Karlo, 30 years old, and his younger sister are the stars of one of the upcoming Rare Disease Day 2019 videos. He is from Zagreb,… Continue reading Meet Karlo

Lorena from Madrid, Spain is the star of one of the Rare Disease Day 2019 patient testimonial videos (coming soon!). She lives with Phelan-McDermid syndrome,… Continue reading Meet Lorena

Download the official Rare Disease Day 2019 poster to display at your events, workplace or home and raise awareness of the impact of rare diseases… Continue reading Rare Disease Day 2019 official poster is out now!

Filip, aged 8, is the youngest person to feature in the Rare Disease Day 2019 testimonial videos. He is from Bucharest, Romania and lives with… Continue reading Meet Filip

The countdown to Rare Disease Day 2019 has officially begun. The 12th edition of Rare Disease Day will take place on 28 February 2019. The… Continue reading 100 days until Rare Disease Day 2019!

Rare Disease Day 2019 theme announced: Bridging health and social care The theme for Rare Disease Day 2019 is ‘Bridging health and social care‘. For… Continue reading Theme 2019

Launched in 2018, #ShowYourRare is the interactive social media campaign for Rare Disease Day. Anyone around the world can get involved by painting their face… Continue reading Get involved – #ShowYourRare for Rare Disease Day 2019!

Today is Rare Disease Day 2018! With events happening in over 90 countries and regions across the world, together we can raise awareness to help further… Continue reading Today is Rare Disease Day!

Mirina stars in the Rare Disease Day 2018 official video and is living with Ehlers-Danlos syndrome. She was diagnosed at the age of 4 and… Continue reading Meet Mirina