Cystic angiomatosis

By Suzanne, Cystic angiomatosis, United Kingdom, April 2, 2019

Pelvis

Hi 

Im 37 years old and my name is Suzanne. I was diagnosed with a rare condition called cystic angiomatosis 2 years ago.  I see a specialist regularly and have regular scans. My symptoms seem to be getting worse and as it’s so rare they are unsure how to treat me.

 

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