Its ok to be rare

By Leanne, Vasculitis, United Kingdom, February 21, 2018

See i look 'normal'

I was diegnosed pretty quickly with vasculitis, and then Lupus also about a year later. My mum has Vasculitis and scleroderma so when i started to loose the feeling on my left side, felt weak and tired the doctors where great at getting me seen quickly and getting the tests i needed. I know im one of the 'lucky' ones. Being rare is scary, it really is. General Doctors panic, i can feel the nerves and uncertainty from them. The hardest thing for me to cope with is the recent loss of my hearing, but i will cope and over come this barrier because im rare, which means i have to be strong and ready for my next flare!

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