Rare syndrome day

By Jill, Christianson syndrome, Canada, March 5, 2019

My son that passed away October 2018 had what is called christianson syndrome is it rare enough that I could not find it on the list provided it is physical and mental development and lots of seizures  but do this all the health problems u would never know he had a rare syndrome  the small head and the eyes would be the only thing that would give it away and I am honored to be his mommy even though he couldn't talk and say mommy I knew he loved me and everyone around him 

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