Saturday 29 February was the 13th edition of Rare Disease Day. The campaign continues to grow each year since it was first launched in 2008.… Continue reading Thank you for making Rare Disease Day 2020 a success!

Today as thousands of events place take place around the world to mark the occasion of Rare Disease Day 2020, we share a sincere message… Continue reading Solidarity with the rare disease community affected by COVID-19

Rare Disease Day is today, 29 February as it is a leap year. The rarest day of the year dedicated to raising awareness for people living with a rare… Continue reading Today is Rare Disease Day 2020

Lubin, aged 12, is from Juvisy, France and is living with spinal muscular atrophy (SMA) which affects 1-9 in 100,000 people. Diagnostic Journey Around the… Continue reading Meet Lubin

Kin Ping  is living with retinitis pigmentosa. He was diagnosed as a teen after 10 years of visiting dozens of ophthalmologists. Retinitis pigmentosa symptoms include… Continue reading Meet KP

Download the official Rare Disease Day 2020 poster to display at your events, workplace or home and to share the message that Rare is many worldwide,… Continue reading New Rare Disease Day Poster 2020 out now!

Gauthier, aged 4, and his mother Eloise feature on the Rare Disease Day 2020 official poster. He is from Charleroi, Belgium and lives with the… Continue reading Meet Gauthier

The countdown has begun for the 13th edition of Rare Disease Day! Rare Disease Day will take place on 29 of February 2020, the rarest… Continue reading 100 days until Rare Disease Day 2020!

Rare Disease Day 2020 is on Saturday 29 February – a very rare day as it is a leap year. This year our message is… Continue reading Rare is many. Rare is strong. Rare is proud