Events map
– Rehabilitation + Eurhythmics – Lego Play Games
Rare Disease Day Conference and Cocktail Reception Delivering on Canada’s Rare Disease Investment Virtual option is available For more information:...
The 2nd RDD High School Summit
Online Lecture + Panel Discussion
Diese beiden Anlässe verwandeln den EUROPARK Salzburg, am Samstag, 18. März 2023 in einen ganz besonderen Veranstaltungsort. Denn unter dem...
It will be our second chat, so we will be get to know each other, I hope a specialist will...
There is clear evidence that the rare diseases are one of the biggest challenges in medical practice, with several gaps...
Pour la 3ème année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...
A l’occasion de la Journée Internationale des Maladies Rares, le groupe hospitalier AP-HP.Sorbonne Université (Hôpitaux Pitié-Salpêtrière, Saint-Antoine, Tenon, Trousseau, Rothschild,...
Conmemoración Día Mundial de Enfermedades Raras 2023 Aliados proyecto Colaborativo Ruta de Enfermedades Huérfanas Parque espíritu del Manglar. Playón Del...
Pour la JIMR, PLEMaRa, avec le soutien des Filières Maladies Rares FIMATHO, FAI²R, MHEMO, du CHU de Lille et de...
– lecture – RDD Exhibition – Kids Doodle Party – Star gazing party – Planetarium
Expertos: pacientes, profesionales y cuidadores Mesa de enfermedades raras para Antioquia y red técnica por las enfermedades huérfanas de Antioquia,...
Un evento teatrale dedicato ai bambini con malattia rara, in particolare a quelli seguiti dal Centro Malattie Rare Pediatriche dell’Ospedale...
Aims for the day: – To examine Newcastle’s strengths and potential to address the challenges posed by Rare Disease –...
– Help Card/Help Mark Video Screening – Materials and Panel Exhibit
Rare Disease Day on 28 February — and the events surrounding it — offer many exciting opportunities to raise awareness...
Se lleva a cabo el 2do Foro de Enfermedades Raras en México “Mayor Visibilidad, Mayor Oportunidad de Vida” Organizado por...
Join us for a celebration of Rare Disease Day with an opportunity for Rare Disease Warriors to Skate Under the...
Reconocimiento a nuestros campeones, Mesa de enfermedades raras para antioquia y red tecnica por las enfermedades huérfanas de Antioquia.
Encontro de pacientes, associações, gestores, profissionais da Saúde para debaterem temas importante dentro das demandas das doenças raras no Brasil...
Promoción Campaña #UnidosPorLasRaras en partido de fútbol Millonarios vs. Cali presencial
Promoción Campaña #UnidosPorLasRaras en paratido de futbol América vs. Junior en el Estadio Pacual Guerrero, Cali
You’re invited to our Rare Disease Day celebration on March 5, 2023 from 2-3pm PST. This year, we are highlighting...
Lecture Meeting
Aliados Proyecto Colaborativo Ruta de Enfermedades Huérfanas
El Grupo de Trabajo Derechos, Discapacidad y Enfermedades Raras de la Sociedad Interamericana de Psicología organiza, en el marco de...
Join us for KGI’s 16th Annual Rare Disease Day Virtual Event, our theme is Mental Health & Rare Disease! This...
14h00| SESSÃO DE ABERTURA Sérgio Faria residente da Direção da AAADMJ Dr. Clélio Meneses Secretario Regional da Saúde e Desporte...
We’re so excited to be celebrating Rare Disease Day 2023! Please join us for an early evening Denim Walk in...
My name is Leah Haynes and I am the co-founder of a Canadian-based registered charity called Endometriosis Events. Endometriosis Events...
– Online Lectures on Employment – Roundtable Discussions
Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world
Mesa Enfermedades Raras Para Antoquia
El Ministerio de Salud de Santiago del Estero, la Alianza Argentina de Pacientes (ALAPA), la Asociación Mucopolisacaridosis Argentina (AMA) y...
Provide advocacy, community, and support for those affected by a rare disease across Southern Arizona. FREE admission to the museum...
To kick off Endometriosis Awareness Month, join us on March 4th from 2pm-6pm for our FriENDO Social! The event will...
MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...
Meeting Point: Sloterpark around 4.45/ 5 pm where the IAMSTERDAM letters are. We take a picture together, and from there...
“Patient Information Day for People living with Limb Girdle Muscular Dystrophy” is an Event organised by the John Walton Muscular...
le associazioni A.I.D. – Kartagener Onlus ed A.Ma.R.A.M. Aps, celebreranno la Giornata Mondiale delle Malattie Rare 2023 organizzando l’incontro dal...
Unter der Schirmherrschaft von Herrn Sozialdezernent Dr. Eckert Lensch, der Landeshauptstadt Mainz wird in diesem Jahr zum 11. Mal der...
Mesa de Enfermedades raras para Antioquia y Red de Técnica por las Enfermedades Huérfanas de Antioquia
The Rare Diseases Day Event, which will be held on Thursday, March 2nd, 2023, will take place online between 16.00-17.30.
Diversity in the Rare Disease Community: Challenges for Newborn Screening and Early-life Genetic Testing Equity Thursday, March 2, 2023 9-10...
We participated in the Rare Disease Day event with Treatment Plans Center and ,we shared some rhizokids children’s stories translated...
In honor of those who have lost their battle with rare diseases like cystinosis and in honor of Rare Disease...
In this webinar, our panel of experts will examine how to navigate pricing and reimbursement challenges for rare disease technologies....
فعالية تضم استشارات مجانيه لعدة تخصصات ورشة نفسية للأمهات فعاليات ترفيهيه ومفاجأآت للاطفال
Dans le cadre des journées de sensibilisation, et à l’occasion de la Journée Internationale des Maladies Rares 2023, l’Association Espoir...
The final conference will bring together all the partners that organized events and awareness campaigns during February and will present...
The aim of the conference is to introduce doctors, nurses, and geneticists to the latest developments in the diagnosis and...
Mercredi 1er mars, la filière SENSGENE et ses partenaires tiendront un stand de sensibilisation aux maladies rares dans le centre...
WEBINAR | Mesa debate La investigación en EPOF: Un camino común para 8.000 patologías Moderadora • Dra. Jorgelina Stegmann |...
Illumination of Palacio Almudí in honour of Rare Disease Day in Spain
El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL_NACIONAL_RAMIRO_PRIALÉ_PRIALÉ. Invita al II ENCUENTRO REGIONAL DE ENFERMEDADES...
El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL NACIONAL RAMIRO PRIALÉ PRIALÉ . 🗓Fecha: 28...
Students of the specialty “General Medicine” of the Higher School of Medicine tested the campaign with the goal of drawing...
We were glad to have been invited to participate in the Rare Disease choir to record the song #ThisIsMe at...
Illumination of the Koombana Bay Footbridge in honor of Rare Disease Day in Australia.
Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...
Join Akron Children’s Hospital’s Genetic Center for its inaugural Rare Disease Day event to raise awareness and support for patients...
A white board will be set up at the entrance of the Pasteur Institute in Tunis next to the research...
Tiistaina 28.2.2023 klo 17–19 järjestettävä tilaisuus on suunnattu harvinaista neurologista sairautta sairastaville ja heidän läheisilleen, mutta mukaan voivat tulla kaikki...
Global Workshop on Access to Rare Disease Diagnosis and Treatment | Rare Disease Day 2023 Reimbursement of drugs from pharmaceutical...
Rare Disease Day 2023 #Jeans4Genes – wear your favorite jeans and support our #RareBearFund by buying delicious cupcakes. There’s a...
Ruta de 5.6 quilòmetres, de 120 minuts, geolocalitzada en temps real amb un tècnic en activitat física per la commemoració...
As Rare Disease Day 2023 is approaching, on behalf of the Chinese Organization for Rare Disorders, it is my honor...
Lupus Alert is marking Rare Disease Day (Tuesday, February 28) with an appeal for people to donate their blood. Patients...
Meeting with healthcare professionals, patients and parents organizations. The main objective is to raise awareness about rare diseases and support...
National Skills University Islamabad organized an event related to “Rare Disease Day 2023” in order to highlight the rare diseases...
People living with rare diseases facing with lots of challenges and one of them is not understand what they will...
We are excited to announce a charitable exposition and event to raise awareness and support for individuals and families affected...
Illumination of the Koombana Bay Foreshore in honor of Rare Disease Day in Australia.
Listen live to the legend who started the #RARE Revolution with the US Orphan Drug Act of 1983 – Now...