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Neues aus der ARVC-Forschung (News from ARVC research)

9 Mar 2022 Munich (Online), Germany

3 online lectures on ARVC research with following Q&A

IPASSI: what's new?

5 Mar 2022 Naples, Italy

A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...

In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...

RARE DISEASES RUN 2022

28 Feb 2022 to 6 Mar 2022 Krefeld, Germany

Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...

2do Simposio Internacional del Día de las Enfermedades Raras

28 Feb 2022 Queretaro (Virtual), Mexico

La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...

Rare Disease Day 2022

28 Feb 2022 Global , Canada

This year we look forward to celebrating #RareDiseaseDay2022! Come enjoy a chat 7 pm EST, February 28, 2022. Speak with...

#YoTambienSoyRaro

28 Feb 2022 Madrid, Spain

Subir más de 2.000 escalones

rare is precious

28 Feb 2022 to 6 Mar 2022 Muscat, Oman

Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...

W 2022 roku Dzień Chorób Rzadkich obchodzimy 28 lutego. Aby szerzyć wiedzę na temat tych chorób, chcielibyśmy zaprosić Państwa do...

Rare Disease Day 1q44 Run & Walk

26 Feb 2022 to 28 Feb 2022 Trenčín , Slovakia

Join us for the virtual Rare Disease Day 1q44 Run & Walk. You can choose to run or walk the...

Pro Rare Austria Rare Disease Day

26 Feb 2022 Vienna, Austria

ANMELDUNG ZUR PRAXISWERKSTATT

25 Feb 2022 Hannover, Germany

Die 4. Praxis-Werkstatt für Epidermolysis bullosa richtet sich wieder an Betroffene und deren Angehörige, Fachkreise, Freunde, Förderer und Interessierte gleichermaßen....

Rare Showcase 2022

25 Feb 2022 to 1 Mar 2022 Accra, Ghana

2022 will be the fifth Rare Disease Day (dubbed Rare Showcase) to be observed in Ghana being championed by the...

Press Conference RDD 2022, Romania

25 Feb 2022 Zalau, Centrul NoRo, Romania

We will organize a press conference on 25th February 2022 online to promote the RDD Campaign in Romania and to...

National Conference: Clinical Genetics and Rare Diseases

25 Feb 2022 to 27 Feb 2022 Iasi & Zalau, Romania

The event will be organized in partnership by the Romanian National Alliance for Rare Diseases will organize a common national...

EURORDIS Black Pearl Awards 2022

8 Feb 2022 Paris (Virtual), France

The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...

Učenici Posebnog razrednog odjela i učenici 1. razreda osnovne škole ( Tin Ujević Krivodol ) kroz eTwinning projekt ACCEPTING OUR...

Press Conference to launch Rare Diseases Campaign in Malta

Vaincre la Cardiomyopathie et L'Insuffisance Cardiaque

6 Dec 2021 to 18 Jun 2022 Assas, France

Je m'appelle Clémence GUALY, j'ai 26 ans, je suis atteinte d'une Cardiomyopathie Hypertrophique depuis ma naissance, j 'ai été opérée...

SpectacuRARE Fest 2022

3 Dec 2021 to 28 Feb 2022 Virtual, Indonesia

Indonesia CARE for RARE Diseases proudly present SpectacuRARE Fest 2022. All event will be a virtual event. Webinar | IG...

Raras Com Ciência

15 Nov 2021 to 30 Dec 2022 Todo Brasil, Brazil

www.rarascomciencia.com.br

Gogohope Virtual Sports Challenge

15 May 2021 to 15 Jun 2021 Kuala Lumpur, Malaysia

Gogohope Virtual Sport Challenge is created with the objective to inspire and motivate everyone especially our MLDA patients to be...

1) Activities to learn about diseasesPicture book reading Thinking about illness and life2) Pray for the convergence of coronaMaking underlay...

RDD Kanagawa

28 Mar 2021 Online, United States

Presentation and sharing of experiences by members of member organizations (patient groups)

RDD Oakayama (Japan)

21 Mar 2021 Okayama prefecture southern part Health center, Japan

Program (tentative) -Support System for Intractable Diseases in the Corona Era -Spiritual care -Live music performance by musicians -Medication counseling...

Meeting aimed at disseminating research activities on rare diseases carried out in the Valencian Community.++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++Jornada destinada a dar a conocer...

RDD SCD MSA (Japan)

15 Mar 2021

Multiple System Atrophy (MSA) Online International Exchange Meeting1〉Opening remarks (10 minutes) Panel discussion (60 minutes)[Theme] "International Treatment Research and Patients...

In recent years, intractable disease cafes have been gradually spreading from the Kyushu area to the Kanto and other regions...

RDD2021 introductionPatients testimonial Mr. and Mrs. WakuiParticipants: Only those who work at Hamamatsucho Building

Ciné-débats gratuits, 100% digitaux. L’objectif est d’inviter chacun à ouvrir les yeux sur les maladies rares dans une démarche bienveillante...

Date: March 9 – 10, 2021 Time: 11am – 2pm EST Registration: https://bit.ly/39szgDs  

Rare Disease Day 2021 Quiz Based Competition

7 Mar 2021 to 8 Mar 2021 Melaka, Malaysia

What do you know about Rare Diseases? Today, 28 February, is the very well-known Rare Disease Day; the day dedicated...

In RDD Yamaguchi, we will express the theme of RDD Japan 2021, "Your want to know rare, I want to...

RDD CHIBA (Japan)

7 Mar 2021

Held online-livePatients’ testimonial Discuission; What we can do for welfare and care, etc.

Atención integral en Enfermedades Raras

6 Mar 2021 San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Sucre, Santiago de Chile, Buenos Aires, Madrid, Barcelona, Badajoz, United States

Simposio iberoamericanoAtención integral en Enfermedades RarasEl caso de los Trastornos Hereditarios del Tejido Conectivo«Un marco estratégico para Latinoamérica»Hashtag: #THTC2021El simposioEl...

Rare Disease Day 2021

6 Mar 2021 Zoom, United States

Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of...

Nuove ricerche sull’Incontinentia pigmenti ai tempi del COVID-19 In occasione della Giornata Mondiale Malattie rare, l’Associazione Italiana Incontinentia pigmenti ONLUS (IPASSI)...

Inherited metabolic diseases:Rare but United in Arms!

6 Mar 2021 to 7 Mar 2021 VIRTUAL, Greece

The challenges facing patients with inherited metabolic diseases (IMDs) in Greece are many and formidable and are highlighted due to...

Stop FMF & Rare Disease Day

6 Mar 2021 Online, United States

El pasado sábado 6 de marzo de 2021 la Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios, organizó un encuentro...

Coping Through Covid and BeyondA health and wellbeing presentation, delivered by Dr Christianna Kyriacou, Counselling Psychologist, Royal Brompton Hospital. A...

2DO FORO DE TAMIZ NEONATAL Y ENFERMEDADES RARASEn el marco del Día Mundial y Nacional de las Enfermedades Raras 28...

There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their...

14th Annual Rare Disease Day at KGI

5 Mar 2021 Zoom(RSVP for link), United States

Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare...

Conferenza Stampa conclusiva "Giornata delle malattie rare: UNIAMO le forze", Mar 4, 2021 11:00 AM in Rome. Link per registrarsi https://zoom.us/webinar/register/WN_Y4FEbnWGSFWSEhuhquaHjQ 

This week the world shares in raising the awareness on Rare diseases. Being aware means early diagnosis and effective treatment.#Rareismany#Rareisproud#Rareisstrongالاسبوع...

Aniridia y Tumor de Wilms

4 Mar 2021 Online, Spain

Para conmemorar el Día Mundial contra el Cáncer (4 de febrero) y el #RareDiseaseDay (28 de febrero), trataremos el Tumor de...

Foro «EERR: voces d la sociedad civil»

4 Mar 2021 Redes sociales de Funsalud, Mexico

The Psi. Paulina Peña, director of AcceSalud, will be a speaker at this important forum. La Psi. Paulina Peña, directora...

Be a part of History. Join the call for the United Nations to adopt a Resolution for Persons and Families Living with a...

New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

El próximo 4 de marzo se presentará el cluster de enfermedades raras - CER.Para más información consulte la página de Facebook...

CONFERENCIA ¿Qué es la uveitis?

4 Mar 2021 LEON, Spain

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org 

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021.La Lic. Jacqueline Tovar Presidenta...

Focus on rare disease: Prime time — gene therapy for rare disordersSixth annual seminar showcasing rare disease research.Wednesday, March 3...

CONFERENCIA

3 Mar 2021 LEON, Spain

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org 

Rare Disease Day ARMENIA

3 Mar 2021 Yerevan, Armenia

Hello-Barev!Scientific event, organised by AHA, aim to discuss the following topics: Hemophagocytic Lymphohistiocytosis, Vexas Syndrome, MGUS, Primary Immunodeficiencies, Rare Fungal Infections,...

Desde el Ministerio de Salud de la Nación de Argentina conmemoramos el Día Internacional de las Enfermedades Poco Frecuentes con un...

A l’occasion de la Journée Internationale des Maladies Rares, vous êtes conviés au premier webinaire des Rendez-Vous du GHU organisé par...

IGMM Shining a light on XLH Rickets - a rare bone disease

2 Mar 2021 Edinburgh, United Kingdom

On 2 March, people living with XLH, a rare genetic bone disease, as well as scientists, staff and students from...

Conference aimed at learning the communication tools and strategies through social networks to improve the visibility of the research carried...

Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

A l'occasion de la journée internationale des maladies rares 2021  et  dans la  continuité de l' action de sensibilisation et de mobilisation de l'opinion...

Fecoer organizará el 2 de Marzo el Foro Virtual "Soy Raro, soy Único". Para más información consulte la página de Facebook...

Monday, March 1, 13 PM. remotely there will be a conference on Youtube ′′ Genetics Revolution - are we ready...

Rare Disease Day at NIH

1 Mar 2021 Virtual, United States

Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway...

Pak-IMD Net: Patient Support Group Meeting: Living Better with IMD’s in PakistanEngaging patients & families of patients with inherited metabolic...

1st International Conference on Rare Diseases

1 Mar 2021 to 2 Mar 2021 Greece, Greece

The patient organization “95” Rare Alliance Greece has among its objectives the Education and Empowerment of patients with Rare Diseases,...

L'obiettivo  di Rarity on Wheels "Rarità su ruote" promossa da ll' Associazione Nazionale Un Filo per la Vita si svilupperà attraverso...

Giornata Nazionale IICB – 1 MARZO 2021 Il racconto della Comunità di Un Filo per la Vita Onlus fatto attraverso...

We Are Pituitary Virtual Conference

1 Mar 2021 to 6 Mar 2021

We are excited to announce that we will be hosting our first ever Virtual Conference, running from 1st - 6th March...

Cerramos una semana de acciones con un acto emblemático. A las 11 horas izaremos la bandera de la Unión Latinoamericana de...

In occasione della prossima Giornata Nazionale dell’IICB Un Filo per la Vita Onlus desidera realizzare una grande campagna dedicata al...

Maine Rare Disease Day Virtual Event

1 Mar 2021 to 2 Mar 2021

Maine Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Virtual Rare Disease Day

1 Mar 2021 Gaborone, Botswana

From 02/02/2021 until 01/03/2021 BORDIS is committed to create awareness on rare diseases by sharing information on rare diseases and...

More information to come in the following days!

Iluminación Puerta Palma

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación del Ayuntamiento de Valladollid

28 Feb 2021 Valladolid, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Insieme illuminiamo la rarità

28 Feb 2021 Roma, Italy

On Sunday 28 February, on the occasion of the 14th Rare Desease Day, the "Together we illuminate the rarity" event...

Iluminación de la Fuente de los 103 pueblos

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Rare Disease Day Virtual Showcase

28 Feb 2021 Abu Dhabi, United Arab Emirates

We are celebrating Rare Disease Day 2021 by showcasing the rare disease community in UAE. Families, professionals and academics will share...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Rare Disease Day Virtual Musical RariTea

28 Feb 2021 Northern Ireland, United Kingdom

Virtual Musical RariTea – 28th February 2021 @3pm RariTea is the NIRDP campaign to encourage people to get together and...

Investigar es avanzar

28 Feb 2021

l CIBERER organiza la décima edición de la Jornada Investigar es Avanzar con motivo del Día Mundial de las Enfermedades Raras el...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Congreso de los Diputados

28 Feb 2021 Madrid, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2 

Iluminación de la Fuente de Cibeles

28 Feb 2021 Madrid, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

The Illness Challenge Foundation (ICF) plans to continue raising public awareness on rare diseases through public events and media coverage....

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Il gruppo dei volontari del Coordinamento Telethon della Basilicata, guidato dalla Coordinatrice regionale Eliana Clingo, ha chiesto alle amministrazioni comunali...

Iluminación del Teatro Apolo

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Ayuntamiento de Badajoz

28 Feb 2021 Badajoz, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminaciones de edificios en Argentina

28 Feb 2021 Buenos Aires, Venado Tuerto, María Susana, Carcarañá, San Genaro, Zavalla, Capitán Bermúdez, San Lorenzo, Villa Gobernador Gálvez, Rosario, Santa Fe, Argentina

Serán iluminados con el color violeta (referente de los colores de FADEPOF)CABA, Buenos Airess:•Palacio Lezama•Usina del Arte•Planetario•Torre Monumental•Floralis•Puente de la...

Iluminación Plaza Alta Badajoz

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación Muralla Puente Real Badajoz

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación del Ayuntamiento de Cáceres

28 Feb 2021 Cáceres, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación fuente cuatro estaciones

28 Feb 2021 Sevilla, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación del Ayuntamiento de Almería

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación de la Plaza de España d

28 Feb 2021 Sevilla, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

ItineRARI

28 Feb 2021 Padua, Italy

10 guide turistiche per 8 tour "Rari" nel centro storico di Padova.Domenica 28 febbraio dalle 14 alle 17 con partenza...

Ilumination, and chorus concert Casa de la Vall

28 Feb 2021 Andorra La Vella, Andorra

We will iluminate the old parliement of Andorra, with the colors that represents the rare disease. Other emblematic building will be...

Social media campaign held by RARE Diseases Lesotho Association. Throughout Sunday we will be posting videos of what makes us...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Ayuntamiento de Palma de Mallorca

28 Feb 2021 Palma de Mallorca, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación Plaza de España

28 Feb 2021 Sevilla, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

28 Feb 2021 Pruszcz Gdański, Poland

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

"Accendiamo le luci sulle malattie rare"

28 Feb 2021 Florence, Prato, Pistoia, Massa, Italy

Campagna “Accendiamo le luci sulle malattie rare”: i monumenti più rappresentativi di diverse città italiane si illumineranno con i colori...

Rare Disease Day Thailand 2021

28 Feb 2021 Bangkok, Thailand

The celebration of 11th Rare Disease Day Thailand is scheduled on Sunday, 28th February 2021, from 8:30 a.m.-4 p.m. at...

Muralla Parques infantiles

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Rare Always present

28 Feb 2021 Misrata, Libya

"Rare is sometimes painful, often unseen.Always present.Rare is brave, determined, finds joy in the little things"In our event, we focus...

Raise Awareness for KLS in Times Square

28 Feb 2021 Manhattan, New York, United States

The KLS Community has come together to spread awareness of Kleine-Levin Syndrome and Rare Disease. All members of the community were...

Raise A Toastie

28 Feb 2021 Ireland, Ireland

Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make the...

Race for 7

28 Feb 2021 Your Venue, Your Choice!, United States

Presenting a unique run/walk/bicycle ride for 7000 meters at 7:00AM on 28 February 2021Your Venue, Your Choice! Run on your own,...

In occasione della Giornata delle Malattie Rare, Le Ali di Camilla e il Centro di Medicina Rigenerativa “Stefano Ferrari” dell’Università...

Queensland's Rare Disease Day Landmark Illuminations

28 Feb 2021 Queensland, Australia

The following locations/landmarks in Queensland will be illuminated to mark 2021 Rare Disease Day:- Mackay Fountain- Story Bridge - Victoria Bridge - Reddacliff...

Monólogos Solidarios

28 Feb 2021 Online, Spain

La Asociación Española de Esclerodermia, Fundación Ahuce y Asociación Conciertos Solidarios organizan la IV edición de la gala MONÓLOGOS SOLIDARIOS POR EL DIA MUNDIAL DE LAS...

“Baking is done out of love, to share with family and friends, to see them smile.”JOIN US! Let’s make chocolate...

Move2Advocate, Pledge2Move VIRTUAL CELEBRATION!! On Rare Disease Day, Next Sunday February 28, 2021, will you move with us?! Here's what...

O Instituto Nacional de Saúde Doutor Ricardo Jorge, em colaboração com a DGS, a Comissão Interministerial de Coordenação da Estratégia...

Multisystem-Entzündungssyndrom (MIS-C) bei Kindern

28 Feb 2021 Seligenstadt, Germany

Die Coronavirus-iCovid 19 hat begonnen, auch Kinder ernsthaft zu treffen. Das Multisystem-Entzündungssyndrom (MIS-C) bei Kindern gefährdet die Gesundheit von Kindern,...

Muralla de Puerta Pilar

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

This event took place on Feb 28 and lead by Pro. Sun Yun, director of the Department of Reproductive Medicine of Renji Hospital.  The...

Rare disease Awareness day

28 Feb 2021 Riyadh, Saudi Arabia

يوم توعوي، عبر منصة الزوم، موجه للجمهور، يهدف الى زيادة وعي المجتمع الأمراض النادرة، التي ليست نادرة في السعودية، وكيفية...

PMSF Australia is hosting its 8th High Tea event. This year we have decided to go GLOBAL. Join from any...

National Conference "Rare diseases in a digital world"

28 Feb 2021 Online, United States

The National Conference on Rare Diseases and Digital Health on 28.02.2021 had over 300 participants. Mr. Cristian Bușoi, Member of the European Parliament presented EU4Health. A...

Acıbadem Mehmet Ali Aydınlar Üniversitesi ACURARE-Rare Diseases and Orphan Drugs Application and Research CenterRare Immune System Diseases During The Pandemic...

On February 28, 2021, at 13:00 EET in front of the National Palace of Culture in Sofia, Bulgaria, patients with...

PADOVA SI ILLUMINA

28 Feb 2021 PADOVA, Italy

Il 28 febbraio 2021 avrà luogo l'evento PADOVA SI ILLUMINA. In tale occasione, dalle 18.30 verrà illuminato il Palazzo della Ragione della città di...

OUR VOICE for RARE digital 2021

28 Feb 2021 to 28 Mar 2021 Geneve, Switzerland

OUR VOICE for RARE digital 2021 This fundraising event aims at informing our population about rare diseases, and at raising money for research.Our...

Nel prisma della rarità

28 Feb 2021 Padova, Italy

"In the prism of rarity” will be held on Sunday 28 February at 11.30 am live on our Facebook page...

In occasione del RARE DISEASE DAY, il coordinamento provinciale Lecce Fondazione Telethon ha deciso di aderire all’iniziativa di UNIAMO “Accendiamo...

Social Fund "Omirge sen" (Believe  in Life) in Kazakhstan organized today (28 Febr.)  the online Conference dedicated to  the Rare  Desiese Day ...

On February 28, 2021 the Center for Rare Diseases Research Center of the School of Medicine, New Vision University organized...

New South Wales' Rare Disease Day Landmark Illuminations

28 Feb 2021 New South Wales, Australia

The following landmark in New South Wales will be illuminated to mark 2021 Rare Disease Day:- Newcastle Clock Tower Illuminations organised by Andrew...

Oncology and Rare Diseases

28 Feb 2021 to 1 Mar 2021 Monterrey, Mexico City, Mexico

El día 01 de marzo se llevará a cabo una videoconferencia con una Dra especialista en genética, dirigida a estudiantes...

En février, les projecteurs se braquent sur la résilience des personnes vivant avec une maladie rare!Voilà, nous lançons la 6e...

The colours and the logo of Rare Disease Day will be projected from 6.00 pm to 10 pm on 28th February...

For more information: [email protected] prévoyons un après-midi sensibilisation grand-public, avec divers animations, entre 14h00 et 17h00 :- Atelier sur la gestion...

Lançamento do 1º CURSO A DISTÂNCIA: “SINAIS DE ALERTA DE DOENÇAS E SÍNDROMES RARAS PARA EDUCAÇÃO BÁSICA E ATENÇÃO PRIMÁRIA...

Join us on Sunday 28th of February as we celebrate our beneficiaries and every 1 in 2000 citizens who go...

Izamiento de la Bandera Nacional

28 Feb 2021 ROSARIO, Argentina

Representantes de la Comunidad de ER en nuestra Ciudad junto a autoridades locales participarán del Izamiento de Nuestra Enseña Patria...

Rare Disease Day in Libya

28 Feb 2021 Tripoli, Libya

Here we are again  continuously  for  the sixth year with all the challenge either in the hospital itself or the...

Rare Disease Day illuminations in Poland

28 Feb 2021 Gdańsk | Gdynia | Katowice | Pruszcz Gdański | Szczecin | Wrocław, Poland

Illuminations for Rare Disease Day 2021 in Poland:- Neptun's Fountain, Gdansk | LINK- Stadion Gdańsk, Gdańsk | LINK- Dyrekcja Building of the...

Rare Disease Day Hong Kong

28 Feb 2021 Hong Kong, Hong Kong

 Hong Kong will host a round table on RD Drug Policy on 28 Feb. Academia, health economist ,Sociologist and pharma...

Rare Disease Day Fun Run & Walk

28 Feb 2021 Cairns, Australia

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the...

Journée des Maladies Rares 2021

28 Feb 2021 AMIENS, France

- le Chu d'Amiens s'associe à la filière AnDDI Rares et propose un  ciné débat gratuit en ligne,- l'hôtel de ville...

Pendant la journée du 28 février, nous aurons exceptionnellement ce dimanche là ,une thématique sur l 'Ictère (jaunisse ) et...

Rare Disease Day At SkyView Atlanta

28 Feb 2021 Atlanta, United States

2/28/21 is #RareDiseaseDay2021 around the world  I partnered with SkyView Atlanta this year to host a family outing for our special...

JUGUEMOS JUNTOS

28 Feb 2021 ON LINE, Spain

Evento solidario para dar a connocer y visualizar las colagenopatias tipo II.Este acto se hara el día 28 de Febrero,...

Rare Disease Day at PEMEX Central South Hospital

28 Feb 2021 Mexico City, Mexico

We celebrate the Rare Disease Day (Día Mundial de las Enfermedades raras) including doctors of every department, nurses, social workers, lab...

LA TOSCANA SI ILLUMINA PER LE RARE

28 Feb 2021 Firenze, Prato, Pisa, Livorno, Siena, Scandicci, Sesto Fiorentino, Pistoia, Empoli, Massa, Campi Bisenzio, Carrara, Arezzo, Lucca, Italy

Il Forum Toscano delle Associazioni per le Malattie Rare celebra la RDD 2021 con la campagna di sensibilizzazione "LA TOSCANA...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Rare Disease Awareness Day 2021

28 Feb 2021 Virtual, Malaysia, Malaysia

Get to know about rare disease from speakers who will bring their unique perspective. Dr Neelam Ismail, a family medicine resident...

Lanzamiento de video poco frecuente “Mi Bandera 2021” con canción de bandera cantada por Attaque77 y otros artistas.

China's very first official white paper on rare diseases: "Rare Diseases Diagnosis, Treatment and Security" will be published by the...

Rare Diseases Montenegro are pleased to invite you to the online conference that will be organized on Rare Disease Day,...

Rare Disease Day 2021 - 10 Years On!

28 Feb 2021 UK, United Kingdom

The Adenomyosis Advice Association is working hard on this year's Rare Disease Day 2021 campaign and in this our 10th...

Rare Disease Day 2021

28 Feb 2021 Worldwide, United States

https://www.rarediseaseday.org/downloads

The colours and the logo of the World Rare Diseases Day will be projected from 6.00 pm to 10 pm...

Rare Disease Day 2021

28 Feb 2021

[ENG] On the occasion of the Rare Disease Day 2021, ​Dúshlán is organizing an online event on Feb. 28h, from 11h...

Rare Disease Day - Second Life

28 Feb 2021 to 1 Mar 2021 Global event, United States

For the first time, we are going to do a charity event for Rare Disease Day in the online virtual...

Light up at Tower 42

28 Feb 2021 London, United Kingdom

We will light the top of tower 42 in rare dieseaae day colours in 28th Feb 2021!

Light Up for Rare

28 Feb 2021 Carmarthenshire, United Kingdom

Thank you councillor Emlyn Dole. Leader @CarmsCouncil for arranging County Hall #Carmarthen #Wales to be lit up to mark Rare...

Lighting of the buildings in RD Day colors

28 Feb 2021 Prague and other cities of the country, Czech Republic

On the 2021 RD Day a building of the Czech Ministry of Health will lit in the colours of the RD...

Rare Disease Day

28 Feb 2021 Amman, Jordan

On Rare Disease Day we will make the exciting announcement of our SMA research project!We hope to help to increase...

Iluminación de la Cúpula del Milenio

28 Feb 2021 Valladolid, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

The following locations/landmarks in New Zealand will be illuminated to mark 2021 Rare Disease Day:- Oamaru Opera House, New Zealand- Michael...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Thanks to UILDM's branch of Martina Franca and to the positive answer of the local authorities, three monuments will be enlighted...

BARRILETEADA POR LAS ENFERMEDADES RARAS

28 Feb 2021 Bs As, Argentina

Under the slogan: "MAKE YOURSELF VISIBLE", and within the framework of the International Campaign for Dissemination and Awareness for Rare...

Virtual "Rare Coffee & Cake" for Rare Disease

28 Feb 2021 to 7 Mar 2021 Virtual All over the world, United Kingdom

Our Rare AHC Event:A Virtual "Rare Coffee & Cake" for International Rare Disease Day 2021 and collecting funds for Alternating Hemiplegia of...

Being mind-full. Wellness for people living with a Rare DiseaseWe welcome everyone to join us online to iscuss mental health...

Belfast City Hall Light Up

28 Feb 2021 Northern Ireland, United Kingdom

Northern Ireland Rare Disease Partnership (NIRDP) are really excited to share that the Iconic Belfast City Hall, in Northern Ireland will...

The following locations/landmarks in Victoria will be illuminated to mark 2021 Rare Disease Day:- AAMI Park Melbourne - Wodonga Water Tower - Crown...

UNO SCATTO RARO SOTTO L'ALBERO DI CHIARI E SIRINGOMIELIA

28 Feb 2021 to 20 Mar 2021 CATANIA, Italy

In Catania Aismac photo contest the subject of de Chiari tree in Piazza Martiri della Libertà.Fotografare l'albero di Chiari.Concorso fotografico AISMAC...

The following locations/landmarks in Canada will be illuminated to mark 2021 Rare Disease Day:- CN Tower in Toronto, Canada- Calgary Tower, Canada-...

The following locations/landmarks in the United Kingdom will be illuminated to mark 2021 Rare Disease Day:- Bradford City Hall, Bradford- Macmillan...

The purpose of the event is to enhance awareness about the centers of excellence for rare endocrine diseases in Greece there...

The Chinese Organization for Rare Diseases (CORD) plans three simultaneous charity sales in Beijing, Hunan and Hangzhou. The proceeds will...

Church of St. John the Evangelist in the Municipality of Logatec, in Slovenia, was lit up to raise awareness of...

UILDM ACCENDE LE LUCI SULLE MALATTIE RARE

28 Feb 2021 Montecatini Terme, Montale, Agliana, San Marcello Piteglio, Serravalle Pistoiese, Uzzano, Monsummano Terme, Ponte Buggianese, Miggiano, Francavilla Fontana, Martina Franca, Taranto, San Donaci, Bergamo, Legnano, L'Aquila, Torino, Italy

Thanks to the work of UILDM branches (UILDM - Unione Italiana Lotta alla Distrofia Muscolare) we will have 19 monuments...

To coincide with Rare Disease Day on 28th February, Andrew Roach Talent and Ingenious Fools are pleased to announce that...

TV Tower in Tbilisi will be illuminated with colours of rare diseases in order to spread  awareness of rare diseases. 

In occasione  della “Giornata delle malattie rare – Rare Disease Day”, Arcoiris Onlus ha il piacere di invitarvi al tour virtuale della mostra  Per Gioco....

TODOS SOMOS PACIENTES

28 Feb 2021 Mexico City, remote event, Mexico

Este año en OMER hemos decidido sumarnos a las actividades del Rare Disease Day, a través de un evento dirigido a...

The following locations/landmarks in the United States will be illuminated to mark 2021 Rare Disease Day: - Niagara Falls, New York - The Helmsley...

Texas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Tasmania's Rare Disease Day Landmark Illuminations

28 Feb 2021 Tasmania, Australia

The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day:- Paranaple Convention Centre- Launceston Town HallIllumination organised by Andrew Bannister.

Summer Picnic

28 Feb 2021 Orewa, Auckland, New Zealand

We hope to see plenty of members and any others at our beach picnic at Orewa this Sunday in support...

Domenica 28 febbraio, STORIE RARE –Noi i veri protagonisti!!! | Intervista a due bambini metabolici (pubblicazione sulle pagine Social di AISMME...

Iluminación de la Calle Santiago

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Koronavirüs hastaliginin çocukları da ciddi şekilde etkilemeye başladı.Çocuklarda Multisystem Inflammatory Syndrome (MIS-C), COVID-19 ile enfekte kullanım sağlığını riske atıyor.Pandeminin başladığı...

South Australia's Rare Disease Day Landmark Illuminations

28 Feb 2021 South Australia, Australia

The following location in South Australia will be illuminated to mark 2021 Rare Disease Day:- Adelaide OvalIllumination organised by Andrew Bannister.

Awareness for medical issues by Adrenal patients!

28 Feb 2021 to 31 Dec 2021 The Netherlands (online), Netherlands

Bijnierpatienten in Nederland en Europa ervaren vaak problemen, bij het tijdig en juist diagnositiceren van hun aandoeningen/ziekten.Door het platform: ENDO-ERN...

Arrío Bandera en Plaza de Mayo

28 Feb 2021 Buenos Aires, Argentina

1 abanderado niño y 1 adulto con EPOF serán los abanderados de las EPOF en el arrío de la Bandera...

Delaware Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Webinar Dercum´s disease

28 Feb 2021 Stockholm, Sweden

The Swedish Association of Chronic Oedema, member organization of EURORDIS, has decided to organize a Webinar on Dercum´s disease with...

What does RARE mean to me? - HWTH Health Awareness Campaign

The following locations/landmarks in Perth will be illuminated to mark 2021 Rare Disease Day:- Optus Stadium  - Bell Tower Perth - Fremantle...

Werribee Mansion Illumination

28 Feb 2021 Werribee, Melbourne, Australia

For the first time, the iconic Werribee Mansion will be illuminated in the colours of Rare Disease Day from 7.30pm...

Webinário Doenças Raras no Brasil Avanços e Desafios - Domingo 28/02 às 10h pelo canal do YouTube da FEDRANN (https://www.youtube.com/channel/UCAGDOBFEBSTX-NmEmo9RWyA)Abertura...

Webinar: Rare is beautiful, let's break the stigma!

28 Feb 2021 Melbourne Australia, Australia

Australian Sickle Cell Advocacy Inc will be hosting a panel of discussion with 5 people living with rare diseases in...

10 Jahre Kongenitaler Hyperinsulinismus e.V.Zum Tag der Seltenen Erkrankung begehen wir den 10. Jahrestag unserer Vereinsgründung.Mit unseren Mitgliedern möchten wir...

During the last 13 years, we have with great success commemorated Rare Disease Day in Colombia, in a public event...

Webinar: Always Together - Proud and Strong

28 Feb 2021 Online, United States

We would like to inform you that Farmaceutski fakultet, Novi Sad will mark the International Day of Rare Diseases in...

The Joint Organization of the Disabled and Young Disabled People invites you to a webinar on Rare Disease Day 2021....

20 years of care for butterfly children

28 Feb 2021 to 31 Dec 2021 Brno, Czech Republic

On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech...

3rd Annual GROW AWARENESS: VIRTUAL SHARE-A-THON

28 Feb 2021 WORLDWIDE, United States

February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse...

Webinar

28 Feb 2021

Virtual event Rare Disease Day 2021

28 Feb 2021 zoom, United States

When the disease is rare, it is hard to find others in the same situation. For Rare Disease Day 2021,...

A Rare Disease and Mental Health Chat with David Ross, Chelsea Streit and special guest The Mata sisters from @Looms4LupusThis...

Accendiamo le luci sulle malattie rare

28 Feb 2021 Jesolo (VE), Italy

Il 28 Febbraio 2021 il Comune di Jesolo (VE) illuminerà la biblioteca comunale in Piazzetta Jesolo e la scritta "JESOLO" in Piazza...

Accendiamo le luci sulle malattie rare

28 Feb 2021 San Donà di Piave (VE), Italy

Il 28 Febbraio 2021 il Comune di San Donà di Piave (VE) illuminerà il Municipio in Piazza Indipendenza con i...

La Fontana monumentale di Piazza A. Moro di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare...

La Torre dell'Orologio della Città Metropolitana di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare la...

The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day:- Telstra TowerIllumination organised by Andrew Bannister.

El próximo domingo 28 de febrero, pacientes, familias y asociaciones que conformamos la Red EPOF Santa Fe estaremos visibilizando enfermedades...

Virtual Walk for MCADD/Rare Disease Day

28 Feb 2021 Parrsboro, Canada

February 28, 2021 is Rare Disease Day.My son, Archie, was diagnosed at birth via the newborn screening test with a...

We are really pleased to announce our virtual Rare Disease Day event. We are holding a virtual Afternoon Tea with...

Virtual tour of the exhibition 'PER GIOCO'

28 Feb 2021 VIRTUAL, Italy

Virtual tour of the exhibition "Per Gioco". The collection of antique toys of the Capitoline Superintendence..The exhibition focuses on the...

O Tito tem a doença rara Neurofibromatose Tipo 1 (NF1), e é a personagem principal deste livro infantil. Nesta história,...

Virtual Forum on rare Diseases

28 Feb 2021 Algiers, United States

The Allliance Algérienne contre les Maladies Rares will organise an online forum on Rare Diseases. More information to come!

Dan Rijetkih Bolesti

28 Feb 2021 Gracanica, Bosnia and Herzegovina

The Association of Rare Disease Patients registered in Bosnia and Herzegovina is organizing an online event to mark the Rare...

Stargardt’s Connected Community Meeting

28 Feb 2021 Virtual, United States

On Rare Disease Day join us for a 2-hour special virtual meeting of our international Stargardt's Community, bringing together people living...

DES KMS SOLIDAIRES

28 Feb 2021

La Fondation Maladies Rares vous invite à participer à la Journée internationale des maladies rares pour soutenir les 3 millions de personnes...

Rares desease day

28 Feb 2021 Tunis, Tunisia

La Cité des sciences à Tunis, célèbre le dimanche 28 février 2021 la journée internationale des maladies rares, et ceci...

Foro Enfermedades Raras GDL

28 Feb 2021 to 3 Mar 2021 Guadalajara, Mexico

Foro realizado desde hace 4 años con la intención de ayudar a visibilizar a las enfermedades poco frecuentes en el...

RDD Kagoshima (Japan)

28 Feb 2021

Poster ExhibitionPoster exhibition by member organizations of the Kagoshima NANBYO Support NetworkIntroduction of the 10th anniversary of the Kagoshima NANBYO...

FREE YOGA SESSION - relaxation and breathing

28 Feb 2021 Italy, United States

On February 28, 4 p.m., a free yoga session will be available on Elena Boriani's youtube channel and will remain...

RDD IWATE (Japan)

28 Feb 2021

Held "online-live"  Dialogue with patient families (By invitation only)

Gaucher disease awareness lecture

28 Feb 2021 Erbil, Iraq

Kurdistan rare disease center in cooperation with Sanofi Genzyme recognized international rare disease day by conducting a lecture about Gaucher disease...

Gemeinsam für Selten - Together for the Rare

28 Feb 2021 to 25 Sep 2021 Salzburg, Austria

Together with the Vita Club Salzburg we are going into the second round again this year, we will show you...

RDD Hiroshima (Japan)

28 Feb 2021 Hiroshima Prefectural Health and Welfare Center, Japan

Message from a person with a rare and incurable diseaseMrs. Aya Nakajima, mother of a son with congenital central alveolar...

RDD GBS CIDP (Japan)

28 Feb 2021

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.

RDD GBS CIDP (Japan)

28 Feb 2021

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.  

New Center for Research and Treatment of Pulmonary Rare Diseases. Cooperation between University Hospital of Ludwig-Maximilians-University Munich and Asklepios Fachkliniken...

Nós e os Outros: O Caminho a Fazer

28 Feb 2021 Online, United States

"Que história é que eu quero contar?" foi a pergunta que a Lia Silva colocou a si mesma acerca de como...

RAROS PERO NO INVISIBLES

28 Feb 2021 Zaragoza, Spain

Recordatorio durante todo el día de que la Distonia es una Enfermedad Rara pero no por ello es invisible, requiriendo...

RARE CANCER – how rare is rare?’ 11am-1pm GMT  Sunday 28th February 2021Join our live audience for a special podcast...

FAIR FOR THE RARE

28 Feb 2021 strovolos, Cyprus

An all day online event with activites for children and parents. -story telling. 5 actors are reading the stories in an...

Rare Siblings

28 Feb 2021 online, Italia, Italy

28 FEBBRAIO 2021 RARE DISEASE DAY: Mondo Charge aderisce alla giornata internazionale di sensibilizzazione sulle malattie rare con la campagna...

RARE RUN BOLOGNA - Virtual Edition

28 Feb 2021 BOLOGNA, Italy

As we cannot meet for our traditional RARE RUN BOLOGNA we orginized a Special Edition: the VIRTUAL RARE RUN BOLOGNA 

Lighting from 5pm to midnight on the Terrassa City Council in the colors green-pink-blue for the day of minority diseases. Highlighted...

Rare diseases are not as uncommon as they seem. More than 300 million people are affected by a rare disease,...

Rare is Beautiful - Let's Break The Stigma

28 Feb 2021 Melbourne, Australia, Australia

Over 300 million people are living with a rare disease worldwide. Rare diseases are currently affecting 3.5% – 5.9% of...

Rare Glow over Athens

28 Feb 2021 Athens, United States

By using the Rare Disease Day colours to light up Technopolis (Gazi), an industrial museum and a major cultural venue...

This year the Lithuanian Rare Diseases Community has joined the global chain of lights. Lithuanian Child Neurology Association and Hospital...

Illumination of the frontispiece of the Chamber of Deputies:

28 Feb 2021 Ciudad de México, Mexico

Thanks to the active management of Mujer México (saludmaterna.org), the deputies will once again illuminate the frontispiece of the beautiful...

illumination of the maqam echahid monument

28 Feb 2021 Algiers, United States

illumination of the maqam echahid monument during the night of February 28 with the logo of the RDD2021

Rare Diseases: Beyond Covid 19 (webinar)

28 Feb 2021 Online, United States

Rare Diseases: Beyond Covid 19Online event / Sunday / 28.2.21 / 19:30Registration

Each bone tells a story. Each story is a bridge between past, present and future.Watch these short videos to: 1. Know...

Iluminación Ayuntamiento de Cáceres

28 Feb 2021 Cáceres, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

RDD Nara (Japan)

28 Feb 2021 Nara City Western Civic Center, Japan

Medical lecture on  intractable neurological diseasesLecturer: Shinno Clinic Dr. Susumu Kamino, DirectorLecture title: "Let's learn about intractable neurological diseases!"1:30 p.m....

FMD Zebra's Unite

28 Feb 2021 North Olmsted, United States

The FMDSA would like to bring awareness to #RareDiseaseDay by inviting you to submit a picture wearing your favorite zebra print...

Research for the CURE

28 Feb 2021 to 1 Mar 2021 Los Angeles, United States

The Charlotte and Gwenyth Gray Foundation was founded in 2015 by Kristen and Gordon Gray when their oldest daughter Charlotte was diagnosed...

RDD Shiga (Japan)

28 Feb 2021 Shiga Prefecture NANBYO Support Center, Japan

Now that it is difficult to get together at the Corona disaster, we will collect your voices and create a...

Drive By Rare Disease Day

28 Feb 2021 Sta Cruz, Aruba

Infinity Family Car ClubNitroxx ArubaTeam X-pa Aruba Family and Friends did organized a drive by on 28 febr 2021.Media was there...

Education for students

28 Feb 2021 online, Serbia

On the occasion of celebrating the Day of Rare Diseases in 2021, NORBS is organizing an educational program for students of...

[EN]LBioMiT & CNC (Center for Neuroscience & Cell Biology) Communication Office celebrate RDD2021! With interventions of scientists, doctors, patients & their caregivers,...

RDD Tottori (Japan)

28 Feb 2021

1. Explanation of the purpose of the project Guest; Yukiko Nishimura (RDD Japan chief secretariat)2. (Discussion) First, let's learn about...

Nuestro comité Científico representado por dos grandes referentes de nuestro País,Dr. Victor Raggio               ...

DÍA MUNDIAL DE LAS ENFERMEDADES RARAS

28 Feb 2021 CAMPO DE CRIPTANA, CIUDAD REAL, Spain

Os animamos a grabar un vídeo con nuestro lema: LA INVESTIGACIÓN, NUESTRO CAMINO A LA ESPERANZA. Podéis hacérnoslo llegar por...

The following locations/landmarks in Estonia will be illuminated to mark 2021 Rare Disease Day:- TV Tower EstoniaDisclaimer: Illuminations organised by Andrew Bannister...

RDD Tokyo (Japan)

28 Feb 2021 Tokyo, Japan

Program of RDD Tokyo (Feb. 28, 13pm-19pm (JST)) 13:00 Opening performance / Ayako Ozawa (Singing and storytelling by people with...

Con motivo del día mundial de las enfermedades raras, vamos a preparar desde FEDER una serie de acciones online en...

RDD Satsuma- rare disease (Japan)

28 Feb 2021 to 31 Mar 2021

Online streaming of mini-concerts and greeting messages from concerned parties!

RDD Osaka (Japan)

28 Feb 2021

Online-social small event

RDD Okinawa (Japan)

28 Feb 2021

11:00 - 12:30 Talk show-1  Let's become a disaster preparedness person" - Mr. Toru Terukina12:30 - 13:00 Break (RDD Japan...

Rosario muestra sus colores por las ER

28 Feb 2021 Rosario, Santa Fe, Argentina

En este día tan especial se iluminarán en la ciudad de Rosario diferentes edificios gubernamentales, entre ellos el PALACIO VASALLO,...

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en...

SMA Awareness Day

28 Feb 2021

Nurture the Hope! Together to increase the awareness on SMA disease leaving no patient behind.

La nostra organizzazione di volontariato unitamente all'Associazione Consumatori e Cittadini Italiani organizza un webinar sui diritti di welfare di cui...

Webinário #SomosTodosRaros

27 Feb 2021 Fortaleza com transmissão ao vivo pelo canal da associação no YouTube, Brazil

O webinário #SomosTodosRaros busca levar identificação com a causa para diferentes públicos, pois somos todos ÚNICOS em nossa individualidade e podemos...

ENG: Our event's mission is to gather Polish medical students and people living with rare diseases (as well as their...

For the celebration of the fourteenth International Rare Disease Day that  is held every year the 28th of February, students...

Sabato 27 febbraio, dalle ore 18 alle 19 | STORIE RARE – Facciamo che “io ero”…Storie per stare insieme | Letture per...

Tisztelettel és szeretettel meghívjuk a Ritka Betegségek Világnapja alkalmából szervezett programjainkra, melyeket a RIROSZ, a Ritka és Veleszületett Rendellenességgel Élők...

Zeldzame ziektendag

27 Feb 2021 Vlaanderen, Belgium

Dit jaar hebben we aandacht voor erfelijke (zeldzame hematologische) kankers. Een geneticus vertelt wat het is en een clinicus vertelt...

VIDEO POLICONDRITE AMIGOS - SOMOS NÓS

27 Feb 2021 to 28 Feb 2021 NITEROI, Brazil

Apresentaremos um vídeo com as pessoas integrantes do grupo POLICONDRITE AMIGOS - REDE BRASILEIRA PELA POLICONDRITE RECIDIVANTE, conscientizando sobre o...

RDD TSURUOKA (Yamagata, Japan)

27 Feb 2021 Tsuruoka City Advanced Research and Industrial Support Center, Tsuruoka, Yamagata, Japan

Online social events Organizing coloring book projects

Reaching Everyone Everywhere

27 Feb 2021 to 28 Feb 2021 Jakarta, Indonesia

We are going to have 2 event for Rare Disease Day 2021  1. “Illuminates Building For Indonesia’s Rare Disease Day...

Webinar Rare Diseases

27 Feb 2021 Melsele, Belgium

Webinar concerning Rare DiseasesMetabolic diseases are rare diseases.Implementation of the Belgian Rare Disease Plan, updateRegister Now!

Rare Disease Day 2021 Moldova

27 Feb 2021 to 28 Feb 2021 Chisinau, Moldova. Republic of

Ziua Internațională a Bolilor Rare 2021 Anul 2021 marchează cel de-al 14-a an în care comunitatea internațională a bolilor rare...

Rare Disease Awareness Day

27 Feb 2021 Muscat, Oman

Oman Society for Genetic Medicine is organizing a virtual  awareness event for public on 27th February 2021.

RDD Ehime (Japan)

27 Feb 2021

12:30 Opening / Watching RDD Japan video13:00 Opening remarks13:05 Self-introduction of participants13:30 Break / Watching RDD Japan video13:40 Let's learn...

Rare Disease Day 2021

27 Feb 2021 Virtual, Kenya

We shall be holding a virtual event on 27th February, 2021 at 10.00amTheme: Rare in a Covid WorldKindly check out...

Sehr geehrte Damen und Herren, sehr geehrte Selbsthilfeaktive,                sehr geehrte Interessierte,   gerne möchte ich Sie heute nochmals auf...

Rare Disease Day

27 Feb 2021 Bamako, Mali

We are organizing the Rare Day for the second time in Mali. This event will gather scientists, patients and officials...

V Fórum internacional de Doenças Raras

27 Feb 2021 Uberlândia, Brazil

V Fórum internacional de Doenças Raras - Uberlandia  Brasil - dia 27/02/2021.  ingressos gratuitos em https://www.sympla.com.br/v-forum-internacional-de-doencas-raras-de-uberlandia__1107076participem!!

Rare Disease Day ZSE Ulm

27 Feb 2021 Online Konferenz, Germany

Dear colleagues, ladies and gentlemen, The Center for Rare Diseases (ZSE) of the Ulm University Hospital would like to cordially...

Rare Disease Day Bay Area

27 Feb 2021 to 28 Feb 2021 UK, Toronto, NYC, Chicago, Las Vegas, Los Angeles, Bay Area, Canada

Rare Disease Day Bay Area is 2-day Livestream event on Twitch, featuring a Raid Train on Saturday and Sunday with over...

RDD Mie (Japan)

27 Feb 2021 Kuwana Media Live 1F, Japan

Making people aware of rare Nanbyo diseases;9:40 Registration10:00 Opening remarks10:10 Performance10:40 Workshop12:00 Break13:00 Watch RDD2021 Special Video Program "Children's Feelings,...

RD 2021 with the First Lady of North Macedonia

27 Feb 2021 Skopje, North Macedonia

We helped in organization of a meeting with experts in rare disease (doctors, Ministry of Health, researchers, and psychologist)Around 16 organizations...

we are happy to announce that on February 27 and 28 we will hold the so-expected Bilateral Seminar with the...

On 27 February 2021, the Cyprus Alliance for Rare Disorders in collaboration with the Cyprus Medical Association will be hosting...

Jazz4Rare 2021 online

27 Feb 2021 Gdynia, Poland

Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare...

  Three reports with three different focuses of rare disease in China will be released on RDD 2021 by the...

Mi autoestima y resiliencia: Reconozco y acepto mi lugar en el mundo Jóvenes y adultos. 

IncontRARE le RASopatie

27 Feb 2021 WEBINAR ON LINE, Italy

In occasione della giornata Mondiale delle Malattie Rare il giorno 27 febbraio l'Associazione Nazionale Sindrome di NOONAN e RASopatie ODV,...

Ladies and gentlemen,on behalf of the Organizers, I have the pleasure to invite you to participate in the International Symposium...

NADİR HASTALIKLARDA GENETİĞİN ROLÜ

27 Feb 2021 çevimiçi, United States

Tarih:27 şubatsaat:21:00yer;zoomFebruary 28 Rare diseases event Başkent University Social Work Department lecturer, one of the authors of Rare Diseases in...

COLAZO ENTRE AMIGOS

27 Feb 2021 Región Oriente, United States

La tienda Trek - Bike  junto a varios patrocinadores estan invitando a participar en un COLAZO ENTRE AMIGOS, de 82...

Harvinaisten ilta

27 Feb 2021

Harvinaisten ilta on verkossa toteutettava koko illan ohjelma!  Harvinaisten illan aikana kuulemme mm. opiskelusta harvinaisen sairauden kanssa, minkälaista on kun diagnoosin...

İzmir Kent Konseyi'nin Değerli Paydaşları ve İzmir Kamuoyuna  28 Şubat Dünya Nadir Hastalıklar Farkındalık Günü etkinlikleri çerçevesinde,  İzmir Kent Konseyi...

Hablemos de Enfermedades Raras

27 Feb 2021 Facebook Live at https://www.facebook.com/trazandoloinvisible, Mexico

In the International Rare Disease Day 2021, Trazando lo Invisible invites you to the virtual and free event: "Hablemos de...

Conferences Virtuelles

27 Feb 2021 to 28 Feb 2021 Abidjan, Ivory Coast

Due to the covid 19 pandemic we are organizing two virtual conferences from February 27 to 28, 2021 from 8:30...

Accendiamo le luci sulle malattie rare - Rocca Rangoni Spilamberto MO

27 Feb 2021 to 28 Feb 2021 Spilamberto, Italy

Campaign "Let's turn on the lights on rare diseases": the most representative monuments of various Italian cities will light up...

Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Giornata delle Malattie Rare 2021

27 Feb 2021 Martignacco, Italy

Rare Disease Day 2021.On February 27, 2021, at the Colussi SNC Pharmacy in Martignacco (UD), there will be an information...

Accendiamo le luci sulle malattie rare

27 Feb 2021 to 28 Feb 2021 Torino, Italy

The green colour and the logo of the World Rare Diseases Day will be projected from 6.00 pm on 27th...

Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

El día 27/2 se realizará un webinar destinado a estudiantes de odontología y a odontólogos para que conozcas aspecos etiológicos,...

Diretta Facebook ore 16 con il dr. Squitieri che risponderà alle domande dei giovani sulla malattia di Huntington e sugli...

Lesch Nyhan Disease International Virtual Meeting

27 Feb 2021 to 28 Feb 2021 Boston, United States

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...

Lesch Nyhan Virtual Meeting

27 Feb 2021 to 28 Feb 2021 West Roxbury, United States

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...

JOURNEE MONDIALE DES MALADIES RARES: 28 FEVRIER 2021Organisée par la Société Maliennede Génétique Humaine (SMGH)27 Février 2021,Grande Salle de réunion...

Para el Día Mundial de las EPOF lanzaremos un video junto al cantante Nahuel Penissi. La canción elegida es Avanzar. El...

l'Alliance Algerienne contre les Maladies Rares participe au  Forum virtuelle Magrebin des maladies rares hebergé par l'Alliance des Maladies raresau Maroc(AMRM) et...

IX Encuentro Nacional Día Mundial de las Enfermedades Raras

26 Feb 2021 to 27 Feb 2021 Burgos, Spain

El Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (Creer), dependiente del Imserso, organiza...

Estimados amigos y compañeros:  Como coordinadores del área IBIMA-RARE nos corresponde el honor y tenemos el placer de daros la...

On Friday 26 February 2021 we will run a virtual event directed to secondary school years 10, 11 and 12....

The last day of February is recognized worldwide as Rare Disease Day.  We at SickKids, are proud to join the many...

Le Centre Hospitalier Cayenne organisera la Journée Internationale des maladies rares en Guyanne le 26 Février entre 10:00h et 12:00h. Affiche

Rare Disease Day In Iran

26 Feb 2021 Tehran, Iran

Rare Disease Day In IranFriday 26th Feb., 2021RARE IS STRONG! RARE IS PROUD!Rare Diseases Foundation of Iran (RADOIR) is participating with a...

Rare Disease Weekend

26 Feb 2021 to 28 Feb 2021 Minatitlán, Mexico

La Sociedad Científica de Estudiantes de Medicina de la Universidad Veracruzana en Minatitlán, a través de los Comités Permanentes de...

Lappia Talo illuminated in support of rare diseases

26 Feb 2021 to 1 Mar 2021 Rovaniemi, Finland

Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will show support for Rare Disease...

ILLUMINIAMO LA RARITA’

26 Feb 2021 to 28 Feb 2021 Puglia - Basilicata - Calabria, Italy

ILLUMINIAMO LA RARITA’L’Associazione Amaram Aps di Altamura, grazie alla collaborazione dei suoi referenti di zona e dei suoi soci attivi...

Looking to raise awareness and share key knowledge on rare diseases, the Cyprus Alliance for Rare Disorders is organising an...

Już po raz czwarty Instytut Biochemii i Biofizyki PAN organizuje sympozjum w Międzynarodowym Dniu Chorób Rzadkich. Tym razem wydarzenie „Dzień...

A l'occasion de la journée mondiale des maladies rares, plusieurs monuments se pareront en région des couleurs de la journée...

The UAE Rare Disease Day 2021 Events

26 Feb 2021 to 27 Feb 2021

The UAE Rare Disease Society celebrates Rare disease day 2021 with a variety of events.1. An online webinar on 24.02.2021 directed...

Venerdì 26 febbraio, dalle ore 17.30 alle 19 | Non solo SNE: l’importanza del prelievo su cartoncino a domicilio per il...

Illuminating Medical University in Timisoara, Romania

26 Feb 2021 to 27 Feb 2021 Timisoara, Romania

On 26.02.2021, the Medical University of Timisoara has illuminated in the colours of RDD as a solidarity event of patients with...

RDD Hokkaido (Japan)

26 Feb 2021 Hokkaido Prefectural Government, Sapporo, Hokkaido, Japan

Introduction of activities of the Hokkaido NANBYO regional center  RDD2021 panel display  Others

2/26/2021 From 12:00 to 13:30 there will be an expert discussion via zoom “Progress of Rare Diseases Treatment and Upcoming Improvements” organised...

Dia mundial das Doenças Raras - ASPEC BRASIL

26 Feb 2021 to 28 Feb 2021 On line, United States

Dia Mundias das Doenças Raras 2021A associação de Paraparesias Espaastica Correlatas do Brasil ira promover nos dia 26 a 28...

Round table on the occasion of RD Day

26 Feb 2021 Prague, Czech Republic

This Round Table is currently being prepared and will be organized by a newspaper Zdravotnický deník (specializes in healthcare issues)...

RDD Saga (Japan)

26 Feb 2021

We will have an online tea party using Zoom. Please bring your own tea and favorite snacks by your computer...

See Rare Run Virtual Race

26 Feb 2021 to 28 Feb 2021

Welcome to the fourth SEE RARE RUN VIRTUAL RACE! This year, we have two distance options: 5K or 5 miler! SEE RARE RUN...

Florida Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Programa do Segundo Seminário do Conselho Municipal de Saúde/Secretaria Municipal de Saúde – Cuidando das Pessoas com doenças Raras e...

Corre y ayuda 2021

26 Feb 2021 to 28 Feb 2021 Online, United States

Online race, 5K and 10K for men and women, for raising awareness and funds for ECHS1 Deficiency and Mitochondrial Disease.

 https://meet.google.com/vgb-vhvc-jyu

RDD Hyogo Prefectural Rehabilitation Center at Nishi-Harima (Japan)

26 Feb 2021 Hyogo Prefectural Rehabilitation Center at Nishi-Harima, Japan

(1) Screening of contents provided by RDD Japan (2) Online lecture (3) Screening of a video introducing our rehabilitation center...

Georgia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

This year the Genetic Support Network of Victoria (GSNV),  Australia will hold a virtual event to raise awareness amongst the general...

Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Inter-Institutional virtual event organized by civil associations of patients and their families with the support of the pharmaceutical industry that...

Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...

RD 2021 at our government

26 Feb 2021 Bitola, North Macedonia

We had the opportunuty to gather around 15 rare disease organization at the government of North Macedonia to have a...

The Mission San Jose High School Students For Rare Diseases Club is kick-starting the year with a Rare Disease Day...

Le 26 février, à l'occasion de la Journée des Maladies Rares 2021 (28/02/21), le Centre des Maladies Rares du CHU...

Tag der Seltenen Erkrankungen in Mainz

26 Feb 2021 Online, Germany

Tag der Seltenen Erkrankungen in Mainz

Tennessee Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

III Всероссийский форум по орфанным заболеваниям

26 Feb 2021 to 27 Feb 2021 Москва, Russian Federation

Форум проводится по инициативе Всероссийского союза пациентов и Всероссийского общества орфанных заболеваний. При поддержке Министерства здравоохранения Российской Федерации и Министерства...

The 26th of February the Rare Disease Foundation of Iran will celebrate Rare Disease Day with an online event. More information...

Join the GSNV in celebration of Rare Disease Day with a virtual journey showing the power of alliances that build...

Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Bulletin Special- holistic care for patients with RDs

26 Feb 2021 to 28 Feb 2021 Entire Country, Czech Republic

A special issue of the bulletin which we dedicate to describing what entails such holistic care for a person with...

Virtuaaliset Harvinaismessut

26 Feb 2021 to 28 Feb 2021

Rare Fair 2021 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and...

1er Simposio Intl del RDD 2021

26 Feb 2021 Redes sociales de LIIGH-UNAM, Mexico

The president of FEMEXER will be a speaker at this important forum. El presidente de FEMEXER, David Peña, será ponente...

Malattie rare e Covid-19: un bilancio dopo un anno di pandemia

26 Feb 2021 to 27 Feb 2021 online, Italy

The CMID, Coordination Center of the Interregional Network for Rare Diseases of Piedmont and Valle D'Aosta, organizes in collaboration with...

Vivre avec une maladie rare au temps du COVID19

26 Feb 2021 webinars, United States

International Rare Disease Day is an annual celebration' day held each year on the last day of February. This year in Tunisia...

La Asociación Española de Paraparesia Espástica Familiar – AEPEF, participa en el Día Mundial de las enfermedades raras de una...

Le vendredi 26 février de 12h00 à 13h30 (CET), la nouvelle plateforme de prise en charge des maladies rares du...

8th Annual Rare Disease Symposium

26 Feb 2021 to 27 Feb 2021

Alabama Rare, Children's of Alabama, The University of Alabama at Birmingham, and the Alabama Genomic Health Initiative will host the...

2 Congreso internacional de enfermedades raras

26 Feb 2021 to 28 Feb 2021 Quito, Ecuador

Gran congreso Internacional sobre Enfermedades raras o poco frecuentes, en donde participarán. Organizaciones, médicos y pacientes en el marco de...

The press conference - Equitable access for care for people living with rare diseases through the National Plan for Rare...

Virtual Run for Rare

26 Feb 2021 to 28 Feb 2021

Firefly Fund is challenging you to Run for Rare starting on World Rare Disease Day, Feb. 28. Over the next month, we...

Join Share4Rare’s webinar with live Q&As with renowned experts in the field of psychology and neuromuscular conditions. During an hour-long...

"The Day of Orphan Diseases"

26 Feb 2021 to 28 Feb 2021 Lviv, Ukraine

PROGRAMME OF THE EVENT On February 26, 2021, together with the movement of the orphan community "Orphan Bell" we will hold...

Perlan light up for rare disease

26 Feb 2021 to 28 Feb 2021 Reykjavik, Iceland

Rare disease day in IcelandTo honor rare disease patients all over the world Perlan Museum together with Gódvild will light...

National Conference RARE DISEASES DAY 2021

26 Feb 2021 Chisinau, Moldova. Republic of

A national conference on Rare Disease Day is traditional scientific event already in Moldova for the end of February, organized...

Join us for a Rare Disease Day WebinarThe Oxford-Harrington Rare Disease Centre (OHC) is pleased to present a guest lecture...

New postal stamp for RD 2021

26 Feb 2021 Bitola, North Macedonia

For RDD we planned an event for the 3rd postal stamp for rare diseases.  The first was for children with rare...

No Somos Raros,Somos Increíbles

26 Feb 2021 to 28 Feb 2021 Illescas, Toledo, Spain

Campaña de información a la ciudadanía a través de las redes sociales, de entrevistas de radio ,correos electrónicos y diarios digitales...

Rare Beer competition

26 Feb 2021 Wellington, New Zealand

Fortune Favours presents The Rare Beer Challenge; a fundraiser for Rare Disorders NZ. We've asked Wellington breweries to use weird...

Join us for a Rare Disease Day WebinarFriday, February 2610 -11 am ET 3 - 4 pm GMTThe Oxford-Harrington Rare...

Rare Disease Day Lombardia

25 Feb 2021 Videoconferenza, United States

Il Convegno è rivolto agli operatori del SSN ai diversi livelli, ricercatori, referenti delle associazioni e a tutti gli stakeholder...

Rare Disease Day at Iowa State University

25 Feb 2021 Ames, Iowa, United States

Rare Disease Day at Iowa State University is a completely virtual event hosted on Zoom by the ISU's Rare Disease...

Nadir Çağrı Kampanyası

25 Feb 2021 to 25 Mar 2021 Türkiye, Turkey

Nadir Çağrı Kampanyası Türkiye’de bilinmeyen ve fark edilmeyen nadir yaşamlara dikkat çekmek, toplumda empati ve bilinç yaratmak amacıyla, “Sağlıklı birey,...

RDD Job Fit (Japan)

25 Feb 2021

Part I: Actual Balancing of Treatment and Work in Various Diseases (Roundtable Discussion)Part 2: Information exchange meetings by disease (breakout...

Wisconsin Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Rare Showcase 21

25 Feb 2021 to 3 Mar 2021 Accra, Ghana

This is the 4th Rare Disease Day to be observed in Ghana being organized by Rare Disease Ghana Initiative. This...

Bugün, Nadir Hastalıklar Günü’ne dikkat çekmek üzere, Nadir Hastalıklar Ağı olarak çevrimiçi bir basın toplantısı düzenledik. Kurulduğumuz günden bugüne dek...

FEMEXEResillient Carousel

25 Feb 2021 to 28 Feb 2021 (Online), Mexico

#FEMEXEResillientCarousel of videos of the allied associations of FEMEXER (from February 25 to 28, 24 hours a day on the...

On the occasion of World Rare Disease Day, we invite you to participate in a Facebook Live session with Dr....

We are inviting everyone to a webinar to be held on 25 February 2021 (Thursday, 4:00 PM) in observance of...

New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Cette journée dédiée aux maladies rares permet de sensibiliser la population sur ces maladies et leurs impacts sur la vie...

Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Digital Poster

25 Feb 2021 to 28 Feb 2021 İzmir, Turkey

İzmir ili Dijital billboard ve toplu taşıma araçlarında videomuz yayınlanacak.

Walk for Rare | Virtual

25 Feb 2021 to 28 Feb 2021

WALK FOR RARE is a virtual walk to raise awareness about rare diseases in Portugal. Join us and show how rare...

La historia de Piper, un pajarito valiente. Descubriendo el miedo y cómo ser fuertes. 

Rare Disease Awareness Day 2021

25 Feb 2021 Muscat, Oman

Rare Diseases Awareness Day for Health Professionals This event was organised by members of Oman Society of Genetic Medicine mainly to...

Cómo ser un buen cuidador, pero cuidándome.  Evento dirigido a padres y madres. 

We are showing a new documentary about Rare in Iceland and  how the system is working ore not working in the...

Nadir Hastalıklar

24 Feb 2021 Turkey, United States

#AnkaraKentKonseyi Halk Sağlığı Çalışma Grubu tarafından organize edilen "Ankara Kent ve Sağlık Buluşmaları" Nadir Hastalıklar başlığı altında 24 Şubat Çarşamba günü...

Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Black Pearl Awards 2021

24 Feb 2021 Digital, United States

Online. Public registration coming soon!For more information please see the Black Pearl Awards website or email [email protected]

STATI GENERALI SULLE MALATTIE RARE CITTÀ DI PADOVA

24 Feb 2021 to 28 Feb 2021 PADOVA, Italy

Il 28 febbraio 2021 si celebrerà l’annuale giornata mondiale sulle Malattie Rare. L’Azienda Ospedale Università di Padova [AOUP] è la...

PERCORSI RARI INSIEME

24 Feb 2021 BARI - ITALY, United States

PERCORSI RARI INSIEMEMERCOLEDI’ 24 FEBBRAIO ORE 16-18 su piattaforma ZoomLe associazioni Amaram aps, Assieme onlus, Aid Kartagener onlus, Vite da...

Nano Rare Diseases Day

24 Feb 2021 Barcelona, on line, Spain

El Nano Rare Diseases Day es un evento organizado en el marco del Día Mundial de las Enfermedades Minoritarias donde se darán a...

GeneRare: Getting to Know Genetic and Rare Diseases

24 Feb 2021 to 15 Mar 2021 Caltanissetta, Italy

GeneRare:Getting to Know Genetic and Rare DiseasesMeetings on Rare Diseases and new genomics addressed to health promotion, prevention and responsible...

Tercer simposio, que se desarrolla con participación de personas con enfermedades raras, familiares, red comunitaria y profesionales de salud e...

Nevada Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Cumbre nacional de enfermedades raras

24 Feb 2021 to 26 Feb 2021

Cumbre Nacional de Enfermedades RarasEs hora de construir oportunidades por un mundo sin barreras.

New Hampshire Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

RDD Shizuoka (Japan)

24 Feb 2021 to 2 Mar 2021 Shizuoka Prefecture General Social Welfare Hall, Japan

"Thinking about Coexistence Week" Paintings, photographs, paper cutouts, picture postcards, calligraphy, calligraphy, haiga, stained glass, pottery, puzzles, floral arrangements, kumihimo,...

Rare Disease Day 2021 #28FactsFor28Days

24 Feb 2021 Cape Town, South Africa

Tygerberg Hospital and Stellenbosch University will celebrate Rare Disease Day on 24 February 2021 and with #28FactsFor28Days on social media.

Kansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Support for people with rare diseases

24 Feb 2021 online, Latvia

Actual discussion: Santa Survila, Ivars Balodis interviewing Baiba Ziemele, head of Latvian Alliance of Rare Diseases. Available support for people...

All about rare diseases

24 Feb 2021 Nicosia, Cyprus

On 24 February 2021, the President of the Cyprus Alliance for Rare Disorders, Mr Charalambos Papadopoulos, will be giving a livestreamed...

Together for patients with rare diseases

24 Feb 2021 Bucharest, Romania

Rare diseases are characterized by a large number of broad and diverse disorders and symptoms, majority having identified genetic origin....

Arizona Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Virtual Parliamentary Event

24 Feb 2021 Online, United States

Virtual Parliamentary EventRare Disease Day is an opportunity for the rare community to come together to raise awareness of the...

Jornada das Doenças Raras

24 Feb 2021 to 26 Feb 2021 Brasília, Brazil

O Observatório de Doenças Raras (ODR) da Universidade de Brasília realiza, desde 2012, um evento alusivo ao Dia Mundial das...

EN EL MARCO DE LA CONMEMORACIÓN DEL DÍA MUNDIAL Y NACIONAL DE LAS ENFERMEDADES RARAS SE ILUMINARÁN EL FRONTISPICIO DE...

Colorado Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

IV Edizione "Rare Abilità"

24 Feb 2021 to 4 Mar 2021 Fasano, Italy

IV edizone di "Rare Abilità", adesione alla campagna Nazionale con l' illuminazione di Palazzo di Città (Fasano -BR) e momenti...

The NYSCF Research Institute's Live Conversations with ExpertsUnlocking Rare Disease Treatments with Stem CellsFebruary 24, 2021 at 5:00 PM ETRegister...

Massachusetts Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Indiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Colour Flair for Rare

24 Feb 2021 to 27 Mar 2021 Northern Ireland, United Kingdom

COLOUR FLAIR FOR RARERare Disease Day 2021Delighted to share our #RareDiseaseDay Colouring Challenge to raise awareness. Its a very simple...

The excitement is continued! In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce...

Rare Disease Day Event

23 Feb 2021 to 27 Feb 2021

Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening...

The future of rare diseases starts today - Recommendations from the Rare 2030 Foresight StudyThis event will be the culmination...

webinar: https://stream.lifesizecloud.com/extension/7692222/50fd52a8-e9c6-4268-ad33-1fcd476f6a75 La celebrazione della Giornata mondiale delle Malattie Rare assume quest’anno, anch’esso unico e raro, una connotazione ancora più...

SMA Malaysia Talk Show With Negeri FM (I-Medic)

23 Feb 2021 Negeri Sembilan, Malaysia

In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce that SMA Malaysia will...

Conference on Rare Skin Diseases

23 Feb 2021 Kaunas, Lithuania

Since 2016 every year in February the Department of Skin and Venereal Diseases of the Lithuanian University of Health Sciences...

Il 23 febbraio 2021 dalle ore 10 alle ore 13 avrà luogo online l’evento Medicina e arte. I colori della...

Cuidarse por fuera, pero también ser “guapos” por dentro, siendo solidarios. Es el objetivo de la campaña #GuaposPorDentroYPorFuera que lanzamos desde Aefat,...

Rare Disease Day 2021 in Nepal

23 Feb 2021 to 28 Feb 2021

Khim Lamichhane, a patient advocate from Nepal, has organised several events to raise awareness for people living with a Rare...

Međunarodni dan rijetkih bolesti uz eTwinning

23 Feb 2021 to 3 Mar 2021 Čakovec, Croatia

The students of the 2nd Primary School Čakovec (II. osnovna škola Čakovec) through the eTwinning project Teachers for Europe: Democratic...

West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to attend the webinar  on "Improving...

Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

North Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Care for Rare awareness campaign

22 Feb 2021 to 7 Mar 2021

This year campaign moved in social media for continuing our activities initiated in 2013 and will focus on:*Press Releases in...

RDD Niigata (Japan)

22 Feb 2021 to 6 Apr 2021

Exhibition at the following facilities. 1) Niigata Prefectural LibraryFebruary 25 - March 7, 2021 2) Honport Niigata City Library March 4 - April...

Asociación Mexicana de Amigos Metabólicos, AC, se suma a la celebración de los “50 años del Instituto Nacional de Pediatría”...

SCHOOL CAMPAIGN 2021 WEAR THAT YOU CARE

22 Feb 2021 to 28 Feb 2021 strovolos, Cyprus

With the slogan "I am rare alone, together we are strong", we invite all schools on this day to join us in...

Rare Disease Day Celebration

22 Feb 2021 to 28 Feb 2021 MANDAN, United States

We are interviewing our parents of children with rare diseases to bring awareness in our community. 

Evento de Concientización de las Enfermedades Raras en la UAG

22 Feb 2021 to 26 Feb 2021 Zapopan, Mexico

Como cada año, los alumnos de la Facultad de Medicina de la Universidad Autónoma de Guadalajara (UAG), en colaboración con...

Young researchers will present the equipment acquired with FEDER funds and its applicability in their research on Rare Diseases.+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++En esta...

ORCHESTRA ASCLEPIO

22 Feb 2021 to 28 Feb 2021 PADOVA, Italy

L’Orchestra Asclepio, composta da medici, studenti di medicina e operatori sanitari, rende omaggio ad uno dei luoghi più significativi della...

Gaucher disease is a little known rare genetic disease. When the diagnosis is early and the treatment begins in time, the quality...

National Rare Disease Week Social Media Campaign

22 Feb 2021 to 28 Feb 2021 Nationwide, Philippines

In the Philippines, National Rare Disease Week, which is held every last week of February, places the concerns of the...

Liebe Patientinnen und Patienten, liebe Angehörige und Interessierte,anlässlich des Welt ­Enzephalitis ­Tages am 22. Februar 2021 laden wir Sie herzlich...

ARENA DI VERONA -RARE DISEASE WEEK - VERONA NELLE ERN

22 Feb 2021 to 28 Feb 2021 VERONA, Italy

https://youtu.be/jWhpqb1PnhUACCENSIONE DELL’ARENA DI VERONA IN OCCASIONE DELLA GIORNATA MONDIALE DELLE MALATTIE RARE - In occasione della giornata mondiale delle malattie rare che...

#ShareYourRare

22 Feb 2021 to 28 Feb 2021 National, South Africa

This February we're flipping the script and encouraging South Africans to share their rare stories in an effort to stimulate a...

Light it up for Rare Diseases!  The National Alliance for Rare Diseases Support - Malta in collaboration with the Mdina...

Light It Up

22 Feb 2021 to 28 Feb 2021 Luxembourg, Esch, Ettelbruck, Mamer, Schengen, Wiltz, Luxembourg

Due to the COVID-19 pandemic, gathering events will not be possible in 2021. Thus, the rare disease community has decided...

Rare Disease Week

22 Feb 2021 to 25 Feb 2021 Online, Brussels, Belgium

Online. This is a closed event for the accepted applicants from the Council of National Alliance members.For more information please...

LE AIUOLE DELLA RARITÀ

22 Feb 2021 BARI - ITALY, Italy

XIV GIORNATA MONDIALE MALATTIE RARE "AIUOLE DELLA RARITÀ"LUNEDÌ ’ 22 FEBBRAIO ORE 10. 00 Ospedale Pediatrico Giovanni XXIII di Bari...

Rare Disease Week

22 Feb 2021 to 28 Feb 2021 Verona, Italy

On the occasion of the rare diseases day, Dravet Italia Onlus Is promoting a campaign aimed at raising awareness on...

Rare Disease Genetics Research Poster Competetion

22 Feb 2021 to 1 Mar 2021 Islamia College Peshawar, Pakistan

Khyber Pakhtunkhwa province has 36 million population. Most of the families prefer to marry within their closer relatives which has...

"Recognize The Rare-Accept it"

22 Feb 2021 to 28 Feb 2021 Prilep, North Macedonia

This year, an online event in honor of the rare is dedicated to highlighting the importance of networking for medical...

Dreams unite

22 Feb 2021 to 28 Feb 2021

Social media campaign with video about people with rare diseases: we live with same dreams, needs, emotions as everyone else....

Ligting up the Hospital

22 Feb 2021 to 28 Feb 2021 Oslo University hospital, Norway

Escuchando Raro

22 Feb 2021 to 3 Mar 2021 Todo México, Mexico

Visibilizar, concientizar y difundir información acerca de las enfermedades raras o poco frecuentes y la salud auditiva en México, principales...

Sheffield Autism Research Lab (ShARL) Rare Disease Day activity

21 Feb 2021 to 28 Feb 2021 Sheffield, United Kingdom

Sheffield Autism Research Lab (ShARL) will be publishing a Rare Disease Day blog series and informative videos about our ongoing...

Rare Disease Day 2021 in Slovakia

21 Feb 2021 to 28 Feb 2021

This year's Rare Disease Day in Slovakia is about solidarity and positive examples, which our society needs so much. In...

SCN2A Awareness

21 Feb 2021 to 28 Feb 2021 National, United States

We will be sharing interviews with parents abotu the impact of have SCN2A and why it needs further funding and...

Who AMMA is and rare disease representss

21 Feb 2021 to 28 Feb 2021

Due to the pandemic, public authorities and other known persons has send a litle video explaining what is a rare...

If you still haven't heard of Rare Diseases, this is your chance to get to know better. The untold and...

The Georgian Foundation for Genetic and Rare Diseases (GeRaD) conducted a wide campaign in social media, TV and radio to...

Rare disease day Israel

21 Feb 2021 to 28 Feb 2021 Israel, Israel

On World Rare Disease Day, we will post stories and videos from CdLS families. It will be a special day...

FoxG1 Rare Disease Day: Birthday

21 Feb 2021 Sydney, Melbourne, Brisbane, Adelaide, Perth Canberra, Australia

#February is Rare disease month,Kush was the first child in Sydney and the first child in India Diagnosed with FoxG1...

Webinar - INBORN ERRORS OF METABOLISM: MORE KNOWLEDGE, BETTER FUTUREOrganizer: Association of Inherited Metabolic Diseases 'Aspida Zois' (Life Shield)Co-organizer: Cyprus Pediatric...

Sabato 20 febbraio, dalle ore 10 alle ore 13 | Evento conclusivo “Pillole Rare in … malattie rare. Facciamo centro.”  (organizzato da...

Recognizing the difficulties caused by the pandemic, the social distancing and the inclusion of us parents, we organize an introductory...

Ada Apa Dengan Cinta?

20 Feb 2021 Kuala Lumpur, Malaysia

Ada Apa Dengan Cinta?All individuals with rare disorders (RD): - don't have romantic feelings - don't want to have relationships...

RDD Ishikawa (Japan)

20 Feb 2021 to 28 Feb 2021 Ishikawa Prefectural Government Building, 19th Floor Observation Lobby / Online, Japan

1) Panel exhibition Date: February 20 to February 28, 2021 Location: Ishikawa Prefectural Government Building, 19th Floor Observation Lobby 2) Online Opinion Exchange "Let's connect...

Rare disease awareness in Rwanda

20 Feb 2021 to 28 Feb 2021 KIGALI, Rwanda

After 1 year of the open day, now we continue of the awareness of rare disease in Rwanda.We hope to...

PACIENTES Y PROFESIONALES EXPERTOS

20 Feb 2021 Medellín, Colombia

ALEM Association to Fight Multiple Sclerosis of Medellin Colombia commemorates the World Day of Rare Diseases with the realization of...

RDD Matsumoto (Japan)

20 Feb 2021 Online / Shinshu University Hospital, Japan

Lecture and social event for families of patients with FAP (Familial Adenomatous Polyposis)1. Opening remarks2. Lecture by Researcher3. Information Exchange4. Learning...

Presentación de las Tarjetas de Emergencia para Trastornos Hereditarios del tejido Conectivo

20 Feb 2021 San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Sucre, Santiago de Chile, Buenos Aires, Madrid, Barcelona, Badajoz, United States

Este sábado, por Zoom te contaremos sobre las tarjetas de emergencia que hemos creado para Marfan, Loeys-Dietz y Ehlers-Danlos. Cómo...

Program (tentative) Introduction of RDD Study tour by high school students Exchange of opinions with high school students from other...

FEMEXEResiliente

20 Feb 2021 (Online), Mexico

Webinar about resilient organizations, and within this framework we will share what the experience of 2020 was like and the...

RDD SAITAMA western part (Japan)

20 Feb 2021 to 28 Feb 2021

Opening - Introduction of social issues related to rare and incurable diseases2. special lecture webinar My Face, My Style -...

RAPPEL POR LAS EPOF

20 Feb 2021 Rosario, Santa Fe, United States

La Agrupación Bomberos Zapadores de la Ciudad de Rosario, Prov. de Santa Fe, realizará un triple descenso utilizando la técnica...

On the 19th of February 2021, the Lebanese Association for Neuromuscular Diseases hosted a webinar on Rare Disease Day alongside...

Meet rare heroes

19 Feb 2021 to 6 Mar 2021 Pezinok, Slovakia

Meet rare heroes: • Anna, Alkaptonuria: "I am no longer lonely with my rarity - science has intervened!" • Ingrid,...

RDD Kumamoto (Japan)

19 Feb 2021 to 1 Mar 2021 Kumamoto Health Cenber, Japan

Panel Exhibition NANBYO ”Senryu"  exhibition Senryu: a seventeen‐syllable poem that is often satirical of the times.

An accurate and early diagnosis is essential in the prognosis of rare diseases! Come to know more about genetics and...

I Jornada de Enfermedades Raras (I Conference of Rare Diseases)

18 Feb 2021 to 20 Feb 2021 Panama, Panama

I Conference of Rare Diseases in Panama is an academic and social event organized by CASPH from Faculty of Medicine of...

Rare Disease Day illuminations in Ukraine

18 Feb 2021 to 28 Feb 2021

The largest light initiative for the International Day of Rare diseases has already started in five cities of Ukraine!From yesterday...

Os presentamos la nueva canción de Alex García a.k.a. AlexPunto0, uno de nuestros héroes que vive con una enfermedad rara.Alex nos ha...

Colloquium organised by The National Alliance for Rare Diseases Support - Malta and the University of Malta Biobank entitled: “Patients...

1era Jornada de Enfermedades Raras 2021

18 Feb 2021 to 20 Feb 2021 Panamá, Panama

Los invitamos a la I Jornada de Enfermedades Raras del 18 al 20 de febrero organizado por CASPH en colaboración...

ندعوكم للمشاركة في مسابقة " نادر ونادرة للأشخاص ذوي الإعاقة" الفئات المستهدفة: فئة ذوي المهارات المتعددة- فئة ذوي المهارات اللفظية...

LIVESTREAM CONCERT

18 Feb 2021 Nicosia, Cyprus

It is a fundraising event celebrating the Rare Disease Day and part of the proceeds will be donated to the...

California Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Advocating for Rare Disease Patients on Malta National Television TVAM

Press Conference to launch of the MDS research project in collaboration with Malta Association of Biomedical Science (MABS), RDM will...

Webinar su zoom dalle 19 alle 20:30 sulla talassemia organizzato da FareComunicazione con il patrocinio di UNIAMO e il contributo non condizionato...

18th Parent Project International Conference on Duchenne and Becker muscular dystrophy

17 Feb 2021 to 21 Feb 2021 Virtual Event, United States

Parent Project organizes every year an International Conference entirely dedicated to Duchenne and Becker muscular dystrophy. This is an event...

El día 17 de Febrero estaremos en #Btvinforma en Bolivia tv a las 10 de la mañana!Los invitamos a ver el...

Presentamos los datos de impacto de la pandemia en este colectivo que suma alrededor de 3 millones de personas en...

"Shine a light on XLH"

17 Feb 2021 to 28 Feb 2021 Florence, Italy

 Conferenza di lancio della Campagna “SHINE A LIGHT ON XLH” – Accendi la luce sull’XLH. Campagna per evidenziare i benefici apportati...

National Rare Disease Week Philippines

17 Feb 2021 to 28 Feb 2021

CALL FOR PARTNERS | NATIONAL RARE DISEASE WEEK 2021This year we're going 100% virtual! Due to the pandemic, social media...

Release of RDD Japan 2021 introduction movie

16 Feb 2021 to 28 Feb 2021 Online, Japan

This is a video introducing RDD Japan 2021. I made it simply with BGM only. Please use it for the...

IV Concurso de Relatos Cortos

16 Feb 2021 to 31 Mar 2021 Online, Spain

IV Concurso de Relatos Cortos sobre Enfermedades Raras “Mi Experiencia Personal con la ER” Bases: https://www.adisen.es/noticias-y-actividades/iv-concurso-de-relatos-cortos-sobre-enfermedades-raras-mi-experiencia-personal-con-la-er-2/Pueden participar personas afectadas por...

Adisen Estudio 2021

16 Feb 2021 to 31 May 2021 Online, Spain

On the occasion of the activities organized to commemorate Rare Disease Day, Adisen, the National Association of Addison and Other Endocrine...

[email protected] [email protected] para este Martes 16 de Febrero a las 19:00 hrs. a nuestro Tercer Conversatorio: "Hablando de Epofs: Una...

RDD Press Seminar

16 Feb 2021

An RDD press seminar held jointly with Pfizer Japan Inc.

Light it up for Rare Diseases! The National Alliance for Rare Diseases Support - Malta together with the Ministry for Gozo will...

Rare Disease Day with HAE Junior

15 Feb 2021 to 28 Feb 2021

HAE Junior patient organisation joins Rare Disease Day 2021 with a digital campaign in Czech language about the rare condition Hereditary...

The Challenge

15 Feb 2021 to 1 Sep 2021 Melbourne to Sydney, Spain

Virtual fundraising challenge in sports routine or fitness routine to fundraise for Ataxia, ataxia research and climate change. Based on...

The third week of #S4RMonth will be dedicated to give visibility to childhood cancer and the different research projects on...

Launch of Rare Disease Day campaign

15 Feb 2021 Online, United States

15.02.2021 - Launching the RDD Campaign with an exhibition of art works realized by children at NoRo Center. We have attended...

Program: Launch a live monthly support call program for patients and families: https://invinciblevision.org/calls-sign-up/ Launch the new Invincible Vision website and...

In line with our 2021 Rare Disease campaign and leading up to the 28th of February!!Week 1: We will be...

LIVE NO ONE BEHIND

14 Feb 2021 to 28 Feb 2021 DAR-ES-SALAAM, Tanzania. United Republic of

Rare Disease Day commemoration is jointly organized by Ali Kimara Rare Disease Foundation (AKRDF) and Tanzania Society of Human Genetics...

Real Love, Rare Love in Texas

14 Feb 2021 Ft. Worth, United States

Love For Kids, Inc. is proud to honor children with rare conditions in partnership with musicians from Texas Music Network...

RDD Tokushima (Japan)

14 Feb 2021 to 28 Feb 2021 Tokushima Prefectural Exchange Plaza for the Disabled, Japan

RDD Japan panel exhibition

RDD Kids (Japan)

13 Feb 2021

Please get to know ME! Part 1: Let's learn about various diseases!Online Exchange Meeting for Families with Rare Diseases "Regional...

RDD Aichi (Japan)

13 Feb 2021 to 18 Feb 2021 Kanayama Sogo Sta. / Aichi prefecture Library / Nagoya City Library, Japan

Display of RDD panels Display of books related to intractable diseases

We will dedicate the second week of the month to the registry of patients with COVID-19 and rare diseases. The current global pandemic situation has...

Rare Diseases - Public Webinar Series

11 Feb 2021 to 25 Feb 2021 Dublin, Ireland

There will be three public webinar series hosted by University College Dublin in collaboration with Queen's University Belfast during February to...

Living with PNH

11 Feb 2021 to 6 Mar 2021

Living with PNHThe German filmmaker Julia Stromberg captured the life of a patient with the rare blood disorder PNH as...

[email protected] [email protected] para este Jueves 11 de Febrero a las 19:00 hrs. a nuestro Segundo Conversatorio: "Hablando de Epofs: Una...

La intendencia de Soriano intervendrá las letras corpóreas que identifican las localidades del departamento con los colores de las enfermedades...

Concurso de dibujo "mi vida con EB"

10 Feb 2021 to 20 Feb 2021

1er Concurso de Dibujo Debra México “Mi Vida con EB” Celebrando el Día Internacional de los Padecimientos RarosMándanos un dibujo con...

RDD CHIBA Children Hospital (Japan)

10 Feb 2021 to 28 Feb 2021

RDD2021 panel exibition

Webinar su zoom dalle 19 alle 20:30 con il patrocinio di UNIAMO e il contributo non condizionato di Chiesi. 

In conjunction with the celebration of World Rare Disease Day 2021, a talk program was held on 9 February 2021 (Tuesday)...

Todos invitados para el Martes 09 de Febrero a las 19:00 hrs. a nuestro Primer Conversatorio: "Hablando de Epofs: Una...

World of Rare Disease Pop Quiz

9 Feb 2021 to 11 Feb 2021 Northern Ireland, United Kingdom

World of Rare Disease Pop QuizFeatured on the NI Science Festival Schools & Educators ProgrammeTuesday 9 February - Thursday 11...

Conversations for the month of rare diseases

9 Feb 2021 to 28 Feb 2021 Santiago y Regiones, Chile

The Chilean Federation of Uncommon Diseases (FENPOF) comprises leaders of rare disease associations that seek to create awareness and promote...

Mosaic of PID's

9 Feb 2021 to 27 Feb 2021

In order to create awareness, the coming weeks we will ask our members via social media to send in pictures related...

Dia das Doenças Raras

8 Feb 2021 to 28 Feb 2021 São Paulo, Brazil

Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...

Exhibition in Second Life (Virtual World)

8 Feb 2021 to 28 Feb 2021 San Juan, Puerto Rico, Puerto Rico

This is an exhibition in the Virtual World Second Life. Community Virtual Library https://www.facebook.com/CommunityVirtualLibrary and Conrado F. Asenjo Library https://www.upr.edu/biblioteca-rcm  made...

Vivir Con Marfan

7 Feb 2021 San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Santiago de Chile, Buenos Aires, United States

#VivirConMarfan​ La experiencia de pacientes con síndrome de Marfan y sus cuidadores.Ponentes:Giuliana Pachano. Ecuatoriana, mamá de Victoria de 9 años,...

RDD Fukuoka (Japan)

7 Feb 2021 to 28 Feb 2021

For the 8th RDD Fukuoka event, we will focus on radio broadcasting on YouTube. We will take the "change" from...

Rare disease day 2021 in Georgia

7 Feb 2021 to 28 Feb 2021 Tbilisi, Georgia

Interesting activities will be held in February 2021 aimed at raising awareness of rare diseases in Georgia. CDKL5, Dravet syndrome,...

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

6 Feb 2021 to 13 Feb 2021 México, Mexico

En conmemoración del Día Mundial y Nacional de las Enfermedades Raras, se llevará a cabo nuetsro Primer Simposio Latinoamericano Virtual...

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

6 Feb 2021 to 13 Feb 2021 México, Mexico

PRIMER SIMPOSIO LATINOAMERICANO DE ENFERMEDADES LISOSOMALES 6 Y 13 DE FEBRERO 2021 En commemoración del Día Mundial y Nacional de las...

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

6 Feb 2021 to 13 Feb 2021 México, Mexico

Iniciativa Pensemos en Cebras México Trabajando y commemorando.En commemoración del Día Mundial y Nacional de las Enfermedades Raras 2021, se...

SpectacuRARE Fest 2021

6 Feb 2021 to 31 Mar 2021 Online, Indonesia

SpectacuRARE Fest 2021 is an online event.We will talk about "Living with a Rare Disease" on zoominar, IG live, FB...

Dia das Doenças Raras

6 Feb 2021 to 28 Feb 2021 São Paulo, Brazil

Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...

Exposición del Mes de las Enfermedades Raras 2021

6 Feb 2021 to 28 Feb 2021 Panamá, Panama

FEBRERO MES DE LAS ENFERMEDADES RARASLa fundación AYOUDAS Panamá da inicio a sus actividades y campaña de difusión masiva para...

Be RARE Finish Line Run powered by MDA

6 Feb 2021 to 28 Feb 2021 ATHENS, Greece

All of Greece, the whole world, is becoming one route!The race is organized by MDA Hellas (Association for the care...

The event is aimed at people with rare diseases, doctors, family members and friends.To participate, you just have to send...

Programa Salud con los Expertos

4 Feb 2021 to 25 Feb 2021 México, Mexico

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021Mujer México y la Iniciativa...

RDSS Virtual Run 2021

4 Feb 2021 to 22 Feb 2021

Help Raise Awareness for RARE by carrying HOPE with you! HOPE represents the dreams and aspirations of the beneficiaries of...

En el marco del mes internacional de las enfermedades raras y huérfanas (ERH), se ha convocado al evento internacional: Retos y oportunidades para...

Show your colours Share your story

3 Feb 2021 to 28 Feb 2021

We share our colours, our stories of people with the rare disease XLH (X-linked hypophosphatemia), daily on our social media...

RDD Kitakyushu (Japan)

2 Feb 2021 to 26 Feb 2021 Kitakyushu City Hall, Japan

RDD Japan 2021 panel display

Jornada de Enfermedades Raras y Tamiz Neonatal Ampliado

1 Feb 2021 to 28 Feb 2021 México, Mexico

DAY ON RARE DISEASES AND NEONATAL SCREEN EXTENDED FROM FEBRUARY 1-28, 2021. The Pensemos en Cebras México and Mujer México...

RDD2021 kick-off live On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the...

Spreading MED13L Awareness Through Social Media

1 Feb 2021 to 28 Feb 2021 Barrington; Philadelphia, United States

MED13L is a very rare syndrome that is characterized by intellectual disability, speech and language impairment, motor developmental delay with...

Press Conference to launch Rare Diseases Campaign in Malta in front of the Parliament Building in Valletta

Small, big draws

1 Feb 2021 to 21 Feb 2021

https://www.instagram.com/p/CKwAxZ3Bkph/?igshid=1qbexuin9yqz0We would like to invite you to participate in the "Small, large draws" drawing contest organized by the Phelan-McDermid Association,...

Faces of CMT

1 Feb 2021 to 28 Feb 2021

To mark Rare Disease Day 2021, the European CMT Federation is hosting a global ‘Faces of CMT’ Photography competition in...

Faccia da CMT

1 Feb 2021 to 21 Feb 2021

Per far comprendere a chi non le vive quali siano le sfide che le persone che convivono con la CMT devono...

RD Day 2021 is held under the auspices of the Czech Minister of Health

1 Feb 2021 to 28 Feb 2021 the entire country, Czech Republic

We are very honoured that the RD Day 2021 is held under the auspices of our current minister of health, professor...

Share with rare

1 Feb 2021 to 28 Feb 2021 online, Serbia

The idea is that people who are living with rare diseases get gifts, in such a way that people who don't...

RDD rare cancer (Japan)

1 Feb 2021 to 28 Feb 2021

"Rare Cancers Awareness Month RARE CANCERS AWARENESS MONTH 2021" Program ~Rare is Many! Let's learn about rare cancer~February is Rare...

RDD Telemedicine (Japan)

1 Feb 2021 to 7 Mar 2021 Online / Community Book Cafe at Mitaka-City, Japan

1) Exhibition at Community Book Cafe at Mitaka-City Date: February 1 ~ February 28, 2021 2) Seminar on Telemedicine   Date: February 1 ~ February 28, 2021 Lectures by...

Zebra 5K

1 Feb 2021 to 28 Feb 2021 New Hope, United States

Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's...

Not a Unicorn

1 Feb 2021 to 28 Feb 2021 whole country, Belgium

RaDiOrg organised a full digital media campaign with 2 objectives: raising awareness on rare diseases towards the larger public and stakeholders &...

Campanha frases de Impacto

1 Feb 2021 to 28 Feb 2021 Curitiba, Brazil

Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...

28 days Ohrid will shine in the colors of rare diseases!

1 Feb 2021 to 28 Feb 2021 Ohrid, North Macedonia

On February 1, we started with the national campaign "LEARNING ABOUT RARE DISEASES".Loleska Gordana and "Life with Challenges" and Super...

6th Annual Rare Disease Day virtual race

1 Feb 2021 to 28 Feb 2021

This is our 6th year hosting the Rare Disease Day virtual race to raise awareness and to benefit the National...

Rare in the City in front of the Parliament Building

1 Feb 2021 to 5 Feb 2021 Valletta, Malta

Rare in the City in front of the Parliament Building under the patronage of the Hon. Speaker of the House...

Move For A Diagnosis + "$28 on the 28th"

1 Feb 2021 to 28 Feb 2021

Announcing our “Move for A Diagnosis” event that will run throughout the month of February, until Rare Disease Day on...

Campanha frases de Impacto

1 Feb 2021 to 28 Feb 2021 Curitiba, Brazil

Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...

Concurso Fotografico Rare Disease Day

1 Feb 2021 to 28 Feb 2021

II Concurso Fotografía ‘Rare Disease Day’ de Yo NemalínicaPor segundo año lanzamos nuestro #concursofotografico ‘Rare Disease Day’, sumándonos así a...

We share about this day in social networks!

1 Feb 2021 to 28 Feb 2021 Москва, Санкт-Петербург, Воронеж, Russian Federation

Родительский проект по оказанию помощи пациентам с миодистрофией Дюшенна/Беккера мы поддерживаем #RareDiseaseDay наше мероприятие «мы делимся об этом дне в...

Rare Disease Day in DIMED Research Projects 2021

1 Feb 2021 to 27 Mar 2021 Padova, Italy

Lo scopo del convegno è quella di promuovere l'integrazione tra vari settori attuando sinergie nella ricerca clinica e traslazionale attraverso...

Rare Disease Day In Mauritius

1 Feb 2021 to 28 Feb 2021

We will mobilise the media as well as the social media to raise awareness about rare diseases in Mauritius.   

Promotion campaign on RDD2021

1 Feb 2021 to 27 Feb 2021 Algiers, United States

the Alliance is organizing a promotional campaign for the RDD 2012  throughout the month of February oover medias

Historias de Enfermedades Raras

1 Feb 2021 to 28 Feb 2021

Trazando lo Invisible is a non-profit organization in Mexico with the goal of raising awareness about invisible disabilities. In february,...

Concurs Fotogràfic Malalties Minoritàries

31 Jan 2021 to 25 Feb 2021

Podrà participar en el concurs qualsevol persona major de 16 anys i resident al Principat d’Andorra. No poden participar els...

RDD Kakogawa Minami High school (Japan)

30 Jan 2021 Kakogawa Minami High school, Japan

Exhibition at the Department of General Studies Presentation HallActivity Report (Presentation)

RDD SAKATA-NISHI Highschool (Yamagata, Japan)

30 Jan 2021 to 28 Feb 2021 Sakata Nishi high school, Japan

The catch phrase is To the medical professionals and to all people, give ale and kindness!Project 1: #Yell to the...

Projet musical solidaire - Le haka de MaRaVal

29 Jan 2021 to 28 Feb 2021 Sion, Switzerland

SOLIDARITY MUSICAL PROJECT - THE HAKA OF MARAVALMaRaVal calls on Valais musicians and singers to show solidarity: we call on...

Rare disease patients are considered 'invisibile' due to the marginalization, discrimination and stigma still often associated with rare diseases. They live...

Rare Disease Day Virtual Run

25 Jan 2021 to 28 Feb 2021

In conjunction with Rare Disease Day 2021, there will be a virtual run held to bring awareness of rare disease...

RDD Gifu (Japan)

23 Jan 2021 to 28 Mar 2021 Online / 30 libraries in Gifu Prefecture, Japan

1) Interview with a newspaper reporter and a Parkinson's disease patient (Video letter)2) Nanbyo Book Fair at 30 libraries in Gifu Prefecture

Rare Disease Day Photography Competition

22 Jan 2021 to 28 Feb 2021

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition.Get your cameras out...

Rare Kids Art Competition

22 Jan 2021 to 22 Feb 2021

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition.Ask your...

Sorteio Energias Raras/Rare Energies Raffle

15 Jan 2021 to 28 Feb 2021 Online, Portugal

[EN]For RDD 2021, Mitochondrial Biomedicine and Theranostics Lab has created the Rare Energies Raffle!Acquiring a raffle ticket you may win...

Rare is many, grow in the light and Bloom

15 Jan 2021 to 1 Mar 2021 Bilthoven, Netherlands

Stichting SpierKracht Netherlands reaches out global. Covid 19 has quarantined a lot of  families in the house. With our 2021...

The Story of my Skin - Art Contest

2 Jan 2021 to 28 Feb 2021

ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...

The Story of my Skin - Art Contest

1 Jan 2021 to 28 Feb 2021 Paris, France

ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...

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