Ainsley's Disease

By Mary, Peroxisomal disease (zellweger syndrome), United States, March 2, 2020

Rare Disease Day

I am the great, great aunt of a beautiful girl named Ainsley, who has Zellweger syndrome, a peroxisomal disease. I hate that there is no cure for her disease. She has so many health issues and she keeps on smiling throughout. Of course, she has two wonderful parents who do everything for her. It's not easy for any of them.

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