By Susan, Papillon-Lefèvre syndrome, United States, July 29, 2018

I have become "S"  caregiver, 2018, we live in 2 heat situations, Hot summers & Cold winters. She has been diagnosed with PLS some time ago, today is first time went on Google site & found out exactly what it is, not scary to me because by husband was young 9 year old when diagnosed with diabetes.  For the 10 years we were married before he died, I was his care giver, was better than his Dr.  at knowing how much insulin to give him each day. After his death had to spay cat, found vet. got her spayed asked for job was hired after telling her my experiences. Worked for her almost 24 years, she'd been diagnosed with MS during her final year of college. Now with "S" restarting the 3 of us in New place. Not having much medical resources as yet feel inadequate.  But this article here in Google sight helped me a lot. THANK you so much!!!

Share this

Share your photos, videos and your experiences!

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.

Share your story

(To find the english name and more information about your disease, click here). Start typing the English name of your disease. Please choose from the suggestions that appear. If your disease is undiagnosed please write ‘undiagnosed’, or if you would like to list multiple diseases, please type in a list separated by commas.