Gogohope Virtual Sport Challenge is created with the objective to inspire and motivate everyone especially our MLDA patients to be...

1) Activities to learn about diseasesPicture book reading Thinking about illness and life2) Pray for the convergence of coronaMaking underlay...

Presentation and sharing of experiences by members of member organizations (patient groups)

Program (tentative) -Support System for Intractable Diseases in the Corona Era -Spiritual care -Live music performance by musicians -Medication counseling...

Meeting aimed at disseminating research activities on rare diseases carried out in the Valencian Community.++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++Jornada destinada a dar a conocer...

Multiple System Atrophy (MSA) Online International Exchange Meeting1〉Opening remarks (10 minutes) Panel discussion (60 minutes)[Theme] "International Treatment Research and Patients...

In recent years, intractable disease cafes have been gradually spreading from the Kyushu area to the Kanto and other regions...

RDD2021 introductionPatients testimonial　Mr. and Mrs. WakuiParticipants: Only those who work at Hamamatsucho Building

Ciné-débats gratuits, 100% digitaux. L’objectif est d’inviter chacun à ouvrir les yeux sur les maladies rares dans une démarche bienveillante...

Date: March 9 – 10, 2021 Time: 11am – 2pm EST Registration: https://bit.ly/39szgDs  

Held online-livePatients’ testimonial Discuission; What we can do for welfare and care, etc.

In RDD Yamaguchi, we will express the theme of RDD Japan 2021, "Your want to know rare, I want to...

What do you know about Rare Diseases? Today, 28 February, is the very well-known Rare Disease Day; the day dedicated...

Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of...

The challenges facing patients with inherited metabolic diseases (IMDs) in Greece are many and formidable and are highlighted due to...

Coping Through Covid and BeyondA health and wellbeing presentation, delivered by Dr Christianna Kyriacou, Counselling Psychologist, Royal Brompton Hospital. A...

Simposio iberoamericanoAtención integral en Enfermedades RarasEl caso de los Trastornos Hereditarios del Tejido Conectivo«Un marco estratégico para Latinoamérica»Hashtag: #THTC2021El simposioEl...

El pasado sábado 6 de marzo de 2021 la Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios, organizó un encuentro...

Nuove ricerche sull’Incontinentia pigmenti ai tempi del COVID-19 In occasione della Giornata Mondiale Malattie rare, l’Associazione Italiana Incontinentia pigmenti ONLUS (IPASSI)...

There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their...

2DO FORO DE TAMIZ NEONATAL Y ENFERMEDADES RARASEn el marco del Día Mundial y Nacional de las Enfermedades Raras 28...

Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare...

New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

The Psi. Paulina Peña, director of AcceSalud, will be a speaker at this important forum. La Psi. Paulina Peña, directora...

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021.La Lic. Jacqueline Tovar Presidenta...

Para conmemorar el Día Mundial contra el Cáncer (4 de febrero) y el #RareDiseaseDay (28 de febrero), trataremos el Tumor de...

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org 

Conferenza Stampa conclusiva "Giornata delle malattie rare: UNIAMO le forze", Mar 4, 2021 11:00 AM in Rome. Link per registrarsi https://zoom.us/webinar/register/WN_Y4FEbnWGSFWSEhuhquaHjQ 

This week the world shares in raising the awareness on Rare diseases. Being aware means early diagnosis and effective treatment.#Rareismany#Rareisproud#Rareisstrongالاسبوع...

Be a part of History. Join the call for the United Nations to adopt a Resolution for Persons and Families Living with a...

El próximo 4 de marzo se presentará el cluster de enfermedades raras - CER.Para más información consulte la página de Facebook...

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org 

Hello-Barev!Scientific event, organised by AHA, aim to discuss the following topics: Hemophagocytic Lymphohistiocytosis, Vexas Syndrome, MGUS, Primary Immunodeficiencies, Rare Fungal Infections,...

Desde el Ministerio de Salud de la Nación de Argentina conmemoramos el Día Internacional de las Enfermedades Poco Frecuentes con un...

Focus on rare disease: Prime time — gene therapy for rare disordersSixth annual seminar showcasing rare disease research.Wednesday, March 3...

Conference aimed at learning the communication tools and strategies through social networks to improve the visibility of the research carried...

A l’occasion de la Journée Internationale des Maladies Rares, vous êtes conviés au premier webinaire des Rendez-Vous du GHU organisé par...

Fecoer organizará el 2 de Marzo el Foro Virtual "Soy Raro, soy Único". Para más información consulte la página de Facebook...

On 2 March, people living with XLH, a rare genetic bone disease, as well as scientists, staff and students from...

A l'occasion de la journée internationale des maladies rares 2021  et  dans la  continuité de l' action de sensibilisation et de mobilisation de l'opinion...

Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

More information to come in the following days!

From 02/02/2021 until 01/03/2021 BORDIS is committed to create awareness on rare diseases by sharing information on rare diseases and...

Monday, March 1, 13 PM. remotely there will be a conference on Youtube ′′ Genetics Revolution - are we ready...

Cerramos una semana de acciones con un acto emblemático. A las 11 horas izaremos la bandera de la Unión Latinoamericana de...

Maine Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

We are excited to announce that we will be hosting our first ever Virtual Conference, running from 1st - 6th March...

The patient organization “95” Rare Alliance Greece has among its objectives the Education and Empowerment of patients with Rare Diseases,...

Giornata Nazionale IICB – 1 MARZO 2021 Il racconto della Comunità di Un Filo per la Vita Onlus fatto attraverso...

In occasione della prossima Giornata Nazionale dell’IICB Un Filo per la Vita Onlus desidera realizzare una grande campagna dedicata al...

L'obiettivo  di Rarity on Wheels "Rarità su ruote" promossa da ll' Associazione Nazionale Un Filo per la Vita si svilupperà attraverso...

Pak-IMD Net: Patient Support Group Meeting: Living Better with IMD’s in PakistanEngaging patients & families of patients with inherited metabolic...

Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway...

OUR VOICE for RARE digital 2021 This fundraising event aims at informing our population about rare diseases, and at raising money for research.Our...

Campagna “Accendiamo le luci sulle malattie rare”: i monumenti più rappresentativi di diverse città italiane si illumineranno con i colori...

Il 28 febbraio 2021 avrà luogo l'evento PADOVA SI ILLUMINA. In tale occasione, dalle 18.30 verrà illuminato il Palazzo della Ragione della città di...

Acıbadem Mehmet Ali Aydınlar Üniversitesi ACURARE-Rare Diseases and Orphan Drugs Application and Research CenterRare Immune System Diseases During The Pandemic...

PMSF Australia is hosting its 8th High Tea event. This year we have decided to go GLOBAL. Join from any...

This event took place on Feb 28 and lead by Pro. Sun Yun, director of the Department of Reproductive Medicine of Renji Hospital.  The...

O Instituto Nacional de Saúde Doutor Ricardo Jorge, em colaboração com a DGS, a Comissão Interministerial de Coordenação da Estratégia...

“Baking is done out of love, to share with family and friends, to see them smile.”JOIN US! Let’s make chocolate...

The following locations/landmarks in Queensland will be illuminated to mark 2021 Rare Disease Day:- Mackay Fountain- Story Bridge - Victoria Bridge - Reddacliff...

Social Fund "Omirge sen" (Believe  in Life) in Kazakhstan organized today (28 Febr.)  the online Conference dedicated to  the Rare  Desiese Day ...

Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make the...

The KLS Community has come together to spread awareness of Kleine-Levin Syndrome and Rare Disease. All members of the community were...

"Rare is sometimes painful, often unseen.Always present.Rare is brave, determined, finds joy in the little things"In our event, we focus...

يوم توعوي، عبر منصة الزوم، موجه للجمهور، يهدف الى زيادة وعي المجتمع الأمراض النادرة، التي ليست نادرة في السعودية، وكيفية...

Get to know about rare disease from speakers who will bring their unique perspective. Dr Neelam Ismail, a family medicine resident...

On Rare Disease Day we will make the exciting announcement of our SMA research project!We hope to help to increase...

For the first time, we are going to do a charity event for Rare Disease Day in the online virtual...

Presenting a unique run/walk/bicycle ride for 7000 meters at 7:00AM on 28 February 2021Your Venue, Your Choice! Run on your own,...

The National Conference on Rare Diseases and Digital Health on 28.02.2021 had over 300 participants. Mr. Cristian Bușoi, Member of the European Parliament presented EU4Health. A...

On February 28, 2021 the Center for Rare Diseases Research Center of the School of Medicine, New Vision University organized...

l CIBERER organiza la décima edición de la Jornada Investigar es Avanzar con motivo del Día Mundial de las Enfermedades Raras el...

Il Forum Toscano delle Associazioni per le Malattie Rare celebra la RDD 2021 con la campagna di sensibilizzazione "LA TOSCANA...

Evento solidario para dar a connocer y visualizar las colagenopatias tipo II.Este acto se hara el día 28 de Febrero,...

Pendant la journée du 28 février, nous aurons exceptionnellement ce dimanche là ,une thématique sur l 'Ictère (jaunisse ) et...

- le Chu d'Amiens s'associe à la filière AnDDI Rares et propose un  ciné débat gratuit en ligne,- l'hôtel de ville...

Representantes de la Comunidad de ER en nuestra Ciudad junto a autoridades locales participarán del Izamiento de Nuestra Enseña Patria...

10 guide turistiche per 8 tour "Rari" nel centro storico di Padova.Domenica 28 febbraio dalle 14 alle 17 con partenza...

On Sunday 28 February, on the occasion of the 14th Rare Desease Day, the "Together we illuminate the rarity" event...

Lanzamiento de video poco frecuente “Mi Bandera 2021” con canción de bandera cantada por Attaque77 y otros artistas.

Il gruppo dei volontari del Coordinamento Telethon della Basilicata, guidato dalla Coordinatrice regionale Eliana Clingo, ha chiesto alle amministrazioni comunali...

We will iluminate the old parliement of Andorra, with the colors that represents the rare disease. Other emblematic building will be...

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

Serán iluminados con el color violeta (referente de los colores de FADEPOF)CABA, Buenos Airess:•Palacio Lezama•Usina del Arte•Planetario•Torre Monumental•Floralis•Puente de la...

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Lançamento do 1º CURSO A DISTÂNCIA: “SINAIS DE ALERTA DE DOENÇAS E SÍNDROMES RARAS PARA EDUCAÇÃO BÁSICA E ATENÇÃO PRIMÁRIA...

China's very first official white paper on rare diseases: "Rare Diseases Diagnosis, Treatment and Security" will be published by the...

El día 01 de marzo se llevará a cabo una videoconferencia con una Dra especialista en genética, dirigida a estudiantes...

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

"Que história é que eu quero contar?" foi a pergunta que a Lia Silva colocou a si mesma acerca de como...

The following landmark in New South Wales will be illuminated to mark 2021 Rare Disease Day:- Newcastle Clock Tower Illuminations organised by Andrew...

In occasione del RARE DISEASE DAY, il coordinamento provinciale Lecce Fondazione Telethon ha deciso di aderire all’iniziativa di UNIAMO “Accendiamo...

"In the prism of rarity” will be held on Sunday 28 February at 11.30 am live on our Facebook page...

On February 28, 2021, at 13:00 EET in front of the National Palace of Culture in Sofia, Bulgaria, patients with...

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Die Coronavirus-iCovid 19 hat begonnen, auch Kinder ernsthaft zu treffen. Das Multisystem-Entzündungssyndrom (MIS-C) bei Kindern gefährdet die Gesundheit von Kindern,...

The colours and the logo of the World Rare Diseases Day will be projected from 6.00 pm to 10 pm...

Move2Advocate, Pledge2Move VIRTUAL CELEBRATION!! On Rare Disease Day, Next Sunday February 28, 2021, will you move with us?! Here's what...

La Asociación Española de Esclerodermia, Fundación Ahuce y Asociación Conciertos Solidarios organizan la IV edición de la gala MONÓLOGOS SOLIDARIOS POR EL DIA MUNDIAL DE LAS...

En février, les projecteurs se braquent sur la résilience des personnes vivant avec une maladie rare!Voilà, nous lançons la 6e...

The colours and the logo of Rare Disease Day will be projected from 6.00 pm to 10 pm on 28th February...

On the 2021 RD Day a building of the Czech Ministry of Health will lit in the colours of the RD...

Thank you councillor Emlyn Dole. Leader @CarmsCouncil for arranging County Hall #Carmarthen #Wales to be lit up to mark Rare...

We will light the top of tower 42 in rare dieseaae day colours in 28th Feb 2021!

[ENG] On the occasion of the Rare Disease Day 2021, ​Dúshlán is organizing an online event on Feb. 28h, from 11h...

We are celebrating Rare Disease Day 2021 by showcasing the rare disease community in UAE. Families, professionals and academics will share...

https://www.rarediseaseday.org/downloads

Texas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Thanks to UILDM's branch of Martina Franca and to the positive answer of the local authorities, three monuments will be enlighted...

Thanks to the work of UILDM branches (UILDM - Unione Italiana Lotta alla Distrofia Muscolare) we will have 19 monuments...

TV Tower in Tbilisi will be illuminated with colours of rare diseases in order to spread  awareness of rare diseases. 

In occasione  della “Giornata delle malattie rare – Rare Disease Day”, Arcoiris Onlus ha il piacere di invitarvi al tour virtuale della mostra  Per Gioco....

Este año en OMER hemos decidido sumarnos a las actividades del Rare Disease Day, a través de un evento dirigido a...

The following locations/landmarks in the United States will be illuminated to mark 2021 Rare Disease Day: - Niagara Falls, New York - The Helmsley...

The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day:- Paranaple Convention Centre- Launceston Town HallIllumination organised by Andrew Bannister.

In Catania Aismac photo contest the subject of de Chiari tree in Piazza Martiri della Libertà.Fotografare l'albero di Chiari.Concorso fotografico AISMAC...

We hope to see plenty of members and any others at our beach picnic at Orewa this Sunday in support...

Domenica 28 febbraio, STORIE RARE –Noi i veri protagonisti!!! | Intervista a due bambini metabolici (pubblicazione sulle pagine Social di AISMME...

On Rare Disease Day join us for a 2-hour special virtual meeting of our international Stargardt's Community, bringing together people living...

The following location in South Australia will be illuminated to mark 2021 Rare Disease Day:- Adelaide OvalIllumination organised by Andrew Bannister.

Nurture the Hope! Together to increase the awareness on SMA disease leaving no patient behind.

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en...

The following locations/landmarks in the United Kingdom will be illuminated to mark 2021 Rare Disease Day:- Bradford City Hall, Bradford- Macmillan...

The following locations/landmarks in Victoria will be illuminated to mark 2021 Rare Disease Day:- AAMI Park Melbourne - Wodonga Water Tower - Crown...

The Charlotte and Gwenyth Gray Foundation was founded in 2015 by Kristen and Gordon Gray when their oldest daughter Charlotte was diagnosed...

The Joint Organization of the Disabled and Young Disabled People invites you to a webinar on Rare Disease Day 2021....

What does RARE mean to me? - HWTH Health Awareness Campaign

The following locations/landmarks in Perth will be illuminated to mark 2021 Rare Disease Day:- Optus Stadium  - Bell Tower Perth - Fremantle...

For the first time, the iconic Werribee Mansion will be illuminated in the colours of Rare Disease Day from 7.30pm...

Webinário Doenças Raras no Brasil Avanços e Desafios - Domingo 28/02 às 10h pelo canal do YouTube da FEDRANN (https://www.youtube.com/channel/UCAGDOBFEBSTX-NmEmo9RWyA)Abertura...

Australian Sickle Cell Advocacy Inc will be hosting a panel of discussion with 5 people living with rare diseases in...

We would like to inform you that Farmaceutski fakultet, Novi Sad will mark the International Day of Rare Diseases in...

The Swedish Association of Chronic Oedema, member organization of EURORDIS, has decided to organize a Webinar on Dercum´s disease with...

Our Rare AHC Event:A Virtual "Rare Coffee & Cake" for International Rare Disease Day 2021 and collecting funds for Alternating Hemiplegia of...

El próximo domingo 28 de febrero, pacientes, familias y asociaciones que conformamos la Red EPOF Santa Fe estaremos visibilizando enfermedades...

February 28, 2021 is Rare Disease Day.My son, Archie, was diagnosed at birth via the newborn screening test with a...

Virtual tour of the exhibition "Per Gioco". The collection of antique toys of the Capitoline Superintendence..The exhibition focuses on the...

The Allliance Algérienne contre les Maladies Rares will organise an online forum on Rare Diseases. More information to come!

When the disease is rare, it is hard to find others in the same situation. For Rare Disease Day 2021,...

To coincide with Rare Disease Day on 28th February, Andrew Roach Talent and Ingenious Fools are pleased to announce that...

En este día tan especial se iluminarán en la ciudad de Rosario diferentes edificios gubernamentales, entre ellos el PALACIO VASALLO,...

1. Explanation of the purpose of the project Guest; Yukiko Nishimura (RDD Japan chief secretariat)2. (Discussion) First, let's learn about...

The Adenomyosis Advice Association is working hard on this year's Rare Disease Day 2021 campaign and in this our 10th...

Join us on Sunday 28th of February as we celebrate our beneficiaries and every 1 in 2000 citizens who go...

Social media campaign held by RARE Diseases Lesotho Association. Throughout Sunday we will be posting videos of what makes us...

The Illness Challenge Foundation (ICF) plans to continue raising public awareness on rare diseases through public events and media coverage....

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Virtual Musical RariTea – 28th February 2021 @3pm RariTea is the NIRDP campaign to encourage people to get together and...

The celebration of 11th Rare Disease Day Thailand is scheduled on Sunday, 28th February 2021, from 8:30 a.m.-4 p.m. at...

For more information: [email protected] prévoyons un après-midi sensibilisation grand-public, avec divers animations, entre 14h00 et 17h00 :- Atelier sur la gestion...

Here we are again  continuously  for  the sixth year with all the challenge either in the hospital itself or the...

Rare Diseases: Beyond Covid 19Online event / Sunday / 28.2.21 / 19:30Registration

Illuminations for Rare Disease Day 2021 in Poland:- Neptun's Fountain, Gdansk | LINK- Stadion Gdańsk, Gdańsk | LINK- Dyrekcja Building of the...

 Hong Kong will host a round table on RD Drug Policy on 28 Feb. Academia, health economist ,Sociologist and pharma...

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the...

2/28/21 is #RareDiseaseDay2021 around the world  I partnered with SkyView Atlanta this year to host a family outing for our special...

We celebrate the Rare Disease Day (Día Mundial de las Enfermedades raras) including doctors of every department, nurses, social workers, lab...

Rare Diseases Montenegro are pleased to invite you to the online conference that will be organized on Rare Disease Day,...

Each bone tells a story. Each story is a bridge between past, present and future.Watch these short videos to: 1. Know...

By using the Rare Disease Day colours to light up Technopolis (Gazi), an industrial museum and a major cultural venue...

Program of RDD Tokyo (Feb. 28, 13pm-19pm (JST)) 13:00 Opening performance / Ayako Ozawa (Singing and storytelling by people with...

Held "online-live"  Dialogue with patient families (By invitation only)

Now that it is difficult to get together at the Corona disaster, we will collect your voices and create a...

Online streaming of mini-concerts and greeting messages from concerned parties!

Online-social small event

11:00 - 12:30 Talk show-1  Let's become a disaster preparedness person" - Mr. Toru Terukina12:30 - 13:00 Break (RDD Japan...

Medical lecture on  intractable neurological diseasesLecturer: Shinno Clinic Dr. Susumu Kamino, DirectorLecture title: "Let's learn about intractable neurological diseases!"1:30 p.m....

Poster ExhibitionPoster exhibition by member organizations of the Kagoshima NANBYO Support NetworkIntroduction of the 10th anniversary of the Kagoshima NANBYO...

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.

Over 300 million people are living with a rare disease worldwide. Rare diseases are currently affecting 3.5% – 5.9% of...

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.  

Recordatorio durante todo el día de que la Distonia es una Enfermedad Rara pero no por ello es invisible, requiriendo...

La Cité des sciences à Tunis, célèbre le dimanche 28 février 2021 la journée internationale des maladies rares, et ceci...

RARE CANCER – how rare is rare?’ 11am-1pm GMT  Sunday 28th February 2021Join our live audience for a special podcast...

As we cannot meet for our traditional RARE RUN BOLOGNA we orginized a Special Edition: the VIRTUAL RARE RUN BOLOGNA 

Rare diseases are not as uncommon as they seem. More than 300 million people are affected by a rare disease,...

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

The following locations/landmarks in New Zealand will be illuminated to mark 2021 Rare Disease Day:- Oamaru Opera House, New Zealand- Michael...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Church of St. John the Evangelist in the Municipality of Logatec, in Slovenia, was lit up to raise awareness of...

illumination of the maqam echahid monument during the night of February 28 with the logo of the RDD2021

The Chinese Organization for Rare Diseases (CORD) plans three simultaneous charity sales in Beijing, Hunan and Hangzhou. The proceeds will...

The purpose of the event is to enhance awareness about the centers of excellence for rare endocrine diseases in Greece there...

The following locations/landmarks in Canada will be illuminated to mark 2021 Rare Disease Day:- CN Tower in Toronto, Canada- Calgary Tower, Canada-...

Northern Ireland Rare Disease Partnership (NIRDP) are really excited to share that the Iconic Belfast City Hall, in Northern Ireland will...

Being mind-full. Wellness for people living with a Rare DiseaseWe welcome everyone to join us online to iscuss mental health...

This year the Lithuanian Rare Diseases Community has joined the global chain of lights. Lithuanian Child Neurology Association and Hospital...

Under the slogan: "MAKE YOURSELF VISIBLE", and within the framework of the International Campaign for Dissemination and Awareness for Rare...

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

1 abanderado niño y 1 adulto con EPOF serán los abanderados de las EPOF en el arrío de la Bandera...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

O Tito tem a doença rara Neurofibromatose Tipo 1 (NF1), e é a personagem principal deste livro infantil. Nesta história,...

We are really pleased to announce our virtual Rare Disease Day event. We are holding a virtual Afternoon Tea with...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Thanks to the active management of Mujer México (saludmaterna.org), the deputies will once again illuminate the frontispiece of the beautiful...

Koronavirüs hastaliginin çocukları da ciddi şekilde etkilemeye başladı.Çocuklarda Multisystem Inflammatory Syndrome (MIS-C), COVID-19 ile enfekte kullanım sağlığını riske atıyor.Pandeminin başladığı...

The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day:- Telstra TowerIllumination organised by Andrew Bannister.

The following locations/landmarks in Estonia will be illuminated to mark 2021 Rare Disease Day:- TV Tower EstoniaDisclaimer: Illuminations organised by Andrew Bannister...

Together with the Vita Club Salzburg we are going into the second round again this year, we will show you...

Kurdistan rare disease center in cooperation with Sanofi Genzyme recognized international rare disease day by conducting a lecture about Gaucher disease...

On February 28, 4 p.m., a free yoga session will be available on Elena Boriani's youtube channel and will remain...

Foro realizado desde hace 4 años con la intención de ayudar a visibilizar a las enfermedades poco frecuentes en el...

The FMDSA would like to bring awareness to #RareDiseaseDay by inviting you to submit a picture wearing your favorite zebra print...

An all day online event with activites for children and parents. -story telling. 5 actors are reading the stories in an...

Con motivo del día mundial de las enfermedades raras, vamos a preparar desde FEDER una serie de acciones online en...

Nuestro comité Científico representado por dos grandes referentes de nuestro País,Dr. Victor Raggio               ...

The Association of Rare Disease Patients registered in Bosnia and Herzegovina is organizing an online event to mark the Rare...

On the occasion of celebrating the Day of Rare Diseases in 2021, NORBS is organizing an educational program for students of...

Lighting from 5pm to midnight on the Terrassa City Council in the colors green-pink-blue for the day of minority diseases. Highlighted...

Infinity Family Car ClubNitroxx ArubaTeam X-pa Aruba Family and Friends did organized a drive by on 28 febr 2021.Media was there...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Os animamos a grabar un vídeo con nuestro lema: LA INVESTIGACIÓN, NUESTRO CAMINO A LA ESPERANZA. Podéis hacérnoslo llegar por...

La Fondation Maladies Rares vous invite à participer à la Journée internationale des maladies rares pour soutenir les 3 millions de personnes...

Delaware Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Bijnierpatienten in Nederland en Europa ervaren vaak problemen, bij het tijdig en juist diagnositiceren van hun aandoeningen/ziekten.Door het platform: ENDO-ERN...

La Torre dell'Orologio della Città Metropolitana di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare la...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

During the last 13 years, we have with great success commemorated Rare Disease Day in Colombia, in a public event...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Il 28 Febbraio 2021 il Comune di Jesolo (VE) illuminerà la biblioteca comunale in Piazzetta Jesolo e la scritta "JESOLO" in Piazza...

10 Jahre Kongenitaler Hyperinsulinismus e.V.Zum Tag der Seltenen Erkrankung begehen wir den 10. Jahrestag unserer Vereinsgründung.Mit unseren Mitgliedern möchten wir...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2 

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

A Rare Disease and Mental Health Chat with David Ross, Chelsea Streit and special guest The Mata sisters from @Looms4LupusThis...

On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech...

New Center for Research and Treatment of Pulmonary Rare Diseases. Cooperation between University Hospital of Ludwig-Maximilians-University Munich and Asklepios Fachkliniken...

La Fontana monumentale di Piazza A. Moro di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Il 28 Febbraio 2021 il Comune di San Donà di Piave (VE) illuminerà il Municipio in Piazza Indipendenza con i...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

l'Alliance Algerienne contre les Maladies Rares participe au  Forum virtuelle Magrebin des maladies rares hebergé par l'Alliance des Maladies raresau Maroc(AMRM) et...

Dit jaar hebben we aandacht voor erfelijke (zeldzame hematologische) kankers. Een geneticus vertelt wat het is en een clinicus vertelt...

Pro Rare Austria - Rare Disease DayDer Pro Rare Austria Tag der seltenen Erkrankungen 

El día 27/2 se realizará un webinar destinado a estudiantes de odontología y a odontólogos para que conozcas aspecos etiológicos,...

Campaign "Let's turn on the lights on rare diseases": the most representative monuments of various Italian cities will light up...

Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

We are organizing the Rare Day for the second time in Mali. This event will gather scientists, patients and officials...

We shall be holding a virtual event on 27th February, 2021 at 10.00amTheme: Rare in a Covid WorldKindly check out...

O webinário #SomosTodosRaros busca levar identificação com a causa para diferentes públicos, pois somos todos ÚNICOS em nossa individualidade e podemos...

Ziua Internațională a Bolilor Rare 2021 Anul 2021 marchează cel de-al 14-a an în care comunitatea internațională a bolilor rare...

Sabato 27 febbraio, dalle ore 18 alle 19 | STORIE RARE – Facciamo che “io ero”…Storie per stare insieme | Letture per...

Rare Disease Day 2021.On February 27, 2021, at the Colussi SNC Pharmacy in Martignacco (UD), there will be an information...

Oman Society for Genetic Medicine is organizing a virtual  awareness event for public on 27th February 2021.

Apresentaremos um vídeo com as pessoas integrantes do grupo POLICONDRITE AMIGOS - REDE BRASILEIRA PELA POLICONDRITE RECIDIVANTE, conscientizando sobre o...

Rare Disease Day Bay Area is 2-day Livestream event on Twitch, featuring a Raid Train on Saturday and Sunday with over...

Due to the covid 19 pandemic we are organizing two virtual conferences from February 27 to 28, 2021 from 8:30...

Online social events Organizing coloring book projects

We are going to have 2 event for Rare Disease Day 2021  1. “Illuminates Building For Indonesia’s Rare Disease Day...

The green colour and the logo of the World Rare Diseases Day will be projected from 6.00 pm on 27th...

Sehr geehrte Damen und Herren, sehr geehrte Selbsthilfeaktive,                sehr geehrte Interessierte,   gerne möchte ich Sie heute nochmals auf...

La tienda Trek - Bike  junto a varios patrocinadores estan invitando a participar en un COLAZO ENTRE AMIGOS, de 82...

12:30 Opening / Watching RDD Japan video13:00 Opening remarks13:05 Self-introduction of participants13：30 Break / Watching RDD Japan video13：40 Let's learn...

We helped in organization of a meeting with experts in rare disease (doctors, Ministry of Health, researchers, and psychologist)Around 16 organizations...

For the celebration of the fourteenth International Rare Disease Day that  is held every year the 28th of February, students...

Tisztelettel és szeretettel meghívjuk a Ritka Betegségek Világnapja alkalmából szervezett programjainkra, melyeket a RIROSZ, a Ritka és Veleszületett Rendellenességgel Élők...

Dear colleagues, ladies and gentlemen, The Center for Rare Diseases (ZSE) of the Ulm University Hospital would like to cordially...

Harvinaisten ilta on verkossa toteutettava koko illan ohjelma!  Harvinaisten illan aikana kuulemme mm. opiskelusta harvinaisen sairauden kanssa, minkälaista on kun diagnoosin...

Webinar concerning Rare DiseasesMetabolic diseases are rare diseases.Implementation of the Belgian Rare Disease Plan, updateRegister Now!

Diretta Facebook ore 16 con il dr. Squitieri che risponderà alle domande dei giovani sulla malattia di Huntington e sugli...

ENG: Our event's mission is to gather Polish medical students and people living with rare diseases (as well as their...

V Fórum internacional de Doenças Raras - Uberlandia  Brasil - dia 27/02/2021.  ingressos gratuitos em https://www.sympla.com.br/v-forum-internacional-de-doencas-raras-de-uberlandia__1107076participem!!

La nostra organizzazione di volontariato unitamente all'Associazione Consumatori e Cittadini Italiani organizza un webinar sui diritti di welfare di cui...

we are happy to announce that on February 27 and 28 we will hold the so-expected Bilateral Seminar with the...

In occasione della giornata Mondiale delle Malattie Rare il giorno 27 febbraio l'Associazione Nazionale Sindrome di NOONAN e RASopatie ODV,...

Ladies and gentlemen,on behalf of the Organizers, I have the pleasure to invite you to participate in the International Symposium...

İzmir Kent Konseyi'nin Değerli Paydaşları ve İzmir Kamuoyuna  28 Şubat Dünya Nadir Hastalıklar Farkındalık Günü etkinlikleri çerçevesinde,  İzmir Kent Konseyi...

Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare...

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...

Para el Día Mundial de las EPOF lanzaremos un video junto al cantante Nahuel Penissi. La canción elegida es Avanzar. El...

Mi autoestima y resiliencia: Reconozco y acepto mi lugar en el mundo Jóvenes y adultos. 

Tarih:27 şubatsaat:21:00yer;zoomFebruary 28 Rare diseases event Başkent University Social Work Department lecturer, one of the authors of Rare Diseases in...

  Three reports with three different focuses of rare disease in China will be released on RDD 2021 by the...

On 27 February 2021, the Cyprus Alliance for Rare Disorders in collaboration with the Cyprus Medical Association will be hosting...

Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...

JOURNEE MONDIALE DES MALADIES RARES: 28 FEVRIER 2021Organisée par la Société Maliennede Génétique Humaine (SMGH)27 Février 2021,Grande Salle de réunion...

Форум проводится по инициативе Всероссийского союза пациентов и Всероссийского общества орфанных заболеваний. При поддержке Министерства здравоохранения Российской Федерации и Министерства...

Estimados amigos y compañeros:  Como coordinadores del área IBIMA-RARE nos corresponde el honor y tenemos el placer de daros la...

Już po raz czwarty Instytut Biochemii i Biofizyki PAN organizuje sympozjum w Międzynarodowym Dniu Chorób Rzadkich. Tym razem wydarzenie „Dzień...

A national conference on Rare Disease Day is traditional scientific event already in Moldova for the end of February, organized...

Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

The 26th of February the Rare Disease Foundation of Iran will celebrate Rare Disease Day with an online event. More information...

Rare Fair 2021 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and...

We had the opportunuty to gather around 15 rare disease organization at the government of North Macedonia to have a...

Tag der Seltenen Erkrankungen in Mainz

Le 26 février, à l'occasion de la Journée des Maladies Rares 2021 (28/02/21), le Centre des Maladies Rares du CHU...

Alabama Rare, Children's of Alabama, The University of Alabama at Birmingham, and the Alabama Genomic Health Initiative will host the...

Inter-Institutional virtual event organized by civil associations of patients and their families with the support of the pharmaceutical industry that...

Online race, 5K and 10K for men and women, for raising awareness and funds for ECHS1 Deficiency and Mitochondrial Disease.

Tennessee Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Le Centre Hospitalier Cayenne organisera la Journée Internationale des maladies rares en Guyanne le 26 Février entre 10:00h et 12:00h. Affiche

The UAE Rare Disease Society celebrates Rare disease day 2021 with a variety of events.1. An online webinar on 24.02.2021 directed...

A l'occasion de la journée mondiale des maladies rares, plusieurs monuments se pareront en région des couleurs de la journée...

Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will show support for Rare Disease...

La Asociación Española de Paraparesia Espástica Familiar – AEPEF, participa en el Día Mundial de las enfermedades raras de una...

Dia Mundias das Doenças Raras 2021A associação de Paraparesias Espaastica Correlatas do Brasil ira promover nos dia 26 a 28...

On 26.02.2021, the Medical University of Timisoara has illuminated in the colours of RDD as a solidarity event of patients with...

This year the Genetic Support Network of Victoria (GSNV),  Australia will hold a virtual event to raise awareness amongst the general...

Programa do Segundo Seminário do Conselho Municipal de Saúde/Secretaria Municipal de Saúde – Cuidando das Pessoas com doenças Raras e...

 https://meet.google.com/vgb-vhvc-jyu

Rare Disease Day In IranFriday 26th Feb., 2021RARE IS STRONG! RARE IS PROUD!Rare Diseases Foundation of Iran (RADOIR) is participating with a...

Join the GSNV in celebration of Rare Disease Day with a virtual journey showing the power of alliances that build...

Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

A special issue of the bulletin which we dedicate to describing what entails such holistic care for a person with...

The last day of February is recognized worldwide as Rare Disease Day.  We at SickKids, are proud to join the many...

On Friday 26 February 2021 we will run a virtual event directed to secondary school years 10, 11 and 12....

La Sociedad Científica de Estudiantes de Medicina de la Universidad Veracruzana en Minatitlán, a través de los Comités Permanentes de...

Firefly Fund is challenging you to Run for Rare starting on World Rare Disease Day, Feb. 28. Over the next month, we...

The press conference - Equitable access for care for people living with rare diseases through the National Plan for Rare...

The president of FEMEXER will be a speaker at this important forum. El presidente de FEMEXER, David Peña, será ponente...

Rare disease day in IcelandTo honor rare disease patients all over the world Perlan Museum together with Gódvild will light...

Welcome to the fourth SEE RARE RUN VIRTUAL RACE! This year, we have two distance options: 5K or 5 miler! SEE RARE RUN...

2/26/2021 From 12:00 to 13:30 there will be an expert discussion via zoom “Progress of Rare Diseases Treatment and Upcoming Improvements” organised...

Georgia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

PROGRAMME OF THE EVENT On February 26, 2021, together with the movement of the orphan community "Orphan Bell" we will hold...

El Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (Creer), dependiente del Imserso, organiza...

Campaña de información a la ciudadanía a través de las redes sociales, de entrevistas de radio ,correos electrónicos y diarios digitales...

ILLUMINIAMO LA RARITA’L’Associazione Amaram Aps di Altamura, grazie alla collaborazione dei suoi referenti di zona e dei suoi soci attivi...

Join us for a Rare Disease Day WebinarThe Oxford-Harrington Rare Disease Centre (OHC) is pleased to present a guest lecture...

Join us for a Rare Disease Day WebinarFriday, February 2610 -11 am ET 3 - 4 pm GMTThe Oxford-Harrington Rare...

Join Share4Rare’s webinar with live Q&As with renowned experts in the field of psychology and neuromuscular conditions. During an hour-long...

The Mission San Jose High School Students For Rare Diseases Club is kick-starting the year with a Rare Disease Day...

We will have an online tea party using Zoom. Please bring your own tea and favorite snacks by your computer...

Looking to raise awareness and share key knowledge on rare diseases, the Cyprus Alliance for Rare Disorders is organising an...

This Round Table is currently being prepared and will be organized by a newspaper Zdravotnický deník (specializes in healthcare issues)...

For RDD we planned an event for the 3rd postal stamp for rare diseases.  The first was for children with rare...

Florida Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...

South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Venerdì 26 febbraio, dalle ore 17.30 alle 19 | Non solo SNE: l’importanza del prelievo su cartoncino a domicilio per il...

Fortune Favours presents The Rare Beer Challenge; a fundraiser for Rare Disorders NZ. We've asked Wellington breweries to use weird...

Introduction of activities of the Hokkaido NANBYO regional center  RDD2021 panel display　 Others

International Rare Disease Day is an annual celebration' day held each year on the last day of February. This year in Tunisia...

(1) Screening of contents provided by RDD Japan (2) Online lecture (3) Screening of a video introducing our rehabilitation center...

Gran congreso Internacional sobre Enfermedades raras o poco frecuentes, en donde participarán. Organizaciones, médicos y pacientes en el marco de...

Le vendredi 26 février de 12h00 à 13h30 (CET), la nouvelle plateforme de prise en charge des maladies rares du...

Il Convegno è rivolto agli operatori del SSN ai diversi livelli, ricercatori, referenti delle associazioni e a tutti gli stakeholder...

İzmir ili Dijital billboard ve toplu taşıma araçlarında videomuz yayınlanacak.

Wisconsin Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

La historia de Piper, un pajarito valiente. Descubriendo el miedo y cómo ser fuertes. 

Rare Diseases Awareness Day for Health Professionals This event was organised by members of Oman Society of Genetic Medicine mainly to...

Nadir Çağrı Kampanyası Türkiye’de bilinmeyen ve fark edilmeyen nadir yaşamlara dikkat çekmek, toplumda empati ve bilinç yaratmak amacıyla, “Sağlıklı birey,...

WALK FOR RARE is a virtual walk to raise awareness about rare diseases in Portugal. Join us and show how rare...

This is the 4th Rare Disease Day to be observed in Ghana being organized by Rare Disease Ghana Initiative. This...

Bugün, Nadir Hastalıklar Günü’ne dikkat çekmek üzere, Nadir Hastalıklar Ağı olarak çevrimiçi bir basın toplantısı düzenledik. Kurulduğumuz günden bugüne dek...

Part I: Actual Balancing of Treatment and Work in Various Diseases (Roundtable Discussion)Part 2: Information exchange meetings by disease (breakout...

New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Rare Disease Day at Iowa State University is a completely virtual event hosted on Zoom by the ISU's Rare Disease...

Cómo ser un buen cuidador, pero cuidándome.  Evento dirigido a padres y madres. 

We are inviting everyone to a webinar to be held on 25 February 2021 (Thursday, 4:00 PM) in observance of...

Il 28 febbraio 2021 si celebrerà l’annuale giornata mondiale sulle Malattie Rare. L’Azienda Ospedale Università di Padova [AOUP] è la...

Arizona Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Online. Public registration coming soon!For more information please see the Black Pearl Awards website or email [email protected]

COLOUR FLAIR FOR RARERare Disease Day 2021Delighted to share our #RareDiseaseDay Colouring Challenge to raise awareness. Its a very simple...

Actual discussion: Santa Survila, Ivars Balodis interviewing Baiba Ziemele, head of Latvian Alliance of Rare Diseases. Available support for people...

Massachusetts Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Cumbre Nacional de Enfermedades RarasEs hora de construir oportunidades por un mundo sin barreras.

Colorado Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

On 24 February 2021, the President of the Cyprus Alliance for Rare Disorders, Mr Charalambos Papadopoulos, will be giving a livestreamed...

"Thinking about Coexistence Week" Paintings, photographs, paper cutouts, picture postcards, calligraphy, calligraphy, haiga, stained glass, pottery, puzzles, floral arrangements, kumihimo,...

IV edizone di "Rare Abilità", adesione alla campagna Nazionale con l' illuminazione di Palazzo di Città (Fasano -BR) e momenti...

We are showing a new documentary about Rare in Iceland and  how the system is working ore not working in the...

Indiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

El Nano Rare Diseases Day es un evento organizado en el marco del Día Mundial de las Enfermedades Minoritarias donde se darán a...

Tercer simposio, que se desarrolla con participación de personas con enfermedades raras, familiares, red comunitaria y profesionales de salud e...

#AnkaraKentKonseyi Halk Sağlığı Çalışma Grubu tarafından organize edilen "Ankara Kent ve Sağlık Buluşmaları" Nadir Hastalıklar başlığı altında 24 Şubat Çarşamba günü...

Virtual Parliamentary EventRare Disease Day is an opportunity for the rare community to come together to raise awareness of the...

GeneRare:Getting to Know Genetic and Rare DiseasesMeetings on Rare Diseases and new genomics addressed to health promotion, prevention and responsible...

Tygerberg Hospital and Stellenbosch University will celebrate Rare Disease Day on 24 February 2021 and with #28FactsFor28Days on social media.

PERCORSI RARI INSIEMEMERCOLEDI’ 24 FEBBRAIO ORE 16-18 su piattaforma ZoomLe associazioni Amaram aps, Assieme onlus, Aid Kartagener onlus, Vite da...

New Hampshire Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Kansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

The NYSCF Research Institute's Live Conversations with ExpertsUnlocking Rare Disease Treatments with Stem CellsFebruary 24, 2021 at 5:00 PM ETRegister...

Rare diseases are characterized by a large number of broad and diverse disorders and symptoms, majority having identified genetic origin....

EN EL MARCO DE LA CONMEMORACIÓN DEL DÍA MUNDIAL Y NACIONAL DE LAS ENFERMEDADES RARAS SE ILUMINARÁN EL FRONTISPICIO DE...

Nevada Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

O Observatório de Doenças Raras (ODR) da Universidade de Brasília realiza, desde 2012, um evento alusivo ao Dia Mundial das...

In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce that SMA Malaysia will...

The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to attend the webinar  on "Improving...

West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

The excitement is continued! In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce...

webinar: https://stream.lifesizecloud.com/extension/7692222/50fd52a8-e9c6-4268-ad33-1fcd476f6a75 La celebrazione della Giornata mondiale delle Malattie Rare assume quest’anno, anch’esso unico e raro, una connotazione ancora più...

Cuidarse por fuera, pero también ser “guapos” por dentro, siendo solidarios. Es el objetivo de la campaña #GuaposPorDentroYPorFuera que lanzamos desde Aefat,...

The future of rare diseases starts today - Recommendations from the Rare 2030 Foresight StudyThis event will be the culmination...

North Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

Since 2016 every year in February the Department of Skin and Venereal Diseases of the Lithuanian University of Health Sciences...

Il 23 febbraio 2021 dalle ore 10 alle ore 13 avrà luogo online l’evento Medicina e arte. I colori della...

The students of the 2nd Primary School Čakovec (II. osnovna škola Čakovec) through the eTwinning project Teachers for Europe: Democratic...

Khim Lamichhane, a patient advocate from Nepal, has organised several events to raise awareness for people living with a Rare...

Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening...

XIV GIORNATA MONDIALE MALATTIE RARE "AIUOLE DELLA RARITÀ"LUNEDÌ ’ 22 FEBBRAIO ORE 10. 00 Ospedale Pediatrico Giovanni XXIII di Bari...

L’Orchestra Asclepio, composta da medici, studenti di medicina e operatori sanitari, rende omaggio ad uno dei luoghi più significativi della...

Khyber Pakhtunkhwa province has 36 million population. Most of the families prefer to marry within their closer relatives which has...

Social media campaign with video about people with rare diseases: we live with same dreams, needs, emotions as everyone else....

Liebe Patientinnen und Patienten, liebe Angehörige und Interessierte,anlässlich des Welt ­Enzephalitis ­Tages am 22. Februar 2021 laden wir Sie herzlich...

Light it up for Rare Diseases!  The National Alliance for Rare Diseases Support - Malta in collaboration with the Mdina...

Young researchers will present the equipment acquired with FEDER funds and its applicability in their research on Rare Diseases.+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++En esta...

With the slogan "I am rare alone, together we are strong", we invite all schools on this day to join us in...

This year campaign moved in social media for continuing our activities initiated in 2013 and will focus on:*Press Releases in...

Exhibition at the following facilities. 1) Niigata Prefectural LibraryFebruary 25 - March 7, 2021 2) Honport Niigata City Library March 4 - April...

This year, an online event in honor of the rare is dedicated to highlighting the importance of networking for medical...

Asociación Mexicana de Amigos Metabólicos, AC, se suma a la celebración de los “50 años del Instituto Nacional de Pediatría”...

Due to the COVID-19 pandemic, gathering events will not be possible in 2021. Thus, the rare disease community has decided...

We are interviewing our parents of children with rare diseases to bring awareness in our community. 

Visibilizar, concientizar y difundir información acerca de las enfermedades raras o poco frecuentes y la salud auditiva en México, principales...

Como cada año, los alumnos de la Facultad de Medicina de la Universidad Autónoma de Guadalajara (UAG), en colaboración con...

https://youtu.be/jWhpqb1PnhUACCENSIONE DELL’ARENA DI VERONA IN OCCASIONE DELLA GIORNATA MONDIALE DELLE MALATTIE RARE - In occasione della giornata mondiale delle malattie rare che...

This February we're flipping the script and encouraging South Africans to share their rare stories in an effort to stimulate a...

Gaucher disease is a little known rare genetic disease. When the diagnosis is early and the treatment begins in time, the quality...

In the Philippines, National Rare Disease Week, which is held every last week of February, places the concerns of the...

On the occasion of the rare diseases day, Dravet Italia Onlus Is promoting a campaign aimed at raising awareness on...

Online. This is a closed event for the accepted applicants from the Council of National Alliance members.For more information please...

Due to the pandemic, public authorities and other known persons has send a litle video explaining what is a rare...

Sheffield Autism Research Lab (ShARL) will be publishing a Rare Disease Day blog series and informative videos about our ongoing...

We will be sharing interviews with parents abotu the impact of have SCN2A and why it needs further funding and...

If you still haven't heard of Rare Diseases, this is your chance to get to know better. The untold and...

On World Rare Disease Day, we will post stories and videos from CdLS families. It will be a special day...

The Georgian Foundation for Genetic and Rare Diseases (GeRaD) conducted a wide campaign in social media, TV and radio to...

#February is Rare disease month,Kush was the first child in Sydney and the first child in India Diagnosed with FoxG1...

This year's Rare Disease Day in Slovakia is about solidarity and positive examples, which our society needs so much. In...

Opening - Introduction of social issues related to rare and incurable diseases2. special lecture webinar My Face, My Style -...

Recognizing the difficulties caused by the pandemic, the social distancing and the inclusion of us parents, we organize an introductory...

Ada Apa Dengan Cinta?All individuals with rare disorders (RD): - don't have romantic feelings - don't want to have relationships...

Lecture and social event for families of patients with FAP (Familial Adenomatous Polyposis)1. Opening remarks2. Lecture by Researcher3. Information Exchange4. Learning...

Program (tentative) Introduction of RDD Study tour by high school students Exchange of opinions with high school students from other...

Este sábado, por Zoom te contaremos sobre las tarjetas de emergencia que hemos creado para Marfan, Loeys-Dietz y Ehlers-Danlos. Cómo...

Sabato 20 febbraio, dalle ore 10 alle ore 13 | Evento conclusivo “Pillole Rare in … malattie rare. Facciamo centro.”  (organizzato da...

After 1 year of the open day, now we continue of the awareness of rare disease in Rwanda.We hope to...

ALEM Association to Fight Multiple Sclerosis of Medellin Colombia commemorates the World Day of Rare Diseases with the realization of...

La Agrupación Bomberos Zapadores de la Ciudad de Rosario, Prov. de Santa Fe, realizará un triple descenso utilizando la técnica...

On the 19th of February 2021, the Lebanese Association for Neuromuscular Diseases hosted a webinar on Rare Disease Day alongside...

Panel Exhibition NANBYO ”Senryu"  exhibition　Senryu: a seventeen‐syllable poem that is often satirical of the times.

Meet rare heroes: • Anna, Alkaptonuria: "I am no longer lonely with my rarity - science has intervened!" • Ingrid,...

Os presentamos la nueva canción de Alex García a.k.a. AlexPunto0, uno de nuestros héroes que vive con una enfermedad rara.Alex nos ha...

It is a fundraising event celebrating the Rare Disease Day and part of the proceeds will be donated to the...

Los invitamos a la I Jornada de Enfermedades Raras del 18 al 20 de febrero organizado por CASPH en colaboración...

Colloquium organised by The National Alliance for Rare Diseases Support - Malta and the University of Malta Biobank entitled: “Patients...

I Conference of Rare Diseases in Panama is an academic and social event organized by CASPH from Faculty of Medicine of...

ندعوكم للمشاركة في مسابقة " نادر ونادرة للأشخاص ذوي الإعاقة" الفئات المستهدفة: فئة ذوي المهارات المتعددة- فئة ذوي المهارات اللفظية...

An accurate and early diagnosis is essential in the prognosis of rare diseases! Come to know more about genetics and...

The largest light initiative for the International Day of Rare diseases has already started in five cities of Ukraine!From yesterday...

California Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Advocating for Rare Disease Patients on Malta National Television TVAM

Webinar su zoom dalle 19 alle 20:30 sulla talassemia organizzato da FareComunicazione con il patrocinio di UNIAMO e il contributo non condizionato...

 Conferenza di lancio della Campagna “SHINE A LIGHT ON XLH” – Accendi la luce sull’XLH. Campagna per evidenziare i benefici apportati...

Press Conference to launch of the MDS research project in collaboration with Malta Association of Biomedical Science (MABS), RDM will...

Parent Project organizes every year an International Conference entirely dedicated to Duchenne and Becker muscular dystrophy. This is an event...

Presentamos los datos de impacto de la pandemia en este colectivo que suma alrededor de 3 millones de personas en...

El día 17 de Febrero estaremos en #Btvinforma en Bolivia tv a las 10 de la mañana!Los invitamos a ver el...

CALL FOR PARTNERS | NATIONAL RARE DISEASE WEEK 2021This year we're going 100% virtual! Due to the pandemic, social media...

This is a video introducing RDD Japan 2021. I made it simply with BGM only. Please use it for the...

An RDD press seminar held jointly with Pfizer Japan Inc.

[email protected] [email protected] para este Martes 16 de Febrero a las 19:00 hrs. a nuestro Tercer Conversatorio: "Hablando de Epofs: Una...

Program: Launch a live monthly support call program for patients and families: https://invinciblevision.org/calls-sign-up/ Launch the new Invincible Vision website and...

HAE Junior patient organisation joins Rare Disease Day 2021 with a digital campaign in Czech language about the rare condition Hereditary...

The third week of #S4RMonth will be dedicated to give visibility to childhood cancer and the different research projects on...

Virtual fundraising challenge in sports routine or fitness routine to fundraise for Ataxia, ataxia research and climate change. Based on...

Light it up for Rare Diseases! The National Alliance for Rare Diseases Support - Malta together with the Ministry for Gozo will...

15.02.2021 - Launching the RDD Campaign with an exhibition of art works realized by children at NoRo Center. We have attended...

In line with our 2021 Rare Disease campaign and leading up to the 28th of February!!Week 1: We will be...

RDD Japan panel exhibition

Love For Kids, Inc. is proud to honor children with rare conditions in partnership with musicians from Texas Music Network...

Rare Disease Day commemoration is jointly organized by Ali Kimara Rare Disease Foundation (AKRDF) and Tanzania Society of Human Genetics...

Display of RDD panels Display of books related to intractable diseases

Please get to know ME! Part 1: Let's learn about various diseases!Online Exchange Meeting for Families with Rare Diseases "Regional...

We will dedicate the second week of the month to the registry of patients with COVID-19 and rare diseases. The current global pandemic situation has...

There will be three public webinar series hosted by University College Dublin in collaboration with Queen's University Belfast during February to...

[email protected] [email protected] para este Jueves 11 de Febrero a las 19:00 hrs. a nuestro Segundo Conversatorio: "Hablando de Epofs: Una...

Living with PNHThe German filmmaker Julia Stromberg captured the life of a patient with the rare blood disorder PNH as...

La intendencia de Soriano intervendrá las letras corpóreas que identifican las localidades del departamento con los colores de las enfermedades...

RDD2021 panel exibition

1er Concurso de Dibujo Debra México “Mi Vida con EB” Celebrando el Día Internacional de los Padecimientos RarosMándanos un dibujo con...

Webinar su zoom dalle 19 alle 20:30 con il patrocinio di UNIAMO e il contributo non condizionato di Chiesi. 

World of Rare Disease Pop QuizFeatured on the NI Science Festival Schools & Educators ProgrammeTuesday 9 February - Thursday 11...

Todos invitados para el Martes 09 de Febrero a las 19:00 hrs. a nuestro Primer Conversatorio: "Hablando de Epofs: Una...

In conjunction with the celebration of World Rare Disease Day 2021, a talk program was held on 9 February 2021 (Tuesday)...

The Chilean Federation of Uncommon Diseases (FENPOF) comprises leaders of rare disease associations that seek to create awareness and promote...

In order to create awareness, the coming weeks we will ask our members via social media to send in pictures related...

This is an exhibition in the Virtual World Second Life. Community Virtual Library https://www.facebook.com/CommunityVirtualLibrary and Conrado F. Asenjo Library https://www.upr.edu/biblioteca-rcm  made...

Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...

Interesting activities will be held in February 2021 aimed at raising awareness of rare diseases in Georgia. CDKL5, Dravet syndrome,...

For the 8th RDD Fukuoka event, we will focus on radio broadcasting on YouTube. We will take the "change" from...

#VivirConMarfan​ La experiencia de pacientes con síndrome de Marfan y sus cuidadores.Ponentes:Giuliana Pachano. Ecuatoriana, mamá de Victoria de 9 años,...

FEBRERO MES DE LAS ENFERMEDADES RARASLa fundación AYOUDAS Panamá da inicio a sus actividades y campaña de difusión masiva para...

Iniciativa Pensemos en Cebras México Trabajando y commemorando.En commemoración del Día Mundial y Nacional de las Enfermedades Raras 2021, se...

Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...

SpectacuRARE Fest 2021 is an online event.We will talk about "Living with a Rare Disease" on zoominar, IG live, FB...

All of Greece, the whole world, is becoming one route!The race is organized by MDA Hellas (Association for the care...

PRIMER SIMPOSIO LATINOAMERICANO DE ENFERMEDADES LISOSOMALES 6 Y 13 DE FEBRERO 2021 En commemoración del Día Mundial y Nacional de las...

En conmemoración del Día Mundial y Nacional de las Enfermedades Raras, se llevará a cabo nuetsro Primer Simposio Latinoamericano Virtual...

The event is aimed at people with rare diseases, doctors, family members and friends.To participate, you just have to send...

Help Raise Awareness for RARE by carrying HOPE with you! HOPE represents the dreams and aspirations of the beneficiaries of...

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021Mujer México y la Iniciativa...

En el marco del mes internacional de las enfermedades raras y huérfanas (ERH), se ha convocado al evento internacional: Retos y oportunidades para...

We share our colours, our stories of people with the rare disease XLH (X-linked hypophosphatemia), daily on our social media...

RDD Japan 2021 panel display

Trazando lo Invisible is a non-profit organization in Mexico with the goal of raising awareness about invisible disabilities. In february,...

Родительский проект по оказанию помощи пациентам с миодистрофией Дюшенна/Беккера мы поддерживаем #RareDiseaseDay наше мероприятие «мы делимся об этом дне в...

the Alliance is organizing a promotional campaign for the RDD 2012  throughout the month of February oover medias

Press Conference to launch Rare Diseases Campaign in Malta in front of the Parliament Building in Valletta

Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's...

Announcing our “Move for A Diagnosis” event that will run throughout the month of February, until Rare Disease Day on...

On February 1, we started with the national campaign "LEARNING ABOUT RARE DISEASES".Loleska Gordana and "Life with Challenges" and Super...

To mark Rare Disease Day 2021, the European CMT Federation is hosting a global ‘Faces of CMT’ Photography competition in...

1) Exhibition at Community Book Cafe at Mitaka-City　Date: February 1 ~ February 28, 2021 2) Seminar on Telemedicine   Date: February 1 ~ February 28, 2021　Lectures by...

Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...

Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...

"Rare Cancers Awareness Month RARE CANCERS AWARENESS MONTH 2021" Program ～Rare is Many! Let's learn about rare cancer～February is Rare...

The idea is that people who are living with rare diseases get gifts, in such a way that people who don't...

https://www.instagram.com/p/CKwAxZ3Bkph/?igshid=1qbexuin9yqz0We would like to invite you to participate in the "Small, large draws" drawing contest organized by the Phelan-McDermid Association,...

RDD2021 kick-off live On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the...

MED13L is a very rare syndrome that is characterized by intellectual disability, speech and language impairment, motor developmental delay with...

II Concurso Fotografía ‘Rare Disease Day’ de Yo NemalínicaPor segundo año lanzamos nuestro #concursofotografico ‘Rare Disease Day’, sumándonos así a...

We are very honoured that the RD Day 2021 is held under the auspices of our current minister of health, professor...

Rare in the City in front of the Parliament Building under the patronage of the Hon. Speaker of the House...

We will mobilise the media as well as the social media to raise awareness about rare diseases in Mauritius.   

Per far comprendere a chi non le vive quali siano le sfide che le persone che convivono con la CMT devono...

This is our 6th year hosting the Rare Disease Day virtual race to raise awareness and to benefit the National...

DAY ON RARE DISEASES AND NEONATAL SCREEN EXTENDED FROM FEBRUARY 1-28, 2021. The Pensemos en Cebras México and Mujer México...

Lo scopo del convegno è quella di promuovere l'integrazione tra vari settori attuando sinergie nella ricerca clinica e traslazionale attraverso...

Podrà participar en el concurs qualsevol persona major de 16 anys i resident al Principat d’Andorra. No poden participar els...

The catch phrase is To the medical professionals and to all people, give ale and kindness!Project 1: #Yell to the...

Exhibition at the Department of General Studies Presentation HallActivity Report (Presentation)

SOLIDARITY MUSICAL PROJECT - THE HAKA OF MARAVALMaRaVal calls on Valais musicians and singers to show solidarity: we call on...

Rare disease patients are considered 'invisibile' due to the marginalization, discrimination and stigma still often associated with rare diseases. They live...

In conjunction with Rare Disease Day 2021, there will be a virtual run held to bring awareness of rare disease...

1) Interview with a newspaper reporter and a Parkinson's disease patient (Video letter)2) Nanbyo Book Fair at 30 libraries in Gifu Prefecture

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition.Ask your...

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition.Get your cameras out...

Stichting SpierKracht Netherlands reaches out global. Covid 19 has quarantined a lot of  families in the house. With our 2021...

ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...

ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...