The countdown to Rare Disease Day 2019 has officially begun. The 12th edition of Rare Disease Day will take place on 28 February 2019. The… Continue reading 100 days until Rare Disease Day 2019!
Launched in 2018, #ShowYourRare is the interactive social media campaign for Rare Disease Day. Anyone around the world can get involved by painting their face… Continue reading Get involved – #ShowYourRare for Rare Disease Day 2019!
The official Rare Disease Day 2018 video launches today and is already available in 24 languages, kicking off the international patient-led movement that puts rare… Continue reading Out Now! Rare Disease Day 2018 video is here!
Father and son Antoine and Alexandre both appear in the official Rare Disease Day 2018 video. Alexandre lives with fibrodysplasia ossificans progressiva, a very rare… Continue reading Meet father, Antoine, and son, Alexandre