Nephrotic syndrome

By Eva, Nephrotic syndrome-deafness-pretibial epidermolysis bullosa syndrome, Czech Republic, March 1, 2018


Our son got sick when he was one year old. He spent 10 weeks in the hospital. It was very difficult to find some optimal treatment. Eventually, after a long two months, cyclosporin treatment was taken. Today he is 7 years old. he goes to school. He is a very clever kid. Our son likes to go skiing, cycling, loving football, playing floorball. Doing everything just as much as the other kids. We are very happy about him.


*Find others with Nephrotic syndrome on RareConnect, the online platform for people affected by rare diseases.

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