Under 30 with 5 chronic illnesses

By Marry-Anne, Australia, January 18, 2015

I am 28 years old and I have five different chronic illnesses, of which one is still pending diagnosis. Two of my illnesses are rare. Tietze's syndrome and Idiopathic Intracranial Hypertension (IIH) have meant that I must be careful with any activities that I do and need to be aware of what the weather is doing. Too much physical activity (even a small walk) on a hot and humid day may result with the swelling of my ribs becoming so severe that people have thought I am having a heart attack or the pressures in my skull can get high enough that my vision gets distorted, I lose my balance, have trouble with my memory, have issues with verbal/non-verbal language and my head can be in massive pain. Often, when I am asked to give my medical history to doctors, most have no idea or have even heard of either these two conditions! Life can be challenging at times but I have been blessed with the supportive people in my life and the support groups with people who can say "me too" and "I know how you feel".
Share this

Share your photos, videos and your experiences!

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.

Share your story

(To find the english name and more information about your disease, click here). Start typing the English name of your disease. Please choose from the suggestions that appear. If your disease is undiagnosed please write ‘undiagnosed’, or if you would like to list multiple diseases, please type in a list separated by commas.