My daughter is sick from Crigler Najjar syndrome

By KATERINA, Crigler-Najjar syndrome, Greece, December 17, 2020

My 15 months daugher is sick from Crigler Najjar syndrome and she does 13 hours phototherapy at home.When she was 1 month we came to the hospital where they saw thar her jaundice was 34 something that created her brain damage and she has mobility problems.After special tests we knew that she has this syndrome.In order to get well she must have a liver transplant that will be when she will have the best weght for this surgery.

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