Events map
Dear Colleagues, It is a great pleasure to announce that The Scientistt will host the 2nd Global Summit on Biomedical...
MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...
In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals. More than 7,000 rare...
Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and...
On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...
SpectacuRARE Fest 2023 diselenggarakan oleh Indonesia CARE for RARE Diseases (IC4RD). Terdiri dari rangkaian acara virtual. Acara puncak akan dilaksanakan...
Are you ready to get involved in #RareDiseaseDay and help raise awareness for your community? We are here to help!...
We will have information stands from some of Ireland’s leading charities, including: Jack and Jill Foundation, Inclusion Ireland, Family Carers...
Palliative care is a common practice in patients with chronic, disabling diseases and end-of-life cases. In paediatrics, palliative care requires...
AESHA, Cure AHC Chile and Hospital Sant Joan de Déu (Barcelona, Spain) are organising the first informative webinar in Spanish...
STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...
The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...
Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.
On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...
12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.
In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...
In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...
𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.
The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...
WEBINAR Patient Family Exchange Meeting
La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
3 online lectures on ARVC research with following Q&A
Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...
Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...
More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....
A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...
Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!
WEBINAR Online Well Festa 2022 with RDD in Chiba
As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...
Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...
A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...
Online – Veranstaltung
L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...
Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...
In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...
El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...
A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...
Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.
An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...
“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...
In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...
Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...
Illumination of Schloss Hainewalde in honour of Rare Disease Day in Germany
Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.
Illumination of Casas Colgadas de Cuenca in honour of Rare Disease Day in Spain
Illumination of Palaia in honor of Rare Disease Day in Italy.
Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.
Illumination of Festspielhaus St. Pölten in honor of Rare Disease Day in Austria.
“95” Rare Alliance Greece illuminates the Innovathens building of Technopolis City of Athens in honor of Rare Disease Day, Greece.
Lights on Rare Disease – Mantova will light up of rare disease colours
Illumination of ex Convento dei Domenicani Cavallino (Le) in honor of Rare Disease Day in Italy.
Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.
Illumination of Rotunda dos Golfinhos – Setúbal in honor of Rare Disease Day in Portugal.
Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.
Illumination of Box Hill’s town hall in honor of Rare Disease Day in Australia.
Illumination of Iglica Międzynarodowych Targów Poznańskich in honour of Rare Disease Day in Poland
Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...
Illumination of FDA in honor of Rare Disease Day in USA.
Illumination of Edifício dos Paços do Concelho – Guarda in honor of Rare Disease Day in Portugal.
Illumination of Ayuntamiento de Casares in honour of Rare Disease Day in Spain
ERN ReCONNET, the European Reference Network for Rare and Complex Connective Tissue Diseases, renews its appointment with the illumination of...
Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France
Illumination of Elementary school and Practical school in honour of Rare Disease Day in Czech Republic.
San Diego County Administration Center, Landmark building, will #LightUpforRare. This lighting was organized by ADCY5.org to raise awareness for all...
Illumination of NoRo Center in honor of Rare Disease Day in Romania.
The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...
Illumination of Wells Fargo Duke Energy Center in honor of Rare Disease Day in USA.
Illumination of Castello di Lari in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho – Santarém in honor of Rare Disease Day in Portugal.
Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.
A Junta de Freguesia de Agualva Mira Sintra no dia 28 de fevereiro irá assinalar o Dia das Doenças Raras...
Illumination of Greenbrier in honor of Rare Disease Day in the United-States.
Illumination of Ayuntamiento de La Carolina in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.
Illumination of Sede del Municipio di Fontaniva in honor of Rare Disease Day in Italy.
Illumination of Torretta sede dell’Ufficio Territoriale in honor of Rare Disease Day in Italy.
NORD invites you to wear your favorite zebra print shirt or a striped scarf and meet online for a community...
Illumination of The Helmsley Building, 230 Park Ave NYC in honor of Rare Disease Day in USA.
Illumination of Comune di Mestre in honor of Rare Disease Day in Italy.
Illumination of Fontana Piazza Umberto I in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the Town Hall of Florina in honor of Rare Disease Day.
Illumination of Torre dei Da Pendolasco in honor of Rare Disease Day in Italy.
Quienes trabajamos en México por las personas que viven con enfermedades raras debemos tener claro cuáles son nuestros derechos.
Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.
Illumination of Medical University Carol Davila Bucharest in honor of Rare Disease Day in Romania.
This lesson plan is a proposal that we address to the teachers of our schools. The goal is to help...
Illumination of Dipartimento di Medicina della Università Aldo Moro in honor of Rare Disease Day in Italy.
First Inflammatory Neuropathies’ Virtual Conference in Spanish.
Illumination of l’Ours Pompon in honour of Rare Disease Day in France
Lights on Rare Disease – Trapani will light up of rare disease colours
Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...
Illumination of Sky Ribbon in honor of Rare Disease Day in Australia.
Illumination of Ayuntamiento de Cádiz in honour of Rare Disease Day in Spain
Illumination of Zentrum für Seltene Erkrankungen am Uniklinik Freiburg in honour of Rare Disease Day in Germany
Illumination of Wolkenhain der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Illumination of Palazzo Comunale di Ponte Buggianese in honor of Rare Disease Day in Italy.
Illumination of Central Bank Boardwalk in honor of Rare Disease Day in Australia.
Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.
In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
On this year’s International Day of Rare Diseases, the Lithuanian Association of Patients with Genetic Neuromuscular Diseases “Sraunia” invites to...
Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.
Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...
This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...
Illumination of Palazzo Nieddu del Rio in honor of Rare Disease Day in Italy.
Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain
Rare Disease Day in Zimbabwe 2022! #LIGHTUPFORRARE
Illumination of Larnaca Medieval Castle in honor of Rare Disease Day in Cyprus.
Dunya Nadir Hastaliklar Gunu, Nadir Hastaliklarda Tani Yolculugu temasi ile 28 Subat 2022 tarihinde cevrimici etkinlik olarak duzenlenecek.
Illumination of Pont de Recouvrance in honour of Rare Disease Day in France
We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...
Illumination of Passaggio Joyce, detto “Ponte Curto” in honor of Rare Disease Day in Italy.
Illumination of Melbourne Cricket Ground in honor of Rare Disease Day in Australia.
Illumination of Wait Chapel at Wake Forest University in honor of Rare Disease Day in USA.
Illumination of Uniklinikum Magdeburg in honour of Rare Disease Day in Germany
Illumination of Novartis office in Nürnberg in honour of Rare Disease Day in Germany
“95” Rare Alliance Greece illuminates Μunicipal theatre in honor of Rare Disease Day in Pefki, Greece.
Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
Illumination of Palazzo Estense (Palazzo Comunale) – Varese in honor of Rare Disease Day in Italy.
Será una reunión por zoom, cuyo objetivo es concientizar a médicos sobre la existencia de enfermedades raras e Endocrinologia, donde...
Lighting up the tallest tower in East Africa, Kenyan style!!
Illumination of Palazzo del fanciullo – Matino in honor of Rare Disease Day in Italy.
Illumination of Municipio Concordia Sagittaria (Ve) in honor of Rare Disease Day in Italy.
Illumination of Porta San Niccolò in honor of Rare Disease Day in Italy.
Illumination of Municipio di Prato Sesia in honor of Rare Disease Day in Italy.
Illumination of Rocca Malatestiana in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Villatorres in honour of Rare Disease Day in Spain
Illumination of Palazzo Comunale di Nociglia in honor of Rare Disease Day in Italy.
Illumination of Il Campanone della Brianza in honor of Rare Disease Day in Italy.
Illumination of Castel Sismondo in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.
In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Welcome to Rare Disease Day 2022 at Royal Holloway. We hope you can attend. On Monday 28 February 2022, 10...
Lights on Rare Disease – Procida will light up of rare disease colours
“95” Rare Alliance Greece illuminates the Central Pedestrian Bridge of Trikala in honor of Rare Disease Day, Greece.
Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy
Illumination of Palazzo Comunale di Crotone in honor of Rare Disease Day in Italy.
Illumination of the Frost Tower in honor of Rare Disease Day in the United States.
Illumination of Parc Phoenix in honour of Rare Disease Day in France
Illumination of Batumi Stadium in honor of Rare Disease Day in Georgia.
Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Huércal de Almería in honour of Rare Disease Day in Spain
Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...
Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...
Illumination of Comune di Rufina in honor of Rare Disease Day in Italy.
Illumination of Archie Graham Community Centre in honor of Rare Disease Day in Australia.
Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain
Illumination of the Optum Frontier Therapies Pharmacy Flint in honor of Rare Disease Day in the United-States.
Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.
Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...
Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...
Illumination of Palazzo Municipale di Livorno in honor of Rare Disease Day in Italy.
This year for Rare Disease Day 2022 we are calling on everyone to help the rare disease community be united...
Illumination of Puentes de la Alameda de Talavera in honour of Rare Disease Day in Spain
Illumination of Plac Litewski in honour of Rare Disease Day in Poland
Illumination of Guppy Park in honor of Rare Disease Day in Australia.
Illumination of Sede de Emuasa in honour of Rare Disease Day in Spain
Illumination of Cascate Monumentali in honor of Rare Disease Day in Italy.
Illumination of Olivia Hall Gdańsk in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...
We illuminated our school building with the colors of rare diseases
Illumination of Rouen’s town hall in honour of Rare Disease Day in France
4th Rare Disease Day Training Meeting will be held online with the attendance of Turkish Ministry of Health, academics, members...
Illumination of The Big Banana Fun Park in honor of Rare Disease Day in Australia.
Illumination of Palazzo di Città di Augusta in honor of Rare Disease Day in Italy.
L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...
Illumination of Municipio di Verbania in honor of Rare Disease Day in Italy.
Illumination of Czech Republic Pavilion EXPO 2020 in honour of Rare Disease Day worldwide.
Illumination of Northbridge Tunnel in honor of Rare Disease Day in Australia.
We will light the national museum for the first time in lebanon
Illumination of The SUNY Plaza in honor of Rare Disease Day in USA.
Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
Illumination of Palazzo del Podestà – Bologna in honor of Rare Disease Day in Italy.
Illumination of Victoria Bridge in honor of Rare Disease Day in Australia.
Illumination of City Hall Oradea in honor of Rare Disease Day in Romania.
Illumination of Koombana Bay Foreshore in honor of Rare Disease Day in Australia.
Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.
Birt Hogg Dubbe Syndrome patient, marathoner and now capable to an open water maratón swim.. nothing is impossible! Believe in...
En el mes de Febrero se llevó a cabo el evento virtual ‘Enfermedades Raras en Latino América: diálogo con expertos’...
Lights on Rare Disease – Cittadella will light up of rare disease colours
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Staatstheater Mainz in honour of Rare Disease Day in Germany
La 15e édition de la Journée internationale des maladies rares aura lieu le lundi 28 février. Une nouvelle fois, la...
Subir más de 2.000 escalones
Illuminazione del Municipio
Illuminazione del Torrione AST Associazione Sclerosi Tuberosa e Associazione Sindrome di Williams E.R.
On February 28 in the Rooms Hotel Tbilisi the press conference dedicated to the Rare Disease Day has been held....
Illumination of some building homes and offices with Rare disease day colours in honour of Rare Disease Day in Rwanda:...
The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...
Illumination of Adelaide Oval in honor of Rare Disease Day in Australia.
Illumination of Tour Tanguy in honour of Rare Disease Day in France
Illumination of Ayuntamiento de Sevilla in honour of Rare Disease Day in Spain
Illumination of Saint Denis’ town hall in honour of Rare Disease Day in France
Illumination of Opera House Timișoara in honor of Rare Disease Day in Romania.
The most important museum of art of Andorra participates in the building illumination for rare disease day.
Illumination of Mooroopna Water Tower in honor of Rare Disease Day in Australia.
Illumination of Tête carrée in honour of Rare Disease Day in France
Illumination of Emergency University Hospital Bucharest in honor of Rare Disease Day in Romania.
Illumination of City Hall in honor of Rare Disease Day in USA.
“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...
Walk a lot
Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland
Illumination of Palazzo Comunale di Carmiano in honor of Rare Disease Day in Italy.
BioPartner, VICO & Ntrans, are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with...
Lights on Rare Disease – Locri will light up of rare disease colours
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Torre dell’acquedotto in honor of Rare Disease Day in Italy.
Illumination of Katharinenturm Magdeburg in honour of Rare Disease Day in Germany
Join the global initiative calling on everyone to help raise awareness of the rare disease community and unite all of...
Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.
Illumination of VNG AG Hauptsitz Leipzig in honour of Rare Disease Day in Germany
Illumination of Chiesa S.Maria Assunta palazzo comunale in honor of Rare Disease Day in Italy.
Illumination of Municipio schermo in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Totana in honour of Rare Disease Day in Spain
Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates Headquarters of the Regional Unit of Etoloakarnania in honor of Rare Disease Day in Mesologgi,...
Illumination of Ayuntamiento de Dos Hermanas in honour of Rare Disease Day in Spain
Lights on Rare Disease – Pistoia will light up of rare disease colours
Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany
Un accordo di collaborazione tra Orphanet, Ospedale Pediatrico Bambino Gesù e OMaR e tante iniziative rivolte ai pazienti e alle...
Illumination of Fontana di Corso Vittorio Emanuele II in honor of Rare Disease Day in Italy.
Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....
Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.
We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.
Illumination of Trafalgar Bridge in honor of Rare Disease Day in Australia.
Illumination of Granarone Cerveteri in honor of Rare Disease Day in Italy.
This Rare Disease Day (28 Feb 2022), join women from three countries creating change in the world of Rare Disease...
Illumination of Palazzo di Città di Potenza in honor of Rare Disease Day in Italy.
Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.
Illumination of sede Municipio XII in honor of Rare Disease Day in Italy.
Illumination of Dziedziniec Urzędu Miasta Poznania wraz z Placem Kolegiackim in honour of Rare Disease Day in Poland
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...
Illuminazione
Illumination of La Baule-Escoublac’s town hall in honour of Rare Disease Day in France
The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!
Illumination of Castelo de Bragança – Bragança in honor of Rare Disease Day in Portugal.
In classrooms, offices and parks in Coolum and all over the world, dress in your brightest rainbow stripes on International...
Illumination of San Genesio in honor of Rare Disease Day in Italy.
Illumination of Chiesa di San Sebastiano in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Taranto in honor of Rare Disease Day in Italy.
Illumination of Arrol Crane at Jetty Road in honor of Rare Disease Day in Australia.
يوم توعوي، للعامة .. عن بعد موجه للجمهور، يهدف الى زيادة وعي المجتمع عن الأمراض النادرة وطريقة التعامل معها.. https://teams.microsoft.com/l/meetup-join/19%3ameeting_ZDg4OGIxYzMtNDJkMy00NDc0LWI4MzItYWExNzY2N2ZlMzNi%40thread.v2/0?context=%7b%22Tid%22%3a%22b84725a5-0373-4d77-9259-051685769bf2%22%2c%22Oid%22%3a%2209c630e6-d1c9-482e-91b3-60037840ef5d%22%7d
Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.
Illumination of J L Tower in honor of Rare Disease Day in USA.
Illumination of Mid Hudson Bridge in honor of Rare Disease Day in USA.
Este foro busca ayudar a la visibilización de estas condiciones, proponer alternativas para mejorar el diagnóstico y manejo de las...
Illumination of Maschio Angioino – Napoli in honor of Rare Disease Day in Italy.
Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...
Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.
Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.
“95” Rare Alliance Greece illuminates the building “Loggia” in honor of Rare Disease Day in Heraklion, Greece.
Illumination of Porta alla Croce in honor of Rare Disease Day in Italy.
Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...
Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.
Illumination of Museo de Arte Contemporáneo / Fundación Díaz Caneja de Palencia in honour of Rare Disease Day in Spain
Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...
Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...
Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.
Illumination of Fuente de la Réplica del submarino de Isaac Peral de Cartagena in honour of Rare Disease Day in Spain
Illumination of Rumors on Main in honor of Rare Disease Day in USA.
Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain
Illumination of Collegium Carolinum in honour of Rare Disease Day in Czech Republic.
Illumination of Monumento ai Caduti sul lavoro in honor of Rare Disease Day in Italy.
Conversatorios con especialistas, personas que viven con enfermedades raras y personas cuidadoras.
Illumination of Kleisthaus Berlin in honour of Rare Disease Day in Germany
Illumination of Mining house in honour of Rare Disease Day in Czech Republic.
Illumination of Rocchetta in honor of Rare Disease Day in Italy.
Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.
En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...
Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale del Comune di Barano d’Ischia (NA) in honor of Rare Disease Day in Italy.
Illumination of Edificio de la Consejería de Salud in honour of Rare Disease Day in Spain
Illumination of Municipio di Pistoia in honor of Rare Disease Day in Italy.
Lighting up the Wasl Dome which is the beating heart of Expo 2020 Dubai !
Illumination of Ospedale Pediatrico Meyer in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de A Guarda in honour of Rare Disease Day in Spain
Illumination of AAMI Park in honor of Rare Disease Day in Australia.
Illumination of Old Magistrates Court in honor of Rare Disease Day in Australia.
Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain
In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...
Illumination of Porta a Monte in honor of Rare Disease Day in Italy.
https://roanoketower.com/tower-lights/ Light up of city building
Illumination of Reggia di Caserta in honor of Rare Disease Day in Italy.
To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...
Illumination of Yagan Square in honor of Rare Disease Day in Australia.
Illumination of Loggia del Palazzo della Ragione in honor of Rare Disease Day in Italy.
Medical Universities, City Halloween, Centers for Rare Diseases and other buildings will be illuminated for RDD, on the evening of...
Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.
Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...
Illumination of Monumento “La Mamma Ciociara” in honor of Rare Disease Day in Italy.
The Arkansas State University clock tower will be lit up in honor of Rare Disease Day.
Illumination of Torre Mangana in honour of Rare Disease Day in Spain
Illumination of Presidential Palace in honor of Rare Disease Day in Cyprus.
In this conference we decided to talk about accessibility and what this means for rare patients, especially in these 2...
Illumination of Tokyo Tower between 18.00-24.00 (Japan time) in honor of Rare Disease Day in Japan.
Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.
Brampton City Hall will be illuminating the Clock Tower on February 28th 2022 in Purple and Blue to recognize Rare...
The logo of the World Rare Disease Day will be projected on the Mikis Theodorakis Theater in Chania, by “95”...
“95” Rare Alliance Greece illuminates the monument of the Arch of Hadrian in honor of Rare Disease Day in Athens,...
Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain
FEMEXER, la UNAM y el Museo de la Mujer se unen en un conversatorio fresco y desenfadado para tratar un...
On Monday, the sky lights up a little extra over Lilla Amundön when Ågrenska draws attention to the Rare Day....
Illumination of La Cappella di Piazza del Campo in honor of Rare Disease Day in Italy.
The event is a digital inauguration ceremony for Center for Rare Diseases West (Gothenburg) with invited guests like the Swedish...
Illumination of Chiesa degli Scolopi in honor of Rare Disease Day in Italy.
Illumination of Marburg´s Historical University in honour of Rare Disease Day in Germany
Illumination of St. Barbara Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Illumination of Palazzo comunale di Cellamare in honor of Rare Disease Day in Italy.
Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...
Illumination of Grand Place in honour of Rare Disease Day in France
Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany
Illumination of Municipio di Montagna in Valtellina in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.
Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...
Illumination of Dreifaltigkeitssäule Rathausplatz St. Pölten in honor of Rare Disease Day in Austria.
Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.
Illumination of Palazzo della Gran Guardia – Verona in honor of Rare Disease Day in Italy.
A week campaign dedicated to Rare Liver Diseases. One disease will be presented each day with contributions from both the...
Illumination of Polo delle Arti e della Cultura in honor of Rare Disease Day in Italy.
While FMD is thought of as Underdiagnosed we are Rare until proven otherwise. Help us support Rare Disease Day on...
llumination of the City Hall (Urząd Miejski) in Bytów in honour of Rare Disease Day in Poland. It will happen...
Illumination of Mole Antonelliana – Torino in honor of Rare Disease Day in Italy.
Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.
Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...
In coordination with the National Parks Development Committee, the Rizal Monument was illuminated in purple for Rare Disease Day as...
Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022 to Sunday 06.03.2022 at...
Illumination of Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.
Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...
Illumination of Teatro Herberia di Rubiera in honor of Rare Disease Day in Italy.
Join us in a gathering of supporters of patients with Rare Diseases around the Fountain at Lafayette Square, LaGrange GA!...
Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives....
In 2022, the eighth annual International Rare Disease Day online conference will take place at the Sheba Medical Center, with...
The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...
Illumination of Townsville Sign in honor of Rare Disease Day in Australia.
An exhibition focused on using Art Therapy as a way of accepting or being affected by a rare disease. The...
Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...
Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain
Illumination of Cristo del Otero in honour of Rare Disease Day in Spain
For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...
Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain
Illumination of Palazzo Cavarretta – sede del Consiglio Comunale Città di Trapani in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain
No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...
Illumination of the Parliament House in honor of Rare Disease Day in Australia.
Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain
Illumination of Edifício da Câmara Municipal – Calheta in honor of Rare Disease Day in Portugal.
We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...
Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.
9:30-13:30h Webinar with the participation of several entities. The event has three main sessions. Organização: Mirror Group Português do Programa...
“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...
On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...
Illumination of Wharton Reef Lighthouse in honor of Rare Disease Day in Australia.
Illumination of Story Bridge in honor of Rare Disease Day in Australia.
The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...
Illumination of Municipio di Gravellona Toce in honor of Rare Disease Day in Italy.
Illumination of Cyprus Telecommunications Authority – Electra Building in honor of Rare Disease Day in Cyprus.
Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.
The Oxford-Harrington Rare Disease Centre (OHC) invites you to recognize Rare Disease Day by attending its Rare Disease Day Webinar...
Illumination of Cascata Grande dei Liri in honor of Rare Disease Day in Italy.
Esta noche los edificios municipales de La Nucía se iluminan de “verde” por “Día Mundial de las Enfermedades Raras”, a...
Illumination of Malop Street in honor of Rare Disease Day in Australia.
Illumination of Porta Padova, Porta XX Settembre, Porta Legnago e Porta Vicenza in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain
Illumination of Palais des ducs de Bourgogne in honour of Rare Disease Day in France
Illumination of Spodek in honour of Rare Disease Day in Poland
Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.
A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.
Gateshead Millennium Bridge will be joining other landmarks in lighting up in support of Rare Disease day .
During the classes we gave a support for the Rare through out different kind of activities like singing songs, playing...
“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...
Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France
Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um