Thank you for sharing your story and needs with us. You are not alone, but we are unfortunately unable to give financial support for individual requests.
We advise you to get in touch with a patient organisation in your country who might be able to assist you or bring you additional information. Here you can find a list of patient organisations. In case there isn’t an organisation in your country, there are also disease-specific organisations which might help you to connect with other families or give tips about managing the disease.
In case you need medical advice we strongly recommend you to get in touch with a doctor. Again, patient organisations from your disease group might also be able to provide you with more accurate guidance for medical information or assistance.