Our friends

Check out how these 400 amazing organisations are raising awareness!

AISAC Onlus

Country Organiser

AISMAC

None

Al Jalila Children’s Speciality Hospital

Health Professionals
Sattar Alshryda

Al-Jawhara Centre/ Arabian Gulf University

None
Dr. Cristina Skrypnyk

Alabama Rare

Country Organiser

ALAN – Maladies Rares Luxembourg

National Alliance
Shirley Feider

Alanya Özel Eğitim Anaokulu

Country Organiser

ALCIMED

Private companies
Quentin PREVOT

Alex TLC

None
Suzanne Gosney

Alexion Pharmaceuticals

Private companies
Walter Atzori

Alexion Spain & Portugal

Private companies
Nuria Saval

Alfie Milne Lymphangiomatosis Trust

Other Patient Groups
Tracy A Milne

Alianza Mexicana de Familias con Von Hippel Lindau, A.C.

Country Organiser
Edith Godina y Alejandra Cadena

Alira Health

Health Professionals
Trish Parneros

Alliance Algérienne contre les Maladies Rares

Country Organiser
Dr Bouras Abdelkader

Alliance for Cryoglobulinemia

None
Marianne Venitti, Eileen Propp
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