By Kearyn, Neurofibromatosis type 1-Noonan syndrome, United Kingdom, February 23, 2021
i am kearyn "kicky" i am 8 years old.
i have NF TYPE 1 with noonan syndrome but i also have congential glaucoma in both eyes , renal artery steniosis and moyamoya disease making me extra rare. i am registered blind . i am a very happy boy who loves sonic the hedgehog and thomas the tank engine