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Light up for Incontinentia Pigmenti

4 Mar 2023 Naples, Italy

Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world

MENA Organization for Rare Diseases Anual Meeting 2023

3 Mar 2023 to 5 Mar 2023 Dubai, United Arab Emirates

MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...

Rare diseases are gaining traction as a pressing health priority worldwide. We have now seen the first-ever UN Resolution on...

Helhetlige tjenester for gode liv

28 Feb 2023 to 28 Jan 2023 Oslo, Norway

Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...

“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w IV Dniu Chorób Rzadkich na...

Rare Disease Day at Nationwide Children's Hospital

28 Feb 2023 Columbus, Ohio, United States

Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and...

Meet your expert

28 Feb 2023 Berlin, Germany

Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch: Mit Expertinnen und Experten ins Gespräch kommen, Fragen...

Polish Rare Disease Day

28 Feb 2023 Warszawa, Poland

Krajowe Forum na Rzecz Terapii Chorób Rzadkich ORPHAN w imieniu organizacji członkowskich oraz własnym zaprasza Państwa na wspólne obchody Światowego...

Rare Disease Day at NIH 2023

28 Feb 2023 Bethesda, MD, United States

Since 2011, the National Center for Advancing Translational Sciences and the NIH Clinical Center have sponsored Rare Disease Day at...

La Red Mexicana de Enfermedades Raras (ReMexER) y el Laboratorio Internacional de Investigación sobre el Genoma Humano se unen a...

Ciné-débat

28 Feb 2023 7700 Mouscron, Belgium

Le 28 Février prochain, journée mondiale des maladies rares, notre association organisera dès 19:30 au Cinéma For&ver un ciné-débat ayant...

Raras Sem Vergonha

28 Feb 2023 São Paulo , Brazil

Lançmento de video: Raras sem vergonha, quebrano o tabu Painel de mulheres raras sobre criar inclusão na sociedade: 4 mulheres...

28/2/2023 /8:30 am/ Savion Center The Sheba Medical Center annual congress for the rare disease international day is a unique...

Rare Disease Day Symposium

28 Feb 2023 Hannover, Germany

das Zentrum für Seltene Erkrankungen (ZSE) Hannover möchte Sie anlässlich des “Rare Disease Day 2023″ am Dienstag, den 28.02.2023 zu...

Rare Diseases Run 2023 - Run for Rare!

28 Feb 2023 to 5 Mar 2023

The 2nd Rare Diseases Run, organized by SYNGAP Elternhilfe e.V and Laufen macht glücklich GbR, will take place from 28th...

2023 Rare Disease Day

28 Feb 2023 Boston, United States

Join MassBio as we mark the annual Rare Disease Day at the Statehouse by bringing attention to the groundbreaking, patient-focused...

In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals. More than 7,000 rare...

FDA's Rare Disease Day 2023

27 Feb 2023 Virtual Only, United States

We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open...

RARE Skydive 2023

27 Feb 2023 Kuala Lumpur, Malaysia

Don’t miss RARE Skydive 2023! Mark your calendars for 27 February 2023. Through this unique awareness initiative, we hope to...

Genetics Matters

26 Feb 2023 Newcastle upon Tyne, United Kingdom

“Genetics Matters” is an annual event organised by Newcastle University to mark the International Rare Disease Day. Currently in its...

1st International UAE Rare Disease Society Congress

25 Feb 2023 to 26 Feb 2023 Dubai, United Arab Emirates

On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...

The Zebra 5K Run/Walk is an in person or virtual 5K run OR walk! It will take place to mark...

Ausstellung "Selten Allein"

24 Feb 2023 to 12 Mar 2023 Mannheim, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Iconic Trent Building to illuminate for Rare Disease Day 2023

24 Feb 2023 to 28 Feb 2023 Nottingham, United Kingdom

To help raise awareness of the day, the Trent Building on University Park Campus will join a host of other...

To mark Rare Disease Day, a scientific conference for students willing to present medical cases will be held.

LOUDRARE ONLINE FESTIVAL

23 Feb 2023 Ludwigshafen, Germany

At the LOUDRARE ONLINE FESTIVAL, people with rare diseases, patient communities, medicine, the pharmaceutical industry and other stakeholders involved in...

Ausstellung "Selten Allein"

22 Feb 2023 to 12 Mar 2023 Berlin, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Fighting H.A.R.D. Foundation's Run HARD for Rare Kids

21 Feb 2023 to 28 Feb 2023 Virtual, United States

Fighting H.A.R.D. Foundation’s Run HARD for Rare Kids was started in 2021 as a way to safely raise funds and...

EURORDIS Black Pearl Awards 2023

21 Feb 2023 Brussels & Online, Belgium

The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...

Ausstellung "Selten Allein"

21 Feb 2023 to 12 Mar 2023 Dresden, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

21 Feb 2023 to 12 Mar 2023 Mainz, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Rare-I-Tea Party

18 Feb 2023 Cambridge, United Kingdom

Cambridge Rare Disease Network (CamRARE) invite you to join us for tea and cakes to celebrate this year’s Rare Disease...

Soft Bones 2023 National Patient Meeting

17 Feb 2023 to 18 Feb 2023 Phoenix, AZ, United States

Soft Bones, Inc. will be hosting their 2023 National Patient Meeting in Phoenix, AZ. We will be celebrating and highlighting...

MALADIES RARES TOUR

14 Feb 2023 to 28 Feb 2023 GAGNOA - KORHOGO - YAMOUSSOUKRO - ABENGOUROU - AGBOVILLE, Ivory Coast

Maladies Rares Tour est un programme de sensibilisations et d’éducation sur les places publiques de cinq villes en Cote d’ivoire...

Ausstellung "Selten Allein"

13 Feb 2023 to 12 Mar 2023 Erfurt, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

In the run-up of Rare Disease Day, Chan Zuckerberg Initiative presents: No Ordinary Campaign at the Presidio Theatre in San...

Donate,Recycle,Make happy

1 Feb 2023 to 14 Feb 2023 Prilep, North Macedonia

We’re counting down 90 days to RDD! 💜💚💙 #Donations #Humanitarianevents In anticipation of February 28 2023-International Day of Rare Diseases...

8th Annual Rare Disease Day virtual race

1 Feb 2023 to 28 Feb 2023

Join us for our 8th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...

ALD Makes Me Blue

1 Feb 2023

ALD Makes Me Blue is a collaborative fundraising coalition among international ALD organizations. It is the “Brain Child” of a...

Live Song Performance Proud To Be Rare

20 Jan 2023 THE bEAR True Stories, Germany

Live Song Performance of my Song for the Rare Disease Day “Proud To Be Rare” at THE bEAR Live Story...

Rare disease week: New Therapies for Old Diseases

14 Jan 2023 to 19 Jan 2023 Cairo, Egypt

The Egyptian society of human genetics and the Medical Genetics Department, Ain Shams University are inviting you to our fourth...

The Rare Diseases Alliance of Latvia (LRSA) is an independent non-governmental organization founded on October 3, 2014, uniting organizations representing various interests of...

III CONCURSO DE DIBUJO SOLIDARIO #XLASENFERMEDADESRARAS

11 Jan 2023 to 28 Feb 2023 Granada, Spain

III ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...

III Charitable Drawing Contest

10 Jan 2023 to 20 Feb 2023

Third edition of the charitable drawing contest organised by CONGEN to raise awareness about rare diseases. The 12 selected drawings...

SpectacuRARE Fest 2023

3 Dec 2022 to 11 Mar 2023 Virtual, Jabodetabek, Indonesia

SpectacuRARE Fest 2023 diselenggarakan oleh Indonesia CARE for RARE Diseases (IC4RD). Terdiri dari rangkaian acara virtual. Acara puncak akan dilaksanakan...

Science4Rare 2023 – Worldwide Science Contest IndoUSrare, announces Worldwide Science contest – Science4Rare – 2023. Registration: https://bit.ly/science4Rare2023 Calling on all...

ART4RARE 2023 - Annual Art Contest

1 Dec 2022 to 28 Feb 2023 Herndon, Worldwide

IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2023. This year’s theme...

Are you ready to get involved in #RareDiseaseDay and help raise awareness for your community? We are here to help!...

Steps for Skye 2022

1 Aug 2022 to 31 Aug 2022 Ballarat, Australia

STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...

Mosa Conference

21 Jun 2022 to 22 Jun 2022 Maastricht, Netherlands

The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...

Annual Golf Outing

8 Jun 2022 Cleveland, United States

Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.

On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...

POLAND SYNDROME AWARENESS DAY PUB LUNCH

30 Apr 2022 Sydney, NSW, Australia

12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.

In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...

In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...

𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...

Théâtre-débat "Vivre avec ma maladie rare"

30 Mar 2022 La Roche sur Yon, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

LIGHTING UP THE MUNICIPAL LIBRARY OF KOZANI

28 Mar 2022 Kozani, Greece

“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.

Open seminar around the rare diseases

25 Mar 2022 to 26 Mar 2022 Sant Julià de Lòria, Andorra

The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...

Théâtre-débat "Vivre avec ma maladie rare"

23 Mar 2022 Saint-Nazaire, France

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Théâtre-débat "Vivre avec ma maladie rare"

17 Mar 2022 Le Mans, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...

RDD AOZORA REPUBLIC (YAMANASHI)

12 Mar 2022 Hokuto, Yamanashi, Japan

WEBINAR Patient Family Exchange Meeting

FEMEXER y ULAPA invitan

11 Mar 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Neues aus der ARVC-Forschung (News from ARVC research)

9 Mar 2022 Munich (Online), Germany

3 online lectures on ARVC research with following Q&A

Educational lecture for students

7 Mar 2022 Online, Serbia

Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...

RareDIG Rare Disease Day 2022

6 Mar 2022 Montreal, Canada

More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....

Charity Basketball Match. Partit en benefici d'AMMA

6 Mar 2022 Andorra La Vella, Andorra

Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...

IPASSI: what's new?

5 Mar 2022 Naples, Italy

A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...

RDD CHIBA

5 Mar 2022 Chiba, Japan

WEBINAR Online Well Festa 2022 with RDD in Chiba

Rare Disease Day Celebration

5 Mar 2022 Atlanta, United States

Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!

US FDA Rare Disease Day Public Meeting 2022

4 Mar 2022 Online, United States

FDA will host a virtual public meeting on March 4, 2022 to join the global observance of Rare Disease Day....

Tag der Seltenen Erkrankungen in Mainz

4 Mar 2022 Mainz, Germany

Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...

As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...

A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...

Selten sind viele

4 Mar 2022 to 5 Mar 2022 Freiburg im Breisgau, Germany

Online – Veranstaltung

Rare Disease Day - Lombardia

3 Mar 2022 Milano, Italy

L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...

IT, innovation and Rare Diseases webinar

3 Mar 2022 Buenos Aires, Argentina

Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...

H4B Boston Living Rooms of Rare

3 Mar 2022 Boston, United States

In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...

Semana de las Enfermedades Raras

2 Mar 2022 to 4 Mar 2022 La Paz, Bolivia

El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...

An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...

Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.

“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...

Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...

In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...

A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...

Lighting up Palazzo Comunale di Ponte Buggianese

28 Feb 2022 Ponte Buggianese, Italy

Illumination of Palazzo Comunale di Ponte Buggianese in honor of Rare Disease Day in Italy.

Lighting up the Winnipeg Sign

28 Feb 2022 to 1 Mar 2022 Winnipeg , Canada

The City of Winnipeg Mayor and Council are lighting up the tourist “Winnipeg sign” at the Forks in the Rare...

Illumination of Fontana di Corso Vittorio Emanuele II in honor of Rare Disease Day in Italy.

Lighting up l'Ours Pompon – France

28 Feb 2022 Dijon, France

Illumination of l’Ours Pompon in honour of Rare Disease Day in France

Lighting up Adelaide Oval

28 Feb 2022 North Adelaida, Australia

Illumination of Adelaide Oval in honor of Rare Disease Day in Australia.

Lighting up La Rotonda

28 Feb 2022 Vincenza, Italy

Illumination of La Rotonda in honor of Rare Disease Day in Italy.

On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...

Lighting up TV Tower - Tbilisi, Georgia

28 Feb 2022 Tbilisi, Georgia

Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.

Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.

Illumination of Ayuntamiento de Sevilla in honour of Rare Disease Day in Spain

Lighting up Palazzo del Podestà - Bologna

28 Feb 2022 Bologna, Italy

Illumination of Palazzo del Podestà – Bologna in honor of Rare Disease Day in Italy.

Lighting up The SUNY Plaza

28 Feb 2022 New York, United States

Illumination of The SUNY Plaza in honor of Rare Disease Day in USA.

Illumination of Torre Normanna – Rutigliano (Ba) in honor of Rare Disease Day in Italy.

ERN ReCONNET, the European Reference Network for Rare and Complex Connective Tissue Diseases, renews its appointment with the illumination of...

Illumination of Rathaus Spandau Berlin in honour of Rare Disease Day in Germany

Lighting up Tête carrée – France

28 Feb 2022 Nice, France

Illumination of Tête carrée in honour of Rare Disease Day in France

Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany

Lighting up Torre Civica

28 Feb 2022 Perugia, Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up Torre civica

28 Feb 2022 Lecce, Italy

Illumination of Torre civica in honor of Rare Disease Day in Italy.

Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain

The logo of the World Rare Disease Day will be projected on the Mikis Theodorakis Theater in Chania, by “95”...

Lighting up Council House

28 Feb 2022 Perth, Australia

Illumination of Council House in honor of Rare Disease Day in Australia.

Lighting up Spodek - Poland

28 Feb 2022 Katowice, Poland

Illumination of Spodek in honour of Rare Disease Day in Poland

Lighting up María Teresa - Argentina

28 Feb 2022 María Teresa, Argentina

Illumination of María Teresa in honour of Rare Disease Day in Argentina

In this conference we decided to talk about accessibility and what this means for rare patients, especially in these 2...

Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.

Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.

Lighting up Rocca Malatestiana

28 Feb 2022 Cesena, Italy

Illumination of Rocca Malatestiana in honor of Rare Disease Day in Italy.

Lighting up Ayuntamiento de Villatorres – Spain

28 Feb 2022 Villargordo, Spain

Illumination of Ayuntamiento de Villatorres in honour of Rare Disease Day in Spain

Lighting up Porta alla Croce

28 Feb 2022 Firenze, Italy

Illumination of Porta alla Croce in honor of Rare Disease Day in Italy.

Illumination of St. Barbara Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany

Lighting up Grand Place – France

28 Feb 2022 Lille, France

Illumination of Grand Place in honour of Rare Disease Day in France

Champion Changemakers: Rare Disease

28 Feb 2022 National, Australia

This Rare Disease Day (28 Feb 2022), join women from three countries creating change in the world of Rare Disease...

Lighting up Il Campanone della Brianza

28 Feb 2022 Lecco, Italy

Illumination of Il Campanone della Brianza in honor of Rare Disease Day in Italy.

"May I please be misunderstood" Art Exhibit

28 Feb 2022 Johannesburg , South Africa

An exhibition focused on using Art Therapy as a way of accepting or being affected by a rare disease. The...

Clock Tower Lighting

28 Feb 2022 Brampton, Canada

Brampton City Hall will be illuminating the Clock Tower on February 28th 2022 in Purple and Blue to recognize Rare...

Lighting up Ayuntamiento de Dos Hermanas – Spain

28 Feb 2022 Dos Hermanas, Spain

Illumination of Ayuntamiento de Dos Hermanas in honour of Rare Disease Day in Spain

Lighting up Museu do Traje – Viana do Castelo

28 Feb 2022 Viana do Castelo, Portugal

Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.

Lighting up palazzo comunale di Valderice

28 Feb 2022 Valderice, Italy

Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy

Conversatorio «Unificando criterios»

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

FEMEXER, la UNAM y el Museo de la Mujer se unen en un conversatorio fresco y desenfadado para tratar un...

Lighting up Wells Fargo Duke Energy Center

28 Feb 2022 North Carolina, United States

Illumination of Wells Fargo Duke Energy Center in honor of Rare Disease Day in USA.

Light Up For Rare at Yocum Institute

28 Feb 2022 West Lawn, Pennsylvania, United States

Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.

Illumination of Passaggio Joyce, detto “Ponte Curto” in honor of Rare Disease Day in Italy.

Lighting up Opera Wrocławska

28 Feb 2022 Wrocław, Poland

Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.

LIGHTING UP THE ΒUILDING OF THE REGION OF CRETE

28 Feb 2022 Heraklion, Greece

“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...

Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.

Lighting up Monumento alla "Mamma Ciociara"

28 Feb 2022 Frosinone, Italy

Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.

Lighting up Teatro Massimo - Palermo

28 Feb 2022 Palermo, Italy

Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.

Lighting up Marlston Hill Lookout

28 Feb 2022 Bunbury , Australia

Illumination of Marlston Hill Lookout in honor of Rare Disease Day in Australia.

Lighting up Complesso Santa Sabina

28 Feb 2022 Sillanus, Italy

Illumination of Complesso Santa Sabina in honor of Rare Disease Day in Italy.

Lighting up Torre dell'acquedotto

28 Feb 2022 Milan, Italy

Illumination of Torre dell’acquedotto in honor of Rare Disease Day in Italy.

Lighting up Porta Romana Fumone

28 Feb 2022 Fumone, Italy

Illumination of Porta Romana Fumone in honor of Rare Disease Day in Italy.

Lighting up Diputación de Ciudad Real – Spain

28 Feb 2022 Ciudad Real, Spain

Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain

Lights on Rare Disease - Firenze

28 Feb 2022 Firenze, Italy

Lights on Rare Disease – Firenze will light up of rare disease colours

Illumination of Palazzo della Gran Guardia – Verona in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Crotone

28 Feb 2022 Crotone, Italy

Illumination of Palazzo Comunale di Crotone in honor of Rare Disease Day in Italy.

Lighting up George Roberts Bridge - Australia

28 Feb 2022 Townsville, Australia

Illumination of George Roberts Bridge in honor of Rare Disease Day in Australia.

Lighting up Mid Hudson Bridge

28 Feb 2022 Highland, United States

Illumination of Mid Hudson Bridge in honor of Rare Disease Day in USA.

Illumination of Palazzo Estense (Palazzo Comunale) – Varese in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Ferrara

28 Feb 2022 Ferrara, Italy

Lights on Rare Disease – Municipality of Ferrara, in cooperation with Teatro Comunale di Ferrara, will light up of rare...

Lighting up Palazzo Comunale di Trevignano Romano

28 Feb 2022 Trevignano Romano , Italy

Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.

Lighting up the Parliament House - Australia

28 Feb 2022 Adelaide , Australia

Illumination of the Parliament House in honor of Rare Disease Day in Australia.

Lighting up Geelong Intersection Moorabool

28 Feb 2022 Geelong, Australia

Illumination of Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.

Lights on Rare Disease - Vercelli

28 Feb 2022 Vercelli, Italy

Lights on Rare Disease – Vercelli will light up of rare disease colours

Lighting up Diputación Foral de Álava – Spain

28 Feb 2022 Vitoria-Gasteiz, Spain

Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain

Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain

The NGO called Cetatea Voluntarilor is the constant partner of Romanian National Alliance for Rare Diseases in organizing events to...

Lighting up City Hall Oradea

28 Feb 2022 Oradea, Romania

Illumination of City Hall Oradea in honor of Rare Disease Day in Romania.

Las EPOF de Santa Fe siempre dicen presente

28 Feb 2022 Santa Fe, Argentina

Iluminación en color violeta

Illumination of Dziedziniec Urzędu Miasta Poznania wraz z Placem Kolegiackim in honour of Rare Disease Day in Poland

Illumination of Fontana luminosa – Piazza Battaglione Alpini in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Pistoia

28 Feb 2022 Pistoia, Italy

Lights on Rare Disease – Pistoia will light up of rare disease colours

Light Up For Rare Philippines

28 Feb 2022 to 28 Mar 2022 Manila, Philippines

In coordination with the National Parks Development Committee, the Rizal Monument was illuminated in purple for Rare Disease Day as...

Lighting up Wrocław - Poland

28 Feb 2022 Wrocław, Poland

Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...

Lights on Rare Disease - L'Aquila

28 Feb 2022 L'Aquila, Italy

Lights on Rare Disease – L’Aquila will light up of rare disease colours

Lighting up Palazzo di Città di Potenza

28 Feb 2022 Potenza , Italy

Illumination of Palazzo di Città di Potenza in honor of Rare Disease Day in Italy.

LIGHTING UP “THE UMBRELLAS”, THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...

LIGHTING UP THE BUILDING "LOGGIA" IN HERAKLION

28 Feb 2022 Heraklion, Greece

“95” Rare Alliance Greece illuminates the building “Loggia” in honor of Rare Disease Day in Heraklion, Greece.

Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...

Rare Diseases: Not so Rare

28 Feb 2022 Tel Hashomer, Israel

In 2022, the eighth annual International Rare Disease Day online conference will take place at the Sheba Medical Center, with...

Rare Disease Day

28 Feb 2022 Jackson, United States

Wear jeans and learn more about Rare Disease Day to raise awareness for the many rare diseases in our area.

Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain

LIGHT UP FOR RARE

28 Feb 2022 Castellamonte (Torino), Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...

Rare Disease Day 2022 at NIH

28 Feb 2022 Virtual, United States

Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that...

Rare disease day

28 Feb 2022 Beirut, Lebanon

We will light the national museum for the first time in lebanon

Lighting up Comune di Mestre

28 Feb 2022 Venezia, Italy

Illumination of Comune di Mestre in honor of Rare Disease Day in Italy.

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Rare Disease Day Flashmob in Timisoara

28 Feb 2022 Timisoara, Romania

A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.

Lighting up Matagarup Bridge

28 Feb 2022 Perth, Australia

Illumination of Matagarup Bridge in honor of Rare Disease Day in Australia.

Lighting up North Carolina Wells Fargo Bank and Bank of America

28 Feb 2022 North Carolina, United States

Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.

Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France

Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...

Illumination of Schlot Erlanger Stadtwerke in honour of Rare Disease Day in Germany

Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain

Lighting up Palazzo comunale Nuoro

28 Feb 2022 Nuoro , Italy

Illumination of Palazzo comunale Nuoro in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Rimini

28 Feb 2022 Rimini, Italy

Lights on Rare Disease – Rimini will light up of rare disease colours

Facciamo luce sulle malattie rare

28 Feb 2022 Pomigliano d’Arco , Italy

Illuminazione

Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.

Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...

Light up for rare - Gateshead Millennium Bridge

28 Feb 2022 Gateshead , United Kingdom

Gateshead Millennium Bridge will be joining other landmarks in lighting up in support of Rare Disease day .

Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany

Lighting up Casa Comunale - Roccamena (Pa)

28 Feb 2022 Palermo, Italy

Illumination of Casa Comunale – Roccamena (Pa) in honor of Rare Disease Day in Italy.

POMC Island

28 Feb 2022 Bennington, United States

An online chat/video sharing information about POMC and how it effects our life

Illumination of St. Elisabeth Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany

Illumination of Opera architettonica di Rotonda Foschini in honor of Rare Disease Day in Italy.

Lighting up Mount Street Bridge

28 Feb 2022 Bridgetown, Australia

Illumination of Mounts Street Bridge in honor of Rare Disease Day in Australia.

Jet d'eau in purple

28 Feb 2022 Geneva, Switzerland

The famous Geneva Jet d’eau will be illuminate in purple the night of February 28 – thanks to the SIG...

Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...

Lighting up Palazzo Municipale di Livorno

28 Feb 2022 Livorno, Italy

Illumination of Palazzo Municipale di Livorno in honor of Rare Disease Day in Italy.

Lighting up Neckarfront Tübingen – Germany

28 Feb 2022 Tübingen, Germany

Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany

Illumination of Collegiata di Saint Gilles di Verrès in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Tricase

28 Feb 2022 Lecce, Italy

Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.

Illumination of Edifício dos Paços do Concelho – Guarda in honor of Rare Disease Day in Portugal.

Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.

Illumination of Iglica Międzynarodowych Targów Poznańskich in honour of Rare Disease Day in Poland

Illumination of The Navigators at the Koombana Drive roundabout in honor of Rare Disease Day in Australia.

Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.

Lighting up Piazza Verdi

28 Feb 2022 Grottaglie , Italy

Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.

Rare Disease in Newcastle: Progress and Future Priorities

28 Feb 2022 Newcastle Upon Tyne, United Kingdom

An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...

Lighting up NoRo Center

28 Feb 2022 Zalău, Romania

Illumination of NoRo Center in honor of Rare Disease Day in Romania.

Illumination of Puentes de la Alameda de Talavera in honour of Rare Disease Day in Spain

Lighting up Zakim Bridge

28 Feb 2022 Boston, United States

Illumination of Zakim Bridge in honor of Rare Disease Day in USA.

Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.

Lighting up the City Hall in Písek

28 Feb 2022 Písek, Czech Republic

Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.

Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.

Lighting up Ministry of Health

28 Feb 2022 Nicosia, Cyprus

Illumination of Ministry of Health in honor of Rare Disease Day in Cyprus.

Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...

Rare Disease Day 2022 | Illuminations in Poland

28 Feb 2022 Bytów | Gdańsk | Gdynia | Katowice | Lublin | Malbork | Poznań | Pruszcz Gdański | Rzeszów | Sopot | Szczecin | Warszawa | Wrocław, Poland

Illuminations for Rare Disease Day 2022 in Poland:   City Hall | Bytów Neptune’s Fountain | Gdańsk Olivia Hall |...

4th Rare Disease Day Training Meeting will be held online with the attendance of Turkish Ministry of Health, academics, members...

Oxford-Harrington Rare Disease Centre Webinar

28 Feb 2022 Virtual, United Kingdom

The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...

Rare Diseases: A Global Priority for Equity [accessible online]

28 Feb 2022 Dubai, United Arab Emirates

Join the global Rare Disease Day event organised by the NGO Committee for Rare Diseases, the Ågrenska Foundation, RDI, and...

Lighting up FDA

28 Feb 2022 to 4 Mar 2022 Harrisburg, United States

Illumination of FDA in honor of Rare Disease Day in USA.

Illumination of Fontana di Piazza della Repubblica in honor of Rare Disease Day in Italy.

Lighting up Urząd Miejskie w Bytowie

28 Feb 2022 Bytów, Poland

llumination of the City Hall (Urząd Miejski) in Bytów in honour of Rare Disease Day in Poland. It will happen...

Illumination of Centro di aggregazione sociale – Surano (Le) in honor of Rare Disease Day in Italy.

La marcha paciente EPOF

28 Feb 2022 varias, Argentina

Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...

A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...

Lighting up City Hall

28 Feb 2022 Philadelphia, United States

Illumination of City Hall in honor of Rare Disease Day in USA.

Lighting up Ayuntamiento Gandía – Spain

28 Feb 2022 Gandia, Spain

Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de La Carolina – Spain

28 Feb 2022 La Carolina, Spain

Illumination of Ayuntamiento de La Carolina in honour of Rare Disease Day in Spain

Lighting up Sede Comunale di Caggiano

28 Feb 2022 Caggiano, Italy

Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.

Lighting up Porta San Niccolò

28 Feb 2022 Firenze, Italy

Illumination of Porta San Niccolò in honor of Rare Disease Day in Italy.

Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...

Lighting up Porta a Monte

28 Feb 2022 Frosinone, Italy

Illumination of Porta a Monte in honor of Rare Disease Day in Italy.

Lighting up Kurilpa Bridge

28 Feb 2022 South Brisbane, Australia

Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.

Lighting up Larnaca Medieval Castle

28 Feb 2022 Larnaca, Cyprus

Illumination of Larnaca Medieval Castle in honor of Rare Disease Day in Cyprus.

Syndromes Without A Name (SWAN) Rare Disease Day Event

28 Feb 2022 Virtual event, Australia

Join SWAN Australia, Carer Gateway – Wellways Australia and Community Junction in raising awareness about rare diseases on Rare Disease...

Lighting up Fontana del Teatro Valli

28 Feb 2022 Reggio Emilia, Italy

Illumination of Fontana del Teatro Valli in honor of Rare Disease Day in Italy.

Illumination of Torretta sede dell’Ufficio Territoriale in honor of Rare Disease Day in Italy.

Lighting up Presidential Palace

28 Feb 2022 Nicosia, Cyprus

Illumination of Presidential Palace in honor of Rare Disease Day in Cyprus.

Lighting up Comune di Rufina

28 Feb 2022 Florence, Italy

Illumination of Comune di Rufina in honor of Rare Disease Day in Italy.

Un día en la vida de un paciente

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Carlos David Peña Aragón, mejor conocido como Toto, nos platica qué representa vivir como persona con una enfermedad rara en...

A week campaign dedicated to Rare Liver Diseases. One disease will be presented each day with contributions from both the...

“95” Rare Alliance Greece illuminates Headquarters of the Regional Unit of Etoloakarnania in honor of Rare Disease Day in Mesologgi,...

2do Simposio Internacional del Día de las Enfermedades Raras

28 Feb 2022 Queretaro (Virtual), Mexico

La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...

Illumination of Kienlesbergbrücke Ulm in honour of Rare Disease Day in Germany

Illumination of La Cappella di Piazza del Campo in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Rovigo

28 Feb 2022 Rovigo, Italy

Lights on Rare Disease – Rovigo will light up of rare disease colours

Lighting up Empire State Building - United-States

28 Feb 2022 New York, United States

Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.

Lighting up Ayuntamiento de Valencia – Spain

28 Feb 2022 València, Spain

Illumination of Ayuntamiento de Valencia in honour of Rare Disease Day in Spain

Lighting up Mooroopna Water Tower

28 Feb 2022 Melbourne, Australia

Illumination of Mooroopna Water Tower in honor of Rare Disease Day in Australia.

Illumination of Loggia del Palazzo della Ragione in honor of Rare Disease Day in Italy.

Lighting up old Melbourne's GPO - Australia

28 Feb 2022 Melbourne, Australia

Illumination of old Melbourne’s GPO in honor of Rare Disease Day in Australia.

Advancing Treatments in Rare Neurological Diseases

28 Feb 2022 Cleveland, United States

The Oxford-Harrington Rare Disease Centre (OHC) invites you to recognize Rare Disease Day by attending its Rare Disease Day Webinar...

Lighting up Palazzo Regione Sicilia

28 Feb 2022 Palermo, Italy

Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.

The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...

On February 28 in the Rooms Hotel Tbilisi the press conference dedicated to the Rare Disease Day has been held....

TLK2

28 Feb 2022 Louisville, United States

Walk a lot

Ospedale Incontra Filo Diretto con l'Ematologo

28 Feb 2022 Alessandria, Italy

In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...

Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.

We illuminated our school building with the colors of rare diseases

Lights on Rare Disease - Mantova

28 Feb 2022 Mantova, Italy

Lights on Rare Disease – Mantova will light up of rare disease colours

Lighting up the Theater in Litvínov

28 Feb 2022 Litvínov, Czech Republic

Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.

Lighting up Wait Chapel at Wake Forest University

28 Feb 2022 North Carolina, United States

Illumination of Wait Chapel at Wake Forest University  in honor of Rare Disease Day in USA.

Lighting up Medical University Carol Davila

28 Feb 2022 Bucharest, Romania

Illumination of Medical University Carol Davila Bucharest in honor of Rare Disease Day in Romania.

Lighting up Fontana di Piazza Ordelaffi

28 Feb 2022 Cesena, Italy

Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.

Illumination of the Henry B. González Convention Center in honor of Rare Disease Day in the United States.

Lighting up Townsville

28 Feb 2022 Townsville , Australia

We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...

Quiz about Rare Disease (Mito)

28 Feb 2022 Nationwide, Portugal

Um quiz no Facebook com questões sobre doença rara mitocondrial, podendo ganhar 3 prémios! | A quiz on Facebook with...

Lighting up Palazzo del Municipio Di Gattatico

28 Feb 2022 Praticello, Italy

Illumination of Palazzo del Municipio Di Gattatico in honor of Rare Disease Day in Italy.

Lighting up Palazzo di Città di Augusta

28 Feb 2022 Augusta, Italy

Illumination of Palazzo di Città di Augusta in honor of Rare Disease Day in Italy.

Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain

Illumination of TOkna w Sali Sesyjnej w Sukiennicach, Wrocław in honor of Rare Disease Day in Poland.

Lighting up Plac Litewski - Poland

28 Feb 2022 Lublin, Poland

Illumination of Plac Litewski in honour of Rare Disease Day in Poland

“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...

Rare Disease Day 2022

28 Feb 2022 Global , Canada

This year we look forward to celebrating #RareDiseaseDay2022! Come enjoy a chat 7 pm EST, February 28, 2022. Speak with...

Lighting up Palazzo degli Elefanti

28 Feb 2022 Catania,, Italy

Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.

Lighting up Granarone Cerveteri

28 Feb 2022 Rome, Italy

Illumination of Granarone Cerveteri in honor of Rare Disease Day in Italy.

Lighting up Greenbrier - United-States

28 Feb 2022 White Sulphur Springs, United States

Illumination of Greenbrier in honor of Rare Disease Day in the United-States.

Lighting up Box Hill's town hall - Australia

28 Feb 2022 Box Hill, Australia

Illumination of Box Hill’s town hall in honor of Rare Disease Day in Australia.

Lights on Rare Disease - Cuneo

28 Feb 2022 Cuneo, Italy

Lights on Rare Disease – Cuneo will light up of rare disease colours

Lighting up Municipio di pressana

28 Feb 2022 Pressana , Italy

Illumination of Municipio di pressana in honor of Rare Disease Day in Italy.

Lighting up the Czech Republic Pavilion EXPO 2020

28 Feb 2022 Dubai, United Arab Emirates

Illumination of Czech Republic Pavilion EXPO 2020 in honour of Rare Disease Day worldwide.

Lighting up San Genesio

28 Feb 2022 Lecco, Italy

Illumination of San Genesio in honor of Rare Disease Day in Italy.

SRNA Rare Disease Day

28 Feb 2022 New York, Los Angeles, Dallas, Baltimore, United States

Please join us for a special support event in honor of Rare Disease Day. This will be a great opportunity...

Lighting up Cristo del Otero – Spain

28 Feb 2022 Palencia, Spain

Illumination of Cristo del Otero in honour of Rare Disease Day in Spain

NMOSD Your Way - Podcast Series Launch

28 Feb 2022 to 11 Mar 2022 Toronto, Canada

In time for #RareDiseaseDay, our host Lelainia and Founder and Executive Director of the Sumaira Foundation, Sumaira Ahmed, discuss what...

Lighting up Albany Grain Terminal Silo

28 Feb 2022 Perth, Australia

Illumination of Albany Grain Terminal Silo in honor of Rare Disease Day in Australia.

Lighting up Rotonda all'inizio di Camporosso

28 Feb 2022 Bordighera , Italy

Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.

HAY NOTICIAS QUE NO PUEDEN ESPERAR

28 Feb 2022 Montevideo, Uruguay

Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.

#YoTambienSoyRaro

28 Feb 2022 Madrid, Spain

Subir más de 2.000 escalones

#LightUpForRare - Serbia

28 Feb 2022 Belgrade, Serbia

Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...

Show us your Colours! FMDSA

28 Feb 2022 North Olmsted, Ohio, United States

While FMD is thought of as Underdiagnosed we are Rare until proven otherwise. Help us support Rare Disease Day on...

Illumination of Palazzo del fanciullo – Matino in honor of Rare Disease Day in Italy.

Lighting up Wodonga Water Tower

28 Feb 2022 Wodonga, Australia

Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.

Lighting up Palazzo Comunale di Vico Equense

28 Feb 2022 Vico Equense , Italy

Illumination of Palazzo Comunale di Vico Equense in honor of Rare Disease Day in Italy.

Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.

Marnaton swim open water

28 Feb 2022 to 27 May 2022 Barcelona, Spain

Birt Hogg Dubbe Syndrome patient, marathoner and now capable to an open water maratón swim.. nothing is impossible! Believe in...

Lights on Rare Disease - Procida

28 Feb 2022 Procida, Italy

Lights on Rare Disease – Procida will light up of rare disease colours

Lighting up BarArena - Leverkusen – Germany

28 Feb 2022 Leverkusen, Germany

Illumination of BarArena in Leverkusen in honour of Rare Disease Day in Germany

Lighting up J L Tower

28 Feb 2022 Arkansas, United States

Illumination of J L Tower in honor of Rare Disease Day in USA.

Lighting up Tour Tanguy – France

28 Feb 2022 Brest, France

Illumination of Tour Tanguy in honour of Rare Disease Day in France

Lighting up Story Bridge

28 Feb 2022 New Farm Queensland, Australia

Illumination of Story Bridge in honor of Rare Disease Day in Australia.

"Sostengo" Giornata delle Malattie rare

28 Feb 2022 Montesarchio, Italy

Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci

Lighting up Mole Antonelliana - Torino

28 Feb 2022 Torino, Italy

Illumination of Mole Antonelliana – Torino in honor of Rare Disease Day in Italy.

Lighting up Palazzo S.Antonio

28 Feb 2022 Naples, Italy

Illumination of Palazzo S.Antonio in honor of Rare Disease Day in Italy.

Light up event

28 Feb 2022 Harare, Zimbabwe

This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...

Illumination of Ayuntamiento de Totana in honour of Rare Disease Day in Spain

Lighting up Sky Ribbon

28 Feb 2022 Perth , Australia

Illumination of Sky Ribbon in honor of Rare Disease Day in Australia.

Lighting up Burj Khalifa

28 Feb 2022 Dubai, United Arab Emirates

To the Rare Disease Community, we have the pleasure to invite you all to the light up of Burj Khalifa...

Iluminación Edificio Pfizer

28 Feb 2022 Mexico City, Mexico

Pfizer México se une a la conmemoración del Día Mundial de las Enfermedades Raras al iluminar su edificio en Ciudad...

Ciclo de conferencias: Una misma voz, un mismo espacio

28 Feb 2022 Ciudad de México, Mexico

Conversatorios con especialistas, personas que viven con enfermedades raras y personas cuidadoras.

Lights on Rare Disease - Barletta

28 Feb 2022 Barletta, Italy

Lights on Rare Disease – Barletta will light up of rare disease colours

Rare Disease 2022 Let's Find a Cure

28 Feb 2022 Virtual, United States

On February 28, 2022 we will be highlight throughout the day individuals and organizations helping and seeking a cure to...

Shining a Light on Genetic Diagnosis

28 Feb 2022 Edinburgh, United Kingdom

People living with genetic conditions and cancers are at the heart of our research at the Institute of Genetics and...

Lighting up Laimer Würfel München – Germany

28 Feb 2022 München, Germany

Illumination of Laimer Würfel München in honour of Rare Disease Day in Germany

En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...

Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.

Illumination of Edifício da Câmara Municipal – Calheta in honor of Rare Disease Day in Portugal.

This year for Rare Disease Day 2022 we are calling on everyone to help the rare disease community be united...

Lighting up Torre Civica

28 Feb 2022 Calascibetta, Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up Queensland Country Bank Stadium - Australia

28 Feb 2022 Railway Estate, Australia

Illumination of Queensland Country Bank Stadium in honor of Rare Disease Day in Australia.

Lighting up Koombana Bay Foreshore

28 Feb 2022 Bunbury , Australia

Illumination of Koombana Bay Foreshore in honor of Rare Disease Day in Australia.

Poster competition on Rare Disease

28 Feb 2022 Patiala, India

Students from different Departments of University participate in it

Rare Diseases UAE-Israel Virtual Conference

28 Feb 2022 Abu-Dhabi, United Arab Emirates

On-line conference. Rare Diseases UAE-Israel Virtual Conference Program

Lighting up Municipio di Gravellona Toce

28 Feb 2022 Gravellona Toce , Italy

Illumination of Municipio di Gravellona Toce in honor of Rare Disease Day in Italy.

Lighting up Frost Tower – United States

28 Feb 2022 San Antonio, United States

Illumination of the Frost Tower in honor of Rare Disease Day in the United States.

Lighting up Hauptbahnhof Dresden – Germany

28 Feb 2022 Dresden, Germany

Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany

Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Illumination of Panevezys City Municipality’s Administration building in honor of Rare Disease Day in Lithuania.

Lights on Rare Disease - Locri

28 Feb 2022 Locri, Italy

Lights on Rare Disease – Locri will light up of rare disease colours

On Monday, the sky lights up a little extra over Lilla Amundön when Ågrenska draws attention to the Rare Day....

Lighting up Kleisthaus Berlin – Germany

28 Feb 2022 Berlin, Germany

Illumination of Kleisthaus Berlin in honour of Rare Disease Day in Germany

Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.

Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...

La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...

9:30-13:30h Webinar with the participation of several entities. The event has three main sessions. Organização: Mirror Group Português do Programa...

Lighting up Statua del Pescatore

28 Feb 2022 Lecce, Italy

Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.

In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...

El énfasis debe ser sobre las personas, no sobre las cifras

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...

Lighting up Fuente de la puerta – Spain

28 Feb 2022 Sevilla, Spain

Illumination of Fuente de la puerta in honour of Rare Disease Day in Spain

LightUp4RD

28 Feb 2022 Ireland, Ireland

Join the global initiative calling on everyone to help raise awareness of the rare disease community and unite all of...

Rare disease day illumination

28 Feb 2022 Adelaide , Australia

Parliament house will illuminate blue, green and purple for rare disease day.

Lighting up Ars Electronica Center

28 Feb 2022 Linz, Austria

Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.

Lighting up Stuttgarter Bahnhof – Germany

28 Feb 2022 Stuttgart, Germany

Illumination of Stuttgarter Bahnhof in honour of Rare Disease Day in Germany

RarePakistan

28 Feb 2022 to 4 Mar 2022 Lahore, Pakistan

Limited Awareness campaign n launch of a website for connecting families affected with rare diseases, bridging gaps in diagnosis/treatment and...

LIGHTING UP THE ΜUNICIPAL THEATRE OF PEFKI

28 Feb 2022 Pefki, Athens, Greece

“95” Rare Alliance Greece illuminates Μunicipal theatre in honor of Rare Disease Day in Pefki, Greece.

Show Your Rainbow Stripes for Our Moon's Mission!

28 Feb 2022 COOLUM BEACH, Australia

In classrooms, offices and parks in Coolum and all over the world, dress in your brightest rainbow stripes on International...

Rare Disease Day 2022

28 Feb 2022 Edmonton, Canada

Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives....

LIGHT UP FOR RARE - Palazzo della Loggia

28 Feb 2022 Brescia, Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” by illuminating “Palazzo della Loggia”. We are grateful to our...

Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...

Lighting up Sede del Municipio di Fontaniva

28 Feb 2022 Fontaniva, Italy

Illumination of Sede del Municipio di Fontaniva in honor of Rare Disease Day in Italy.

Lighting up Municipio Concordia Sagittaria (Ve)

28 Feb 2022 Concordia Sagittaria, Italy

Illumination of Municipio Concordia Sagittaria (Ve) in honor of Rare Disease Day in Italy.

LIGHTING UP FOR RARE IN RWANDA

28 Feb 2022 Kigali, Rwanda

Illumination of  some building homes and offices with Rare disease day colours in honour of Rare Disease Day in Rwanda:...

Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.

Lighting up Teatro Valli

28 Feb 2022 Reggio Emilia , Italy

Illumination of Teatro Valli in honor of Rare Disease Day in Italy.

Awareness & Management of Rare Diseases

28 Feb 2022 Guntur, India

Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...

Lighting up Castel Sismondo

28 Feb 2022 Rimini, Italy

Illumination of Castel Sismondo in honor of Rare Disease Day in Italy.