Show your care, show your rare

By Irina, Mucopolysaccharidosis typeI., Russian Federation, February 7, 2019

Together we can everything

My marvelous son Arseniy. He is 10 years old now. Diagnosed at the age of 9 months. Began our treatment at the age of 3.

We paint our faces with the Rare Disease Day logo colours to show our support for the rare disease community.

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