My Rare Hero

By Mallory, Duchenne muscular dystrophy, United States, February 23, 2021

Our Rare Hero

This is Grant, he is 11 years old and he is our Rare Hero. Diagnosed with DMD at age 4 he has the most amazing attitude and smile in spite of this awful muscle wasting disease. Grant teaches us all to live life to the fullest and not take a day for granted. Grant plays baseball, swims, does physical therapy, builds Legos like crazy and loves to hunt and fish. He always has a smile and has the biggest cheering section in ALL he does. We pray everyday for a cure for him and the many others. Grant is truly a Rare Hero!

Share this

Share your photos, videos and your experiences!

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.
X

Share your story




(To find the english name and more information about your disease, click here). Start typing the English name of your disease. Please choose from the suggestions that appear. If your disease is undiagnosed please write ‘undiagnosed’, or if you would like to list multiple diseases, please type in a list separated by commas.