS, Tunisia

Illumination of the clock tower in honour of the International Rare Disease Day and to celebrate the end of Rare...

Lighting up Neptune's Fountain - Poland

28 Feb 2022 Gdańsk, Poland

Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland     fot. redwedding.pl – Piotr Połoczański

Illumination of Edifício dos Paços do Concelho – Angra do Heroísmo in honor of Rare Disease Day in Portugal.

On this year’s International Day of Rare Diseases, the Lithuanian Association of Patients with Genetic Neuromuscular Diseases “Sraunia” invites to...

Lighting up Palazzo di Città di Salerno

28 Feb 2022 Salerno, Italy

Illumination of Palazzo di Città di Salerno in honor of Rare Disease Day in Italy.

Lighting up Trinity College - Ireland

28 Feb 2022 Dublin, Ireland

Illumination of the Trinity College in honor of Rare Disease Day in Ireland.

Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...

Illumination of Vereinshaus Junge Linde in honour of Rare Disease Day in Germany

Lighting up Torre Civica

28 Feb 2022 Massignano , Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Illumination of Palazzo Comunale – Veglie (LE) in honor of Rare Disease Day in Italy.

Illumination of Cyprus Institute of Neurology and Genetics in honor of Rare Disease Day in Cyprus.

Lighting up Limassol Municipality Hall

28 Feb 2022 Limassol , Cyprus

Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.

Lights on Rare Disease - Rimini

28 Feb 2022 Rimini, Italy

Lights on Rare Disease – Rimini will light up of rare disease colours

Lighting up Hauptbahnhof Dresden – Germany

28 Feb 2022 Dresden, Germany

Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany

Lighting up Palazzo Comunale di Palaia

28 Feb 2022 Pisa, Italy

Illumination of Palazzo Comunale di Palaia in honor of Rare Disease Day in Italy.

Illuminazione del Municipio

28 Feb 2022 Rogolo, Italy

Illuminazione del Municipio

Duke Inflammatory Breast Cancer Consortium Tabling

28 Feb 2022 Durham, United States

The Duke Consortium for Inflammatory Breast Cancer will be tabling on the Bryan Center Plaza from 10am to 2pm in...

Lighting up Council House

28 Feb 2022 Perth, Australia

Illumination of Council House in honor of Rare Disease Day in Australia.

Dr. Santiago March y los avance en medicina geómica

28 Feb 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...

Carry Hope 2022

28 Feb 2022

Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...

Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain

Lighting up Monumento ai Caduti di Castiglione della Pescaia

28 Feb 2022 Castiglione della Pescaia, Italy

Illumination of Monumento ai Caduti di Castiglione della Pescaia in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Rovigo

28 Feb 2022 Rovigo, Italy

Lights on Rare Disease – Rovigo will light up of rare disease colours

Rare disease day

28 Feb 2022 Beirut, Lebanon

We will light the national museum for the first time in lebanon

We join forces for the children with Rare Diseases: “95” Rare Alliance Greece illuminates the Children’s Hospital “H Agia Sofia”...

Rare Disease Day 2022 at NIH

28 Feb 2022 Virtual, United States

Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that...

Dunya Nadir Hastaliklar Gunu, Nadir Hastaliklarda Tani Yolculugu temasi ile 28 Subat 2022 tarihinde cevrimici etkinlik olarak duzenlenecek.

Lighting up Templi del Parco Archeologico di Paestum

28 Feb 2022 Capaccio Paestum, Italy

Illumination of Templi del Parco Archeologico di Paestum in honor of Rare Disease Day in Italy.

Lighting up Piazza Duomo palazzo di Città

28 Feb 2022 Catania, Italy

Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.

Lighting up Opera House Timișoara

28 Feb 2022 Timișoara , Romania

Illumination of Opera House Timișoara in honor of Rare Disease Day in Romania.

NADİR HASTALIKLAR FARKINDALIK GÜNÜ AKIM

28 Feb 2022 KAYSERİ, Turkey

Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...

Lighting up Rocca di Carmignano

28 Feb 2022 Carmignano, Italy

Illumination of Rocca di Carmignano in honor of Rare Disease Day in Italy.

Lighting up Marlston Waterfront

28 Feb 2022 Bunbury , Australia

Illumination of Marlston Waterfront in honor of Rare Disease Day in Australia.

Lighting up the Winnipeg Sign

28 Feb 2022 to 1 Mar 2022 Winnipeg , Canada

The City of Winnipeg Mayor and Council are lighting up the tourist “Winnipeg sign” at the Forks in the Rare...

#YoTambienSoyRaro

28 Feb 2022 Madrid, Spain

Subir más de 2.000 escalones

Lighting up Emigration Museum - Poland

28 Feb 2022 Gdynia, Poland

Illumination of Emigration Museum in honour of Rare Disease Day in Poland

Lighting up Ayuntamiento de Santa Cruz – Spain

28 Feb 2022 Santa Cruz de Tenerife, Spain

Illumination of Ayuntamiento de Santa Cruz in honour of Rare Disease Day in Spain

Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.

Lighting up Kensington Town Hall

28 Feb 2022 Kensington VIC 3031, Australia

Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.

Illumination of Palazzo della Regione Friuli Venezia Giulia – Gorizia in honor of Rare Disease Day in Italy.

Lighting up Bahnhof Mannheim – Germany

28 Feb 2022 Mannheim, Germany

Illumination of Bahnhof Mannheim in honour of Rare Disease Day in Germany

Community Heroes Rare Disease Day Panel Discussion 2022

28 Feb 2022 Goldsboro, United States

Community Heroes and advocates partake in the observance to raise awareness of rare diseases and their impact on patients and...

Lighting up Torre Civica di Muscoline

28 Feb 2022 Chiesa, Italy

Illumination of Torre Civica di Muscoline in honor of Rare Disease Day in Italy.

Illumination of Monumento dei caduti di Otranto in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Grosseto

28 Feb 2022 Grosseto, Italy

Illumination of Palazzo Comunale di Grosseto in honor of Rare Disease Day in Italy.

Lighting up Comune di Seveso

28 Feb 2022 Seveso, Italy

Illumination of Comune di Seveso in honor of Rare Disease Day in Italy.

Illumination of Craneosaurs of Żegluga Szczecińska & Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in...

Lighting up Palazzo di città Baronissi

28 Feb 2022 Baonissi, Italy

Illumination of Palazzo di città Baronissi in honor of Rare Disease Day in Italy.

Lighting up Torre del Castello

28 Feb 2022 Crotone, Italy

Illumination of Torre del Castello in honor of Rare Disease Day in Italy.

Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.

Poster competition on Rare Disease

28 Feb 2022 Patiala, India

Students from different Departments of University participate in it

LIGHTING IT UP - GTC TOWER

28 Feb 2022 Nairobi, Kenya

Lighting up the tallest tower in East Africa, Kenyan style!!

Lighting up Monumento ai Caduti

28 Feb 2022 Novara, Italy

Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.

AST informa

28 Feb 2022 CASTELVETRANO, Italy

Il centro commerciale Belicittà, bene confiscato alla criminalità organizzata, ha messo a disposizione un desk informativo in galleria per far...

HAY NOTICIAS QUE NO PUEDEN ESPERAR

28 Feb 2022 Montevideo, Uruguay

Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.

Lighting up Newcastle Clock Tower

28 Feb 2022 Newcastle, Australia

Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.

Lighting up Archi di Palazzo Catena

28 Feb 2022 Asti , Italy

Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.

Lighting up Municipio di Portogruaro (Ve)

28 Feb 2022 Portogruaro, Italy

Illumination of Municipio di Portogruaro (Ve) in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale San Cassiano

28 Feb 2022 San Cassiano, Italy

Illumination of Palazzo Comunale San Cassiano in honor of Rare Disease Day in Italy.

RARE RUN BOLOGNA - II Virtual Edition

28 Feb 2022 BOLOGNA , Italy

Oggi GIORNATA MONDIALE DELLE MALATTIE RARE: partecipa alla RARE RUN BOLOGNA – Edizione Virtuale. Sostieni con noi tutti i bimbi...

Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...

Lighting up Place Stanislas – France

28 Feb 2022 Nancy, France

Illumination of Place Stanislas in honour of Rare Disease Day in France

Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...

Lighting up Perth Bell Tower

28 Feb 2022 Perth, Australia

Illumination of Perth Bell Tower in honor of Rare Disease Day in Australia.

Lighting up Wait Chapel at Wake Forest University

28 Feb 2022 North Carolina, United States

Illumination of Wait Chapel at Wake Forest University  in honor of Rare Disease Day in USA.

Illumination of the Dr. von Hauner Children’s Hospital in honour of Rare Disease Day in Germany

Lighting up Palazzo Mantegna

28 Feb 2022 Calabria, Italy

Illumination of Palazzo Mantegna in honor of Rare Disease Day in Italy.

LIGHTING UP THE FOUNTAIN IN OMONOIA SQUARE

28 Feb 2022 Athens, Greece

“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.

RarePakistan

28 Feb 2022 to 4 Mar 2022 Lahore, Pakistan

Limited Awareness campaign n launch of a website for connecting families affected with rare diseases, bridging gaps in diagnosis/treatment and...

Illumination of Flinders Street Railway Station in honor of Rare Disease Day in Australia.

Lighting up Sopot's town hall - Poland

28 Feb 2022 Sopot, Poland

Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland

The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...

LIGHTING UP THE TOWN HALL OF FLORINA

28 Feb 2022 Florina, Greece

“95” Rare Alliance Greece illuminates the Town Hall of Florina in honor of Rare Disease Day.

Lighting up Porta al Prato

28 Feb 2022 Firenze, Italy

Illumination of Porta al Prato in honor of Rare Disease Day in Italy.

Lighting up Palazzo del Podestà

28 Feb 2022 Bologna, Italy

Illumination of Palazzo del Podestà in honor of Rare Disease Day in Italy.

Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.

Lighting up TV Tower - Tbilisi, Georgia

28 Feb 2022 Tbilisi, Georgia

Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.

La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...

Building ilumination

28 Feb 2022 Andorra La Vella, Andorra

The most important museum of art of Andorra participates in the building illumination for rare disease day.

Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain

Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain

The Rare Links webinar series aims to provide a platform where national and international experts can share their knowledge and...

Illuminating buildings

28 Feb 2022 Bucharest, Timisoara, Romania

Medical Universities, City Halloween, Centers for Rare Diseases and other buildings will be illuminated for RDD, on the evening of...

Lighting up María Teresa - Argentina

28 Feb 2022 María Teresa, Argentina

Illumination of María Teresa in honour of Rare Disease Day in Argentina

Lighting up Wells Fargo Tower - United-States

28 Feb 2022 Minneapolis, United States

Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.

Lighting up The Helmsley Building, 230 Park Ave NYC

28 Feb 2022 New York, United States

Illumination of The Helmsley Building, 230 Park Ave NYC in honor of Rare Disease Day in USA.

Lighting up Teatro Herberia di Rubiera

28 Feb 2022 Rubiera , Italy

Illumination of Teatro Herberia di Rubiera in honor of Rare Disease Day in Italy.

LIGHTING UP THE WHITE TOWER OF THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.

Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany

LIGHTING UP THE ΒUILDING OF THE REGION OF CRETE

28 Feb 2022 Heraklion, Greece

“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...

Illumination of Palazzo Municipale del Comune di Barano d’Ischia (NA) in honor of Rare Disease Day in Italy.

Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain

Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...

Rare Disease in Newcastle: Progress and Future Priorities

28 Feb 2022 Newcastle Upon Tyne, United Kingdom

An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...

Illumination of Municipio di Montagna in Valtellina in honor of Rare Disease Day in Italy.

Light Up For Rare at Yocum Institute

28 Feb 2022 West Lawn, Pennsylvania, United States

Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.

Illuminazione del Torrione di Spilamberto

28 Feb 2022 Spilamberto , Italy

Illuminazione del Torrione AST Associazione Sclerosi Tuberosa e Associazione Sindrome di Williams E.R. 

Lighting up Stuttgarter Bahnhof – Germany

28 Feb 2022 Stuttgart, Germany

Illumination of Stuttgarter Bahnhof in honour of Rare Disease Day in Germany

LIGHT UP FOR RARE

28 Feb 2022 Castellamonte (Torino), Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...