By Hannah, Tuberous sclerosis complex, Austria, February 28, 2019
Our daughter Hannah was diagnosed with TSC when she was 2 months old. TSC causes her body to grow benign tumors in soft parts, massively in her brain. She has seizures everyday, skin signs, eye conditions and trouble with social situations. She is crying a lot and seems to be in pain, but we can't tell for sure. This is what makes our lives extra hard; the not knowing.
I am currently in the process of learning to accept that sometimes all we can do is, try to survive the day and hope for a better tomorrow.