Maladie des os de verre

By Laure, Osteogenesis imperfecta, France, September 13, 2019

Bonjour je suis nee avec la maladie des os de verre. Jai passé mon enfance dans des plâtre. Pas de sport, pas de risque... On crois que sa passe a l'adolescence on l'oublie, mais en faite a 30 ans on se rend compte qu'on a des os qui sont porreux, fragile..... Mal de dos en permanence, je m'inquiète pour mon travail.... 

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