If only pain were as easy to measure as,

By Francesca Capochiani, Connectivity and LES, Lupus, Italy, February 26, 2020

Francesca, 2019.

My is Francesca, from Italy, and I was a brilliant University student since 2013.

I have rare immune disease called Connectivity / LES that keeps me bedridden most everyday for long time. You known, immune system is very important in our life because it protects us from infection through various lines of defence. I will not write here he symptoms of my illness: each person has a different pharmaceutical plan, a different pathway who covers so many areas. From muscle pain, to headache and gastrointestinal problem.

I’m not so strong enough to share all the difficulties, sufferences, and relince my life in recent years. But I can told you that: in my case, the diagnosis was a happy moment just for the first period. Than it has been my longest difficult path, full of risks and dangers.

Disease taught me to get into the mindset of what it takes to become. Disease means positive attitute, sacrifice and means trying to find a smile into the darkness. If you are living my nightmare, you know how much aggressive and unpredictable is it.

So, I’m just here to witness the strength of everyone who has a chronic disease.

Please, don’t believe who told you: “You’re not a superhero”. “You can’t do it”. “It’s too late”.  Don’t forget to play sport, as you can do it. Do activities for your health. Surround yourself with people who value you and help you to reborn. Over and over again.

In my opinion, I decided supporting this Rare Disease Day's campaign because it’s so important to share the knowledge and support science. So, that’s why I would like to share and thanks all the people who work at Lupus Clinic in Pisa every day (sharing is caring: www.lupusclinic.it and, across the world, don’t forget to Running for Lupus www.runningforlupus.com) and all the others Italian Hospital and health care facilities, that have treated me over the years. Probably I wouldn't be here writing without their help.

Bless you and kind regards.

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