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Online, Philippines

HAPPENING TODAY! Join us for this #NRDW2024 webinar on our rare disease advocacy organized by IHG @UPManilaOnline and @vylhphilippines via...

¿Enfermedades raras? La realidad detrás de los datos...

22 Feb 2024 Guadalajara, Jalisco, Mexico

Café y tertulia científica con el Dr. Luis Figuera, quien es experto en enfermedades raras (ER). Platicaremos en un ambiente...

¿Lo tenemos claro?

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Quienes trabajamos en México por las personas que viven con enfermedades raras debemos tener claro cuáles son nuestros derechos.

Pledge Your Support for Rare Diseases! Rare Disease Day is held annually on the last day of February, it is...

Join our Rare Disease Day virtual panel discussion as BioNews columnists from a variety of our rare communities participate in...

"Accendiamo le luci sulle malattie rare"

28 Feb 2021 Florence, Prato, Pistoia, Massa, Italy

Campagna “Accendiamo le luci sulle malattie rare”: i monumenti più rappresentativi di diverse città italiane si illumineranno con i colori...

Los invitamos al III Foro Internacional de Enfermedades Raras Día:           28 febrero 2023 Hora: de  9:00 am...

"May I please be misunderstood" Art Exhibit

28 Feb 2022 Johannesburg , South Africa

An exhibition focused on using Art Therapy as a way of accepting or being affected by a rare disease. The...

In the run-up of Rare Disease Day, Chan Zuckerberg Initiative presents: No Ordinary Campaign at the Presidio Theatre in San...

On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...

Webinar su zoom dalle 19 alle 20:30 sulla talassemia organizzato da FareComunicazione con il patrocinio di UNIAMO e il contributo non condizionato...

Sabato 20 febbraio, dalle ore 10 alle ore 13 | Evento conclusivo “Pillole Rare in … malattie rare. Facciamo centro.”  (organizzato da...

Webinar su zoom dalle 19 alle 20:30 con il patrocinio di UNIAMO e il contributo non condizionato di Chiesi. 

To mark Rare Disease Day today, we are pleased to release the now 10th episode of our podcast series, “Rare Diseases and...

On February 28, at 4:00 p.m., we will hold a webinar “Rare diseases in the practice of family doctors: what...

"Rare Music 4 Rare Diseases" Concert

24 Feb 2023 Hesperange, Luxembourg

ALAN and the council of Hesperange invite to the concert “Rare Music 4 Rare Diseases”, on the 24th of February...

"RARO YO"

28 Feb 2023 Madrid, Spain

MONOLOGO EN STREMING “RARO YO”

"Recognize The Rare-Accept it"

22 Feb 2021 to 28 Feb 2021 Prilep, North Macedonia

This year, an online event in honor of the rare is dedicated to highlighting the importance of networking for medical...

"Se ÚNIC@S como NOSOTR@S"

21 Feb 2022 to 28 Feb 2022 Madrid, Spain

La AMC- Asociación de Artrogriposis múltiple congénita – España, la Asociación Española del Síndrome de Wolf-Hirschhorn, la Asociación Nacional de...

"Shine a light on XLH"

17 Feb 2021 to 28 Feb 2021 Florence, Italy

 Conferenza di lancio della Campagna “SHINE A LIGHT ON XLH” – Accendi la luce sull’XLH. Campagna per evidenziare i benefici apportati...

"Si el vHL fuera un cuento..."

25 Feb 2022 to 4 Jun 2022 México, Mexico

“Si el vHL fuera un cuento…! Participa en la creación de un cuento sobre vHL, se leerán el día de...

"Sorrisi rari"

18 Feb 2023 Roma, Italy

In occasione del mese delle malattie rare, i volontari e le famiglie a contatto con la Sclerosi tuberosa hanno pensato...

"Sostengo" Giornata delle Malattie rare

28 Feb 2022 Montesarchio, Italy

Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci

“Spanish National Conference for RD day. “We are many, we are strong and we are proud. ” X Jornada Nacional...

"The Day of Orphan Diseases"

26 Feb 2021 to 28 Feb 2021 Lviv, Ukraine

PROGRAMME OF THE EVENT On February 26, 2021, together with the movement of the orphan community "Orphan Bell" we will hold...

"WALK4RARE" in KIGALI

18 Feb 2024 Kigali, Rwanda

18 February, 2024, it will be a car free day in Kigali-Rwanda, so we will take that opportunity to make...

“Che ruggito piccolo leone!”

28 Feb 2023 Rosà (Vi), Italy

Ogni anno scolastico, nella Scuola dell’infanzia “Gli Aquiloni” Istituto Comprensivo “A. G. Roncalli” Rosà (Vi) vengono proposte all’interno delle sezioni...

“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...

The webconference “SCIENCE and ART together for rare diseases. Achievements, frontiers and artistic spaces” With the Proclamation of the winners...

Delve into the complexities of apraxia of speech with a distinguished panel featuring Dr. Angela Morgan, Dr. Ruth Stoeckel, and...

«La Conversación»

16 Feb 2023 to 28 Feb 2023 En línea, Mexico

«La Conversación» es una serie de entrevistas a destacados científicos médicos dedicados con pasión a mejorar la calidad de vida...

«Tenemos todo el tiempo para escucharlos»

25 Feb 2023 En línea, Mexico

«Tenemos todo el tiempo para escucharlos» será un evento en el que, por primera vez en todo el mundo y...

@amekaua_pyettro - Semana das Doenças Raras

28 Feb 2022 to 4 Mar 2022 Bom Conselho-PE, Brazil

It is an online event, on Instagram, in which posts will be published in order to raise awareness about living...

L’Institut Imagine annonce son prochain #GénéTalks : le rendez-vous incontournable des passionnés de génétique   L’Institut Imagine, leader mondial dans...

Un changement de lettre dans le code génétique peut faire basculer une vie. Une mutation suffit à altérer un processus...

#LetsMove4NDM

28 Feb 2023 to 7 Mar 2023

The Lupin Neurosciences team worked with people living with NDM to develop the #LetsMove4NDM challenge to raise public awareness of...

#LightUpForRare - Serbia

28 Feb 2022 Belgrade, Serbia

Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...

#LightUpforRare Cavan Court House

28 Feb 2023 Cavan, Ireland

#LightUpforRare at 7:30pm

#LightUpforRare Neurogene

1 Feb 2022 to 28 Feb 2022 Houston, United States

#LightUpforRare The company building will be illuminated the month of February to raise awareness for ALL rare diseases.

#partagetescouleurs

1 Feb 2023 to 28 Feb 2023

Nous lançons le challenge #partagetescouleurs, cela consiste pour la journée internationale des maladies rares de partager jusqu’au 28 février, –...

#RAREis One Webinar

29 Feb 2024

Join us on Rare Disease Day, Thursday, February 29 at 11:30 a.m. ET for the #RAREis One webinar to hear...

#RareRace2022

11 Feb 2022 to 31 Dec 2022 Worldwide, Germany

The #RareRace2022 is a race from 4 different Geocaching Travelbugs. They just roam around and tell people about the Rare...

#RunForRaiden

26 Feb 2022 to 28 Feb 2022

Raiden Science Foundation first ever virtual 5K event to raise awareness for UBA5 disease and celebrate Raiden’s 2nd birthday. UBA5...

We will dedicate the second week of the month to the registry of patients with COVID-19 and rare diseases. The current global pandemic situation has...

The third week of #S4RMonth will be dedicated to give visibility to childhood cancer and the different research projects on...

Join Share4Rare’s webinar with live Q&As with renowned experts in the field of psychology and neuromuscular conditions. During an hour-long...

OVERVIEW On Rare Disease Day 2023, Rare Diseases International (RDI) invites you to “#SeeRare”, a virtual event showcasing the breadth...

#ShareYourColours Denim Walk

4 Mar 2023 Johannesburg, South Africa

We’re so excited to be celebrating Rare Disease Day 2023! Please join us for an early evening Denim Walk in...

#ShareYourRare

22 Feb 2021 to 28 Feb 2021 National, South Africa

This February we're flipping the script and encouraging South Africans to share their rare stories in an effort to stimulate a...

#ShowYourMove4NDM

12 Feb 2024 to 29 Feb 2024

This February, Lupin Neurosciences, a division of Lupin Atlantis Holdings SA, embarks on a mission to raise awareness for Non-Dystrophic...

On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most...

Evento finale della campagna di sensibilizzazione in cui ripercorreremo le iniziative del mese dedicato alle malattie rare e ci proietteremo...

Giovedì 1 febbraio dall’Auditorium del Ministero della Salute UNIAMO – Federazione Italiana Malattie Rare lancerà la campagna #UNIAMOleforze: più di...

#YoTambienSoyRaro

28 Feb 2022 Madrid, Spain

Subir más de 2.000 escalones

#Челябинскредкий

21 Feb 2022 to 28 Feb 2022 Челябинск, Russian Federation

#Челябинскредкий проект, направленный на поддержку семей, столкнувшихся с редкими заболеваниями. В так называемую “редкую неделю” читатели URALPRESS.RU познакомятся с историями...

#Челябинскредкий / Chelyabinsk light up for rare

28 Feb 2022 Челябинск, Russian Federation

Загорается для редких💥 Light up for rare 💥 Челябинск первый из российских городов присоединится к глобальной акции в поддержку людей...

1 CORRIDA INCLUSA DOS RAROS EM APARECIDA

3 Mar 2024 APARECIDA, Brazil

A 1ª Corrida Nacional Inclusiva dos Raros é uma iniciativa da Casa de Saúde Nossa Senhora dos Raros, da Associação...

10 Jahre Kongenitaler Hyperinsulinismus e.V.Zum Tag der Seltenen Erkrankung begehen wir den 10. Jahrestag unserer Vereinsgründung.Mit unseren Mitgliedern möchten wir...

Patients with rare diseases followed in our Medical Genetics Clinic and families will be invited to the event. There will...

10DAYS4RARE

19 Feb 2024 to 28 Feb 2024 Kigali, Rwanda

Rare diseases awareness in schools: “10days for rare (10DAYS4RARE)” Sharing lessons on rare diseases in schools: “Living with a rare...

Dans le cadre des journées de sensibilisation, et à l’occasion de la Journée Internationale des Maladies Rares 2023, l’Association Espoir...

11. KMSK Wissens-Forum Seltene Krankheiten

2 Mar 2024 6005 Luzern, Switzerland

ZUSAMMENSPIEL ZWISCHEN ELTERN, ÄRZTEN UND WEITEREN AKTEUREN Der Förderverein für Kinder mit seltenen Krankheiten feiert sein zehnjähriges Jubiläum und lädt...

11. KMSK Wissens-Forum Seltene Krankheiten

2 Mar 2024 6005 Luzern, Switzerland

Wissenstransfer Seltene Krankheiten: ❤️🐸 Der Förderverein für Kinder mit seltenen Krankheit feiert sein zehnjähriges Jubiläum und lädt am 2. 3.2024...

11th Annual Rare Disease Symposium

29 Feb 2024 to 1 Mar 2024 Birmingham, AL, United States

Register to attend the 11th Annual Rare Disease Symposium on Feb. 29 – March 1! This is a hybrid event,...

During the last 13 years, we have with great success commemorated Rare Disease Day in Colombia, in a public event...

Konferenz und Stände von Patientenorganisationen.

Conférences avec présence de stands d’association de patients

14th Annual Rare Disease Day at KGI

5 Mar 2021 Zoom(RSVP for link), United States

Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare...

Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...

Anualmente el mundo dedica el último día del mes de febrero para pensar en estas patologías. Colombia se une a...

17^ Giornata delle Malattie Rare 2024

27 Feb 2024 Milan, Italy

PREMESSA L’evento ha la finalità di celebrare la giornata delle malattie rare. Il convegno intende delinearsi come occasione per affrontare,...

17th RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Sopron, Hungary

The National Association of People with Rare and Congenital Disorders (RIROSZ) has now organized World Rare Diseases Day for the...

18th Parent Project International Conference on Duchenne and Becker muscular dystrophy

17 Feb 2021 to 21 Feb 2021 Virtual Event, United States

Parent Project organizes every year an International Conference entirely dedicated to Duchenne and Becker muscular dystrophy. This is an event...

O Evento irá reunir, pacientes, associações de paciente, gestores públicos, profissionais, familiares, amigos e parceiros que se somam em uma...

➡️ 1/15 000 enfant est touché par l’aplasie majeur de(s) l’oreille(s). ➡️ Environ 4 500 personnes en France, car on...

1er Simposio de Enfermedades Raras y Tamiz Neonatal 2022

24 Feb 2022 to 25 Feb 2022 Ciudad de México, Mexico

1er Simposio de Enfermedades Raras y Tamiz Neonatal 2022 Organiza la Fundación Mexicana de Prevención y Salud Materna “Mujer México”...

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2022, se llevará a cabo...

1er Simposio Intl del RDD 2021

26 Feb 2021 Redes sociales de LIIGH-UNAM, Mexico

The president of FEMEXER will be a speaker at this important forum. El presidente de FEMEXER, David Peña, será ponente...

1era Jornada de Enfermedades Raras 2021

18 Feb 2021 to 20 Feb 2021 Panamá, Panama

Los invitamos a la I Jornada de Enfermedades Raras del 18 al 20 de febrero organizado por CASPH en colaboración...

Jornada académica donde se tendrán varios ponentes que hablarán diversos temas relacionados con las Enfermedades Huérfanas además de testimonios.

1st International Conference on Rare Diseases

1 Mar 2021 to 2 Mar 2021 Greece, Greece

The patient organization “95” Rare Alliance Greece has among its objectives the Education and Empowerment of patients with Rare Diseases,...

1st International UAE Rare Disease Society Congress

25 Feb 2023 to 26 Feb 2023 Dubai, United Arab Emirates

On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...

1st Student Conference on Rare Diseases

29 Feb 2024 Gdańsk, Poland

Falling once every four years, February 29 is the rarest day of the year. On that very day, in the...

Information and sensibilization to rare diseases in terms of public health and ethics.

2 Congreso internacional de enfermedades raras

26 Feb 2021 to 28 Feb 2021 Quito, Ecuador

Gran congreso Internacional sobre Enfermedades raras o poco frecuentes, en donde participarán. Organizaciones, médicos y pacientes en el marco de...

Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.

20 years of care for butterfly children

28 Feb 2021 to 31 Dec 2021 Brno, Czech Republic

On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech...

2023 Rare Disease Day

28 Feb 2023 Boston, United States

Join MassBio as we mark the annual Rare Disease Day at the Statehouse by bringing attention to the groundbreaking, patient-focused...

From February 27 to March 5, 2023, the MATIO Foundation for the 22nd time organizes a social campaign under the...

28 days Ohrid will shine in the colors of rare diseases!

1 Feb 2021 to 28 Feb 2021 Ohrid, North Macedonia

On February 1, we started with the national campaign "LEARNING ABOUT RARE DISEASES".Loleska Gordana and "Life with Challenges" and Super...

28 days...a rare journey

1 Feb 2023 to 28 Feb 2023 https://www.facebook.com/groups/rarediseasemonthbymonadikaxamogela/, Cyprus

A post will be uploaded on a daily basis with statistical information about rare diseases and testimonies from our members,...

28 days...a rare journey

1 Feb 2022 to 28 Feb 2022 Nicosia, Cyprus

Every day we post an information or a testimony of a member on a Facebook Group page that was created...

Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...

CEBRAS MÉXICO Y MUJER MÉXICO en conjunto con el Congreso Legislativo de Quintana Roo, la Comisión de Salud y Asistencia...

2da JORNADA DE ENFERMEDADES RARAS 2022 "CEBRAS MÉXICO"

3 Feb 2022 to 24 Feb 2022 CDMX , Mexico

En el marco del Día Mundial y Nacional de las Enfermedades Raras 2022. 2DA JORNADA DE ENFERMEDADES RARAS 2022 A...

Se lleva a cabo el 2do Foro de Enfermedades Raras en México “Mayor Visibilidad, Mayor Oportunidad de Vida” Organizado por...

2DO FORO DE TAMIZ NEONATAL Y ENFERMEDADES RARASEn el marco del Día Mundial y Nacional de las Enfermedades Raras 28...

2do Simposio Internacional del Día de las Enfermedades Raras

28 Feb 2022 Queretaro (Virtual), Mexico

La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...

l’Alliance Algérienne contre les Maladies Rares organise en partenariat avec les laboratoires Pfizer une rencontre des groupes de patients des...

2nd European Congress of Neurology and Neuropsychiatry

19 Feb 2024 to 20 Feb 2024 London , United Kingdom

We are delighted to welcome you to the 2nd European Congress of Neurology and Neuropsychiatry which will take place on...

“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...

2nd International UAE Rare Disease Society Congress

29 Feb 2024 to 2 Mar 2024 Abu Dhabi, United Arab Emirates

Our inaugural congress witnessed groundbreaking discussions, profound insights, and remarkable advancements in the understanding and management of rare diseases. Building...

2nd Saudi Rare Disease Summit

16 Feb 2024 to 17 Feb 2024 Riyadh, Saudi Arabia

The Saudi Rare Disease Summit is a unique platform that explore the area of rare diseases and fosters collaboration among...

Jornada nacional e internacional de enfermedades huérfanas/raras, para esta ocasión con el protagonismo de quienes tienen una relación directa con...

3er SIMPOSIO ACTUALIZACION DE ENFERMEDADES RARAS EN VENEZUELA 2024

1 Mar 2024 Valencia Edo Carabobo Venezuela, Venezuela

Dirigido a profesionales de la salud, estudiantes, pacientes, cuidadores y publico en general.

Tercer simposio, que se desarrolla con participación de personas con enfermedades raras, familiares, red comunitaria y profesionales de salud e...

La Red Mexicana de Enfermedades Raras (ReMexER) y el Laboratorio Internacional de Investigación sobre el Genoma Humano se unen a...

3rd Annual GROW AWARENESS: VIRTUAL SHARE-A-THON

28 Feb 2021 WORLDWIDE, United States

February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse...

3rd Annual Rare Disease Flag Raising Ceremony

28 Feb 2022 to 28 Jan 2022 Ottawa, Canada

Flag raising ceremony at Ottawa City Hall, including hot drinks, donuts, vendors, and ‘NEW’ this year, a skate-a-thon on the...

3rd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter

28 Feb 2023 to 1 Mar 2023 Athens, Greece

3rd International Conference on Rare Diseases: Greek Chapter ‘’Leveraging the momentum for a comprehensive rare disease strategy’’ In the context...

4th Rare Disease Day Training Meeting will be held online with the attendance of Turkish Ministry of Health, academics, members...

45th Athens Health Road Race 21km

27 Feb 2022 Athens, Greece

The 45th Athens 21 km Health Road Race supports MDA Hellas. On the occasion of the Rare Disease Day (28/2)...

The Red Mexicana de Enfermedades Raras (ReMexER), the International Laboratory for Human Genome Research (LIIGH, UNAM) and the Colaborativa para...

5th Annual Rare Disease Day Event

24 Feb 2024 Grand Rapids, MI 49546, United States

Calvin University, Corewell Health/Helen DeVos Children’s Hospital, MSU College of Human Medicine and Van Andel Institute will host its 5th...

5TH COMMEMORATION OF RARE DISEASE DAY 2022 IN TANZANIA - TUNAHITAJI USAWA

27 Feb 2022 Zanzibar, Tanzania. United Republic of

Introduction On 28th February, 2022 the world will mark the Rare Disease Day. The aim of the day is to...

More information to come in the following days!

6th Annual Rare Disease Day virtual race

1 Feb 2021 to 28 Feb 2021

This is our 6th year hosting the Rare Disease Day virtual race to raise awareness and to benefit the National...

6th Rare Disease Day at "KASCH"

28 Feb 2022 Riyadh, Saudi Arabia

يوم توعوي، للعامة .. عن بعد موجه للجمهور، يهدف الى زيادة وعي المجتمع عن الأمراض النادرة وطريقة التعامل معها.. https://teams.microsoft.com/l/meetup-join/19%3ameeting_ZDg4OGIxYzMtNDJkMy00NDc0LWI4MzItYWExNzY2N2ZlMzNi%40thread.v2/0?context=%7b%22Tid%22%3a%22b84725a5-0373-4d77-9259-051685769bf2%22%2c%22Oid%22%3a%2209c630e6-d1c9-482e-91b3-60037840ef5d%22%7d

7th Annual Rare Disease Day virtual race

1 Feb 2022 to 28 Feb 2022 Loch Hill, United States

Join us for our 7th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...

8th Annual Rare Disease Day virtual race

1 Feb 2023 to 28 Feb 2023

Join us for our 8th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...

8th Annual Rare Disease Symposium

26 Feb 2021 to 27 Feb 2021

Alabama Rare, Children's of Alabama, The University of Alabama at Birmingham, and the Alabama Genomic Health Initiative will host the...

Patients with Rare Diseses could send happy photos about themseves and were judged by representatives of media for prizes. The...

On the occasion of Rare Disease Day, ERN BOND, the European Reference Network on Rare Bone Diseases, with the patronage...

A Friendship Story

28 Feb 2022 Talamona, Italy

This lesson plan is a proposal that we address to the teachers of our schools. The goal is to help...

Join us for an insightful discussion with Dr. Cora Taylor as she shares valuable insights into behavioral interventions tailored for...

Get ready for a deep dive into understanding the roles of genetic counselors, genetic testing, and the array of resources...

A Rare Disease and Mental Health Chat with David Ross, Chelsea Streit and special guest The Mata sisters from @Looms4LupusThis...

A Rare Disease Day Celebration hosted by NORD

28 Feb 2022 Virtual, United States

NORD invites you to wear your favorite zebra print shirt or a striped scarf and meet online for a community...

A webinar about patient-centered research in rare diseases and how real improvements might be achieved for people living with rare...

A-T CHILDREN'S PROJECT CANADA

29 Feb 2024 FORT MACLEOD, Canada

A-T RUN

Il Comune di Arenzano illuminerà la torre dell’orologio di Palazzo Sant’Antonio

Accendiamo le luci sulle malattie rare

28 Feb 2021 Jesolo (VE), Italy

Il 28 Febbraio 2021 il Comune di Jesolo (VE) illuminerà la biblioteca comunale in Piazzetta Jesolo e la scritta "JESOLO" in Piazza...

Accendiamo le luci sulle malattie rare

27 Feb 2021 to 28 Feb 2021 Torino, Italy

The green colour and the logo of the World Rare Diseases Day will be projected from 6.00 pm on 27th...

Accendiamo le luci sulle malattie rare

28 Feb 2021 San Donà di Piave (VE), Italy

Il 28 Febbraio 2021 il Comune di San Donà di Piave (VE) illuminerà il Municipio in Piazza Indipendenza con i...

Accendiamo le luci sulle malattie rare

29 Feb 2024 Il Comune di Arenzano, Italy

Arenzano, anche quest’anno, ha aderito al RareDiseaseDay, la giornata mondiale dedicata alle malattie rare che sarà celebrata in tutto il...

La Fontana monumentale di Piazza A. Moro di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare...

Accendiamo le luci sulle malattie rare - Rocca Rangoni Spilamberto MO

27 Feb 2021 to 28 Feb 2021 Spilamberto, Italy

Campaign "Let's turn on the lights on rare diseases": the most representative monuments of various Italian cities will light up...

La Torre dell'Orologio della Città Metropolitana di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare la...

Anche quest’anno il Comune di Arenzano aderirà alla giornata denominata “Accendiamo le luci sulle malattie rare” in data 29/02/2024 illluminando...

Palazzo Sant’Antonio

In this conference we decided to talk about accessibility and what this means for rare patients, especially in these 2...

Illuminazione delle mura del Castello dei Conti di Acerra con i colori della Giornata delle malattie rare 2024

Illuminazione delle mura del Castello Dei Conti con i colori della Giornata delle malattie rare 2024, a cura del Comune...

We are excited to invite you to Rare Disease Day 2023 in Calgary on February 26, 2023! If you are...

The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day:- Telstra TowerIllumination organised by Andrew Bannister.

Desde la Alianza de Familias afectadas por el Síndrome de Wolfram (AFASW) nos sumamos a la conmemoración del Día Mundial...

La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...

Ada Apa Dengan Cinta?

20 Feb 2021 Kuala Lumpur, Malaysia

Ada Apa Dengan Cinta?All individuals with rare disorders (RD): - don't have romantic feelings - don't want to have relationships...

Adenomyosis Advice Association - Rare Disease Day 2022

25 Feb 2022 to 28 Feb 2022 London, United Kingdom

This year on Rare Disease Day the Adenomyosis Advice Association will be focusing on future research opportunities and how with...

Adisen Estudio 2021

16 Feb 2021 to 31 May 2021 Online, Spain

On the occasion of the activities organized to commemorate Rare Disease Day, Adisen, the National Association of Addison and Other Endocrine...

Scientific Congress with Dissemination and Dissemination of Scientific Research Results for EEC Syndrome. Study of an eye drops for the...

Advancing Treatments in Rare Neurological Diseases

28 Feb 2022 Cleveland, United States

The Oxford-Harrington Rare Disease Centre (OHC) invites you to recognize Rare Disease Day by attending its Rare Disease Day Webinar...

Advocating for Rare Disease Patients on Malta National Television TVAM

Facilitar el acceso a los recursos especializados; aplicar la cobertura de los tratamientos (más allá de los medicamentos); es una...

le associazioni A.I.D. – Kartagener Onlus ed A.Ma.R.A.M. Aps, celebreranno la Giornata Mondiale delle Malattie Rare 2023 organizzando l’incontro dal...

We are really pleased to announce our virtual Rare Disease Day event. We are holding a virtual Afternoon Tea with...

On Monday, the sky lights up a little extra over Lilla Amundön when Ågrenska draws attention to the Rare Day....

Ågrenska lyser upp för det sällsynta

28 Feb 2023 Hovås, Sweden

På måndag lyser himlen upp lite extra över Lilla Amundön när Ågrenska uppmärksammar Sällsynta dagen. Ågrenska gör då gemensam sak...

Ågrenska lyser upp för det sällsynta!

29 Feb 2024 Göteborg, Sweden

Ågrenska arrangerar ett festligt Sällsynta dagen-disco för de familjer som deltar i vår familjevistelse den veckan. Dessutom kommer vårt karakteristiska...

Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...

Alamo Quarry Market Lights Up for Rare Disease Day

28 Feb 2023 San Antonio, United States

The Alamo Quarry Market is participating in the #LightUpForRareCampaign and will illuminate the smoke stacks for Rare Disease Day

ALAPA en Chaco

25 Feb 2022 to 26 Feb 2022 Chaco, Argentina

Presentación del Centro de Referencia de Enfermedades Poco Frecuentes de Chaco, Argentina. Recorrida por la provincia visitando hospitales y organismos...

ALD Makes Me Blue

1 Feb 2023

ALD Makes Me Blue is a collaborative fundraising coalition among international ALD organizations. It is the “Brain Child” of a...

All about rare diseases

24 Feb 2021 Nicosia, Cyprus

On 24 February 2021, the President of the Cyprus Alliance for Rare Disorders, Mr Charalambos Papadopoulos, will be giving a livestreamed...

All You Need is Love

11 Feb 2024 Montreal, Canada

We are thrilled to invite you and your family to our special Valentine’s event, « All You Need is Love », hosted...

Amleto è mio fratello

29 Feb 2024 Viterbo, Italy

Proiezione del film “Amleto è mio fratello” di Framcesco Giuffrè, fra gli attori un socio di Associazione Italiana Sindorme X...

Anglicare WA Lights Up and hosts a Rare Aware Light Projection Show

28 Feb 2022 Perth, Western Australia, Australia

Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...

Aniridia y Tumor de Wilms

4 Mar 2021 Online, Spain

Para conmemorar el Día Mundial contra el Cáncer (4 de febrero) y el #RareDiseaseDay (28 de febrero), trataremos el Tumor de...

Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...

Rare Diseases Awareness Day activities were held at Ankara University Rare Diseases Application and Research Center with the participation of...

ANMELDUNG ZUR PRAXISWERKSTATT

25 Feb 2022 Hannover, Germany

Die 4. Praxis-Werkstatt für Epidermolysis bullosa richtet sich wieder an Betroffene und deren Angehörige, Fachkreise, Freunde, Förderer und Interessierte gleichermaßen....

Anniversary Event in support of Rare Disease Day

29 Feb 2024 Naperville, United States

Join us for an evening celebrating Ellce Home’s 3rd year in our downtown Naperville showroom in which we will feature...

Annual Golf Outing

8 Jun 2022 Cleveland, United States

Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.

Annual RD Community Potluck

25 Feb 2024 Georgetown, Penang, Malaysia

A gathering of individuals and families from the rare disease community in the northern region of Malaysia ie Perak, Pulau...

Aperi-CIDP

23 Feb 2024 Milano, Italy

23 febbraio 2024, 17:00 CET Conosciamoci! Raccontiamoci! Un incontro per pazienti CIDP e GBS in collegamento Zoom con il Prof....

O Tito tem a doença rara Neurofibromatose Tipo 1 (NF1), e é a personagem principal deste livro infantil. Nesta história,...

In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...

ARENA DI VERONA -RARE DISEASE WEEK - VERONA NELLE ERN

22 Feb 2021 to 28 Feb 2021 VERONA, Italy

https://youtu.be/jWhpqb1PnhUACCENSIONE DELL’ARENA DI VERONA IN OCCASIONE DELLA GIORNATA MONDIALE DELLE MALATTIE RARE - In occasione della giornata mondiale delle malattie rare che...

We will be placing colorful Pinwheels in the lawn of the capital to signify patients who live in or have...

Arizona Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Arnprior Ontario Shares Our Colours

26 Feb 2022 to 28 Feb 2022 Arnprior, Canada

The Arnprior Museum will be lite with multi coloured lights Feb 26 – Feb 28.

Arpan for Charity invites you to Disco Dandia in jeans, supporting Rare Disease Day. This first is the first ever...

Arrío Bandera en Plaza de Mayo

28 Feb 2021 Buenos Aires, Argentina

1 abanderado niño y 1 adulto con EPOF serán los abanderados de las EPOF en el arrío de la Bandera...

TOMAS Y RODRIGO ABANDERADOS DE LAS EPOF Argentina Por séptimo año consecutivo, 28 febrero en el #DíaMundialEPOF en el arrío...

Art contest 2023

28 Feb 2023 to 30 May 2023 Paris, France

Our international art contest is organized by the Rare disease network of the René Touraine foundation. It is an opportunity...

Recognizing the difficulties caused by the pandemic, the social distancing and the inclusion of us parents, we organize an introductory...

ART4RARE 2021

28 Feb 2021

IndoUSrare presents ART4RARE 2021, our first Annual Kids Art Contest. Calling on kids everywhere to show off their artistic talents...

ART4RARE 2022

21 Jan 2022 to 21 Feb 2022 Herndon, United States

IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2022. This year’s theme...

ART4RARE 2023 - Annual Art Contest

1 Dec 2022 to 28 Feb 2023 Herndon, Worldwide

IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2023. This year’s theme...

The event puts together patients, specialists and journalists to raise awareness on rare diseases, diagnostic, access and prevention for next...

ASBBI - Guide dogs & Lifeguard dogs.

25 Feb 2024 CARNATE (Mb) - ITALY., Italy

The ACSN is dedicated to the training of lifeguard dogs and their handlers. Also there will be a demonstration of...

Ask the Doctor About Lymphoma is a two-hour program that combines a presentation by a medical doctor with an extensive...

Associazione Italiana Anderson-Fabry AIAF

28 Feb 2022 to 28 Feb 2023 Online, Italy

“A rare friend” is a special episode of the cartoon series “Leo da Vinci” and the idea was due to...

Presentazione dei progetti delle associazioni di pazienti che si occupano di malattie rare

AST informa

28 Feb 2022 CASTELVETRANO, Italy

Il centro commerciale Belicittà, bene confiscato alla criminalità organizzata, ha messo a disposizione un desk informativo in galleria per far...

ASU Clocktower Lights up for Rare

28 Feb 2022 Jonesboro, United States

The Arkansas State University clock tower will be lit up in honor of Rare Disease Day.

Atención integral en Enfermedades Raras

6 Mar 2021 San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Sucre, Santiago de Chile, Buenos Aires, Madrid, Barcelona, Badajoz, United States

Simposio iberoamericanoAtención integral en Enfermedades RarasEl caso de los Trastornos Hereditarios del Tejido Conectivo«Un marco estratégico para Latinoamérica»Hashtag: #THTC2021El simposioEl...

Ausstellung "Selten Allein"

13 Feb 2023 to 12 Mar 2023 Erfurt, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

21 Feb 2023 to 12 Mar 2023 Dresden, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

21 Feb 2023 to 12 Mar 2023 Mainz, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

22 Feb 2023 to 12 Mar 2023 Berlin, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

24 Feb 2023 to 12 Mar 2023 Mannheim, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Avances en Neuropatías Inflamatorias

28 Feb 2022 Online, Spain

First Inflammatory Neuropathies’ Virtual Conference in Spanish.

Awareness & Management of Rare Diseases

28 Feb 2022 GUNTUR, India

Awareness & Management of Rare Diseara Webinar by Women’s Forum of IPGA AP

Awareness & Management of Rare Diseases

28 Feb 2022 Guntur, India

Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...

Awareness day of pediatric rare diseases

28 Feb 2023 Triploi, Libya

Let us be together, empowering rare patients and their families to be rare, strong, and proud.

Awareness For RARE DISEASE DAY

28 Feb 2023 Buena park, United States

We are gathering at Southwest Mountain States Carpenters Union Local 714 support of Raising Awareness for Rare Diseases.

Awareness of our fellow citizens

25 Feb 2022 Pefki, Greece

The young students of the first grade of our school communicated with the citizens of Pefki, handed out leaflets, the...

As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...

BARRILETEADA POR LAS ENFERMEDADES RARAS

28 Feb 2021 Bs As, Argentina

Under the slogan: "MAKE YOURSELF VISIBLE", and within the framework of the International Campaign for Dissemination and Awareness for Rare...

Be part of the Rare Day Film

29 Feb 2024 to 17 Mar 2024 Manchester, United Kingdom

On International Rare Disease Day 2024 we are asking people around the world to capture a simple clip of something...

Be RARE Finish Line Run powered by MDA

6 Feb 2021 to 28 Feb 2021 ATHENS, Greece

All of Greece, the whole world, is becoming one route!The race is organized by MDA Hellas (Association for the care...

Be Rare Spirit Day

28 Feb 2022 San Antonio, United States

Be Rare Spirit Day, which was planned, organized, and hosted by Abigail Villarreal will take place at Thomas Jefferson High...

Being mind-full. Wellness for people living with a Rare DiseaseWe welcome everyone to join us online to iscuss mental health...

Belfast City Hall Light Up

28 Feb 2021 Northern Ireland, United Kingdom

Northern Ireland Rare Disease Partnership (NIRDP) are really excited to share that the Iconic Belfast City Hall, in Northern Ireland will...

Rare diseases are gaining traction as a pressing health priority worldwide. We have now seen the first-ever UN Resolution on...

Program: Launch a live monthly support call program for patients and families: https://invinciblevision.org/calls-sign-up/ Launch the new Invincible Vision website and...

Bike 4 Rare Disease Day 2024

17 Feb 2024 Ferrara , Italy

🇮🇹 #BIKE4RAREDISEASEDAY 2024: Ferrara-San Luca 😎 Torna la social ride dedicata alla Giornata delle Malattie Rare, che si celebra ogni...

Bike4RareDiseaseDay

26 Feb 2023 Ferrara , Italy

In occasione della Giornata delle Malattie Rare (che si celebra l’ultimo giorno di febbraio) domenica 26 febbraio si terrà il...

Black Pearl Awards 2021

24 Feb 2021 Digital, United States

Online. Public registration coming soon!For more information please see the Black Pearl Awards website or email [email protected].

Bloco do Xulé Xêroso

24 Feb 2024 Uberlândia, Brazil

Bloco do Xulé Xêroso é um evento de conscientização sobre as doenças raras que se aproveita de outra data bem...

BOKS vzw laat EDELWEISS klinken

28 Feb 2023 BEVEREN-WAAS, Belgium

Klankjorum zingt het liedje EDELWEISS. Hiervan is een filmpje gemaakt om de boodschap van zeldzame ziektendag te verspreiden via social...

UNA PRESA IN CARICO PIU’ EQUA ED OLISTICA DI UNA PERSONA CON MALATTIA RARA: IL TAVOLO RETE METROPOLITANA MALATTIE RARE,...

Book launch / Ηonorary distinction Dr. Anastasiades, Geneticist

25 Feb 2022 Nicosia, Strovolos Cultural Centre, Cyprus

We honor Dr. Anastasiadou, Founder of the Genetic Clinic in Cyprus due to her retirement. We launch children’s book ‘Unique...

Brno celebrates Rare Disease Day 2024

22 Feb 2024 Brno, Czech Republic

Seminar for health professionals, university and high school students, patients with rare diseases, caregivers and the public. Free admission. Limited...

Broadcast of the RDD radio spot – Antena 3 radio for Rare Disease Day in Portugal.

Broadcast of the RDD radio spot – Radio RFM for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – Canal Q for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – Porto Canal for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – RTP2, RTP Memória and RTP3 – Portuguese national TV channels for Rare Disease Day in...

Broadcast of the RDD TV spot – Sporting TV for Rare Disease Day in Portugal.

Broadcast of the RDD video – Brandstore advertising screens for Rare Disease Day in Portugal.

Broadcast of the RDD video – Centro Hospitalar do Porto, Porto for Rare Disease Day in Portugal.

Broadcast of the RDD video – Centro Hospitalar Universitário de Lisboa Central for Rare Disease Day in Portugal.

Broadcast of the RDD video – Hospital da Luz, Lisbon for Rare Disease Day in Portugal.

Broadcast of the RDD video – Serviços Sociais da Câmara Municipal Lisboa, Lisbon for Rare Disease Day in Portugal.

Broadcast of the RDD video / Posters – Carris buses, Lisbon for Rare Disease Day in Portugal.

Building Illumination

29 Feb 2024 All cities, Cyprus

Cyprus Alliance for Rare Disorders and the National Commitee for Rare Diseases co-organise the illumination of various buildins. Kick-off event...

Building ilumination

28 Feb 2022 Andorra La Vella, Andorra

The most important museum of art of Andorra participates in the building illumination for rare disease day.

Bulletin 1/2022 dedicated to Rare Disease Day 2022

28 Feb 2022 Prague, Czech Republic

Rare Diseases Czech Republic will publish a special bulletin dedicated to special project of some of our member patient organizations...

Bulletin Special- holistic care for patients with RDs

26 Feb 2021 to 28 Feb 2021 Entire Country, Czech Republic

A special issue of the bulletin which we dedicate to describing what entails such holistic care for a person with...

An educational program to learn more about a treatment in Cold Agglutinin Disease (CAD). Hear from a patient speaker living...

Cake Decorating Championship 2023.

28 Feb 2023 Budapest, Hungary

This is a cake decorating championship in cooperation with Roche Hungária Kft. The main topic is: Show your Colours. The...

California Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Caminata por las enfermedades raras

24 Feb 2024 San Luis Potosí , Mexico

Realizar una caminata para llevar el mensaje a más personas

CAMMINO DI PREGHIERA CON SOPHIE "ESSERE UMANI"

26 Feb 2024 San Martino Valle Caudina(AV), Italy

I bambini del catechismo cantano a sostegno delle malattie rare. Illuminazione monumento

ORE 17.15 NEI PRESSI DELLA MADONNINA FIACCOLATA, SANTA MESSA, VOLO DEI PALLONCINI E SUCCESSIVA ILLUMINAZIONE CHIESA

Papa Francesco riceve in udienza privata una delegazione di UNIAMO – Federazione Italiana Malattie Rare Presenti oggi in Vaticano 100...

“Una luz por las raras” es el nombre con el cual la organización del Día Mundial de Enfermedades Raras 2023...

El municipio de #Calarcá se une a la campaña mundial #UnaLuzPorLasRaras iluminando el Edificio de las Empresas Públicas de Calarcá...

El Puerto de Buenaventura se suma a la conmemoración del Día Mundial de Enfermedades Raras. Uno de sus íconos arquitectónicos,...

Campaña por el Día Mundial de las Enfermedades Raras

25 Feb 2023 Carmen de La Legua Reynoso, Lima, Peru

Campaña de Difusión, actividades recreativas y encuentro personas con enfermedades raras y sus familias. Promovido por Asociación Peruana de Pacientes...

Campanha frases de Impacto

1 Feb 2021 to 28 Feb 2021 Curitiba, Brazil

Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...

Campanha frases de Impacto

1 Feb 2021 to 28 Feb 2021 Curitiba, Brazil

Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...

CamRARE's Rare-i-Tea Party

3 Mar 2024 Cambridge, United Kingdom

Cambridge Rare Disease Network (CamRARE) invite you to join our community to celebrate Rare Disease Day 2024 at the wonderful...

The following locations/landmarks in Canada will be illuminated to mark 2021 Rare Disease Day: – CN Tower in Toronto, Canada – Calgary...

Cerramos una semana de acciones con un acto emblemático. A las 11 horas izaremos la bandera de la Unión Latinoamericana de...

Care for Rare awareness campaign

22 Feb 2021 to 7 Mar 2021

This year campaign moved in social media for continuing our activities initiated in 2013 and will focus on:*Press Releases in...

CareForRare support group webinar

22 Feb 2023 manama, Bahrain

Dear All We would like to invite you to join us and attend the “CareForRare Support Group” webinar on 22nd...

Our first event in our five-part series launches in honor of Rare Disease Day on February 19. This event will...

CAROVANA DELLA RICERCA II EDIZIONE

2 Mar 2024 BERGAMO, Italy

Sabato 2 marzo, in occasione della Celebrazione della Giornata Mondiale delle Malattie Rare (29 febbraio 2024), la Fondazione A.R.M.R ha...

Carry Hope 2022

28 Feb 2022

Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...

Carry Hope 2023 7.7KM Walk-A-Jog Challenge

26 Feb 2023 Sports Hub, 100PLUS Promenade , Singapore

We will be flagging off the campaign with the clocking of the 7.7KM run, or a choice of a 4KM...

Carry Hope 2024

7 Jan 2024 to 25 Feb 2024 Singapore, Singapore

Carry Hope is the annual rare disease awareness and fundraising campaign of the Rare Disorders Society (Singapore), or RDSS, in...

Casa dos Raros - Portas Abertas

29 Feb 2024 Porto Alegre, Rio Grande do Sul, Brazil

The House of Rares (Casa Dos Raros) will be opening its doors to welcome the rare disease community, families, professionals,...

Celebrating Rare Disease Day 2024

29 Feb 2024 GEORGETOWN, Malaysia

A colouring competition will be held from 1 Jan to 20 Feb 2024 for all ages. This is follow by...

Celebration of Rare Disease Day

29 Feb 2024 Prague, Czech Republic

Celebration for people with RDs on this special day. We will celebrate by attending to a theatre play on the...

The purpose of the event is to enhance awareness about the centers of excellence for rare endocrine diseases in Greece there...

The NGO called Cetatea Voluntarilor is the constant partner of Romanian National Alliance for Rare Diseases in organizing events to...

Champion Changemakers: Rare Disease

28 Feb 2022 National, Australia

This Rare Disease Day (28 Feb 2022), join women from three countries creating change in the world of Rare Disease...

Charity Basketball Match. Partit en benefici d'AMMA

6 Mar 2022 Andorra La Vella, Andorra

Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...

The Chinese Organization for Rare Diseases (CORD) plans three simultaneous charity sales in Beijing, Hunan and Hangzhou. The proceeds will...

Charla científica "Terapia Génica "

28 Feb 2023 Montevideo , Uruguay

Charla científica que se trasmite por el canal https://youtube.com/@fundacionfupieruy Para informar de manera responsable sobre los últimos avances de la...

Charla con experiencias de familias atravesadas por una EPOF

29 Feb 2024 Tandil, Provincia de Buenos Aires, Argentina

Se acerca el gran día ! El 29 de Febrero es el Dia Mundial de las Enfermedades Poco Frecuentes (...

Es un evento dirigido a pacientes y familiares de personas con enfermedades raras; que busca motivar a la población a...

Charla enfermedades raras

27 Feb 2024 Quito, Ecuador

Charla de la Dra. Mattos sobre las enfermedades raras. Escúchanos a través de nuestra radio online https://colegiomedicodepichincha.org/radio/

Charla introductoria sobre las enfermedades raras

Charla Virtual ” PREPARANDO LA PIEL PARA EL MAÑANA ” en pacientes con Malformación Anorrectal y Hirschsprung. Desde @amar.asociacion_padres, queremos...

Rarus Health SPA y FECHER organizará un seminario web especial para pacientes, cuidadores y especialistas de salud. En palabras sencillas,...

t’s time for our annual Rare Disease Day Celebration! Join us on Saturday, February 26, 2022 from 12pm to 3pm...

Join Congenital Hyperinsulinism International as we gather to share stories and experiences of patients and families with congenital hyperinsulinism worldwide....

Children's Hospital & Medical Center - Omaha, NE

28 Feb 2023 Omaha, United States

The hospital is lighting up for Rare Disease Day 2023!

Choroby rzadkie wcale nie są rzadkie! Zmagają się z nimi miliony ludzi w Polsce i na całym świecie. Dlatego 28...

Wydarzenie jest organizowane cyklicznie z okazji Dnia Chorób Rzadkich. Zapraszamy naukowców, lekarzy, diagnostów laboratoryjnych, pacjentów i inne osoby zainteresowane tematem.

Church of St. John the Evangelist in the Municipality of Logatec, in Slovenia, was lit up to raise awareness of...

Ciclo de conferencias: Una misma voz, un mismo espacio

28 Feb 2022 Ciudad de México, Mexico

Conversatorios con especialistas, personas que viven con enfermedades raras y personas cuidadoras.

Cincinnati Children's Hospital Medical Center Supports and Celebrates Rare!

27 Feb 2024 to 29 Feb 2024 Cincinnati, United States

Share Your Colors and Show Your Stripes on Rare Disease Day! A collaborative group of divisions within Cincinnati Children’s Hospital...

Ciné-débat

28 Feb 2023 7700 Mouscron, Belgium

Le 28 Février prochain, journée mondiale des maladies rares, notre association organisera dès 19:30 au Cinéma For&ver un ciné-débat ayant...

Ciné-débats gratuits, 100% digitaux. L’objectif est d’inviter chacun à ouvrir les yeux sur les maladies rares dans une démarche bienveillante...

Clock Tower Lighting

28 Feb 2022 Brampton, Canada

Brampton City Hall will be illuminating the Clock Tower on February 28th 2022 in Purple and Blue to recognize Rare...

Closing conference RDD2023

1 Mar 2023 Bucharest, Romania

The final conference will bring together all the partners that organized events and awareness campaigns during February and will present...

An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffin-Lowry Syndrome Star of the Day

1 Feb 2023 to 28 Feb 2023

Coffin-Lowry Syndrome Association, Romania is organizing a social media campaign to raise awareness on this rare disease. Each day of...

COLAZO ENTRE AMIGOS

27 Feb 2021 Región Oriente, United States

La tienda Trek - Bike  junto a varios patrocinadores estan invitando a participar en un COLAZO ENTRE AMIGOS, de 82...

Cold Dip in aid of Rare Ireland

24 Feb 2024 Clare, Ireland

Cold Water Dip in aid of Rare Ireland. Rare Ireland (RI) is a parent run charity, supporting families living with...

Colloque Scientifique Maladies Rares - Strasbourg

28 Feb 2023 Strasbourg, France

Dans le cadre de la Journée Internationale des Maladies Rares, la Fondation Maladies Rares, la plateforme d’expertise Maladies Rares « Est Rare », et leurs partenaires, dont SENSGENE,...

Colloquium organised by The National Alliance for Rare Diseases Support - Malta and the University of Malta Biobank entitled: “Patients...

Colorado Rare Disease Day Celebration

29 Feb 2024 Denver, United States

Colorado, join us on the east steps of the Capitol at 1:30PM on February 29th for a picture at 2:00PM...

Colorado Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Colorful palms!

1 Feb 2022 to 1 Mar 2022 Москва, Санкт-Петербург, Воронеж, Тверь, Russian Federation

Colorful palms! Our organization for the support of patients with Duchenne and Becker muscular dystrophy in Russia joins the international...

Colour Flair for Rare

24 Feb 2021 to 27 Mar 2021 Northern Ireland, United Kingdom

COLOUR FLAIR FOR RARERare Disease Day 2021Delighted to share our #RareDiseaseDay Colouring Challenge to raise awareness. Its a very simple...

colourUp4RARE

26 Feb 2024 to 3 Mar 2024

This campaign is aimed at the public and is a joint action by the pharmaceutical and health companies Alexion, Chiesi,...

colourUp4RARE Live-Event

28 Feb 2023 80331 München, Germany

For Rare Disease Day 2023, Alexion Germany in partnership with CBT, MSD_Deutschland, Novartis-Deutschland, Takeda, UCB and supported by Ravensburger will...

colourUp4RARE public event

29 Feb 2024 Munich, Germany

Public live event in Munich’s city centre in the shopping hotspot Hofstatt on 29 February 2024, starting at 01:00 pm,...

💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ 28 FEBBRAIO – GIORNATA DELLE MALATTIE RARE 💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ Abbiamo pensato ad una puntata speciale per tutti voi: 👩‍⚕️COME SI...

Community campaign

1 Feb 2024 to 29 Feb 2024 Zalau and all the country, Romania

PLWRD and their organizations will organize awareness events in schools, art exhibitions, will illuminate buildings, houses etc.

Community Heroes Rare Disease Day Panel Discussion 2022

28 Feb 2022 Goldsboro, United States

Community Heroes and advocates partake in the observance to raise awareness of rare diseases and their impact on patients and...

Cómo ser un buen cuidador, pero cuidándome.  Evento dirigido a padres y madres. 

Concienciacion de las Enfermedades Raras

25 Feb 2022 Ibarra, Ecuador

Daremos charlas con profesionales de la salud, Defensoria del Pueblo para hablar de los Derechos, y experiencias personales de personas...

Concorso "Parla di CMT"

1 Feb 2023 to 28 Feb 2023

Per celebrare la Giornata delle malattie rare 2023, ACMT-Rete, associazione di pazienti affetti da Charcot-Marie-Tooth, promuove il concorso «Parla di...

Concurs Fotogràfic Malalties Minoritàries

31 Jan 2021 to 25 Feb 2021

Podrà participar en el concurs qualsevol persona major de 16 anys i resident al Principat d’Andorra. No poden participar els...

Concurso de dibujo "mi vida con EB"

10 Feb 2021 to 20 Feb 2021

1er Concurso de Dibujo Debra México “Mi Vida con EB” Celebrando el Día Internacional de los Padecimientos RarosMándanos un dibujo con...

Concurso de Redes Sociales en el Día Mundial de las Enfermedades Raras

25 Feb 2022 to 28 Feb 2022 Guadalajara, Mexico

Los alumnos de la Facultad de Medicina de la Universidad Autónoma de Guadalajara compartirán sus fotos, en las Redes Sociales,...

Los alumnos de la materia de Genética y Medicina Genómica participarán en nuestro concurso de redes sociales en señal de...

Concurso Fotografico Rare Disease Day

1 Feb 2021 to 28 Feb 2021

II Concurso Fotografía ‘Rare Disease Day’ de Yo NemalínicaPor segundo año lanzamos nuestro #concursofotografico ‘Rare Disease Day’, sumándonos así a...

Panel discussions and clinical presentations for patients and healthcare professionals. The aim is to lead information sessions and fruitful discussions...

Conference on Rare Skin Diseases

23 Feb 2021 Kaunas, Lithuania

Since 2016 every year in February the Department of Skin and Venereal Diseases of the Lithuanian University of Health Sciences...

Monday, March 1, 13 PM. remotely there will be a conference on Youtube ′′ Genetics Revolution - are we ready...

Conferences Virtuelles

27 Feb 2021 to 28 Feb 2021 Abidjan, Ivory Coast

Due to the covid 19 pandemic we are organizing two virtual conferences from February 27 to 28, 2021 from 8:30...

CONFERENCIA

3 Mar 2021 LEON, Spain

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org 

CONFERENCIA ¿Qué es la uveitis?

4 Mar 2021 LEON, Spain

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org 

La conferencia correrá a cargo de la doctora Berta de la Cerda Haynes y el doctor Álvaro Plaza Reyes, investigadores...

Conferencia: “Aceptación y Resiliencia”, Si tenemos en cuenta que el 85% de las Enfermedades Raras son crónicas, el 65% son...

En el marco de la Primera Conmemoración del Día Estatal de las Enfermedades Raras en Quintana Roo. ¡Conmemorando y trabajando...

La Iniciativa pensemos en Cebras México y Mujer México, convocan una Conferencia de prensa en el Senado de la República...

Conferenza Stampa conclusiva "Giornata delle malattie rare: UNIAMO le forze", Mar 4, 2021 11:00 AM in Rome. Link per registrarsi https://zoom.us/webinar/register/WN_Y4FEbnWGSFWSEhuhquaHjQ 

Conferinta nationala Ziua bolilor rare 2023, Timisoara

24 Feb 2023 to 28 Feb 2023 Timisoara, Romania

Iluminarea cladirilor, expozitii de fotografie, de pictura, Conferinta nationala Ziua bolilor rare 2023, Timisoara

Join us on Zoom for a Rare Disease Day Gathering with members and friends of the hyperinsulinism community on Thursday,...

Conmemoración del día de las Enfermedades Poco Frecuentes en Chile

27 Feb 2022 to 28 Feb 2022 Santiago y regiones, Chile

En Chile, en el año 2020 se decretó el último mes de febrero como el “Día Nacional de Educación y...

Inter-Institutional virtual event organized by civil associations of patients and their families with the support of the pharmaceutical industry that...

Aliados Proyecto Colaborativo Ruta de Enfermedades Huérfanas

Conmemoración Día Mundial de Enfermedades Raras 2023 Aliados proyecto Colaborativo Ruta de Enfermedades Huérfanas Parque espíritu del Manglar. Playón Del...

Conmemoración Día Mundial de Enfermedades Raras 2023 ACPEIM y Universitario San Ignacio

Conmemoración Día Mundial de Enfermedades Raras 2023

Mesa técnica de enfermedades huérfanas de Cali, CIAFER, FECOER, organizaciones sociales del Valle del Cauca y Aliados Proyecto Colaborativo Ruta...

Conmemoración Día Mundial de Enfermedades Raras 2023

Conmemoración Día Mundial de Enfermedades Raras 2023

Iniciativa Pensemos en Cebras México, Fundación Mujer México, Angelman México. 👉Sumando esfuerzos con el Gobierno del Estado de México, la...

Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Connecting Hands, Connecting Rare

29 Feb 2024 Calgary, Canada

We are excited to invite you to our Rare Disease Day event in Calgary on February 29, 2024! Our theme...

El 28 de febrero se celebra el Día Mundial de las Enfermedades Raras y para conmemorar este día y darle...

Conociendo más de las raras

2 Mar 2023 Medellín, Colombia

Mesa de Enfermedades raras para Antioquia y Red de Técnica por las Enfermedades Huérfanas de Antioquia

convegno descriviAMO la rarità

23 Feb 2024 montesarchio , Italy

Momento d’incontro con le famiglie rare e il mndo delle istituzioni

Conversation round

27 Feb 2022 Online, Luxembourg

For Rare Disease Day 2022, we invite you to an online “Conversation round” on February 27 at 3 p.m. Everyone...

Conversations for the month of rare diseases

9 Feb 2021 to 28 Feb 2021 Santiago y Regiones, Chile

The Chilean Federation of Uncommon Diseases (FENPOF) comprises leaders of rare disease associations that seek to create awareness and promote...

Conversatorio «Unificando criterios»

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

FEMEXER, la UNAM y el Museo de la Mujer se unen en un conversatorio fresco y desenfadado para tratar un...

 https://meet.google.com/vgb-vhvc-jyu

Conversatorio por la conmemoración del Día Mundial de Enfermedades Raras

Cores Raras

18 Feb 2023 to 28 Feb 2023 São Paulo, Brazil

Potencialidades Raras Somos um grupo de 10 mulheres raras com potencialidades diversas entre nós. Nos unimos para mostrar ao mundo...

Corre y ayuda 2021

26 Feb 2021 to 28 Feb 2021 Online, United States

Online race, 5K and 10K for men and women, for raising awareness and funds for ECHS1 Deficiency and Mitochondrial Disease.

Cortège de vélos

27 Feb 2022 la majorité des gouvernorats de tunisie, Tunisia

Dans la majorité des gouvernorats de Tunisie les scouts sortiront de leurs clubs moyennant leurs vélos en portant les bandes-rolles....

Cousins together

25 Feb 2022 to 28 Feb 2022 Santo Domingo, Dominican Republic

Take a photo wearing the colors of Rare Disease and post it using #RareDiseaseDay #showyourcolours #showyourrare #cousinstogether

Koronavirüs hastaliginin çocukları da ciddi şekilde etkilemeye başladı.Çocuklarda Multisystem Inflammatory Syndrome (MIS-C), COVID-19 ile enfekte kullanım sağlığını riske atıyor.Pandeminin başladığı...

Programa do Segundo Seminário do Conselho Municipal de Saúde/Secretaria Municipal de Saúde – Cuidando das Pessoas com doenças Raras e...

Cumbre nacional de enfermedades raras

24 Feb 2021 to 26 Feb 2021

Cumbre Nacional de Enfermedades RarasEs hora de construir oportunidades por un mundo sin barreras.

In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...

16 years ago we were starting a journey with an unforeseen destination, entering with small steps into a world full...

Dan Rijetkih Bolesti

28 Feb 2021 Gracanica, Bosnia and Herzegovina

The Association of Rare Disease Patients registered in Bosnia and Herzegovina is organizing an online event to mark the Rare...

Danzando per arrivare….come un palloncino al cielo. Scuola di danza Giselle diretta da Gioia Concetta ore 18:30 ILLUMINAZIONE FONTANA DI...

Dare. Love. Share: Raising Rare Disease Awareness Towards Equity in Healthcare

28 Feb 2023 to 25 Mar 2023 Dasmariñas City, Cavite, Philippines

Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...

Dare. Love. Share: Raising Rare Disease Awareness Towards Equity in Healthcare

28 Feb 2023 to 25 Mar 2023 Dasmariñas City, Cavite, Philippines

Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...

L’organisation de plusieurs conférences l’Amyotrophies Spinales Infantiles (SMA) en collaboration avec Service de Neuropédiatrie de l’INN la Rabta, L’institut Pasteur...

Declaración institucional de AFASW

29 Feb 2024 Gandía (Valencia), Spain

A las 12:00h. a los pies del Ayuntamiento de Gandía (Valencia), se procederá a la lectura del manifiesto del Día...

declaratoria de los derechos de las personas con enfermedades raras

22 Feb 2024 Zapopan Jalisco, Mexico, Mexico

evento a lapoblacion abierta con feria de la salud y evento musical participacion de autoridades de salud municipales y declaratoria...

Delaware Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Derby Theatre lit up for Rare Disease Day

29 Feb 2024 Derby, United Kingdom

Derby Theatre will be illuminated from 7pm to recognise Rare Disease Day. Students of the BSc Sound, Light, and Live...

DES KMS SOLIDAIRES

28 Feb 2021

La Fondation Maladies Rares vous invite à participer à la Journée internationale des maladies rares pour soutenir les 3 millions de personnes...

Si affronteranno argomenti molto cari ai malati rari ovvero il diritto alla genitorialità, come diventare genitori e il sostegno psicologico...

Dia Da Doença Rara 2022

27 Feb 2022 Lagos, Portugal

Caminhada para assinalar o dia da doença rara , inicia junto a estatua de são Gonçalo e acaba junto do...

Dia das Doenças Raras

8 Feb 2021 to 28 Feb 2021 São Paulo, Brazil

Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...

Dia das Doenças Raras

6 Feb 2021 to 28 Feb 2021 São Paulo, Brazil

Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...

DIA DAS DOENÇAS RARAS - Sociedade Brasileira de Pediatria

28 Feb 2023 to 4 Mar 2023 Curitiba, Brazil

DIA 28/2 LIVE PARA PUBLICO GERAL SOBRE OS DIREITOS DAS CRIANÇAS COM DOENÇAS RARAS DIA 4/3 LIVE PARA MÉDICOS SOBRE...

14h00| SESSÃO DE ABERTURA Sérgio Faria residente da Direção da AAADMJ Dr. Clélio Meneses Secretario Regional da Saúde e Desporte...

Día de las Enfermedades Pocos Frecuentes

29 Feb 2024 to 1 Mar 2024 María Teresa , Argentina

En una nueva jornada de concientización, la Comuna de María Teresa conmemoró el Día de las Enfermedades Pocos Frecuentes iluminando...

DIA DE LAS ENFERMEDADES RARAS

28 Feb 2022 AGUASCALIENTES, Mexico

RARE DISEASE DAY

Desde el Ministerio de Salud de la Nación de Argentina conmemoramos el Día Internacional de las Enfermedades Poco Frecuentes con un...

ACTIVIDAD DE EDUCACION Y SENSIBILIZACION SOBRE ENFERMEDADES RARAS Y ANOMALIAS CONGENITAS

This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...

Dia Mundial das Doenças Raras

28 Feb 2022 Sintra | Agualva Mira Sintra, Portugal

A Junta de Freguesia de Agualva Mira Sintra no dia 28 de fevereiro irá assinalar o Dia das Doenças Raras...

Dia Mundial das Doenças Raras

29 Feb 2024 Cuiabá, Brazil

Evento para discutir e expor a realidade das Doenças Raras no Brasil e, especialmente, no estado de Mato Grosso

Dia mundial das Doenças Raras - ASPEC BRASIL

26 Feb 2021 to 28 Feb 2021 On line, United States

Dia Mundias das Doenças Raras 2021A associação de Paraparesias Espaastica Correlatas do Brasil ira promover nos dia 26 a 28...

9:30-13:30h Webinar with the participation of several entities. The event has three main sessions. Organização: Mirror Group Português do Programa...

Día Mundial de las Enfermedades Poco Frecuentes

29 Feb 2024 to 1 Mar 2024 Rosario, Argentina

“Mostrar tus colores” es la iniciativa de Rare Disease Day, en la cual nos sumamos una vez más. Este movimiento...

DÍA MUNDIAL DE LAS ENFERMEDADES RARAS

28 Feb 2021 CAMPO DE CRIPTANA, CIUDAD REAL, Spain

Os animamos a grabar un vídeo con nuestro lema: LA INVESTIGACIÓN, NUESTRO CAMINO A LA ESPERANZA. Podéis hacérnoslo llegar por...

Foro Legislativo en conmemoración del Día Mundial de las Enfermedades Raras 2024 “No dejar a Nadie Atrás” y Evento de...

Plática para medicos y pacientes en conmemoración de las enfermedades raras.

Día Mundial de las EPOF - Argentina

28 Feb 2023 Ciudad de Buenos Aires, Argentina

Junto a las organizaciones que son parte de ALAPA organizamos un evento para difundir y concientizar sobre las Enfermedades Poco...

Día Mundial y Nacional de las Enfermedades Raras.

26 Feb 2022 Ciudad de México , Mexico

Evento conmemorativo al día mundial y nacional de las Enfermedades Raras.

Diagnosing rare eosinophilic diseases, HES, and EGPA

23 Feb 2022 Virtual Event, United States

We are pleased to invite you to attend a GSK-sponsored educational programme, “Diagnosing rare eosinophilic diseases, HES and EGPA: Celebrating...

Diamoci una mano - Hands4Rare

27 Feb 2022 Padova, Italy

On the occasion of the 15th edition of the Rare Disease Day, the Department of Biomedical Sciences of the University...

Die Seltenen Im Blick Haben

2 Mar 2024 Bielefeld, Germany

In Bielefeld laden seit 2009 alljährlich Selbsthilfegruppen unterstützt von Der Paritätische NRW – Selbsthilfe-Kontaktstelle Bielefeld und der Heimat Krankenkasse zu...

Digital Exposition A Rare look

29 Feb 2024 to 31 Jul 2024 Porto, Portugal

The exhibition aims to provide an in-depth view of the vulnerability and strengths of patients affected by various neurodegenerative and...

Digital Poster

25 Feb 2021 to 28 Feb 2021 İzmir, Turkey

İzmir ili Dijital billboard ve toplu taşıma araçlarında videomuz yayınlanacak.

Digital Stories Screening

5 Mar 2023 Vancouver, Canada

You’re invited to our Rare Disease Day celebration on March 5, 2023 from 2-3pm PST. This year, we are highlighting...

Diretta Facebook ore 16 con il dr. Squitieri che risponderà alle domande dei giovani sulla malattia di Huntington e sugli...

𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...

Diversity of Rare Diseases

23 Feb 2022 Bucharest, Romania

Colors have a strong symbolism for people around the world. This year the theme of the global campaign dedicated to...

Do something rare with your hair

7 Feb 2023 to 28 Feb 2023 Western Australia, Australia

Sign up, get sponsored and rock bad hair for a good cause on Feb 28 and you’ll make an incredible...

On Rare Disease Day 28.02.2022 1:00 PM EST Documentary Short Film Premier A Mother & Son Journey of Healing created...

Doenças Raras - Desafios e Avanços

23 Feb 2022 São Paulo, Brazil

Rare diseases – challenges and advances A conversation on public policies, patient rights and access to diagnosis and treatment. Online...

Donate to Win Luxury Prizes! US & UK

28 Feb 2023 to 31 Mar 2023 Online, United States

In honor of Rare Disease Awareness month, The Children’s Rare Disorders Fund has launched its first annual Donate to Win...

Donate,Recycle,Make happy

1 Feb 2023 to 14 Feb 2023 Prilep, North Macedonia

We’re counting down 90 days to RDD! 💜💚💙 #Donations #Humanitarianevents In anticipation of February 28 2023-International Day of Rare Diseases...

Dr. Santiago March y los avance en medicina geómica

28 Feb 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...

Dream playground - dream life for every child"

23 Feb 2024 to 2 Mar 2024 Prilep, North Macedonia

💜💙💚🩷🩵 “Playground of dreams – life of dreams for every child” is an event organized by ZLRBP “My Rare World”...

Dreams unite

22 Feb 2021 to 28 Feb 2021

Social media campaign with video about people with rare diseases: we live with same dreams, needs, emotions as everyone else....

Drive By Rare Disease Day

28 Feb 2021 Sta Cruz, Aruba

Infinity Family Car ClubNitroxx ArubaTeam X-pa Aruba Family and Friends did organized a drive by on 28 febr 2021.Media was there...

A panel discussion on drug development and clinical trials in rare diseases

Duke Inflammatory Breast Cancer Consortium Tabling

28 Feb 2022 Durham, United States

The Duke Consortium for Inflammatory Breast Cancer will be tabling on the Bryan Center Plaza from 10am to 2pm in...

Duke Student-led Rare Cancer Coalition

28 Feb 2023 Durham, United States

Undergraduate students from Duke University and North Carolina Central University will share information about rare cancers and encourage participation in...

Duna Aréna lights up for rare

28 Feb 2022 Budapest, Hungary

Duna Aréna (Danube Arena), the world-class swimming and water sports complex overlooking the Danube, will be the first ever building...

Dunya Nadir Hastaliklar Gunu, Nadir Hastaliklarda Tani Yolculugu temasi ile 28 Subat 2022 tarihinde cevrimici etkinlik olarak duzenlenecek.

Już po raz czwarty Instytut Biochemii i Biofizyki PAN organizuje sympozjum w Międzynarodowym Dniu Chorób Rzadkich. Tym razem wydarzenie „Dzień...

Pak-IMD Net: Patient Support Group Meeting: Living Better with IMD’s in PakistanEngaging patients & families of patients with inherited metabolic...

E-Séminaire national des maladies rares

28 Feb 2023 Alger, Algeria

L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organise conjointement un E-Séminaire national des maladies rares...

E-Séminaire national des maladies rares

28 Feb 2023 Alger, Algeria

L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organisent conjointement un E-Séminaire national des maladies rares...

Edmonton High Level Bridge Illumination

27 Feb 2022 Edmonton, Canada

The Edmonton High Level Bridge will be illuminated in pink, blue, and green in honour of Rare Disease Day.

Education for students

28 Feb 2021 online, Serbia

On the occasion of celebrating the Day of Rare Diseases in 2021, NORBS is organizing an educational program for students of...

Educational campaign in schools and universities

15 Feb 2022 to 28 Feb 2022 Zalau, Cluj, Timisoara, Bucuresti, Iasi, Botosani;, Romania

We will organize different events online `and face to face to raise awareness regarding the needs of students with rare...

Educational forum for journalists

10 Feb 2022 Belgrade, Serbia

Educational forum for journalists, titled “GIve a world a little colour, Rare are Many” (srb “Dodaj svetu malo boje, retkih...

Educational lecture for students

7 Mar 2022 Online, Serbia

Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...

We are showing a new documentary about Rare in Iceland and  how the system is working ore not working in the...

El énfasis debe ser sobre las personas, no sobre las cifras

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...

Conferencia: El genetista como parte del equipo multidisciplinario : impacto en el abordaje de las enfermedades raras en pediatría

El martes 28 de Febrero a las 16 hs se realizara un evento con el objetivo de compartir los avances...

El próximo jueves 24 de febrero a las 19:00 h, en conmemoración por el Día Internacional de las Enfermedades Raras...

El ROL DE LOS PACIENTES EN EL DESARROLLO DE NUEVAS TERAPIAD

29 Feb 2024 Montevideo online, Uruguay

Charla a cargo de Iliara Borges , Co fundadora de FUPIER y Claudia Rodríguez Verde, Co fundadora de Raras Cro....

A week campaign dedicated to Rare Liver Diseases. One disease will be presented each day with contributions from both the...

Emotional Support for Coping with Uncertainty on your MMN Journey. Coping with Uncertainty Hosted by Foundation Health Navigator, Amy Stein...

Encendido conmemorativo del día de las enfermedades raras

28 Feb 2023 Atizapán de Zaragoza, Mexico

Diego de 13 años de edad portador de 17 mutaciones genéticas, tendrá el honor de realizar el encendido conmemorativo en...

Encendido de la Facultad de Medicina UANL

29 Feb 2024 Monterrey, Mexico

Encendido de la Facultad de medicina UANL 6:30 pm Frontispicio de la Facultad

Encontro do GAHP Blumenau

17 Feb 2024 Blumenau - Santa Catarina, Brazil

Encontro do GAHP – Grupo de Apoio as Famílias com Hipertensão Pulmonar realizado pela ABRAF – Associação Brasileira de HP...

O ICVS e a Escola de Medicina – Universidade do Minho uniram-se à Ponto Braguez para realizar uma caminhada solidária/visita...

Encontros raros: cientistas por um dia

24 Feb 2023 Braga, Portugal

Convidamos os pacientes com doenças raras, as suas famílias e cuidadores a visitarem-nos no dia 24 de fevereiro (sexta-feira), no...

My name is Leah Haynes and I am the co-founder of a Canadian-based registered charity called Endometriosis Events. Endometriosis Events...

[EN]LBioMiT & CNC (Center for Neuroscience & Cell Biology) Communication Office celebrate RDD2021! With interventions of scientists, doctors, patients & their caregivers,...

Instagram Live de difusión de información sobre enfermedades raras.

En el mes de Febrero se llevó a cabo el evento virtual ‘Enfermedades Raras en Latino América: diálogo con expertos’...

ENFERMEDADES RARAS, UNA MATERIA DE TODOS

25 Feb 2022 La Nucía, Spain

El próximo viernes 25 de Febrero, Antonia Escudero, presidenta de AHEDYSIA impartirá una charla con motivo de la celebración del...

El día 24/2 se realizará un webinar destinado a estudiantes de odontología y a odontólogos para que conozcas aspecos etiológicos,...

Enfermedaes Raras en Endocrinologia

28 Feb 2022 Caracas, Venezuela

Será una reunión por zoom, cuyo objetivo es concientizar a médicos sobre la existencia de enfermedades raras e Endocrinologia, donde...

Entrevista a FEMEXER por Canal Once TV

28 Feb 2023 En línea, Mexico

Entrevista televisiva para hablar del Día de las Enfermedades Raras.

Entrevista a FEMEXER por El Universal

28 Feb 2023 En línea, Mexico

Entrevista con un medio de comunicación para hablar de las enfermedades raras.

Entrevista a FEMEXER por Noticieros Televisa

28 Feb 2023 En línea, Mexico

Entrevista de un reportero de la cadena de televisión Televisa para hablar de las enfermedades raras.

Entrevista con Joaquín Farga

27 Feb 2023 En línea, Mexico

Entrevista al Dr. Joaquín Carrillo Farga, director del Instituto Nacional de Hematopatología en México. Es el médico que más sabe...

Entrevista con Santiago March

27 Feb 2023 En línea, Mexico

Entrevista al Dr. Santiago March Mifsut, coordinador del consejo de Nuevas Tecnologías, en la Fundación Mexicana para la Salud (Funsalud).

ERN ReCONNET

22 Feb 2020

We will organise a meeting between Italian representatives of European Reference Networks on 22nd February. We will illuminate the Leaning...

In Graz arbeiten die Kinderklinik und das Genetikinstitut eng zusammen, um Patient*innen mit seltenen Erkrankungen eine Diagnostik am neuesten Stand...

En el marco de la “I Campaña Informativa sobre Enfermedades Raras en Honduras”, la Fundación Hondureña para la Salud Hepática (FUNHEPA), Fundacion...

Escuchando Raro

22 Feb 2021 to 3 Mar 2021 Todo México, Mexico

Visibilizar, concientizar y difundir información acerca de las enfermedades raras o poco frecuentes y la salud auditiva en México, principales...

Nuestro comité Científico representado por dos grandes referentes de nuestro País,Dr. Victor Raggio               ...

L’ISTITUTO COMPRENSIVO “RADICE-ALIGHIERI” CATONA RC _SCUOLA SECONDARIA DI PRIMO GRADO partecipa alla sensibilizzazione della Giornata delle Malattie Rare 2024, con:...

The following locations/landmarks in Estonia will be illuminated to mark 2021 Rare Disease Day:- TV Tower EstoniaDisclaimer: Illuminations organised by Andrew Bannister...

Os presentamos la nueva canción de Alex García a.k.a. AlexPunto0, uno de nuestros héroes que vive con una enfermedad rara.Alex nos ha...

We are thrilled to announce the eagerly awaited second edition of the Europe Rare Disease Summit, set to take place...

EURORDIS Black Pearl Awards 2022

8 Feb 2022 Paris (Virtual), France

The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...

EURORDIS Black Pearl Awards 2023

21 Feb 2023 Brussels & Online, Belgium

The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...

Evento Bari Campagna RDD 2023

20 Feb 2023 Bari, Italy

Anche Bari viaggia con il colori del #RareDiseaseDay Questa mattina il taglio del nastro nel capoluogo pugliese Grazie al Sottosegretario...

Cebras México-Mujer México-XLH México, participarán en el evento protocolario organizado en conjunto con la Comisión de Salud de la Cámara...

Evento conmemorativo de Iluminación en el Senado de la República 2023

27 Feb 2023 to 28 Feb 2023 Ciudad de México, Mexico

Se lleva a cabo el evento conmemorativo de Iluminación en el Senado de la República 2023. En conjunto con la...

Evento de Concientización de las Enfermedades Raras en la UAG

22 Feb 2021 to 26 Feb 2021 Zapopan, Mexico

Como cada año, los alumnos de la Facultad de Medicina de la Universidad Autónoma de Guadalajara (UAG), en colaboración con...

In diretta streaming il 1 febbraio dalle ore 10.30 l’evento Uniamo Federazione Italiana Malattie Rare onlus di presentazione della campagna...

Evento Firenze Campagna RDD 2023

6 Feb 2023 Firenze, Italy

Conferenza Stampa di lancio del tram Sirio della tranvia #uniamoleforze #rarediseaseday. Grazie ab Eugenio Giani , Simone Bezzini Serena Spinelli...

Evento Genova Campagna RDD 2023

16 Feb 2023 Genova, Italy

#UNIAMOLEFORZE – RARE DISEASE DAY – CITTA’ DI GENOVA Comune di Genova – Salone di Rappresentanza Palazzo Doria-Tursi – Via Garibaldi, 9...

La Conferenza Stampa ha inaugurato la campagna #UNIAMOleforze sul circuito Mupi, che avrà luogo nella città di Napoli dal 15...

Con motivo del día mundial de las enfermedades raras, vamos a preparar desde FEDER una serie de acciones online en...

La campagna di sensibilizzazione #uniamoleforze dedicata alle malattie rare, lanciata nel mese di febbraio che culmina con la giornata dedicata...

Events of LBioMiT for RDD - Coimbra,Portugal & Online

4 Feb 2023 to 28 Feb 2023 Coimbra, Portugal

Daily posts on facebook (LBioMiT). All of February and early March. Eyes on You: LHON – avarias na fábrica de...

Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...

We will share our colours and have a afternoon coffee break sharing information about rare diseases and some of our...

Exchange of views to mark the Rare Disease Day

29 Feb 2024 Strasbourg, France

On the 29th of February, to mark the Rare Disease Day, SANT committee will hold an exchange of views with...

Exhibition

28 Feb 2023 to 30 May 2023

The rené touraine foundation and its rare disease network are organizing their art contest. Each year, all the drawings of...

Exhibition in Second Life (Virtual World)

8 Feb 2021 to 28 Feb 2021 San Juan, Puerto Rico, Puerto Rico

This is an exhibition in the Virtual World Second Life. Community Virtual Library https://www.facebook.com/CommunityVirtualLibrary and Conrado F. Asenjo Library https://www.upr.edu/biblioteca-rcm  made...

Expertos: pacientes, profesionales y cuidadores

11 Mar 2023 Medellín, Colombia

Expertos: pacientes, profesionales y cuidadores Mesa de enfermedades raras para Antioquia y red técnica por las enfermedades huérfanas de Antioquia,...

EXPOSIÇÃO FOTOGRÁFICA NO METRÔ DE SÃO PAULO

2 Feb 2023 to 1 Mar 2023 SÃO PAULO, Brazil

Quem vê cara, não vê dor! Na exposição fotográfica que está no metrô de SP neste mês você vai conhecer...

Exposição Somos Todos Raros

14 Feb 2022 to 6 Mar 2022 Fortaleza, Brazil

Com objetivo de sensibilizar a sociedade civil com casos reais e impactantes de famílias raras e sua jornada de superação,...

Exposición del Mes de las Enfermedades Raras 2021

6 Feb 2021 to 28 Feb 2021 Panamá, Panama

FEBRERO MES DE LAS ENFERMEDADES RARASLa fundación AYOUDAS Panamá da inicio a sus actividades y campaña de difusión masiva para...

Exposition Les reflets du handicap invisible

29 Feb 2024 to 15 Apr 2024 Bordeaux, France

C’est une exposition pour mettre en lumière le quotidien de ceux qui vivent avec un handicap invisible. Elle se compose...

Faccia da CMT

1 Feb 2021 to 21 Feb 2021

Per far comprendere a chi non le vive quali siano le sfide che le persone che convivono con la CMT devono...

Facciamo luce sulle malattie rare

28 Feb 2023 Aquileia , Italy

Evento di sensibilizzazione in occasione della Giornata Mondiale delle Malattie Rare presso il Comune di Aquileia, Friuli Venezia Giulia 💙💚🩷💜...

Facciamo luce sulle malattie rare

28 Feb 2022 Pomigliano d’Arco , Italy

Illuminazione

Faces of CMT

1 Feb 2021 to 28 Feb 2021

To mark Rare Disease Day 2021, the European CMT Federation is hosting a global ‘Faces of CMT’ Photography competition in...

Fællesarrangement - Sjældne-dagen 2024

29 Feb 2024 København, Denmark

Sjældne Diagnoser afholder fællesarrangement d. 29/2-24 kl. 17-18. På programmet er: Velkomst v. Birthe Byskov Holm Premiere på Sjældne-sang Overrækkelse...

FAIR FOR THE RARE

28 Feb 2021 strovolos, Cyprus

An all day online event with activites for children and parents. -story telling. 5 actors are reading the stories in an...

Faith Over Fwat

17 Feb 2023 Grand Rapids , United States

Desmoid Tumor awareness event at both the girls and boy’s basketball games.

Mesa Enfermedades Raras Para Antoquia

FDA's Rare Disease Day 2023

27 Feb 2023 Virtual Only, United States

We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open...

The future of rare diseases starts today - Recommendations from the Rare 2030 Foresight StudyThis event will be the culmination...

FEMEXER y ULAPA invitan

11 Mar 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...

FEMEXEResiliente

20 Feb 2021 (Online), Mexico

Webinar about resilient organizations, and within this framework we will share what the experience of 2020 was like and the...

FEMEXEResillient Carousel

25 Feb 2021 to 28 Feb 2021 (Online), Mexico

#FEMEXEResillient Carousel of videos of the allied associations of FEMEXER (from February 25 to 28, 24 hours a day on...

FIESTA INFANTIL POR EL SÍNDROME DE DRAVET

28 Feb 2024 SEVILLA, Spain

En este evento podrás disfrutar de muchas actividades para toda la familia, como talleres, manualidades 🎨, pintacaras 🎭, música 🎶,...

Fighting H.A.R.D. Foundation's Run HARD for Rare Kids

21 Feb 2023 to 28 Feb 2023 Virtual, United States

Fighting H.A.R.D. Foundation’s Run HARD for Rare Kids was started in 2021 as a way to safely raise funds and...

Indo US Organization for Rare Diseases (IndoUSrare) is honored to announce the force behind the US Orphan Drug Act, Dr....

Florida Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

FMD Zebra's Unite

28 Feb 2021 North Olmsted, United States

The FMDSA would like to bring awareness to #RareDiseaseDay by inviting you to submit a picture wearing your favorite zebra print...

Focus on rare disease: Prime time — gene therapy for rare disordersSixth annual seminar showcasing rare disease research.Wednesday, March 3...

Foro «EERR: voces d la sociedad civil»

4 Mar 2021 Redes sociales de Funsalud, Mexico

The Psi. Paulina Peña, director of AcceSalud, will be a speaker at this important forum. La Psi. Paulina Peña, directora...

Foro Enfermedades Raras en México 2024 ¡No Dejar a Nadie Atrás!

1 Feb 2024 Ciudad de México CDMX, Mexico

Iniciativa Pensemos en Cebras México, Mujer México y el Hospital General de México “Dr. Eduardo Liceaga” Invitan al: Foro Enfermedades...

Foro Enfermedades Raras GDL

28 Feb 2022 to 4 Mar 2022 Guadalajara, Mexico

Este foro busca ayudar a la visibilización de estas condiciones, proponer alternativas para mejorar el diagnóstico y manejo de las...

Foro Enfermedades Raras GDL

28 Feb 2021 to 3 Mar 2021 Guadalajara, Mexico

Foro realizado desde hace 4 años con la intención de ayudar a visibilizar a las enfermedades poco frecuentes en el...

La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...

La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...

Foro Nacional de Enfermedades Raras: Panorama Actual en México Hacia un Abordaje Integral

27 Feb 2023 Ciudad de México Cámara de Diputados H. Congreso de la Unión, Mexico

Cebras México, XLH México y Otros Raquitismos y Mujer México organizan el : Foro Nacional de Enfermedades Raras: Panorama Actual...

Iniciativa Pensemos en Cebras México, XLH y otros Raquitismos México y Mujer México Organizan e Invitan a seguir la transmisión...

Fecoer organizará el 2 de Marzo el Foro Virtual "Soy Raro, soy Único". Para más información consulte la página de Facebook...

Foro Virtual PIENSA EN... (Conmemoración Enfermedades Huérfanas)

25 Feb 2022 to 26 Feb 2022 Bogotá, Colombia

Foro conmemorativo de las enfermedades huerfanas, PIENSA EN…. porque todos podemos padecer de una enfermedad de baja prevalencia. Evento gratuito...

🙌🏻 𝐃𝐢́𝐚 𝐌𝐮𝐧𝐝𝐢𝐚𝐥 𝐝𝐞 𝐥𝐚𝐬 𝐄𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬 𝐑𝐚𝐫𝐚𝐬 💜💜💜👚 👚👚 Los invitamos al FORO: 𝐄𝐥 𝐚𝐛𝐨𝐫𝐝𝐚𝐣𝐞 𝐝𝐞 𝐥𝐚𝐬 𝐩𝐞𝐫𝐬𝐨𝐧𝐚𝐬 𝐜𝐨𝐧 𝐞𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬...

Fórum #SomosTodosRaros - Canal da ACDG no Youtube

25 Feb 2022 to 26 Feb 2022 Fortaleza, Brazil

Transmissão ao vivo pelo canal da ACDG no Youtube (https://www.youtube.com/channel/UCTcO5e3xHhR_KuLDiCpy6Fg) Dia 1 – 25/02 (19h) Tema: Inovação e Doenças Raras...

Forum des associations maladies rares

28 Feb 2024 Clermon-Ferrand, France

Le CHU de Clermont-Ferrand accueillera une vingtaine d’associations de patients atteints de maladies rares dans le hall de l’hôpital Estaing.

Transmissão ao vivo as 10h pelo canal da ACDG no Youtube através do link: https://www.youtube.com/watch?v=SJclQqtxFtI Abertura do evento (10min) –...

l'Alliance Algerienne contre les Maladies Rares participe au  Forum virtuelle Magrebin des maladies rares hebergé par l'Alliance des Maladies raresau Maroc(AMRM) et...

FORUM: Rare Disease Day "Eatquake Special"

28 Feb 2023 Online, Turkey

As Turkish Association of Public Health Specilists Rare Diseases Working Group, we organize a forum with the “Earthquake Special” agenda...

FoxG1 Rare Disease Day: Birthday

21 Feb 2021 Sydney, Melbourne, Brisbane, Adelaide, Perth Canberra, Australia

#February is Rare disease month,Kush was the first child in Sydney and the first child in India Diagnosed with FoxG1...

In honor of Rare Disease Day 2024, Jerry Vockley MD, PhD, will discuss a new era in therapies for rare...

FREE YOGA SESSION - relaxation and breathing

28 Feb 2021 Italy, United States

On February 28, 4 p.m., a free yoga session will be available on Elena Boriani's youtube channel and will remain...

Frida our Mermaid Señorita

28 Feb 2022 Larchmont, United States

Reading of OEIS heritage

FriENDO Social

4 Mar 2023 Toronto , Canada

To kick off Endometriosis Awareness Month, join us on March 4th from 2pm-6pm for our FriENDO Social! The event will...

The 4th edition is organised under the theme From cell to systems: the teaching of Rare Diseases”. The celebration of...

Frost Tower Lights Up for Rare

28 Feb 2023 San Antonio , United States

The Frost Tower will participate in the #LightUpForRareCampaign in support of Rare Disease Day.

Futbol Matx

27 Feb 2022 Andorra La Vella, Andorra

A football match will be done and the local team will wear a bangle related to the rare disease day,...

Gather Miles for Coffin-Lowry Syndrome

1 Feb 2022 to 27 Feb 2022 Bucharest, Romania

#MilesRareDiseaseDay2022 February is Rare Disease Awareness Month. Between 1st and 27th of February we challenge you to gather as many...

Gaucher disease is a little known rare genetic disease. When the diagnosis is early and the treatment begins in time, the quality...

Gaucher disease awareness lecture

28 Feb 2021 Erbil, Iraq

Kurdistan rare disease center in cooperation with Sanofi Genzyme recognized international rare disease day by conducting a lecture about Gaucher disease...

Gemeinsam für Selten - Together for the Rare

28 Feb 2021 to 25 Sep 2021 Salzburg, Austria

Together with the Vita Club Salzburg we are going into the second round again this year, we will show you...

Ein Networking-Tag von und für Menschen mit seltenen Erkrankungen, und deren Angehörige unter dem Motto ‚Gemeinsam weniger selten‘. Auf dieser...

GeneRare: Getting to Know Genetic and Rare Diseases

24 Feb 2021 to 15 Mar 2021 Caltanissetta, Italy

GeneRare:Getting to Know Genetic and Rare DiseasesMeetings on Rare Diseases and new genomics addressed to health promotion, prevention and responsible...

GeneRare: we know Genetic and Rare Disease

1 Mar 2024 Caltanissetta, Italy

Il progetto “GeneRare: we know genetic and rare diseases” ha lo scopo di promuovere la conoscenza sulla genetica e sensibilizzare...

webinar: https://stream.lifesizecloud.com/extension/7692222/50fd52a8-e9c6-4268-ad33-1fcd476f6a75 La celebrazione della Giornata mondiale delle Malattie Rare assume quest’anno, anch’esso unico e raro, una connotazione ancora più...

Genetics Matters

25 Feb 2024 Newcastle upon Tyne, United Kingdom

Genetics Matters, one of the FMS flagship public engagement events, is an annual event organised as part of the International...

Genetics Matters

26 Feb 2023 Newcastle upon Tyne, United Kingdom

“Genetics Matters” is an annual event organised by Newcastle University to mark the International Rare Disease Day. Currently in its...

Thurs 23 Feb – Genetics Unzipped Podcast: “The diagnostic odyssey: a journey into genetic testing” prior to Rare Disease Day...

Georgia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

The event dedicated to the Rare Disease Day will be held on Feb. 28, 2023 at 5.30 p.m. in the...

Get Creative – Enter IDFA's Rare Disease Day Competition

17 Feb 2022 to 28 Feb 2022 National, Australia

Share your Rare Disease Day colours (blue, pink, green or purple) through a unique artwork, expressing what it’s like to...

On the occasion of World Rare Disease Day, we invite you to participate in a Facebook Live session with Dr....

Giornata delle Malattie Rare 2021

27 Feb 2021 Martignacco, Italy

Rare Disease Day 2021.On February 27, 2021, at the Colussi SNC Pharmacy in Martignacco (UD), there will be an information...

Brevi relazioni sulle malattie rare e le disabilità in generale e presentazione del progetto “Un cielo per tutti”

Un accordo di collaborazione tra Orphanet, Ospedale Pediatrico Bambino Gesù e OMaR e tante iniziative rivolte ai pazienti e alle...

Evento sulle Malattie Rare, rivolto principalmente agli studenti con età compresa tra i 16 e i 19 anni. L’obiettivo è...

Giornata Nazionale IICB – 1 MARZO 2021 Il racconto della Comunità di Un Filo per la Vita Onlus fatto attraverso...

In occasione della prossima Giornata Nazionale dell’IICB Un Filo per la Vita Onlus desidera realizzare una grande campagna dedicata al...

We have a number of buildings and landmarks lighting up in a chain of light around the country. The chain...

Global Chain of Lights - Contern's town hall - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Grevenmacher's town hall - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Larochette's church - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Mondorf-les-Bains - “Douaneshaischen” - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Mondorf-les-Bains - The Centre Martialis in Ellange - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Mondorf-les-Bains' townhall - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Sanem's town hall - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Schengen's municipality - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Steinfort's town hall - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Steinfort's water tower - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - The Belval blast furnaces - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - The Centre Hospitalier du Nord - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - The Centre Hospitalier Emile Mayrisch - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - The headquarters of CFL - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - The headquarters of Spuerkeess - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - The Mersch municipality - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - The Rehazenter - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Global Chain of Lights - Wiltz Castle - Luxembourg

21 Feb 2022 to 6 Mar 2022 Luxembourg city & others, Luxembourg

For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...

Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...

📣Calling all pediatric #patients, join our Empowerment Day on Saturday, February 17, 2023 at 12pm ET! This 2 hour virtual...

As Rare Disease Day 2023 is approaching, on behalf of the Chinese Organization for Rare Disorders, it is my honor...

Global Workshop on Access to Rare Disease Diagnosis and Treatment | Rare Disease Day 2023 Reimbursement of drugs from pharmaceutical...

Gogohope Virtual Sports Challenge

15 May 2021 to 15 Jun 2021 Kuala Lumpur, Malaysia

Gogohope Virtual Sport Challenge is created with the objective to inspire and motivate everyone especially our MLDA patients to be...

Grin for Wishes

19 Feb 2022 to 28 Feb 2022

We are celebrating the approval of our 501(c)(3) status & spreading awareness for Rare Conditions Day. Celebrate with us by...

New Center for Research and Treatment of Pulmonary Rare Diseases. Cooperation between University Hospital of Ludwig-Maximilians-University Munich and Asklepios Fachkliniken...

Cuidarse por fuera, pero también ser “guapos” por dentro, siendo solidarios. Es el objetivo de la campaña #GuaposPorDentroYPorFuera que lanzamos desde Aefat,...

H4B Boston Living Rooms of Rare

3 Mar 2022 Boston, United States

In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...

Hablemos de Enfermedades Raras

27 Feb 2021 Facebook Live at https://www.facebook.com/trazandoloinvisible, Mexico

In the International Rare Disease Day 2021, Trazando lo Invisible invites you to the virtual and free event: “Hablemos de...

Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...

Hacettepe University Rare Disease Day

28 Feb 2022 Ankara, Turkey

Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...

Haiti Cholera Research Funding Foundation Inc USA HCRFF

27 Feb 2023 to 28 Feb 2023 LAKE WORTH FL, United States

We are inviting you to join our virtual campaign on the 27th & 28th of February 2023 9:00-9:30am Twitter Chat...

Hamilton Sign lighting up for Rare Disease Day

29 Feb 2024 Hamilton, Canada

Hamilton Sign: Displaying blue, pink, and green on February 29.

Harvinaismessut / Rare Fare

26 Feb 2022 to 28 Feb 2022

Rare Fair 2022 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and...

Harvinaisten ilta

27 Feb 2021

Harvinaisten ilta on verkossa toteutettava koko illan ohjelma!  Harvinaisten illan aikana kuulemme mm. opiskelusta harvinaisen sairauden kanssa, minkälaista on kun diagnoosin...

Harvinaisten sairauksien päivän tapahtuma

28 Feb 2023 Verkossa ja etäkatsomoissa: Helsinki, Jyväskylä, Kokkola, Kuopio, Oulu, Pori, Riihimäki, Salo, Tampere, Finland

Tiistaina 28.2.2023 klo 17–19 järjestettävä tilaisuus on suunnattu harvinaista neurologista sairautta sairastaville ja heidän läheisilleen, mutta mukaan voivat tulla kaikki...

Hãy đi cùng nhau

15 Feb 2024 to 29 Feb 2024 Ho Chi Minh City, Vietnam

HÃY ĐI CÙNG NHAU – và cùng chúng tớ. ️💝 Ai đó đã từng nói: “…Sẽ có một lúc nào...

HAY NOTICIAS QUE NO PUEDEN ESPERAR

28 Feb 2022 Montevideo, Uruguay

Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.

Head in the clouds - news from December 2022

21 Feb 2022 to 28 Feb 2022 Cluj-Napoca, Romania

Gaucher disease is one of the many, but few known rare genetic diseases. When the diagnosis is early and the...

Health professionals mobilize for rare diseases

28 Feb 2023 to 1 Mar 2023 Tunis, Tunisia

A white board will be set up at the entrance of the Pasteur Institute in Tunis next to the research...

The Mission San Jose High School Students For Rare Diseases Club is kick-starting the year with a Rare Disease Day...

Helhetlige tjenester for gode liv

28 Feb 2023 to 28 Jan 2023 Oslo, Norway

Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...

Historias de Enfermedades Raras

1 Feb 2021 to 28 Feb 2021

Trazando lo Invisible is a non-profit organization in Mexico with the goal of raising awareness about invisible disabilities. In february,...

RDM’s Conference titled “How can the Educator Become an Advocate on Rare Diseases’, is going to be held under the...

As the action for the World Rare Disease Day 2024, CRYOPDP will broadcast a podcast program to educate and promote...

In this month of rare diseases, our Association is promoting a sequence of thematic lives on the pathologies that are...

I Jornada de Enfermedades Raras (I Conference of Rare Diseases)

18 Feb 2021 to 20 Feb 2021 Panama, Panama

I Conference of Rare Diseases in Panama is an academic and social event organized by CASPH from Faculty of Medicine of...

Invitación abierta a pacientes, padres de pacientes, médicos especialistas, asociaciones de pacientes y otros interesados en el tema; I SIMPOSIO...

An accurate and early diagnosis is essential in the prognosis of rare diseases! Come to know more about genetics and...

To mark Rare Disease Day, a scientific conference for students willing to present medical cases will be held.

I support Rare Disease Day

28 Feb 2023 Almaty, Kazakhstan

Students of the specialty “General Medicine” of the Higher School of Medicine tested the campaign with the goal of drawing...

I tumori rari: sfide ed opportunità

23 Feb 2023 Bari, Italy

Rare cancers are a mixed group of more than 200 kinds of neoplasia, and globally considered they are about 20%...

Iconic Trent Building to illuminate for Rare Disease Day 2023

24 Feb 2023 to 28 Feb 2023 Nottingham, United Kingdom

To help raise awareness of the day, the Trent Building on University Park Campus will join a host of other...

IFCR CDKL5 Rare Disease Day Video

24 Jan 2022 to 28 Feb 2022 Wadsworth, OH, United States

The IFCR is putting together a CDKL5 awareness video that will be released on Rare Disease Day across our social...

IGMM Shining a light on XLH Rickets - a rare bone disease

2 Mar 2021 Edinburgh, United Kingdom

On 2 March, people living with XLH, a rare genetic bone disease, as well as scientists, staff and students from...

II CONCURSO DE DIBUJO SOLIDARIO #XLASENFERMEDADES RARAS

1 Feb 2022 to 28 Feb 2022 GRANADA, Spain

II ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...

II ENCUENTRO DE ENFERMEDADES RARAS

28 Feb 2023 Huancayo, Peru

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL NACIONAL RAMIRO PRIALÉ PRIALÉ . 🗓Fecha: 28...

II ENCUENTRO REGIONAL DE ENFERMEDADES RARAS

28 Feb 2023 Huancayo, Junin, Peru

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL_NACIONAL_RAMIRO_PRIALÉ_PRIALÉ. Invita al II ENCUENTRO REGIONAL DE ENFERMEDADES...

II SIMPOSIO NACIONAL DE ENFERMEDADES RARAS

1 Mar 2024 Cartagena, Colombia

El Día de las Enfermedades Raras es el movimiento coordinado a nivel mundial sobre enfermedades raras. Este evento pretende socializar...

III Charitable Drawing Contest

10 Jan 2023 to 20 Feb 2023

Third edition of the charitable drawing contest organised by CONGEN to raise awareness about rare diseases. The 12 selected drawings...

III CONCURSO DE DIBUJO SOLIDARIO #XLASENFERMEDADESRARAS

11 Jan 2023 to 28 Feb 2023 Granada, Spain

III ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...

“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w III Dniu Chorób Rzadkich na...

III Run for Mito

24 Feb 2023 to 28 Feb 2023 Madrid, Spain

Tercera edición de la carrera más solidaria con las enfermedades mitocondriales en España- del 24 al 28 de febrero y...

III Всероссийский форум по орфанным заболеваниям

26 Feb 2021 to 27 Feb 2021 Москва, Russian Federation

Форум проводится по инициативе Всероссийского союза пациентов и Всероссийского общества орфанных заболеваний. При поддержке Министерства здравоохранения Российской Федерации и Министерства...

Ruta de 5.6 quilòmetres, de 120 minuts, geolocalitzada en temps real amb un tècnic en activitat física per la commemoració...

S’il·lumina el Monument a la Dona treballadora el Dia Mundial de les Malalties Minoritàries.

Lighting from 5pm to midnight on the Terrassa City Council in the colors green-pink-blue for the day of minority diseases. Highlighted...

S’il·lumina per les malalties minoritàries a la posta de sol.

Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

  Three reports with three different focuses of rare disease in China will be released on RDD 2021 by the...

Illuminating buildings

28 Feb 2022 Bucharest, Timisoara, Romania

Medical Universities, City Halloween, Centers for Rare Diseases and other buildings will be illuminated for RDD, on the evening of...

Illuminating Medical University in Timisoara, Romania

26 Feb 2021 to 27 Feb 2021 Timisoara, Romania

On 26.02.2021, the Medical University of Timisoara has illuminated in the colours of RDD as a solidarity event of patients with...

Illuminating Nottingham's Council House

28 Feb 2022 Nottingham , United Kingdom

Illuminating the emblematic Council House of the City of Nottingham.

illumination

26 Feb 2024 to 29 Feb 2024 SAINT-NOLFF, France

Illumination de la mairie en violet

Illumination de l'Hôtel de ville d'Amiens

29 Feb 2024 AMIENS, France

L’équipe du Centre de Référence des Maladies Rares du CHU Amiens-Picardie propose l’Illumination de l’Hôtel de ville d’Amiens aux couleurs...

A l'occasion de la journée mondiale des maladies rares, plusieurs monuments se pareront en région des couleurs de la journée...

Illumination des batiments Lillois

29 Feb 2024 Lille, France

Rejoignez-nous le 29 février pour une soirée unique à Lille, où la solidarité s’illuminera à travers la “Global Chain of...

Der Haupteingang des Krankenhauses wird in den Farben des Rare Disease Day erleuchten und so auf die Arbeit der Klinik...

Illumination du Centre Administratif de Mouscron

20 Feb 2023 to 3 Mar 2023 Mouscron , Belgium

A l’occasion de la journée mondiale des maladies rares, le centre administratif de Mouscron (CAM) sera illuminé aux couleurs des...

Illumination of Marshal’s Office of Pomorskie Region in Gdańsk in honour of Rare Disease Day in Poland. — fot. Grzegorz...

Illumination of Oslo University Hospital

27 Feb 2022 to 1 Mar 2022 Oslo, Norway

Illumination of Oslo University Hospitals helipad

Illumination of PHO "BIOMED LAB"

21 Feb 2022 to 28 Feb 2022 Ohrid, North Macedonia

Illumination of PHO “BIOMED LAB”

Illumination of Telstra Tower

29 Feb 2024 Canberra, Australia

Telstra Tower will light up in the Rare Disease Day colours for the day/night of 29th February 2024.

This year the Lithuanian Rare Diseases Community has joined the global chain of lights. Lithuanian Child Neurology Association and Hospital...

ILLUMINATION OF THE CN TOWER

29 Feb 2024 TORONTO , Canada

Illumination of the CN TOWER in the Rare Disease Day colors.

Illumination of the frontispiece of the Chamber of Deputies:

28 Feb 2021 Ciudad de México, Mexico

Thanks to the active management of Mujer México (saludmaterna.org), the deputies will once again illuminate the frontispiece of the beautiful...

Illumination of the building

ERN ReCONNET, the European Reference Network for Rare and Complex Connective Tissue Diseases, renews its appointment with the illumination of...

illumination of the maqam echahid monument

28 Feb 2021 Algiers, United States

illumination of the maqam echahid monument during the night of February 28 with the logo of the RDD2021

Illumination of the Municipality Building in Shtip, North Macedonia

25 Feb 2022 to 1 Mar 2022 Shtip, North Macedonia

For the first time ever, a building in the Eastern part of North Macedonia will be illuminated for the Rare...

Illumination of the Palace of Culture and Science

29 Feb 2024 to 29 Feb 0024 Warsaw, Poland

Illumination of the Palace of Culture and Science

Looking to raise awareness and share key knowledge on rare diseases, the Cyprus Alliance for Rare Disorders is organising an...

We illuminated our school building with the colors of rare diseases

Illumination of the Town Hall of Dzierżoniów in honour of Rare Diseases Day

The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!

Illuminations in the Twin Cities

28 Feb 2022 to 1 Mar 2022 Minneapolis, United States

With the help of Beck-Fahrner syndrome families, six Minnesota landmarks will be joining the global chain of lights by illuminating...

Illuminazione Chiesa di Sant'Alfonso Maria de' Liguori

27 Feb 2022 to 28 Feb 2022 Forchia (BN), Italy

Sensibilizzazione sul tema delle malattie rare attraverso la lettura, attività varie, flash mob. Volo di palloncini e accensione delle luci

Illuminazione del Municipio

28 Feb 2022 Rogolo, Italy

Illuminazione del Municipio

Illuminazione del Torrione di Spilamberto

28 Feb 2022 Spilamberto , Italy

Illuminazione del Torrione AST Associazione Sclerosi Tuberosa e Associazione Sindrome di Williams E.R. 

Illuminazione Teatro Herberia

27 Feb 2022 to 1 Mar 2022 Rubiera (Re) , Italy

Illuminazione del teatro Herberia in occasione della Giornata mondiale Malattie Rare

Illuminazione della Torre dell’Orologio e la Fontana di Bellerofonte in onore della Giornata delle Malattie Rare

Illuminazione torre dell’orologio di Palazzo Sant’Antonio

ILLUMINIAMO LA RARITA’

26 Feb 2021 to 28 Feb 2021 Puglia - Basilicata - Calabria, Italy

ILLUMINIAMO LA RARITA’L’Associazione Amaram Aps di Altamura, grazie alla collaborazione dei suoi referenti di zona e dei suoi soci attivi...

Illuminiamo le malattie rare

28 Feb 2024 Segrate (MI), Italy

Il Comune di Segrate, in provincia di Milano, si unisce alla Global Chain of Lights, illuminando il Centro Verdi, così...

Illuminiamo le malattie rare

28 Feb 2024 to 29 Feb 2024 Aquileia (UD), Italy

Il Comune di Aquileia, in provincia di Udine, si unisce alla Global Chain of Lights, illuminandosi con i colori della...

Ilumina

29 Feb 2024 Montevideo, Uruguay

Iluminamos los edificio más representativos de nuestro País para generar conciencia en el Día Mundial de las Enfermedades Raras

Iluminação do Cristo Redentor pela ABRANHI Das 7 maravilhas do mundo moderno, o Cristo Redentor é a mais nova e...

Iluminación Ayuntamiento de Cáceres

28 Feb 2021 Cáceres, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación Cámara de Diputados Día Mundial de las Enfermedades Raras 2022

24 Feb 2022 to 28 Feb 2022 Ciudad de México, Mexico

Como cada año Mujer México, la Iniciativa Pensemos en Cebras México y la FEMEXER en conjunto con la Comisión de...

Iluminación Cámara de Diputados 24-28 febrero 2022

24 Feb 2022 to 28 Feb 2022 Ciudad de México, Mexico

Fundación Mexicana de Prevención y Salud Materna A.C. “Mujer México” y la Iniciativa Pensemos en Cebras México. Como cada año,...

Se lleva a cabo la 2da Conmemoración del Día Mundial, Nacional y Estatal de las Enfermedades Raras en el Estado...

📢🦓🧬👉 Iluminación del Congreso Legislativo de Quintana Roo, México 2022. En el marco del Día Mundial y Nacional de las...

Iniciativa Pensemos en Cebras México-XLH México y otros Raquitismos- Mujer México y comunidad de pacientes. Conmemoramos el Día Mundial y...

Iluminación de la Calle Santiago

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación de la Cúpula del Milenio

28 Feb 2021 Valladolid, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación de la Fuente de Cibeles

28 Feb 2021 Madrid, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación de la Fuente de los 103 pueblos

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación de la Plaza de España d

28 Feb 2021 Sevilla, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación de monumentos CDMX

28 Feb 2024 to 29 Feb 2024 CDMX, Mexico

La Ciudad de México ilumina sus monumentos en apoyo a las personas que viven con una enfermedad rara.

Iluminación de monumentos CDMX

28 Feb 2024 to 29 Feb 2024 Ciudad de México, Mexico

La Secretaría de Obras y Servicios Urbanos se une al Día Mundial de las Enfermedades Raras iluminando de color azul,...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Ayuntamiento de Almería

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Ayuntamiento de Badajoz

28 Feb 2021 Badajoz, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Ayuntamiento de Cáceres

28 Feb 2021 Cáceres, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Ayuntamiento de Palma de Mallorca

28 Feb 2021 Palma de Mallorca, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Ayuntamiento de Valladollid

28 Feb 2021 Valladolid, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Congreso de los Diputados

28 Feb 2021 Madrid, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2 

Iluminación del Congreso Legislativo del Estado de Guanajuato

28 Feb 2023 Estado de Guanajuato, México, Mexico

Mujer México-Cebras México Promovió la iluminación del color de las enfermedades raras en el Estado de Guanajuato. Con la finalidad...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

EN EL MARCO DE LA CONMEMORACIÓN DEL DÍA MUNDIAL Y NACIONAL DE LAS ENFERMEDADES RARAS SE ILUMINARÁN EL FRONTISPICIO DE...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación del Teatro Apolo

28 Feb 2021 Almería, Spain

Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...

Iluminación Edificio Pfizer

28 Feb 2022 Mexico City, Mexico

Pfizer México se une a la conmemoración del Día Mundial de las Enfermedades Raras al iluminar su edificio en Ciudad...

Iluminación en La Nucía #LightUpForRare

28 Feb 2022 La Nucía, Spain

Esta noche los edificios municipales de La Nucía se iluminan de “verde” por “Día Mundial de las Enfermedades Raras”, a...

Iluminación fuente cuatro estaciones

28 Feb 2021 Sevilla, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación Muralla Puente Real Badajoz

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación Plaza Alta Badajoz

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación Plaza de España

28 Feb 2021 Sevilla, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación Puerta Palma

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación Senado de México 23-28 febrero 2022

23 Feb 2022 to 28 Feb 2022 Ciudad de México, Mexico

Iluminación Día Mundial y Nacional de las Enfermedades Raras 2022 Senado de la República. 📢🦓Toda la Comunidad de Enfermedades Raras...

Iluminación Senado de México 24-26 febrero 2022

24 Feb 2022 to 28 Feb 2022 Ciudad de México, Mexico

En el marco de la conmemoración del Día Mundial y Nacional de las Enfermedades Raras 2022 Fundación Mexicana de Prevención...

Iluminación Senado de México 27-28 febrero 2022

27 Feb 2023 to 28 Feb 2023 Ciudad de México, Mexico

Cebras México-XLH México y otros Raquitismos-Mujer México Conmemoran en el evento de Iluminación en conjunto con la Comunidad de Pacientes...

En el marco del día mundial de las enfermedades raras,Esperantra del Centro asociación de pacientes organiza este año el iluminado...

Se llevará a cabo la conmemoración en el marco del Día Mundial y Nacional de las Enfermedades Raras 2024 Iluminación...

Iluminaciones de edificios en Argentina

28 Feb 2021 Buenos Aires, Venado Tuerto, María Susana, Carcarañá, San Genaro, Zavalla, Capitán Bermúdez, San Lorenzo, Villa Gobernador Gálvez, Rosario, Santa Fe, Argentina

Serán iluminados con el color violeta (referente de los colores de FADEPOF)CABA, Buenos Airess:•Palacio Lezama•Usina del Arte•Planetario•Torre Monumental•Floralis•Puente de la...

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

28 Feb 2021 Pruszcz Gdański, Poland

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

Iluminacja Iglicy Międzynarodowych Targów Poznańskich z okazji Dnia Chorób Rzadkich

En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...

Iluminarea a 5 cladiri importante din Timisoara

24 Feb 2023 to 28 Feb 2023 Timisoara, Romania

Capilala culturala eutrpeana si capitala europeana a bolilor rare 2023itatea de medicina si Farmacie, Universitatea politehnica si Spitalul de copii...

Ilumination, and chorus concert Casa de la Vall

28 Feb 2021 Andorra La Vella, Andorra

We will iluminate the old parliement of Andorra, with the colors that represents the rare disease. Other emblematic building will be...

FIACCOLATA COLORATA E RUMOROSA ANIMATA DAI BAMBINI E DAI RAGAZZI DELL’ORATORIO PARROCCHIALE MOMENTO DI SENSIBILIZZAZIONE E TESTIMONIANZE VOLO DI PALLONCINI

The objective of the event is to disseminate, among the community of the Autonomous University of Guadalajara and its students...

The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to attend the webinar  on "Improving...

Il gruppo dei volontari del Coordinamento Telethon della Basilicata, guidato dalla Coordinatrice regionale Eliana Clingo, ha chiesto alle amministrazioni comunali...

Inclusión Escolar en Enfermedad de Hirschsprung y Malformación Anorrectal

1 Mar 2024 Ciudad Autónoma de Buenos Aires, Argentina

Reunión para familias de toda Latinoamérica. El objetivo es brindar herramientas y material para optimizar la inclusión escolar y adaptaciones...

IncontRARE le RASopatie

27 Feb 2021 WEBINAR ON LINE, Italy

In occasione della giornata Mondiale delle Malattie Rare il giorno 27 febbraio l’Associazione Nazionale Sindrome di NOONAN e RASopatie ODV,...

Incontriamoci - un sorriso ed una foto

26 Feb 2023 to 28 Feb 2023 CATANIA, Italy

Appuntamento sotto l’albero dei Rari di Chiari e Siringomielia per un sorriso ed una foto

A Catania il 3 Marzo 2024, ci incontreremo dalle ore 10 alle ore 12,00 all’ Albero dei Rari Aismac in...

Indiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Informar sem Dramatizar

1 Feb 2022 to 28 Feb 2022 virtual, Portugal

Program designed by RD-Portugal, aimed at disseminating information on rare diseases, without stigma, in Portuguese schools. RD-Portugal trains the teachers...

Information Stand and Quiz

29 Feb 2024 Tours, France

La Plateforme d’Expertise Maladies Rares Centre-Val de Loire, les professionnels du CHRU de Tours, l’AFM-Téléthon et l’Equipe Relais Handicaps Rares...

Inherited metabolic diseases:Rare but United in Arms!

6 Mar 2021 to 7 Mar 2021 VIRTUAL, Greece

The challenges facing patients with inherited metabolic diseases (IMDs) in Greece are many and formidable and are highlighted due to...

Insieme illuminiamo la rarità

28 Feb 2021 Roma, Italy

On Sunday 28 February, on the occasion of the 14th Rare Desease Day, the "Together we illuminate the rarity" event...

Next Thursday we are going to do an Instagram Live from the Lovexair Foundation account (@lovexair) where 4 young people...

Do you or your partner have a Rare Disease? Join the Instagram Live where Jennifer and Tamaha 🇲🇽, and Alfons...

La intendencia de Soriano intervendrá las letras corpóreas que identifican las localidades del departamento con los colores de las enfermedades...

International Congress on Rare Diseases and Orphan Drugs

29 Feb 2024 to 1 Mar 2024 Athens, Greece

About the Conference Under the theme “Navigating the Uncharted: Advancements, Collaborations, and Hope in Rare Diseases”, the International Congress on...

One-day hybrid (in person + online) conference in the form of panel discussion “DOUBLE WAR: Ukraine`s European vector in providing...

Ladies and gentlemen,on behalf of the Organizers, I have the pleasure to invite you to participate in the International Symposium...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

With of budget of €5.3 billion, the EU4 Health program 2021-2027 represents an unparalleled EU financial support in the health...

On this day we celebrate the lives of all of those affected by the ultra-rare WWOX-related diseases and honor those...

An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent figures in...

Event Description: An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent...

Investigar es avanzar

28 Feb 2021

l CIBERER organiza la décima edición de la Jornada Investigar es Avanzar con motivo del Día Mundial de las Enfermedades Raras el...

Invincible été · Film de Stéphanie Pillonca

29 Feb 2024 Sion, Switzerland

Pour célébrer la Journée internationale des maladies rares, MaRaVal vous invite à la projection du film Invincible été, avec Olivier...

L’ evento è a favore del progetto “Io sono” dedicato alla malattia genetica rara Trisomia 9 a Mosaico ed è...

Iowa State University Rare Disease Day 2022

24 Feb 2022 Ames, United States

Iowa State University’s Rare Disease Awareness Club will hold its fifth annual Rare Disease Day event on February 24th, 2022....

Nuove ricerche sull’Incontinentia pigmenti ai tempi del COVID-19 In occasione della Giornata Mondiale Malattie rare, l’Associazione Italiana Incontinentia pigmenti ONLUS (IPASSI)...

IPASSI: what's new?

5 Mar 2022 Naples, Italy

A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...

IT, innovation and Rare Diseases webinar

3 Mar 2022 Buenos Aires, Argentina

Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...

ItineRARI

28 Feb 2021 Padua, Italy

10 guide turistiche per 8 tour "Rari" nel centro storico di Padova.Domenica 28 febbraio dalle 14 alle 17 con partenza...

IV Concurso de Relatos Cortos

16 Feb 2021 to 31 Mar 2021 Online, Spain

IV Concurso de Relatos Cortos sobre Enfermedades Raras “Mi Experiencia Personal con la ER” Bases: https://www.adisen.es/noticias-y-actividades/iv-concurso-de-relatos-cortos-sobre-enfermedades-raras-mi-experiencia-personal-con-la-er-2/ Pueden participar personas afectadas...

“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w IV Dniu Chorób Rzadkich na...

IV Edizione "Rare Abilità"

24 Feb 2021 to 4 Mar 2021 Fasano, Italy

IV edizone di "Rare Abilità", adesione alla campagna Nazionale con l' illuminazione di Palazzo di Città (Fasano -BR) e momenti...

El objetivo del Foro es identificar en que medida los actores que participan en el acceso a tecnologías sanitarias, pueden...

IV Jornadas de Enfermedades Raras

11 Feb 2022 to 12 Feb 2022 Merida, Mexico

Academic Conference on Rare Diseases, which began in 2018 with a single Symposium and which for the fourth consecutive year...

DGIESP / VIRTUAL4 le está invitando a una reunión de Zoom programada. Tema: VIRTUAL 4 DNOT IV Seminario Internacional por...

IX Encuentro Nacional Día Mundial de las Enfermedades Raras

26 Feb 2021 to 27 Feb 2021 Burgos, Spain

El Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (Creer), dependiente del Imserso, organiza...

IX MARCIA DEI MALATI RARI

10 Feb 2024 Milano, Italy

La Marcia dei Malati Rari è uno degli appuntamenti più attesi dalla comunità delle persone con malattia rara, oltre 2...

Izamiento de la Bandera Nacional

28 Feb 2021 ROSARIO, Argentina

Representantes de la Comunidad de ER en nuestra Ciudad junto a autoridades locales participarán del Izamiento de Nuestra Enseña Patria...

Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...

İzmir Kent Konseyi'nin Değerli Paydaşları ve İzmir Kamuoyuna  28 Şubat Dünya Nadir Hastalıklar Farkındalık Günü etkinlikleri çerçevesinde,  İzmir Kent Konseyi...

Jazz4Rare 2021 online

27 Feb 2021 Gdynia, Poland

Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare...

Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare...

The last week of February is a rare diseases’ awareness week and the time when we can show our solidarity...

Why jazz? Jazz has a positive effect on the body and soul, including those affected by rare diseases. Moreover, jazz...

Jet d'eau in purple

28 Feb 2022 Geneva, Switzerland

The famous Geneva Jet d’eau will be illuminate in purple the night of February 28 – thanks to the SIG...

Joint TDI/NIRDP event: RDD 2023 at Stormont

28 Feb 2023 nationwide, Ireland

Join us at the annual North-South Rare Disease Day virtual celebration on Tuesday 28th February from 1.30 pm to 3...

Jornada lúdica amb l’objectiu de sensibilitzar respecte les malalties minoritàries

Jornada con las Epof

24 Feb 2022 Santa Fe- Ciudad , Argentina

Mesa de trabajo: Avances de los pacientes y familias por la reglamentación de la Ley 13.892- Epof Provincia de Santa...

Jornada das Doenças Raras

24 Feb 2021 to 26 Feb 2021 Brasília, Brazil

O Observatório de Doenças Raras (ODR) da Universidade de Brasília realiza, desde 2012, um evento alusivo ao Dia Mundial das...

Jornada de Concientización de las EPOF

29 Feb 2024 Cafayate, Argentina

Stand para visibilización, folletería, micrófono abierto, información sobre leyes de las EPOF, experiencias con las EPOF.

Jornada de Donación de Sangre

26 Feb 2022 Santo Domingo, Dominican Republic

Este evento se trata de una Jornada de Donación de Sangre de la Fundación Un Corazón por Fanconi en conjunto...

Jornada de Enfermedades Raras UNAM

28 Feb 2023 Mexico City, Mexico

La Facultad de Medicina de la UNAM a través de La Unidad de Enfermedades Raras de la División de Investigación,...

Jornada de Enfermedades Raras y Tamiz Neonatal Ampliado

1 Feb 2021 to 28 Feb 2021 México, Mexico

DAY ON RARE DISEASES AND NEONATAL SCREEN EXTENDED FROM FEBRUARY 1-28, 2021. The Pensemos en Cebras México and Mujer México...

Meeting aimed at disseminating research activities on rare diseases carried out in the Valencian Community.++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++Jornada destinada a dar a conocer...

Young researchers will present the equipment acquired with FEDER funds and its applicability in their research on Rare Diseases.+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++En esta...

Conference aimed at learning the communication tools and strategies through social networks to improve the visibility of the research carried...

Con el objetivo de visibilizar la necesidad del fortalecimiento de las competencias profesionales acerca de la sospecha y manejo de...

Únete a nosotros en una jornada extraordinaria donde la investigación y los tratamientos para las Enfermedades Hereditarias de la Retina...

Journée de sensibilisation aux maladies rares

26 Feb 2022 Algiers , Algeria

Journée de sensibilisation aux maladies rares en Algérie, au programme: Stand de sensibilisation Témoignages par nos patients Présentation de la...

19h30 : Prof Vincent Bours : Introduction 19h40 : M. Jean-Stéphane Gatot : “Le NIPT whole genome au CHU de...

Journée des Maladies Rares 2021

28 Feb 2021 AMIENS, France

- le Chu d'Amiens s'associe à la filière AnDDI Rares et propose un  ciné débat gratuit en ligne,- l'hôtel de ville...

Cette journée dédiée aux maladies rares permet de sensibiliser la population sur ces maladies et leurs impacts sur la vie...

Journée Internationale des Maladies Rares

28 Feb 2022 Amiens, France

L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...

Journée Internationale des Maladies Rares

28 Feb 2023 AMIENS, France

Dans le cadre de la Journée Internationale des Maladies Rares, l’équipe du Centre de Référence des Maladies Rares du CHU...

Journée Internationale des Maladies Rares

29 Feb 2024 Montpellier, France

Chaque année, le dernier jour de février a lieu la Journée Internationale des Maladies Rares (JIMR). Cette journée, célébrée dans...

Journée internationale des maladies rares - Toulouse

28 Feb 2023 Toulouse-purpan, France

À l’occasion de la 16ème édition de la Journée Internationale des Maladies Rares (JIMR 2023), les associations de personnes concernées...

Pendant la journée du 28 février, nous aurons exceptionnellement ce dimanche là ,une thématique sur l 'Ictère (jaunisse ) et...

A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...

La plateforme d’expertise maladies rares du Grand Paris Est ESMARA se mobilise pour la Journée Internationale Maladies Rares 2024 à...

Chaque année, la Journée Internationale des Maladies Rares (JIMR) se tient le dernier jour de février. À cette occasion, des...

Journée maladies rares

16 Feb 2024 Marseille, France

Le 16 février a eu lieu la Journée des Maladies Rares organisée par l’institut MarMaRa, l’Alliance Maladies Rares ainsi que...

Journée Maladies Rares

29 Feb 2024 Nancy, France

Journée Maladies Rares – 29 février 2024 Grands Salons de l’Hôtel de Ville (entrée place Stanislas) 08h30 – 17h00 Gratuit...

JOURNEE MONDIALE DES MALADIES

28 Feb 2024 DAKAR - GUEDIAWAYE, Senegal

RANDONNEE PEDESTRE ORGANISEE PAR LE GROUPE DE PRESSE AFRIKSANTE ET L’ASSOCIATION HUMANITAIRE DE LUTTE CONTRE LES MALADIES EN PARTENARIAT AVEC...

JOURNEE MONDIALE DES MALADIES RARES: 28 FEVRIER 2021Organisée par la Société Maliennede Génétique Humaine (SMGH)27 Février 2021,Grande Salle de réunion...

Le Centre Hospitalier Cayenne organisera la Journée Internationale des maladies rares en Guyanne le 26 Février entre 10:00h et 12:00h. Affiche

La Plateforme d’Expertise Maladies Rares vous propose une journée thématique sur l’implication et l’engagement des patients dans le soin, la...

Journée Scientifique Maladies Rares

5 Mar 2024 Clermont-Ferrand, France

Journée dédiée aux centres maladies rares du CHU de Clermont-Ferrand, et cette année, centrée sur les résultats de la labellisation...

JUGUEMOS JUNTOS

28 Feb 2021 ON LINE, Spain

Evento solidario para dar a connocer y visualizar las colagenopatias tipo II.Este acto se hara el día 28 de Febrero,...

Juntos somos mais fortes

28 Feb 2023 Online, Portugal

Horário: 14:00 – 18:00 Organização: Mirror Group Português do Programa Europeu Conjunto para as Doenças Raras (NMG – EJP RD)...

Kansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Join us for KGI’s 16th Annual Rare Disease Day Virtual Event, our theme is Mental Health & Rare Disease! This...

Kintsugi Workshop

22 Feb 2020 to 23 Feb 2020 Roma, Italy

Impara l’arte giapponese del kintsugi, per valorizzare Ferite e fragilità. Un laboratorio unico, per incollare i frammenti della nostra storia...

Creata per affrontare le sfide che le persone affette da malattie rare devono affrontare quotidianamente intende ricordare a tutti che...

Kiwanis e SteradioDj per i bambini

27 Feb 2023 Palermo, Italy

Le malattie rare sono una piaga che colpisce milioni di bambini in tutto il mondo. Spesso, però, il numero di...

Rare diseases affect hundreds of millions of people every year. Many of these are children: it is estimated that 1...

Knowing Keratoconus

20 Feb 2023 to 28 Feb 2023 Rome, Italy

Video to promote Keratoconus Knowledge

L'expo : rendons visibles les r'artistes

28 Feb 2024 BREST, France

Nous organisons une exposition de créations produites par des patients ayant une maladie rare. Ce rendez-vous aura lieu le 28...

L'INTELLIGENZA EMOTIVA VA A TEATRO

10 Mar 2023 BOLOGNA, Italy

Un evento teatrale dedicato ai bambini con malattia rara, in particolare a quelli seguiti dal Centro Malattie Rare Pediatriche dell’Ospedale...

L'odyssée artistique des enfants

28 Feb 2023 Paris, France

AnDDI-Rares a visité 12 hôpitaux de France avec son projet d’ateliers artistiques dédiés aux enfants Pendant trois mois, des artistes...

La Carovana della Ricerca

2 Mar 2024 Bergamo, Italy

L’evento prevede una carovana formata dalle auto dei volontari delle associazioni delle malattie rare di Bergamo e Provincia per sensibilizzare...

La historia de Piper, un pajarito valiente. Descubriendo el miedo y cómo ser fuertes. 

evento dirigido a medicos en formación de la escuela de medicina de la Universidad Autonoma de Guadalajara

WEBINAR | Mesa debate La investigación en EPOF: Un camino común para 8.000 patologías Moderadora • Dra. Jorgelina Stegmann |...

En coopération avec le “walking_club” , les scouts tunisiens à Nabeul ont Lancé la campagne de sensibilisation concernant le #mois_des_maladies_rares....

La marcha paciente EPOF

28 Feb 2022 varias, Argentina

Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...

Intervención comunitaria que tendrá lugar en Benavides de Órbigo, el día 21 de febrero de 2023, con motivo de la...

LA TOSCANA SI ILLUMINA PER LE RARE

28 Feb 2021 Firenze, Prato, Pisa, Livorno, Siena, Scandicci, Sesto Fiorentino, Pistoia, Empoli, Massa, Campi Bisenzio, Carrara, Arezzo, Lucca, Italy

Il Forum Toscano delle Associazioni per le Malattie Rare celebra la RDD 2021 con la campagna di sensibilizzazione "LA TOSCANA...

La Voz de los Pacientes ¡No Dejar a Nadie Atrás! 2024

29 Feb 2024 Ciudad de México CDMX, Mexico

Iniciativa Pensemos en Cebras México y Fundación Mujer México como cada año participan activamente en la conmemoración del Día Mundial...

LABORATORIO_RAREDISEASEDAY 2023 OCCORRENTE:  T-SHIRT BIANCA  COLORI ACRILICI (AZZURRO, VIOLA, VERDE E FUCSIA)  PENNELLI  UNIPOSCA (per scrivere...

LAM - Fato ou Fake?

28 Feb 2024 São Paulo, Brazil

Dr. Bruno Guedes Baldi, pulmonologist from the Brazilian LAM Clinic, talks to Maria Clara Castellões, vice-president of Alambra, the Brazilian...

Lançamento do 1º CURSO A DISTÂNCIA: “SINAIS DE ALERTA DE DOENÇAS E SÍNDROMES RARAS PARA EDUCAÇÃO BÁSICA E ATENÇÃO PRIMÁRIA...

On the 19th of February 2021, the Lebanese Association for Neuromuscular Diseases hosted a webinar on Rare Disease Day alongside...

Landmark light up

28 Feb 2023 Edmonton , Canada

Edmonton’s high level bridge will be lit up for rare disease day

Langka(h) Kecil 2023: The Unplanned Journey

27 Feb 2023 Malang , Indonesia

MORE COMMUNITY IS A COMMUNITY FOR MOTHERS OF CHILDREN WITH RARE DISEASES AND CHILDREN WITH SPECIAL NEEDS CENTERED IN MALANG...

In order to take part in Rare Disease Day 2024, MORE Community will hold an event entitled Langka(h) Kecil 2024:...

Langka(H) Kecil consists of three events, namely a virtual fun walk, where children with rare diseases and children with special...

Para el Día Mundial de las EPOF lanzaremos un video junto al cantante Nahuel Penissi. La canción elegida es Avanzar. El...

El próximo 4 de marzo se presentará el cluster de enfermedades raras - CER.Para más información consulte la página de Facebook...

Lanzamiento del libro “Un milagro llamad Emmanuel” Autora: Leonisa Castillo Centeno. Líder de 11Q Latinoamerica

Lanzamiento de video poco frecuente “Mi Bandera 2021” con canción de bandera cantada por Attaque77 y otros artistas.

Lappia Talo illuminated in support of rare diseases

26 Feb 2021 to 1 Mar 2021 Rovaniemi, Finland

Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will show support for Rare Disease...

Lappia Talo lights up for rare

28 Feb 2022 Rovaniemi, Finland

Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will be illuminated in honour of...

Las EPOF de Santa Fe siempre dicen presente

28 Feb 2022 Santa Fe, Argentina

Iluminación en color violeta

On 27 February 2021, the Cyprus Alliance for Rare Disorders in collaboration with the Cyprus Medical Association will be hosting...

China's very first official white paper on rare diseases: "Rare Diseases Diagnosis, Treatment and Security" will be published by the...

Launch of Rare Disease Day campaign

15 Feb 2021 Online, United States

15.02.2021 - Launching the RDD Campaign with an exhibition of art works realized by children at NoRo Center. We have attended...

On World Rare Disease Day, the Department of Pathology and Laboratory Medicine is launching a Newborn Screening Program for Selected...

Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...

LAVORO E DIS-ABILITÀ

26 Feb 2022 Padua, Italy

In allegato il COMUNICATO STAMPA con preghiera di diffusione dell’evento “LAVORO E DIS-ABILITÀ”, che si terrà il prossimo sabato 26...

LE AIUOLE DELLA RARITÀ

22 Feb 2021 BARI - ITALY, Italy

XIV GIORNATA MONDIALE MALATTIE RARE "AIUOLE DELLA RARITÀ"LUNEDÌ ’ 22 FEBBRAIO ORE 10. 00 Ospedale Pediatrico Giovanni XXIII di Bari...

LE MALATTIE RARE A SCUOLA: DALL’IMPATTO ALL’INCLUSIONE

28 Feb 2024 SAN DONA' DI PIAVE, Italy

EVENTO RIVOLTO AI DOCENTI ED AL PERSONALE SANITARIO dell’area Veneto Orientale per sensibilizzare sul tema delle Malattie Rare e dell’importanza...

Le scarpe di Alice

1 Mar 2024 Gussago (BS€, Italy

Un concerto inaugurale “Le scarpe di Alice” della mostra “La donna di Sera”: filo conduttore il coraggio e la fragilità...

The colours and the logo of the World Rare Diseases Day will be projected from 6.00 pm to 10 pm...

In preparation to the Rare Disease Day 2022, we are pleased to invite you to a special webinar on Monday, Feb 28th from...

A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...

Leiden Bio Science Park Rare Disease Day Awareness Event

29 Feb 2024 Leiden and Oegstgeest, Netherlands

BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...

Leiden Bio Science Park Rare Disease Day Awareness Event

28 Feb 2023 Leiden and Oegstgeest, Netherlands

BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...

BioPartner, VICO & Ntrans, are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with...

Lekarz-Pacjent-Naukowiec

28 Feb 2024 Poznań, Poland

28 lutego 2024 roku, z okazji Międzynarodowego Dnia Chorób Rzadkich, Fundacja ICHB PAN we współpracy z Instytutem Chemii Bioorganicznej PAN...

Lesch Nyhan Disease International Virtual Meeting

27 Feb 2021 to 28 Feb 2021 Boston, United States

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...

Lesch Nyhan Virtual Meeting

27 Feb 2021 to 28 Feb 2021 West Roxbury, United States

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...

Less Rare: demystifying rare diseases

29 Feb 2024 Coimbra, Portugal

Less Rare: demystifying rare diseases is the event organized by CNC-UC to mark World Rare Disease Day, on February 29,...

Let's be a model of good practice

6 Feb 2023 to 10 Feb 2023 Ohrid, North Macedonia

With the symbolic painting of hands and posters the teachers and the students sent a message for unreserved support and...

Lève le voile

23 Feb 2023 Mouscron, Belgium

Dans le cadre de la journée des maladies rares et/ou graves, l’asbl Chiara, Vie, Don d’organes et Solidarité organise en...

Libation for Lukie

2 Mar 2024 Somerville , United States

A year ago, Baby Lukie was diagnosed with a very rare disease called ZTTK, discovered only in 2016. There are...

Life Illuminated, People First

25 Feb 2023 to 3 Mar 2023 Beijing, China

As China has a large population, the patients with rare diseases in China are not rare. Chinese government and passionate...

Life’s a Polyp with Zeke and Katie explores the rare disease Familial Adenomatous Polyposis and all it involves including ostomies,...

Light for rare

28 Feb 2023 Banja Luka, Bosnia and Herzegovina

Banja Luka illuminated the cultural building “Banski dvor” in the city center for the third year in a row.

Light It Up

22 Feb 2021 to 28 Feb 2021 Luxembourg, Esch, Ettelbruck, Mamer, Schengen, Wiltz, Luxembourg

Due to the COVID-19 pandemic, gathering events will not be possible in 2021. Thus, the rare disease community has decided...

Light it Up

8 Feb 2022 to 28 Feb 2022 Canada Wide, Canada

Help CDKL5 Canada ‘Light up’ our windows to support and raise awareness for Rare Disease day 2022. Get creative with...

Light it up for Rare Diseases! The National Alliance for Rare Diseases Support - Malta together with the Ministry for Gozo will...

Light it up for Rare Diseases!  The National Alliance for Rare Diseases Support - Malta in collaboration with the Mdina...

Light It Up For Rare!

28 Feb 2022 LaGrange, GA, United States

Join us in a gathering of supporters of patients with Rare Diseases around the Fountain at Lafayette Square, LaGrange GA!...

LIGHT National auditorium

28 Feb 2023 Ordino, Andorra

Lighting the building and a conference about Rare diseases

Light up

28 Feb 2022 to 1 Mar 2022 Kruševac, Serbia

U 7 pm biće osvetljena Gradska kuća opštine Kruševac

Light Up

29 Feb 2024 to 1 Mar 2024 Pisa, Italy

Light up the Pisa Tower

Light up at Tower 42

28 Feb 2021 London, United Kingdom

We will light the top of tower 42 in rare dieseaae day colours in 28th Feb 2021!

Light up event

28 Feb 2022 Harare, Zimbabwe

This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...

Light up Event in Zimbabwe

28 Feb 2022 Harare, Zimbabwe

Rare Disease Day in Zimbabwe 2022! #LIGHTUPFORRARE

Light up for Incontinentia Pigmenti

4 Mar 2023 Naples, Italy

Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world

Light up For Rare

28 Feb 2023 Wolfeboro , United States

Rare Disease Day Municipal Proclamation 2023 Light Up Wolfeboro Town Hall for Rare Disease Day

Light Up For Rare

29 Feb 2024 ProDi – Zentrum für Proteindiagnostik, Ruhr-Universität Bochum, Germany

Awareness event with illumination of a research building, information stands, discussion rounds and guided laboratory tours.

Light up for Rare

29 Feb 2024 to 1 Mar 2024 Winnipeg Manitoba, Canada

Winnipeg will be lighting up their Winnipeg Sign and the Esplanade Riel Bridge on Rare Disease Day (At the Forks...

LIGHT UP FOR RARE

28 Feb 2022 Bergamo, Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” illuminating Porta San Giacomo. We are grateful to our branch...

Light Up For Rare

28 Feb 2023 44801 Bochum, Germany

Informationsveranstaltung zu Seltenen Erkrankungen und Beleuchtung des Gebäudes

LIGHT UP FOR RARE

28 Feb 2022 Castellamonte (Torino), Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...

Light Up for Rare

28 Feb 2023 Nationwide, Ireland

Everyone can participate! Show solidarity with the rare disease community and light up for Rare Disease Day at 7pm on...

Light up for Rare

29 Feb 2024 Charlottetown , Canada

The city hall tower will be lit up for Rare Disease day for the first time ever.

Light Up For Rare

29 Feb 2024 Cleveland , United States

The top of the iconic Terminal Tower in downtown Cleveland will be lit in the colors of Rare Disease Day.

Light Up for Rare

28 Feb 2021 Carmarthenshire, United Kingdom

Thank you councillor Emlyn Dole. Leader @CarmsCouncil for arranging County Hall #Carmarthen #Wales to be lit up to mark Rare...

Light up for Rare - County Administration - United-States

28 Feb 2023 San Diego, United States

The County Administration has agreed to Light up the building on/for Rare Disease Day

Light up for rare - Gateshead Millennium Bridge

28 Feb 2022 Gateshead , United Kingdom

Gateshead Millennium Bridge will be joining other landmarks in lighting up in support of Rare Disease day .

UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” illuminating of green the Mole Antonelliana. We are grateful to...

Light up for Rare - Northern Ireland Rare Disease Partnership

29 Feb 2024 Northern Ireland , United Kingdom

Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...

Light up for Rare - Northern Ireland Rare Disease Partnership

29 Feb 2024 Northern Ireland Armagh, United Kingdom

In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...

Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...

LIGHT UP FOR RARE - Palazzo della Loggia

28 Feb 2022 Brescia, Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” by illuminating “Palazzo della Loggia”. We are grateful to our...

Illumination event: Buildings on campus of the University Hospital Essen are illuminated with different colors to symbolize the diversity of...

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating the “Palazzo della Regione” in Piazza Unità d’Italia....

Light Up For Rare at Yocum Institute

28 Feb 2022 West Lawn, Pennsylvania, United States

Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.

Light Up For Rare Campaign

29 Feb 2024 San Antonio, United States

The Frost Tower is participating in the Light Up For Rare Campaign and its iconic exterior lighting will illuminate in...

Light Up For Rare Campaign

26 Feb 2024 to 29 Feb 2024 San Antonio, United States

Danzavida De San Antonio Dance Company is proudly participating in the Light Up For Rare Campaign. The lighting in the...

Light Up For Rare Campaigne

26 Feb 2024 to 29 Feb 2024 San Antonio, United States

The Alamo Quarry is participating in the Light Up For Rare Campaign and will have the famous smoke stacks illuminated...

Light up for Rare Disease - Millennium bridge - United Kingdom

28 Feb 2023 Newcastle Upon Tyne, United Kingdom

The Millennium bridge will be lit up to celebrate International Rare Disease Day in collaboration with Gateshead City Council and...

St Mary’s Lighthouse will be lit up to celebrate International Rare Disease Day in collaboration with Gateshead City Council and...

Light up for Rare Disease Day 2024

27 Feb 2024 to 29 Feb 2024 Kyiv, Ukraine

The NGO ‘Rare Diseases of Ukraine” organises the illumination to highlight the Rare Disease Day 2024 in Ukraine and to...

Light up for Rare Disease Day 2024 - Northern Ireland Rare Disease Partnership

29 Feb 2024 Fermanagh & Omagh District Council , United Kingdom

Light up for Rare Disease Day 2024 Both Enniskillen Castle and Strule Arts Centre, will be lighting up pink! In...

Light up for Rare Disease Day 2024 - Northern Ireland Rare Disease Partnership

29 Feb 2024 Northern Ireland - Antrim , United Kingdom

In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...

Light up for Rare Disease Day 2024 - Northern Ireland Rare Disease Partnership

29 Feb 2024 Northern Ireland - Antrim , United Kingdom

In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...

Light Up for Rare Disease Day at Campus Martius Park

29 Feb 2024 Detroit, United States

The Downtown Detroit Partnership is proud to show our stripes for those living with rare diseases by lighting up Campus...

Light up for rare Egypt

28 Feb 2022 Elsheikh Zayed, Egypt

On the 28th of february at 7 pm cairo local time, sharing with the “global light up for rare” chain,...

Light Up for Rare Philippines

28 Feb 2023 Quezon City, Philippines

Light Up for Rare Philippines is an open invitation to all offices, institutions, corporations and government agencies. The Light Up...

Light Up For Rare Philippines

28 Feb 2022 to 28 Mar 2022 Manila, Philippines

In coordination with the National Parks Development Committee, the Rizal Monument was illuminated in purple for Rare Disease Day as...

Light Up for Rare Philippines (Manila)

28 Feb 2023 Rizal Park 1000 Manila Philippines ·, Philippines

Light Up for Rare Philippines is an open invitation to all offices, institutions, corporations and government agencies. The Light Up...

light up Roanoke Tower

28 Feb 2022 Roanoke, United States

https://roanoketower.com/tower-lights/ Light up of city building

Light Up San Diego, CA County Administration Center

28 Feb 2022 San Diego, United States

San Diego County Administration Center, Landmark building, will #LightUpforRare. This lighting was organized by ADCY5.org to raise awareness for all...

Light up. Puente Bicentenario

28 Feb 2022 Aguascalientes , Mexico

In Aguascalientes, Mexico, the geneticist doctor of our son Juan Diego, who has Phelan Mcdermid syndrome, managed to light up...

Lightening Chidrrn Hospital Dr. Victor Gomoiu Bucharest

26 Feb 2022 to 28 Feb 2022 Bucharest, Romania

Clinic Hospital for Children “Victor Gomoiu”

The National Alliance for Rare Diseases Support – Malta will be joining the rest of the world in the Global...

LIGHTING IT UP - GTC TOWER

28 Feb 2022 Nairobi, Kenya

Lighting up the tallest tower in East Africa, Kenyan style!!

Lighting of 1710 Windmill in Xewkija, Gozo, Malta

28 Feb 2023 Xewkija, Gozo, Malta

The National Alliance for Rare Diseases Support – Malta in collaboration with the Ministry for Gozo will be lighting up...

Lighting of the buildings in RD Day colors

28 Feb 2021 Prague and other cities of the country, Czech Republic

On the 2021 RD Day a building of the Czech Ministry of Health will lit in the colours of the RD...

Illumination of “El Capitolio” (Capitol of Puerto Rico) – San Juan – in honor of Rare Disease Day in Puerto...

LIGHTING UP “THE UMBRELLAS”, THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...

LIGHTING UP “THE UMBRELLAS”, THESSALONIKI - 2023

28 Feb 2023 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...

LIGHTING UP A BUILDING AT ELEFTHERIOS VENIZELOS AIRPORT

28 Feb 2023 to 1 Mar 2023 Athens, Greece

“95” Rare Alliance Greece illuminates a building at Eleftherios Venizelos Airport, in Athens, Greece.

Lighting up AA Fanum House

28 Feb 2022 Basingstoke, United Kingdom

The Automobile Association are lighting up their head office to represent Pontine Tegmental Cap Dysplasia and Lola who is a...

Lighting up AAMI Park

28 Feb 2022 Melbourne, Australia

Illumination of AAMI Park in honor of Rare Disease Day in Australia.

Lighting up AAMI Park - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the AAMI Park in honor of Rare Disease Day in Australia.

Illumination of Acque del fiume della città di Ceprano in honor of Rare Disease Day in Italy.

Lighting up Adelaide Oval

28 Feb 2022 North Adelaida, Australia

Illumination of Adelaide Oval in honor of Rare Disease Day in Australia.

Lighting up Adelaide Oval - 2023 - Australia

28 Feb 2023 South Australia, Australia

Illumination of the Adelaide Oval in honor of Rare Disease Day in Australia.

Lighting up Alamo Quarry Market - United States

28 Feb 2022 San Antonio, United States

Illumination of the Alamo Quarry Market smoke stacks in honor of Rare Disease Day in the United States.

Lighting up Albany Grain Terminal Silo

28 Feb 2022 Perth, Australia

Illumination of Albany Grain Terminal Silo in honor of Rare Disease Day in Australia.

Lighting up Albany Town Square - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Albany Town Square in honor of Rare Disease Day in Australia.

Lighting up Alison Harman Garden - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Alison Harman Garden in honor of Rare Disease Day in Australia.

Lighting up Amiens's town hall - France

28 Feb 2023 Amiens, France

Illumination of Amiens’ town hall in honour of Rare Disease Day in France

Lighting up Amiens's town hall - France

28 Feb 2022 Amiens, France

Illumination of Amiens’ town hall in honour of Rare Disease Day in France

Illumination of Antiguo Palacio de Justicia y Antiguo Ayuntamiento de Estella-Lizarra in honour of Rare Disease Day in Spain

Lighting up Arc of Dreams

26 Feb 2022 to 28 Feb 2022 South Dakota, United States

Illumination of Arc of Dreams in honor of Rare Disease Day in USA.

Lighting up Archi di Palazzo Catena

28 Feb 2022 Asti , Italy

Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.

Lighting up Archie Graham Community Centre

28 Feb 2022 Warrnambool , Australia

Illumination of Archie Graham Community Centre in honor of Rare Disease Day in Australia.

Lighting up Arena di Verona

28 Feb 2022 Verona, Italy

Illumination of Arena di Verona in honor of Rare Disease Day in Italy.

Lighting up Arrol Crane at Jetty Road

28 Feb 2022 Bunbury Timber Jetty, Australia

Illumination of Arrol Crane at Jetty Road in honor of Rare Disease Day in Australia.

Lighting up Ars Electronica Center

28 Feb 2022 Linz, Austria

Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.

Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento Cartes in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de A Guarda in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Avilés in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Baeza in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Barcelona in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Burlada in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Cádiz in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Campos del Río – Spain

28 Feb 2022 Campos del Río, Spain

Illumination of Ayuntamiento de Campos del Río in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Casares in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Cuenca in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Dos Hermanas – Spain

28 Feb 2022 Dos Hermanas, Spain

Illumination of Ayuntamiento de Dos Hermanas in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Gandía in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Gijón in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Huelva in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Huércal de Almería – Spain

28 Feb 2022 Huércal de Almería, Spain

Illumination of Ayuntamiento de Huércal de Almería in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de La Carolina – Spain

28 Feb 2022 La Carolina, Spain

Illumination of Ayuntamiento de La Carolina in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Lorca in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Marbella in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Palma de Mallorca in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Reocin - 2023 – Spain

28 Feb 2023 Puente San Miguel, Spain

Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Reocin – Spain

28 Feb 2022 Puente San Miguel, Spain

Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Santa Cruz – Spain

28 Feb 2022 Santa Cruz de Tenerife, Spain

Illumination of Ayuntamiento de Santa Cruz in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Sevilla in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Soria in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Talavera – Spain

28 Feb 2022 Talavera de la Reina, Spain

Illumination of Ayuntamiento de Talavera in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Totana in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Valdepeñas / fuente de la Plaza de España de Valdepeñas in honour of Rare Disease Day in...

Lighting up Ayuntamiento de Valencia – Spain

28 Feb 2022 València, Spain

Illumination of Ayuntamiento de Valencia in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Valencia (+ lectura institucional y pancarta) in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento de Villatorres – Spain

28 Feb 2022 Villargordo, Spain

Illumination of Ayuntamiento de Villatorres in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Vitoria in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento Gandía – Spain

28 Feb 2022 Gandia, Spain

Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain

Lighting up Ayuntamiento Jabalquito – Spain

28 Feb 2022 Jabalquinto, Spain

Illumination of Ayuntamiento Jabalquito in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento Santander in honour of Rare Disease Day in Spain

Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany

Lighting up Bahnhof Mannheim – Germany

28 Feb 2022 Mannheim, Germany

Illumination of Bahnhof Mannheim in honour of Rare Disease Day in Germany

Lighting up BarArena - Leverkusen – Germany

28 Feb 2022 Leverkusen, Germany

Illumination of BarArena in Leverkusen in honour of Rare Disease Day in Germany

Illumination of Basse-Terre’s town hall in honour of Rare Disease Day in France

Lighting up Batumi Stadium - Batumi, Georgia

28 Feb 2022 Batumi, Georgia

Illumination of Batumi Stadium in honor of Rare Disease Day in Georgia.

Lighting up Baylor College of Medicine - United-States

28 Feb 2022 Houston, United States

Illumination of the Baylor College of Medicine in honor of Rare Disease Day in the United-States.

Lighting up Bergisel Schanze

26 Feb 2022 to 28 Feb 2022 Innsbruck, Austria

Illumination of Bergisel Schanze in honor of Rare Disease Day in Austria.

Illumination of Besucherzentrum der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Lighting up Biogen Tower München – Germany

28 Feb 2022 München, Germany

Illumination of Biogen Tower München in honour of Rare Disease Day in Germany

Illumination of the Birrarung Marr Pedestrian Bridge in honor of Rare Disease Day in Australia.

Lighting Up Boathouse Row

28 Feb 2022 to 1 Mar 2022 Philadelphia, United States

The City of Philadelphia is lighting up historic Boathouse Row in the colors of Rare Disease Day. This event is...

Lighting up Box Hill's town hall - Australia

28 Feb 2022 Box Hill, Australia

Illumination of Box Hill’s town hall in honor of Rare Disease Day in Australia.

Lighting up Brant Street Pier - Canada

28 Feb 2022 Burlington, Canada

Illumination of Brant Street Pier in #RareDiseaseDay colours

Lighting up Broadmeadows Town Hall

28 Feb 2022 Broadmeadows, Australia

Illumination of Broadmeadows Town Hall in honor of Rare Disease Day in Australia.

Illumination of the Broadmeadows Town Hall in honor of Rare Disease Day in Australia.

Illumination of Budynek Instytutu Biochemii i Biofizyki PAN w Warszawie in honour of Rare Disease Day in Poland

Illumination of Budynek Ortopedyczno-Rehabilitacyjnego Szpitala Klinicznego im. Wiktora Degi in honour of Rare Disease Day in Poland

Illumination of Burg und Kloster Oybin in honour of Rare Disease Day in Germany

Lighting up Burj Khalifa

28 Feb 2022 Dubai, United Arab Emirates

To the Rare Disease Community, we have the pleasure to invite you all to the light up of Burj Khalifa...

Lighting up Bytów's town hall - Poland

28 Feb 2022 Bytów, Poland

Illumination of Bytów’s town hall in honour of Rare Disease Day in Poland

Lighting up Cabildo de Tenerife - 2023 – Spain

28 Feb 2023 Santa Cruz de Tenerife, Spain

Illumination of Cabildo de Tenerife in honour of Rare Disease Day in Spain

Lighting up Casa Comunale - Roccamena (Pa)

28 Feb 2022 Palermo, Italy

Illumination of Casa Comunale – Roccamena (Pa) in honor of Rare Disease Day in Italy.

Illumination of Casas Colgadas de Cuenca in honour of Rare Disease Day in Spain

Lighting up Cascata Grande dei Liri

28 Feb 2022 Isola del Liri, Italy

Illumination of Cascata Grande dei Liri in honor of Rare Disease Day in Italy.

Lighting up Cascate Monumentali - Leuca

28 Feb 2022 Leuca , Italy

Illumination of Cascate Monumentali in honor of Rare Disease Day in Italy.

Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.

Lighting up Castel dell'Ovo

28 Feb 2022 Napoli, Italy

Illumination of Castel dell’Ovo in honor of Rare Disease Day in Italy.

Lighting up Castel Sismondo

28 Feb 2022 Rimini, Italy

Illumination of Castel Sismondo in honor of Rare Disease Day in Italy.

Lighting up Castello Aragonese

28 Feb 2022 Lecce, Italy

Illumination of Castello Aragonese in honor of Rare Disease Day in Italy.

Lighting up Castello di Lari

28 Feb 2022 Lari, Italy

Illumination of Castello di Lari in honor of Rare Disease Day in Italy.

Lighting up Castello Medievale

28 Feb 2022 Lecce, Italy

Illumination of Castello Medievale in honor of Rare Disease Day in Italy.

Lighting up Castelo de Bragança – Bragança

28 Feb 2022 Bragança, Portugal

Illumination of Castelo de Bragança – Bragança in honor of Rare Disease Day in Portugal.

Lighting up Castelo de Leiria – Leiria

28 Feb 2022 Leiria, Portugal

Illumination of Castelo de Leiria in honor of Rare Disease Day in Portugal.

Lighting up Castelo dos Mouros – Sintra

28 Feb 2022 Lisboa, Portugal

Illumination of Castelo dos Mouros – Sintra in honor of Rare Disease Day in Portugal.

Lighting up Catenary Lights

28 Feb 2022 Mullaloo, Australia

Illumination of Catenary Lights in honor of Rare Disease Day in Australia.

Illumination of the Catenary Lights, Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.

Illumination of Cauce del Río in honour of Rare Disease Day in Spain

Lighting up Central Bank Boardwalk - Australia

28 Feb 2022 Queensland, Australia

Illumination of Central Bank Boardwalk in honor of Rare Disease Day in Australia.

Lighting up Central Park Boardwalk - 2023 - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Central Park Boardwalk in honor of Rare Disease Day in Australia.

Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.

Illumination of Centro di aggregazione sociale – Surano (Le) in honor of Rare Disease Day in Italy.

Lighting up Chiesa degli Scolopi

28 Feb 2022 Alatri, Italy

Illumination of Chiesa degli Scolopi in honor of Rare Disease Day in Italy.

Lighting up Chiesa di San Sebastiano

28 Feb 2022 Pescara, Italy

Illumination of Chiesa di San Sebastiano in honor of Rare Disease Day in Italy.

Lighting up Chiesa Madre

28 Feb 2022 Aci Sant'Antonio , Italy

Illumination of Chiesa Madre in honor of Rare Disease Day in Italy.

Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.

Illumination of Chiesa Madre SS Pietro e Paolo – Galatina (LE) in honor of Rare Disease Day in Italy.

Illumination of Chiesa S.Maria Assunta palazzo comunale in honor of Rare Disease Day in Italy.

Lighting up Chiostro dei Minori Osservanti

28 Feb 2022 Messina, Italy

Illumination of Chiostro dei Minori Osservanti in honor of Rare Disease Day in Italy.

Lighting up City Beach Function Centre - Australia

28 Feb 2023 New South Wales, Australia

Illumination of the City Beach Function Centre in honor of Rare Disease Day in Australia.

Lighting up City Hall

28 Feb 2022 Philadelphia, United States

Illumination of City Hall in honor of Rare Disease Day in USA.

Lighting up City Hall Annex

28 Feb 2022 Toowoomba City, Australia

Illumination of City Hall Annex in honor of Rare Disease Day in Australia.

Lighting up City Hall Annex - Australia

28 Feb 2023 Queensland, Australia

Illumination of the City Hall Annex in honor of Rare Disease Day in Australia.

Lighting up City Hall Oradea

28 Feb 2022 Oradea, Romania

Illumination of City Hall Oradea in honor of Rare Disease Day in Romania.

Lighting up City of Gosnells Civic Centre - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the City of Gosnells Civic Centre in honor of Rare Disease Day in Australia.

Lighting up Clermont Auvergne Opéra - France

28 Feb 2022 Clermont-Ferrand, France

Illumination of Clermont Auvergne Opéra in honour of Rare Disease Day in France

Illumination of Clinic Children Hospital “Dr. Victor Gomoiu’’ in honor of Rare Disease Day in Romania.

Illumination of Collegiata di Saint Gilles di Verrès in honor of Rare Disease Day in Italy.

Lighting up Complesso Santa Sabina

28 Feb 2022 Sillanus, Italy

Illumination of Complesso Santa Sabina in honor of Rare Disease Day in Italy.

Lighting up Comune di Buccinasco

21 Feb 2022 to 28 Feb 2022 Buccinasco, Milano, Italy

Illumination of Comune di Buccinasco in honor of Rare Disease Day in Italy.

Lighting up Comune di Camaiore

27 Feb 2022 Camaiore, Italy

Illumination of Comune di Camaiore in honor of Rare Disease Day in Italy.

Lighting up Comune di carpi

28 Feb 2022 Modena, Italy

Illumination of Comune di carpi in honor of Rare Disease Day in Italy.

Lighting up Comune di Mestre

28 Feb 2022 Venezia, Italy

Illumination of Comune di Mestre in honor of Rare Disease Day in Italy.

Lighting up Comune di Mondovì

28 Feb 2022 Mondovì , Italy

Illumination of Comune di Mondovì in honor of Rare Disease Day in Italy.

Lighting up Comune di Rufina

28 Feb 2022 Florence, Italy

Illumination of Comune di Rufina in honor of Rare Disease Day in Italy.

Lighting up Comune di Seveso

28 Feb 2022 Seveso, Italy

Illumination of Comune di Seveso in honor of Rare Disease Day in Italy.

Lighting up Comune di Venezia

25 Feb 2022 to 28 Feb 2022 Venezia, Italy

Illumination of Comune di Venezia in honor of Rare Disease Day in Italy.

Lighting up Comune in Sant'Antonio Abate

28 Feb 2022 Sant'Antonio Abate, Italy

Illumination of Comune in Sant’Antonio Abate in honor of Rare Disease Day in Italy.

Lighting up Council House

28 Feb 2022 Perth, Australia

Illumination of Council House in honor of Rare Disease Day in Australia.

Lighting up Council House - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Council House in honor of Rare Disease Day in Australia.

Illumination of Craneosaurs of Żegluga Szczecińska & Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in...

Lighting up Cristo del Otero - 2023 – Spain

28 Feb 2023 Palencia, Spain

Illumination of Cristo del Otero in honour of Rare Disease Day in Spain

Lighting up Cristo del Otero – Spain

28 Feb 2022 Palencia, Spain

Illumination of Cristo del Otero in honour of Rare Disease Day in Spain

Lighting up Crown Casino - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Crown Casino in honor of Rare Disease Day in Australia.

Illumination of Cyprus Institute of Neurology and Genetics in honor of Rare Disease Day in Cyprus.

Illumination of Cyprus Telecommunications Authority – Electra Building in honor of Rare Disease Day in Cyprus.

Illumination of Dipartimento di Medicina della Università Aldo Moro in honor of Rare Disease Day in Italy.

Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain

Lighting up Diputación de Ciudad Real – Spain

28 Feb 2022 Ciudad Real, Spain

Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain

Illumination of Diputación de Jaén in honour of Rare Disease Day in Spain

Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain

Lighting up Diputación Foral de Álava – Spain

28 Feb 2022 Vitoria-Gasteiz, Spain

Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain

Illumination of the Dr. von Hauner Children’s Hospital in honour of Rare Disease Day in Germany

Illumination of Dreifaltigkeitssäule Rathausplatz St. Pölten in honor of Rare Disease Day in Austria.

Lighting up Duomo Reggio Emilia

28 Feb 2022 Reggio Emilia, Italy

Illumination of Duomo Reggio Emilia in honor of Rare Disease Day in Italy.

Illumination of Dziedziniec Urzędu Miasta Poznania wraz z Placem Kolegiackim in honour of Rare Disease Day in Poland

Lighting up Eastern Goldfields Community Centre

28 Feb 2022 Kalgoorlie, Australia

Illumination of Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.

Illumination of the Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.

Illumination of Edificio Capitania del Puerto de Badalona in honour of Rare Disease Day in Spain

Illumination of Edifício da Câmara Municipal – Calheta in honor of Rare Disease Day in Portugal.

Illumination of Edifício da Câmara Municipal – Castelo Branco in honor of Rare Disease Day in Portugal.

Illumination of Edificio de la Consejería de Salud in honour of Rare Disease Day in Spain

Illumination of Edifício dos Paços do Concelho – Angra do Heroísmo in honor of Rare Disease Day in Portugal.

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Illumination of Edifício dos Paços do Concelho – Funchal in honor of Rare Disease Day in Portugal.

Illumination of Edifício dos Paços do Concelho – Guarda in honor of Rare Disease Day in Portugal.

Illumination of Edifício dos Paços do Concelho – Portalegre in honor of Rare Disease Day in Portugal.

Illumination of Edifício dos Paços do Concelho – Santarém in honor of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Angra do Heroísmo, Açores in honor of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Coimbra in honor of Rare Disease Day in Portugal.

Illumination of the difício dos Paços do Concelho, Coimbra in honor of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Évora in honor of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Guarda in honor of Rare Disease Day in Portugal.

Illumination of Edificio Moneo in honour of Rare Disease Day in Spain

Illumination of El castell de Benidorm in honour of Rare Disease Day in Spain

Lighting up El foso de San Felipe - 2023 – Spain

28 Feb 2023 Foso de San Felipe, Spain

Illumination of El foso de San Felipe in honour of Rare Disease Day in Spain

Illumination of El Tossal de Benidorm in honour of Rare Disease Day in Spain

Illumination of Electricity Authority of Cyprus – Larnaca Offices in honor of Rare Disease Day in Cyprus.

Lighting up Emergency University Hospital

28 Feb 2022 Bucharest, Romania

Illumination of Emergency University Hospital Bucharest in honor of Rare Disease Day in Romania.

Lighting up Emigration Museum - Poland

28 Feb 2022 Gdynia, Poland

Illumination of Emigration Museum in honour of Rare Disease Day in Poland

Illumination of Emigration Museum in honour of Rare Disease Day in Poland fot. Anna Żbikowska

Lighting up Empire State Building - United-States

28 Feb 2022 New York, United States

Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.

Illumination of Estadio San Mamés in honour of Rare Disease Day in Spain

Illumination of Estátua D. José I – Terreiro do Paço in honor of Rare Disease Day in Portugal.

Lighting up Evan Walker Bridge

28 Feb 2022 Southbank , Australia

Illumination of Evan Walker Bridge in honor of Rare Disease Day in Australia.

Lighting up Evan Walker Bridge - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Evan Walker Bridge in honor of Rare Disease Day in Australia.

Lighting up Ex Convento dei Cappuccini

28 Feb 2022 Verres, Italy

Illumination of Ex Convento dei Cappuccini in honor of Rare Disease Day in Italy.

Illumination of ex Convento dei Domenicani Cavallino (Le) in honor of Rare Disease Day in Italy.

Lighting up Falls Park

26 Feb 2022 to 28 Feb 2022 South Dakota, United States

Illumination of Falls Park in honor of Rare Disease Day in USA.

Lighting up FDA

28 Feb 2022 to 4 Mar 2022 Harrisburg, United States

Illumination of FDA in honor of Rare Disease Day in USA.

Lighting up Federation Square

28 Feb 2022 Melbourne, Australia

Illumination of Federation Square in honor of Rare Disease Day in Australia.

Lighting up Federation Square - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Federation Square in honor of Rare Disease Day in Australia.

Lighting up Festspielhaus St. Pölten

28 Feb 2022 to 5 Mar 2022 St Polten, Austria

Illumination of Festspielhaus St. Pölten in honor of Rare Disease Day in Austria.

Illumination of Flinders Street Railway Station in honor of Rare Disease Day in Australia.

Illumination of the Flinders Street Station in honor of Rare Disease Day in Australia.

Lighting up Fontana Dei Due Leoni

22 Feb 2022 to 28 Feb 2022 Teramo, Italy

Illumination of Fontana Dei Due Leoni. Lighting up Teramo in honor of Rare Disease Day in Italy.

Illumination of Fontana del Nettuno di Piazza Duomo – Trento in honor of Rare Disease Day in Italy.

Lighting up Fontana del Teatro Valli

28 Feb 2022 Reggio Emilia, Italy

Illumination of Fontana del Teatro Valli in honor of Rare Disease Day in Italy.

Illumination of Fontana del Tritone – Piazza Garibaldi – Caltanissetta in honor of Rare Disease Day in Italy.

Illumination of Fontana di Corso Vittorio Emanuele II in honor of Rare Disease Day in Italy.

Lighting up Fontana di Diana Siracusa

28 Feb 2022 Siracusa, Italy

Illumination of Fontana di Diana Siracusa in honor of Rare Disease Day in Italy.

Illumination of Fontana di Piazza della Repubblica in honor of Rare Disease Day in Italy.

Lighting up Fontana di Piazza della Repubblica

28 Feb 2022 Terracina, Italy

Illumination of Fontana di Piazza della Repubblica in honor of Rare Disease Day in Italy.

Lighting up Fontana di Piazza Ordelaffi

28 Feb 2022 Cesena, Italy

Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.

Lighting up Fontana di Piazza San Leonardo

28 Feb 2022 Treviso, Italy

Illumination of Fontana di Piazza San Leonardo in honor of Rare Disease Day in Italy.

Illumination of Fontana luminosa – Piazza Battaglione Alpini in honor of Rare Disease Day in Italy.

Lighting up Fontana Piazza Umberto I

28 Feb 2022 Calascibetta , Italy

Illumination of Fontana Piazza Umberto I in honor of Rare Disease Day in Italy.

Lighting up for Rare - chain of lights for RD Day

25 Feb 2022 to 28 Feb 2022 buildings in many Czech cities, Czech Republic

We are making efforts to lighten up as many buildings in the Czech Republic as possible to create chain of...

Lighting Up for Rare - US Bank Stadium

28 Feb 2022 Minneapolis, United States

By partnering with US Bank Stadium in Minneapolis to Light Up For Rare for a 2nd year, the Yaya Foundation...

LIGHTING UP FOR RARE IN RWANDA

28 Feb 2022 Kigali, Rwanda

Illumination of  some building homes and offices with Rare disease day colours in honour of Rare Disease Day in Rwanda:...

Lighting up Fremantle Prison

28 Feb 2022 Fremantle, Australia

Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.

Lighting up Fremantle Prison Gatehouse - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Fremantle Prison Gatehouse in honor of Rare Disease Day in Australia.

Lighting up Frost Tower – United States

28 Feb 2022 San Antonio, United States

Illumination of the Frost Tower in honor of Rare Disease Day in the United States.

Illumination of Fuente de Cibeles in honour of Rare Disease Day in Spain

Lighting up Fuente de la puerta – Spain

28 Feb 2022 Sevilla, Spain

Illumination of Fuente de la puerta in honour of Rare Disease Day in Spain

Illumination of Fuente de la Réplica del submarino de Isaac Peral de Cartagena in honour of Rare Disease Day in Spain

Illumination of Fuente de los Patos de Alhama de Murcia in honour of Rare Disease Day in Spain

Illumination of Fuente de Murrieta de Logroño in honour of Rare Disease Day in Spain

Lighting up Fuente de Santo Domingo - 2023 – Spain

28 Feb 2023 Fuente de Santo Domingo, Spain

Illumination of Fuente de Santo Domingo in honour of Rare Disease Day in Spain

Lighting up Geelong Intersection Moorabool

28 Feb 2022 Geelong, Australia

Illumination of Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.

Lighting up George Roberts Bridge - Australia

28 Feb 2022 Townsville, Australia

Illumination of George Roberts Bridge in honor of Rare Disease Day in Australia.

Lighting up George Roberts Bridge 2023 - Australia

28 Feb 2023 Queensland, Australia

Illumination of the George Roberts Bridge in honor of Rare Disease Day in Australia.

Lighting up Giant Wheel (Riesenrad) - Austria

26 Feb 2022 to 28 Feb 2022 Vienna, Austria

Illumination of Giant Wheel (Riesenrad) in honor of Rare Disease Day in Austria

Lighting up Governor Mario M. Cuomo Bridge

28 Feb 2022 New York, United States

Illumination of Governor Mario M. Cuomo Bridge in honor of Rare Disease Day in USA.

Lighting up Granarone Cerveteri

28 Feb 2022 Rome, Italy

Illumination of Granarone Cerveteri in honor of Rare Disease Day in Italy.

Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France

Lighting up Grand Place – France

28 Feb 2022 Lille, France

Illumination of Grand Place in honour of Rare Disease Day in France

Lighting up Greenbrier - United-States

28 Feb 2022 White Sulphur Springs, United States

Illumination of Greenbrier in honor of Rare Disease Day in the United-States.

Lighting up Guppy Park

28 Feb 2022 Bunbury , Australia

Illumination of Guppy Park in honor of Rare Disease Day in Australia.

Lighting up Guppy Park - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Guppy Park in honor of Rare Disease Day in Australia.

Lighting up Hauptbahnhof Dresden – Germany

28 Feb 2022 Dresden, Germany

Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany

“95” Rare Alliance Greece illuminates Headquarters of the Regional Unit of Etoloakarnania in honor of Rare Disease Day in Mesologgi,...

Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.

Illumination of the Henry B. González Convention Center in honor of Rare Disease Day in the United States.

Lighting up Historical Arches

28 Feb 2022 North Carolina, United States

Illumination of Historical Arches in honor of Rare Disease Day in USA.

Lighting up Historical University – Germany

28 Feb 2022 Marburg, Germany

Illumination of Marburg´s Historical University in honour of Rare Disease Day in Germany

Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.

Illumination of Hospital Marqués de Valdecilla in honour of Rare Disease Day in Spain

Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain

Illumination of Hospital Universitario Cruces in honour of Rare Disease Day in Spain

Lighting up Hôtel Groslot – France

28 Feb 2022 Orléans, France

Illumination of Hôtel Groslot in honour of Rare Disease Day in France

Illumination of Ibarra balcón Municipal in honour of Rare Disease Day in Ecuador

Lighting up Iconic Shine Dome

28 Feb 2022 Canberra, Australia

Illumination of Iconic Shine Dome in honor of Rare Disease Day in Australia.

Illumination of Iglica Międzynarodowych Targów Poznańskich in honour of Rare Disease Day in Poland

Lighting up Igreja de Santiago – Óbidos

28 Feb 2022 Leiria, Portugal

Illumination of Igreja de Santiago – Óbidos in honor of Rare Disease Day in Portugal.

Illumination of the Igreja de Santiago, Óbidos in honor of Rare Disease Day in Portugal.

Lighting up Il Campanone della Brianza

28 Feb 2022 Lecco, Italy

Illumination of Il Campanone della Brianza in honor of Rare Disease Day in Italy.

Illumination of the Ipswich City Council Building in honor of Rare Disease Day in Australia.

Lighting up Istituto comprensivo

28 Feb 2022 Lecce, Italy

Illumination of Istituto comprensivo in honor of Rare Disease Day in Italy.

Lighting up Istituto di Ricerca Pediatrica Città della Speranza

21 Feb 2022 to 28 Feb 2022 Padova, Italy

Illumination of Istituto di Ricerca Pediatrica Città della Speranza in honor of Rare Disease Day in Italy.

Lighting up Istituto Superiore della Sanità

23 Feb 2022 to 28 Feb 2022 Rome, Italy

Illumination of Istituto Superiore della Sanità in honor of Rare Disease Day in Italy.

Lighting up J L Tower

28 Feb 2022 Arkansas, United States

Illumination of J L Tower in honor of Rare Disease Day in USA.

Lighting up Jacaranda Tower - 2023 - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Jacaranda Tower in honor of Rare Disease Day in Australia.

Lighting up Joondalup Drive Bridge

28 Feb 2022 Joondalup , Australia

Illumination of Joondalup Drive Bridge in honor of Rare Disease Day in Australia.

Lighting up Joondalup Drive Bridge - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Joondalup Drive Bridge in honor of Rare Disease Day in Australia.

Lighting up Katharinenturm Magdeburg – Germany

28 Feb 2022 Magdeburg, Germany

Illumination of Katharinenturm Magdeburg in honour of Rare Disease Day in Germany

Lighting up Kensington Town Hall

28 Feb 2022 Kensington VIC 3031, Australia

Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.

Illumination of Kienlesbergbrücke Ulm in honour of Rare Disease Day in Germany

Lighting up Kingston Clock Tower - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Broadmeadows Town Hall in honor of Rare Disease Day in Australia.

Lighting up Klangturm St. Pölten

23 Feb 2022 to 28 Feb 2022 St. Pölten, Austria

Illumination of Klangturm St. Pölten in honor of Rare Disease Day in Austria.

Lighting up Kleisthaus Berlin – Germany

28 Feb 2022 Berlin, Germany

Illumination of Kleisthaus Berlin in honour of Rare Disease Day in Germany

Lighting up Koombana Bay Footbridge

28 Feb 2022 Bunbury , Australia

Illumination of Koombana Bay Footbridge in honor of Rare Disease Day in Australia.

Lighting up Koombana Bay Footbridge - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Koombana Bay Footbridge in honor of Rare Disease Day in Australia.

Lighting up Koombana Bay Foreshore

28 Feb 2022 Bunbury , Australia

Illumination of Koombana Bay Foreshore in honor of Rare Disease Day in Australia.

Lighting up Koombana Bay Foreshore - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Koombana Bay Foreshore in honor of Rare Disease Day in Australia.

Illumination of Kopuła Stadionu Miejskiego in honour of Rare Disease Day in Poland

Lighting up Kurilpa Bridge

28 Feb 2022 South Brisbane, Australia

Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.

Lighting up Kurilpa Bridge - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Kurilpa Bridge in honor of Rare Disease Day in Australia.

Lighting up l'hôtel de Ville de Faches-Thumesnil - France

21 Feb 2022 to 28 Feb 2022 Faches-Thumesnil, France

Illumination of l’hôtel de Ville de Faches-Thumesnil in honour of Rare Disease Day in France

Lighting up l'Ours Pompon – France

28 Feb 2022 Dijon, France

Illumination of l’Ours Pompon in honour of Rare Disease Day in France

Lighting up La Baule-Escoublac's town hall – France

28 Feb 2022 La Baule-Escoublac, France

Illumination of La Baule-Escoublac’s town hall in honour of Rare Disease Day in France

Illumination of La Cappella di Piazza del Campo in honor of Rare Disease Day in Italy.

Lighting up La Rotonda

28 Feb 2022 Vincenza, Italy

Illumination of La Rotonda in honor of Rare Disease Day in Italy.

Lighting up Laimer Würfel München – Germany

28 Feb 2022 München, Germany

Illumination of Laimer Würfel München in honour of Rare Disease Day in Germany

Lighting up Lama monachile

26 Feb 2022 to 28 Feb 2022 Bari, Italy

Illumination of Lama monachile in honor of Rare Disease Day in Italy.

Lighting up Larnaca Medieval Castle

28 Feb 2022 Larnaca, Cyprus

Illumination of Larnaca Medieval Castle in honor of Rare Disease Day in Cyprus.

Illumination of Las Murallas Reales in honour of Rare Disease Day in Spain

Lighting up Launceston Town Hall

28 Feb 2022 to 1 Mar 2022 Launceston Tasmania, Australia

Illumination of Launceston Town Hall in honor of Rare Disease Day in Australia.

Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany

Lighting up Limassol Municipality Hall

28 Feb 2022 Limassol , Cyprus

Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.

Lighting up Lincoln Financial Field

5 Feb 2022 Philadelphia, United States

Illumination of Lincoln Financial Field in honor of Rare Disease Day in USA.

Lighting up Little Fletcher Bridge - 2023 - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Little Fletcher Bridge in honor of Rare Disease Day in Australia.

Lighting up Little Fletcher Bridge- Australia

28 Feb 2022 Townsville, Australia

Illumination of Little Fletcher Bridge in honor of Rare Disease Day in Australia.

Illumination of Loggia del Palazzo della Ragione in honor of Rare Disease Day in Italy.

Lighting up M8 St Peters Interchange - Australia

28 Feb 2023 New South Wales, Australia

Illumination of the M8 St Peters Interchange in honor of Rare Disease Day in Australia.

Lighting up Malbork's town hall - Poland

28 Feb 2022 Malbork, Poland

Illumination of Malbork’s town hall in honour of Rare Disease Day in Poland

Lighting up Malop Street

28 Feb 2022 Geelong, Australia

Illumination of Malop Street in honor of Rare Disease Day in Australia.

Lighting up Mandurah Bridge - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Mandurah Bridge in honor of Rare Disease Day in Australia.

Lighting up Manly Town Hall

28 Feb 2022 Manly, Australia

Illumination of Manly Town Hall in honor of Rare Disease Day in Australia.

Lighting up María Teresa - Argentina

28 Feb 2022 María Teresa, Argentina

Illumination of María Teresa in honour of Rare Disease Day in Argentina

Lighting up Marienkirche Neubrandenburg – Germany

28 Feb 2022 Neubrandenburg, Germany

Illumination of Marienkirche Neubrandenburg in honour of Rare Disease Day in Germany

Lighting up Marlston Hill Lookout

28 Feb 2022 Bunbury , Australia

Illumination of Marlston Hill Lookout in honor of Rare Disease Day in Australia.

Lighting up Marlston Waterfront

28 Feb 2022 Bunbury , Australia

Illumination of Marlston Waterfront in honor of Rare Disease Day in Australia.

Lighting up Marlston Waterfront - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Marlston Waterfront in honor of Rare Disease Day in Australia.

Lighting up Maschio Angioino - Napoli

28 Feb 2022 Napoli, Italy

Illumination of Maschio Angioino – Napoli in honor of Rare Disease Day in Italy.

Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.

Lighting up Matagarup Bridge

28 Feb 2022 Perth, Australia

Illumination of Matagarup Bridge in honor of Rare Disease Day in Australia.

Lighting up Matagarup Bridge - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Matagarup Bridge in honor of Rare Disease Day in Australia.

Lighting up Maydan Nezaleshnisti - Ukraine

1 Feb 2022 to 28 Feb 2022 Kiev, Ukraine

The main structure in Kiev will be highlighted by the International Rare Diseases Day

Pink, Blau, Grün und Lila sind die Farben des Rare Disease Day. Wir beteiligen uns am 28.02.2023 an der Aktion...

Lighting up Medical University Carol Davila

28 Feb 2022 Bucharest, Romania

Illumination of Medical University Carol Davila Bucharest in honor of Rare Disease Day in Romania.

Lighting up Melbourne Cricket Ground - Australia

28 Feb 2022 Melbourne, Australia

Illumination of Melbourne Cricket Ground in honor of Rare Disease Day in Australia.

Lighting up Melbourne Town Hall - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Melbourne Town Hall in honor of Rare Disease Day in Australia.

Lighting up Mid Hudson Bridge

28 Feb 2022 Highland, United States

Illumination of Mid Hudson Bridge in honor of Rare Disease Day in USA.

Illumination of Mieczysław Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in Poland

Lighting up Ministry of Health

28 Feb 2022 Nicosia, Cyprus

Illumination of Ministry of Health in honor of Rare Disease Day in Cyprus.

Lighting up Minnesota Bridge Anthony Falls

28 Feb 2022 Minneapolis, United States

Illumination of Minnesota Bridge Anthony Falls in honor of Rare Disease Day in USA.

Lighting up Mole Antonelliana - Torino

28 Feb 2022 Torino, Italy

Illumination of Mole Antonelliana – Torino in honor of Rare Disease Day in Italy.

Lighting up Monash Park Tree

28 Feb 2022 Shepparton, Australia

Illumination of Monash Park Tree in honor of Rare Disease Day in Australia.

Lighting up Monash Park Tree - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Monash Park Tree in honor of Rare Disease Day in Australia.

Lighting up Monumento "La Mamma Ciociara"

28 Feb 2022 Frosinone, Italy

Illumination of Monumento “La Mamma Ciociara” in honor of Rare Disease Day in Italy.

Lighting up Monumento ai Caduti

28 Feb 2022 Novara, Italy

Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.

Lighting up Monumento ai caduti

17 Feb 2022 to 28 Feb 2022 Reggio Emilia, Italy

Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.

Lighting up Monumento ai caduti

28 Feb 2022 Frosinone, Italy

Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.

Lighting up Monumento ai Caduti

28 Feb 2022 Caserta, Italy

Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.

Lighting up Monumento ai Caduti di Castiglione della Pescaia

28 Feb 2022 Castiglione della Pescaia, Italy

Illumination of Monumento ai Caduti di Castiglione della Pescaia in honor of Rare Disease Day in Italy.

Lighting up Monumento ai Caduti sul lavoro

28 Feb 2022 Rocchette, Italy

Illumination of Monumento ai Caduti sul lavoro in honor of Rare Disease Day in Italy.

Illumination of Monumento ai Caduti sul Lavoro – LECCO in honor of Rare Disease Day in Italy.

Lighting up Monumento ai caduti, Eboli

27 Feb 2022 to 28 Feb 2022 Eboli, Italy

Illumination of Monumento ai caduti, Eboli in honor of Rare Disease Day in Italy.

Lighting up Monumento alla "Mamma Ciociara"

28 Feb 2022 Frosinone, Italy

Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.

Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.

Illumination of Monumento dei caduti di Otranto in honor of Rare Disease Day in Italy.

Lighting up Mooroopna Water Tower

28 Feb 2022 Melbourne, Australia

Illumination of Mooroopna Water Tower in honor of Rare Disease Day in Australia.

Illumination of the Mooroopna Water Tower in honor of Rare Disease Day in Australia.

Illumination of Mother Teresa Statues – Struga in honour of Rare Disease Day in North Macedonia

Lighting up Mount Street Bridge

28 Feb 2022 Bridgetown, Australia

Illumination of Mounts Street Bridge in honor of Rare Disease Day in Australia.

Lighting up Mounts Street Bridge - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Mounts Street Bridge in honor of Rare Disease Day in Australia.

Lighting up Multi-Arts Pavilion - Australia

28 Feb 2023 New South Wales, Australia

Illumination of the Multi-Arts Pavilion in honor of Rare Disease Day in Australia.

Illumination of Municipality of San Michele al Tagliamento in honor of Rare Disease Day in Italy.

Lighting up Municipio Concordia Sagittaria (Ve)

28 Feb 2022 Concordia Sagittaria, Italy

Illumination of Municipio Concordia Sagittaria (Ve) in honor of Rare Disease Day in Italy.

Lighting up Municipio di Aci Sant'Antonio

28 Feb 2022 Aci Sant'Antonio , Italy

Illumination of Municipio di Aci Sant’Antonio in honor of Rare Disease Day in Italy.

Lighting up Municipio di Carnate

26 Feb 2022 to 28 Feb 2022 Carnate , Italy

Illumination of Municipio di Carnate in honor of Rare Disease Day in Italy.

Illumination of Municipio di Fossalta di Portogruaro in honor of Rare Disease Day in Italy.

Lighting up Municipio di Gravellona Toce

28 Feb 2022 Gravellona Toce , Italy

Illumination of Municipio di Gravellona Toce in honor of Rare Disease Day in Italy.

Lighting up Municipio di Ischia

28 Feb 2022 Ischia, Italy

Illumination of Municipio di Ischia in honor of Rare Disease Day in Italy.

Illumination of Municipio di Montagna in Valtellina in honor of Rare Disease Day in Italy.

Lighting up Municipio di Parma

26 Feb 2022 to 28 Feb 2022 Parma, Italy

Illumination of Municipio di Parma in honor of Rare Disease Day in Italy.

Lighting up Municipio di Pistoia

28 Feb 2022 Venice, Italy

Illumination of Municipio di Pistoia in honor of Rare Disease Day in Italy.

Lighting up Municipio di Portogruaro (Ve)

28 Feb 2022 Portogruaro, Italy

Illumination of Municipio di Portogruaro (Ve) in honor of Rare Disease Day in Italy.

Lighting up Municipio di Prato Sesia

28 Feb 2022 Sesia, Italy

Illumination of Municipio di Prato Sesia in honor of Rare Disease Day in Italy.

Lighting up Municipio di pressana

28 Feb 2022 Pressana , Italy

Illumination of Municipio di pressana in honor of Rare Disease Day in Italy.

Lighting up Municipio di Verbania

28 Feb 2022 Verbania, Italy

Illumination of Municipio di Verbania in honor of Rare Disease Day in Italy.

LIGHTING UP MUNICIPIO DI VOGHERA - PAVIA

25 Feb 2022 to 28 Feb 2022 VOGHERA, Italy

LIGHTING UP MUNICIPIO DI VOGHERA – PAVIA

Lighting up Municipio schermo

28 Feb 2022 Piacenza , Italy

Illumination of Municipio schermo in honor of Rare Disease Day in Italy.

Lighting up Municipio Teglio Veneto

28 Feb 2022 Venice, Italy

Illumination of Municipio Teglio Veneto in honor of Rare Disease Day in Italy.

Illumination of the Muralhas do Jardim das Portas do Sol, Santarém in honor of Rare Disease Day in Portugal.

Illumination of Museo de Arte Contemporáneo / Fundación Díaz Caneja de Palencia in honour of Rare Disease Day in Spain

Illumination of Museo de Arte Contemporáneo de Palencia (Fundación Díaz Caneja) in honour of Rare Disease Day in Spain

Illumination of the Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.

Lighting up Museu do Traje – Viana do Castelo

28 Feb 2022 Viana do Castelo, Portugal

Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.

Illumination of the Mustafa Çelebi Mosque – Struga in honour of Rare Disease Day in North Macedonia

Lighting up National Carillon - Australia

28 Feb 2023 Australian Capital Territory, Australia

Illumination of National Carillon in honor of Rare Disease Day in Australia.

Illumination of the Navigators at the Koombana Drive Roundabout in honor of Rare Disease Day in Australia.

Lighting up Neckarfront Tübingen – Germany

28 Feb 2022 Tübingen, Germany

Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany

Lighting up Neptune's Fountain - Poland

28 Feb 2022 Gdańsk, Poland

Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland     fot. redwedding.pl – Piotr Połoczański

Lighting up Neptune’s Fountain – Poland

29 Feb 2024 Gdańsk, Poland

Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland ___ fot. Grzegorz Mehring, www.gdansk.pl

Lighting up Newcastle Clock Tower

28 Feb 2022 Newcastle, Australia

Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.

Lighting up Newcastle Clock Tower - Australia

28 Feb 2023 New South Wales, Australia

Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.

Lighting up NoRo Center

28 Feb 2022 Zalău, Romania

Illumination of NoRo Center in honor of Rare Disease Day in Romania.

Lighting up North Carolina Wells Fargo Bank and Bank of America

28 Feb 2022 North Carolina, United States

Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.

Lighting up Northbridge Tunnel

28 Feb 2022 Perth, Australia

Illumination of Northbridge Tunnel in honor of Rare Disease Day in Australia.

Lighting up Northbridge Tunnel - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Northbridge Tunnel in honor of Rare Disease Day in Australia.

Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...

Illumination of Novartis office in Nürnberg in honour of Rare Disease Day in Germany

Lighting up Nya Karolinska sjukhuset

23 Feb 2022 to 28 Feb 2022 stockholm, Sweden

Lighting up Nya Karolinska sjukhuset in honor of Rare Disease Day in Sweden.

LIGHTING UP OF BOURG-LA-REINE TOWN HALL - FRANCE

29 Feb 2024 to 1 Mar 2024 BOURG-LA-REINE (92), France

Illumination of Bourg-la-Reine Town Hall in honour of Rare Disease Day in France

LIGHTING UP OF BOURG-LA-REINE TOWN HALL - FRANCE

29 Feb 2024 to 1 Mar 2024 BOURG-LA-REINE (92), France

Illumination of Bourg-la-Reine town hall in honour of Rare Disease Day in France

LIGHTING UP OF HOTEL DE VILLE DE BOURG-LA-REINE

27 Feb 2022 to 28 Feb 2022 BOURG-LA-REINE (92340), France

LIGHTING UP OF HOTEL DE VILLE DE BOURG-LA-REINE

Illumination of TOkna w Sali Sesyjnej w Sukiennicach, Wrocław in honor of Rare Disease Day in Poland.

Lighting up Old Magistrates Court - Australia

28 Feb 2022 Queensland, Australia

Illumination of Old Magistrates Court in honor of Rare Disease Day in Australia.

Illumination of the Old Magistrates Court House in honor of Rare Disease Day in Australia.

Lighting up Old Melbourne GPO - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Old Melbourne GPO in honor of Rare Disease Day in Australia.

Lighting up old Melbourne's GPO - Australia

28 Feb 2022 Melbourne, Australia

Illumination of old Melbourne’s GPO in honor of Rare Disease Day in Australia.

Lighting up Olivia Hall Gdańsk - Poland

28 Feb 2022 Gdańsk, Poland

Illumination of Olivia Hall Gdańsk in honour of Rare Disease Day in Poland     fot. redwedding.pl – Piotr Połoczański

Lighting up Olivia Hall in Gdańsk - Poland

29 Feb 2024 Gdańsk, Poland

Illumination of Olivia Hall in honour of Rare Disease Day in Poland

Illumination of Opera architettonica di Rotonda Foschini in honor of Rare Disease Day in Italy.

Lighting up Opera House Timișoara

28 Feb 2022 Timișoara , Romania

Illumination of Opera House Timișoara in honor of Rare Disease Day in Romania.

Lighting up Opera Wrocławska

28 Feb 2022 Wrocław, Poland

Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.

Illumination of the Optum Frontier Therapies Pharmacy Flint in honor of Rare Disease Day in the United-States.

Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.

Lighting up Optus Stadium - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Optus Stadium in honor of Rare Disease Day in Australia.

Lighting up Ospedale Pediatrico Meyer

28 Feb 2022 Florence, Italy

Illumination of Ospedale Pediatrico Meyer in honor of Rare Disease Day in Italy.

Lighting up PA State Capitol Building

25 Feb 2022 to 1 Mar 2022 Harrisburg, United States

Illumination of PA State Capitol Building in honor of Rare Disease Day in USA.

Illumination of Pałac Kultury i Nauki (PKiN) in honour of Rare Disease Day in Poland

Illumination of Palacio Almudí in honour of Rare Disease Day in Spain

Illumination of Palacio de la Aljaferia in honour of Rare Disease Day in Spain

Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain

Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain

Illumination of Palacio del Ayuntamiento y la Plaza Mayor in honour of Rare Disease Day in Spain

Lighting up Palaia

28 Feb 2022 Pisa, Italy

Illumination of Palaia in honor of Rare Disease Day in Italy.

Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France

Illumination of Palais des ducs de Bourgogne in honour of Rare Disease Day in France

Lighting up Palazzo "Riccio di Morana"

27 Feb 2022 to 28 Feb 2022 Trapani, Italy

Illumination of Palazzo “Riccio di Morana” in honor of Rare Disease Day in Italy.

Lighting up Palazzo Cavarretta

28 Feb 2022 Trapani, Italy

Illumination of Palazzo Cavarretta – sede del Consiglio Comunale Città di Trapani in honor of Rare Disease Day in Italy.

Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.

Illumination of Palazzo Comunale – Veglie (LE) in honor of Rare Disease Day in Italy.

Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Carmiano

28 Feb 2022 Carmiano , Italy

Illumination of Palazzo Comunale di Carmiano in honor of Rare Disease Day in Italy.

Lighting up Palazzo comunale di Cellamare

28 Feb 2022 Cellamare, Italy

Illumination of Palazzo comunale di Cellamare in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Corbetta

28 Feb 2022 Corbetta , Italy

Illumination of Palazzo Comunale di Corbetta in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Crotone

28 Feb 2022 Crotone, Italy

Illumination of Palazzo Comunale di Crotone in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Grosseto

28 Feb 2022 Grosseto, Italy

Illumination of Palazzo Comunale di Grosseto in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Nociglia

28 Feb 2022 Lecce, Italy

Illumination of Palazzo Comunale di Nociglia in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Palaia

28 Feb 2022 Pisa, Italy

Illumination of Palazzo Comunale di Palaia in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Ponte Buggianese

28 Feb 2022 Ponte Buggianese, Italy

Illumination of Palazzo Comunale di Ponte Buggianese in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di San Pancrazio

27 Feb 2022 to 28 Feb 2022 Castel San Niccolò , Italy

Illumination of Palazzo Comunale di San Pancrazio in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Trevignano Romano

28 Feb 2022 Trevignano Romano , Italy

Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Tricase

28 Feb 2022 Lecce, Italy

Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.

Lighting up palazzo comunale di Valderice

28 Feb 2022 Valderice, Italy

Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy

Lighting up palazzo comunale di Valverde

28 Feb 2022 Grammichele, Italy

Illumination of palazzo comunale di Valverde in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Vico Equense

28 Feb 2022 Vico Equense , Italy

Illumination of Palazzo Comunale di Vico Equense in honor of Rare Disease Day in Italy.

Illumination of Palazzo Comunale di Zagarolo in honor of Rare Disease Day in Italy.

Lighting up Palazzo comunale Nuoro

28 Feb 2022 Nuoro , Italy

Illumination of Palazzo comunale Nuoro in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale San Cassiano

28 Feb 2022 San Cassiano, Italy

Illumination of Palazzo Comunale San Cassiano in honor of Rare Disease Day in Italy.

Lighting up Palazzo degli Elefanti

28 Feb 2022 Catania,, Italy

Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.

Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.

Illumination of Palazzo del fanciullo – Matino in honor of Rare Disease Day in Italy.

Illumination of Palazzo del Municipio ( lato via Garibaldi) in honor of Rare Disease Day in Italy.

Lighting up Palazzo del Municipio Di Gattatico

28 Feb 2022 Praticello, Italy

Illumination of Palazzo del Municipio Di Gattatico in honor of Rare Disease Day in Italy.

Lighting up Palazzo del Podestà

28 Feb 2022 Bologna, Italy

Illumination of Palazzo del Podestà in honor of Rare Disease Day in Italy.

Lighting up Palazzo del Podestà - Bologna

28 Feb 2022 Bologna, Italy

Illumination of Palazzo del Podestà – Bologna in honor of Rare Disease Day in Italy.

Lighting up Palazzo del Sedile

26 Feb 2022 to 28 Feb 2022 Matera, Italy

Illumination of Palazzo del Sedile in honor of Rare Disease Day in Italy.

Illumination of Palazzo della Gran Guardia – Verona in honor of Rare Disease Day in Italy.

Lighting up Palazzo della Loggia

28 Feb 2022 Venice, Italy

Illumination of Palazzo della Loggia in honor of Rare Disease Day in Italy.

Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.

Illumination of Palazzo della Regione Friuli Venezia Giulia – Gorizia in honor of Rare Disease Day in Italy.

Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.

Lighting up Palazzo di città Baronissi

28 Feb 2022 Baonissi, Italy

Illumination of Palazzo di città Baronissi in honor of Rare Disease Day in Italy.

Lighting up Palazzo di Città di Augusta

28 Feb 2022 Augusta, Italy

Illumination of Palazzo di Città di Augusta in honor of Rare Disease Day in Italy.

Lighting up Palazzo di Città di Fasano

28 Feb 2022 Bari, Italy

Illumination of Palazzo di Città di Fasano in honor of Rare Disease Day in Italy.

Lighting up Palazzo di Città di Potenza

28 Feb 2022 Potenza , Italy

Illumination of Palazzo di Città di Potenza in honor of Rare Disease Day in Italy.

Lighting up Palazzo di Città di Salerno

28 Feb 2022 Salerno, Italy

Illumination of Palazzo di Città di Salerno in honor of Rare Disease Day in Italy.

Illumination of Palazzo Estense (Palazzo Comunale) – Varese in honor of Rare Disease Day in Italy.

Lighting up Palazzo Mantegna

28 Feb 2022 Calabria, Italy

Illumination of Palazzo Mantegna in honor of Rare Disease Day in Italy.

Illumination of Palazzo Municipale del Comune di Barano d’Ischia (NA) in honor of Rare Disease Day in Italy.

Lighting up Palazzo municipale di Bono (Sassari)

26 Feb 2022 to 28 Feb 2022 Sassari, Italy

Illumination of Palazzo municipale di Bono (Sassari) in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Livorno

28 Feb 2022 Livorno, Italy

Illumination of Palazzo Municipale di Livorno in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Merate

28 Feb 2022 Merate , Italy

Illumination of Palazzo Municipale di Merate in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Olgiate Molgora

28 Feb 2022 Olgiate Molgora, Italy

Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Rieti

28 Feb 2022 Rieti, Italy

Illumination of Palazzo Municipale di Rieti in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Taranto

28 Feb 2022 Taranto, Italy

Illumination of Palazzo Municipale di Taranto in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale Surbo (Le)

28 Feb 2022 Surbo , Italy

Illumination of Palazzo Municipale Surbo (Le) in honor of Rare Disease Day in Italy.

Lighting up Palazzo Nieddu del Rio

28 Feb 2022 Locri , Italy

Illumination of Palazzo Nieddu del Rio in honor of Rare Disease Day in Italy.

Lighting up Palazzo Regione Sicilia

28 Feb 2022 Palermo, Italy

Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.

Lighting up Palazzo S.Antonio

28 Feb 2022 Naples, Italy

Illumination of Palazzo S.Antonio in honor of Rare Disease Day in Italy.

Lighting up Palazzo Santo Stefano

28 Feb 2022 Padova, Italy

Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.

Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.

Lighting up Paleis Soestdijk

26 Feb 2022 to 28 Feb 2022 Baarn, Netherlands

Illumination of Paleis Soestdijk in honor of Rare Disease Day in Netherlands.

Illumination of Panevezys City Municipality’s Administration building in honor of Rare Disease Day in Lithuania.

Lighting up Paranaple convention centre

28 Feb 2022 Devonport, Australia

Illumination of Paranaple convention centre in honor of Rare Disease Day in Australia.

Illumination of the paranaple convention centre in honor of Rare Disease Day in Australia.

Lighting up Parc Phoenix – France

28 Feb 2022 Nice, France

Illumination of Parc Phoenix in honour of Rare Disease Day in France

Lighting up Parlamento Andaluz – Spain

28 Feb 2022 Sevilla, Spain

Illumination of Parlamento Andaluz in honour of Rare Disease Day in Spain

Illumination of Parlamento de las Islas Baleares in honour of Rare Disease Day in Spain

Illumination of Parlamento de Navarra in honour of Rare Disease Day in Spain

Lighting up Parlamento Vasco - 2023 – Spain

28 Feb 2023 Vitoria-Gasteiz, Spain

Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain

Lighting up Parlamento Vasco – Spain

28 Feb 2022 Gasteiz, Spain

Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain

Lighting up Parque de la Flrorida – Spain

28 Feb 2022 Gasteiz, Spain

Illumination of Parque de la Flrorida in honour of Rare Disease Day in Spain

Illumination of Paseo de Alfonso X in honour of Rare Disease Day in Spain

Illumination of Passaggio Joyce, detto “Ponte Curto” in honor of Rare Disease Day in Italy.

Lighting up Perth Bell Tower

28 Feb 2022 Perth, Australia

Illumination of Perth Bell Tower in honor of Rare Disease Day in Australia.

Lighting up Perth Bell Tower - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Perth Bell Tower in honor of Rare Disease Day in Australia.

Lighting up Perth Children's Hospital - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Perth Children’s Hospital in honor of Rare Disease Day in Australia.

Lighting up Piazza Duomo palazzo di Città

28 Feb 2022 Catania, Italy

Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.

Lighting up Piazza Verdi

28 Feb 2022 Grottaglie , Italy

Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.

Lighting up Plac Litewski - Poland

28 Feb 2022 Lublin, Poland

Illumination of Plac Litewski in honour of Rare Disease Day in Poland

Lighting up Place Stanislas – France

28 Feb 2022 Nancy, France

Illumination of Place Stanislas in honour of Rare Disease Day in France

Illumination of Plaza de Don Juan de Austria de Sevilla in honour of Rare Disease Day in Spain

Illumination of Plaza de España de Sevilla in honour of Rare Disease Day in Spain

Illumination of Plaza de la Puerta del Mar Valencia in honour of Rare Disease Day in Spain

Illumination of Plaza de los luceros in honour of Rare Disease Day in Spain

Illumination of Polo delle Arti e della Cultura in honor of Rare Disease Day in Italy.

Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland       fot. redwedding.pl – Piotr Połoczański

Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland ___ fot. Polsat Plus Arena Gdańsk

Illumination of Pomeranian Voivodeship Office in Gdańsk in honour of Rare Disease Day in Poland. ___ fot. press materials of...

Lighting up Pont de Recouvrance – France

28 Feb 2022 Brest, France

Illumination of Pont de Recouvrance in honour of Rare Disease Day in France

Lighting up Ponte nel cielo Campo Tartano

28 Feb 2022 Tartano , Italy

Illumination of Ponte nel cielo Campo Tartano in honor of Rare Disease Day in Italy.

Lighting up Porta a Monte

28 Feb 2022 Frosinone, Italy

Illumination of Porta a Monte in honor of Rare Disease Day in Italy.

Lighting up Porta al Prato

28 Feb 2022 Firenze, Italy

Illumination of Porta al Prato in honor of Rare Disease Day in Italy.

Lighting up Porta alla Croce

28 Feb 2022 Firenze, Italy

Illumination of Porta alla Croce in honor of Rare Disease Day in Italy.

Illumination of Porta d’ingresso al borgo storico in honor of Rare Disease Day in Italy.

Lighting up Porta del sole

28 Feb 2022 Palestrina , Italy

Illumination of Porta del sole in honor of Rare Disease Day in Italy.

Lighting up Porta Elisa

27 Feb 2022 to 28 Feb 2022 Lucca , Italy

Illumination of Porta Elisa in honor of Rare Disease Day in Italy.

Lighting up Porta Romana Fumone

28 Feb 2022 Fumone, Italy

Illumination of Porta Romana Fumone in honor of Rare Disease Day in Italy.

Lighting up Porta San Giacomo

28 Feb 2022 Bergamo, Italy

Illumination of Porta San Giacomo in honor of Rare Disease Day in Italy.

Lighting up Porta San Niccolò

28 Feb 2022 Firenze, Italy

Illumination of Porta San Niccolò in honor of Rare Disease Day in Italy.

Lighting up Porte de Bourgogne – France

28 Feb 2022 Bordeaux, France

Illumination of Porte de Bourgogne in honour of Rare Disease Day in France

Illumination of Porta Padova, Porta XX Settembre, Porta Legnago e Porta Vicenza in honor of Rare Disease Day in Italy.

Lighting up Portici comunali "P. Di Pietro"

17 Feb 2022 to 28 Feb 2022 Portici, Italy

Illumination of Portici comunali “P. Di Pietro” in honor of Rare Disease Day in Italy.

Lighting up Presidential Palace

28 Feb 2022 Nicosia, Cyprus

Illumination of Presidential Palace in honor of Rare Disease Day in Cyprus.

Lighting up Pruszcz Gdański's town hall - Poland

28 Feb 2022 Pruszcz Gdański, Poland

Illumination of Pruszcz Gdański’s town hall in honour of Rare Disease Day in Poland   fot. Janina Wilkos-Gad

Illumination of Puente de Cullera in honour of Rare Disease Day in Spain

Lighting up Puente de San Miguel - 2023 – Spain

28 Feb 2023 Puente de San Miguel, Spain

Illumination of Puente de San Miguel in honour of Rare Disease Day in Spain

Illumination of Puente sobre el rio Anoia en Martorell in honour of Rare Disease Day in Spain

Illumination of Puentes de la Alameda de Talavera in honour of Rare Disease Day in Spain

Lighting up Queensland Country Bank Stadium - Australia

28 Feb 2022 Railway Estate, Australia

Illumination of Queensland Country Bank Stadium in honor of Rare Disease Day in Australia.

Lighting up Queensland Country Stadium - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Queensland Country Stadium in honor of Rare Disease Day in Australia.

Illumination of Rathaus Spandau Berlin in honour of Rare Disease Day in Germany

Lighting up Red Earth Arts Precinct - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Red Earth Arts Precinct in honor of Rare Disease Day in Australia.

Lighting up Reddacliff Place Steam sculptures

28 Feb 2022 Brisbane City, Australia

Illumination of Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.

Illumination of the Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.

Lighting up Reggia di Caserta

28 Feb 2022 Caserta, Italy

Illumination of Reggia di Caserta in honor of Rare Disease Day in Italy.

Illumination of Revellín de Logroño in honour of Rare Disease Day in Spain

Lighting up Richmond Reserve

28 Feb 2022 Geelong , Australia

Illumination of Richmond Reserve in honor of Rare Disease Day in Australia.

Lighting up Richmond Reserve - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Richmond Reserve in honor of Rare Disease Day in Australia.

Illumination of River Black Drim in honour of Rare Disease Day in North Macedonia

Lighting up Riverbank Footbridge - 2023 - Australia

28 Feb 2023 South Australia, Australia

Illumination of the Riverbank Footbridge in honor of Rare Disease Day in Australia.

Lighting up Riverlinks Eastbank - 2023 - Australia

28 Feb 2023 Victoria, Australia

Illumination of the Riverlinks Eastbank in honor of Rare Disease Day in Australia.

Lighting up Rocca di Carmignano

28 Feb 2022 Carmignano, Italy

Illumination of Rocca di Carmignano in honor of Rare Disease Day in Italy.

Lighting up Rocca Malatestiana

28 Feb 2022 Cesena, Italy

Illumination of Rocca Malatestiana in honor of Rare Disease Day in Italy.

Lighting up Rocchetta

28 Feb 2022 Bologna, Italy

Illumination of Rocchetta in honor of Rare Disease Day in Italy.

Lighting up Rock and Roll Hall of Fame

20 Feb 2022 Cleveland, United States

Illumination of Rock and Roll Hall of Fame in honor of Rare Disease Day in USA.

Lighting up Roldán - Argentina

28 Feb 2022 Roldán, Argentina

Illumination of Roldán in honour of Rare Disease Day in Argentina

Lighting up Rotonda all'inizio di Camporosso

28 Feb 2022 Bordighera , Italy

Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.

Lighting up Rotonda all'inizio di Camporosso

28 Feb 2022 Camporosso, Italy

Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.

Lighting up Rotunda dos Golfinhos – Setúbal

28 Feb 2022 Setúbal, Portugal

Illumination of Rotunda dos Golfinhos – Setúbal in honor of Rare Disease Day in Portugal.

Lighting up Rotunda dos Peixes – Setúbal

28 Feb 2022 Setúbal, Portugal

Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.

Lighting up Rouen's town hall – France

28 Feb 2022 Rouen, France

Illumination of Rouen’s town hall in honour of Rare Disease Day in France

Lighting up Royal Australia Mint - Australia

28 Feb 2023 Australian Capital Territory, Australia

Illumination of Royal Australia Mint in honor of Rare Disease Day in Australia.

To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...

Lighting up Rumors on Main

28 Feb 2022 Colorado, United States

Illumination of Rumors on Main in honor of Rare Disease Day in USA.

Illumination of Saint Denis’ town hall in honour of Rare Disease Day in France

Lighting up Samuel's Fortress Ohrid

1 Feb 2022 to 28 Feb 2022 Ohrid, North Macedonia

Illumination of Samuel’s Fortress Ohrid in honor of Rare Disease Day in North Macedonia.

Lighting up San Francisco’s City Hall

28 Feb 2022 San Francisco, United States

Illumination of San Francisco’s City Hall in honor of Rare Disease Day in USA.

Lighting up San Genesio

28 Feb 2022 Lecco, Italy

Illumination of San Genesio in honor of Rare Disease Day in Italy.

Lighting up San Mames Estadio – Spain

28 Feb 2022 Bilbo, Spain

Illumination of San Mames Estadio in honour of Rare Disease Day in Spain

Lighting up Schloss Hainewalde – Germany

28 Feb 2022 Hainewalde, Germany

Illumination of Schloss Hainewalde in honour of Rare Disease Day in Germany

Lighting up Schlosskirche Lutherstadt Wittenberg – Germany

28 Feb 2022 Lutherstadt Wittenberg, Germany

Illumination of Schlosskirche Lutherstadt Wittenberg in honour of Rare Disease Day in Germany

Illumination of Schlot Erlanger Stadtwerke in honour of Rare Disease Day in Germany

Lighting up Scultura in ferro di Via Roma

28 Feb 2022 Grosseto, Italy

Illumination of Scultura in ferro di Via Roma in honor of Rare Disease Day in Italy.

Lighting up Sede Comunale di Caggiano

28 Feb 2022 Caggiano, Italy

Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.

Lighting up Sede de Emuasa – Spain

28 Feb 2022 Murcia, Spain

Illumination of Sede de Emuasa in honour of Rare Disease Day in Spain

Lighting up Sede del Municipio di Fontaniva

28 Feb 2022 Fontaniva, Italy

Illumination of Sede del Municipio di Fontaniva in honor of Rare Disease Day in Italy.

Illumination of Sede del Municipio X (Ostia e dintorni) di Roma Capitale in honor of Rare Disease Day in Italy.

Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain

Illumination of Sede Municipale provvisoria del Comune (ex Capricho de Calise) in honor of Rare Disease Day in Italy.

Lighting up sede Municipio XII

28 Feb 2022 Roma, Italy

Illumination of sede Municipio XII in honor of Rare Disease Day in Italy.

Lighting up Sir Albert Abbott Administration Building

28 Feb 2022 to 7 Mar 2022 Mackay Queensland, Australia

Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.

Lighting up Sky Ribbon

28 Feb 2022 Perth , Australia

Illumination of Sky Ribbon in honor of Rare Disease Day in Australia.

Lighting up Sky Ribbon - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Sky Ribbon in honor of Rare Disease Day in Australia.

Lighting up Sopot's town hall - Poland

28 Feb 2022 Sopot, Poland

Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland

Lighting up Spodek - Poland

28 Feb 2022 Katowice, Poland

Illumination of Spodek in honour of Rare Disease Day in Poland

Illumination of Sport & Culture Centre of Pruszcz Gdański in honour of Rare Disease Day in Poland

Illumination of St. Barbara Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany

Illumination of St. Elisabeth Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany

Lighting up Staatstheater Mainz – Germany

28 Feb 2022 Mainz, Germany

Illumination of Staatstheater Mainz in honour of Rare Disease Day in Germany

Lighting up Stabilimento Tettuccio

28 Feb 2022 Pistoia, Italy

Illumination of Stabilimento Tettuccio in honor of Rare Disease Day in Italy.

Lighting up Statua del Pescatore

28 Feb 2022 Lecce, Italy

Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.

Lighting up Statua del Villano

28 Feb 2022 Livorno, Italy

Illumination of Statua del Villano in honor of Rare Disease Day in Italy.

Lighting up Story Bridge

28 Feb 2022 New Farm Queensland, Australia

Illumination of Story Bridge in honor of Rare Disease Day in Australia.

Lighting up Story Bridge - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Story Bridge in honor of Rare Disease Day in Australia.

Illumination of Struga’s municipality building in honour of Rare Disease Day in North Macedonia

Lighting up Stuttgarter Bahnhof – Germany

28 Feb 2022 Stuttgart, Germany

Illumination of Stuttgarter Bahnhof in honour of Rare Disease Day in Germany

Lighting up Suncorp Stadium - 2023 - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Suncorp Stadium in honor of Rare Disease Day in Australia.

Lighting up Tančící dům - Ginger and Fred

28 Feb 2022 Prag , Czech Republic

Illumination of Tančící dům – Ginger and Fred in honour of Rare Disease Day in Czech Republic.

Lighting up Tarczyński Arena Wrocław

28 Feb 2022 Wrocław, Poland

Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.

Lighting up Teatro Comunale di Carpi

28 Feb 2022 Carpi, Italy

Illumination of Teatro Comunale di Carpi in honor of Rare Disease Day in Italy.

Lighting up Teatro Herberia di Rubiera

28 Feb 2022 Rubiera , Italy

Illumination of Teatro Herberia di Rubiera in honor of Rare Disease Day in Italy.

Lighting up Teatro Massimo - Palermo

28 Feb 2022 Palermo, Italy

Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.

Lighting up Teatro Valli

28 Feb 2022 Reggio Emilia , Italy

Illumination of Teatro Valli in honor of Rare Disease Day in Italy.

Lighting up Telfer Water Tower - 2023 - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Telfer Water Tower in honor of Rare Disease Day in Australia.

Lighting up Templi del Parco Archeologico di Paestum

28 Feb 2022 Capaccio Paestum, Italy

Illumination of Templi del Parco Archeologico di Paestum in honor of Rare Disease Day in Italy.

Lighting up Tête carrée – France

28 Feb 2022 Nice, France

Illumination of Tête carrée in honour of Rare Disease Day in France

Lighting up The Aldevron Tower, North Dakota State University

28 Feb 2022 North Dakota, United States

Illumination of The Aldevron Tower, North Dakota State University in honor of Rare Disease Day in USA.

LIGHTING UP THE ARCH OF HADRIAN

28 Feb 2022 Athens, Greece

“95” Rare Alliance Greece illuminates the monument of the Arch of Hadrian in honor of Rare Disease Day in Athens,...

Lighting up The Big Banana

28 Feb 2022 Newcastle, Australia

Illumination of The Big Banana Fun Park in honor of Rare Disease Day in Australia.

Lighting up The Big Banana - Australia

28 Feb 2023 New South Wales, Australia

Illumination of the Big Banana in honor of Rare Disease Day in Australia.

LIGHTING UP THE BUILDING "LOGGIA" IN HERAKLION

28 Feb 2022 Heraklion, Greece

“95” Rare Alliance Greece illuminates the building “Loggia” in honor of Rare Disease Day in Heraklion, Greece.

Lighting up the Castle Hněvín in Most

28 Feb 2022 Most, Czech Republic

Illumination of Castle Hněvín in honour of Rare Disease Day in Czech Republic.

“95” Rare Alliance Greece illuminates the Central Pedestrian Bridge of Trikala in honor of Rare Disease Day, Greece.

We join forces for the children with Rare Diseases: “95” Rare Alliance Greece illuminates the Children’s Hospital “H Agia Sofia”...

Lighting up the City Hall in Písek

28 Feb 2022 Písek, Czech Republic

Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.

LIGHTING UP THE CLOCK TOWER

28 Feb 2022 TUNIS, Tunisia

Illumination of the clock tower in honour of the International Rare Disease Day and to celebrate the end of Rare...

Lighting up the Collegium Carolinum

28 Feb 2022 Prag , Czech Republic

Illumination of Collegium Carolinum in honour of Rare Disease Day in Czech Republic.

Lighting up the Consortium Lounge - Australia

28 Feb 2022 Wollongong , Australia

Illumination of the Consortium Lounge in honor of Rare Disease Day in Australia.

Lighting up the Czech Republic Pavilion EXPO 2020

28 Feb 2022 Dubai, United Arab Emirates

Illumination of Czech Republic Pavilion EXPO 2020 in honour of Rare Disease Day worldwide.

Lighting up The Drum Theatre

28 Feb 2022 Dandenong , Australia

Illumination of The Drum Theatre in honor of Rare Disease Day in Australia.

Illumination of the The Drum Theatre, Dandenong in honor of Rare Disease Day in Australia.

Illumination of Elementary school and Practical school in honour of Rare Disease Day in Czech Republic.

LIGHTING UP THE FOUNTAIN IN OMONOIA SQUARE

28 Feb 2022 Athens, Greece

“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.

LIGHTING UP THE FOUNTAIN IN OMONOIA SQUARE

29 Feb 2024 Athens, Greece

“RARE DISEASES GREECE” in collaboration with the Municipality of Athens, illuminates the Fountain in Omonoia Square in honor of Rare...

“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.

Lighting up The Helmsley Building, 230 Park Ave NYC

28 Feb 2022 New York, United States

Illumination of The Helmsley Building, 230 Park Ave NYC in honor of Rare Disease Day in USA.

Illumination of City Hall Hradec Králové in honour of Rare Disease Day in Czech Republic.

“95” Rare Alliance Greece illuminates the Innovathens building of Technopolis City of Athens in honor of Rare Disease Day, Greece.

“95” Rare Alliance Greece illuminates the Innovathens building of Technopolis City of Athens in honor of Rare Disease Day, Greece.

“Rare Diseases Greece” in collaboration with the Technopolis City of Athens illuminates the Innovathens building of Technopolis City of Athens...

To mark Rare Disease Day, at the end of the Conference the central building of Institute of Mother and Child...

Illumination of the Memorial House of brothers Miladinovci – Struga in honour of Rare Disease Day in North Macedonia

Lighting up the Mining house in Sokolov

28 Feb 2022 Sokolov, Czech Republic

Illumination of Mining house in honour of Rare Disease Day in Czech Republic.

Illumination of the Monument of Revolution – Struga in honour of Rare Disease Day in North Macedonia

LIGHTING UP THE MUNICIPAL LIBRARY OF KOZANI

28 Mar 2022 Kozani, Greece

“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.

LIGHTING UP THE MUNICIPAL LIBRARY OF KOZANI

29 Feb 2024 Kozani, Greece

“Rare Diseases Greece” in collaboration with the Municipality of Kozani illuminates Municipal Library of Kozani in honor of Rare Disease...

“95” Rare Alliance Greece illuminates the monument in the Three Admirals’ Square in honor of Rare Disease Day in Pylos,...

Illumination of The Navigators at the Koombana Drive roundabout in honor of Rare Disease Day in Australia.

LIGHTING UP THE OLD TOWN HALL OF MITILINI

28 Feb 2022 Mitilini, Greece

“95” Rare Alliance Greece illuminates the Οld Τown Ηall of Mitilini in honor of Rare Disease Day in Greece.

Lighting up the Parliament House - Australia

28 Feb 2022 Adelaide , Australia

Illumination of the Parliament House in honor of Rare Disease Day in Australia.

LIGHTING UP THE RIO - ANTIRRIO BRIDGE

28 Feb 2022 Antirrio, Greece

“95” Rare Alliance Greece illuminates the Rio – Antirrio Bridge in honor of Rare Disease Day in Greece.

Lighting up The Rock Hall

24 Feb 2022 New York, United States

Illumination of The Rock Hall  in honor of Rare Disease Day in USA.

“95” Rare Alliance Greece illuminates the stone clock in the municipality of Piraeus in honor of Rare Disease Day in...

Lighting up The SUNY Plaza

28 Feb 2022 New York, United States

Illumination of The SUNY Plaza in honor of Rare Disease Day in USA.

The building of the event as well as the telecommunication tower in the Capital, Bucharest, will be lit up in...

Lighting up the Theater in Litvínov

28 Feb 2022 Litvínov, Czech Republic

Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.

LIGHTING UP THE TOWN HALL OF FLORINA

28 Feb 2022 Florina, Greece

“95” Rare Alliance Greece illuminates the Town Hall of Florina in honor of Rare Disease Day.

LIGHTING UP THE TOWN HALL OF SYROS

28 Feb 2023 Syros, Greece

“95” Rare Alliance Greece illuminates the Town Hall of Syros in honor of Rare Disease Day.

LIGHTING UP THE TOWN HALL OF VEROIA

28 Feb 2022 Veroia, Greece

“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.

LIGHTING UP THE WHITE TOWER OF THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.

Lighting up the Winnipeg Sign

28 Feb 2022 to 1 Mar 2022 Winnipeg , Canada

The City of Winnipeg Mayor and Council are lighting up the tourist “Winnipeg sign” at the Forks in the Rare...

LIGHTING UP THE ΒUILDING OF THE REGION OF CRETE

28 Feb 2022 Heraklion, Greece

“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...

“95” Rare Alliance Greece illuminates the building of the region of Kozani, in honor of Rare Disease Day, Greece.

LIGHTING UP THE ΜUNICIPAL THEATRE OF PEFKI

28 Feb 2022 Pefki, Athens, Greece

“95” Rare Alliance Greece illuminates Μunicipal theatre in honor of Rare Disease Day in Pefki, Greece.

Lighting up Theater Dessau – Germany

28 Feb 2022 Dessau-Roßlau, Germany

Illumination of Theater Dessau in honour of Rare Disease Day in Germany

Lighting up Tokyo Tower

28 Feb 2022 Tokyo, Japan

Illumination of Tokyo Tower between 18.00-24.00 (Japan time) in honor of Rare Disease Day in Japan.

Lighting up Torre Campanaria (Il Campanone)

28 Feb 2022 Pesaro and Urbino, Italy

Illumination of Torre Campanaria (Il Campanone) in honor of Rare Disease Day in Italy.

Lighting up Torre Civica

28 Feb 2022 Perugia, Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up Torre Civica

28 Feb 2022 Massignano , Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up Torre civica

28 Feb 2022 Lecce, Italy

Illumination of Torre civica in honor of Rare Disease Day in Italy.

Lighting up Torre Civica

28 Feb 2022 Calascibetta, Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up Torre civica - Tuglie (LE)

27 Feb 2022 to 28 Feb 2022 Lecce, Italy

Illumination of Torre civica – Tuglie (LE) in honor of Rare Disease Day in Italy.

Lighting up Torre Civica di Muscoline

28 Feb 2022 Chiesa, Italy

Illumination of Torre Civica di Muscoline in honor of Rare Disease Day in Italy.

Lighting up Torre Civica di Pescara

21 Feb 2022 to 28 Feb 2022 Pescara, Italy

Illumination of Torre Civica di Pescara in honor of Rare Disease Day in Italy.

Lighting up Torre comunale di Lacco Ameno

28 Feb 2022 Naples, Italy

Illumination of Torre comunale di Lacco Ameno in honor of Rare Disease Day in Italy.

Lighting up Torre dei Da Pendolasco

28 Feb 2022 Poggiridenti , Italy

Illumination of Torre dei Da Pendolasco in honor of Rare Disease Day in Italy.

Lighting up Torre del Castello

28 Feb 2022 Crotone, Italy

Illumination of Torre del Castello in honor of Rare Disease Day in Italy.

Lighting up Torre dell'acquedotto

28 Feb 2022 Milan, Italy

Illumination of Torre dell’acquedotto in honor of Rare Disease Day in Italy.

Illumination of Torre dell’orologio del palazzo della Città Metropolitana di Bari in honor of Rare Disease Day in Italy.

Illumination of Torre Glòries de Barcelona in honour of Rare Disease Day in Spain

Lighting up Torre Mangana - 2023 – Spain

28 Feb 2023 Cuenca, Spain

Illumination of Torre Mangana in honour of Rare Disease Day in Spain

Lighting up Torre Mangana – Spain

28 Feb 2022 Cuenca, Spain

Illumination of Torre Mangana in honour of Rare Disease Day in Spain

Illumination of Torre Normanna – Rutigliano (Ba) in honor of Rare Disease Day in Italy.

Illumination of Torretta sede dell’Ufficio Territoriale in honor of Rare Disease Day in Italy.

Lighting up Tour Bellanda – France

28 Feb 2022 Nice, France

Illumination of Tour Bellanda in honour of Rare Disease Day in France

Lighting up Tour Tanguy – France

28 Feb 2022 Brest, France

Illumination of Tour Tanguy in honour of Rare Disease Day in France

Lighting up Tower City

24 Feb 2022 Cleveland, United States

Illumination of Tower City  in honor of Rare Disease Day in USA.

Lighting up Townsville

28 Feb 2022 Townsville , Australia

We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...

Lighting up Townsville Sign - Australia

28 Feb 2022 Townsville, Australia

Illumination of Townsville Sign in honor of Rare Disease Day in Australia.

Lighting up Townsville Sign - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Townsville Sign in honor of Rare Disease Day in Australia.

Lighting up Trafalgar Bridge

28 Feb 2022 Perth, Australia

Illumination of Trafalgar Bridge in honor of Rare Disease Day in Australia.

Lighting up Trafalgar Bridge - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Trafalgar Bridge in honor of Rare Disease Day in Australia.

Lighting up Trinity College - Ireland

28 Feb 2022 Dublin, Ireland

Illumination of the Trinity College in honor of Rare Disease Day in Ireland.

Lighting up TV Tower - Tbilisi, Georgia

28 Feb 2022 Tbilisi, Georgia

Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.

Lighting up Ulivo al centro di Falvaterra

28 Feb 2022 Falvaterra , Italy

Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.

Lighting up Uniklinikum Magdeburg – Germany

28 Feb 2022 Magdeburg, Germany

Illumination of Uniklinikum Magdeburg in honour of Rare Disease Day in Germany

Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland

Lighting up Unley Town Hall - 2023 - Australia

28 Feb 2023 South Australia, Australia

Illumination of the Unley Town Hall in honor of Rare Disease Day in Australia.

Lighting up Urząd Miejskie w Bytowie

28 Feb 2022 Bytów, Poland

llumination of the City Hall (Urząd Miejski) in Bytów in honour of Rare Disease Day in Poland. It will happen...

Illumination of Vecchia Sede Comunale in honor of Rare Disease Day in Italy.

Lighting up Venado Tuerto - Argentina

28 Feb 2022 Venado Tuerto, Argentina

Illumination of Venado Tuerto in honour of Rare Disease Day in Argentina

Illumination of Vereinshaus Junge Linde in honour of Rare Disease Day in Germany

Lighting up Victoria Bridge

28 Feb 2022 South Brisbane , Australia

Illumination of Victoria Bridge in honor of Rare Disease Day in Australia.

Lighting up Victoria Bridge - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Victoria Bridge in honor of Rare Disease Day in Australia.

Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.

Illumination of VNG AG Hauptsitz Leipzig in honour of Rare Disease Day in Germany

Lighting up Wait Chapel at Wake Forest University

28 Feb 2022 North Carolina, United States

Illumination of Wait Chapel at Wake Forest University  in honor of Rare Disease Day in USA.

Lighting up Wasl Dome at Expo 2020 Dubai

28 Feb 2022 Dubai, United Arab Emirates

Lighting up the Wasl Dome which is the beating heart of Expo 2020 Dubai !

Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Lighting up Wells Fargo Duke Energy Center

28 Feb 2022 North Carolina, United States

Illumination of Wells Fargo Duke Energy Center in honor of Rare Disease Day in USA.

Lighting up Wells Fargo Tower - United-States

28 Feb 2022 Minneapolis, United States

Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.

Lighting up Wharton Reef Lighthouse - Australia

28 Feb 2022 Palmer Street, Australia

Illumination of Wharton Reef Lighthouse in honor of Rare Disease Day in Australia.

Lighting up Wharton Reef Lighthouse - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Wharton Reef Lighthouse in honor of Rare Disease Day in Australia.

Lighting up William Grundt Memorial Library

28 Feb 2022 Kalgoorlie, Australia

Illumination of William Grundt Memorial Library in honor of Rare Disease Day in Australia.

Lighting up William Grundt Memorial Library - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the William Grundt Memorial Library in honor of Rare Disease Day in Australia.

Lighting up Willis Tower; Willis Towers Watson

28 Feb 2022 Chicago, United States

Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.

Lighting up Wineglass Water Tower - 2023 - Australia

28 Feb 2023 Queensland, Australia

Illumination of the Wineglass Water Tower in honor of Rare Disease Day in Australia.

Lighting up Wodonga Water Tower

28 Feb 2022 Wodonga, Australia

Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.

Illumination of Wolkenhain der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Lighting up Wrocław - Poland

28 Feb 2022 Wrocław, Poland

Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...

Lighting up Yagan Square

28 Feb 2022 Perth, Australia

Illumination of Yagan Square in honor of Rare Disease Day in Australia.

Lighting up Zakim Bridge

28 Feb 2022 Boston, United States

Illumination of Zakim Bridge in honor of Rare Disease Day in USA.

Illumination of Zentrum für Seltene Erkrankungen am Uniklinik Freiburg in honour of Rare Disease Day in Germany

Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland

Lightpainting in Duna Arena

28 Feb 2023 Budapest, Hungary

Duna Arena is a new sport building in Budapest. It was painted with blue lights at the offial Rare Disesase...

Lights of rare disease day in Reykjavik, Iceland

26 Feb 2022 to 28 Feb 2022 Reykjavik, Iceland

The Pearl is a landmark in Reykjavik, Iceland and it will be lit up in the colours of Rare Disease...

Lights on Rare Disease - Bari

26 Feb 2022 to 28 Feb 2022 Bari, Italy

Lights on Rare Disease – Bari will light up of rare disease colours

Lights on Rare Disease - Barletta

28 Feb 2022 Barletta, Italy

Lights on Rare Disease – Barletta will light up of rare disease colours

Lights on Rare Disease - Cittadella (PD)

28 Feb 2022 Cittadella (PD), Italy

Lights on Rare Disease – Cittadella will light up of rare disease colours

Lights on Rare Disease - Cuneo

28 Feb 2022 Cuneo, Italy

Lights on Rare Disease – Cuneo will light up of rare disease colours

Lights on Rare Disease - Ferrara

28 Feb 2022 Ferrara, Italy

Lights on Rare Disease – Municipality of Ferrara, in cooperation with Teatro Comunale di Ferrara, will light up of rare...

Lights on Rare Disease - Firenze

28 Feb 2022 Firenze, Italy

Lights on Rare Disease – Firenze will light up of rare disease colours

Lights on Rare Disease - Forlì

28 Feb 2022 Forlì, Italy

Lights on Rare Disease – Forlì will light up of rare disease colours

Lights on Rare Disease - L'Aquila

28 Feb 2022 L'Aquila, Italy

Lights on Rare Disease – L’Aquila will light up of rare disease colours

Lights on Rare Disease - Lecco

28 Feb 2022 Lecco, Italy

Lights on Rare Disease – Lecco will light up of rare disease colours

Lights on Rare Disease - Locri

28 Feb 2022 Locri, Italy

Lights on Rare Disease – Locri will light up of rare disease colours

Lights on Rare Disease - Lucca

25 Feb 2022 to 28 Feb 2022 Lucca, Italy

Lights on Rare Disease – Lucca will light up of rare disease colours

Lights on Rare Disease - Mantova

28 Feb 2022 Mantova, Italy

Lights on Rare Disease – Mantova will light up of rare disease colours

Lights on Rare Disease - Montagnana (PD)

28 Feb 2022 Montagnana (PD), Italy

Lights on Rare Disease – Montagnana will light up of rare disease colours

Lights on Rare Disease - Pistoia

28 Feb 2022 Pistoia, Italy

Lights on Rare Disease – Pistoia will light up of rare disease colours

Lights on Rare Disease - Potenza

28 Feb 2022 Potenza, Italy

Lights on Rare Disease – Potenza will light up of rare disease colours

Lights on Rare Disease - Procida

28 Feb 2022 Procida, Italy

Lights on Rare Disease – Procida will light up of rare disease colours

Lights on Rare Disease - Reggio Emilia

28 Feb 2022 Reggio Emilia, Italy

Lights on Rare Disease – Fontana del Teatro Valli will light up of rare disease colours

Lights on Rare Disease - Rimini

28 Feb 2022 Rimini, Italy

Lights on Rare Disease – Rimini will light up of rare disease colours

Lights on Rare Disease - Rovigo

28 Feb 2022 Rovigo, Italy

Lights on Rare Disease – Rovigo will light up of rare disease colours

Lights on Rare Disease - Trapani

28 Feb 2022 Trapani, Italy

Lights on Rare Disease – Trapani will light up of rare disease colours

Lights on Rare Disease - Vercelli

28 Feb 2022 Vercelli, Italy

Lights on Rare Disease – Vercelli will light up of rare disease colours

LightUp for Rare

29 Feb 2024 Rzeszów, Poland

In an effort of global solidarity, building that Institute of Biotechnology (University of Rzeszow) is located will be lights up...

LightUp4RD

28 Feb 2022 Ireland, Ireland

Join the global initiative calling on everyone to help raise awareness of the rare disease community and unite all of...

Ligting up the Hospital

22 Feb 2021 to 28 Feb 2021 Oslo University hospital, Norway

Linghting Up Palazzo del Podestà in Piazza Maggiore - Bologna

25 Feb 2022 to 28 Feb 2022 Bologna, Italy

Fiori di Campo supports the Center for Rare Pediatric Diseases at the S. Orsola Malpighi Hospital in Bologna and since...

É uma live moderada pela vice-presidente da Alambra e com a participação de um pneumologista e de um cirurgião do...

LIVE NO ONE BEHIND

14 Feb 2021 to 28 Feb 2021 DAR-ES-SALAAM, Tanzania. United Republic of

Rare Disease Day commemoration is jointly organized by Ali Kimara Rare Disease Foundation (AKRDF) and Tanzania Society of Human Genetics...

🌟 Live Q&A Event for Rare Disease Day 🌟 Support our community and Rare Disease Day for an enlightening Live...

On Saturday 25th February Rare Ireland Family Support Network will have Irish artist Sean Corcoran The Art Hand create a...

Live Song Performance Proud To Be Rare

20 Jan 2023 THE bEAR True Stories, Germany

Live Song Performance of my Song for the Rare Disease Day “Proud To Be Rare” at THE bEAR Live Story...

How can we change the lives of people with a rare disease? And what role can patient organisations play in...

live taka

28 Feb 2023 en ligne sur facebook, France

A vos agendas : les taka reviennent en live une fois par mois. Nous commençons le 28 février 2023, ici...

Liver Building lit up for Rare Disease Day

29 Feb 2024 Liverpool, United Kingdom

The Royal Liver building will be illuminated for Rare Disease Day on February 29th.

Liverpool lights up for Rare Disease Day!

29 Feb 2024 Liverpool, United Kingdom

Liverpool town hall will be lit up to highlight Rare Disease Day!

LIVESTREAM CONCERT

18 Feb 2021 Nicosia, Cyprus

It is a fundraising event celebrating the Rare Disease Day and part of the proceeds will be donated to the...

Video about POMC and POMC Island

Living with CMT - Art Competition

1 Feb 2022 to 20 Feb 2022 NA, Worldwide

To mark Rare Disease Day 2022, we’re running a “Living with CMT Art Competition.” We’re looking for original artwork that...

Living with PNH

11 Feb 2021 to 6 Mar 2021

Living with PNHThe German filmmaker Julia Stromberg captured the life of a patient with the rare blood disorder PNH as...

Living with Rare Disease

25 Feb 2023 Oranjestad, Aruba

Raising awareness about rare disease and rare disease day. As a small island we also deal with rare disease eventhough...

Infratentorial superficial siderosis (iSS) is more commonly known as superficial siderosis of the central nervous system. It is a rare...

The colours and the logo of Rare Disease Day will be projected from 6.00 pm to 10 pm on 28th February...

LOUDRARE ONLINE FESTIVAL

23 Feb 2023 Ludwigshafen, Germany

At the LOUDRARE ONLINE FESTIVAL, people with rare diseases, patient communities, medicine, the pharmaceutical industry and other stakeholders involved in...

Loudrare Online Festival

24 Feb 2024 to 25 Feb 2024 Ludwigshafen am Rhein, Germany

At the LOUDRARE ONLINE FESTIVAL 2024, those affected will come together to talk about their stories – about their individual...

Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

En février, les projecteurs se braquent sur la résilience des personnes vivant avec une maladie rare! Voilà, nous lançons la...

Madina Rare disease day

6 Mar 2024 to 8 Mar 2024 Madina, Saudi Arabia

Rare Disease Day in Madina, KSA (March 6-8, 2024) Rare Disease Day is a significant global initiative aimed at raising...

Maine Rare Disease Day Virtual Event

1 Mar 2021 to 2 Mar 2021

Maine Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

MALADIES RARES TOUR

14 Feb 2023 to 28 Feb 2023 GAGNOA - KORHOGO - YAMOUSSOUKRO - ABENGOUROU - AGBOVILLE, Ivory Coast

Maladies Rares Tour est un programme de sensibilisations et d’éducation sur les places publiques de cinq villes en Cote d’ivoire...

Malattie rare e Covid-19: un bilancio dopo un anno di pandemia

26 Feb 2021 to 27 Feb 2021 online, Italy

The CMID, Coordination Center of the Interregional Network for Rare Diseases of Piedmont and Valle D’Aosta, organizes in collaboration with...

Malattie rare: stili di vita e movimento

29 Feb 2024 Milano, Italy

In occasione della Giornata delle Malattie Rare, la Direzione Socio Sanitaria dell’ASST Gaetano Pini-CTO, propone, giovedì 29 febbraio dalle ore...

Interdisciplinary conference on rare diseases, Friday, 9 February 2024, 9.30 – 12.30 in Lucca, San Micheletto Complex: RARE DISEASES –...

Interdisciplinary conference on rare diseases, Friday, 9 February 2024, 9.30 – 12.30 in Lucca, San Micheletto Complex: RARE DISEASES –...

Interdisciplinary conference on rare diseases, Friday, 9 February 2024, 9.30 – 12.30 in Lucca, San Micheletto Complex: RARE DISEASES –...

Málþing Einstakra Barna

28 Feb 2023 Reykjavik , Iceland

Málþing um málefni líðandi stunda í heimi Einstakra barna / ungmenna / foreldra þeirra og systkina

Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...

Marche pour le syndrome Kabuki

26 Feb 2023 Celles, Belgium

9eme édition de la Marche pour Kabuki. Départs libres toute la journée 3 parcours prévus de 3, 6 et 10km...

Marnaton swim open water

28 Feb 2022 to 27 May 2022 Barcelona, Spain

Birt Hogg Dubbe Syndrome patient, marathoner and now capable to an open water maratón swim.. nothing is impossible! Believe in...

Massachusetts Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

# Light Up For Rare #Rare unites us 26 February 2024 Kazakhstan Almaty Alfarabi Kazakh National University Higher School Of...

Il 23 febbraio 2021 dalle ore 10 alle ore 13 avrà luogo online l’evento Medicina e arte. I colori della...

Međunarodni dan rijetkih bolesti uz eTwinning

23 Feb 2021 to 3 Mar 2021 Čakovec, Croatia

The students of the 2nd Primary School Čakovec (II. osnovna škola Čakovec) through the eTwinning project Teachers for Europe: Democratic...

Meet rare heroes

19 Feb 2021 to 6 Mar 2021 Pezinok, Slovakia

Meet rare heroes: • Anna, Alkaptonuria: "I am no longer lonely with my rarity - science has intervened!" • Ingrid,...

Meet your expert

28 Feb 2023 Berlin, Germany

Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch: Mit Expertinnen und Experten ins Gespräch kommen, Fragen...

Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um...

Meeting with the Foundation for Social Welfare Services, Gozo

Memorial a los que ya se fueron: los hijos de Olivia

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Con todo respeto y cariño, dedicamos este video a la amada memoria de Elizabeth, Valente y Emmanuel Martínez Pérez, los...

MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024

1 Feb 2024 to 4 Feb 2024 Dubai, United Arab Emirates

MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 MENA Organization for Rare Diseases announces the third annual meeting,...

MENA Organization for Rare Diseases Anual Meeting 2023

3 Mar 2023 to 5 Mar 2023 Dubai, United Arab Emirates

MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...

Mersey Gateway Bridge

29 Feb 2024 Liverpool, United Kingdom

The Mersey Gateway Bridge will be lit up for this year’s Rare Disease Day

Mes Raro

28 Feb 2022 to 4 Mar 2022

Mes Raro consists in two main activities: Mesas Raras Live and Arte Raro, the first one will be a series...

El Congreso de la República del Perú en coordinación con la sociedad civil ADCUM, se compromete a seguir haciendo incidencia...

La red Latinoamericana de Genética Humana – RELAGH tiene el agrado de invitar al Tercer Ciclo de Conversatorios 2024, con...

Mesas informativas sobre enfermedades raras

4 Feb 2023 to 25 Feb 2023 Palencia, Spain

Jornadas de sensibilización y concienciación sobre la realidad de las enfermedades poco frecuentes, previstas para los sábados de febrero por...

METTICI UNA X

18 Feb 2022 online, Italy

The congress is organized like an on line webinar. The argument is the condition of people with fragile x syndrome...

Mi autoestima y resiliencia: Reconozco y acepto mi lugar en el mundo Jóvenes y adultos. 

Instagram Live | Lunes 27 de febrero (20 horas CET) Desde la Fundación Lovexair, y con el objetivo de dar...

Missa dos Raros em Brasília - capital do Brasil

29 Feb 2024 Brasília , Brazil

Missa em Ação de Graças pelo Dia Mundial das Doenças Raras

Missa dos Raros em Brasília - capital do Brasil

29 Feb 2024 Brasília , Brazil

Missa em Ação de Graças pelo Dia Mundial das Doenças Raras

Missa em ação de graças pelo dia Mundial das Doenças Raras

The clock tower is lighting up in blue, pink, and green from 8 p.m. on February 29.

La Asociación Española de Paraparesia Espástica Familiar – AEPEF, participa en el Día Mundial de las enfermedades raras de una...

Monólogos Solidarios

28 Feb 2021 Online, Spain

La Asociación Española de Esclerodermia, Fundación Ahuce y Asociación Conciertos Solidarios organizan la IV edición de la gala MONÓLOGOS SOLIDARIOS POR EL DIA MUNDIAL DE LAS...

Month of the rare neoplasia

1 Feb 2024 to 29 Feb 2024 Liège, Belgium

Each Thursday in February, we offer you a series of medical presentations on rare neoplasias or rare aspects

Morning Tea - Meet the Researchers

28 Feb 2023 Sydney, Australia

Morning tea to meet the UTS Researchers of Rare Disease

Mosa Conference

21 Jun 2022 to 22 Jun 2022 Maastricht, Netherlands

The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...

Mosaic of PID's

9 Feb 2021 to 27 Feb 2021

In order to create awareness, the coming weeks we will ask our members via social media to send in pictures related...

Mostra "The Ballad of Human Mutations"

29 Feb 2024 to 17 Mar 2024 San Giorgio in Brenta (PD), Italy

THE BALLAD OF HUMAN MUTATIONS, esibizione di Alice Babolin, in arte #Aliteia, curata da Alisia Viola , torna live a...

Move For A Diagnosis + "$28 on the 28th"

1 Feb 2021 to 28 Feb 2021

Announcing our “Move for A Diagnosis” event that will run throughout the month of February, until Rare Disease Day on...

Move2Advocate, Pledge2Move VIRTUAL CELEBRATION!! On Rare Disease Day, Next Sunday February 28, 2021, will you move with us?! Here's what...

movERse por la espERanza

25 Feb 2023 Palencia, Spain

Jornada deportiva a favor de la investigación de las enfermedades raras, organizada por En Ruta por las Enfermedades Raras y...

In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...

The seminar is dedicated to medical students, genetics, doctors, physiotherapists, and social workers. The seminar will provide an overview of...

ندعوكم للمشاركة في مسابقة " نادر ونادرة للأشخاص ذوي الإعاقة" الفئات المستهدفة: فئة ذوي المهارات المتعددة- فئة ذوي المهارات اللفظية...

Multisystem-Entzündungssyndrom (MIS-C) bei Kindern

28 Feb 2021 Seligenstadt, Germany

Die Coronavirus-iCovid 19 hat begonnen, auch Kinder ernsthaft zu treffen. Das Multisystem-Entzündungssyndrom (MIS-C) bei Kindern gefährdet die Gesundheit von Kindern,...

Muralla de Puerta Pilar

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Muralla Parques infantiles

28 Feb 2021 Badajoz, Spain

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Music Playlist for Rare

28 Feb 2023 to 7 Mar 2023 Seoul, South Korea

Celebrating Rare Disease Day 2023, 3billion made a Youtube music playlist. Many people, including family members of patients, sent us...

MY1200

29 Feb 2024 to 3 Mar 2024 Gombak, Kuala Lumpur , Malaysia

1200 km ride to raise fund for Lysosomal storage Dieases patients

Nadir Çağrı Kampanyası

25 Feb 2021 to 25 Mar 2021 Türkiye, Turkey

Nadir Çağrı Kampanyası Türkiye’de bilinmeyen ve fark edilmeyen nadir yaşamlara dikkat çekmek, toplumda empati ve bilinç yaratmak amacıyla, “Sağlıklı birey,...

NADİR HASTALIKLAR FARKINDALIK GÜNÜ AKIM

28 Feb 2022 KAYSERİ, Turkey

Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...

NADİR HASTALIKLARDA GENETİĞİN ROLÜ

27 Feb 2021 çevimiçi, United States

Tarih:27 şubatsaat:21:00yer;zoomFebruary 28 Rare diseases event Başkent University Social Work Department lecturer, one of the authors of Rare Diseases in...

Nadir Hastalıkla Büyümek

29 Feb 2024 Istanbul, Turkey

İSTisNA Projesi Nadir Hastalıklar Günü’nde proje ortağı İstanbul Üniversitesi Aziz Sancar Deneysel Tıp Araştırma Enstitüsü’nde! Öğleden sonra başlayacak Nadir Hastalıklar...

Nadir Hastalıklar

24 Feb 2021 Turkey, United States

#AnkaraKentKonseyi Halk Sağlığı Çalışma Grubu tarafından organize edilen "Ankara Kent ve Sağlık Buluşmaları" Nadir Hastalıklar başlığı altında 24 Şubat Çarşamba günü...

Bugün, Nadir Hastalıklar Günü’ne dikkat çekmek üzere, Nadir Hastalıklar Ağı olarak çevrimiçi bir basın toplantısı düzenledik. Kurulduğumuz günden bugüne dek...

Nadir Hastalıklar Günü

28 Feb 2022 to 1 Mar 2022 Ankara, Turkey

Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...

Nadir Hastalıklar Günü 2022

24 Feb 2022 Çevrimiçi (Online), Turkey

Bu Halk Sağlığı Uzmanları Derneği (HASUDER)’in çatısı altındaki Nadir Hastalıklar Çalışma Grubu’nun düzenlediği webinar etkinliğidir. 24 Şubat 2022 Perşembe Günü...

Nano Rare Disease Day

28 Feb 2022 Barcelona, Spain

Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...

Nano Rare Diseases Day

24 Feb 2021 Barcelona, on line, Spain

El Nano Rare Diseases Day es un evento organizado en el marco del Día Mundial de las Enfermedades Minoritarias donde se darán a...

NANO RARE DISEASES DAY

28 Feb 2024 Esplugues de Llobregat, Spain

The Nano Rare Diseases Day is an event organized within the framework of World Rare Diseases Day where the latest...

NANO RARE DISEASES DAY

28 Feb 2023 Esplugues de Llobregat/ Barcelona, Spain

Nano Rare Diseases Day is an event organised in the framework of World Rare Diseases Day where the latest innovations...

Nationaal Event Zeldzameziektendag

28 Feb 2023 Amsterdam, Netherlands

Dit jaar staan we stil bij het medisch-wetenschappelijk onderzoek in Nederland. Zijn de keuzes die daar worden gemaakt logisch en...

National Conference "Rare diseases in a digital world"

28 Feb 2021 Online, United States

The National Conference on Rare Diseases and Digital Health on 28.02.2021 had over 300 participants. Mr. Cristian Bușoi, Member of the European Parliament presented EU4Health. A...

National Conference for RDD 2024

29 Feb 2024 Bucharest, Romania

An event co-organized in partnership with the Commission for Health in the Romanian Senate.

National Conference on Rare Diseases

25 Feb 2022 Chisinau, Moldova. Republic of

This is a traditional already national conference on rare diseases usually organized by Institute of Mother and Child, located in...

National Conference on Rare Diseases

28 Feb 2023 Chisinau, Moldova. Republic of

It is a tradition to mark the Rare Disease Day by a National Conference including health care professionals working with...

National Conference RARE DISEASES DAY 2021

26 Feb 2021 Chisinau, Moldova. Republic of

A national conference on Rare Disease Day is traditional scientific event already in Moldova for the end of February, organized...

National Conference: Clinical Genetics and Rare Diseases

25 Feb 2022 to 27 Feb 2022 Iasi & Zalau, Romania

The national conference  will be organized in partnership by the Romanian National Alliance for Rare Diseases and Romanian Society for...

On February 28, 2021, at 13:00 EET in front of the National Palace of Culture in Sofia, Bulgaria, patients with...

National Rare Disease Day of Iran

27 Feb 2022 Tehran, Iran

In 2021, the National Rare Disease Day of Iran with the goal of supporting the rare patients and raising awareness...

National Rare Disease Week Philippines

17 Feb 2021 to 28 Feb 2021

CALL FOR PARTNERS | NATIONAL RARE DISEASE WEEK 2021This year we're going 100% virtual! Due to the pandemic, social media...

National Rare Disease Week Social Media Campaign

22 Feb 2021 to 28 Feb 2021 Nationwide, Philippines

In the Philippines, National Rare Disease Week, which is held every last week of February, places the concerns of the...

National Science Day & Rare Disease Day

10 Mar 2024 Chennai, India

Talk and discussion on select rare diseases to elicit awareness among the public.

National Webinar on Rare Diseases

28 Feb 2023 Trivandrum, India

The Department of Media Studies, Christ Nagar College, Trivandrum Kerala along with Focus Games (UK) is organising a National Webinar...

National workshop on RD patients' journey

1 Mar 2024 Bucharest, Romania

A workshop with multi disciplinary and multi sectorial participation to define the patient’s pathways for RD patients.

A webinar to explore and discuss the diagnostic challenges and opportunities for rare diseases in low-middle-income countries, fostering global collaboration....

Nel prisma della rarità

28 Feb 2021 Padova, Italy

"In the prism of rarity” will be held on Sunday 28 February at 11.30 am live on our Facebook page...

In occasione del RARE DISEASE DAY, il coordinamento provinciale Lecce Fondazione Telethon ha deciso di aderire all’iniziativa di UNIAMO “Accendiamo...

NEMOS INITIATIVE für BETROFFENE

29 Feb 2024 to 28 Mar 2024 Berlin, Germany

NEMOS INITIATIVE FÜR BETROFFENE 1. NMOSD Patientenbroschüre – Ihre Meinung ist gefragt! Kommentieren Sie die NEMOS Patientenbroschüre. Sie wird derzeit...

NEMOS INITIATIVE FÜR BETROFFENE

29 Feb 2024 to 29 Mar 2024 Berlin, Germany

1. NMOSD Patientenbroschüre – Ihre Meinung ist gefragt! Kommentieren Sie die NEMOS Patientenbroschüre. Sie wird derzeit von NEMOS für Patienten,...

Neues aus der ARVC-Forschung (News from ARVC research)

9 Mar 2022 Munich (Online), Germany

3 online lectures on ARVC research with following Q&A

Neurogene #LightUpforRare

1 Feb 2022 to 28 Feb 2022 Houston, Texas, United States

#LightUpforRare

Si tienes Síndrome de Guillain-Barré , CIDP, NMM, o cualquier otra polineuropatía desmielinizante, esta es tu jornada.

Nevada Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

New Hampshire Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

New postal stamp for RD 2021

26 Feb 2021 Bitola, North Macedonia

For RDD we planned an event for the 3rd postal stamp for rare diseases.  The first was for children with rare...

New South Wales' Rare Disease Day Landmark Illuminations

28 Feb 2021 New South Wales, Australia

The following landmark in New South Wales will be illuminated to mark 2021 Rare Disease Day:- Newcastle Clock Tower Illuminations organised by Andrew...

New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

The following locations/landmarks in New Zealand will be illuminated to mark 2021 Rare Disease Day:- Oamaru Opera House, New Zealand- Michael...

Newborn Screening Workshop

28 Feb 2024 to 29 Feb 2024 Kuala Lumpur, Malaysia

This two-day workshop will expose participants to the most recent developments, knowledge and expertise in managing patients with Inborn Error...

Aims for the day: – To examine Newcastle’s strengths and potential to address the challenges posed by Rare Disease –...

Will be lit up in blue from sunset until 11 p.m. on February 29.

Join us for an upcoming webinar on the genetics of NF2-SWN. We are honored to have Kara Anstett, a Clinical...

On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...

Ngày bệnh hiếm 2023 - Sắc hoa

28 Feb 2023 Hồ Chí Minh, Vietnam

Mỗi bệnh hiếm và người bệnh hiếm là một bông hoa, và ngày bệnh hiếm là ngày của những sắc...

The Zebra 5K Run/Walk is an in person or virtual 5K run OR walk! It will take place to mark...

Niagara Falls

29 Feb 2024 Niagara Falls , Canada

Niagara Falls will be lit up in the Rare Disease colors pink, green, blue, purple from 10:00pm to 10:15pm. live...

NIAGARA FALLS ILLUMINATION

29 Feb 2024 Niagara Falls , Canada

Niagara Falls Canada will be illuminated on Thursday February 29, 2024 in recognition of Rare Disease Day. It will be...

Niagara sign Rare Disease Day lights

29 Feb 2024 Thorold, Canada

Lit in blue, pink, and green on February 29.

Join us over the lunch period (with your food!) for a 60- minute session for Rare Disease Day highlighting rare...

NMD Pharma Lights Up INCUBA/Skejby

28 Feb 2022 Aarhus, Denmark

For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...

NMOSD Your Way - Podcast Series Launch

28 Feb 2022 to 11 Mar 2022 Toronto, Canada

In time for #RareDiseaseDay, our host Lelainia and Founder and Executive Director of the Sumaira Foundation, Sumaira Ahmed, discuss what...

No Somos Raros,Somos Increíbles

26 Feb 2021 to 28 Feb 2021 Illescas, Toledo, Spain

Campaña de información a la ciudadanía a través de las redes sociales, de entrevistas de radio ,correos electrónicos y diarios digitales...

Venerdì 26 febbraio, dalle ore 17.30 alle 19 | Non solo SNE: l’importanza del prelievo su cartoncino a domicilio per il...

North Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

North South Rare Disease Day Celebration On behalf of Rare Diseases Ireland (RDI) and Northern Ireland Rare Disease Partnership (NIRDP),...

Nós e os Outros: O Caminho a Fazer

28 Feb 2021 Online, United States

"Que história é que eu quero contar?" foi a pergunta que a Lia Silva colocou a si mesma acerca de como...

Nos pintamos de cultura

25 Feb 2023 Medellín, Colombia

Mesa e enfermedades raras para Antioquia y Red Técnica por las Enfermedades Huérfanas de Antioquia.

Not a Unicorn

1 Feb 2021 to 28 Feb 2021 whole country, Belgium

RaDiOrg organised a full digital media campaign with 2 objectives: raising awareness on rare diseases towards the larger public and stakeholders &...

Con tres actividades se conmemoró de manera muy exitosa en Colombia, durante todo el mes de febrero, el día mundial...

 Shining in blue on February 29.

Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Ohrid will shine for 28 days to support rare diseases

1 Feb 2023 to 28 Feb 2023 Ohrid, North Macedonia

Samuil’s Fortress, Ohrid Gymnasium OSU “St. Kliment Ohrid OEMUC “St. Naum Ohridski” SOSU “St. Cyril and Methodius” all elementary schools,...

Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

As we emerge from COVID and look forward towards Rare Disease Day 2022, please join Rare Diseases Ireland and Northern...

Oncology and Rare Diseases

28 Feb 2021 to 1 Mar 2021 Monterrey, Mexico City, Mexico

El día 01 de marzo se llevará a cabo una videoconferencia con una Dra especialista en genética, dirigida a estudiantes...

Please join us for a Global Group Sound Therapy Session in Honor of Rare Disease Day. Sound Therapy with Heart...

On this year’s International Day of Rare Diseases, the Lithuanian Association of Patients with Genetic Neuromuscular Diseases “Sraunia” invites to...

On February 28, 2021 the Center for Rare Diseases Research Center of the School of Medicine, New Vision University organized...

Social Fund "Omirge sen" (Believe  in Life) in Kazakhstan organized today (28 Febr.)  the online Conference dedicated to  the Rare  Desiese Day ...

Online meetings and counseling for patients with lysosomal diseases

22 Mar 2021 to 22 Mar 2022 Online-Targu-Mures, Romania

The project “Online meetings and counseling for patients with lysosomal diseases”, refers to organizing, for 1 year (March 2021-March 2022),...

The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...

Open seminar around the rare diseases

25 Mar 2022 to 26 Mar 2022 Sant Julià de Lòria, Andorra

The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...

Opening of Noah’s Ark Cafe

28 Feb 2022 Sydney, Australia

We are opening our cafe for the very first time and asking our customers to get out their animal prints...

ORCHESTRA ASCLEPIO

22 Feb 2021 to 28 Feb 2021 PADOVA, Italy

L’Orchestra Asclepio, composta da medici, studenti di medicina e operatori sanitari, rende omaggio ad uno dei luoghi più significativi della...

Učenici Posebnog razrednog odjela i učenici 1. razreda osnovne škole ( Tin Ujević Krivodol ) kroz eTwinning projekt ACCEPTING OUR...

Ospedale Incontra Filo Diretto con l'Ematologo

28 Feb 2022 Alessandria, Italy

In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...

OUR VOICE for RARE digital 2021

28 Feb 2021 to 28 Mar 2021 Geneve, Switzerland

OUR VOICE for RARE digital 2021 This fundraising event aims at informing our population about rare diseases, and at raising money for research.Our...

Oxford-Harrington Rare Disease Centre Webinar

28 Feb 2022 Virtual, United Kingdom

The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...

Join us for a Rare Disease Day WebinarThe Oxford-Harrington Rare Disease Centre (OHC) is pleased to present a guest lecture...

P4A's Race for Rare

29 Feb 2024 London, United Kingdom

The P4A team will be taking part in ‘Race for Rare’ across London on 29th Feb 2024. We will be...

PACIENTES Y PROFESIONALES EXPERTOS

20 Feb 2021 Medellín, Colombia

ALEM Association to Fight Multiple Sclerosis of Medellin Colombia commemorates the World Day of Rare Diseases with the realization of...

PADOVA SI ILLUMINA

28 Feb 2021 PADOVA, Italy

Il 28 febbraio 2021 avrà luogo l'evento PADOVA SI ILLUMINA. In tale occasione, dalle 18.30 verrà illuminato il Palazzo della Ragione della città di...

PADOVA SI ILLUMINA 2023

28 Feb 2023 Padova, Italy

In occasione della giornata mondiale delle Malattie Rare Padova si illumina. In occasion of Rare Disease Day Padua lights up.

Illumination of the Palacete dos Viscondes de Balsemão – Porto in honor of Rare Disease Day in Portugal.

Palliative approach in orphan disease

28 Feb 2023 Bogota, Colombia

Conference aimed at health workers and the community. Palliative approach in orphan disease: panoramic in Colombia, comprehensive approach, home care

Acıbadem Mehmet Ali Aydınlar Üniversitesi ACURARE-Rare Diseases and Orphan Drugs Application and Research CenterRare Immune System Diseases During The Pandemic...

There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their...

Panfleteada por las epof

27 Feb 2023 Quilmes, Argentina

El día 27 de febrero a las 17:30 estaremos en la puerta de la casa de la cultura de Quilmes...

Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...

IN OCCASIONE DELLA GIORNATA INTERNAZIONALE DELLE MALATTIE RARE L’ASSOCIAZIONE DI PROMOZIONE SOCIALE SINDROME KABUKI NORD EST ONLUS CON LA COLLABORAZIONE...

The event is aimed at people with rare diseases, doctors, family members and friends.To participate, you just have to send...

In recognition of Rare Disease Day 2023, we’re hosting a Facebook Live to talk about the critical role of genetic...

Patient Information Day for People living with Limb Girdle Muscular Dystrophy

3 Mar 2023 to 3 Feb 2023 Newcastle Upon Tyne , United Kingdom

“Patient Information Day for People living with Limb Girdle Muscular Dystrophy” is an Event organised by the John Walton Muscular...

Liebe Patientinnen und Patienten, liebe Angehörige und Interessierte,anlässlich des Welt ­Enzephalitis ­Tages am 22. Februar 2021 laden wir Sie herzlich...

Peace bridge will be Illuminated in blue, pink, purple, and green on February 28, starting the awareness campaign a day...

PERCORSI RARI INSIEME

24 Feb 2021 BARI - ITALY, United States

PERCORSI RARI INSIEMEMERCOLEDI’ 24 FEBBRAIO ORE 16-18 su piattaforma ZoomLe associazioni Amaram aps, Assieme onlus, Aid Kartagener onlus, Vite da...

In this webinar, our panel of experts will examine how to navigate pricing and reimbursement challenges for rare disease technologies....

Perlan light up for rare disease

26 Feb 2021 to 28 Feb 2021 Reykjavik, Iceland

Rare disease day in Iceland To honor rare disease patients all over the world Perlan Museum together with Gódvild will...

Perthes Disease

26 Feb 2022 Cairo, Egypt

Raising awareness about Perthes Disease. An online lecture will be held in the support group for Arabic speaking parents and...

Pescara Event RDD Campaign 2023

3 Feb 2023 Pescara, Italy

Oggi pomeriggio presso il nostro liceo si è tenuto un interessante momento formativo per i nostri alunni, rivolto particolarmente agli...

Tbilisi Medical Academy uses this opportunity to bring healthcare students a special event dedicated to raising awareness about rare diseases....

PMSF Australia is hosting its 8th High Tea event. This year we have decided to go GLOBAL. Join from any...

The Rare Diseases Alliance of Latvia (LRSA) is an independent non-governmental organization founded on October 3, 2014, uniting organizations representing various interests of...

Pictures contest

14 Feb 2022 to 28 Feb 2022 Andorra La Vella, Andorra

All citizens and associates are called to participate in a picture contest developed in the Instagram of AMMA (association of...

Join us for the Oxford-Harrington Rare Disease Centre’s 2024 Rare Disease Day webinar. February 28 2024, 10:00AM – 11:00AM EST...

PIP-UK Poland Syndrome Support at Buxton Swimming Pool

28 Feb 2023 Buxton in the Peak District, United Kingdom

Join PIP-UK for an afternoon snack, donated by local businesses and find out about rare disease day, Poland Syndrome and...

Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...

28 FEBRUARY is Rare Disease Day Children who live with a rare disease are like all other children. They love...

Pledge4Rare Campaign

20 Feb 2023 to 28 Feb 2023 Accra, Ghana

This is a social media campaign where persons with interest in rare disease pledge their support to persons living with...

On February 29, 2024, the Tarczyński Arena Municipal Stadium in Wrocław will be illuminated to show solidarity with people suffering...

POLAND SYNDROME AWARENESS DAY PUB LUNCH

30 Apr 2022 Sydney, NSW, Australia

12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.

Polish Rare Disease Day

28 Feb 2023 Warszawa, Poland

Krajowe Forum na Rzecz Terapii Chorób Rzadkich ORPHAN w imieniu organizacji członkowskich oraz własnym zaprasza Państwa na wspólne obchody Światowego...

POMC Island

28 Feb 2022 Bennington, United States

An online chat/video sharing information about POMC and how it effects our life

PompAbility Film Premieres

28 Feb 2022 to 28 Mar 2022

Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....

Poster competition on Rare Disease

28 Feb 2022 Patiala, India

Students from different Departments of University participate in it

Poster Presentation of Rare Disease

26 Feb 2022 Kerala, India

Poster presentation of Rare Disease Names. To have awareness about Rare Diseases among students

A hybrid educational symposium aimed at integrating medical genetics into everyday medical practice in Pakistan. The target audience includes practicing...

Prader-Willi Malaysia, Family Fun Day.

18 Feb 2023 Kuala Lumpur, Malaysia

Family Fun Day, Talk and Forum on Mental Health, People with Prader-Willi Syndrome.

La Federación Española de Enfermedades Raras (FEDER) presenta el 22 de febrero en Madrid mediante una rueda de prensa su...

Presentación de las Tarjetas de Emergencia para Trastornos Hereditarios del tejido Conectivo

20 Feb 2021 San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Sucre, Santiago de Chile, Buenos Aires, Madrid, Barcelona, Badajoz, United States

Este sábado, por Zoom te contaremos sobre las tarjetas de emergencia que hemos creado para Marfan, Loeys-Dietz y Ehlers-Danlos. Cómo...

Presentamos los datos de impacto de la pandemia en este colectivo que suma alrededor de 3 millones de personas en...

Programa de abordaje integral de las Enfermedades Poco Frecuentes. Universidad Nacional de Rosario El 29 de febrero se conmemora el...

Press Conference RDD 2022, Romania

25 Feb 2022 Zalau, Centrul NoRo, Romania

We will organize a press conference on 25th February 2022, 12.00 EET, online. The goal of the event is to...

Press Conference to launch of the MDS research project in collaboration with Malta Association of Biomedical Science (MABS), RDM will...

Press Conference to launch Rare Diseases Campaign in Malta. The ceremony was held under the Patronage of The Speaker of...

Press Conference to launch Rare Diseases Campaign in Malta in front of the Parliament Building in Valletta

The press conference - Equitable access for care for people living with rare diseases through the National Plan for Rare...

This event took place on Feb 28 and lead by Pro. Sun Yun, director of the Department of Reproductive Medicine of Renji Hospital.  The...

PRIETENII LUI BIWY

28 Feb 2023 MARGHITA, Romania

Evenimentul va avea loc la clasa pregatitoare D a Colegiului National “Octavian Goga”, Marghita, clasa in care se afla un...

O Instituto Nacional de Saúde Doutor Ricardo Jorge, em colaboração com a DGS, a Comissão Interministerial de Coordenação da Estratégia...

Concurso de videos sobre el Día de las Enfermedades Raras 2022 Los estudiantes de la Facultad de Medicina de la...

Todos invitados para el Martes 09 de Febrero a las 19:00 hrs. a nuestro Primer Conversatorio: "Hablando de Epofs: Una...

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

6 Feb 2021 to 13 Feb 2021 México, Mexico

En conmemoración del Día Mundial y Nacional de las Enfermedades Raras, se llevará a cabo nuetsro Primer Simposio Latinoamericano Virtual...

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

6 Feb 2021 to 13 Feb 2021 México, Mexico

Iniciativa Pensemos en Cebras México Trabajando y commemorando.En commemoración del Día Mundial y Nacional de las Enfermedades Raras 2021, se...

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

6 Feb 2021 to 13 Feb 2021 México, Mexico

PRIMER SIMPOSIO LATINOAMERICANO DE ENFERMEDADES LISOSOMALES 6 Y 13 DE FEBRERO 2021 En commemoración del Día Mundial y Nacional de las...

La Fundación Mexicana de Prevención y Salud Materna A.C. “Mujer México” y la Iniciativa Pensemos en Cebras en conjunto con...

Pro Rare Austria Rare Disease Day

26 Feb 2022 Vienna, Austria

“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...

Programa Salud con los Expertos

4 Feb 2021 to 25 Feb 2021 México, Mexico

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021Mujer México y la Iniciativa...

Progrma radial ¿Te suena rara?

23 Feb 2023 to 28 Feb 2023 Buenaventura, Quibdó y Tumaco, Colombia

#UnaLuzPorLasRaras💡 es el nombre con el cual la organización del Día Mundial de Enfermedades Raras 2023 🖐️🏾 Rare Disease Day...

The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...

The logo of the World Rare Disease Day will be projected on the Mikis Theodorakis Theater in Chania, by “95”...

The logo of the World Rare Disease Day and the logo of “95” Rare Alliance Greece will be projected on...

A l’occasion de la Journée internationale des maladies rares 2023, la Maison de l’Italie vous propose une soirée projection suivie...

Projet musical solidaire - Le haka de MaRaVal

29 Jan 2021 to 28 Feb 2021 Sion, Switzerland

SOLIDARITY MUSICAL PROJECT - THE HAKA OF MARAVALMaRaVal calls on Valais musicians and singers to show solidarity: we call on...

Promoción Campaña #UnidosPorLasRaras

25 Feb 2023 Barranquilla, Colombia

Partido de fútbol Junior FC vs. La Equidad

Promoción Campaña #UnidosPorLasRaras

27 Feb 2023 Medellín, Colombia

Promoción Campaña #UnidosPorLasRaras en partido de fútbol Atlético Nacional vs. Atlético Huila

Promoción Campaña #UnidosPorLasRaras

5 Mar 2023 Bogotá D.C, Colombia

Promoción Campaña #UnidosPorLasRaras en partido de fútbol Millonarios vs. Cali presencial

Promoción Campaña #UnidosPorLasRaras en paratido de futbol América vs. Junior en el Estadio Pacual Guerrero, Cali

Promocionando en vivo el #28F

22 Feb 2022 Santiago, Chile

Conversatorio sobre cómo se vive el #28F entre otros temas comunes y de interés con representantes de Argentina, Chile y...

“Baking is done out of love, to share with family and friends, to see them smile.”JOIN US! Let’s make chocolate...

Promotion campaign on RDD2021

1 Feb 2021 to 27 Feb 2021 Algiers, United States

the Alliance is organizing a promotional campaign for the RDD 2012  throughout the month of February oover medias

We are inviting everyone to a webinar to be held on 25 February 2021 (Thursday, 4:00 PM) in observance of...

Q&A ARVC

28 Feb 2024 online, Germany

Q&A session about cardiological and psychosocial topics for ARVC patients with ARVC expert Prof. Daniela Husser-Bollmann and psychocardiologist Dr. Hilka...

Qué nos quieren compartir

18 Feb 2022 [En línea, desde cualquier parte de México], Mexico

¿Qué nos quieren compartir tres expertos mexicanos que abordan el tema de las enfermedades raras desde el punto de vista...

Queensland's Rare Disease Day Landmark Illuminations

28 Feb 2021 Queensland, Australia

The following locations/landmarks in Queensland will be illuminated to mark 2021 Rare Disease Day: – Mackay Fountain – Story Bridge  –...

Quiz about Rare Disease (Mito)

28 Feb 2022 Nationwide, Portugal

Um quiz no Facebook com questões sobre doença rara mitocondrial, podendo ganhar 3 prémios! | A quiz on Facebook with...

In occasione della Giornata delle Malattie Rare, Le Ali di Camilla e il Centro di Medicina Rigenerativa “Stefano Ferrari” dell’Università...

Race 4 Rare

7 Feb 2022 to 28 Feb 2022 Glenwood, Australia

Race 4 Rare. Some children afflicted with profoundly debilitating Rare diseases like Kush are not able to run or even...

Race for 7

28 Feb 2021 Your Venue, Your Choice!, United States

Presenting a unique run/walk/bicycle ride for 7000 meters at 7:00AM on 28 February 2021Your Venue, Your Choice! Run on your own,...

Racefor7 2022

27 Feb 2022 to 28 Feb 2022

Racefor7 is a 7 km Run/walk/Ride event to show solidarity for Rare Diseases on Sunday, 7.00 am, 27th February 2022....

Radio Show Dedicated to Rare Disease Day

23 Feb 2022 to 28 Feb 2022 Athens , Greece

Radio show with expert talks from Pediatrician Geneticists and Rare Disease Patients groups presentations. www.moysikotherapeiawebradio.com

Raise A Toastie

28 Feb 2021 Ireland, Ireland

Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make the...

Raise a Toastie

26 Feb 2023 Nationwide, Ireland

On Sunday, February 26 Raise a Toastie and raise awareness for Rare Disease Day. Join with the 300,000 people living...

Raise A Toastie

27 Feb 2022 All, Ireland

Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make...

Raise Awareness for KLS in Times Square

28 Feb 2021 Manhattan, New York, United States

The KLS Community has come together to spread awareness of Kleine-Levin Syndrome and Rare Disease. All members of the community were...

Raising awareness between students

21 Feb 2022 to 28 Feb 2022 Shtip, North Macedonia

Project activities for students in the elementary school Vancho Prkje in the Municipality of Shtip. Educational brochures, educational conversation with...

In line with our 2021 Rare Disease campaign and leading up to the 28th of February!!Week 1: We will be...

RAPPEL POR LAS EPOF

20 Feb 2021 Rosario, Santa Fe, United States

La Agrupación Bomberos Zapadores de la Ciudad de Rosario, Prov. de Santa Fe, realizará un triple descenso utilizando la técnica...

Raras Sem Vergonha

28 Feb 2023 São Paulo , Brazil

Lançmento de video: Raras sem vergonha, quebrano o tabu Painel de mulheres raras sobre criar inclusão na sociedade: 4 mulheres...

Rare Abilità

29 Feb 2024 to 1 Mar 2024 Fasano , Italy

Mostra di sensibilizzazione “Rare Abilità” , accendiamo le luci sulle malattie rare. Shooting fotografico di sensibilizzazione

Rare Always present

28 Feb 2021 Misrata, Libya

"Rare is sometimes painful, often unseen.Always present.Rare is brave, determined, finds joy in the little things"In our event, we focus...

RARE AT MATILDA (Chicago Rare Disease Day 2024)

29 Feb 2024 Chicago, United States

WHAT: Chicago Rare Disease Day 2024. We will have an hour for introductions, conversation and fellowship, then screen the film...

In 2021, GLI successfully launched the caregiver summit and the A3 symposium that allowed patients, families, and caregivers to discuss...

The Rare Aware Campaign is launching its third roundtable, with a focus on the challenges faced by patient advocacy organizations...

Rare Beer 2024

8 Mar 2024 Wellington, New Zealand

We are super excited for the return of the Rare Beer Challenge for 2024! On 8 March some of the...

Rare Derm Education Programme

29 Feb 2024 Galle, Sri Lanka

Project Title: Empowering Communities through Rare Disease Education Objective: To educate and raise awareness about rare diseases within the Sri...

Rare Disease 2022 Let's Find a Cure

28 Feb 2022 Virtual, United States

On February 28, 2022 we will be highlight throughout the day individuals and organizations helping and seeking a cure to...

A day full of announcements and surprises regarding the launch of ‘Recognise ME’, a memoir about medical gaslighting.

Rare Disease and Pharmacist Role

20 Feb 2022 GUNTUR, India

REAR DISEASE AND PHARMACIST ROLE

The Georgian Foundation for Genetic and Rare Diseases (GeRaD) conducted a wide campaign in social media, TV and radio to...

Rare disease Awareness day

28 Feb 2021 Riyadh, Saudi Arabia

يوم توعوي، عبر منصة الزوم، موجه للجمهور، يهدف الى زيادة وعي المجتمع الأمراض النادرة، التي ليست نادرة في السعودية، وكيفية...

Rare Disease Awareness Day

28 Feb 2024 to 29 Feb 2024 Kuala Lumpur, Malaysia

A public awareness campaign including a talk on Expanded New Born Screening with complimentary 100 NBS from Yayasan Luth

Rare Disease Awareness Day

28 Feb 2024 Kuala Lumpur, Malaysia

Ayuh sertai kami untuk meningkatkan pengetahuan dan tunjukkan sokongan anda kepada penyakit jarang jumpa!

Rare Disease Awareness Day

27 Feb 2021 Muscat, Oman

Oman Society for Genetic Medicine is organizing a virtual  awareness event for public on 27th February 2021.

Rare Disease Awareness Day 2021

25 Feb 2021 Muscat, Oman

Rare Diseases Awareness Day for Health Professionals This event was organised by members of Oman Society of Genetic Medicine mainly to...

Rare Disease Awareness Day 2021

28 Feb 2021 Virtual, Malaysia, Malaysia

Get to know about rare disease from speakers who will bring their unique perspective. Dr Neelam Ismail, a family medicine resident...

Rare disease awareness in Rwanda

20 Feb 2021 to 28 Feb 2021 KIGALI, Rwanda

After 1 year of the open day, now we continue of the awareness of rare disease in Rwanda.We hope to...

Rare Disease Awareness Month Initiative

1 Feb 2022 to 28 Feb 2022 Cape Town, South Africa

The Rare Disease Genomics research group directed by Prof Shahida Moosa at Stellenbosch University and Tygerberg Hospital, will be hosting...

Rare Disease Awareness Month Initiative

1 Feb 2023 to 28 Feb 2023 Cape Town, South Africa

#28DaysOfRare awareness campaign online on social media @RareGenomicsRSA, @Su_MBHG, @Suhealthsci

Rare Disease awareness through Social Media

29 Feb 2024 Pokhara, Nepal

Rare Disease awareness through social media, and discussion in school, especially. A child living with OI (Osteogenesis Imperfecta), a rare...

Rare disease campaign

15 Feb 2022 to 24 Feb 2022 Riyadh & Jeddah cities , Saudi Arabia

The Saudi Society of Medical Genetics (SSMG) in collaboration with Pfizer Saudi Arabia are planning to hold an awareness campaign...

Webinar: This webinar brings together patients and caregivers with the rare diseases HoFH and FCS who will talk about how...

Rare Disease Day

28 Feb 2023 London , United Kingdom

We were glad to have been invited to participate in the Rare Disease choir to record the song #ThisIsMe at...

Rare Disease Day

2 Mar 2023 Minneapolis, United States

Diversity in the Rare Disease Community: Challenges for Newborn Screening and Early-life Genetic Testing Equity Thursday, March 2, 2023 9-10...

Rare Disease Day

28 Feb 2022 Jackson, United States

Wear jeans and learn more about Rare Disease Day to raise awareness for the many rare diseases in our area.

Rare Disease Day

29 Feb 2024 Penang, Malaysia

Our event highlight of “Rare Disease Day 2024 – Share Your Colours” was at 1-2pm on 29th Feb. The event...

Rare Disease Day

29 Feb 2024 London, United Kingdom

Rare Disease Centre at GSST, is having a Rare Disease Day event in St Thomas’ Hospital. This will be with...

RARE DISEASE DAY

29 Feb 2024 York Region, Ontario Canada, Canada

YORK REGION EARLY ON CHILD AND FAMILY PROGRAMS will be supporting RARE DISEASE DAY 2024 by displaying RDD posters in...

RARE DISEASE DAY

29 Feb 2024 TORONTO , Canada

The Toronto CN Tower will be illuminated in the Rare Disease colors of pink, green, blue and purple in recognition...

RARE DISEASE DAY

29 Feb 2024 TORONTO, Canada

The Toronto City Hall will be illuminated in the Rare Disease Colors of pink, green, blue and purple in recognition...

RARE DISEASE DAY

29 Feb 2024 TORONTO , Canada

The Toronto Sign at Nathan Pillips Square will be illuminated in the colors pink, green, blue and purple in recognition...

Rare disease day

28 Feb 2022 Beirut, Lebanon

We will light the national museum for the first time in lebanon

Rare Disease Day

28 Feb 2023 Akron, United States

Join Akron Children’s Hospital’s Genetic Center for its inaugural Rare Disease Day event to raise awareness and support for patients...

Rare Disease Day

28 Jan 2022 to 28 Feb 2022 Pretoria, South Africa

The Voortrekker Monument is the most visited heritage site of its kind in Gauteng and one of the top ten...

Rare Disease Day

29 Feb 2024 to 3 Mar 2024 Nairobi, Kenya

Will be having a meet up event just to catch up have fun and share our stories ,will also have...

Rare Disease Day

28 Feb 2022 Cape Town, South Africa

The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...

Rare Disease Day

29 Feb 2024 Tripoli, Libya

Rare Disease Day is a scientific, educational activity to allow health care workers to share rare cases they have diagnosed,...

Rare Disease Day

29 Feb 2024 Tripoli, Libya

Rare Disease Day is a scientific, educational activity where health care workers share their patients rare cases , the ones...

Rare Disease Day

28 Feb 2021 Amman, Jordan

On Rare Disease Day we will make the exciting announcement of our SMA research project!We hope to help to increase...

Rare Disease Day

27 Feb 2021 Bamako, Mali

We are organizing the Rare Day for the second time in Mali. This event will gather scientists, patients and officials...

Rare Disease Day

28 Feb 2022 Banja Luka , Bosnia and Herzegovina

Banja Luka City, along with hundreds of other cities was a part of the “Chain of light” which aims to...

An initiative by medical students concentrating on rare diseases on the rarest day of them all. The Student Scientific Circle...

The event is a digital inauguration ceremony for Center for Rare Diseases West (Gothenburg) with invited guests like the Swedish...

Rare Disease Day - Lombardia

3 Mar 2022 Milano, Italy

L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...

Rare Disease Day - Morning Tea

26 Feb 2023 Albury /Wodongaa, Australia

meet for morning tea

Rare Disease Day - Patient Centred Research Webinar

29 Feb 2024 Online, United Kingdom

This year, Rare Disease Day is on that rarest of days, 29th February, and to mark the occasion NIHR Cambridge BRC...

Rare Disease Day - Primary lymphoedema

29 Feb 2024 Digital, Sweden

A Webinar will be organized. A lymph therapist will describe the diagnoses and how to handle primary lymphoedema and show...

Rare Disease Day - Second Life

28 Feb 2021 to 1 Mar 2021 Global event, United States

For the first time, we are going to do a charity event for Rare Disease Day in the online virtual...

Rare Disease Day - Stellenbosch University

28 Feb 2023 Cape Town, South Africa

Rare Disease Day 2023 #Jeans4Genes – wear your favorite jeans and support our #RareBearFund by buying delicious cupcakes. There’s a...

We invite you to gather together with SRNA’s founders, partners, fellow community members, and leading medical professionals together for a...

Rare Disease Day 1q44 Run & Walk

26 Feb 2022 to 28 Feb 2022 Trenčín , Slovakia

Join us for the virtual Rare Disease Day 1q44 Run & Walk. You can choose to run or walk the...

Rare Disease Day 2021

28 Feb 2021

[ENG] On the occasion of the Rare Disease Day 2021, ​Dúshlán is organizing an online event on Feb. 28h, from 11h...

Rare Disease Day 2021

27 Feb 2021 Virtual, Kenya

We shall be holding a virtual event on 27th February, 2021 at 10.00am Theme: Rare in a Covid World Kindly...

Rare Disease Day 2021

6 Mar 2021 Zoom, Worldwide

Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of...

Rare Disease Day 2021

28 Feb 2021 Worldwide, United States

https://www.rarediseaseday.org/downloads

Rare Disease Day 2021 - 10 Years On!

28 Feb 2021 UK, United Kingdom

The Adenomyosis Advice Association is working hard on this year's Rare Disease Day 2021 campaign and in this our 10th...

Rare Disease Day 2021 #28FactsFor28Days

24 Feb 2021 Cape Town, South Africa

Tygerberg Hospital and Stellenbosch University will celebrate Rare Disease Day on 24 February 2021 and with #28FactsFor28Days on social media.

Rare Diseases Montenegro are pleased to invite you to the online conference that will be organized on Rare Disease Day,...

Rare disease day 2021 in Georgia

7 Feb 2021 to 28 Feb 2021 Tbilisi, Georgia

Interesting activities will be held in February 2021 aimed at raising awareness of rare diseases in Georgia. CDKL5, Dravet syndrome,...

The 26th of February the Rare Disease Foundation of Iran will celebrate Rare Disease Day with an online event. More information...

Rare Disease Day 2021 in Nepal

23 Feb 2021 to 28 Feb 2021

Khim Lamichhane, a patient advocate from Nepal, has organised several events to raise awareness for people living with a Rare...

Rare Disease Day 2021 in Slovakia

21 Feb 2021 to 28 Feb 2021

This year's Rare Disease Day in Slovakia is about solidarity and positive examples, which our society needs so much. In...

Rare Disease Day 2021 Moldova

27 Feb 2021 to 28 Feb 2021 Chisinau, Moldova. Republic of

Ziua Internațională a Bolilor Rare 2021 Anul 2021 marchează cel de-al 14-a an în care comunitatea internațională a bolilor rare...

Rare Disease Day 2021 Quiz Based Competition

7 Mar 2021 to 8 Mar 2021 Melaka, Malaysia

What do you know about Rare Diseases? Today, 28 February, is the very well-known Rare Disease Day; the day dedicated...

Rare Disease Day 2022

28 Feb 2022 Global , Canada

This year we look forward to celebrating #RareDiseaseDay2022! Come enjoy a chat 7 pm EST, February 28, 2022. Speak with...

Rare Disease Day 2022

26 Feb 2022 Dubai, United Arab Emirates

UAE Rare Disease Day 2022 Family day in Expo 2020

Rare Disease Day 2022

28 Feb 2022 Edmonton, Canada

Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives....

Rare Disease Day 2022 - Share Your Colours

25 Feb 2022 Ho Chi Minh City, Vietnam

Every child is a joy to every family, even if the child has a rare disease. Rare disease day 2022...

Rare Disease Day 2022 | Illuminations in Poland

28 Feb 2022 Bytów | Gdańsk | Gdynia | Katowice | Lublin | Malbork | Poznań | Pruszcz Gdański | Rzeszów | Sopot | Szczecin | Warszawa | Wrocław, Poland

Illuminations for Rare Disease Day 2022 in Poland:   City Hall | Bytów Neptune’s Fountain | Gdańsk Olivia Hall |...

RARE DISEASE DAY 2022 at IndoUSrare

28 Feb 2022 Herndon, United States

We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...

Rare Disease Day 2022 at NIH

28 Feb 2022 Virtual, United States

Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that...

Rare Disease Day 2022 in Ukraine

17 Feb 2022 to 28 Feb 2022 Kyiv, Mukachevo, Ukraine

Ukraine is once again joining the global movement dedicated to the International Rare Disease Day – three famous buildings in...

Rare Disease Day 2022 Poster Presentation

28 Feb 2022 Peshawar, Pakistan

In the year 2021-2022, Rare Disease Genetics and Genomics Research at Centre for Omic Sciences, Islamia College Peshawar has successfully...

Rare Disease Day 2023

28 Feb 2023 Rose Hill, Mauritius

Lupus Alert is marking Rare Disease Day (Tuesday, February 28) with an appeal for people to donate their blood. Patients...

Rare disease day 2023

28 Feb 2023 Tbilisi, Georgia

Meeting with healthcare professionals, patients and parents organizations. The main objective is to raise awareness about rare diseases and support...

Rare Disease Day 2023

9 May 2023 to 5 Sep 2023 Yerevan, Armenia

Hematologists, rheumatologists and immunology-allergology specialists will share their practical and theoretical knowledge about rare diseases.

Rare Disease Day 2023 - Ghana

20 Feb 2023 to 28 Feb 2023 Accra, Ghana

1. Pledge4Rare Campaign: This is a social media campaign to solicit support from the general public to increase the voice...

Are you ready to get involved in #RareDiseaseDay and help raise awareness for your community? We are here to help!...

National Skills University Islamabad organized an event related to “Rare Disease Day 2023” in order to highlight the rare diseases...

Rare Disease Day 2023 - Sac Hoa

28 Feb 2023 Ho Chi Minh City, Vietnam

People living with rare diseases facing with lots of challenges and one of them is not understand what they will...

We are excited to announce a charitable exposition and event to raise awareness and support for individuals and families affected...

Listen live to the legend who started the #RARE Revolution with the US Orphan Drug Act of 1983 – Now...

Rare Disease Day 2023 Breakfast Reception at Queen's Park

28 Feb 2023 to 28 Jan 2023 Toronto, Canada

The Canadian Organization for Rare Disorders is hosting Breakfast Reception at Queen’s Park in celebration of International Rare Disease Day....

Illumination of the 3D Toronto Sign at Nathan Phillips Square in #RareDiseaseDay colours #LightUpForRare

Illumination of the Calgary Tower in #RareDiseaseDay colours #LightUpForRare

Illumination of the CN Tower in #RareDiseaseDay colours #LightUpForRare

Illumination of the Niagara Falls in #RareDiseaseDay colours #LightUpForRare

Illumination of the Victoria, BC Parliament Building’s (Ceremonial Entrance, front Centre Fountain, and the back Library Fountain at the Parliament...

Rare disease day 2023 in Auvergne-Rhône-Alpes

28 Feb 2023 Villeurbanne, France

The platform of rare diseaeses expertise, Auvergne-Rhône-Alpes région is waiting for you in ViIlleurbanne- Gratte Ciel to learn more about...

Rare Disease Day on 28 February — and the events surrounding it — offer many exciting opportunities to raise awareness...

Rare Disease Day 2023. Hungary

25 Feb 2023 Budapest, Hungary

We organise a scientific conference with standsection, entertainment programmes, photocontest, art exhibition, arts and crafts, playground for babies, “Show your...

Convegno ibrido (realizzazione in presenza con diretta streaming associata sul canale @universityoftrento), pubblico e gratuito. Abstract: Partendo dalla trasformazione del...

Rare Disease Day 2024

29 Feb 2024 to 1 Mar 2024 Warsaw, Poland

Polish celebration of the Rare Disease Day 2024, organised annually by National Forum Orphan – Polish patients umbrella federation, in...

Rare Disease Day is an international day celebrated in over 100 countries to raise awareness amongst the general public, the...

Celebrate Rare Disease Day 2024 in an unforgettable way with a live discussion hosted by Medidata visionaries and a special...

Rare Disease Day 2024 in Georgia

29 Feb 2024 Tbilisi, Georgia

At the Rare Disease Day Event there will be discussed Georgian Rare Disease NP/NS 2024-2030

Rare Disease Day 2024 Kenya

1 Feb 2024 to 29 Feb 2024 Nairobi, Kenya

Radio interview with Capital FM #DriveOut

Rare Disease Day 2024 Kenya

2 Mar 2024 Nairobi, Kenya

Members Meeting for Rare Disease Kenya

The Medical Genetics Dept. and Egyptian society of human genetics is inviting you to 2024 rare disease day. Our aim...

Round table, reserved only for professionals (from the world of associations, health, university, private enterprises and education), and dedicated to:...

Rare Disease Day ARMENIA

3 Mar 2021 Yerevan, Armenia

Hello-Barev!Scientific event, organised by AHA, aim to discuss the following topics: Hemophagocytic Lymphohistiocytosis, Vexas Syndrome, MGUS, Primary Immunodeficiencies, Rare Fungal Infections,...

Rare Disease Day Art Exhibition

29 Feb 2024 Harare, Zimbabwe

An art exhibition showcasing a collection of powerful and diverse art pieces done by students from different schools to raise...

We will be holding our second annual Rare Disease Day on February 29th, 2024 (yes, it’s truly a rare day!)...

Rare disease day at Emory

29 Feb 2024 Atlanta , United States

Table event to raise awareness for rare diseases and promote equity.

Rare Disease Day at Great Ormond Street Hospital

29 Feb 2024 to 29 Nov 2023 London, United Kingdom

Hands on activities and meet the scientist

Rare Disease Day at Great Ormond Street Hospital

29 Feb 2024 London, United Kingdom

Hands on activities and meet the scientist

Rare Disease Day at Iowa State University

25 Feb 2021 Ames, Iowa, United States

Rare Disease Day at Iowa State University is a completely virtual event hosted on Zoom by the ISU's Rare Disease...

We are excited to invite you to Rare Disease Day at the Izmir Biomedicine and Genome Center (IBG) – an...

Rare is Everywhere. As a NORD Rare Disease Center of Excellence, Nationwide Children’s is a trusted medical home where patients...

Rare Disease Day at Nationwide Children's Hospital

28 Feb 2023 Columbus, Ohio, United States

Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and...

Rare Disease Day at NIH

1 Mar 2021 Virtual, United States

Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway...

Rare Disease Day at NIH 2023

28 Feb 2023 Bethesda, MD, United States

Since 2011, the National Center for Advancing Translational Sciences and the NIH Clinical Center have sponsored Rare Disease Day at...

Rare Disease Day at NIH 2024

29 Feb 2024 Bethesda, United States

On Thursday, Feb. 29, 2024, the National Center for Advancing Translational Sciences and the NIH Clinical Center will sponsor Rare...

Rare Disease Day at PEMEX Central South Hospital

28 Feb 2021 Mexico City, Mexico

We celebrate the Rare Disease Day (Día Mundial de las Enfermedades raras) including doctors of every department, nurses, social workers, lab...

Rare Disease Day at RCWMCH

29 Feb 2024 Cape Town, South Africa

Come and join us outside A11 for some Rare Disease Day Fun and to raise awareness about Rare Diseases. On...

Rare Disease Day at Royal Holloway

28 Feb 2022 Egham, United Kingdom

Welcome to Rare Disease Day 2022 at Royal Holloway. We hope you can attend. On Monday 28 February 2022, 10...

On Friday 26 February 2021 we will run a virtual event directed to secondary school years 10, 11 and 12....

The last day of February is recognized worldwide as Rare Disease Day.  We at SickKids, are proud to join the many...

Rare Disease Day At SkyView Atlanta

28 Feb 2021 Atlanta, United States

2/28/21 is #RareDiseaseDay2021 around the world  I partnered with SkyView Atlanta this year to host a family outing for our special...

Rare Disease Day at St. Joseph's Hospital

28 Feb 2022 Paterson, United States

We are excited to be hosting a hybrid event to celebrate Rare Disease Day. Patients from our Genetics Division will...

Rare Disease Day at the IA Capitol

2 Mar 2023 Des Moines, United States

In honor of those who have lost their battle with rare diseases like cystinosis and in honor of Rare Disease...

Rare Disease Day at the University of Minnesota

7 Mar 2024 Minneapolis, United States

Orphan Products for Rare Diseases: Availability and Accessibility – They’re Not The Same Thing The program will feature two keynote...

Dr. Manda Hosen, medical science liaison with the Department of Pediatrics Division of Medical Genetics and School of Medicine Genetics...

Rare Disease Day Awareness and Wellness Walk

28 Feb 2022 Shreveport, LA, United States

Awareness and wellness walk where ribbons will be handed out in the colors of rare disease day!

Rare Disease Day Bay Area

27 Feb 2021 to 28 Feb 2021 UK, Toronto, NYC, Chicago, Las Vegas, Los Angeles, Bay Area, Canada

Rare Disease Day Bay Area is 2-day Livestream event on Twitch, featuring a Raid Train on Saturday and Sunday with over...

Rare Disease Day Bay Area 2022

26 Feb 2022 to 27 Feb 2022

Please join us for Rare Disease Day Bay Area 2022. Once again, we will be hosting Rare Disease Day Bay...

Rare Disease Day Bay Area 2023

26 Feb 2023 San Jose, United States

Please join us for our 5th Annual Rare Disease Day Bay Area 2023 event. This years event will be located...

Rare Disease Day Bay Area 2024

2 Mar 2024 San Jose, United States

Rare Disease Day Bay Area 2024 is back celebrating our 6th year of supporting the Rare Disease Community. Our small...

Rare Disease Day Beer Release and Celebration

28 Feb 2023 Milwaukee, United States

We brewed a beer using modern brewing products and techniques. This is to signify modern technology moving forward to find...

Rare Disease Day campaign

15 Feb 2023 to 1 Mar 2023 Brussel, Belgium

The Belgian Rare Disease Day campaigns, invites all to share their colours and share the infographics developed in Flemish and...

Rare Disease Day Campaign in Belgium

1 Feb 2024 to 4 Mar 2024 Bruxelles, Belgium

RaDiOrg, the Belgian alliance for rare diseases, is putting together an awareness campaign in French and Dutch. We invited all...

Rare Disease Day Campaign Launch 2023

31 Jan 2023 Valletta, Malta

The National Alliance for Rare Diseases Support Malta will launch the nationwide Rare Diseases Campaign 2022 on 31 January 2023....

Rare Disease Day Campus Event

1 Mar 2024 San Luis Obispo, United States

Cal Poly Polytechnic State University lawn boothing to talk to students and bring awareness for individuals with rare diseases and...

Rare Disease Day Campus Event

28 Feb 2023 San Luis Obispo, United States

From 11 am to 1 pm, our Genetic Counseling SIG club will be joined with other prehealth clubs and the...

Rare Disease Day Celebration

5 Mar 2022 Atlanta, United States

Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!

Rare Disease Day Celebration

22 Feb 2021 to 28 Feb 2021 MANDAN, United States

We are interviewing our parents of children with rare diseases to bring awareness in our community. 

Rare Disease Day Celebration Picnic

27 Feb 2022 Gosford, New South Wales, Australia, Australia

12pm to 2pm Sunday 27th February. Rare Disease Day Celebration Picnic in Park. (THERE WILL BE TWO CAKES!!!!!) Please bring...

Rare Disease Day Conference

28 Feb 2024 to 29 Feb 2024 Chisinau, Moldova. Republic of

The Conference of Rare Diseases Day became a traditional one in Moldova. This year the Conference of Rare Disease Day...

Date: March 9 – 10, 2021 Time: 11am – 2pm EST Registration: https://bit.ly/39szgDs  

Rare Disease Day Conference and Cocktail Reception Delivering on Canada’s Rare Disease Investment Virtual option is available For more information:...

For the celebration of the fourteenth International Rare Disease Day that  is held every year the 28th of February, students...

Rare Disease Day Empower Hour - Zoom Chat

29 Feb 2024 Conshohocken, United States

Rare Disease Day Empower Hour. On the Rare Disease Day, let’s gather together and shine a light on the many...

Rare Disease Day Event

23 Feb 2021 to 27 Feb 2021

Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening...

On the 28th of February, Trinity College Dublin will be lit up in purple as we celebrate Rare Disease Day...

Rare Disease Day Exhibit

24 Feb 2023 to 2 Mar 2023 Mount Pleasant, Australia

This exhibit uses the medium of photography and videography to highlight some of the conditions affecting those within the sector....

Rare Disease Day Flashmob in Timisoara

28 Feb 2022 Timisoara, Romania

A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.

Rare Disease Day Fun Run & Walk

28 Feb 2021 Cairns, Australia

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the...

Rare Disease Day Fun Run & Walk

26 Feb 2023 Cairns, Australia

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the...

Rare Disease Day Fun Run & Walk

3 Mar 2024 Cairns, Australia

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, we walk,...

Rare Disease Day High Tea

3 Mar 2024 Adelaide, Australia

High Tea to raise awareness for Rare Disease Day and funds for Rare Voices Australia

Rare Disease Day Hong Kong

28 Feb 2021 Hong Kong, Hong Kong

 Hong Kong will host a round table on RD Drug Policy on 28 Feb. Academia, health economist ,Sociologist and pharma...

Rare disease day illumination

28 Feb 2022 Adelaide , Australia

Parliament house will illuminate blue, green and purple for rare disease day.

Rare Disease Day illuminations in Poland

28 Feb 2021 Gdańsk | Gdynia | Katowice | Pruszcz Gdański | Szczecin | Wrocław, Poland

Illuminations for Rare Disease Day 2021 in Poland:- Neptun's Fountain, Gdansk | LINK- Stadion Gdańsk, Gdańsk | LINK- Dyrekcja Building of the...

Rare Disease Day illuminations in Ukraine

18 Feb 2021 to 28 Feb 2021

The largest light initiative for the International Day of Rare diseases has already started in five cities of Ukraine!From yesterday...

Rare Disease Day in Armenia

28 Feb 2022 Yerevan, Armenia

Rare disease awareness event

Rare Disease Day in DIMED Research Projects 2021

1 Feb 2021 to 27 Mar 2021 Padova, Italy

Lo scopo del convegno è quella di promuovere l'integrazione tra vari settori attuando sinergie nella ricerca clinica e traslazionale attraverso...

Rare Disease Day In Iran

26 Feb 2021 Tehran, Iran

Rare Disease Day In IranFriday 26th Feb., 2021RARE IS STRONG! RARE IS PROUD!Rare Diseases Foundation of Iran (RADOIR) is participating with a...

Rare Disease Day in Libya

28 Feb 2021 Tripoli, Libya

Here we are again  continuously  for  the sixth year with all the challenge either in the hospital itself or the...

Rare Disease Day in Lille

11 Mar 2023 to 11 Feb 2023 Lille, France

Pour la JIMR, PLEMaRa, avec le soutien des Filières Maladies Rares FIMATHO, FAI²R, MHEMO, du CHU de Lille et de...

Rare Disease Day In Mauritius

1 Feb 2021 to 28 Feb 2021

We will mobilise the media as well as the social media to raise awareness about rare diseases in Mauritius.   

Join us on Sunday 28th of February as we celebrate our beneficiaries and every 1 in 2000 citizens who go...

Rare Disease Day In Zimbabwe

28 Feb 2022 Harare, Zimbabwe

Join our Hybrid Event on the 28th of February in commemorating #RareDiseaseDay2022 by helping us raise awareness about rare diseases...

Rare disease day Israel

21 Feb 2021 to 28 Feb 2021 Israel, Israel

On World Rare Disease Day, we will post stories and videos from CdLS families. It will be a special day...

Rare Disease Day Jeans4genes

29 Feb 2024 Anchorage, United States

Raise awareness for rare diseases day and support the ZMYND-11 Treatment Foundation by making a contribution and wearing jeans to...

Rare Disease Day Kenya

1 Feb 2024 to 29 Feb 2024 Nairobi, Kenya

Lighting up of Old Mutual Tower

Rare Disease Day Kenya 2024

6 Mar 2024 Nairobi, Kenya

Presentation of Rare Disease Day at Rotary Club of Karen

Rare Disease Day Lombardia

25 Feb 2021 Videoconferenza, United States

Il Convegno è rivolto agli operatori del SSN ai diversi livelli, ricercatori, referenti delle associazioni e a tutti gli stakeholder...

Rare Disease Day lunch

24 Feb 2023 Gerringong , Australia

Jacks Grill By Smiths Street Foods Cronin’s Hotel. Time: 12.30pm Lunch is pay yourself. Numbers are limited.

Rare Disease Day Lunch

24 Feb 2023 BERRY, Australia

Lunch to celebrate Rare Diseases Day for those living in the Wollongong and Shoalhaven areas. Contact Anita Chalmers on 0421314138...

Rare Disease Day Lunch and Learn

29 Feb 2024 Paterson, United States

Join the worldwide campaign to raise awareness, learn, and recognize the rare disease community. Hear patients discuss their diagnostic odyssey...

Rare Disease Day Mansoura 2024

27 Feb 2024 to 29 Feb 2024 Mansoura, Egypt

We organized this event to improve overall knowledge about the rare diseases highlighting spinal muscular atrophy (SMA) in Egypt. Our...

Rare Disease Day Nigeria

27 Feb 2022 to 28 Feb 2022 Lagos, Nigeria

Celebrating rare disease day in Nigeria.

Rare Disease Day Nigeria 2022

21 Jan 2022 to 28 Feb 2022 Lagos , Nigeria

Celebrating rare disease day in Nigeria.

Rare Disease Day Photography Competition

22 Jan 2021 to 28 Feb 2021

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition. Get your cameras...

For more information: [email protected] prévoyons un après-midi sensibilisation grand-public, avec divers animations, entre 14h00 et 17h00 :- Atelier sur la gestion...

Rare Disease Day Public Awareness Campaign

24 Feb 2023 to 25 Feb 2023 manama, Bahrain

The public awareness campaign on 24-25 of Feb 2023, Bahrain Seef mall, has as goal to interact with the society...

Rare Disease Day Quiz Night

21 Feb 2024 Cape Town, South Africa

We are hosting a Quiz Night at our local community centre to spread awareness for Rare Disease Day this year.

Rare Disease Day Rhode Island

29 Feb 2024 Providence, United States

The RI Ehlers Danlos Syndrome Awareness and Support group will have two tables set up with free up to date...

Rare Disease Day Storytime

20 Feb 2024 Cottage Grove, United States

Program Alert: Rare Disease Month StoryTime on February 20, 6:00 p.m. in the Taylor Prairie School Library. February is Disease...

Rare Disease Day Symposium

28 Feb 2023 Hannover, Germany

das Zentrum für Seltene Erkrankungen (ZSE) Hannover möchte Sie anlässlich des “Rare Disease Day 2023″ am Dienstag, den 28.02.2023 zu...

Rare Disease Day Symposium

29 Feb 2024 Hannover, Germany

Liebe Betroffene, liebe Kolleginnen und Kollegen, sehr geehrte Damen und Herren, Menschen mit seltenen Erkrankungen und Erkrankte ohne Diagnose benötigen...

Rare Disease Day Thailand 2021

28 Feb 2021 Bangkok, Thailand

The celebration of 11th Rare Disease Day Thailand is scheduled on Sunday, 28th February 2021, from 8:30 a.m.-4 p.m. at...

Rare Disease Day Thailand 2022

27 Feb 2022 Bangkok, Thailand

Access to Medicine.

Rare Disease Day Tucson

4 Mar 2023 Tucson, United States

Provide advocacy, community, and support for those affected by a rare disease across Southern Arizona. FREE admission to the museum...

Rare Disease Day Virtual 5K

5 Feb 2022 to 28 Feb 2022 Philadelphia, United States

Join us for a Virtual 5K to celebrate Rare Disease Day on February 28. Rare Disease Day is the globally-coordinated,...

This amazing virtual music festival was organized by DJs who have come together to spread awareness for the Rare Disease...

Rare Disease Day Virtual Musical RariTea

28 Feb 2021 Northern Ireland, United Kingdom

Virtual Musical RariTea – 28th February 2021 @3pm RariTea is the NIRDP campaign to encourage people to get together and...

ADSSL1 myopathy is a recently identified ultra-rare disease affecting the muscular system that is thought to impact only a few...

Rare Disease Day Virtual Run

25 Jan 2021 to 28 Feb 2021

In conjunction with Rare Disease Day 2021, there will be a virtual run held to bring awareness of rare disease...

Rare Disease Day Virtual Showcase

28 Feb 2021 Abu Dhabi, United Arab Emirates

We are celebrating Rare Disease Day 2021 by showcasing the rare disease community in UAE. Families, professionals and academics will share...

Rare Disease Day Webinar

24 Feb 2022 Toronto, Canada

Rare Disease Day Webinar When: Feb 24, 2022 Time: 12:00 – 1:00pm ET Registration: https://bit.ly/3gmyp9J

Rare Disease Day Webinar

26 Feb 2022 Nairobi, Kenya

Join us this Rare Disease Day and let’s learn more about #RareDiseases, more so in Kenya. This year we are...

Rare Disease Day WebRADIO Show

28 Feb 2023 Athens, Greece

With great pleasure I am organizing, for second year, a webradio show dedicated to Rare Disease Day on www.moysikotherapeiawebradio.com Many...

Rare Disease Day with HAE Junior

15 Feb 2021 to 28 Feb 2021

HAE Junior patient organisation joins Rare Disease Day 2021 with a digital campaign in Czech language about the rare condition Hereditary...

Rare Disease Day Workshop

28 Feb 2024 Limassol, Cyprus

Cyprus Alliance for Rare Disorders and the Cyprus University of Technology co-organise a workshop addressed to patients, nurses, nursing students...

Rare Disease Day ZSE Ulm

27 Feb 2021 Online Konferenz, Germany

Dear colleagues, ladies and gentlemen, The Center for Rare Diseases (ZSE) of the Ulm University Hospital would like to cordially...

Rare Disease Day- Charity Concert

28 Feb 2022 to 6 Mar 2022 Onlilne Event, Worldwide

Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022  to Sunday 06.03.2022 at...

Rare Disease Day- Charity Concert

28 Feb 2022 to 6 Mar 2022

Due to International Rare Disease Day, enjoy our Online Charity Concert from Monday 28.02.2022 to Sunday 06.03.2022 at 7:00 p.m...

This Rare Disease Day, join Oncology Data Advisor live on YouTube on Thursday, February 29, at 2:00 pm EST. OncData’s...

Rare disease day!

28 Feb 2022 Bucharest , Romania

February 28 is the day of awareness of rare diseases, and the Rebeca Faith-Hope-Love Association marks this day with this...

Rare Disease Expo

24 Feb 2022 Virtual, Canada

Carion Fenn Foundation presents our 2nd Annual Virtual Rare Disease Expo, Monday, February 28, 2022, 6:30pm – 8:30pm Eastern. In...

Rare Disease Forum 2024

29 Feb 2024 Riga, Latvia

A one-day educational and inspirational event for medical practitioners and people living with rare diseases. The topics and lectures are...

Rare Disease Genetics Research Poster Competetion

22 Feb 2021 to 1 Mar 2021 Islamia College Peshawar, Pakistan

Khyber Pakhtunkhwa province has 36 million population. Most of the families prefer to marry within their closer relatives which has...

Rare Disease in Newcastle: Progress and Future Priorities

28 Feb 2022 Newcastle Upon Tyne, United Kingdom

An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...

Rare Disease in Newcastle: Progress and Future Priorities

28 Feb 2022 Newcastle upon Tyne, United Kingdom

A free, open-to-all online event to: • To showcase our new Newcastle Centre for Rare Disease Research, highlighting our mission...

The Illness Challenge Foundation (ICF) plans to continue raising public awareness on rare diseases through public events and media coverage....

Rare Disease Malaysia Family Gathering 2022

26 Feb 2022 to 27 Feb 2022 Kuala Lumpur, Malaysia

This year Malaysian Rare Disorders Society and RD Friends are hosting the first virtual family gathering. The gathering will be...

rare disease month

30 Jan 2022 to 28 Feb 2022 The most of tunisian governorates , Tunisia

In cooperation between the Ministry of Health, the Tunisian Scout and the Association Charles Nicole’s doctors for Medical Development and...

Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...

A virtual global summit, free registration organised to mark Rare Disease Day. A professional summit for rare disease therapies development...

Rare Disease Video Challenge 2024 - Break the Stare, Say Hello!

15 Feb 2024 to 29 Feb 2024 Kuala Lumpur, Malaysia

Open to everyone who wants to take action to create public awareness on Rare Diseases! (RD individual, a caregiver, siblings,...

In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...

Rare disease webinar

21 Feb 2023 to 28 Feb 2023 Yaounde , Cameroon

Two webinars to commemorate the celebration of the rare disease day on the theme: “Make rare visible, shine the light...

Rare Disease Week

22 Feb 2021 to 28 Feb 2021 Verona, Italy

On the occasion of the rare diseases day, Dravet Italia Onlus Is promoting a campaign aimed at raising awareness on...

Rare Disease Week

22 Feb 2021 to 25 Feb 2021 Online, Brussels, Belgium

Online. This is a closed event for the accepted applicants from the Council of National Alliance members.For more information please...

Rare disease week: New Therapies for Old Diseases

14 Jan 2023 to 19 Jan 2023 Cairo, Egypt

The Egyptian society of human genetics and the Medical Genetics Department, Ain Shams University are inviting you to our fourth...

Rare Disease Weekend

26 Feb 2021 to 28 Feb 2021 Minatitlán, Mexico

La Sociedad Científica de Estudiantes de Medicina de la Universidad Veracruzana en Minatitlán, a través de los Comités Permanentes de...

Rare Diseases - Public Webinar Series

11 Feb 2021 to 25 Feb 2021 Dublin, Ireland

There will be three public webinar series hosted by University College Dublin in collaboration with Queen's University Belfast during February to...

Rare diseases awareness day

24 Feb 2023 Tunis, Tunisia

A children’ party will be hosted at the Department of Child Neurology at the National Institute Mongi Ben Hmida of...

An event organized by medical students, led by Miss Lama Almaqbali under the supervision of Dr Hussain Alsaffar, pediatric endocrinologist....

RARE DISEASES AWARENESS IN RWANDA

28 Feb 2022 to 29 Mar 2022 Kigali, Rwanda

In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...

RARE DISEASES AWARENESS in RWANDA

18 Feb 2024 to 29 Feb 2024 Kigali, Rwanda

On 29th February 2024, also in Rwanda as it’s done internationally, we celebrate “Rare Diseases Day” for the 5th time...

Rare Diseases curricula need in the medical universities - online debate

23 Feb 2022 to 28 Feb 2022 Zalau, Centrul NoRo, Romania

Promotion the results of the study performed by COPAC in partnership with RONARD to assess the needs of the students...

We organize an advocacy event tot informs and raise awareness about rare diseases and thus improve the visibility of people...

Rare diseases Day Bahrain public campaign

7 Feb 2024 to 29 Feb 2024 manama, Bahrain

This year campaign is continuing our activities initiated in 2013 and will make more visible the AGU and AJC contribution...

The Rare Diseases Day Event, which will be held on Thursday, March 2nd, 2023, will take place online between 16.00-17.30.

Rare diseases Day public campaign

7 Feb 2024 to 29 Feb 2024 manama, Bahrain

This year campaign is continuing our activities initiated in 2013 and will make more visible the AGU and AJC contribution...

In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals. More than 7,000 rare...

Rare Diseases in Khyber Pakhtunkhwa, Pakistan

28 Feb 2022 Peshawar , Pakistan

In 2021 we were able to perform whole exome sequencing of more one hundred index patients with Rare Disease in...

Rare Diseases in Public Health

19 Feb 2022 to 20 Feb 2022 Online, India

Rare diseases (RD) cumulatively are estimated to afflict 70-90 million Indians. According to the government data, this number is comparable...

Rare Diseases Information campaign in schools and kindergardens

1 Feb 2024 to 29 Feb 2024 Zalau, Romania

NoRo team and patients will meet children and teachers in schools and kindergardens and speak about the needs of patients...

Rare Diseases Kaleidoscope

29 Feb 2024 Bucharest, Romania

Romanian Academy of Neuromuscular Diseases will organize a scientific session, located at National Clinical Hospital for Children Neurorehabilitation “Dr. Nicolae...

Social media campaign held by RARE Diseases Lesotho Association. Throughout Sunday we will be posting videos of what makes us...

RARE DISEASES NEWS 2023

1 Mar 2023 Kaunas, Lithuania

The aim of the conference is to introduce doctors, nurses, and geneticists to the latest developments in the diagnosis and...

All Ireland virtual rare disease research symposium is scheduled to take place on the 25th of February 13.00-17.00 (GMT) to...

Rare Diseases Run

28 Feb 2022 to 6 Mar 2022 Berlin, Germany

MANY, STRONG, PROUD – ein Lauf zum „Tag der seltenen Erkrankungen“! Vom 28.2.-6.3 findet der Rare Diseases Run als virtueller...

RARE DISEASES RUN 2022

28 Feb 2022 to 6 Mar 2022 Krefeld, Germany

Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...

Rare Diseases Run 2023 - Run for Rare!

28 Feb 2023 to 5 Mar 2023

The 2nd Rare Diseases Run, organized by SYNGAP Elternhilfe e.V and Laufen macht glücklich GbR, will take place from 28th...

Rare Diseases Run 2024 - Run for Rare!

26 Feb 2024 to 3 Mar 2024

The 3rd Rare Diseases Run, will take place from 26th February – 3rd March 2024. It is a virtual and...

Rare Diseases Summit '24

2 Mar 2024 Istanbul, Turkey

You are invited to the Rare Diseases Summit ’24’! The rare diseases ecosystem is transforming with the speed of technology...

Rare Diseases UAE-Israel Virtual Conference

28 Feb 2022 Abu-Dhabi, United Arab Emirates

On-line conference. Rare Diseases UAE-Israel Virtual Conference Program

RARE DISEASES- from clinical to genetic diagnosis and counseling Seminar Date 15 February 2023 TARGETED AUDIECE: Specialists and consultants from...

Each bone tells a story. Each story is a bridge between past, present and future.Watch these short videos to: 1. Know...

Rare Diseases: A Global Priority for Equity [accessible online]

28 Feb 2022 Dubai, United Arab Emirates

Join the global Rare Disease Day event organised by the NGO Committee for Rare Diseases, the Ågrenska Foundation, RDI, and...

A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...

In celebration of the upcoming rare disease day, the Glycoimmunology Lab from UCIBIO NOVA is organizing an open event entitled...

Rare Diseases: Not so Rare

28 Feb 2022 Tel Hashomer, Israel

In 2022, the eighth annual International Rare Disease Day online conference will take place at the Sheba Medical Center, with...

Rare Diseases: Perspectives & Challenges

24 Feb 2022 Mumbai, India

Centre for Proteomics and Drug Discovery (CPDD), Amity University Maharashtra takes this opportunity to organize for a national event on...

RARE DISEASES: TOMORROW IS NOW!

28 Feb 2023 Kaunas, Lithuania

The conference “Rare Diseases: tomorrow is now!” is dedicated to rare disease day. It is intended to share the latest...

Education event for college students to raise awareness for rare disorders and the importance of premarital testing

Rare Disorders Day Bahrain Campaign

15 Feb 2022 to 28 Feb 2022 Manama, Bahrain

This year campaign is continuing our activities initiated in 2013 and will make more visible the AGU and AJC contribution...

Rare Do Care Virtual Walk-Run-N-Roll

1 Feb 2022 to 28 Feb 2022 New York, Los Angeles, Dallas, Baltimore, Chicago, United States

Celebrate Rare Disease Day with SRNA by joining the challenge! Between now and February 28, log your miles as you...

During the event, KOLs will connect one folklore custom/habit with one rare disease.

Rare Glow over Athens

28 Feb 2021 Athens, United States

By using the Rare Disease Day colours to light up Technopolis (Gazi), an industrial museum and a major cultural venue...

Rare in the City 2023

31 Jan 2023 to 3 Feb 2023 Valletta, Malta

The National Alliance for Rare Diseases Support Malta will be raising rare disease awareness through its annual Rare in the...

Rare in the City in front of the Parliament Building

1 Feb 2021 to 5 Feb 2021 Valletta, Malta

Rare in the City in front of the Parliament Building under the patronage of the Hon. Speaker of the House...

Rare inherited cancers

27 Feb 2024 Kuwait, Kuwait

Community Awareness about Hereditary Cancers through Online Awareness Messages.

Rare is Beautiful - Let's Break The Stigma

28 Feb 2021 Melbourne, Australia, Australia

Over 300 million people are living with a rare disease worldwide. Rare diseases are currently affecting 3.5% – 5.9% of...

Rare is many, grow in the light and Bloom

15 Jan 2021 to 1 Mar 2021 Bilthoven, Netherlands

Stichting SpierKracht Netherlands reaches out global. Covid 19 has quarantined a lot of  families in the house. With our 2021...

rare is precious

28 Feb 2022 to 6 Mar 2022 Muscat, Oman

Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...

Rare Kids Art Competition

22 Jan 2021 to 22 Feb 2021

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition. Ask...

The Rare Links webinar series aims to provide a platform where national and international experts can share their knowledge and...

The opening of the photographs exhibition. Stories of EB patients and Debra, patient organization, will be presented on ten panels....

Rare diseases are not as uncommon as they seem. More than 300 million people are affected by a rare disease,...

RARE RUN BOLOGNA - II Virtual Edition

28 Feb 2022 BOLOGNA , Italy

Oggi GIORNATA MONDIALE DELLE MALATTIE RARE: partecipa alla RARE RUN BOLOGNA – Edizione Virtuale. Sostieni con noi tutti i bimbi...

RARE RUN BOLOGNA - Virtual Edition

28 Feb 2021 BOLOGNA, Italy

As we cannot meet for our traditional RARE RUN BOLOGNA we orginized a Special Edition: the VIRTUAL RARE RUN BOLOGNA 

Rare Showcase

1 Feb 2024 to 29 Feb 2024 Accra, Ghana

This is the 7th Rare Disease Day to be observed in Ghana since 2018. Various activities have been planned which...

Rare Showcase 2022

25 Feb 2022 to 1 Mar 2022 Accra, Ghana

2022 will be the fifth Rare Disease Day (dubbed Rare Showcase) to be observed in Ghana being championed by the...

Rare Showcase 21

25 Feb 2021 to 3 Mar 2021 Accra, Ghana

This is the 4th Rare Disease Day to be observed in Ghana being organized by Rare Disease Ghana Initiative. This...

Rare Siblings

28 Feb 2021 online, Italia, Italy

28 FEBBRAIO 2021 RARE DISEASE DAY: Mondo Charge aderisce alla giornata internazionale di sensibilizzazione sulle malattie rare con la campagna...

RARE Skydive 2023

27 Feb 2023 Kuala Lumpur, Malaysia

Don’t miss RARE Skydive 2023! Mark your calendars for 27 February 2023. Through this unique awareness initiative, we hope to...

Rare Voices Forum

28 Feb 2023 Virtual, Germany

Rare Voices Forum Topic: Overcoming stumbling blocks together – Ways and opportunities for more resilience in rare diseases On Feb....

Rare Voices Forum - Patientenveranstaltung

28 Feb 2022 Online , Germany

Das Forum ist eine virtuelle Informationsveranstaltung insbesondere adressiert an Patienten. Die Referenten sind sowohl Ärzte wie auch Betroffene, die aus...

Rare-I-Tea Party

18 Feb 2023 Cambridge, United Kingdom

Cambridge Rare Disease Network (CamRARE) invite you to join us for tea and cakes to celebrate this year’s Rare Disease...

Rare-i-Tea Party

26 Feb 2022 Cambridge, United Kingdom

We’ll be holding a community family celebration event “Rare-i-Tea Party” in Cambridge, UK for all of our rare disease families...

Rare, but not alone

29 Feb 2024 Milan, Italy

An hybrid meeting with scientific session with expert in the field.

“Rare, but not alone: Together, we can find a cure” – Rare Disease Day Event at iXCells Light up, stripe...

RARE CANCER – how rare is rare?’ 11am-1pm GMT  Sunday 28th February 2021Join our live audience for a special podcast...

RareDIG Rare Disease Day 2022

6 Mar 2022 Montreal, Canada

More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....

Rarediseaseday (arab rhizokids)

2 Mar 2023 الرياض, Saudi Arabia

We participated in the Rare Disease Day event with Treatment Plans Center and ,we shared some rhizokids children’s stories translated...

RaReflections photo exhibition

24 Feb 2022 to 31 Mar 2022 Luxembourg city, Luxembourg

For Rare Disease Day 2022, ALAN-Maladies Rares Luxembourg, the Luxembourg national alliance for rare diseases, presents a photo exhibition entitled...

RaReflections photo exhibition 2023

1 Feb 2023 to 28 Feb 2023 Luxembourg city, Luxembourg

ALAN closes the “RaReflections” traveling photo exhibition with a ceremony at the “19 Liberté” building of the Spuerkeess, who is...

RarEgypt

23 Feb 2022 Giza , Egypt

“you are not alone”; Prof Salwa Sharf Eldin’s initiative on rare diseases awareness together with “know and grow”; a Mind...

RareMed Solutions - See Rare Move

20 Feb 2023 to 28 Feb 2023 Pittsburgh, United States

RareMed Solutions is coming together to celebrate Rare Disease Day by hosting a week-long exercise challenge. Employees will band together...

RarePakistan

28 Feb 2022 to 4 Mar 2022 Lahore, Pakistan

Limited Awareness campaign n launch of a website for connecting families affected with rare diseases, bridging gaps in diagnosis/treatment and...

Rares desease day

28 Feb 2021 Tunis, Tunisia

La Cité des sciences à Tunis, célèbre le dimanche 28 février 2021 la journée internationale des maladies rares, et ceci...

Join us as we celebrate RAREsies with a Rare Disease Day Flag raising ceremony. Meet our Deputy Mayor, Biba Tinga...

Ever wondered about the role of genetics in your child’s rheumatic disease? Have questions you’ve been wanting to ask an...

RARExham - Bilboard Exhibition

21 Feb 2023 to 28 Feb 2023 Wrexham, United Kingdom

Same but Different has created a Bilboard exhibition that will be shown throughout the week. Look up and see some...

RARExham - Exhibition Wrexham Glyndwr University

28 Feb 2023 Wrexham, United Kingdom

At Same but Different, we strive to continually create innovative and unique campaigns that capture people’s attention and encourage dialogue....

RARExham - Exhibition Xplore Science

21 Feb 2023 Wrexham, United Kingdom

As part of our RARExham initiative we are delighted to be exhibiting at Xplore Science Discovery Centre tomorrow. You can...

L'obiettivo  di Rarity on Wheels "Rarità su ruote" promossa da ll' Associazione Nazionale Un Filo per la Vita si svilupperà attraverso...

Raros Eu me Importo

16 Feb 2022 to 16 Mar 2022 Paraná, Brazil

🩸CAMPANHA: *RAROS, EU ME IMPORTO!* Informe o Código: 1086 Em alusão ao fevereiro lilás, mês da Conscientização sobre as doenças...

RAROS PERO NO INVISIBLES

28 Feb 2021 Zaragoza, Spain

Recordatorio durante todo el día de que la Distonia es una Enfermedad Rara pero no por ello es invisible, requiriendo...

RD 2021 at our government

26 Feb 2021 Bitola, North Macedonia

We had the opportunuty to gather around 15 rare disease organization at the government of North Macedonia to have a...

RD 2021 with the First Lady of North Macedonia

27 Feb 2021 Skopje, North Macedonia

We helped in organization of a meeting with experts in rare disease (doctors, Ministry of Health, researchers, and psychologist)Around 16 organizations...

RD Code Webinar

4 Feb 2022 Zalau, Centrul NoRo, Romania

A webinar for practical ways of implementation of RD CODE platform in all centers of expertise in Romania.

RD Day 2021 is held under the auspices of the Czech Minister of Health

1 Feb 2021 to 28 Feb 2021 the entire country, Czech Republic

We are very honoured that the RD Day 2021 is held under the auspices of our current minister of health, professor...

Rare Diseases Open Chess Championship 2023 (U2000 FIDE Rated Rapid – 20 mins) Tarikh: 19 Feb 2023 (Ahad) Masa: 8.30...

RDD 2023 Conference

3 Feb 2023 Zalau, Romania

Conference will be focused on social inclusion, home care and monitoring patients with rare diseases.

RDD AICHI

11 Feb 2022 to 17 Mar 2022 Aichi, Japan

EXHIBITION of books related to NANBYO Aichi Prefectural Library: February 11 – March 1 Nagoya City Tsurumai Library: February 19...

RDD AICHI

10 Mar 2023 Nagoya, Japan

Panel exhibition and others

RDD Aichi (Japan)

13 Feb 2021 to 18 Feb 2021 Kanayama Sogo Sta. / Aichi prefecture Library / Nagoya City Library, Japan

Display of RDD panels Display of books related to intractable diseases

RDD AOZORA REPUBLIC (YAMANASHI)

12 Mar 2022 Hokuto, Yamanashi, Japan

WEBINAR Patient Family Exchange Meeting

RDD Aozora Republic(YAMANASHI)

11 Mar 2023 to 12 Mar 2023 Hokuto, Japan

– lecture – RDD Exhibition – Kids Doodle Party – Star gazing party – Planetarium

RDD CHIBA

5 Mar 2022 Chiba, Japan

WEBINAR Online Well Festa 2022 with RDD in Chiba

RDD CHIBA (Japan)

7 Mar 2021

Held online-live Patients’ testimonial Discuission; What we can do for welfare and care, etc.

RDD CHIBA Children Hospital (Japan)

10 Feb 2021 to 28 Feb 2021

RDD2021 panel exibition

RDD EHIME

25 Feb 2023 Matsuyama, Japan

– Singing of short words (poems) of the participants – Presentation of experiences with intractable diseases – Exchange of opinions

RDD Ehime (Japan)

27 Feb 2021

12:30 Opening / Watching RDD Japan video 13:00 Opening remarks 13:05 Self-introduction of participants 13:30 Break / Watching RDD Japan...

RDD FUKUOKA

26 Feb 2022 to 10 Mar 2022 Fukuoka, Japan

Online Project – WATARU Channel from RDD https://youtu.be/0lcteks3Xw8 Saturday, February 26, 13:00- MC: Wataru HIKITA (Crohn’s disease) Guest: Mayumi SENOO...

RDD Fukuoka (Japan)

7 Feb 2021 to 28 Feb 2021

For the 8th RDD Fukuoka event, we will focus on radio broadcasting on YouTube. We will take the “change” from...

RDD GBS CIDP (Japan)

28 Feb 2021

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.  

RDD GBS CIDP (Japan)

28 Feb 2021

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.

RDD GBS(Guillain-Barré syndrome)

19 Feb 2023 Japan, Japan

Report on Participation in the American Patients Association Symposium

RDD GBS/CIDP

19 Feb 2022 to 28 Feb 2022 Japan, Japan

Feb 19, 2022, 1400-1500 Discussion topic; How to deal with illness Feb. 28 2022, 1600-1700 Discussion topic; Useful Patient Groups

RDD Gifu (Japan)

23 Jan 2021 to 28 Mar 2021 Online / 30 libraries in Gifu Prefecture, Japan

1) Interview with a newspaper reporter and a Parkinson's disease patient (Video letter)2) Nanbyo Book Fair at 30 libraries in Gifu Prefecture

RDD2021 introduction Patients testimonial  Mr. and Mrs. Wakui Participants: Only those who work at Hamamatsucho Building

RDD Help card・Help mark・SDGs

8 Mar 2023 Tokyo, Japan

– Help Card/Help Mark Video Screening – Materials and Panel Exhibit

RDD HIROSHIMA

25 Feb 2023 Hiroshima, Japan

– Messages from Patients with Rare and Intractable Diseases – Opinion exchange and social gathering

RDD Hiroshima (Japan)

28 Feb 2021 Hiroshima Prefectural Health and Welfare Center, Japan

Message from a person with a rare and incurable disease Mrs. Aya Nakajima, mother of a son with congenital central...

RDD Hokkaido (Japan)

26 Feb 2021 Hokkaido Prefectural Government, Sapporo, Hokkaido, Japan

Introduction of activities of the Hokkaido NANBYO regional center  RDD2021 panel display  Others

RDD HOKKAIDO MEDICAL CENTER / HOKKAIDO

25 Feb 2022 to 11 Mar 2022 Hokkaido, Japan

WEBINAR Greeting Yasuko MASUDA(Hokkaido NANBYO regional center) Part I Keynote Lecture What is RDD? Naoya MINAMI Early Diagnosis of Rare...

RDD HYOGO KAISEI GIRL'S HIGH SCHOOL (HYOGO)

24 Feb 2022 to 25 Feb 2022 Kobe, Japan

Showing slides created by students and conducting a survey

RDD Hyogo Prefectural Rehabilitation Center at Nishi-Harima (Japan)

26 Feb 2021 Hyogo Prefectural Rehabilitation Center at Nishi-Harima, Japan

(1) Screening of contents provided by RDD Japan (2) Online lecture (3) Screening of a video introducing our rehabilitation center...

RDD IBD

29 Jan 2023 to 11 Feb 2023 Japan , Japan

Online social networking

RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Sopron, Hungary

HUFERDIS took care about art as well with the Rare Beauties Collection exhibition, which is part of the program since...

RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Sopron, Hungary

HUFERDIS took care about art as well with the Rare Beauties Collection exhibition, which is part of the program since...

RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Budapest, Hungary

We joined the Global Chain of Lights and organized the illumination of Duna Aréna.

RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Budapest, Hungary

We joined the Global Chain of Lights and organized the illumination of Fisherman’s Bastion.

RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Sopron, Hungary

We joined the Global Chain of Lights and organised the illumination of Fire Tower in Sopron.

RDD in Hungary

24 Feb 2024 to 9 Mar 2024

We joined the Global Chain of Lights and organised the illumination of Megyeri Bridge.

RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Budapest, Hungary

We joined the Global Chain of Lights and organised the illumination of the National Center for Public Health and Pharmacy.

RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Pécs, Hungary

Satellite program of Rare Disease Day organised by HUFERDIS with the University of Pécs.

RDD in Ostfriesland

29 Feb 2024 Emden, Germany

Im Emden wird der Rare Disease Day auch am 29. Februar begangen. In der Zeit von 10 bis 18 Uhr...

1) Activities to learn about diseases Picture book reading Thinking about illness and life 2) Pray for the convergence of...

RDD Ishikawa (Japan)

20 Feb 2021 to 28 Feb 2021 Ishikawa Prefectural Government Building, 19th Floor Observation Lobby / Online, Japan

1) Panel exhibition  Date: February 20 to February 28, 2021  Location: Ishikawa Prefectural Government Building, 19th Floor Observation Lobby   2) Online...

RDD IWATE (Japan)

28 Feb 2021

Held “online-live”  Dialogue with patient families (By invitation only)

RDD Japan (Panel/Photo exhibition) @Tokyo Tower

18 Feb 2023 to 21 Mar 2023 Tokyo, Japan

Panel/Photo Exhibition

RDD JAPAN CONCERT

27 Feb 2022 Japan, Japan

Having created the main theme of RDD Japan, we have created a concert program based on the theme of RDD...

RDD Japan kick-off live

1 Feb 2022 Japan, Japan

On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the archive here:...

RDD2021 kick-off live On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the...

RDD Japan secretariat Kickoff YouTube live

“Healthcare Professionals Hosting RDD” “Children’s Feelings, Families’ Feelings 2023 ”

RDD Job Fit (Japan)

25 Feb 2021

Part I: Actual Balancing of Treatment and Work in Various Diseases (Roundtable Discussion) Part 2: Information exchange meetings by disease...

RDD KAGOSHIMA

25 Feb 2023 Kagoshima, Japan

Street campaign

RDD KAGOSHIMA

28 Feb 2022 Kagoshima, Japan

RDD street campaign

RDD Kagoshima (Japan)

28 Feb 2021

Poster Exhibition Poster exhibition by member organizations of the Kagoshima NANBYO Support Network Introduction of the 10th anniversary of the...

RDD Kakogawa Minami High school (Japan)

30 Jan 2021 Kakogawa Minami High school, Japan

Exhibition at the Department of General Studies Presentation HallActivity Report (Presentation)

RDD Kanagawa

28 Mar 2021 Online, United States

Presentation and sharing of experiences by members of member organizations (patient groups)

RDD Kenya - Illumination

26 Feb 2021 to 28 Feb 2021 Nairobi, Kenya

Illumination of UAP Tower in honor of Rare Disease Day in Kenya

RDD KIDS

4 Feb 2023 Osaka, Japan

– Introduction: Introduction of each family and student staff member. Determination of student staff responsibilities. – First contact between the...

RDD KIDS

5 Feb 2022 Japan, Japan

-Family Visitation Project for Children with Rare Diseases -Pediatric rare disease children’s family exchange meeting -Dialogue with high school students

RDD Kids (Japan)

13 Feb 2021

Please get to know ME! Part 1: Let’s learn about various diseases! Online Exchange Meeting for Families with Rare Diseases...

RDD Kitakyushu (Japan)

2 Feb 2021 to 26 Feb 2021 Kitakyushu City Hall, Japan

RDD Japan 2021 panel display

RDD Kitakyushu city NANBYO Consultation Support Center (FUKUOKA)

1 Feb 2023 to 28 Feb 2023 Kitakyushu, Japan

Banner display

RDD KOBE (HYOGO)

18 Feb 2023 Kobe, Japan

Cafe-style panel exhibition

RDD Kobe Kaisei Girl’s School(HYOGO)

20 Feb 2023 to 25 Feb 2023 Kobe, Japan

– Slide presentation of activities and explanation of RDD to all students – Creation of a book newsletter introducing books...

RDD KOCHI

26 Feb 2023 Kochi, Japan

– ALS Patient Stories – Social gathering – Chronic Pediaric Disease Peer Support Counseling

RDD KUMAMOTO

13 Jan 2023 to 26 Feb 2023 Kumamoto, Japan

– Panel display @ Kumamoto City Hall – Display of books related to intractable and chronic diseases, the array of...

RDD Kumamoto (Japan)

19 Feb 2021 to 1 Mar 2021 Kumamoto Health Cenber, Japan

Panel Exhibition NANBYO ”Senryu"  exhibition Senryu: a seventeen‐syllable poem that is often satirical of the times.

RDD Matsumoto (Japan)

20 Feb 2021 Online / Shinshu University Hospital, Japan

Lecture and social event for families of patients with FAP (Familial Adenomatous Polyposis)1. Opening remarks2. Lecture by Researcher3. Information Exchange4. Learning...

RDD medU-net

19 Mar 2023 Tokyo, Japan

Online Lecture + Panel Discussion

RDD Mie (Japan)

27 Feb 2021 Kuwana Media Live 1F, Japan

Making people aware of rare Nanbyo diseases; 9:40 Registration 10:00 Opening remarks 10:10 Performance 10:40 Workshop 12:00 Break 13:00 Watch...

RDD MITAKA

25 Feb 2023 Mitaka, Japan

– RDD panel exhibition – Toy Corner at Toy Museum – Online medical seminar – Workshop for children

In recent years, intractable disease cafes have been gradually spreading from the Kyushu area to the Kanto and other regions...

RDD NAGASAKI

26 Feb 2023 Nagasaki, Japan

Remotely discuss issues and challenges regarding the future management of the patient group

RDD NARA

27 Feb 2022 Nara, Japan

Medical Lecture on Intractable Neurological Diseases ”NANBYO and Stress Management” Minoru MORITA

RDD Nara (Japan)

28 Feb 2021 Nara City Western Civic Center, Japan

Medical lecture on  intractable neurological diseasesLecturer: Shinno Clinic Dr. Susumu Kamino, DirectorLecture title: "Let's learn about intractable neurological diseases!"1:30 p.m....

RDD NIIGATA

27 Feb 2023 to 4 Apr 2023 Niigata, Japan

– Panel display at the library – Clarinet Concert – RDD video screening – NANBYO café

RDD NIIGATA

24 Feb 2022 to 5 Apr 2022 Niigata, Japan

Panel Exhibition Nishi-Niigata Central Hospital Feb 24-March 10 Niigata Library March 15-April 5 Niigata Civic Plaza Feb. 22-March 7 Niigata...

RDD Niigata (Japan)

22 Feb 2021 to 6 Apr 2021

Exhibition at the following facilities.   1) Niigata Prefectural Library February 25 – March 7, 2021   2) Honport Niigata...

RDD NMOSD

29 Apr 2023 Tokyo, Japan

– Rehabilitation + Eurhythmics – Lego Play Games

RDD Oakayama (Japan)

21 Mar 2021 Okayama prefecture southern part Health center, Japan

Program (tentative) -Support System for Intractable Diseases in the Corona Era -Spiritual care -Live music performance by musicians -Medication counseling...

RDD Okinawa (Japan)

28 Feb 2021

11:00 – 12:30 Talk show-1  Let’s become a disaster preparedness person” – Mr. Toru Terukina 12:30 – 13:00 Break (RDD...

RDD Osaka (Japan)

28 Feb 2021

Online-social small event

Program (tentative) Introduction of RDD Study tour by high school students Exchange of opinions with high school students from other...

RDD Osaka Meisei Gakuen(OSAKA)

21 Mar 2023 Osaka, Japan

The 2nd RDD High School Summit

RDD Oshigoto(Job Fit)

4 Mar 2023 Japan, Japan

– Online Lectures on Employment – Roundtable Discussions

RDD Poster exhibition

20 Feb 2023 to 5 Mar 2023 Osaka, Japan

RDD JAPAN Advertisement Exhibition at Hankyu Osaka Umeda Station.

RDD PPeCC

22 Feb 2023 Tokyo, Japan

– Online PPeCC cafe

RDD Press Seminar

16 Feb 2021

An RDD press seminar held jointly with Pfizer Japan Inc.

RDD RARE CANCER

15 Jan 2023 to 28 Feb 2023 Japan, Japan

– Soliciting opinions on rare cancers – Rare Cancer Community Raccoon Towel distribution and collection of supportive photos (educational activities)...

RDD rare cancer (Japan)

1 Feb 2021 to 28 Feb 2021

“Rare Cancers Awareness Month RARE CANCERS AWARENESS MONTH 2021” Program ~Rare is Many! Let’s learn about rare cancer ~February is...

RDD SAGA

25 Feb 2023 Saga, Japan

– Online Occupational Therapist Lecture – Patient’s testimonial

RDD Saga (Japan)

26 Feb 2021

We will have an online tea party using Zoom. Please bring your own tea and favorite snacks by your computer...

RDD Saitama Medical University Hospital (Saitama)

13 Feb 2023 to 28 Feb 2023 Iruma, Japan

Exhibition of panels and posters on intractable epilepsy and rare/intractable diseases

RDD SAITAMA WEST

12 Feb 2022 Hanno city, Saitama, Japan

LIVESTREAM https://www.youtube.com/channel/UCeTau5sembVYB1KOuJj3M3A LECTURE (Feb 12, 2022) “What We Can Do – How We Started and Current Activities to Send Children’s Wheelchairs...

RDD SAITAMA western part (Japan)

20 Feb 2021 to 28 Feb 2021

Opening – Introduction of social issues related to rare and incurable diseases 2. special lecture webinar My Face, My Style...

RDD SAKATA-NISHI Highschool (Yamagata, Japan)

30 Jan 2021 to 28 Feb 2021 Sakata Nishi high school, Japan

The catch phrase is To the medical professionals and to all people, give ale and kindness!Project 1: #Yell to the...

RDD Satsuma- rare disease (Japan)

28 Feb 2021 to 31 Mar 2021

Online streaming of mini-concerts and greeting messages from concerned parties!

RDD Satsuma(Kagoshima)

5 Mar 2023 Kagoshima, Japan

Lecture Meeting

RDD SCD MSA (Japan)

15 Mar 2021

Multiple System Atrophy (MSA) Online International Exchange Meeting 1〉Opening remarks (10 minutes) Panel discussion (60 minutes) [Theme] “International Treatment Research...

RDD SHIGA

26 Feb 2023 Otsu, Japan

– Create a message board – Exchange meeting

RDD Shiga (Japan)

28 Feb 2021 Shiga Prefecture NANBYO Support Center, Japan

Now that it is difficult to get together at the Corona disaster, we will collect your voices and create a...

RDD SHIMANE

3 Feb 2023 to 4 Mar 2023 Matsue, Japan

– RDD Panel Exhibit – Marche

RDD Shizuoka (Japan)

24 Feb 2021 to 2 Mar 2021 Shizuoka Prefecture General Social Welfare Hall, Japan

"Thinking about Coexistence Week" Paintings, photographs, paper cutouts, picture postcards, calligraphy, calligraphy, haiga, stained glass, pottery, puzzles, floral arrangements, kumihimo,...

RDD Symposium

6 Feb 2022 Tokyo, Japan

LECTURE + PANEL DISCUSSION ”Toward an Inclusive Society for People with Rare Diseases” Dr. Takayuki SHIOSE Ayako OZAWA Aki YUKI...

RDD Telemedicine (Japan)

1 Feb 2021 to 7 Mar 2021 Online / Community Book Cafe at Mitaka-City, Japan

1) Exhibition at Community Book Cafe at Mitaka-City  Date: February 1 ~ February 28, 2021   2) Seminar on Telemedicine    Date: February 1 ~...

RDD Tohoku University(MIYAGI)

5 Feb 2023 Sendai, Japan

– Lectures by University Researchers – Lecture by RDD Secretariat – Lectures by companies – QA session

RDD TOKUSHIMA

1 Feb 2023 to 26 Feb 2023 Tokushima, Japan

RDD Panel Exhibition

RDD Tokushima (Japan)

14 Feb 2021 to 28 Feb 2021 Tokushima Prefectural Exchange Plaza for the Disabled, Japan

RDD Japan panel exhibition

RDD TOKYO

25 Feb 2022 to 6 Mar 2022 Tokyo, Japan

LIVESTREAM https://www.youtube.com/watch?v=J4iG8jx0lxI -Panel exhibition -Disease names exhibition

RDD Tokyo (Japan)

28 Feb 2021 Tokyo, Japan

Program of RDD Tokyo (Feb. 28, 13pm-19pm (JST)) 13:00 Opening performance / Ayako Ozawa (Singing and storytelling by people with...

RDD Tokyo Tower lit up

28 Feb 2023 Tokyo, Japan

RDD color Lit up Tokyo tower

RDD Tottori (Japan)

28 Feb 2021

1. Explanation of the purpose of the project Guest; Yukiko Nishimura (RDD Japan chief secretariat) 2. (Discussion) First, let’s learn...

RDD TOYAMA

25 Feb 2023 Toyama, Japan

– Exchange of opinions between patients and listeners (medical students) – Patient’s testimonial – Question and answer session – Exchange...

RDD TSURUOKA (Yamagata, Japan)

27 Feb 2021 Tsuruoka City Advanced Research and Industrial Support Center, Tsuruoka, Yamagata, Japan

Online social events Organizing coloring book projects

We are pleased to invite you to our second capacity building webinar in preparation for Rare Disease Day 2022! Find...

RDD x WheeLog! Special event

25 Feb 2023 Tokyo, Japan

The event was a hands-on experience where everyone walked the streets together while experiencing a wheelchair and white cane/eye mask.

RDD YAMAGATA

26 Feb 2023 Yamagata, Japan

– Panel exhibition of intractable disease patient groups and related organizations – RDD fundraising activity to connect patients and society...

RDD YAMAGUCHI

25 Feb 2023 Shimonoseki, Japan

– NANBYO cafe – Orchestral live performance

In RDD Yamaguchi, we will express the theme of RDD Japan 2021, “Your want to know rare, I want to...

RDDNARA

26 Feb 2023 Nara, Japan

Medical Lecture

Be a part of History. Join the call for the United Nations to adopt a Resolution for Persons and Families Living with a...

RDSS Virtual Run 2021

4 Feb 2021 to 22 Feb 2021

Help Raise Awareness for RARE by carrying HOPE with you! HOPE represents the dreams and aspirations of the beneficiaries of...

Reaching Everyone Everywhere

27 Feb 2021 to 28 Feb 2021 Jakarta, Indonesia

We are going to have 2 event for Rare Disease Day 2021  1. “Illuminates Building For Indonesia’s Rare Disease Day...

Real Love, Rare Love in Texas

14 Feb 2021 Ft. Worth, United States

Love For Kids, Inc. is proud to honor children with rare conditions in partnership with musicians from Texas Music Network...

Reality & Hope: Malaysia RD Poster Series

1 Feb 2023 to 28 Feb 2023 Petaling Jaya, Malaysia

In commemoration of Rare Disease Day 2023, MRDS and GCSM (Genetic Counseling Society Malaysia) have joined forces to publish a...

The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...

Reconocimiento a nuestros campeones

7 Mar 2023 Medellín, Colombia

Reconocimiento a nuestros campeones, Mesa de enfermedades raras para antioquia y red tecnica por las enfermedades huérfanas de Antioquia.

Reconocimiento al Dr. Antonio Velázquez Arellano

28 Feb 2023 Ciudad de Mexico, Mexico

La Asociación Mexicana de Amigos Metabólicos, A. C., la Asociación Mexicana de Angioedema Hereditario, A. C. Creadores del Premio Dr....

Reflexiones acerca de las enfermedades raras en México

16 Feb 2023 to 28 Feb 2023 En línea, Mexico

Reflexiones de hombres y mujeres que atienden en México al universo de pacientes que viven con enfermedades raras.

Release of RDD Japan 2021 introduction movie

16 Feb 2021 to 28 Feb 2021 Online, Japan

This is a video introducing RDD Japan 2021. I made it simply with BGM only. Please use it for the...

Research for the CURE

28 Feb 2021 to 1 Mar 2021 Los Angeles, United States

The Charlotte and Gwenyth Gray Foundation was founded in 2015 by Kristen and Gordon Gray when their oldest daughter Charlotte was diagnosed...

2/26/2021 From 12:00 to 13:30 there will be an expert discussion via zoom “Progress of Rare Diseases Treatment and Upcoming Improvements” organised...

En el marco del mes internacional de las enfermedades raras y huérfanas (ERH), se ha convocado al evento internacional: Retos y oportunidades para...

Ride With Hope @ Miku Challenge

1 Feb 2022 to 31 Mar 2022 Rembau, Malaysia

In conjunction with World Rare Disease Day 2022 (28 Feb 2022), Malaysia Lysosomal Diseases Association (MLDA) will be organising our...

RIFLETTO-ri SULLE MALATTIE RARE

29 Feb 2024 San Giovanni di Fassa / Sèn Jan (TN) - 38036, Italy

Intervengono: • Mirella Florian, Conseiera de Procura alle attività sociali del Comun General de Fascia; • Monica Mazzucato (online), medico...

Rise for Rare Online Yoga Class

29 Feb 2024 Kamloops, Canada

Join lululemon ambassador Kasha Mitton for a free all-levels online yoga class in honour of Rare Disease Day! Roll out...

Tisztelettel és szeretettel meghívjuk a Ritka Betegségek Világnapja alkalmából szervezett programjainkra, melyeket a RIROSZ, a Ritka és Veleszületett Rendellenességgel Élők...

ROHHAD International Consortium Virtual Symposium

26 Feb 2022 Chicago, United States

Rapid-onset obesity with hypothalamic dysfunction, hypoventilation, and autonomic dysregulation (ROHHAD) is an ultra-rare disorder of respiratory control and autonomic nervous...

Rosario muestra sus colores por las ER

28 Feb 2021 Rosario, Santa Fe, Argentina

En este día tan especial se iluminarán en la ciudad de Rosario diferentes edificios gubernamentales, entre ellos el PALACIO VASALLO,...

On the occasion of World rare disease Day 2022, Dakshayani and Amaravati Health and Education is organizing a round table...

Round table on the occasion of RD Day

26 Feb 2021 Prague, Czech Republic

This Round Table is currently being prepared and will be organized by a newspaper Zdravotnický deník (specializes in healthcare issues)...

Rowing 4 Rare

28 Feb 2022 DFW, United States

We are attempting to row 30million meters in honor of the 30million living with rare disease in the US. Anyone...

We were delighted to announce that would will be running our annual Rare Disease Day event on the 27th February...

Run with ATAC and friends

3 Mar 2023 Amsterdam, Netherlands

Meeting Point: Sloterpark around 4.45/ 5 pm where the IAMSTERDAM letters are. We take a picture together, and from there...

Saint Peter's University Hospital Supports Rare Disease Day

27 Feb 2023 to 1 Mar 2023 New Brunswick, United States

Saint Peter’s joins the chain of lights across the globe raising awareness of rare diseases this #RareDiseaseDay by illuminating it’s...

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en...

På sällsynta dagen bjuder Centrum för sällsynta diagnoser Väst tillsammans med medarrangörerna, Ågrenska, Mun-H-Center och Riksförbundet sällsynta diagnoser in till...

Sällsynta Temadag online

26 Feb 2022 Online, Sweden

Rare Disease Network South is organising an online Rare Disease Day on 26 February 2022 to celebrate Rare Disease Day...

Sambutan Hari Penyakit Jarang Jumpa 2024

29 Feb 2024 Kuala Lumpur, Malaysia

Sambutan Hari Penyakit Jarang Jumpa 2024 (Rare Disease Day 2024) yang bertujuan untuk meningkatkan kesedaran orang ramai terhadap penyakit jarang...

Missa em Ação de Graças a conscientização sobre o Dia das Doenças Raras, às 19 horas, Paróquia Sagrado Coração de...

Missa de intenção de Ação de Graças, as pessoas com Doenças Raras em reflexão ao Dia Mundial das Doenças Raras....

SANTA MISSA EM AÇÃO DE GRAÇAS PELOS RAROS

26 Feb 2023 Ceilândia, Brazil

Missa em ação de graças pelos Raros no dia 26 de fevereiro às 08h. Todos estão convidados.

SANTA MISSA EM AÇÃO DE GRAÇAS PELOS RAROS

26 Feb 2023 Águas Claras DF, Brazil

Santa Missa em ação de graças pelos raros. dia 26 de fevereiro de 2023 às 19h Todos estão convidados

SANTA MISSA PELOS RAROS

26 Feb 2023 Aparecida do Norte, Brazil

Santa Missa em ação de graças pelos Raros. Dia 26 de fevereiro, às 08h. Com transmissão ao vivo pela TV...

Sarkoidose - selten, aber du bist nicht allein

28 Feb 2023 virtuell, Germany

Alle Menschen mit Sarkoidose sind herzlich eingeladen zu sehen, dass sie nicht alleine sind. In einem virtuellen Café wollen wir...

Saudi Rare Disease Summit

16 Mar 2023 to 17 Mar 2023 Riyadh, Saudi Arabia

There is clear evidence that the rare diseases are one of the biggest challenges in medical practice, with several gaps...

School Campaign 'Wear that you care' 2023

28 Feb 2023 to 7 Mar 2023 Pancyprian, Cyprus

With the slogan “I am rare alone, together we are strong”, we invite all schools on this day to join...

SCHOOL CAMPAIGN 2021 WEAR THAT YOU CARE

22 Feb 2021 to 28 Feb 2021 strovolos, Cyprus

With the slogan "I am rare alone, together we are strong", we invite all schools on this day to join us in...

School Information Campaign 2023

3 Feb 2023 to 3 Mar 2023 Zalau, Romania

Patients from NoRo Center and NoRo staff will organize raising awareness activities with children in schools and kindergartens, including a...

school lighting (4th Primary School of Pefki)

25 Feb 2022 to 28 Feb 2022 Pefki, Greece

We will illuminate our school building, with the colors of Rare Diseases, from the afternoon of Friday 25/2/2022 until Monday...

Science4Rare 2023 – Worldwide Science Contest IndoUSrare, announces Worldwide Science contest – Science4Rare – 2023. Registration: https://bit.ly/science4Rare2023 Calling on all...

VII konferencja naukowa z okazji Dnia Chorób Rzadkich współorganizowana przez Instytut Biochemii i Biofizyki PAN

Scleroderma Queensland picnic in the park

28 Feb 2023 Toowoomba Queensland , Australia

Join us for a BYO picnic at Queens Park Toowoomba to help us acknowledge Rare Diseases Day by raising awareness...

SCN2A Awareness

21 Feb 2021 to 28 Feb 2021 National, United States

We will be sharing interviews with parents abotu the impact of have SCN2A and why it needs further funding and...

Diffusion sur notre page Facebook de la séance d’information virtuelle avec Laura Frégeau, ergothérapeute spécialisée https://www.facebook.com/constellationthtc

See Rare Run Virtual Race

26 Feb 2021 to 28 Feb 2021

Welcome to the fourth SEE RARE RUN VIRTUAL RACE! This year, we have two distance options: 5K or 5 miler! SEE RARE RUN...

L@s nvitam@s para este Jueves 11 de Febrero a las 19:00 hrs. a nuestro Segundo Conversatorio: "Hablando de Epofs: Una...

Dirijido a profesional Pacientes Cuidadores y sociedad civil para orientación de Enfermedades Raras y sus tratamientos.

SEGUNDO SIMPOSIO ACTUALIZACIÓN ENFERMEDADES RARAS EN VENEZUELA 2023

28 Feb 2023 Valencia Edo Carabobo , Venezuela

Simposio con ponentes Profesionales de la salud dirigidos a:Médicos generales, residentes, especialista, profesionales de la Salud, Pacientes, familiares.

Selten sind viele

4 Mar 2022 to 5 Mar 2022 Freiburg im Breisgau, Germany

Online – Veranstaltung

Seltene Krankheiten in Ostfriesland

29 Feb 2024 Emden, Germany

Im Emden wird der Rare Disease Day auch am 29. Februar begangen. In der Zeit von 10 bis 18 Uhr...

Semana de difusión por el Día Internacional de las Enfermedades Raras de la AAEEDGH

26 Feb 2024 to 29 Feb 2024 Guadalajara, Jalisco, Mexico

Our Association is formed by students and graduates from PhD. in Human Genetics by the Universidad de Guadalajara, a lot...

Semana de las Enfermedades Poco Frecuentes

4 Mar 2023 Santiago del Estero, Argentina

El Ministerio de Salud de Santiago del Estero, la Alianza Argentina de Pacientes (ALAPA), la Asociación Mucopolisacaridosis Argentina (AMA) y...

Semana de las Enfermedades Raras

2 Mar 2022 to 4 Mar 2022 La Paz, Bolivia

El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...

Asociación Mexicana de Amigos Metabólicos, AC, se suma a la celebración de los “50 años del Instituto Nacional de Pediatría”...

We invited you to the seminar about rare diseases centres in Brno and about cooperation with patients organizations. Centres specialized...

Seminar at the Czech Parliament

28 Feb 2023 Prague, Czech Republic

This seminar, which is planned to be organized with the Chamber of Deputies of the Czech Parliament, under the auspices...

Sensibilisation à la journée internationale des maladies rares

21 Feb 2022 to 28 Feb 2022 Faches Thumesnil , France

Illumination de l’hôtel de Ville de Faches-Thumesnil et concours de selfies. Sensibilisation sur les réseaux sociaux

Webinares educativos semanales gratuitos por la plataforma Zoom para conmemorar las enfermedades huérfanas. 9 de febrero -Generalidades de las EH...

Sesión de Fotografía Terapéutica 

19 Feb 2022 Ciudad Autónoma de Buenos Aires, Argentina

Si tenés una alopecia autoinmune y querés participar, vamos a hacer una sesión de Fotografía Terapéutica y si no tenes...

𝗗𝗼𝗺𝗲𝗻𝗶𝗰𝗮 𝟮𝟲 𝗳𝗲𝗯𝗯𝗿𝗮𝗶𝗼, 𝗼𝗿𝗲 𝟭𝟬.𝟯𝟬 𝘼𝙙𝙤𝙯𝙞𝙤𝙣𝙚 : 𝙪𝙣𝙖 𝙨𝙘𝙚𝙡𝙩𝙖 𝙙’𝙖𝙢𝙤𝙧𝙚 Abbiamo deciso di organizzare un evento in cui parlare dell’esperienza...

Shades of rare diseases

28 Feb 2023 Bucharest, Romania

28 January is rare disease day, a special day for over 300 million people worldwide living with a rare disease....

Share with rare

1 Feb 2021 to 28 Feb 2021 online, Serbia

The idea is that people who are living with rare diseases get gifts, in such a way that people who don't...

Share your colors

28 Feb 2022 Norwich, United States

We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.

Share your colors - Romania

28 Feb 2023 Bucharest, Romania

We will be organizing a charitable auction for patients with rare diseases from Dr Victor Gomoiu Center of Expertise in...

Share Your Colour

1 Feb 2024 to 31 Mar 2024 Sarawak, Johor, Kuala Lumpur, Pahang, , Malaysia

Sharing by ten caregivers from the rare disease community of Sarawak, Pulau Pinang, Pahang, Johor and Kuala Lumpur on caring...

Share your colours vernissage Made by Loortje

26 Feb 2023 Vremde, Belgium

Art gallery ‘share your colours’ & bar

Share Your Colours& Access to Rare Disease Medicine

27 Feb 2022 virtual (online), Thailand

The celebration of 12th Rare Disease Day Thailand is scheduled on Sunday, 27th February 2022, from 8 -12 a.m. virtual...

Rare disease patients are considered 'invisibile' due to the marginalization, discrimination and stigma still often associated with rare diseases. They live...

28/2/2023 /8:30 am/ Savion Center The Sheba Medical Center annual congress for the rare disease international day is a unique...

Sheffield Autism Research Lab (ShARL) Rare Disease Day activity

21 Feb 2021 to 28 Feb 2021 Sheffield, United Kingdom

Sheffield Autism Research Lab (ShARL) will be publishing a Rare Disease Day blog series and informative videos about our ongoing...

Shine a Light on APBD

15 Feb 2022 to 28 Feb 2022

Rare Disease Day is a time for our community to come together in a collective display of support for raising...

Shining a Light on Genetic Diagnosis

28 Feb 2022 Edinburgh, United Kingdom

People living with genetic conditions and cancers are at the heart of our research at the Institute of Genetics and...

Shining a Light on Genetic Diagnosis

28 Feb 2022 Edinburgh, United Kingdom

Shining a Light on Genetic Diagnosis, Monday 28 February, 6-7.30pm Institute of Genetics and Cancer, the University of Edinburgh, in...

Shining a Light on Silver-Russell Syndrome (SRS)

28 Feb 2023 Online, United Kingdom

We’re really pleased to share the upcoming event ‘Shining a Light on Silver-Russell Syndrome’. Taking place on Rare Disease Day...

Tues 28 Feb, 18:00-19:30 ONLINE Shining a Light on Silver-Russell syndrome (SRS) on Rare Disease Day. Join us for this...

This year for Rare Disease Day 2022 we are calling on everyone to help the rare disease community be united...

Show your support for #RareDiseaseDay by lighting up your home, office, or school on 28 February! By coming together to...

Show us your Colours! FMDSA

28 Feb 2022 North Olmsted, Ohio, United States

While FMD is thought of as Underdiagnosed we are Rare until proven otherwise. Help us support Rare Disease Day on...

Show Your Colours

29 Feb 2024 Edinburgh, United Kingdom

To raise awareness of Rare Disease Day our pupils will come to school in colourful clothing to ‘Show Their Colours’....

Show your colours Share your story

3 Feb 2021 to 28 Feb 2021

We share our colours, our stories of people with the rare disease XLH (X-linked hypophosphatemia), daily on our social media...

Show Your Rainbow Stripes for Our Moon's Mission!

28 Feb 2022 COOLUM BEACH, Australia

In classrooms, offices and parks in Coolum and all over the world, dress in your brightest rainbow stripes on International...

The Jackson Laboratory is an independent, nonprofit biomedical research institution with nearly 3,000 employees in locations across the United States...

SickKids Rare Disease Day 2022

28 Feb 2022 Toronto, Canada

The last day of February is recognized as Rare Disease Day. We at SickKids, are proud to join the many...

Simposio de Enfermedades Raras COLEMDNL 2024

2 Mar 2024 Monterrey, Nuevo León , Mexico

El Colegio de Médicos Cirujanos del Estado de Nuevo León, A.C. Organiza el Primer Simposio de Enfermedades Raras, dirigido a...

Simposio que busca fomentar entre los profesionales de la salud, especialmente aquellos en el nivel de primer contacto, la importancia...

SIMPÓSIO DIA MUNDIAL DAS DOENÇAS RARAS

6 Mar 2023 to 7 Mar 2023 SÃO PAULO, Brazil

Encontro de pacientes, associações, gestores, profissionais da Saúde para debaterem temas importante dentro das demandas das doenças raras no Brasil...

El Hospital Carlos Andrade Marín y la Unidad Técnica de Pediatría en conjunto con la Unidad Técnica de Genética, han...

SÍNDROME DE ANDERSEN-TAWIL

21 Feb 2024 Leon, Mexico

SESIÓN GENERAL DE CASO CLÍNICO. En conmemoración a canalopatías

El día 17 de Febrero estaremos en #Btvinforma en Bolivia tv a las 10 de la mañana!Los invitamos a ver el...

Sjeldendage

29 Feb 2024 Oslo, Norway

A central focus of this year’s Rare Disease Day conference in Norway will be the follow-up on the national strategy...

Skate Under the Stars: A Rare Disease Celebration

7 Mar 2023 St. Louis, United States

Join us for a celebration of Rare Disease Day with an opportunity for Rare Disease Warriors to Skate Under the...

Skin Story Art Contest

28 Feb 2022 to 31 Mar 2022

Art Contest – Send your drawings by March 31 – By post: Fondation René Touraine // Hôpital Necker – Enfants...

SMA Awareness Day

28 Feb 2021

Nurture the Hope! Together to increase the awareness on SMA disease leaving no patient behind.

The excitement is continued! In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce...

In conjunction with the celebration of World Rare Disease Day 2021, a talk program was held on 9 February 2021 (Tuesday)...

SMA Malaysia Talk Show With Negeri FM (I-Medic)

23 Feb 2021 Negeri Sembilan, Malaysia

In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce that SMA Malaysia will...

Small, big draws

1 Feb 2021 to 21 Feb 2021

https://www.instagram.com/p/CKwAxZ3Bkph/?igshid=1qbexuin9yqz0We would like to invite you to participate in the "Small, large draws" drawing contest organized by the Phelan-McDermid Association,...

Social Media Creatives

25 Feb 2022 to 1 Mar 2022 Whole country, North Macedonia

In the spirit of Rare Diseases Day, let’s paint our social media profiles in the colors of the Rare! -We...

Soft Bones 2023 National Patient Meeting

17 Feb 2023 to 18 Feb 2023 Phoenix, AZ, United States

Soft Bones, Inc. will be hosting their 2023 National Patient Meeting in Phoenix, AZ. We will be celebrating and highlighting...

À l’occasion de la 16e édition de la Journée mondiale des maladies rares, la Plateforme régionale d’information et d’orientation pour...

Soirée maladies rares à Angers

28 Feb 2022 Angers, France

La 15e édition de la Journée internationale des maladies rares aura lieu le lundi 28 février. Une nouvelle fois, la...

c’est un évènement qui regroupera des associations et des groupes de patients des maladies rares au niveau mondiale

Sorteio Energias Raras/Rare Energies Raffle

15 Jan 2021 to 28 Feb 2021 Online, Portugal

[EN] For RDD 2021, Mitochondrial Biomedicine and Theranostics Lab has created the Rare Energies Raffle! Acquiring a raffle ticket you...

South Australia's Rare Disease Day Landmark Illuminations

28 Feb 2021 South Australia, Australia

The following location in South Australia will be illuminated to mark 2021 Rare Disease Day:- Adelaide OvalIllumination organised by Andrew Bannister.

South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

SpectacuRARE Fest 2021

6 Feb 2021 to 31 Mar 2021 Online, Indonesia

SpectacuRARE Fest 2021 is an online event.We will talk about "Living with a Rare Disease" on zoominar, IG live, FB...

SpectacuRARE Fest 2022

3 Dec 2021 to 28 Feb 2022 Virtual, Indonesia

Indonesia CARE for RARE Diseases proudly present SpectacuRARE Fest 2022. All event will be a virtual event. Webinar | IG...

SpectacuRARE Fest 2023

3 Dec 2022 to 11 Mar 2023 Virtual, Jabodetabek, Indonesia

SpectacuRARE Fest 2023 diselenggarakan oleh Indonesia CARE for RARE Diseases (IC4RD). Terdiri dari rangkaian acara virtual. Acara puncak akan dilaksanakan...

SpectacuRARE Fest 2024

25 Jan 2024 to 9 Mar 2024 Virtual, Tangerang, Indonesia

Indonesia CARE for RARE Diseases proudly present SpectacuRARE Fest 2024, an annual event since 2021. We make a virtual and...

Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...

Spinning Non-Stop 6 horas

29 Feb 2024 MADRID, Spain

Pedalear en una bicicleta de spinning durante 6 horas sin parar.

Sponsored Swim/Dip for RARE Ireland Family Support Network to celebrate Rare Disease Day 2023. Date: Saturday February 26th Location: Portmarnock...

Lyndsey & Aisling have chosen to fundraise for Rare Ireland Family Support Network as both their daughters are living with...

Sportello di Ascolto e Orientamento - Open days

14 Feb 2022 to 28 Feb 2022 Siracusa, Italy

Sportello di Ascolto, Orientamento e Informazione in favore dei pazienti e delle famiglie affetti da malattie rare, ematologiche ed oncologiche....

ENG: Our event’s mission is to gather Polish medical students and people living with rare diseases (as well as their...

W 2022 roku Dzień Chorób Rzadkich obchodzimy 28 lutego. Aby szerzyć wiedzę na temat tych chorób, chcielibyśmy zaprosić Państwa do...

Spreading MED13L Awareness Through Social Media

1 Feb 2021 to 28 Feb 2021 Barrington; Philadelphia, United States

MED13L is a very rare syndrome that is characterized by intellectual disability, speech and language impairment, motor developmental delay with...

SRNA Rare Disease Day

28 Feb 2022 New York, Los Angeles, Dallas, Baltimore, United States

Please join us for a special support event in honor of Rare Disease Day. This will be a great opportunity...

SRNA Rare Disease Day

28 Feb 2023

Join us on February 28 as we recognize and celebrate Rare Disease Day. Sit with us at the #Rare Roundtable...

Stand d'information Maladies Rares - Strasbourg

1 Mar 2023 Strasbourg, France

Mercredi 1er mars, la filière SENSGENE et ses partenaires tiendront un stand de sensibilisation aux maladies rares dans le centre...

Stand informativo

28 Feb 2023 Mestre , Italy

Stand informativi promosso dall’associazione rete malattie rare.

Stand Malattie Rare presso SPORT EXPO (Napoli)

24 Feb 2023 to 25 Feb 2023 Napoli, Italy

Stand informativo sulle Malattie Rare

Stargardt's Connected Bake Sales

1 Feb 2022 to 28 Feb 2022 All around the country, United Kingdom

This year we are marking the occasion by asking our Stargardt’s community along with their family, friends or colleagues to...

Stargardt’s Connected Community Meeting

28 Feb 2021 Virtual, United States

On Rare Disease Day join us for a 2-hour special virtual meeting of our international Stargardt's Community, bringing together people living...

STATI GENERALI DELLE MALATTIE RARE NORD EST

23 Feb 2023 to 24 Feb 2023 Padova, Italy

Sul tema Malattie Rare (MR), dato il rapido evolvere dello scenario legislativo, organizzativo-gestionale e tecnico-scientifico, vi è il bisogno a...

STATI GENERALI SULLE MALATTIE RARE CITTÀ DI PADOVA

24 Feb 2021 to 28 Feb 2021 PADOVA, Italy

Il 28 febbraio 2021 si celebrerà l’annuale giornata mondiale sulle Malattie Rare. L’Azienda Ospedale Università di Padova [AOUP] è la...

STATI GENERALI SULLE MALATTIE RARE DELLA CITTA' DI PADOVA

23 Feb 2022 to 24 Feb 2022 Padova, Italy

Anche quest’anno l’Azienda Ospedale Università di Padova (AOUP), in occasione della giornata mondiale sulle Malattie Rare (Rare Disease Day) del...

Stein des Anstoßes

26 Feb 2022 to 28 Feb 2022 Bad Honnef, Germany

Betroffene der seltenen Erkrankung Pseudotumor cerebri (Idiopathische intrakranielle Hypertension) bemalen Steine mit verschiedenen Motiven und beschriften ihn mit Hinweisen auf...

Steps for Skye 2022

1 Aug 2022 to 31 Aug 2022 Ballarat, Australia

STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...

Stokes Early College Rare Disease Day

28 Feb 2023 Walnut Cove, NC , United States

The Fellowship of Christian Students at Stokes Early College High School will be hosting “Rare Disease Day” on February 28,...

Stop FMF & Rare Disease Day

6 Mar 2021 Online, United States

El pasado sábado 6 de marzo de 2021 la Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios, organizó un encuentro...

Sabato 27 febbraio, dalle ore 18 alle 19 | STORIE RARE – Facciamo che “io ero”…Storie per stare insieme | Letture per...

Domenica 28 febbraio, STORIE RARE –Noi i veri protagonisti!!! | Intervista a due bambini metabolici (pubblicazione sulle pagine Social di AISMME...

Story Telling Photography

28 Jan 2024 to 4 Feb 2024 Jakarta, Indonesia

Indonesia Rare Disorders collaborates with Lensa Anak Terminal (Bus Station Children’s Lens Community) to hold photo storytelling workshops for people...

Stronger than HAE

18 Feb 2022 to 11 Mar 2022 Prague, Czech Republic

HAE Junior patient organization, as a member of both EURORDIS and Czech Rare Disease Association, joins Rare Disease Day 2022...

Summer Picnic

28 Feb 2021 Orewa, Auckland, New Zealand

We hope to see plenty of members and any others at our beach picnic at Orewa this Sunday in support...

Support for people with rare diseases

24 Feb 2021 online, Latvia

Actual discussion: Santa Survila, Ivars Balodis interviewing Baiba Ziemele, head of Latvian Alliance of Rare Diseases. Available support for people...

Support for the Rare

28 Feb 2022 Demir Hisar, North Macedonia

During the classes we gave a support for the Rare through out different kind of activities like singing songs, playing...

SWAN Rare Disease Day Event - Brisbane

28 Feb 2023 Brisbane, Australia

SWAN Australia is the only not-for-profit charity supporting families caring for children with undiagnosed and rare genetic conditions, all of...

SWAN Rare Disease Day Event - Sydney

24 Feb 2023 Sydney, Australia

Rare Disease Day is an international day that takes place on the last day of February each year. The day...

SWAN Rare Disease Day morning tea - Adelaide

25 Feb 2023 Adelaide, Australia

Please join SWAN families in Adelaide for a relaxed morning tea in the park. Share laughs, information and stories with...

SWAN Rare Disease Day morning tea - Canberra

26 Feb 2023 Canberra, Australia

Please join SWAN families in Canberra for a relaxed morning tea in the park. Share laughs, information and stories with...

SWAN Rare Disease Day morning tea - Gold Coast

25 Feb 2023 Gold Coast, Australia

Please join SWAN families in the Gold Coast for a relaxed morning tea in the park. Share laughs, information and...

SWAN Rare Disease Day morning tea - Hobart

25 Feb 2023 Hobart, Australia

Please join SWAN families in Hobart for a relaxed morning tea in the park. Share laughs, information and stories with...

SWAN Rare Disease Day morning tea - Launceston

26 Feb 2023 Launceston, Australia

Please join SWAN families in Launceston for a relaxed morning tea in the park. Share laughs, information and stories with...

SWAN Rare Disease Day Morning Tea - Melbourne

26 Feb 2023 Melbourne, Australia

Please join SWAN families in VIC for a relaxed morning tea in the park. Share laughs, information and stories with...

SWAN Rare Disease Day morning tea - Perth

26 Feb 2023 Perth, Australia

Please join SWAN families in WA for a relaxed morning tea in the park. Share laughs, information and stories with...

SWAN Rare Disease Dinner - Sydney

23 Feb 2023 Sydney, Australia

Please join SWAN members (parents and full time carers only) for dinner at PappaRich in Parramatta. Date: Thursday, 23 February...

Swords Castle LightsUp4RD

21 Feb 2022 to 28 Feb 2022 Swords, Ireland

Fingal County Council will light up Swords Castle each evening from 21-28th Feb to raise awareness of Rare Diseases. Take...

Le 26 février, à l'occasion de la Journée des Maladies Rares 2021 (28/02/21), le Centre des Maladies Rares du CHU...

Symposium on Rare Diseases

29 Feb 2024 Prague, Czech Republic

Quality of life of patients with rare diseases System of comprehensive shared social health care for patients with rare diseases...

Syndromes Without A Name (SWAN) Rare Disease Day Event

28 Feb 2022 Virtual event, Australia

Join SWAN Australia, Carer Gateway – Wellways Australia and Community Junction in raising awareness about rare diseases on Rare Disease...

Am Tag der Seltenen Erkrankung und zum 14. Jahrestag unseres Vereins laden wir ein: 29.2.2024 um 20 Uhr Zoom-Meeting Das...

Tag der Seltenen Erkrankungen

3 Mar 2023 Mainz, 55116, Germany

Unter der Schirmherrschaft von Herrn Sozialdezernent Dr. Eckert Lensch, der Landeshauptstadt Mainz wird in diesem Jahr zum 11. Mal der...

Tag der seltenen Erkrankungen - Aurich

28 Feb 2023 26603 Aurich, Germany

15.30 Uhr | Begrüßungsrede durch Landrat Olaf Meinen, er hat die Schirmherrschaft übernommen ——————+—————————————————————————————————– 16.00 Uhr | Rote Luftballon-Aktion zum...

Tag der Seltenen Erkrankungen in Mainz

26 Feb 2021 Online, Germany

Tag der Seltenen Erkrankungen in Mainz

Tag der Seltenen Erkrankungen in Mainz

4 Mar 2022 Mainz, Germany

Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...

Unter dem Motto: „Teilt eure Farben und lasst uns Aufmerksamkeit schaffen”, organisiert die Selbsthilfe Salzburg den jährlichen Tag der Seltenen...

Diese beiden Anlässe verwandeln den EUROPARK Salzburg, am Samstag, 18. März 2023 in einen ganz besonderen Veranstaltungsort. Denn unter dem...

Bereits im fünften Jahr schaffen wir im Vorfeld des Tages der Seltenen Erkrankungen auf dem Tagesspiegel Fachforum Gesundheit eine Öffentlichkeit...

Bereits im fünften Jahr schaffen wir im Vorfeld des Tages der Seltenen Erkrankungen auf dem Tagesspiegel Fachforum Gesundheit eine Öffentlichkeit...

De vorbă cu ChatGPT Cum poate AI să susțină campania de conștientizare a bolilor rare? Boala Gaucher este o boală...

Fundación de Familias con Amiloidosis en México te invita a participar en el taller virtual para pacientes: El cuidado multidisciplinario...

Tasmania's Rare Disease Day Landmark Illuminations

28 Feb 2021 Tasmania, Australia

The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day:- Paranaple Convention Centre- Launceston Town HallIllumination organised by Andrew Bannister.

Te Lo Tengo Que Preguntar ed. especial DimER 2022

25 Feb 2022 [En línea, desde cualquier parte de México], Mexico

En el panel solo estarán pacientes y familiares que viven con #EnfermedadesRaras; ellos contestarán preguntas profundas, interesantes, divertidas, de todo...

Te Lo Tengo Que Preguntar ed. especial DimER 2022

25 Feb 2022 [En línea, desde cualquier parte de México], Mexico

En el panel estarán solo pacientes y familiares que viven con #EnfermedadesRaras; ellos contestarán preguntas profundas, interesantes, divertidas, de todo...

TED Talk for “Eagle syndrome” and the great value of using our Voice, in Vienna

Tennessee Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

L@s nvitam@s para este Martes 16 de Febrero a las 19:00 hrs. a nuestro Tercer Conversatorio: "Hablando de Epofs: Una...

El Colectivo Los Pacientes Importan –integrado por 32 organizaciones de pacientes con enfermedades raras, huérfanas, crónicas, autoinmunes y cáncer –...

El Grupo de Trabajo Derechos, Discapacidad y Enfermedades Raras de la Sociedad Interamericana de Psicología organiza, en el marco de...

Presentamos una charla en Youtube con testimonios de tres familias con niños afectados por el Síndrome de Phelan-McDermid. De esta...

Texas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

The 10th International Rare Diseases Day Conference : Learning the Rare in Medicine

The 10th International Rare Diseases Day Conference : Learning the Rare in Medicine

28 Feb 2024 Sheba Medical Center, Tel Hashomer, Israel , Israel

The 10th International Rare Diseases Day Conference : Learning the Rare in Medicine

The 13th Rare Disease Day Thailand

26 Feb 2023 Bangkok, Thailand

The 13th Rare Disease Day Thailand Event will be held on Sunday, February 26th, 2023 under the theme, “Show Your...

the 14th Rare Disease Day Thailand

3 Mar 2024 Bangkok, Thailand

Thai Rare Disease Foundation Organized Event To campaign for sustainable development in caring for patients with rare diseases The 14th...

The Challenge

15 Feb 2021 to 1 Sep 2021 Melbourne to Sydney, Spain

Virtual fundraising challenge in sports routine or fitness routine to fundraise for Ataxia, ataxia research and climate change. Based on...

The European D(dystonia)-DAYs 2017

12 May 2017 to 14 May 2017 Roma, Italy

The European D(dystonia)-DAYs 2017 will be held in Rome, Italy on 12-14 May at the Hotel IBIS Styles Roma in Rome,...

Get to know each other, each other’s problems among health care within Europe. To make collaborations

We are happy to announce the opening of the Pulmonary Hypertension Center for Pediatric patients in Lviv city on Rare...

Join the GSNV in celebration of Rare Disease Day with a virtual journey showing the power of alliances that build...

Join the GSNV in celebration of Rare Disease Day with a virtual journey to focus on “Global Themes, Local Action”....

This year the Genetic Support Network of Victoria (GSNV),  Australia will hold a virtual event to raise awareness amongst the general...

Join us for a thought-provoking panel discussion featuring researchers from Simons Searchlight and the Simons Foundation Autism Research Initiative (SFARI)....

THIS EVENT TAKES US ON A JOURNEY OF A PATIENT WITH A RARE DISEASE – EMPHASIZING THE ASSISTANCE WHICH IS...

The National Alliance for Rare Diseases Malta supporting our members who live in Gozo, Malta

On February 28 in the Rooms Hotel Tbilisi the press conference dedicated to the Rare Disease Day has been held....

Join us live on rare disease day!!! Find out more about the #EDIRA conference and how it can help Poland...

The Story of my Skin - 2024 Art Contest

29 Feb 2024 to 29 Apr 2024

Since 2015, the Fondation René Touraine’s Rare Skin Diseases Network has been running an art contest to raise public awareness...

The Story of my Skin - Art Contest

2 Jan 2021 to 28 Feb 2021

ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...

The Story of my Skin - Art Contest

1 Jan 2021 to 28 Feb 2021 Paris, France

ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...

The UAE Rare Disease Day 2021 Events

26 Feb 2021 to 27 Feb 2021

The UAE Rare Disease Society celebrates Rare disease day 2021 with a variety of events.1. An online webinar on 24.02.2021 directed...

The following locations/landmarks in the United States will be illuminated to mark 2021 Rare Disease Day: - Niagara Falls, New York - The Helmsley...

If you still haven't heard of Rare Diseases, this is your chance to get to know better. The untold and...

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Théâtre-débat "Vivre avec ma maladie rare"

17 Mar 2022 Le Mans, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Théâtre-débat "Vivre avec ma maladie rare"

23 Mar 2022 Saint-Nazaire, France

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Théâtre-débat "Vivre avec ma maladie rare"

30 Mar 2022 La Roche sur Yon, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Dans le cadre de la Journée internationale des maladies rares ce 29 février 2024, le centre de référence des pathologies...

MSP (Minneapolis St Paul), MN – In honor of Rare Disease Day, which happens every year at the end of...

TLK2

28 Feb 2022 Louisville, United States

Walk a lot

TODOS SOMOS PACIENTES

28 Feb 2021 Mexico City, remote event, Mexico

Este año en OMER hemos decidido sumarnos a las actividades del Rare Disease Day, a través de un evento dirigido a...

Together for patients with rare diseases

24 Feb 2021 Bucharest, Romania

Rare diseases are characterized by a large number of broad and diverse disorders and symptoms, majority having identified genetic origin....

Together We Can!

24 Feb 2024 LaGrange, United States

We are co-sponsoring a Rare Disease Day Event with other community partners who support individuals with rare diseases. For example,...

Toronto CN Tower Illumination

28 Feb 2022 Toronto, Canada

Date: February 28, 2022 Cause: International Rare Disease Day Colour: Pink, blue and green The lighting begins at sunset, however...

TORONTO MAYOR OLIVIA CHOW OFFICIALLY PROCLAIMS FEBRUARY 29TH AS RARE DISEASE DAY THROUGHOUT THE CITY OF TORONTO!

In occasione  della “Giornata delle malattie rare – Rare Disease Day”, Arcoiris Onlus ha il piacere di invitarvi al tour virtuale della mostra  Per Gioco....

Trabajamos unidos por las raras / huérfanas

28 Feb 2023 Medellín, Colombia

Mesa de enfermedades raras paa Antioquia y red técnica por las enfermedades huérfanas de Antioquia

Trëppelen um Dag vun de seelene Krankheeten

29 Feb 2024 Luxembourg, Luxembourg

This year, Rare Disease Day is a very special day because it is a leap year. On the 29th of...

Triff die anderen - Sarkoidose ist nicht so selten

29 Feb 2024 Neumünster, Germany

Mit einer Runde Lachyoga starten wir zu einem fröhlichen Austausch unter Betroffenen. Wir freuen uns über Betroffene und Angehörige und...

Trivia Night

28 Feb 2021 Western Ontario, Canada

We are hosting a Rare Disease themed trivia night at the University of Western, Ontario. The event will take place...

Une série de webinaires pour sensibiliser aux maladies rares / A series of webinars to raise awareness of rare diseases

TV Tower in Tbilisi will be illuminated with colours of rare diseases in order to spread  awareness of rare diseases. 

Twitter Chat on Rare Diseases

22 Feb 2023 Online, United States

We’re hosting a Twitter chat on Feb. 22, 1–3 p.m. EST. Rare disease experts will be available to answer your...

UAE Rare Disease Day 2022 - UAE Rare Disease Society

26 Feb 2022 Dubai, United Arab Emirates

This year the UAE Rare Disease Society is celebrating Rare Disease Day 2022 in an exceptional way at EXPO 2020...

UCLA California Center for Rare Diseases

29 Feb 2024 Los Angeles, United States

Screening of Do Something, the Jeffrey Modell Story, to the UCLA Medical School and LA Rare disease community

UCLA Rare Disease Day

28 Feb 2023

Join us for a rare disease day event. This will be a webinar format. This is a community focused event,...

UILDM ACCENDE LE LUCI SULLE MALATTIE RARE

28 Feb 2021 Montecatini Terme, Montale, Agliana, San Marcello Piteglio, Serravalle Pistoiese, Uzzano, Monsummano Terme, Ponte Buggianese, Miggiano, Francavilla Fontana, Martina Franca, Taranto, San Donaci, Bergamo, Legnano, L'Aquila, Torino, Italy

Thanks to the work of UILDM branches (UILDM - Unione Italiana Lotta alla Distrofia Muscolare) we will have 19 monuments...

Thanks to UILDM's branch of Martina Franca and to the positive answer of the local authorities, three monuments will be enlighted...

Ulysses Neuroscience Rare Disease Day Event

28 Feb 2023 Dublin, Ireland

We are hoping to use this event to host a variety of presentations from all stakeholders in the rare disease...

UMD PGCC Rare Disease Day

27 Feb 2024 Duluth, MN , United States

7-8pm We will be bringing awareness to Fragile X syndrome and having a guest speaker, Genetic Counselor Alexandra Mohner present...

UN CALCIO ALLA RARITA'

25 Feb 2024 CERVINARA, Italy

ORE 15:00 CELEBRAZIONE SANTA MESSA DON RENATO TRAPANI TESTIMONIANZE: DON ALFONSO LAPATI BRUNO CAMMAROTA MARIA PERROTTA AVV.AURELIA DE NUZZO AVV....

Un cielo per tutti

1 Mar 2024

With reference to the International Day dedicated to Rare Diseases on 29 February, the StarLight association of Perugia is organizing...

UN CONCERTO "SPECIALE"

2 Mar 2024 CAPUA, Italy

Concerto straordinario del Coro DNA GOSPEL diretto dal Maestro Angelo Abate nella bellissima Chiesa Santi Filippo e Giacomo di Capua...

Un día en la vida de un paciente

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Carlos David Peña Aragón, mejor conocido como Toto, nos platica qué representa vivir como persona con una enfermedad rara en...

Un hymne à la vie !

20 Feb 2020 to 5 Apr 2020 Paris, France

Un tè con te per le malattie rare

2 Mar 2024 30832 Canazei (TN), Italy

ore 15.00 “Un tè con te per le malattie rare” Intervengono: Doris Fosco, assessora alle politiche sociali del Comune di...

Un tour de ville pour les Maladies Rares

27 Feb 2022 Saint-Pierre, Saint Pierre and Miquelon

Une marche dans le centre ville pour rompre l’isolement, sensibiliser aux maladies rares et permettre les échanges au sein de...

In occasione della Giornata mondiale delle Malattie Rare 2023, la Conferenza Territoriale Socio Sanitaria Metropolitana in accordo con il Comune...

A talk by Prof Zulf Mughal pediatric endocrinologist consultant in bone diseases. Hosted by the Pediatric Endocrine and Diabetes Unit...

Understanding Hairy Cell Leukemia (HCL) Webinar Series

28 Feb 2022 New York City, United States

Join us February 28th for a presentation with Dr. Tim Call from the Mayo Clinic. The Mayo Clinic is an...

The following locations/landmarks in the United Kingdom will be illuminated to mark 2021 Rare Disease Day:- Bradford City Hall, Bradford- Macmillan...

United we are Strong

26 Feb 2022 to 28 Feb 2022 Riga, Latvia

In collaboration with the Latvian Culture College, and Children’s Clinical University Hospital, Latvian Alliance for Rare Diseases is expanding RDD...

United we are Strong

26 Feb 2022 to 28 Feb 2022 Riga, Latvia

In collaboration with the Latvian Culture College and Pauls Stradins Clinical University Hospital, Latvian Alliance for Rare Diseases is expanding...

University Health Robert B. Green Campus

28 Feb 2022 San Antonio, United States

Illumination of the University Health Robert B. Green Campus in honor of Rare Disease Day in the United States.

University of New Mexico Rare Disease Day Meet and Greet

29 Feb 2024 Albuquerque, United States

The RDD meet and greet will be held at The University of New Mexico, Department of Chemistry and Chemical Biology...

University of Nottingham Illumination

25 Feb 2022 to 28 Feb 2022 Nottingham , United Kingdom

University of Nottingham’s iconic Trent Building will be Illuminated to show support and raise awareness on Rare Disease Day.

The NYSCF Research Institute's Live Conversations with ExpertsUnlocking Rare Disease Treatments with Stem CellsFebruary 24, 2021 at 5:00 PM ETRegister...

UNO SCATTO RARO SOTTO L'ALBERO DI CHIARI E SIRINGOMIELIA

28 Feb 2021 to 20 Mar 2021 CATANIA, Italy

In Catania Aismac photo contest the subject of de Chiari tree in Piazza Martiri della Libertà.Fotografare l'albero di Chiari.Concorso fotografico AISMAC...

US FDA Rare Disease Day Public Meeting 2022

4 Mar 2022 Online, United States

FDA will host a virtual public meeting on March 4, 2022 to join the global observance of Rare Disease Day....

Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

UTS Morning Tea - Meet the Researchers

28 Feb 2023 Sydney, Australia

Morning Tea to meet the researchers working on Rare Diseases at UTS

V Fórum internacional de Doenças Raras

27 Feb 2021 Uberlândia, Brazil

V Fórum internacional de Doenças Raras - Uberlandia  Brasil - dia 27/02/2021.  ingressos gratuitos em https://www.sympla.com.br/v-forum-internacional-de-doencas-raras-de-uberlandia__1107076participem!!

Vaincre la Cardiomyopathie et L'Insuffisance Cardiaque

6 Dec 2021 to 18 Jun 2022 Assas, France

Je m’appelle Clémence GUALY, j’ai 26 ans, je suis atteinte d’une Cardiomyopathie Hypertrophique depuis ma naissance, j ‘ai été opérée...

The Vaughan City Hall will be illuminated in the colors pink, green, blue and purple in honor of Rare Disease...

VAUGHAN CITY HALL ILLUMINATION (VAUGHAN, ONTARIO)

29 Feb 2024 City Of Vaughan , Canada

Vaughan City Hall will be illuminated on Thurs. Feb. 29, 2024 in recognition of RARE DISEASE DAY in the official...

VAUGHAN ONTARIO CITY HALL ILLUMINATION

29 Feb 2024 Vaughan Ontario,CANADA , Canada

Illumination of the Vaughan City Hall in RARE DISEASE DAY COLORS.

Venado Tuerto se ilumina

29 Feb 2024 Venado Tuerto , Argentina

El grupo epof.vt formado por pacientes con enfermedades raras o poco frecuentes, sus familiares y profesionales, nos reunimos para visibilizar...

VERLICHTING HAVENHUIS ANTWERPEN

28 Feb 2023 ANTWERP, Belgium

LIGHT UP FOR RARE

VI FÓRUM DIA MUNDIAL DAS DOENÇAS RARAS

28 Feb 2022 Uberlandia/MG, Brazil

Participe do nosso Vl Fórum Do Dia Mundial Das Doenças Raras de Uberlândia ! O Dia Mundial da Doença Rara...

Jornada divulgativa para visibilizar las enfermedades raras y las mujeres que investigan en este campo. Acercar a la ciudadanía los...

The following locations/landmarks in Victoria will be illuminated to mark 2021 Rare Disease Day:- AAMI Park Melbourne - Wodonga Water Tower - Crown...

VIDEO POLICONDRITE AMIGOS - SOMOS NÓS

27 Feb 2021 to 28 Feb 2021 NITEROI, Brazil

Apresentaremos um vídeo com as pessoas integrantes do grupo POLICONDRITE AMIGOS - REDE BRASILEIRA PELA POLICONDRITE RECIDIVANTE, conscientizando sobre o...

VII Ed. "Rare Abilità"

29 Feb 2024 to 1 Mar 2024 Fasano, Italy

Mostra fotografica “Rare Abilità” e shooting di sensibilizzazione

Estimados amigos y compañeros:  Como coordinadores del área IBIMA-RARE nos corresponde el honor y tenemos el placer de daros la...

Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

Virtuaaliset Harvinaismessut

26 Feb 2021 to 28 Feb 2021

Rare Fair 2021 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and...

Virtual "Rare Coffee & Cake" for Rare Disease

28 Feb 2021 to 7 Mar 2021 Virtual All over the world, United Kingdom

Our Rare AHC Event:A Virtual "Rare Coffee & Cake" for International Rare Disease Day 2021 and collecting funds for Alternating Hemiplegia of...

Virtual 2022 Rare Disease Day Quiz

25 Feb 2022 to 11 Mar 2022 Quiz Link(Draft), South Korea

Do you know how many people have a rare disease worldwide? Join the annual Rare Disease Quiz for raising awareness...

To coincide with Rare Disease Day on 28th February, Andrew Roach Talent and Ingenious Fools are pleased to announce that...

Virtual event Rare Disease Day 2021

28 Feb 2021 zoom, United States

When the disease is rare, it is hard to find others in the same situation. For Rare Disease Day 2021,...

Virtual Forum on rare Diseases

28 Feb 2021 Algiers, United States

The Allliance Algérienne contre les Maladies Rares will organise an online forum on Rare Diseases. More information to come!

Virtual Parliamentary Event

24 Feb 2021 Online, United States

Virtual Parliamentary EventRare Disease Day is an opportunity for the rare community to come together to raise awareness of the...

Virtual Rare Disease Day

1 Mar 2021 Gaborone, Botswana

From 02/02/2021 until 01/03/2021 BORDIS is committed to create awareness on rare diseases by sharing information on rare diseases and...

Virtual Run for Rare

26 Feb 2021 to 28 Feb 2021

Firefly Fund is challenging you to Run for Rare starting on World Rare Disease Day, Feb. 28. Over the next month, we...

Virtual tour of the exhibition 'PER GIOCO'

28 Feb 2021 VIRTUAL, Italy

Virtual tour of the exhibition "Per Gioco". The collection of antique toys of the Capitoline Superintendence..The exhibition focuses on the...

Virtual Walk for MCADD/Rare Disease Day

28 Feb 2021 Parrsboro, Canada

February 28, 2021 is Rare Disease Day.My son, Archie, was diagnosed at birth via the newborn screening test with a...

Anlässlich des Rare Disease Day am 28. Februar, laden wir herzlich zur virtuellen Lesung mit Johanna Klug ein. „Mehr vom...

Virtuelle Patiententage: Seltene Erkrankungen bei Kindern, Jugendlichen und Erwachsenen

24 Feb 2024 to 25 Feb 2024 https://selpers.com/live/patiententag-seltene-erkrankungen-2024/, Austria

Bei den virtuellen Patiententagen am 24. & 25. Februar 2024 (jeweils ab 10 Uhr) werden von Expert:innen aus Österreich und...

Sehr geehrte Damen und Herren, sehr geehrte Selbsthilfeaktive,                sehr geehrte Interessierte,   gerne möchte ich Sie heute nochmals auf...

El próximo domingo 28 de febrero, pacientes, familias y asociaciones que conformamos la Red EPOF Santa Fe estaremos visibilizando enfermedades...

Visibilizando a las EERR

28 Feb 2022 Ciudad de México, Mexico

Iluminación del edificio “Lázaro Cárdenas”, edificio principal de las oficinas centrales a nivel nacional del Partido Acción Nacional

Vita In Te Ci Credo

2 Mar 2024 Budrio (Bologna), Italy

On the occasion of World Rare Disease Day, PKS Italia APS, the Italian Association for Pallister-Killian Syndrome, and the Fondazione...

Vivir Con Marfan

7 Feb 2021 San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Santiago de Chile, Buenos Aires, United States

#VivirConMarfan​ La experiencia de pacientes con síndrome de Marfan y sus cuidadores.Ponentes:Giuliana Pachano. Ecuatoriana, mamá de Victoria de 9 años,...

Vivre avec une maladie rare au temps du COVID19

26 Feb 2021 webinars, United States

International Rare Disease Day is an annual celebration' day held each year on the last day of February. This year in Tunisia...

Voci rare

29 Feb 2024 AROSIO (CO), Italy

Un viaggio nella vita delle persone affette da patologia rara attraverso il racconto dei protagonisti.

Waiting Room

28 Feb 2022 to 2 Mar 2022 Brussels, Belgium

Popup Waiting Room RaDiOrg opens a pop-up waiting room in the heart of Brussels On Rare Diseases Day 2022 –...

Walk 1000 Miles for APS Type 1

13 Feb 2023 to 28 Feb 2023

This is a virtual walk to raise awareness and fundraise for APS Type 1 research and education in association with...

Walk around Rare Disease - Ferrara

28 Feb 2022 Ferrara, Italy

Municipality of Ferrara, in cooperation with Fondazione del Teatro Comunale di Ferrara, has organized a walk around Rare Disease from...

Walk for Rare

2 Mar 2024 Cascais, Portugal

WALK FOR RARE is a solidarity walk to raise awareness about rare diseases in Portugal. The main theme of this...

WALK FOR RARE

26 Feb 2022 Cascais, Portugal

WALK FOR RARE é uma caminhada solidária de consciencialização sobre as doenças raras em Portugal. Junte-se a nós em Cascais e...

Walk for Rare | Virtual

25 Feb 2021 to 28 Feb 2021

WALK FOR RARE is a virtual walk to raise awareness about rare diseases in Portugal. Join us and show how rare...

Walk for Rare 2022

25 Feb 2022 to 28 Feb 2022 Cascais + "virtual", Portugal

WALK FOR RARE 2022 is the 3rd edition of an amazing walk to raise awareness about rare diseases in Portugal....

Walk for Rare Portugal

25 Feb 2023 Cascais, Portugal

WALK FOR RARE aims to raise awareness about rare diseases in Portugal. Join us and show how rare you are!...

Warren City Hall Lights Up

28 Feb 2022 to 1 Mar 2022 Warren, United States

Warren City Hall Lights Up In Blue, Green and Pink

We are all Unique: A Frank Conversation about Rare Diseases

28 Feb 2023 New York, NY, United States

Join us on the iconic rooftop of Cure for Rare Disease Day when we launch CureX’s inaugural event series, where...

We Are All Unique: A Frank Discussion about Rare Diseases

28 Feb 2023 New York, NY, United States

Join us for a special Cure experience to discuss the current state of affairs for the 30 million Americans afflicted...

We Are Pituitary Virtual Conference

1 Mar 2021 to 6 Mar 2021

We are excited to announce that we will be hosting our first ever Virtual Conference, running from 1st - 6th March...

we are strengthening rare disease voices

28 Feb 2022 Athens and Thessaloniki, Greece

“KRIKOS ZOIS” Greek Society for Patients and Friends of Patients with Inherited Metabolic Diseases together with “95’Rare Alliance Greece” has...

We have a Voice - are you listening? Conference

29 Feb 2024 Reykjavik, Iceland

Forum on the status of rare diseases and the experience of patients and their families. Presentation of the draft national...

We share about this day in social networks!

1 Feb 2021 to 28 Feb 2021 Москва, Санкт-Петербург, Воронеж, Russian Federation

Родительский проект по оказанию помощи пациентам с миодистрофией Дюшенна/Беккера мы поддерживаем #RareDiseaseDay наше мероприятие «мы делимся об этом дне в...

We shine for rare diseases

29 Feb 2024 Szczecin / Bytów / Borzytuchom, Poland

Ilumination

We support Rare Disease Day

28 Feb 2022 Riyadh, Saudi Arabia

فعالية لدعم أسر الأطفال المصابين بالأمراض النادرة في مستشفى الاطفال بمدينة الملك سعود الطبية. حيث تهدف هذه الفعالية على تشجيع...

Wear Purple for our Rare Friends!

28 Feb 2022 Mooresville, United States

The students and staff of Rocky River Elementary will wear purple to support our friends with rare diseases.

Wear that you care school campaign

28 Feb 2022 Nicosia, Cyprus

With the slogan “I am rare alone, together we are strong”, we invite all schools on this day to join...

Wear Your Rare with TAAF

19 Feb 2023 Zoom, United States

Part Craft Class, Part Storytelling, Wear Your Rare is a virtual meeting for those diagnosed with AVM or any rare...

Pour la 4e année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...

Pour la 3ème année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...

A l’occasion de la Journée Internationale des Maladies Rares, le groupe hospitalier AP-HP.Sorbonne Université (Hôpitaux Pitié-Salpêtrière, Saint-Antoine, Tenon, Trousseau, Rothschild,...

Pour la 2ème année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...

A l’occasion de la Journée Internationale des Maladies Rares, vous êtes conviés au premier webinaire des Rendez-Vous du GHU organisé par...

Le vendredi 26 février de 12h00 à 13h30 (CET), la nouvelle plateforme de prise en charge des maladies rares du...

Webinar

28 Feb 2022 Stockholm, Sweden

Webinar on Primary Lymphoedema by Svenska Ödemförbundet (SÖF) , membership organization of EURORDIS.

Webinar

28 Feb 2021

Webinar – INBORN ERRORS OF METABOLISM: MORE KNOWLEDGE, BETTER FUTURE Organizer: Association of Inherited Metabolic Diseases ‘Aspida Zois’ (Life Shield) Co-organizer:...

Webinar "Rare Diseases in Ukraine"

28 Feb 2023 Lviv, Ukraine

28.02 on Rare Disease Day CF Sister Dalila and PHURDA joined a global initiative to raise awareness of rare diseases...

Webinar "Rare Diseases in Ukraine"

28 Feb 2023 Lviv, Ukraine

Online webinar for family doctors & pediatricians regarding rare diseases in general including the condition in Ukraine in particular

This webinar delves into rare liver and kidney diseases, exploring their diagnosis and treatment through the lens of genetics. It...

Anlässlich des 17. Internationalen Aktionstages der Seltenen Erkrankungen (Rare Disease Day 2024) möchten wir Sie recht herzlich am 29.02.2024 von...

Webinar Dercum´s disease

28 Feb 2021 Stockholm, Sweden

The Swedish Association of Chronic Oedema, member organization of EURORDIS, has decided to organize a Webinar on Dercum´s disease with...

En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021.La Lic. Jacqueline Tovar Presidenta...

Dhiti Omics Technologies is a precision molecular diagnostics service provider offering tests using state-of-the-art genomics technologies. Our objective is to...

Webinar Rare Diseases

27 Feb 2021 Melsele, Belgium

Webinar concerning Rare DiseasesMetabolic diseases are rare diseases.Implementation of the Belgian Rare Disease Plan, updateRegister Now!

Webinar Sarkoidose Studien

29 Feb 2024 Kiel, Germany

Arzt-Patienten Seminar zu den aktuellen Zulassungsstudien für Sarkoidosemedikamente. Ärzte erklären, Patienten/Ärzte fragen Als Gäste sind anwesend Dr. Björn Frye, Freiburg;...

La nostra organizzazione di volontariato unitamente all'Associazione Consumatori e Cittadini Italiani organizza un webinar sui diritti di welfare di cui...

A l'occasion de la journée internationale des maladies rares 2021  et  dans la  continuité de l' action de sensibilisation et de mobilisation de l'opinion...

A l’occasion de la 15ème Journée internationale sur les maladies rares,l’association ESPOIR VML MAROC organise le 28/02/2022, en partenariat avec...

The Joint Organization of the Disabled and Young Disabled People invites you to a webinar on Rare Disease Day 2021....

Webinar: Always Together - Proud and Strong

28 Feb 2021 Online, United States

We would like to inform you that Farmaceutski fakultet, Novi Sad will mark the International Day of Rare Diseases in...

Webinar: Collaborating to Make Mental Health in Rare Disease Stigma-Free

28 Feb 2022 to 1 Mar 2022 Virtual, United States

Life with a rare disease can have infinite milestones, setbacks, traumas and triumphs—all likely to be interlaced with a variety...

Kom til webinar om den diagnostiske rejse På selve Sjældne-dagen holder vi et åbent webinar – det er d. 28....

Aggiornamento sull’Epidermolisi Bollosa per i pazienti e le famiglie: Novità sulla Ricerca Internazionale, i trattamenti e l’Assistenza 13.00/13.10 Introduzione e...

Join us for a Rare Disease Day WebinarFriday, February 2610 -11 am ET 3 - 4 pm GMTThe Oxford-Harrington Rare...

Webinar: Mapping Rare

1 Mar 2024 Online

To mark Rare Disease Day 2024, join us for a webinar to launch Mapping Rare: an interactive resource highlighting the...

Webinar: Rare is beautiful, let's break the stigma!

28 Feb 2021 Melbourne Australia, Australia

Australian Sickle Cell Advocacy Inc will be hosting a panel of discussion with 5 people living with rare diseases in...

Webinar: Rare Showcase 2022

2 Feb 2022 Harare, Zimbabwe

As part of our initiative to raise awareness about rare diseases in Zimbabwe, our organization’s director Trudy Nyakambangwe will represent...

Webinário #SomosTodosRaros

27 Feb 2021 Fortaleza com transmissão ao vivo pelo canal da associação no YouTube, Brazil

O webinário #SomosTodosRaros busca levar identificação com a causa para diferentes públicos, pois somos todos ÚNICOS em nossa individualidade e podemos...

Webinário Doenças Raras no Brasil Avanços e Desafios - Domingo 28/02 às 10h pelo canal do YouTube da FEDRANN (https://www.youtube.com/channel/UCAGDOBFEBSTX-NmEmo9RWyA)Abertura...

We have produced a 5-part web series about couples and rare diseases. Episode 3 (in 2 parts already published) and...

Coping Through Covid and BeyondA health and wellbeing presentation, delivered by Dr Christianna Kyriacou, Counselling Psychologist, Royal Brompton Hospital. A...

WELTWEITER AKTIONSTAG

28 Feb 2023 Bochum, Germany

Pink, Blau, Grün und Lila sind die Farben des Rare Disease Day. Wir beteiligen uns am 28.02.2023 an der Aktion...

Wenn das Blut verrückt spielt

29 Feb 2024 Duesseldorf, Germany

Symposium des Zentrum für Seltene Erkrankungen am Universitätsklinikum Düsseldorf (ZSED) anlässlich des Rare Disease Day 2024

Werribee Mansion Illumination

28 Feb 2021 Werribee, Melbourne, Australia

For the first time, the iconic Werribee Mansion will be illuminated in the colours of Rare Disease Day from 7.30pm...

West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...

The following locations/landmarks in Perth will be illuminated to mark 2021 Rare Disease Day:- Optus Stadium  - Bell Tower Perth - Fremantle...

What does RARE mean to me? - HWTH Health Awareness Campaign

Who AMMA is and rare disease representss

21 Feb 2021 to 28 Feb 2021

Due to the pandemic, public authorities and other known persons has send a litle video explaining what is a rare...

Wisconsin Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...

With Lelek we share about rare

29 Feb 2024 Bartoszyce , Poland

17.00 rare disease day theme posters exhibition will takę place at foundation Office. Pieces of art comes from families,schools ,scouts...

A multistakeholder workshop that will be focused on various subjects such as transitioning from paediatric to adult care, European networking...

Interactive workshop for postgraduate trainees of pediatrics on inborn errors of metabolism, highlighting rare disease day and increasing awareness of...

World Endocrine, Diabetes & Cardiovascular Conference 2024 (EDCC24)

9 Mar 2024 to 10 Mar 2024 Bangkok, Thailand

Episirus Scientifica regards each one of the individuals to go to the World Endocrine, Diabetes & Cardiovascular Conference 2024 (EDCC24)...

World of Rare Disease Pop Quiz

9 Feb 2021 to 11 Feb 2021 Northern Ireland, United Kingdom

World of Rare Disease Pop QuizFeatured on the NI Science Festival Schools & Educators ProgrammeTuesday 9 February - Thursday 11...

WORLDSymposium 2023

21 Feb 2023 to 26 Feb 2023 Orlando, United States

On Tuesday, February 21, 2023 at 7:25 PM, concluding the Be the Catalyst Group Photo opportunities everyone will join in...

WSS ROMANIA

28 Feb 2022 Brasov, Romania

Lighting up our home in rare diseases awareness colors.

La jornada será retransmitida vía online bajo el lema “Somos muchos, somos fuertes y estamos orgullosos”. En ella, especialistas presentarán...

Diverses entitats representants d’aquestes malalties, juntament amb l’Ajuntament de sant Feliu de Llobregat volem participar dels actes i activitats organitzats...

The 11th “Investigar es avanzar” Conference, organized by CIBERER on February 25, will deal with the potential, risks and benefits...

XII Encontro Paraense de Doenças Raras

8 Mar 2024 Belém , Brazil

O ENCONTRO PARAENSE DE DOENÇAS RARAS (EPADORA) ACONTECE NA CIDADE DE BELÉM DO PARÁ DESDE 2013. ESTA VERSÃO BUSCA FAZER...

La XII Jornada CIBERER “Investigar es avanzar” tendrá lugar el 28 de febrero de 16 a 19 horas en el...

La XIII Jornada CIBERER “Investigar es avanzar” tendrá lugar el 29 de febrero de 15:30 a 19:30 horas en el...

XXIII National Cystic Fibrosis Week in Poland

26 Feb 2024 to 3 Mar 2024 all country, Poland

From February 26 to March 3, 2024, the MATIO Foundation is organizing for the twenty-third time a social campaign called...

Yoga solidario

3 Mar 2024 Arenys de Munt, Spain

Ioga solidario para financiar la investigación de la enfermedad rara IRF2BPL

This week the world shares in raising the awareness on Rare diseases. Being aware means early diagnosis and effective treatment.#Rareismany#Rareisproud#Rareisstrongالاسبوع...

Open classes – seminar :”You are not alone. Together we will be strong!”

Yours or mine - ONE WORLD FOR ALL

14 Jul 2022 to 18 Jul 2022 Prilep, North Macedonia

The event is of an educational nature about the existence of rare diseases, education as well as civil assistance regarding...

Zebra 5K

1 Feb 2021 to 28 Feb 2021 New Hope, United States

Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's...

Zebra 5K

1 Feb 2022 to 28 Feb 2022 New Hope, United States

Join New Hope Run Club and Avery’s Hope for the 4th annual Zebra 5K celebrating and honoring the rare disease...

Zeldzame ziektendag

27 Feb 2021 Vlaanderen, Belgium

Dit jaar hebben we aandacht voor erfelijke (zeldzame hematologische) kankers. Een geneticus vertelt wat het is en een clinicus vertelt...

Zeldzameziektendag 2024 National Event

29 Feb 2024 Baarn, Netherlands

The Dutch Genetic Alliance (VSOP) organizes a national event/ conference, titled ‘Patient and Innovation’. An independent jury announces the nominees...

Ziua bolilor rare!

28 Feb 2023 Bucharest , Romania

28 februarie este ziua constientizării bolilor rare, iar Asociația Rebeca Faith-Hope-Love marchează acestă zi printr-un eveniment, ca în fiecare an!...

It will be our second chat, so we will be get to know each other, I hope a specialist will...

Réunion zoom avec un docteur sur le thème ” le conseil génétique dans les maladies mitochondriales

Цель мероприятия: Формирование комплексных предложений по развитию медицинской помощи больным орфанными заболеваниями и выработка решений с участием пациентского сообщества, профильных...

we are happy to announce that on February 27 and 28 we will hold the so-expected Bilateral Seminar with the...

Цветные ладошки (Сolored palms)

26 Feb 2024 Челябинск, Russian Federation

Цветные ладошки 🖐🏾💜✨ 💥мастер-класс 💥 Уже много лет цветные ладошки являются символом Дня редких заболеваний 🧬🌏 Люди раскрашивают краской ладони,...

קבוצה מדהימה של מיליוני משפחות בעולם, משפחות כמו שלך או שלי, אל תחמיצו את זה, אנחנו נחכה לכם. תסמונת קורנליה...

الرياض

28 Feb 2023 الرياض, Saudi Arabia

لقاء حواري الأمراض الوراثيه طرق التشخيص والوقايه مع د. عزيزه مفرح مشيبه

فعاليات توعوية واركان تفاعليه للاطفال والكبار لزيادة التوعيه بالأمراض النادرة

فعالية تضم استشارات مجانيه لعدة تخصصات ورشة نفسية للأمهات فعاليات ترفيهيه ومفاجأآت للاطفال

This year the awareness will focus on the value of helping those rare suffering kids and their families to reach...

亮起色彩,照耀罕见

28 Feb 2023 All over China, China

2.28国际罕见病日 为了促进了社会公众对罕见病的认识,上海市慈善基金会-蓝鲸罕见病专项基金,携手国际罕见病组织Rare Disease Day、EURODIS等,发起了“亮起色彩,照耀罕见”的主题活动。 以下海报为参与支持此次活动的专家、机构组织、患者及社会各界爱心人士等。(专家排名不分先后,以姓名首字母为序) 在此特别感谢楷泽广告传媒(上海)有限公司的公益支持,在杭州湖滨银泰IN77电子广告屏亮灯。   6.1国际儿童节 6月1日国际儿童节到来之际,我们延续了“Share your colours”这一主题,把缤纷的色彩继续带到罕见病儿童的世界,为他们可能因罕见病而黯淡的童年注入一道明媚的光彩,让罕见病孩子的童年由此而绽放色彩!为此我们特举办“关爱‘罕见’儿童,绽放生命色彩”的主题活动,诚挚邀请各位罕见病儿童和家长朋友们,以及社会各界的参与,用画笔为他们“罕见”的人生,涂上缤纷的色彩。我们希望每一张罕见的脸庞,都能因为我们的爱与行动,绽放纯真的笑颜。

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