Rare kidney syndrome with no public awareness

By Jessica, Renal nutcracker syndrome, United States, October 11, 2019

I was diagnosed with Nutcracker syndrome 2 years ago. I had multiple unexplained symptoms for years that all resulted from this rare syndrome. It wasn't until I had an appointment with a new doctor, that he then recognized all the signs. After some tests and imaging, the diagnosis was confirmed.  My left kidney vein is severely compressed, the worst my doctor has ever seen. Having this rare syndrome comes with many challenges. Finding a doctor, dealing with daily symptoms, and finding a cure. After my diagnosis, not one single person I talked to had ever heard of this syndrome. My goal was to create a nonprofit to raise awareness, so that's what I did!

Nutcracker research foundation

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