I may have a disease but this disease does NOT have me!

By Liz, Idiopathic subglottic stenosis, United States, March 1, 2019

Making the most out of each day

I have a rare disease that suddenly changed my life. I went to bed whole but woke up a changed mother and wife.

I used to play with my kids and have all the fun. Played softball with my Lover and loved to run!

But now I have surgeries just to be able to breathe. Something most people can do with natural ease.

So many days I can’t cope and I start to cry. This is such an inconvenience and I want to know why?!

I did not ask for this and would gladly return. Except, I do not know where it came from which is a real concern.

Doctors scratch their heads but do their very best. Some days are really not so bad and others a horrible test.

My family stands brave and takes this journey with me. But I know there are times this is really hard to see.

I could be sad and oh so depressed! But my life is worth so much more and I refuse to be obsessed.

I believe one day there will be a cure for me. Until then here I sit, pouring syrup in my coffee.


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