mps 1

By jake, Mucopolysaccharidosis type 1, United Kingdom, February 2, 2020

I was diagnosed at a really late age when I was twelve and by then my hands had restricted movement. I have got restricted movement in nearly all parts of my body and when I was diagnosed it was a big shock because I was norml and then I had to have an operation on my hands and I had to have a vascular port so I could have my treatment once a week. I missed a lot of school because I had doctors appoinments and I have always got check ups to see the OT or the physiotherapist but it all helps however I am not allowed to do a lot of sport and I am restricted in what I can do but I can feel it is not as bad as when I started off .

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