My Life With Ehlers Danlos Syndrome

By Chloe, Ehlers-Danlos syndrome, United Kingdom, February 13, 2017

Hello my name is Chloe and i am seventeen years old and i have Ehlers Danlos Syndrome (EDS)
EDS is a rare genetic connective tissue disorder what effects many aspects of the body i can
go from being relatively well to not so good.How EDS effects me it effects me in many ways
i have severe joint dislocations on a weekly basis if not a daily occurrence it also effects my
digestive system and many other systems of the body.EDS can be hard to manage at times
the main management is physiotherapy and pain management although the pain is hard
to treat.The use of splints and tape can be helpful at times also we sometimes require surgery
what may not work due to our connective tissue or may need to be done a number of times.
I hope this has given you some insight into my life with EDS


Connect with others living with Ehlers-Danlos Syndrome - RareConnect.org

Share this