We have come a long way from the first Rare Disease Day which took place over a decade ago in 2008 when 18 countries took… Continue reading Thank you to all who took part in Rare Disease Day 2019

Today on Rare Disease Day 2019 the worldwide rare disease community is joining together to raise awareness of rare diseases by holding events, conferences and… Continue reading Today is Rare Disease Day 2019

Rare Disease Day 2019 puts rare disease patient stories in the spotlight. This year’s campaign brings together three testimonial videos that tell the stories of… Continue reading Watch new patient videos for Rare Disease Day 2019

Watch the #ShowYourRare 2019 video to get inspired to paint your face and Show Your Rare during the month of February for Rare Disease Day… Continue reading Video out now – #ShowYourRare for Rare Disease Day 2019

Following great demand from across the community, Rare Disease Day has launched an online shop full of official products to take your day to the… Continue reading Shop Rare Disease Day

Karlo, 30 years old, and his younger sister are the stars of one of the upcoming Rare Disease Day 2019 videos. He is from Zagreb,… Continue reading Meet Karlo

Lorena from Madrid, Spain is the star of one of the Rare Disease Day 2019 patient testimonial videos (coming soon!). She lives with Phelan-McDermid syndrome,… Continue reading Meet Lorena

Download the official Rare Disease Day 2019 poster to display at your events, workplace or home and raise awareness of the impact of rare diseases… Continue reading Rare Disease Day 2019 official poster is out now!

Filip, aged 8, is the youngest person to feature in the Rare Disease Day 2019 testimonial videos. He is from Bucharest, Romania and lives with… Continue reading Meet Filip