My disease

By Jan, Slovenia, January 15, 2014

Hello! I am Jan. I am 19 years old. I live in Slovenia (Ljubljana). I have had TPN from birth 20 hours per day. I want to get some friends from K.i.s.E.e.V. I am buying new pump at the moment. I would like to have some informations about what kind of pumps do you have in Germany. Which do you like the best and which do you recommend? I travel a lot. This summer i was in Koln on Gamescom. In summer i go in Croatia to swim.

I have Hickman cathetre. I had previous one for 13 y...ears and one day. If you want to go to Adriatic Sea, you can visit me. I can help with informations too. We got the foundation in our country. http://www.kengurujcek.si/

I want to meet with your foundation (Verein) people to get some new information.


Thanks. Jan LoborecPrikaži več

Share this

Share your photos, videos and your experiences!

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.
X

Share your story




(To find the english name and more information about your disease, click here). Start typing the English name of your disease. Please choose from the suggestions that appear. If your disease is undiagnosed please write ‘undiagnosed’, or if you would like to list multiple diseases, please type in a list separated by commas.