My beautiful children

By Robyn, Australia, January 8, 2015

My beautiful son was born with multiple hereditary extososes. His sister was his guiding light and supporter through his young life of surgery. Her crushing diagnoses of glioblastoma (brain cancer) at 12 years crushed us. Two rare ones... unrelated.

Share this

Share your photos, videos and your experiences!

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.
X

Share your story




(To find the english name and more information about your disease, click here). Start typing the English name of your disease. Please choose from the suggestions that appear. If your disease is undiagnosed please write ‘undiagnosed’, or if you would like to list multiple diseases, please type in a list separated by commas.