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Cookie Policy

This Cookie Policy was last updated on 20 October 2021 and applies to citizens and legal permanent residents of the European Economic Area and Switzerland

1. Introduction

Our website, https://www.rarediseaseday.org (hereinafter: “the website”) uses cookies and other related technologies (for convenience all technologies are referred to as “cookies”). Cookies are also placed by third parties we have engaged. In the document below we inform you about the use of cookies on our website.

2. What are cookies?

A cookie is a small simple file that is sent along with pages of this website and stored by your browser on the hard drive of your computer or another device. The information stored therein may be returned to our servers or to the servers of the relevant third parties during a subsequent visit.

3. What are scripts?

A script is a piece of program code that is used to make our website function properly and interactively. This code is executed on our server or on your device.

4. What is a web beacon?

A web beacon (or a pixel tag) is a small, invisible piece of text or image on a website that is used to monitor traffic on a website. In order to do this, various data about you is stored using web beacons.

5. Cookies

5.1 Technical or functional cookies

Some cookies ensure that certain parts of the website work properly and that your user preferences remain known. By placing functional cookies, we make it easier for you to visit our website. This way, you do not need to repeatedly enter the same information when visiting our website and, for example, the items remain in your shopping cart until you have paid. We may place these cookies without your consent.

5.2 Statistics cookies

We use statistics cookies to optimise the website experience for our users. With these statistics cookies we get insights in the usage of our website. We ask your permission to place statistics cookies.

5.3 Marketing/Tracking cookies

Marketing/Tracking cookies are cookies or any other form of local storage, used to create user profiles to display advertising or to track the user on this website or across several websites for similar marketing purposes.

5.4 Social media

On our website, we have included content from Twitter to promote web pages (e.g. “like”, “pin”) or share (e.g. “tweet”) on social networks like Twitter. This content is embedded with code derived from Twitter and places cookies. This content might store and process certain information for personalised advertising.

Please read the privacy statement of these social networks (which can change regularly) to read what they do with your (personal) data which they process using these cookies. The data that is retrieved is anonymised as much as possible. Twitter is located in the United States.

6. Placed cookies

Wistia

Statistics

Usage

We use Wistia for video display. Read more

Sharing data

For more information, please read the Wistia Privacy Statement.

Statistics

Name
wistia-video-progress-*
Expiration
persistent
Function
Store if the user has seen embedded content

Purpose pending investigation

Name
wistia
Expiration
Function

Google Analytics

Statistics

Usage

We use Google Analytics for website statistics. Read more

Sharing data

For more information, please read the Google Analytics Privacy Statement.

Statistics

Name
_ga
Expiration
2 years
Function
Store and count pageviews
Name
_gid
Expiration
1 day
Function
Store and count pageviews
Name
_gat
Expiration
1 minute
Function
Read and filter requests from bots

Hotjar

Statistics

Usage

We use Hotjar for heat maps and screen recordings. Read more

Sharing data

For more information, please read the Hotjar Privacy Statement.

Statistics

Name
_hjid
Expiration
1 year
Function
Store a unique user ID
Name
_hjAbsoluteSessionInProgress
Expiration
session
Function
Store unique visits

Google Maps

Marketing/Tracking

Usage

We use Google Maps for maps display. Read more

Sharing data

For more information, please read the Google Maps Privacy Statement.

Marketing/Tracking

Name
Google Maps API
Expiration
expires immediately
Function
Read user IP address

YouTube

Marketing/Tracking, Functional

Usage

We use YouTube for video display. Read more

Sharing data

For more information, please read the YouTube Privacy Statement.

Marketing/Tracking

Name
GPS
Expiration
session
Function
Store location data
Name
YSC
Expiration
session
Function
Store and track interaction
Name
PREF
Expiration
8 months
Function
Store user preferences

Functional

Name
VISITOR_INFO1_LIVE
Expiration
6 months
Function
Provide bandwidth estimations

Twitter

Functional, Marketing/Tracking

Usage

We use Twitter for display of recent social posts and/or social share buttons. Read more

Sharing data

For more information, please read the Twitter Privacy Statement.

Functional

Name
local_storage_support_test
Expiration
persistent
Function
Provide load balancing functionality

Marketing/Tracking

Name
metrics_token
Expiration
persistent
Function
Store if the user has seen embedded content

Miscellaneous

Functional

Usage

Sharing data

Sharing of data is pending investigation

Purpose pending investigation

Name
multifile-upload_count_files
Expiration
Function
Name
undefined
Expiration
Function
Name
twentytwentyoneDarkMode
Expiration
Function
Name
fbv_tree
Expiration
Function
Name
undefined_count_files
Expiration
Function
Name
wistia
Expiration
Function
Name
sprdConsent
Expiration
Function
Name
visited
Expiration
Function
Name
cmplz_choice
Expiration
365 days
Function
Name
cmplz_policy_id
Expiration
365 days
Function
Name
cmplz_functional
Expiration
365 days
Function
Name
cmplz_statistics-anonymous
Expiration
365 days
Function
Name
cmplz_preferences
Expiration
365 days
Function
Name
cmplz_marketing
Expiration
365 days
Function
Name
cmplz_event_0
Expiration
365 days
Function
Name
cmplz_consent_status
Expiration
365 days
Function
Name
wfwaf-authcookie-8a54db218ff3e819a3c66b489e26c8b6
Expiration
Function
Name
iplocation
Expiration
Function
Name
countryFromIp
Expiration
Function
Name
hasConsent
Expiration
Function
Name
_at.hist.1012
Expiration
Function
Name
cmplz_toggle_data_id_1
Expiration
365 days
Function
Name
_at.hist.1006
Expiration
Function
Name
_at.hist.1028
Expiration
Function
Name
cmplzDashboardDefaultsSet
Expiration
365 days
Function
Name
_at.hist.0617
Expiration
Function
Name
cmplz_toggle_data_id_0
Expiration
365 days
Function
Name
_at.hist.1004
Expiration
Function
Name
at-lojson-cache-ra-56616b0bcd2c3e41
Expiration
Function
Name
_at.hist.0721
Expiration
Function
Name
_at.hist.1014
Expiration
Function
Name
country
Expiration
Function
Name
_at.hist.1007
Expiration
Function
Name
_at.cww
Expiration
Function
Name
_at.hist.0621
Expiration
Function
Name
_at.hist.0510
Expiration
Function
Name
cmplz_toggle_data_id_4
Expiration
365 days
Function
Name
_at.hist.0611
Expiration
Function
Name
at-rand
Expiration
Function
Name
_at.hist.1020
Expiration
Function
Name
_at.hist.0927
Expiration
Function
Name
cmplz_toggle_data_id_2
Expiration
365 days
Function
Name
_at.hist.0930
Expiration
Function
Name
_at.hist.0607
Expiration
Function
Name
cmplz_layout
Expiration
365 days
Function
Name
_at.hist.0616
Expiration
Function
Name
_at.hist.0614
Expiration
Function
Name
_at.hist.0324
Expiration
Function
Name
_at.hist.0331
Expiration
Function
Name
cmplzFormValues
Expiration
365 days
Function
Name
_at.hist.0618
Expiration
Function
Name
_at.hist.0402
Expiration
Function
Name
_at.hist.0604
Expiration
Function
Name
raygun4js-userid
Expiration
Function
Name
cmplz_toggle_data_id_3
Expiration
365 days
Function
Name
__atssc
Expiration
Function
Name
__atuvc
Expiration
Function
Name
_hjSessionUser_1191664
Expiration
Function
Name
wf_loginalerted_54093adcbae5648e8655336e89c05dcc3cce5533a51e8c4fe32a237aa0edc658
Expiration
Function
Name
wfwaf-authcookie-659a0307a43c8e551788ebf3977bb8f3
Expiration
Function
Name
_gat_gtag_UA_4015132_3
Expiration
Function
Name
PHPSESSID
Expiration
Function
Name
wf_loginalerted_8ca831068fef3d135471f88c73d41afd181c46b91e2661ef868cefbc0607d2cb
Expiration
Function
Name
_at.hist.1011
Expiration
Function
Name
wf_loginalerted_305cf4fec128e63e7189495df6c4b68892f3083dd918edc981cf2e0ccee365a0
Expiration
Function
Name
wf301_404_stats
Expiration
Function
Name
wf301_redirect_chart
Expiration
Function
Name
persist:hs-beacon-message-8a9edebc-337b-4463-9db0-10754b1550eb
Expiration
Function
Name
wf301_redirect_stats
Expiration
Function
Name
wf301_404_chart
Expiration
Function
Name
persist:hs-beacon-8a9edebc-337b-4463-9db0-10754b1550eb
Expiration
Function
Name
_at.hist.0401
Expiration
Function
Name
_at.hist.0924
Expiration
Function
Name
_at.hist.0102
Expiration
Function
Name
_at.hist.1212
Expiration
Function
Name
_at.hist.1024
Expiration
Function
Name
_at.hist.0603
Expiration
Function
Name
_at.hist.0122
Expiration
Function
Name
_at.hist.1019
Expiration
Function
Name
_at.hist.0414
Expiration
Function
Name
cartStatus
Expiration
Function
Name
_at.hist.0801
Expiration
Function
Name
_at.hist.0319
Expiration
Function
Name
_at.hist.0123
Expiration
Function
Name
_at.hist.1021
Expiration
Function
Name
_at.hist.1119
Expiration
Function
Name
_at.hist.0220
Expiration
Function
Name
_at.hist.0129
Expiration
Function
Name
_at.hist.0306
Expiration
Function
Name
wf301_tabs
Expiration
Function
Name
_at.hist.1013
Expiration
Function
Name
_at.hist.1008
Expiration
Function
Name
_at.hist.1228
Expiration
Function
Name
_at.hist.0229
Expiration
Function
Name
_at.hist.0110
Expiration
Function
Name
_at.hist.0921
Expiration
Function
Name
_at.hist.0227
Expiration
Function
Name
_at.hist.1116
Expiration
Function
Name
_at.hist.1005
Expiration
Function
Name
_at.hist.1121
Expiration
Function
Name
_at.hist.1030
Expiration
Function
Name
_hjIncludedInPageviewSample
Expiration
Function
Name
wf_loginalerted_c247a7eafd5c92259ec92e2f2f0aa133dbe723c281c31f2d355d3a00bf4e0497
Expiration
Function
Name
cmplz_banner-status
Expiration
365 days
Function
Name
cmplz_statistics
Expiration
365 days
Function
Name
cmplz_consented_services
Expiration
365 days
Function
Name
wf_loginalerted_363630d34f5ebc0adc4d6779acc2ca733ef372177face1c36829dac4522d9332
Expiration
Function
Name
wp-autosave-1
Expiration
Function
Name
_ga_YJBHZH0XYN
Expiration
Function
Name
wf_loginalerted_5cd9562761dd2f41cef311de01d47750f7c257f4413c4b76a326f6e70953c5d3
Expiration
Function
Name
_ga_6HST5G6CXE
Expiration
Function
Name
wp_lang
Expiration
Function
Name
wf_loginalerted_dab9c0a9776456f1106f83b95b7e3a001dc0358423f642b7c478587daa9bfcea
Expiration
Function
Name
wp-autosave-block-editor-post-12
Expiration
Function
Name
wf_loginalerted_15d087290eb9acc6bf878fad22050857e1810a43e0f1c723eca1953a512147fe
Expiration
Function
Name
wp-autosave-block-editor-post-54683
Expiration
Function
Name
intercom.intercom-state-r70azrgx
Expiration
Function
Name
intercom-id-r70azrgx
Expiration
Function
Name
WP_PREFERENCES_USER_6
Expiration
Function
Name
fbv_close_buy_pro_dialog
Expiration
Function
Name
wf_loginalerted_434e5a7e96df05ddd74ca503676a05e955861e5f724069d843a287443c15c5f4
Expiration
Function
Name
wp-autosave-block-editor-post-56533
Expiration
Function
Name
WP_PREFERENCES_USER_4853
Expiration
Function

Functional

Name
bid_1_password_protected_auth
Expiration
session
Function

7. Consent

When you visit our website for the first time, we will show you a pop-up with an explanation about cookies. As soon as you click on “Save preferences”, you consent to us using the categories of cookies and plug-ins you selected in the pop-up, as described in this Cookie Policy. You can disable the use of cookies via your browser, but please note that our website may no longer work properly.

7.1 Manage your consent settings

You have loaded the Cookie Policy without javascript support. On AMP, you can use the manage consent button on the bottom of the page.

8. Enabling/disabling and deleting cookies

You can use your internet browser to automatically or manually delete cookies. You can also specify that certain cookies may not be placed. Another option is to change the settings of your internet browser so that you receive a message each time a cookie is placed. For more information about these options, please refer to the instructions in the Help section of your browser.

Please note that our website may not work properly if all cookies are disabled. If you do delete the cookies in your browser, they will be placed again after your consent when you visit our websites again.

9. Your rights with respect to personal data

You have the following rights with respect to your personal data:

  • You have the right to know why your personal data is needed, what will happen to it, and how long it will be retained for.
  • Right of access: You have the right to access your personal data that is known to us.
  • Right to rectification: you have the right to supplement, correct, have deleted or blocked your personal data whenever you wish.
  • If you give us your consent to process your data, you have the right to revoke that consent and to have your personal data deleted.
  • Right to transfer your data: you have the right to request all your personal data from the controller and transfer it in its entirety to another controller.
  • Right to object: you may object to the processing of your data. We comply with this, unless there are justified grounds for processing.

To exercise these rights, please contact us. Please refer to the contact details at the bottom of this Cookie Policy. If you have a complaint about how we handle your data, we would like to hear from you, but you also have the right to submit a complaint to the supervisory authority (the Data Protection Authority).

10. Contact details

For questions and/or comments about our Cookie Policy and this statement, please contact us by using the following contact details:

EURORDIS
Plateforme Maladies Rares
96, rue Didot
75014 Paris
France

France
Website: https://www.rarediseaseday.org
Email: gro.sidrorue@sidrorue

This Cookie Policy was synchronised with cookiedatabase.org on 20 October 2021

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