TARLOV Cyst

By Pam, Tarlov cyst, United States, November 28, 2020

10 years since diagnosed and not one Doctor in Illinois is educated or even heard of TARLOV Cyst disease, hence my merry go round continues as I try to advocate for myself in management of this disease.

Share this

Share your photos, videos and your experiences!

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.
X

Share your story




(To find the english name and more information about your disease, click here). Start typing the English name of your disease. Please choose from the suggestions that appear. If your disease is undiagnosed please write ‘undiagnosed’, or if you would like to list multiple diseases, please type in a list separated by commas.