By Cecila, Gorham-Stout disease, United States, January 10, 2018
You know every time people meet my daughter they always ask me how did I find out my baby was sick. Well here it is. I first noticed a dent in Keveonna head when she was around 3. Me being the person/parent that I am took her to the doctor and informed her PCP. At first she thought it was nothing, but as time passed the dent got deeper and bigger. That's when she gave me a referral for a CT Scan. I took her to Hughes Spalding and had the CT Scan done. I will never forget the lady telling me the doctor will tell me the results. As my daughter and I was leaving the hospital the lady chased me down as I was about to get in vehicle. She stated, "she will need further study and I said okay". She had a piece of her skull removed so they could try and find out what was going on. It took a whole year to find out what my daughter had. She was diagnosed with Gorham's Stout Disease. My daughter suffered for 5 long difficult years with so much pain. She was placed on so many different types of medications during her stay here on earth. Keveonna gained her wings January 5, 2018 and went home to be with the Lord.