Today is the launch of the official Rare Disease Day 2022 video in over 40 languages! This video kicks off the international patient-led campaign and shines a light on the diverse community of over 300 million people living with a rare disease.
Watch it now in:
Albanian, Arabic, Bengali, Bulgarian, Catalan, Croatian, Czech, Danish, Dutch, English, Farsi, Finnish, French, Galician, Georgian, German, Greek, Hebrew, Hungarian, Hindi, Icelandic, Indonesian, Italian, Japanese, Korean, Latvian, Lithuanian, Macedonian, Malay, Mandarin, Norwegian, Polish, Portuguese (Brazil), Portuguese (Portugal), Romanian, Russian, Serbian, Slovakian, Slovenian, Spanish, Swahili, Swedish, Telugu, Turkish, Ukranian, and Vietnamese.
This year we have added even more real-life stories from all over the world. Wafic, Nada, Tshepiso, Vasco and Jelena live with different diseases, come from different countries, and speak different languages, but they have a lot in common: a shared passion for life, shared challenges and frustrations, and a shared drive for change. Their voices should be heard.
Wafic from Lebanon is living with Duchenne muscular dystrophy, a rare and incurable genetic disease. Tshepiso is from Zimbabwe, and she has a bleeding disorder called Von Willebrand. Nada from Egypt is living with a rare skin condition called Epidermolysis Bullosa. Jelena, who comes from Serbia, was diagnosed with Cystic Fibrosis when she was just a baby. Last, but not least, Vasco, who is from beautiful Peru and is living with Gaucher Disease. Read and be inspired by their stories of hope, strength and courage.
Join the 5 heroes of the official Rare Disease Day Video and show your support for the rare disease community – You can share your own stories and your own colours with them and with the 300 million people who are living with a rare disease.
Since 2008, Rare Disease Day has brought together millions of people worldwide in solidarity with the 300 million people living with a rare disease.
This year you can join the global patient-led campaign in many different ways! For example:
- Organising an event and posting it on our world map,
- Participating in the #LightUpforRare campaign by illuminating your home or a monument in your city,
- Downloading the Rare Disease Day social media toolkits, resources, and webinars
Whether you are a policy maker, a health advocate, a patient organisation, a person living with a rare disease, or a family member, everyone is invited to share their colours and take part in Rare Disease Day 2022!