Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world
MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...
Rare diseases are gaining traction as a pressing health priority worldwide. We have now seen the first-ever UN Resolution on...
Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...
“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w IV Dniu Chorób Rzadkich na...
Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and...
Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch: Mit Expertinnen und Experten ins Gespräch kommen, Fragen...
Krajowe Forum na Rzecz Terapii Chorób Rzadkich ORPHAN w imieniu organizacji członkowskich oraz własnym zaprasza Państwa na wspólne obchody Światowego...
Since 2011, the National Center for Advancing Translational Sciences and the NIH Clinical Center have sponsored Rare Disease Day at...
La Red Mexicana de Enfermedades Raras (ReMexER) y el Laboratorio Internacional de Investigación sobre el Genoma Humano se unen a...
Le 28 Février prochain, journée mondiale des maladies rares, notre association organisera dès 19:30 au Cinéma For&ver un ciné-débat ayant...
Lançmento de video: Raras sem vergonha, quebrano o tabu Painel de mulheres raras sobre criar inclusão na sociedade: 4 mulheres...
28/2/2023 /8:30 am/ Savion Center The Sheba Medical Center annual congress for the rare disease international day is a unique...
das Zentrum für Seltene Erkrankungen (ZSE) Hannover möchte Sie anlässlich des “Rare Disease Day 2023″ am Dienstag, den 28.02.2023 zu...
The 2nd Rare Diseases Run, organized by SYNGAP Elternhilfe e.V and Laufen macht glücklich GbR, will take place from 28th...
Join MassBio as we mark the annual Rare Disease Day at the Statehouse by bringing attention to the groundbreaking, patient-focused...
In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals. More than 7,000 rare...
We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open...
Don’t miss RARE Skydive 2023! Mark your calendars for 27 February 2023. Through this unique awareness initiative, we hope to...
“Genetics Matters” is an annual event organised by Newcastle University to mark the International Rare Disease Day. Currently in its...
On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...
The Zebra 5K Run/Walk is an in person or virtual 5K run OR walk! It will take place to mark...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
To help raise awareness of the day, the Trent Building on University Park Campus will join a host of other...
To mark Rare Disease Day, a scientific conference for students willing to present medical cases will be held.
At the LOUDRARE ONLINE FESTIVAL, people with rare diseases, patient communities, medicine, the pharmaceutical industry and other stakeholders involved in...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
Fighting H.A.R.D. Foundation’s Run HARD for Rare Kids was started in 2021 as a way to safely raise funds and...
The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
Cambridge Rare Disease Network (CamRARE) invite you to join us for tea and cakes to celebrate this year’s Rare Disease...
Soft Bones, Inc. will be hosting their 2023 National Patient Meeting in Phoenix, AZ. We will be celebrating and highlighting...
Maladies Rares Tour est un programme de sensibilisations et d’éducation sur les places publiques de cinq villes en Cote d’ivoire...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
In the run-up of Rare Disease Day, Chan Zuckerberg Initiative presents: No Ordinary Campaign at the Presidio Theatre in San...
We’re counting down 90 days to RDD! 💜💚💙 #Donations #Humanitarianevents In anticipation of February 28 2023-International Day of Rare Diseases...
Join us for our 8th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...
ALD Makes Me Blue is a collaborative fundraising coalition among international ALD organizations. It is the “Brain Child” of a...
Live Song Performance of my Song for the Rare Disease Day “Proud To Be Rare” at THE bEAR Live Story...
The Egyptian society of human genetics and the Medical Genetics Department, Ain Shams University are inviting you to our fourth...
The Rare Diseases Alliance of Latvia (LRSA) is an independent non-governmental organization founded on October 3, 2014, uniting organizations representing various interests of...
III ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...
Third edition of the charitable drawing contest organised by CONGEN to raise awareness about rare diseases. The 12 selected drawings...
SpectacuRARE Fest 2023 diselenggarakan oleh Indonesia CARE for RARE Diseases (IC4RD). Terdiri dari rangkaian acara virtual. Acara puncak akan dilaksanakan...
Science4Rare 2023 – Worldwide Science Contest IndoUSrare, announces Worldwide Science contest – Science4Rare – 2023. Registration: https://bit.ly/science4Rare2023 Calling on all...
IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2023. This year’s theme...
Are you ready to get involved in #RareDiseaseDay and help raise awareness for your community? We are here to help!...
STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...
The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...
Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.
On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...
12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.
In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...
In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...
𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.
The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...
WEBINAR Patient Family Exchange Meeting
La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
3 online lectures on ARVC research with following Q&A
Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...
More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....
Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...
A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...
WEBINAR Online Well Festa 2022 with RDD in Chiba
Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!
FDA will host a virtual public meeting on March 4, 2022 to join the global observance of Rare Disease Day....
Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...
As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...
A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...
Online – Veranstaltung
L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...
Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...
In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...
El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...
An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...
Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.
“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...
Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...
In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...
A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...
Illumination of Palazzo Comunale di Ponte Buggianese in honor of Rare Disease Day in Italy.
The City of Winnipeg Mayor and Council are lighting up the tourist “Winnipeg sign” at the Forks in the Rare...
Illumination of Fontana di Corso Vittorio Emanuele II in honor of Rare Disease Day in Italy.
Illumination of l’Ours Pompon in honour of Rare Disease Day in France
Illumination of Adelaide Oval in honor of Rare Disease Day in Australia.
Illumination of La Rotonda in honor of Rare Disease Day in Italy.
On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...
Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.
Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.
Illumination of Ayuntamiento de Sevilla in honour of Rare Disease Day in Spain
Illumination of Palazzo del Podestà – Bologna in honor of Rare Disease Day in Italy.
Illumination of The SUNY Plaza in honor of Rare Disease Day in USA.
Illumination of Torre Normanna – Rutigliano (Ba) in honor of Rare Disease Day in Italy.
ERN ReCONNET, the European Reference Network for Rare and Complex Connective Tissue Diseases, renews its appointment with the illumination of...
Illumination of Rathaus Spandau Berlin in honour of Rare Disease Day in Germany
Illumination of Tête carrée in honour of Rare Disease Day in France
Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Torre civica in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain
The logo of the World Rare Disease Day will be projected on the Mikis Theodorakis Theater in Chania, by “95”...
Illumination of Council House in honor of Rare Disease Day in Australia.
Illumination of Spodek in honour of Rare Disease Day in Poland
Illumination of María Teresa in honour of Rare Disease Day in Argentina
In this conference we decided to talk about accessibility and what this means for rare patients, especially in these 2...
Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.
Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.
Illumination of Rocca Malatestiana in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Villatorres in honour of Rare Disease Day in Spain
Illumination of Porta alla Croce in honor of Rare Disease Day in Italy.
Illumination of St. Barbara Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Illumination of Grand Place in honour of Rare Disease Day in France
This Rare Disease Day (28 Feb 2022), join women from three countries creating change in the world of Rare Disease...
Illumination of Il Campanone della Brianza in honor of Rare Disease Day in Italy.
An exhibition focused on using Art Therapy as a way of accepting or being affected by a rare disease. The...
Brampton City Hall will be illuminating the Clock Tower on February 28th 2022 in Purple and Blue to recognize Rare...
Illumination of Ayuntamiento de Dos Hermanas in honour of Rare Disease Day in Spain
Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.
Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy
FEMEXER, la UNAM y el Museo de la Mujer se unen en un conversatorio fresco y desenfadado para tratar un...
Illumination of Wells Fargo Duke Energy Center in honor of Rare Disease Day in USA.
Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.
Illumination of Passaggio Joyce, detto “Ponte Curto” in honor of Rare Disease Day in Italy.
Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.
“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...
Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.
Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.
Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.
Illumination of Marlston Hill Lookout in honor of Rare Disease Day in Australia.
Illumination of Complesso Santa Sabina in honor of Rare Disease Day in Italy.
Illumination of Torre dell’acquedotto in honor of Rare Disease Day in Italy.
Illumination of Porta Romana Fumone in honor of Rare Disease Day in Italy.
Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain
Lights on Rare Disease – Firenze will light up of rare disease colours
Illumination of Palazzo della Gran Guardia – Verona in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Crotone in honor of Rare Disease Day in Italy.
Illumination of George Roberts Bridge in honor of Rare Disease Day in Australia.
Illumination of Mid Hudson Bridge in honor of Rare Disease Day in USA.
Illumination of Palazzo Estense (Palazzo Comunale) – Varese in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Municipality of Ferrara, in cooperation with Teatro Comunale di Ferrara, will light up of rare...
Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.
Illumination of the Parliament House in honor of Rare Disease Day in Australia.
Illumination of Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.
Lights on Rare Disease – Vercelli will light up of rare disease colours
Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain
Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain
The NGO called Cetatea Voluntarilor is the constant partner of Romanian National Alliance for Rare Diseases in organizing events to...
Illumination of City Hall Oradea in honor of Rare Disease Day in Romania.
Iluminación en color violeta
Illumination of Dziedziniec Urzędu Miasta Poznania wraz z Placem Kolegiackim in honour of Rare Disease Day in Poland
Illumination of Fontana luminosa – Piazza Battaglione Alpini in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Pistoia will light up of rare disease colours
In coordination with the National Parks Development Committee, the Rizal Monument was illuminated in purple for Rare Disease Day as...
Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...
Lights on Rare Disease – L’Aquila will light up of rare disease colours
Illumination of Palazzo di Città di Potenza in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...
“95” Rare Alliance Greece illuminates the building “Loggia” in honor of Rare Disease Day in Heraklion, Greece.
Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...
In 2022, the eighth annual International Rare Disease Day online conference will take place at the Sheba Medical Center, with...
Wear jeans and learn more about Rare Disease Day to raise awareness for the many rare diseases in our area.
Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...
Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that...
We will light the national museum for the first time in lebanon
Illumination of Comune di Mestre in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.
Illumination of Matagarup Bridge in honor of Rare Disease Day in Australia.
Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.
Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France
Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...
Illumination of Schlot Erlanger Stadtwerke in honour of Rare Disease Day in Germany
Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain
Illumination of Palazzo comunale Nuoro in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Rimini will light up of rare disease colours
Illuminazione
Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.
Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...
Gateshead Millennium Bridge will be joining other landmarks in lighting up in support of Rare Disease day .
Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany
Illumination of Casa Comunale – Roccamena (Pa) in honor of Rare Disease Day in Italy.
An online chat/video sharing information about POMC and how it effects our life
Illumination of St. Elisabeth Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Illumination of Opera architettonica di Rotonda Foschini in honor of Rare Disease Day in Italy.
Illumination of Mounts Street Bridge in honor of Rare Disease Day in Australia.
The famous Geneva Jet d’eau will be illuminate in purple the night of February 28 – thanks to the SIG...
Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...
Illumination of Palazzo Municipale di Livorno in honor of Rare Disease Day in Italy.
Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany
Illumination of Collegiata di Saint Gilles di Verrès in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho – Guarda in honor of Rare Disease Day in Portugal.
Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.
Illumination of Iglica Międzynarodowych Targów Poznańskich in honour of Rare Disease Day in Poland
Illumination of The Navigators at the Koombana Drive roundabout in honor of Rare Disease Day in Australia.
Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.
Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.
An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...
Illumination of NoRo Center in honor of Rare Disease Day in Romania.
Illumination of Puentes de la Alameda de Talavera in honour of Rare Disease Day in Spain
Illumination of Zakim Bridge in honor of Rare Disease Day in USA.
Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.
Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
Illumination of Ministry of Health in honor of Rare Disease Day in Cyprus.
Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...
Illuminations for Rare Disease Day 2022 in Poland: City Hall | Bytów Neptune’s Fountain | Gdańsk Olivia Hall |...
4th Rare Disease Day Training Meeting will be held online with the attendance of Turkish Ministry of Health, academics, members...
The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...
Join the global Rare Disease Day event organised by the NGO Committee for Rare Diseases, the Ågrenska Foundation, RDI, and...
Illumination of FDA in honor of Rare Disease Day in USA.
Illumination of Fontana di Piazza della Repubblica in honor of Rare Disease Day in Italy.
llumination of the City Hall (Urząd Miejski) in Bytów in honour of Rare Disease Day in Poland. It will happen...
Illumination of Centro di aggregazione sociale – Surano (Le) in honor of Rare Disease Day in Italy.
Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...
A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...
Illumination of City Hall in honor of Rare Disease Day in USA.
Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de La Carolina in honour of Rare Disease Day in Spain
Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.
Illumination of Porta San Niccolò in honor of Rare Disease Day in Italy.
Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...
Illumination of Porta a Monte in honor of Rare Disease Day in Italy.
Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.
Illumination of Larnaca Medieval Castle in honor of Rare Disease Day in Cyprus.
Join SWAN Australia, Carer Gateway – Wellways Australia and Community Junction in raising awareness about rare diseases on Rare Disease...
Illumination of Fontana del Teatro Valli in honor of Rare Disease Day in Italy.
Illumination of Torretta sede dell’Ufficio Territoriale in honor of Rare Disease Day in Italy.
Illumination of Presidential Palace in honor of Rare Disease Day in Cyprus.
Illumination of Comune di Rufina in honor of Rare Disease Day in Italy.
Carlos David Peña Aragón, mejor conocido como Toto, nos platica qué representa vivir como persona con una enfermedad rara en...
A week campaign dedicated to Rare Liver Diseases. One disease will be presented each day with contributions from both the...
“95” Rare Alliance Greece illuminates Headquarters of the Regional Unit of Etoloakarnania in honor of Rare Disease Day in Mesologgi,...
La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...
Illumination of Kienlesbergbrücke Ulm in honour of Rare Disease Day in Germany
Illumination of La Cappella di Piazza del Campo in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Rovigo will light up of rare disease colours
Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.
Illumination of Ayuntamiento de Valencia in honour of Rare Disease Day in Spain
Illumination of Mooroopna Water Tower in honor of Rare Disease Day in Australia.
Illumination of Loggia del Palazzo della Ragione in honor of Rare Disease Day in Italy.
Illumination of old Melbourne’s GPO in honor of Rare Disease Day in Australia.
The Oxford-Harrington Rare Disease Centre (OHC) invites you to recognize Rare Disease Day by attending its Rare Disease Day Webinar...
Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.
The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...
On February 28 in the Rooms Hotel Tbilisi the press conference dedicated to the Rare Disease Day has been held....
Walk a lot
In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...
Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.
We illuminated our school building with the colors of rare diseases
Lights on Rare Disease – Mantova will light up of rare disease colours
Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.
Illumination of Wait Chapel at Wake Forest University in honor of Rare Disease Day in USA.
Illumination of Medical University Carol Davila Bucharest in honor of Rare Disease Day in Romania.
Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.
Illumination of the Henry B. González Convention Center in honor of Rare Disease Day in the United States.
We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...
Um quiz no Facebook com questões sobre doença rara mitocondrial, podendo ganhar 3 prémios! | A quiz on Facebook with...
Illumination of Palazzo del Municipio Di Gattatico in honor of Rare Disease Day in Italy.
Illumination of Palazzo di Città di Augusta in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain
Illumination of TOkna w Sali Sesyjnej w Sukiennicach, Wrocław in honor of Rare Disease Day in Poland.
Illumination of Plac Litewski in honour of Rare Disease Day in Poland
“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...
This year we look forward to celebrating #RareDiseaseDay2022! Come enjoy a chat 7 pm EST, February 28, 2022. Speak with...
Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.
Illumination of Granarone Cerveteri in honor of Rare Disease Day in Italy.
Illumination of Greenbrier in honor of Rare Disease Day in the United-States.
Illumination of Box Hill’s town hall in honor of Rare Disease Day in Australia.
Lights on Rare Disease – Cuneo will light up of rare disease colours
Illumination of Municipio di pressana in honor of Rare Disease Day in Italy.
Illumination of Czech Republic Pavilion EXPO 2020 in honour of Rare Disease Day worldwide.
Illumination of San Genesio in honor of Rare Disease Day in Italy.
Please join us for a special support event in honor of Rare Disease Day. This will be a great opportunity...
Illumination of Cristo del Otero in honour of Rare Disease Day in Spain
In time for #RareDiseaseDay, our host Lelainia and Founder and Executive Director of the Sumaira Foundation, Sumaira Ahmed, discuss what...
Illumination of Albany Grain Terminal Silo in honor of Rare Disease Day in Australia.
Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.
Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.
Subir más de 2.000 escalones
Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...
While FMD is thought of as Underdiagnosed we are Rare until proven otherwise. Help us support Rare Disease Day on...
Illumination of Palazzo del fanciullo – Matino in honor of Rare Disease Day in Italy.
Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.
Illumination of Palazzo Comunale di Vico Equense in honor of Rare Disease Day in Italy.
Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.
Birt Hogg Dubbe Syndrome patient, marathoner and now capable to an open water maratón swim.. nothing is impossible! Believe in...
Lights on Rare Disease – Procida will light up of rare disease colours
Illumination of BarArena in Leverkusen in honour of Rare Disease Day in Germany
Illumination of J L Tower in honor of Rare Disease Day in USA.
Illumination of Tour Tanguy in honour of Rare Disease Day in France
Illumination of Story Bridge in honor of Rare Disease Day in Australia.
Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci
Illumination of Mole Antonelliana – Torino in honor of Rare Disease Day in Italy.
Illumination of Palazzo S.Antonio in honor of Rare Disease Day in Italy.
This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...
Illumination of Ayuntamiento de Totana in honour of Rare Disease Day in Spain
Illumination of Sky Ribbon in honor of Rare Disease Day in Australia.
To the Rare Disease Community, we have the pleasure to invite you all to the light up of Burj Khalifa...
Pfizer México se une a la conmemoración del Día Mundial de las Enfermedades Raras al iluminar su edificio en Ciudad...
Conversatorios con especialistas, personas que viven con enfermedades raras y personas cuidadoras.
Lights on Rare Disease – Barletta will light up of rare disease colours
On February 28, 2022 we will be highlight throughout the day individuals and organizations helping and seeking a cure to...
People living with genetic conditions and cancers are at the heart of our research at the Institute of Genetics and...
Illumination of Laimer Würfel München in honour of Rare Disease Day in Germany
En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...
Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.
Illumination of Edifício da Câmara Municipal – Calheta in honor of Rare Disease Day in Portugal.
This year for Rare Disease Day 2022 we are calling on everyone to help the rare disease community be united...
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Queensland Country Bank Stadium in honor of Rare Disease Day in Australia.
Illumination of Koombana Bay Foreshore in honor of Rare Disease Day in Australia.
Students from different Departments of University participate in it
On-line conference. Rare Diseases UAE-Israel Virtual Conference Program
Illumination of Municipio di Gravellona Toce in honor of Rare Disease Day in Italy.
Illumination of the Frost Tower in honor of Rare Disease Day in the United States.
Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany
Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Illumination of Panevezys City Municipality’s Administration building in honor of Rare Disease Day in Lithuania.
Lights on Rare Disease – Locri will light up of rare disease colours
On Monday, the sky lights up a little extra over Lilla Amundön when Ågrenska draws attention to the Rare Day....
Illumination of Kleisthaus Berlin in honour of Rare Disease Day in Germany
Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.
Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
9:30-13:30h Webinar with the participation of several entities. The event has three main sessions. Organização: Mirror Group Português do Programa...
Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.
In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...
No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...
Illumination of Fuente de la puerta in honour of Rare Disease Day in Spain
Join the global initiative calling on everyone to help raise awareness of the rare disease community and unite all of...
Parliament house will illuminate blue, green and purple for rare disease day.
Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.
Illumination of Stuttgarter Bahnhof in honour of Rare Disease Day in Germany
Limited Awareness campaign n launch of a website for connecting families affected with rare diseases, bridging gaps in diagnosis/treatment and...
“95” Rare Alliance Greece illuminates Μunicipal theatre in honor of Rare Disease Day in Pefki, Greece.
In classrooms, offices and parks in Coolum and all over the world, dress in your brightest rainbow stripes on International...
Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives....
UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” by illuminating “Palazzo della Loggia”. We are grateful to our...
Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...
Illumination of Sede del Municipio di Fontaniva in honor of Rare Disease Day in Italy.
Illumination of Municipio Concordia Sagittaria (Ve) in honor of Rare Disease Day in Italy.
Illumination of some building homes and offices with Rare disease day colours in honour of Rare Disease Day in Rwanda:...
Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.
Illumination of Teatro Valli in honor of Rare Disease Day in Italy.
Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...
Illumination of Castel Sismondo in honor of Rare Disease Day in Italy.