Cystic Angiomatosis

By Will Mcgookin, Cystic Angiomatosis, United Kingdom, October 4, 2017

Hi I’m now 45 and have this rare disease a lot of investigations and operations in the previous years, Cystic Angiomatosis all over my skeleton these are Tumor like cysts on the bone with agonising pain, I was medically discharged from HM forces in 2000 through this, to the day I’m not aware of any more people in the uk with it. But would love to know if there is for discussions, I’ve had radiotherapy but no ease on the pain this is controlled by opiates
Thank you for reading
Will

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