By Megan, Smith Kingsmore Syndrome, United States, February 1, 2020
Because of this appointment we created a facebook group for the families of loved ones with this syndrome and I started posting on social media about Aubrey’s day to day life using a special hashtag. Our group was just my husband and myself for over a year. And then one day, we had a request. It has grown so quickly in the last 3 years. The ability to know that we are helping people find others who can help them with this syndrome is amazing.