The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...
On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...
12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.
In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...
𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.
The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...
WEBINAR Patient Family Exchange Meeting
La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...
3 online lectures on ARVC research with following Q&A
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...
Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...
More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....
A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...
Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!
WEBINAR Online Well Festa 2022 with RDD in Chiba
As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...
FDA will host a virtual public meeting on March 4, 2022 to join the global observance of Rare Disease Day....
A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...
Online – Veranstaltung
Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...
L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...
In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...
Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...
El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...
“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...
Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...
An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...
Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.
A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...
In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...
Illumination of NoRo Center in honor of Rare Disease Day in Romania.
Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.
Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...
Illumination of Catenary Lights in honor of Rare Disease Day in Australia.
Illumination of Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.
By partnering with US Bank Stadium in Minneapolis to Light Up For Rare for a 2nd year, the Yaya Foundation...
Illumination of Parque de la Flrorida in honour of Rare Disease Day in Spain
Illumination of Palazzo Comunale di Palaia in honor of Rare Disease Day in Italy.
Illumination of Laimer Würfel München in honour of Rare Disease Day in Germany
🙌🏻 𝐃𝐢́𝐚 𝐌𝐮𝐧𝐝𝐢𝐚𝐥 𝐝𝐞 𝐥𝐚𝐬 𝐄𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬 𝐑𝐚𝐫𝐚𝐬 💜💜💜👚 👚👚 Los invitamos al FORO: 𝐄𝐥 𝐚𝐛𝐨𝐫𝐝𝐚𝐣𝐞 𝐝𝐞 𝐥𝐚𝐬 𝐩𝐞𝐫𝐬𝐨𝐧𝐚𝐬 𝐜𝐨𝐧 𝐞𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬...
We join forces for the children with Rare Diseases: “95” Rare Alliance Greece illuminates the Children’s Hospital “H Agia Sofia”...
Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.
UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” illuminating of green the Mole Antonelliana. We are grateful to...
Illumination of Diputación de Jaén in honour of Rare Disease Day in Spain
Illumination of the Alamo Quarry Market smoke stacks in honor of Rare Disease Day in the United States.
Illumination of Maschio Angioino – Napoli in honor of Rare Disease Day in Italy.
Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.
Illumination of FDA in honor of Rare Disease Day in USA.
Illumination of Emigration Museum in honour of Rare Disease Day in Poland
Illumination of Historical Arches in honor of Rare Disease Day in USA.
Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain
Illumination of Chiesa Madre in honor of Rare Disease Day in Italy.
Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.
Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...
Illumination of Queensland Country Bank Stadium in honor of Rare Disease Day in Australia.
Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...
Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.
Con todo respeto y cariño, dedicamos este video a la amada memoria de Elizabeth, Valente y Emmanuel Martínez Pérez, los...
On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...
Lights on Rare Disease – L’Aquila will light up of rare disease colours
Illumination of Istituto comprensivo in honor of Rare Disease Day in Italy.
Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.
Illumination of Basse-Terre’s town hall in honour of Rare Disease Day in France
Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany
Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.
Illumination of Porta Padova, Porta XX Settembre, Porta Legnago e Porta Vicenza in honor of Rare Disease Day in Italy.
A Junta de Freguesia de Agualva Mira Sintra no dia 28 de fevereiro irá assinalar o Dia das Doenças Raras...
Illumination of Sport & Culture Centre of Pruszcz Gdański in honour of Rare Disease Day in Poland
Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.
Illumination of Bytów’s town hall in honour of Rare Disease Day in Poland
February 28 is the day of awareness of rare diseases, and the Rebeca Faith-Hope-Love Association marks this day with this...
Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.
Illumination of Castelo de Leiria in honor of Rare Disease Day in Portugal.
Illumination of Pruszcz Gdański’s town hall in honour of Rare Disease Day in Poland fot. Janina Wilkos-Gad
Illumination of Federation Square in honor of Rare Disease Day in Australia.
Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...
Illumination of Palazzo del Municipio ( lato via Garibaldi) in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho – Angra do Heroísmo in honor of Rare Disease Day in Portugal.
Illumination of Casas Colgadas de Cuenca in honour of Rare Disease Day in Spain
Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland
Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.
Illumination of Chiostro dei Minori Osservanti in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.
Il centro commerciale Belicittà, bene confiscato alla criminalità organizzata, ha messo a disposizione un desk informativo in galleria per far...
MANY, STRONG, PROUD – ein Lauf zum „Tag der seltenen Erkrankungen“! Vom 28.2.-6.3 findet der Rare Diseases Run als virtueller...
“95” Rare Alliance Greece illuminates the Οld Τown Ηall of Mitilini in honor of Rare Disease Day in Greece.
“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...
We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...
To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...
Illumination of Palazzo Municipale Surbo (Le) in honor of Rare Disease Day in Italy.
Illumination of Mounts Street Bridge in honor of Rare Disease Day in Australia.
The most important museum of art of Andorra participates in the building illumination for rare disease day.
Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...
This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...
Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.
Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...
We will light the national museum for the first time in lebanon
Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Illumination of Perth Bell Tower in honor of Rare Disease Day in Australia.
Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...
Reading of OEIS heritage
Illumination of Tour Bellanda in honour of Rare Disease Day in France
Illumination of Malbork’s town hall in honour of Rare Disease Day in Poland
Illumination of Ayuntamiento de Talavera in honour of Rare Disease Day in Spain
Illumination of Cristo del Otero in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Lorca in honour of Rare Disease Day in Spain
Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.
Illumination of Rotunda dos Golfinhos – Setúbal in honor of Rare Disease Day in Portugal.
Illumination of Governor Mario M. Cuomo Bridge in honor of Rare Disease Day in USA.
Illumination of the clock tower in honour of the International Rare Disease Day and to celebrate the end of Rare...
Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.
Illumination of Ayuntamiento de Baeza in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates the building of the region of Kozani, in honor of Rare Disease Day, Greece.
Illumination of Ponte nel cielo Campo Tartano in honor of Rare Disease Day in Italy.
Illumination of Yagan Square in honor of Rare Disease Day in Australia.
Illumination of Castello Aragonese in honor of Rare Disease Day in Italy.
The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!
Illumination of Municipio di Portogruaro (Ve) in honor of Rare Disease Day in Italy.
Show your support for #RareDiseaseDay by lighting up your home, office, or school on 28 February! By coming together to...
An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...
Lights on Rare Disease – Cuneo will light up of rare disease colours
We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.
Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.
Illumination of Porta del sole in honor of Rare Disease Day in Italy.
Illumination of Palazzo di Città di Salerno in honor of Rare Disease Day in Italy.
The NGO called Cetatea Voluntarilor is the constant partner of Romanian National Alliance for Rare Diseases in organizing events to...
Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...
Awareness & Management of Rare Diseara Webinar by Women’s Forum of IPGA AP
Illumination of Ayuntamiento de Marbella in honour of Rare Disease Day in Spain
Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.
Illumination of Koombana Bay Footbridge in honor of Rare Disease Day in Australia.
Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.
Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.
On-line conference. Rare Diseases UAE-Israel Virtual Conference Program
Illumination of Edifício dos Paços do Concelho – Portalegre in honor of Rare Disease Day in Portugal.
Illumination of Castel dell’Ovo in honor of Rare Disease Day in Italy.
Illumination of Castello Medievale in honor of Rare Disease Day in Italy.
Illumination of Stabilimento Tettuccio in honor of Rare Disease Day in Italy.
Illumination of Chiesa degli Scolopi in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.
Carlos David Peña Aragón, mejor conocido como Toto, nos platica qué representa vivir como persona con una enfermedad rara en...
Illumination of Vereinshaus Junge Linde in honour of Rare Disease Day in Germany
Awareness and wellness walk where ribbons will be handed out in the colors of rare disease day!
In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...
Illumination of Paranaple convention centre in honor of Rare Disease Day in Australia.
Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...
Illumination of Cyprus Institute of Neurology and Genetics in honor of Rare Disease Day in Cyprus.
Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...
Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland
Illumination of Chiesa Madre SS Pietro e Paolo – Galatina (LE) in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Firenze will light up of rare disease colours
In time for #RareDiseaseDay, our host Lelainia and Founder and Executive Director of the Sumaira Foundation, Sumaira Ahmed, discuss what...
Illumination of Budynek Instytutu Biochemii i Biofizyki PAN w Warszawie in honour of Rare Disease Day in Poland
Illumination of “El Capitolio” (Capitol of Puerto Rico) – San Juan – in honor of Rare Disease Day in Puerto...
Illumination of The Drum Theatre in honor of Rare Disease Day in Australia.
Illumination of Palazzo Municipale di Rieti in honor of Rare Disease Day in Italy.
A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.
Art Contest – Send your drawings by March 31 – By post: Fondation René Touraine // Hôpital Necker – Enfants...
Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...
Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.
Illumination of Palazzo comunale di Cellamare in honor of Rare Disease Day in Italy.
Illumination of Rocchetta in honor of Rare Disease Day in Italy.
Illumination of Fontana di Piazza San Leonardo in honor of Rare Disease Day in Italy.
Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...
Загорается для редких💥 Light up for rare 💥 Челябинск первый из российских городов присоединится к глобальной акции в поддержку людей...
RARE DISEASE DAY
Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.
Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Será una reunión por zoom, cuyo objetivo es concientizar a médicos sobre la existencia de enfermedades raras e Endocrinologia, donde...
Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain
Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale San Cassiano in honor of Rare Disease Day in Italy.
Illumination of Place Stanislas in honour of Rare Disease Day in France
Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....
Lights on Rare Disease – Barletta will light up of rare disease colours
Illumination of Palazzo di Città di Fasano in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.
Illumination of Schlosskirche Lutherstadt Wittenberg in honour of Rare Disease Day in Germany
Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
Illumination of Municipality of San Michele al Tagliamento in honor of Rare Disease Day in Italy.
Date: February 28, 2022 Cause: International Rare Disease Day Colour: Pink, blue and green The lighting begins at sunset, however...
Illumination of Bahnhof Mannheim in honour of Rare Disease Day in Germany
Un accordo di collaborazione tra Orphanet, Ospedale Pediatrico Bambino Gesù e OMaR e tante iniziative rivolte ai pazienti e alle...
Illumination of Municipio di pressana in honor of Rare Disease Day in Italy.
Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany
Illumination of Sede Municipale provvisoria del Comune (ex Capricho de Calise) in honor of Rare Disease Day in Italy.
Illumination of the Consortium Lounge in honor of Rare Disease Day in Australia.
Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.
Illumination of Palazzo Comunale di Corbetta in honor of Rare Disease Day in Italy.
U 7 pm biće osvetljena Gradska kuća opštine Kruševac
Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.
Illumination of Ayuntamiento de Cuenca in honour of Rare Disease Day in Spain
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
Illumination of San Mames Estadio in honour of Rare Disease Day in Spain
Illumination of Torre Civica di Muscoline in honor of Rare Disease Day in Italy.
Illumination of Porta a Monte in honor of Rare Disease Day in Italy.
Join SWAN Australia, Carer Gateway – Wellways Australia and Community Junction in raising awareness about rare diseases on Rare Disease...
“95” Rare Alliance Greece illuminates the monument in the Three Admirals’ Square in honor of Rare Disease Day in Pylos,...
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” illuminating Porta San Giacomo. We are grateful to our branch...
Be Rare Spirit Day, which was planned, organized, and hosted by Abigail Villarreal will take place at Thomas Jefferson High...
Illumination of Monash Park Tree in honor of Rare Disease Day in Australia.
Wydarzenie jest organizowane cyklicznie z okazji Dnia Chorób Rzadkich. Zapraszamy naukowców, lekarzy, diagnostów laboratoryjnych, pacjentów i inne osoby zainteresowane tematem.
Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain
In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...
Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...
Illumination of Little Fletcher Bridge in honor of Rare Disease Day in Australia.
Illumination of Palazzo della Regione Friuli Venezia Giulia – Gorizia in honor of Rare Disease Day in Italy.
Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...
Illumination of Brant Street Pier in #RareDiseaseDay colours
Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Burg und Kloster Oybin in honour of Rare Disease Day in Germany
Illumination of Porte de Bourgogne in honour of Rare Disease Day in France
Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Tančící dům – Ginger and Fred in honour of Rare Disease Day in Czech Republic.
Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...
Illumination of the Trinity College in honor of Rare Disease Day in Ireland.
Illuminazione della Torre dell’Orologio e la Fontana di Bellerofonte in onore della Giornata delle Malattie Rare
Illumination of Kopuła Stadionu Miejskiego in honour of Rare Disease Day in Poland
Illumination of Castle Hněvín in honour of Rare Disease Day in Czech Republic.
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Besucherzentrum der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.
A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...
Illumination of Palazzo di città Baronissi in honor of Rare Disease Day in Italy.
Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um...
Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...
Lights on Rare Disease – Fontana del Teatro Valli will light up of rare disease colours
Illumination of Ayuntamiento de Huelva in honour of Rare Disease Day in Spain
La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...
Subir más de 2.000 escalones
Illumination of Comune di carpi in honor of Rare Disease Day in Italy.
Illumination of Biogen Tower München in honour of Rare Disease Day in Germany
Illumination of Flinders Street Railway Station in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.
Illumination of Palazzo Nieddu del Rio in honor of Rare Disease Day in Italy.
Illumination of Municipio di Aci Sant’Antonio in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Montagnana will light up of rare disease colours
Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...
The Automobile Association are lighting up their head office to represent Pontine Tegmental Cap Dysplasia and Lola who is a...
On the 28th of february at 7 pm cairo local time, sharing with the “global light up for rare” chain,...
Illumination of William Grundt Memorial Library in honor of Rare Disease Day in Australia.
Illumination of Edifício dos Paços do Concelho – Funchal in honor of Rare Disease Day in Portugal.
Illumination of Comune in Sant’Antonio Abate in honor of Rare Disease Day in Italy.
Illumination of Rocca di Carmignano in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the stone clock in the municipality of Piraeus in honor of Rare Disease Day in...
https://roanoketower.com/tower-lights/ Light up of city building
Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain
L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...
Illumination of Igreja de Santiago – Óbidos in honor of Rare Disease Day in Portugal.
Illumination of Ayuntamiento de Santa Cruz in honour of Rare Disease Day in Spain
Illumination of Fontana del Nettuno di Piazza Duomo – Trento in honor of Rare Disease Day in Italy.
Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.
Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.
Illumination of Comune di Mondovì in honor of Rare Disease Day in Italy.
Illumination of Vecchia Sede Comunale in honor of Rare Disease Day in Italy.
In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...
It is an online event, on Instagram, in which posts will be published in order to raise awareness about living...
In 2021 we were able to perform whole exome sequencing of more one hundred index patients with Rare Disease in...
Join us in a gathering of supporters of patients with Rare Diseases around the Fountain at Lafayette Square, LaGrange GA!...
Illumination of Comune di Seveso in honor of Rare Disease Day in Italy.
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
Illumination of Roldán in honour of Rare Disease Day in Argentina
A free, open-to-all online event to: • To showcase our new Newcastle Centre for Rare Disease Research, highlighting our mission...
Illumination of Monumento ai Caduti di Castiglione della Pescaia in honor of Rare Disease Day in Italy.
Illumination of Edifício da Câmara Municipal – Castelo Branco in honor of Rare Disease Day in Portugal.
We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...
Illumination of Dipartimento di Medicina della Università Aldo Moro in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Grosseto in honor of Rare Disease Day in Italy.
Illumination of Municipio Teglio Veneto in honor of Rare Disease Day in Italy.
Parliament house will illuminate blue, green and purple for rare disease day.
Join the global Rare Disease Day event organised by the NGO Committee for Rare Diseases, the Ågrenska Foundation, RDI, and...
Illumination of Acque del fiume della città di Ceprano in honor of Rare Disease Day in Italy.
Illumination of Cascate Monumentali in honor of Rare Disease Day in Italy.
The last day of February is recognized as Rare Disease Day. We at SickKids, are proud to join the many...
Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.
The event is a digital inauguration ceremony for Center for Rare Diseases West (Gothenburg) with invited guests like the Swedish...
Illumination of Estátua D. José I – Terreiro do Paço in honor of Rare Disease Day in Portugal.
The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...
Illumination of Fuente de los Patos de Alhama de Murcia in honour of Rare Disease Day in Spain
Illumination of Torre del Castello in honor of Rare Disease Day in Italy.
Illumination of Monumento dei caduti di Otranto in honor of Rare Disease Day in Italy.
Illumination of St. Elisabeth Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Esta noche los edificios municipales de La Nucía se iluminan de “verde” por “Día Mundial de las Enfermedades Raras”, a...
Illumination of Richmond Reserve in honor of Rare Disease Day in Australia.
Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...
Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.
Illumination of Scultura in ferro di Via Roma in honor of Rare Disease Day in Italy.
Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.
Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.
Oggi GIORNATA MONDIALE DELLE MALATTIE RARE: partecipa alla RARE RUN BOLOGNA – Edizione Virtuale. Sostieni con noi tutti i bimbi...
Illumination of Minnesota Bridge Anthony Falls in honor of Rare Disease Day in USA.
The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...
Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.
Illumination of Townsville Sign in honor of Rare Disease Day in Australia.
Illumination of Melbourne Cricket Ground in honor of Rare Disease Day in Australia.
Illumination of Palazzo Comunale di Vico Equense in honor of Rare Disease Day in Italy.
Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...
Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy
Illumination of Dreifaltigkeitssäule Rathausplatz St. Pölten in honor of Rare Disease Day in Austria.
Illumination of Zakim Bridge in honor of Rare Disease Day in USA.
Illumination of Theater Dessau in honour of Rare Disease Day in Germany
Illumination of Arena di Verona in honor of Rare Disease Day in Italy.
Illumination of Mieczysław Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in Poland
Illumination of Ayuntamiento Jabalquito in honour of Rare Disease Day in Spain
Lighting up the tallest tower in East Africa, Kenyan style!!
Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain
Iluminación en color violeta
Illumination of Kienlesbergbrücke Ulm in honour of Rare Disease Day in Germany
Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.
Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain
Join the GSNV in celebration of Rare Disease Day with a virtual journey to focus on “Global Themes, Local Action”....
Illumination of Marienkirche Neubrandenburg in honour of Rare Disease Day in Germany
Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.
Shining a Light on Genetic Diagnosis, Monday 28 February, 6-7.30pm Institute of Genetics and Cancer, the University of Edinburgh, in...
Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...
Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain
Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci
“95” Rare Alliance Greece illuminates the Rio – Antirrio Bridge in honor of Rare Disease Day in Greece.
Illumination of Edificio de la Consejería de Salud in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Vitoria in honour of Rare Disease Day in Spain
Illumination of La Rotonda in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Potenza will light up of rare disease colours
Illumination of Wait Chapel at Wake Forest University in honor of Rare Disease Day in USA.
Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...
On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most...
Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.
For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...
The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...
Illumination of Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.
NORD invites you to wear your favorite zebra print shirt or a striped scarf and meet online for a community...
Illumination of Launceston Town Hall in honor of Rare Disease Day in Australia.
Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France
Illumination of Torre comunale di Lacco Ameno in honor of Rare Disease Day in Italy.
Students from different Departments of University participate in it
Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...
Illumination of Torre dei Da Pendolasco in honor of Rare Disease Day in Italy.
Illumination of Schloss Hainewalde in honour of Rare Disease Day in Germany
Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.
Illumination of l’Ours Pompon in honour of Rare Disease Day in France
Illumination of Monumento ai Caduti sul Lavoro – LECCO in honor of Rare Disease Day in Italy.
Illumination of Greenbrier in honor of Rare Disease Day in the United-States.
Illumination of Palazzo Comunale di Zagarolo in honor of Rare Disease Day in Italy.
Illumination of Porta al Prato in honor of Rare Disease Day in Italy.
Illumination of Pałac Kultury i Nauki (PKiN) in honour of Rare Disease Day in Poland
Illumination of San Francisco’s City Hall in honor of Rare Disease Day in USA.
Illumination of Zentrum für Seltene Erkrankungen am Uniklinik Freiburg in honour of Rare Disease Day in Germany
Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.
Illumination of TOkna w Sali Sesyjnej w Sukiennicach, Wrocław in honor of Rare Disease Day in Poland.
Illumination of Electricity Authority of Cyprus – Larnaca Offices in honor of Rare Disease Day in Cyprus.
Illumination of Palazzo del Podestà in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain
Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022 to Sunday 06.03.2022 at...
Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France
First Inflammatory Neuropathies’ Virtual Conference in Spanish.
Lights on Rare Disease – Vercelli will light up of rare disease colours
Illumination of Templi del Parco Archeologico di Paestum in honor of Rare Disease Day in Italy.
Illumination of Polo delle Arti e della Cultura in honor of Rare Disease Day in Italy.
Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will be illuminated in honour of...
Illumination of Duomo Reggio Emilia in honor of Rare Disease Day in Italy.
On February 28, 2022 we will be highlight throughout the day individuals and organizations helping and seeking a cure to...
Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...
Illumination of City Hall Hradec Králové in honour of Rare Disease Day in Czech Republic.
Illumination of Clermont Auvergne Opéra in honour of Rare Disease Day in France
Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...
The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...
Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.
Illumination of Teatro Comunale di Carpi in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Rovigo will light up of rare disease colours
This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...
Illumination of palazzo comunale di Valverde in honor of Rare Disease Day in Italy.