By Regan, Plasminogen deficiency type 1, United States, February 14, 2018
Regan developed Ligneous Conjunctivis at the age of 4. After 10 months of searching for answers Regan was diagnosed with Congenital Plasminogen Deficiency, Type 1 when she was 5. We were fortunate to find the only clinical trial being conducted in the US for the treatment of this disease. 4 months after her diagnosis she was accepted into the clinical trial. Despite having multi organ systemic involvement the IV treatment she receives every 3 days has kept her disease in a dormant state for almost 2 yrs now! At this time we are anxiously awaiting FDA approval. Throughout all she has endured at such a young age Regan has never stopped smiling or living life to the fullest!