Our friends

Check out how these 1,400 amazing organisations are raising awareness!

“SOURCE” Foundation

Country Organiser
Marina Parazyan

#BastaPoco #RareDisease

Laguardia Michela

#gyncsm Community

Dee Sparacio and Christina Lizaso

22q Family Foundation

Lindsey Garcia

2nd junior high school of Ioannina for Intercultural Education

Public Authorities

95, Rare Alliance Greece

National Alliance

A.I.D. – Kartagener Onlus

Country Organiser

A.S.C.O – Tecnológico de Monterrey

Health Professionals
Yoel Adbel Ramírez Flores

AANS UNAM Medical Student Chapter

Health Professionals
Samantha Muñiz-Castro

Abeer Medical Group

Country Organiser

Abeona Therapeutics

Private companies
Jodie Gillon


Country Organiser
Dr. Aloys Niyungeko

ACHSE e. V. Allianz Chronischer Seltener Erkrankungen

National Alliance
Bianca Paslak-Leptien

ACMT-Rete per la malattia di Charcot-Marie-Tooth

Filippo Genovese

ACMT-Rete per la Malattia di Charcot-Marie-Tooth OdV

Other Patient Groups
Filippo Genovese

Acorn Analytical Services (UK) Ltd

Private companies
Catherine Norris
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