Dear Colleagues, It is a great pleasure to announce that The Scientistt will host the 2nd Global Summit on Biomedical...
Scisynopsis Group is organising and inviting you for the “International Conference on Neurology and Brain Disorders” at Paris, France on...
STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...
The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...
Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.
On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...
12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.
In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...
In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...
𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...
“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.
The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...
La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...
WEBINAR Patient Family Exchange Meeting
La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...
3 online lectures on ARVC research with following Q&A
Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...
Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...
More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....
A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...
Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!
WEBINAR Online Well Festa 2022 with RDD in Chiba
Online – Veranstaltung
Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...
A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...
As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...
L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...
In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...
Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...
El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...
An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...
A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...
Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...
In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...
Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.
“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...
Illumination of Sport & Culture Centre of Pruszcz Gdański in honour of Rare Disease Day in Poland
Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France
Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.
Illumination of Fuente de la puerta in honour of Rare Disease Day in Spain
Illumination of Fontana di Diana Siracusa in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Zagarolo in honor of Rare Disease Day in Italy.
Illumination of Palazzo della Loggia in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the building of the region of Kozani, in honor of Rare Disease Day, Greece.
Illumination of Kopuła Stadionu Miejskiego in honour of Rare Disease Day in Poland
The City of Philadelphia is lighting up historic Boathouse Row in the colors of Rare Disease Day. This event is...
Illumination of Chiostro dei Minori Osservanti in honor of Rare Disease Day in Italy.
The famous Geneva Jet d’eau will be illuminate in purple the night of February 28 – thanks to the SIG...
Lights on Rare Disease – Trapani will light up of rare disease colours
“95” Rare Alliance Greece illuminates the stone clock in the municipality of Piraeus in honor of Rare Disease Day in...
Illumination of George Roberts Bridge in honor of Rare Disease Day in Australia.
Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...
Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain
Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...
Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain
Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...
Illumination of Mieczysław Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in Poland
On-line conference. Rare Diseases UAE-Israel Virtual Conference Program
Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.
In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...
Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.
“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.
Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.
Illumination of Sede del Municipio X (Ostia e dintorni) di Roma Capitale in honor of Rare Disease Day in Italy.
Illumination of Parlamento Andaluz in honour of Rare Disease Day in Spain
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Corbetta in honor of Rare Disease Day in Italy.
Illumination of Governor Mario M. Cuomo Bridge in honor of Rare Disease Day in USA.
Illumination of Acque del fiume della città di Ceprano in honor of Rare Disease Day in Italy.
Illumination of Fontana del Nettuno di Piazza Duomo – Trento in honor of Rare Disease Day in Italy.
Illumination of Fontana di Piazza San Leonardo in honor of Rare Disease Day in Italy.
Illumination of Minnesota Bridge Anthony Falls in honor of Rare Disease Day in USA.
Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.
Life’s a Polyp with Zeke and Katie explores the rare disease Familial Adenomatous Polyposis and all it involves including ostomies,...
Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.
Illumination of Chiesa Madre in honor of Rare Disease Day in Italy.
Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.
Illumination of Hôtel Groslot in honour of Rare Disease Day in France
“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...
Illumination of Monumento ai Caduti sul Lavoro – LECCO in honor of Rare Disease Day in Italy.
Flag raising ceremony at Ottawa City Hall, including hot drinks, donuts, vendors, and ‘NEW’ this year, a skate-a-thon on the...
L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...
Wydarzenie jest organizowane cyklicznie z okazji Dnia Chorób Rzadkich. Zapraszamy naukowców, lekarzy, diagnostów laboratoryjnych, pacjentów i inne osoby zainteresowane tematem.
Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany
Illumination of Arena di Verona in honor of Rare Disease Day in Italy.
Illumination of Cyprus Telecommunications Authority – Electra Building in honor of Rare Disease Day in Cyprus.
Illumination of Little Fletcher Bridge in honor of Rare Disease Day in Australia.
Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain
Illumination of Palazzo Municipale Surbo (Le) in honor of Rare Disease Day in Italy.
Illumination of Castello Medievale in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Lecco will light up of rare disease colours
Der Haupteingang des Krankenhauses wird in den Farben des Rare Disease Day erleuchten und so auf die Arbeit der Klinik...
Illumination of Porte de Bourgogne in honour of Rare Disease Day in France
Illumination of Torre comunale di Lacco Ameno in honor of Rare Disease Day in Italy.
Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy
Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Illumination of Ex Convento dei Cappuccini in honor of Rare Disease Day in Italy.
Illumination of Municipio di Aci Sant’Antonio in honor of Rare Disease Day in Italy.
Illumination of Opera architettonica di Rotonda Foschini in honor of Rare Disease Day in Italy.
Illumination of Teatro Comunale di Carpi in honor of Rare Disease Day in Italy.
Illumination of City Hall Hradec Králové in honour of Rare Disease Day in Czech Republic.
The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!
Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.
Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...
Illumination of Fontana Piazza Umberto I in honor of Rare Disease Day in Italy.
In the year 2021-2022, Rare Disease Genetics and Genomics Research at Centre for Omic Sciences, Islamia College Peshawar has successfully...
Este foro busca ayudar a la visibilización de estas condiciones, proponer alternativas para mejorar el diagnóstico y manejo de las...
Illumination of NoRo Center in honor of Rare Disease Day in Romania.
Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.
Illumination of Sede de Emuasa in honour of Rare Disease Day in Spain
Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...
In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...
En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...
Illumination of Launceston Town Hall in honor of Rare Disease Day in Australia.
Illumination of Ayuntamiento de Lorca in honour of Rare Disease Day in Spain
Illumination of Parque de la Flrorida in honour of Rare Disease Day in Spain
Show your support for #RareDiseaseDay by lighting up your home, office, or school on 28 February! By coming together to...
Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...
Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain
Illumination of Castelo de Leiria in honor of Rare Disease Day in Portugal.
Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.
To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...
Illumination of Brant Street Pier in #RareDiseaseDay colours
Illumination of Istituto comprensivo in honor of Rare Disease Day in Italy.
Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.
This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...
Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...
Illumination of Ayuntamiento de Talavera in honour of Rare Disease Day in Spain
On the 28th of February, Trinity College Dublin will be lit up in purple as we celebrate Rare Disease Day...
Illumination of Burg und Kloster Oybin in honour of Rare Disease Day in Germany
For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...
Illumination of Comune in Sant’Antonio Abate in honor of Rare Disease Day in Italy.
Art Contest – Send your drawings by March 31 – By post: Fondation René Touraine // Hôpital Necker – Enfants...
Illuminazione
The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...
Illumination of Vecchia Sede Comunale in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Rieti in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Taranto in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Merate in honor of Rare Disease Day in Italy.
Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.
On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most...
During the classes we gave a support for the Rare through out different kind of activities like singing songs, playing...
Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022 to Sunday 06.03.2022 at...
A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...
Illumination of Chiesa Madre SS Pietro e Paolo – Galatina (LE) in honor of Rare Disease Day in Italy.
By partnering with US Bank Stadium in Minneapolis to Light Up For Rare for a 2nd year, the Yaya Foundation...
Illumination of Tour Bellanda in honour of Rare Disease Day in France
🙌🏻 𝐃𝐢́𝐚 𝐌𝐮𝐧𝐝𝐢𝐚𝐥 𝐝𝐞 𝐥𝐚𝐬 𝐄𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬 𝐑𝐚𝐫𝐚𝐬 💜💜💜👚 👚👚 Los invitamos al FORO: 𝐄𝐥 𝐚𝐛𝐨𝐫𝐝𝐚𝐣𝐞 𝐝𝐞 𝐥𝐚𝐬 𝐩𝐞𝐫𝐬𝐨𝐧𝐚𝐬 𝐜𝐨𝐧 𝐞𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬...
“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...
Illumination of Municipio Teglio Veneto in honor of Rare Disease Day in Italy.
Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um...
Illumination of AAMI Park in honor of Rare Disease Day in Australia.
Illumination of Municipio di Verbania in honor of Rare Disease Day in Italy.
Illumination of Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.
Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.
Illumination of La Rotonda in honor of Rare Disease Day in Italy.
Illumination of Monumento ai Caduti sul lavoro in honor of Rare Disease Day in Italy.
A free, open-to-all online event to: • To showcase our new Newcastle Centre for Rare Disease Research, highlighting our mission...
Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany
Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France
Illumination of William Grundt Memorial Library in honor of Rare Disease Day in Australia.
Illumination of Koombana Bay Footbridge in honor of Rare Disease Day in Australia.
Illumination of Marienkirche Neubrandenburg in honour of Rare Disease Day in Germany
Illumination of San Mames Estadio in honour of Rare Disease Day in Spain
This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” illuminating Porta San Giacomo. We are grateful to our branch...
The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...
Illumination of Iconic Shine Dome in honor of Rare Disease Day in Australia.
Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland
“95” Rare Alliance Greece illuminates the Οld Τown Ηall of Mitilini in honor of Rare Disease Day in Greece.
Illumination of Ayuntamiento de Huelva in honour of Rare Disease Day in Spain
Illumination of Municipality of San Michele al Tagliamento in honor of Rare Disease Day in Italy.
Illumination of Greenbrier in honor of Rare Disease Day in the United-States.
Lights on Rare Disease – Cuneo will light up of rare disease colours
Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating the “Palazzo della Regione” in Piazza Unità d’Italia....
Illumination of l’Ours Pompon in honour of Rare Disease Day in France
Illumination of Tančící dům – Ginger and Fred in honour of Rare Disease Day in Czech Republic.
Illumination of Ayuntamiento Jabalquito in honour of Rare Disease Day in Spain
Illumination of Palazzo di Città di Fasano in honor of Rare Disease Day in Italy.
The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...
The Automobile Association are lighting up their head office to represent Pontine Tegmental Cap Dysplasia and Lola who is a...
Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.
Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain
Illumination of The Drum Theatre in honor of Rare Disease Day in Australia.
Illumination of Budynek Instytutu Biochemii i Biofizyki PAN w Warszawie in honour of Rare Disease Day in Poland
Illumination of Manly Town Hall in honor of Rare Disease Day in Australia.
Illumination of Castel dell’Ovo in honor of Rare Disease Day in Italy.
The last day of February is recognized as Rare Disease Day. We at SickKids, are proud to join the many...
Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.
Illumination of Municipio di Ischia in honor of Rare Disease Day in Italy.
We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.
Illumination of Ospedale Pediatrico Meyer in honor of Rare Disease Day in Italy.
Illumination of Townsville Sign in honor of Rare Disease Day in Australia.
Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.
Illumination of Porta a Monte in honor of Rare Disease Day in Italy.
Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.
UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” by illuminating “Palazzo della Loggia”. We are grateful to our...
Illumination of Bytów’s town hall in honour of Rare Disease Day in Poland
We are opening our cafe for the very first time and asking our customers to get out their animal prints...
Illumination of Torre Normanna – Rutigliano (Ba) in honor of Rare Disease Day in Italy.
Illumination of The Big Banana Fun Park in honor of Rare Disease Day in Australia.
U 7 pm biće osvetljena Gradska kuća opštine Kruševac
https://roanoketower.com/tower-lights/ Light up of city building
Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...
Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain
On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...
Illumination of Ayuntamiento de Cuenca in honour of Rare Disease Day in Spain
Lights on Rare Disease – L’Aquila will light up of rare disease colours
Illumination of Zakim Bridge in honor of Rare Disease Day in USA.
Awareness and wellness walk where ribbons will be handed out in the colors of rare disease day!
Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.
Illumination of Historical Arches in honor of Rare Disease Day in USA.
Illumination of Palazzo del Municipio ( lato via Garibaldi) in honor of Rare Disease Day in Italy.
Illumination of Clermont Auvergne Opéra in honour of Rare Disease Day in France
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.
Illumination of Museo de Arte Contemporáneo / Fundación Díaz Caneja de Palencia in honour of Rare Disease Day in Spain
Illumination of the Consortium Lounge in honor of Rare Disease Day in Australia.
Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...
MANY, STRONG, PROUD – ein Lauf zum „Tag der seltenen Erkrankungen“! Vom 28.2.-6.3 findet der Rare Diseases Run als virtueller...
Illumination of Porta San Giacomo in honor of Rare Disease Day in Italy.
Illumination of Estátua D. José I – Terreiro do Paço in honor of Rare Disease Day in Portugal.
Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.
Illumination of Ayuntamiento de A Guarda in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Marbella in honour of Rare Disease Day in Spain
Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...
Illumination of Rocchetta in honor of Rare Disease Day in Italy.
Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...
Illumination of Edifício da Câmara Municipal – Castelo Branco in honor of Rare Disease Day in Portugal.
Illumination of Comune di carpi in honor of Rare Disease Day in Italy.
The objective of the event is to disseminate, among the community of the Autonomous University of Guadalajara and its students...
Illumination of Statua del Villano in honor of Rare Disease Day in Italy.
Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.
Illumination of Richmond Reserve in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece illuminates the monument in the Three Admirals’ Square in honor of Rare Disease Day in Pylos,...
Illumination of Collegiata di Saint Gilles di Verrès in honor of Rare Disease Day in Italy.
Illumination of Tête carrée in honour of Rare Disease Day in France
Illumination of Basse-Terre’s town hall in honour of Rare Disease Day in France
Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.
Illumination of Joondalup Drive Bridge in honor of Rare Disease Day in Australia.
Illumination of Pruszcz Gdański’s town hall in honour of Rare Disease Day in Poland fot. Janina Wilkos-Gad
Illumination of old Melbourne’s GPO in honor of Rare Disease Day in Australia.
Con todo respeto y cariño, dedicamos este video a la amada memoria de Elizabeth, Valente y Emmanuel Martínez Pérez, los...
Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...
We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...
Be Rare Spirit Day, which was planned, organized, and hosted by Abigail Villarreal will take place at Thomas Jefferson High...
Illumination of Monash Park Tree in honor of Rare Disease Day in Australia.
Illumination of Scultura in ferro di Via Roma in honor of Rare Disease Day in Italy.
Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.
Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...
With the help of Beck-Fahrner syndrome families, six Minnesota landmarks will be joining the global chain of lights by illuminating...
Illumination of Municipio di Fossalta di Portogruaro in honor of Rare Disease Day in Italy.
Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.
No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...
Illumination of the Alamo Quarry Market smoke stacks in honor of Rare Disease Day in the United States.
Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....
Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain
Illumination of Castle Hněvín in honour of Rare Disease Day in Czech Republic.
In 2021 we were able to perform whole exome sequencing of more one hundred index patients with Rare Disease in...
Illumination of Theater Dessau in honour of Rare Disease Day in Germany
Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...
Illumination of Federation Square in honor of Rare Disease Day in Australia.
The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...
Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.
Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.
Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...
“95” Rare Alliance Greece illuminates the Rio – Antirrio Bridge in honor of Rare Disease Day in Greece.
Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...
Illumination of Pont de Recouvrance in honour of Rare Disease Day in France
Illumination of Torre Campanaria (Il Campanone) in honor of Rare Disease Day in Italy.
Illumination of the Baylor College of Medicine in honor of Rare Disease Day in the United-States.
Lights on Rare Disease – Pistoia will light up of rare disease colours
Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Saint Denis’ town hall in honour of Rare Disease Day in France
Illumination of Chiesa di San Sebastiano in honor of Rare Disease Day in Italy.
In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...
Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...
This lesson plan is a proposal that we address to the teachers of our schools. The goal is to help...
Illuminazione della Torre dell’Orologio e la Fontana di Bellerofonte in onore della Giornata delle Malattie Rare
Illumination of Ayuntamiento de Baeza in honour of Rare Disease Day in Spain
Lights on Rare Disease – Fontana del Teatro Valli will light up of rare disease colours
Illumination of Ayuntamiento de Vitoria in honour of Rare Disease Day in Spain
Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...
Parliament house will illuminate blue, green and purple for rare disease day.
Illumination of Fuente de los Patos de Alhama de Murcia in honour of Rare Disease Day in Spain
Illumination of Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.
UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” illuminating of green the Mole Antonelliana. We are grateful to...
Lights on Rare Disease – Potenza will light up of rare disease colours
Загорается для редких💥 Light up for rare 💥 Челябинск первый из российских городов присоединится к глобальной акции в поддержку людей...
Illumination of City Hall Annex in honor of Rare Disease Day in Australia.
Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of San Francisco’s City Hall in honor of Rare Disease Day in USA.
Illumination of Edifício dos Paços do Concelho – Funchal in honor of Rare Disease Day in Portugal.
Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.
Illumination of “El Capitolio” (Capitol of Puerto Rico) – San Juan – in honor of Rare Disease Day in Puerto...
Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.
Reading of OEIS heritage
Illumination of the Frost Tower in honor of Rare Disease Day in the United States.
Illumination of Edifício dos Paços do Concelho – Portalegre in honor of Rare Disease Day in Portugal.
Illumination of Besucherzentrum der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Join our Rare Disease Day virtual panel discussion as BioNews columnists from a variety of our rare communities participate in...
Shining a Light on Genetic Diagnosis, Monday 28 February, 6-7.30pm Institute of Genetics and Cancer, the University of Edinburgh, in...
Illumination of Roldán in honour of Rare Disease Day in Argentina
Illumination of the clock tower in honour of the International Rare Disease Day and to celebrate the end of Rare...
Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Edifício dos Paços do Concelho – Angra do Heroísmo in honor of Rare Disease Day in Portugal.
On this year’s International Day of Rare Diseases, the Lithuanian Association of Patients with Genetic Neuromuscular Diseases “Sraunia” invites to...
Illumination of Palazzo di Città di Salerno in honor of Rare Disease Day in Italy.
Illumination of the Trinity College in honor of Rare Disease Day in Ireland.
Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...
Illumination of Vereinshaus Junge Linde in honour of Rare Disease Day in Germany
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale – Veglie (LE) in honor of Rare Disease Day in Italy.
Illumination of Cyprus Institute of Neurology and Genetics in honor of Rare Disease Day in Cyprus.
Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.
Lights on Rare Disease – Rimini will light up of rare disease colours
Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany
Illumination of Palazzo Comunale di Palaia in honor of Rare Disease Day in Italy.
Illuminazione del Municipio
The Duke Consortium for Inflammatory Breast Cancer will be tabling on the Bryan Center Plaza from 10am to 2pm in...
Illumination of Council House in honor of Rare Disease Day in Australia.
Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...
Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...
Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain
Illumination of Monumento ai Caduti di Castiglione della Pescaia in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Rovigo will light up of rare disease colours
We will light the national museum for the first time in lebanon
We join forces for the children with Rare Diseases: “95” Rare Alliance Greece illuminates the Children’s Hospital “H Agia Sofia”...
Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that...
Dunya Nadir Hastaliklar Gunu, Nadir Hastaliklarda Tani Yolculugu temasi ile 28 Subat 2022 tarihinde cevrimici etkinlik olarak duzenlenecek.
Illumination of Templi del Parco Archeologico di Paestum in honor of Rare Disease Day in Italy.
Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.
Illumination of Opera House Timișoara in honor of Rare Disease Day in Romania.
Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...
Illumination of Rocca di Carmignano in honor of Rare Disease Day in Italy.
Illumination of Marlston Waterfront in honor of Rare Disease Day in Australia.
The City of Winnipeg Mayor and Council are lighting up the tourist “Winnipeg sign” at the Forks in the Rare...
Subir más de 2.000 escalones
Illumination of Emigration Museum in honour of Rare Disease Day in Poland
Illumination of Ayuntamiento de Santa Cruz in honour of Rare Disease Day in Spain
Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.
Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.
Illumination of Palazzo della Regione Friuli Venezia Giulia – Gorizia in honor of Rare Disease Day in Italy.
Illumination of Bahnhof Mannheim in honour of Rare Disease Day in Germany
Community Heroes and advocates partake in the observance to raise awareness of rare diseases and their impact on patients and...
Illumination of Torre Civica di Muscoline in honor of Rare Disease Day in Italy.
Illumination of Monumento dei caduti di Otranto in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Grosseto in honor of Rare Disease Day in Italy.
Illumination of Comune di Seveso in honor of Rare Disease Day in Italy.
Illumination of Craneosaurs of Żegluga Szczecińska & Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in...
Illumination of Palazzo di città Baronissi in honor of Rare Disease Day in Italy.
Illumination of Torre del Castello in honor of Rare Disease Day in Italy.
Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.
Students from different Departments of University participate in it
Lighting up the tallest tower in East Africa, Kenyan style!!
Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.
Il centro commerciale Belicittà, bene confiscato alla criminalità organizzata, ha messo a disposizione un desk informativo in galleria per far...
Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.
Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.
Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.
Illumination of Municipio di Portogruaro (Ve) in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale San Cassiano in honor of Rare Disease Day in Italy.
Oggi GIORNATA MONDIALE DELLE MALATTIE RARE: partecipa alla RARE RUN BOLOGNA – Edizione Virtuale. Sostieni con noi tutti i bimbi...
Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...
Illumination of Place Stanislas in honour of Rare Disease Day in France
Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...
Illumination of Perth Bell Tower in honor of Rare Disease Day in Australia.
Illumination of Wait Chapel at Wake Forest University in honor of Rare Disease Day in USA.
Illumination of the Dr. von Hauner Children’s Hospital in honour of Rare Disease Day in Germany
Illumination of Palazzo Mantegna in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.
Limited Awareness campaign n launch of a website for connecting families affected with rare diseases, bridging gaps in diagnosis/treatment and...
Illumination of Flinders Street Railway Station in honor of Rare Disease Day in Australia.
Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland
The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...
“95” Rare Alliance Greece illuminates the Town Hall of Florina in honor of Rare Disease Day.
Illumination of Porta al Prato in honor of Rare Disease Day in Italy.
Illumination of Palazzo del Podestà in honor of Rare Disease Day in Italy.
Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.
Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
The most important museum of art of Andorra participates in the building illumination for rare disease day.
Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain
Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain
The Rare Links webinar series aims to provide a platform where national and international experts can share their knowledge and...
Medical Universities, City Halloween, Centers for Rare Diseases and other buildings will be illuminated for RDD, on the evening of...
Illumination of María Teresa in honour of Rare Disease Day in Argentina
Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.
Illumination of The Helmsley Building, 230 Park Ave NYC in honor of Rare Disease Day in USA.
Illumination of Teatro Herberia di Rubiera in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.
Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany
“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...
Illumination of Palazzo Municipale del Comune di Barano d’Ischia (NA) in honor of Rare Disease Day in Italy.
Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain
Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...
An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...
Illumination of Municipio di Montagna in Valtellina in honor of Rare Disease Day in Italy.
Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.
Illuminazione del Torrione AST Associazione Sclerosi Tuberosa e Associazione Sindrome di Williams E.R.
Illumination of Stuttgarter Bahnhof in honour of Rare Disease Day in Germany
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...