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¿Lo tenemos claro?

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Quienes trabajamos en México por las personas que viven con enfermedades raras debemos tener claro cuáles son nuestros derechos.

Pledge Your Support for Rare Diseases! Rare Disease Day is held annually on the last day of February, it is...

Join our Rare Disease Day virtual panel discussion as BioNews columnists from a variety of our rare communities participate in...

"Accendiamo le luci sulle malattie rare"

28 Feb 2021 Florence, Prato, Pistoia, Massa, Italy

Campagna “Accendiamo le luci sulle malattie rare”: i monumenti più rappresentativi di diverse città italiane si illumineranno con i colori...

Los invitamos al III Foro Internacional de Enfermedades Raras Día:           28 febrero 2023 Hora: de  9:00 am...

"May I please be misunderstood" Art Exhibit

28 Feb 2022 Johannesburg , South Africa

An exhibition focused on using Art Therapy as a way of accepting or being affected by a rare disease. The...

In the run-up of Rare Disease Day, Chan Zuckerberg Initiative presents: No Ordinary Campaign at the Presidio Theatre in San...

On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...

Webinar su zoom dalle 19 alle 20:30 sulla talassemia organizzato da FareComunicazione con il patrocinio di UNIAMO e il contributo non condizionato...

Sabato 20 febbraio, dalle ore 10 alle ore 13 | Evento conclusivo “Pillole Rare in … malattie rare. Facciamo centro.”  (organizzato da...

Webinar su zoom dalle 19 alle 20:30 con il patrocinio di UNIAMO e il contributo non condizionato di Chiesi. 

To mark Rare Disease Day today, we are pleased to release the now 10th episode of our podcast series, “Rare Diseases and...

On February 28, at 4:00 p.m., we will hold a webinar “Rare diseases in the practice of family doctors: what...

"Rare Music 4 Rare Diseases" Concert

24 Feb 2023 Hesperange, Luxembourg

ALAN and the council of Hesperange invite to the concert “Rare Music 4 Rare Diseases”, on the 24th of February...

"RARO YO"

28 Feb 2023 Madrid, Spain

MONOLOGO EN STREMING “RARO YO”

"Recognize The Rare-Accept it"

22 Feb 2021 to 28 Feb 2021 Prilep, North Macedonia

This year, an online event in honor of the rare is dedicated to highlighting the importance of networking for medical...

"Se ÚNIC@S como NOSOTR@S"

21 Feb 2022 to 28 Feb 2022 Madrid, Spain

La AMC- Asociación de Artrogriposis múltiple congénita – España, la Asociación Española del Síndrome de Wolf-Hirschhorn, la Asociación Nacional de...

"Shine a light on XLH"

17 Feb 2021 to 28 Feb 2021 Florence, Italy

 Conferenza di lancio della Campagna “SHINE A LIGHT ON XLH” – Accendi la luce sull’XLH. Campagna per evidenziare i benefici apportati...

"Si el vHL fuera un cuento..."

25 Feb 2022 to 4 Jun 2022 México, Mexico

“Si el vHL fuera un cuento…! Participa en la creación de un cuento sobre vHL, se leerán el día de...

"Sorrisi rari"

18 Feb 2023 Roma, Italy

In occasione del mese delle malattie rare, i volontari e le famiglie a contatto con la Sclerosi tuberosa hanno pensato...

"Sostengo" Giornata delle Malattie rare

28 Feb 2022 Montesarchio, Italy

Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci

“Spanish National Conference for RD day. “We are many, we are strong and we are proud. ” X Jornada Nacional...

"The Day of Orphan Diseases"

26 Feb 2021 to 28 Feb 2021 Lviv, Ukraine

PROGRAMME OF THE EVENT On February 26, 2021, together with the movement of the orphan community "Orphan Bell" we will hold...

“Che ruggito piccolo leone!”

28 Feb 2023 Rosà (Vi), Italy

Ogni anno scolastico, nella Scuola dell’infanzia “Gli Aquiloni” Istituto Comprensivo “A. G. Roncalli” Rosà (Vi) vengono proposte all’interno delle sezioni...

“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...

The webconference “SCIENCE and ART together for rare diseases. Achievements, frontiers and artistic spaces” With the Proclamation of the winners...

«La Conversación»

16 Feb 2023 to 28 Feb 2023 En línea, Mexico

«La Conversación» es una serie de entrevistas a destacados científicos médicos dedicados con pasión a mejorar la calidad de vida...

«Tenemos todo el tiempo para escucharlos»

25 Feb 2023 En línea, Mexico

«Tenemos todo el tiempo para escucharlos» será un evento en el que, por primera vez en todo el mundo y...

@amekaua_pyettro - Semana das Doenças Raras

28 Feb 2022 to 4 Mar 2022 Bom Conselho-PE, Brazil

It is an online event, on Instagram, in which posts will be published in order to raise awareness about living...

Un changement de lettre dans le code génétique peut faire basculer une vie. Une mutation suffit à altérer un processus...

#LetsMove4NDM

28 Feb 2023 to 7 Mar 2023

The Lupin Neurosciences team worked with people living with NDM to develop the #LetsMove4NDM challenge to raise public awareness of...

#LightUpForRare - Serbia

28 Feb 2022 Belgrade, Serbia

Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...

#LightUpforRare Cavan Court House

28 Feb 2023 Cavan, Ireland

#LightUpforRare at 7:30pm

#LightUpforRare Neurogene

1 Feb 2022 to 28 Feb 2022 Houston, United States

#LightUpforRare The company building will be illuminated the month of February to raise awareness for ALL rare diseases.

#partagetescouleurs

1 Feb 2023 to 28 Feb 2023

Nous lançons le challenge #partagetescouleurs, cela consiste pour la journée internationale des maladies rares de partager jusqu’au 28 février, –...

#RareRace2022

11 Feb 2022 to 31 Dec 2022 Worldwide, Germany

The #RareRace2022 is a race from 4 different Geocaching Travelbugs. They just roam around and tell people about the Rare...

#RunForRaiden

26 Feb 2022 to 28 Feb 2022

Raiden Science Foundation first ever virtual 5K event to raise awareness for UBA5 disease and celebrate Raiden’s 2nd birthday. UBA5...

We will dedicate the second week of the month to the registry of patients with COVID-19 and rare diseases. The current global pandemic situation has...

The third week of #S4RMonth will be dedicated to give visibility to childhood cancer and the different research projects on...

Join Share4Rare’s webinar with live Q&As with renowned experts in the field of psychology and neuromuscular conditions. During an hour-long...

OVERVIEW On Rare Disease Day 2023, Rare Diseases International (RDI) invites you to “#SeeRare”, a virtual event showcasing the breadth...

#ShareYourColours Denim Walk

4 Mar 2023 Johannesburg, South Africa

We’re so excited to be celebrating Rare Disease Day 2023! Please join us for an early evening Denim Walk in...

#ShareYourRare

22 Feb 2021 to 28 Feb 2021 National, South Africa

This February we're flipping the script and encouraging South Africans to share their rare stories in an effort to stimulate a...

On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most...

#YoTambienSoyRaro

28 Feb 2022 Madrid, Spain

Subir más de 2.000 escalones

#Челябинскредкий

21 Feb 2022 to 28 Feb 2022 Челябинск, Russian Federation

#Челябинскредкий проект, направленный на поддержку семей, столкнувшихся с редкими заболеваниями. В так называемую “редкую неделю” читатели URALPRESS.RU познакомятся с историями...

#Челябинскредкий / Chelyabinsk light up for rare

28 Feb 2022 Челябинск, Russian Federation

Загорается для редких💥 Light up for rare 💥 Челябинск первый из российских городов присоединится к глобальной акции в поддержку людей...

10 Jahre Kongenitaler Hyperinsulinismus e.V.Zum Tag der Seltenen Erkrankung begehen wir den 10. Jahrestag unserer Vereinsgründung.Mit unseren Mitgliedern möchten wir...

Dans le cadre des journées de sensibilisation, et à l’occasion de la Journée Internationale des Maladies Rares 2023, l’Association Espoir...

During the last 13 years, we have with great success commemorated Rare Disease Day in Colombia, in a public event...

14th Annual Rare Disease Day at KGI

5 Mar 2021 Zoom(RSVP for link), United States

Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare...

Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...

18th Parent Project International Conference on Duchenne and Becker muscular dystrophy

17 Feb 2021 to 21 Feb 2021 Virtual Event, United States

Parent Project organizes every year an International Conference entirely dedicated to Duchenne and Becker muscular dystrophy. This is an event...

1er Simposio de Enfermedades Raras y Tamiz Neonatal 2022

24 Feb 2022 to 25 Feb 2022 Ciudad de México, Mexico

1er Simposio de Enfermedades Raras y Tamiz Neonatal 2022 Organiza la Fundación Mexicana de Prevención y Salud Materna “Mujer México”...

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2022, se llevará a cabo...

1er Simposio Intl del RDD 2021

26 Feb 2021 Redes sociales de LIIGH-UNAM, Mexico

The president of FEMEXER will be a speaker at this important forum. El presidente de FEMEXER, David Peña, será ponente...

1era Jornada de Enfermedades Raras 2021

18 Feb 2021 to 20 Feb 2021 Panamá, Panama

Los invitamos a la I Jornada de Enfermedades Raras del 18 al 20 de febrero organizado por CASPH en colaboración...

Jornada académica donde se tendrán varios ponentes que hablarán diversos temas relacionados con las Enfermedades Huérfanas además de testimonios.

1st International Conference on Rare Diseases

1 Mar 2021 to 2 Mar 2021 Greece, Greece

The patient organization “95” Rare Alliance Greece has among its objectives the Education and Empowerment of patients with Rare Diseases,...

1st International UAE Rare Disease Society Congress

25 Feb 2023 to 26 Feb 2023 Dubai, United Arab Emirates

On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...

Information and sensibilization to rare diseases in terms of public health and ethics.

2 Congreso internacional de enfermedades raras

26 Feb 2021 to 28 Feb 2021 Quito, Ecuador

Gran congreso Internacional sobre Enfermedades raras o poco frecuentes, en donde participarán. Organizaciones, médicos y pacientes en el marco de...

Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.

20 years of care for butterfly children

28 Feb 2021 to 31 Dec 2021 Brno, Czech Republic

On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech...

2023 Rare Disease Day

28 Feb 2023 Boston, United States

Join MassBio as we mark the annual Rare Disease Day at the Statehouse by bringing attention to the groundbreaking, patient-focused...

From February 27 to March 5, 2023, the MATIO Foundation for the 22nd time organizes a social campaign under the...

28 days Ohrid will shine in the colors of rare diseases!

1 Feb 2021 to 28 Feb 2021 Ohrid, North Macedonia

On February 1, we started with the national campaign "LEARNING ABOUT RARE DISEASES".Loleska Gordana and "Life with Challenges" and Super...

28 days...a rare journey

1 Feb 2023 to 28 Feb 2023 https://www.facebook.com/groups/rarediseasemonthbymonadikaxamogela/, Cyprus

A post will be uploaded on a daily basis with statistical information about rare diseases and testimonies from our members,...

28 days...a rare journey

1 Feb 2022 to 28 Feb 2022 Nicosia, Cyprus

Every day we post an information or a testimony of a member on a Facebook Group page that was created...

Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...

CEBRAS MÉXICO Y MUJER MÉXICO en conjunto con el Congreso Legislativo de Quintana Roo, la Comisión de Salud y Asistencia...

2da JORNADA DE ENFERMEDADES RARAS 2022 "CEBRAS MÉXICO"

3 Feb 2022 to 24 Feb 2022 CDMX , Mexico

En el marco del Día Mundial y Nacional de las Enfermedades Raras 2022. 2DA JORNADA DE ENFERMEDADES RARAS 2022 A...

Se lleva a cabo el 2do Foro de Enfermedades Raras en México “Mayor Visibilidad, Mayor Oportunidad de Vida” Organizado por...

2DO FORO DE TAMIZ NEONATAL Y ENFERMEDADES RARASEn el marco del Día Mundial y Nacional de las Enfermedades Raras 28...

2do Simposio Internacional del Día de las Enfermedades Raras

28 Feb 2022 Queretaro (Virtual), Mexico

La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...

“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...

Tercer simposio, que se desarrolla con participación de personas con enfermedades raras, familiares, red comunitaria y profesionales de salud e...

La Red Mexicana de Enfermedades Raras (ReMexER) y el Laboratorio Internacional de Investigación sobre el Genoma Humano se unen a...

3rd Annual GROW AWARENESS: VIRTUAL SHARE-A-THON

28 Feb 2021 WORLDWIDE, United States

February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse...

3rd Annual Rare Disease Flag Raising Ceremony

28 Feb 2022 to 28 Jan 2022 Ottawa, Canada

Flag raising ceremony at Ottawa City Hall, including hot drinks, donuts, vendors, and ‘NEW’ this year, a skate-a-thon on the...

3rd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter

28 Feb 2023 to 1 Mar 2023 Athens, Greece

3rd International Conference on Rare Diseases: Greek Chapter ‘’Leveraging the momentum for a comprehensive rare disease strategy’’ In the context...

4th Rare Disease Day Training Meeting will be held online with the attendance of Turkish Ministry of Health, academics, members...

45th Athens Health Road Race 21km

27 Feb 2022 Athens, Greece

The 45th Athens 21 km Health Road Race supports MDA Hellas. On the occasion of the Rare Disease Day (28/2)...

5TH COMMEMORATION OF RARE DISEASE DAY 2022 IN TANZANIA - TUNAHITAJI USAWA

27 Feb 2022 Zanzibar, Tanzania. United Republic of

Introduction On 28th February, 2022 the world will mark the Rare Disease Day. The aim of the day is to...

More information to come in the following days!

6th Annual Rare Disease Day virtual race

1 Feb 2021 to 28 Feb 2021

This is our 6th year hosting the Rare Disease Day virtual race to raise awareness and to benefit the National...

6th Rare Disease Day at "KASCH"

28 Feb 2022 Riyadh, Saudi Arabia

يوم توعوي، للعامة .. عن بعد موجه للجمهور، يهدف الى زيادة وعي المجتمع عن الأمراض النادرة وطريقة التعامل معها.. https://teams.microsoft.com/l/meetup-join/19%3ameeting_ZDg4OGIxYzMtNDJkMy00NDc0LWI4MzItYWExNzY2N2ZlMzNi%40thread.v2/0?context=%7b%22Tid%22%3a%22b84725a5-0373-4d77-9259-051685769bf2%22%2c%22Oid%22%3a%2209c630e6-d1c9-482e-91b3-60037840ef5d%22%7d

7th Annual Rare Disease Day virtual race

1 Feb 2022 to 28 Feb 2022 Loch Hill, United States

Join us for our 7th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...

8th Annual Rare Disease Day virtual race

1 Feb 2023 to 28 Feb 2023

Join us for our 8th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...

8th Annual Rare Disease Symposium

26 Feb 2021 to 27 Feb 2021

Alabama Rare, Children's of Alabama, The University of Alabama at Birmingham, and the Alabama Genomic Health Initiative will host the...

Patients with Rare Diseses could send happy photos about themseves and were judged by representatives of media for prizes. The...

On the occasion of Rare Disease Day, ERN BOND, the European Reference Network on Rare Bone Diseases, with the patronage...

A Friendship Story

28 Feb 2022 Talamona, Italy

This lesson plan is a proposal that we address to the teachers of our schools. The goal is to help...