The story of Yeni

Hi, my name is Yeni, from Indonesia. I have rare disease called Friedreich’s Ataxia. I’m diagnosed with Friedreich’s Ataxia (FA) when I was 19 years old.

This is why I am unable to walk normally, participate in many activities, and may just not be generally as quick as I once was or would like to be. It is why at first glance, many view me as being look like a lazy people. Take it from me, it’s a pretty crappy feeling, and I don’t wish this life on anyone. Having Friedreich’s Ataxia sometimes puting me in difficult situations. Now I’m in wheelchair.

It is however, the hand I was dealt, and I am doing the best I can with what I have to work with. As like many neuro disorders, there is no effective treatment. All I ask is for some understanding. As my physical life becomes more hampered, my mind is sharp, and I will always be me.

I love writing and I want to be a writer. I want to be a writer who can inspire others.

You can read my writing on my blog, namely

I want to say thank you for my families, especially for my mother, my friends and all people around me for listening me, supporting me, caring about me and still standing with me until this day.

Keep positive and keep fighting until the end!