Events map
Dear Colleagues, It is a great pleasure to announce that The Scientistt will host the 2nd Global Summit on Biomedical...
Palliative care is a common practice in patients with chronic, disabling diseases and end-of-life cases. In paediatrics, palliative care requires...
AESHA, Cure AHC Chile and Hospital Sant Joan de Déu (Barcelona, Spain) are organising the first informative webinar in Spanish...
STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...
The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...
Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.
On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...
12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.
In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...
In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...
𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.
The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...
WEBINAR Patient Family Exchange Meeting
La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
3 online lectures on ARVC research with following Q&A
Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...
Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...
More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....
Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!
WEBINAR Online Well Festa 2022 with RDD in Chiba
A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...
Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...
As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...
A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...
Online – Veranstaltung
Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...
In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...
L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...
El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...
Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...
A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...
“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...
In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...
Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.
An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...
“95” Rare Alliance Greece illuminates the monument of the Arch of Hadrian in honor of Rare Disease Day in Athens,...
Illumination of the Parliament House in honor of Rare Disease Day in Australia.
Illumination of Schlot Erlanger Stadtwerke in honour of Rare Disease Day in Germany
Lighting up the Wasl Dome which is the beating heart of Expo 2020 Dubai !
Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives....
Illumination of Comune di Mondovì in honor of Rare Disease Day in Italy.
Illumination of Tokyo Tower between 18.00-24.00 (Japan time) in honor of Rare Disease Day in Japan.
Illumination of Comune di Mestre in honor of Rare Disease Day in Italy.
Illumination of Edificio de la Consejería de Salud in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...
Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy
Illumination of Staatstheater Mainz in honour of Rare Disease Day in Germany
Illumination of Palazzo della Gran Guardia – Verona in honor of Rare Disease Day in Italy.
Illumination of Palazzo di Città di Augusta in honor of Rare Disease Day in Italy.
BioPartner, VICO & Ntrans, are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with...
Illumination of Ayuntamiento de Campos del Río in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Totana in honour of Rare Disease Day in Spain
Show your support for #RareDiseaseDay by lighting up your home, office, or school on 28 February! By coming together to...
We are excited to be hosting a hybrid event to celebrate Rare Disease Day. Patients from our Genetics Division will...
Illumination of BarArena in Leverkusen in honour of Rare Disease Day in Germany
Illumination of Arrol Crane at Jetty Road in honor of Rare Disease Day in Australia.
Illumination of Cristo del Otero in honour of Rare Disease Day in Spain
Illumination of Malbork’s town hall in honour of Rare Disease Day in Poland
Iluminación en color violeta
Illumination of Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.
Illuminating the emblematic Council House of the City of Nottingham.
Illumination of Palazzo Comunale di Palaia in honor of Rare Disease Day in Italy.
Illumination of Koombana Bay Foreshore in honor of Rare Disease Day in Australia.
Illumination of Palazzo Comunale di Carmiano in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Forlì will light up of rare disease colours
The Oxford-Harrington Rare Disease Centre (OHC) invites you to recognize Rare Disease Day by attending its Rare Disease Day Webinar...
Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain
Illumination of Richmond Reserve in honor of Rare Disease Day in Australia.
Illumination of María Teresa in honour of Rare Disease Day in Argentina
Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...
Illumination of Castelo dos Mouros – Sintra in honor of Rare Disease Day in Portugal.
Reading of OEIS heritage
Illumination of Rumors on Main in honor of Rare Disease Day in USA.
Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.
Illumination of Kleisthaus Berlin in honour of Rare Disease Day in Germany
Community Heroes and advocates partake in the observance to raise awareness of rare diseases and their impact on patients and...
NORD invites you to wear your favorite zebra print shirt or a striped scarf and meet online for a community...
Illumination of some building homes and offices with Rare disease day colours in honour of Rare Disease Day in Rwanda:...
An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...
Illumination of Tour Tanguy in honour of Rare Disease Day in France
First Inflammatory Neuropathies’ Virtual Conference in Spanish.
Be Rare Spirit Day, which was planned, organized, and hosted by Abigail Villarreal will take place at Thomas Jefferson High...
Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...
9:30-13:30h Webinar with the participation of several entities. The event has three main sessions. Organização: Mirror Group Português do Programa...
Illumination of Dipartimento di Medicina della Università Aldo Moro in honor of Rare Disease Day in Italy.
Illumination of NoRo Center in honor of Rare Disease Day in Romania.
Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci
Illumination of Castel Sismondo in honor of Rare Disease Day in Italy.
Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Municipio schermo in honor of Rare Disease Day in Italy.
Illumination of Festspielhaus St. Pölten in honor of Rare Disease Day in Austria.
Illumination of Cascate Monumentali in honor of Rare Disease Day in Italy.
Illumination of Story Bridge in honor of Rare Disease Day in Australia.
Lights on Rare Disease – Barletta will light up of rare disease colours
The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...
Illumination of Diputación de Jaén in honour of Rare Disease Day in Spain
Illumination of Palazzo del Podestà – Bologna in honor of Rare Disease Day in Italy.
Illumination of J L Tower in honor of Rare Disease Day in USA.
The logo of the World Rare Disease Day will be projected on the Mikis Theodorakis Theater in Chania, by “95”...
On February 28, 2022 we will be highlight throughout the day individuals and organizations helping and seeking a cure to...
Illumination of Palais des ducs de Bourgogne in honour of Rare Disease Day in France
Illumination of Mole Antonelliana – Torino in honor of Rare Disease Day in Italy.
Illumination of Old Magistrates Court in honor of Rare Disease Day in Australia.
Illumination of Porta del sole in honor of Rare Disease Day in Italy.
Illumination of Municipio Concordia Sagittaria (Ve) in honor of Rare Disease Day in Italy.
Illumination of Edifício da Câmara Municipal – Calheta in honor of Rare Disease Day in Portugal.
Illumination of Palazzo S.Antonio in honor of Rare Disease Day in Italy.
Illumination of Elementary school and Practical school in honour of Rare Disease Day in Czech Republic.
Due to International Rare Disease Day, enjoy our Online Charity Concert from Monday 28.02.2022 to Sunday 06.03.2022 at 7:00 p.m...
Join us in a gathering of supporters of patients with Rare Diseases around the Fountain at Lafayette Square, LaGrange GA!...
Illumination of Porta Padova, Porta XX Settembre, Porta Legnago e Porta Vicenza in honor of Rare Disease Day in Italy.
Flag raising ceremony at Ottawa City Hall, including hot drinks, donuts, vendors, and ‘NEW’ this year, a skate-a-thon on the...
Illumination of Chiesa S.Maria Assunta palazzo comunale in honor of Rare Disease Day in Italy.
Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain
“A rare friend” is a special episode of the cartoon series “Leo da Vinci” and the idea was due to...
Illumination of Batumi Stadium in honor of Rare Disease Day in Georgia.
UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” illuminating of green the Mole Antonelliana. We are grateful to...
Illumination of Czech Republic Pavilion EXPO 2020 in honour of Rare Disease Day worldwide.
Illumination of Duomo Reggio Emilia in honor of Rare Disease Day in Italy.
ERN ReCONNET, the European Reference Network for Rare and Complex Connective Tissue Diseases, renews its appointment with the illumination of...
Walk a lot
This year we look forward to celebrating #RareDiseaseDay2022! Come enjoy a chat 7 pm EST, February 28, 2022. Speak with...
Shining a Light on Genetic Diagnosis, Monday 28 February, 6-7.30pm Institute of Genetics and Cancer, the University of Edinburgh, in...
Illumination of Fontana di Corso Vittorio Emanuele II in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de La Carolina in honour of Rare Disease Day in Spain
Illumination of Novartis office in Nürnberg in honour of Rare Disease Day in Germany
Illumination of Polo delle Arti e della Cultura in honor of Rare Disease Day in Italy.
Illumination of Pałac Kultury i Nauki (PKiN) in honour of Rare Disease Day in Poland
To the Rare Disease Community, we have the pleasure to invite you all to the light up of Burj Khalifa...
Illumination of Budynek Ortopedyczno-Rehabilitacyjnego Szpitala Klinicznego im. Wiktora Degi in honour of Rare Disease Day in Poland
Illumination of Ayuntamiento de Palma de Mallorca in honour of Rare Disease Day in Spain
Illumination of Evan Walker Bridge in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.
Illumination of Torre dell’acquedotto in honor of Rare Disease Day in Italy.
Illumination of Guppy Park in honor of Rare Disease Day in Australia.
Il centro commerciale Belicittà, bene confiscato alla criminalità organizzata, ha messo a disposizione un desk informativo in galleria per far...
A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.
Illumination of Fontana di Piazza della Repubblica in honor of Rare Disease Day in Italy.
Illumination of Porta a Monte in honor of Rare Disease Day in Italy.
Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany
Illumination of Palazzo Comunale di Crotone in honor of Rare Disease Day in Italy.
Illumination of Centro di aggregazione sociale – Surano (Le) in honor of Rare Disease Day in Italy.
Illumination of Archie Graham Community Centre in honor of Rare Disease Day in Australia.
TOMAS Y RODRIGO ABANDERADOS DE LAS EPOF Argentina Por séptimo año consecutivo, 28 febrero en el #DíaMundialEPOF en el arrío...
Illumination of Dreifaltigkeitssäule Rathausplatz St. Pölten in honor of Rare Disease Day in Austria.
Awareness & Management of Rare Diseara Webinar by Women’s Forum of IPGA AP
Illumination of Ayuntamiento de Sevilla in honour of Rare Disease Day in Spain
Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.
On Monday, the sky lights up a little extra over Lilla Amundön when Ågrenska draws attention to the Rare Day....
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Castelo de Bragança – Bragança in honor of Rare Disease Day in Portugal.
Illumination of Teatro Herberia di Rubiera in honor of Rare Disease Day in Italy.
Illumination of Palazzo del Municipio Di Gattatico in honor of Rare Disease Day in Italy.
Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Huércal de Almería in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates Headquarters of the Regional Unit of Etoloakarnania in honor of Rare Disease Day in Mesologgi,...
Illumination of Box Hill’s town hall in honor of Rare Disease Day in Australia.
La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...
The NGO called Cetatea Voluntarilor is the constant partner of Romanian National Alliance for Rare Diseases in organizing events to...
Illumination of The Helmsley Building, 230 Park Ave NYC in honor of Rare Disease Day in USA.
Illumination of Palaia in honor of Rare Disease Day in Italy.
Illumination of the Optum Frontier Therapies Pharmacy Flint in honor of Rare Disease Day in the United-States.
The Rare Links webinar series aims to provide a platform where national and international experts can share their knowledge and...
On February 28 in the Rooms Hotel Tbilisi the press conference dedicated to the Rare Disease Day has been held....
Illumination of Complesso Santa Sabina in honor of Rare Disease Day in Italy.
We illuminated our school building with the colors of rare diseases
Illumination of Catenary Lights in honor of Rare Disease Day in Australia.
The last day of February is recognized as Rare Disease Day. We at SickKids, are proud to join the many...
Illumination of Wharton Reef Lighthouse in honor of Rare Disease Day in Australia.
Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will be illuminated in honour of...
Illumination of Stuttgarter Bahnhof in honour of Rare Disease Day in Germany
During the classes we gave a support for the Rare through out different kind of activities like singing songs, playing...
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Comune di Seveso in honor of Rare Disease Day in Italy.
Gateshead Millennium Bridge will be joining other landmarks in lighting up in support of Rare Disease day .
We are attempting to row 30million meters in honor of the 30million living with rare disease in the US. Anyone...
Lighting up the tallest tower in East Africa, Kenyan style!!
Join us February 28th for a presentation with Dr. Tim Call from the Mayo Clinic. The Mayo Clinic is an...
Art Contest – Send your drawings by March 31 – By post: Fondation René Touraine // Hôpital Necker – Enfants...
Illumination of Fontana luminosa – Piazza Battaglione Alpini in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Firenze will light up of rare disease colours
Illumination of Rocca Malatestiana in honor of Rare Disease Day in Italy.
llumination of the City Hall (Urząd Miejski) in Bytów in honour of Rare Disease Day in Poland. It will happen...
Illumination of Municipio di pressana in honor of Rare Disease Day in Italy.
February 28 is the day of awareness of rare diseases, and the Rebeca Faith-Hope-Love Association marks this day with this...
Illumination of Wells Fargo Duke Energy Center in honor of Rare Disease Day in USA.
Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.
Illumination of Place Stanislas in honour of Rare Disease Day in France
Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...
Illuminazione
Illumination of the Henry B. González Convention Center in honor of Rare Disease Day in the United States.
Illumination of The Navigators at the Koombana Drive roundabout in honor of Rare Disease Day in Australia.
Illumination of Ayuntamiento de Valencia in honour of Rare Disease Day in Spain
Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.
Illumination of Marlston Hill Lookout in honor of Rare Disease Day in Australia.
Illumination of Palazzo Comunale di Vico Equense in honor of Rare Disease Day in Italy.
We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...
Illumination of the Alamo Quarry Market smoke stacks in honor of Rare Disease Day in the United States.
Illumination of Venado Tuerto in honour of Rare Disease Day in Argentina
Illumination of Parc Phoenix in honour of Rare Disease Day in France
Conversatorios con especialistas, personas que viven con enfermedades raras y personas cuidadoras.
Banja Luka City, along with hundreds of other cities was a part of the “Chain of light” which aims to...
Illumination of Rathaus Spandau Berlin in honour of Rare Disease Day in Germany
Illumination of Mooroopna Water Tower in honor of Rare Disease Day in Australia.
Illumination of Marburg´s Historical University in honour of Rare Disease Day in Germany
Illumination of Cascata Grande dei Liri in honor of Rare Disease Day in Italy.
Esta noche los edificios municipales de La Nucía se iluminan de “verde” por “Día Mundial de las Enfermedades Raras”, a...
Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.
Illumination of Melbourne Cricket Ground in honor of Rare Disease Day in Australia.
The Arkansas State University clock tower will be lit up in honor of Rare Disease Day.
Lights on Rare Disease – Vercelli will light up of rare disease colours
In time for #RareDiseaseDay, our host Lelainia and Founder and Executive Director of the Sumaira Foundation, Sumaira Ahmed, discuss what...
Illumination of Pont de Recouvrance in honour of Rare Disease Day in France
Illumination of Palazzo Estense (Palazzo Comunale) – Varese in honor of Rare Disease Day in Italy.
Um quiz no Facebook com questões sobre doença rara mitocondrial, podendo ganhar 3 prémios! | A quiz on Facebook with...
Illumination of Porta Romana Fumone in honor of Rare Disease Day in Italy.
Illumination of Sky Ribbon in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece illuminates Μunicipal theatre in honor of Rare Disease Day in Pefki, Greece.
Illumination of Olivia Hall Gdańsk in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...
This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...
Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany
Illumination of Porta d’ingresso al borgo storico in honor of Rare Disease Day in Italy.
Illumination of Victoria Bridge in honor of Rare Disease Day in Australia.
Illumination of Il Campanone della Brianza in honor of Rare Disease Day in Italy.
Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...
Illumination of Larnaca Medieval Castle in honor of Rare Disease Day in Cyprus.
Illumination of Porta San Niccolò in honor of Rare Disease Day in Italy.
Illumination of La Cappella di Piazza del Campo in honor of Rare Disease Day in Italy.
Illumination of Panevezys City Municipality’s Administration building in honor of Rare Disease Day in Lithuania.
Illumination of Adelaide Oval in honor of Rare Disease Day in Australia.
Illumination of Monumento “La Mamma Ciociara” in honor of Rare Disease Day in Italy.
Illumination of St. Barbara Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.
Illumination of Fuente de la Réplica del submarino de Isaac Peral de Cartagena in honour of Rare Disease Day in Spain
Illumination of Emigration Museum in honour of Rare Disease Day in Poland
Illumination of Porta alla Croce in honor of Rare Disease Day in Italy.
Illumination of Mounts Street Bridge in honor of Rare Disease Day in Australia.
Join the global Rare Disease Day event organised by the NGO Committee for Rare Diseases, the Ågrenska Foundation, RDI, and...
Illumination of City Hall Oradea in honor of Rare Disease Day in Romania.
Illumination of Katharinenturm Magdeburg in honour of Rare Disease Day in Germany
Illumination of San Genesio in honor of Rare Disease Day in Italy.
Illumination of Grand Place in honour of Rare Disease Day in France
Illumination of Fontana del Tritone – Piazza Garibaldi – Caltanissetta in honor of Rare Disease Day in Italy.
Illumination of Mining house in honour of Rare Disease Day in Czech Republic.
Illumination of Edifício dos Paços do Concelho – Santarém in honor of Rare Disease Day in Portugal.
Illumination of Wolkenhain der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
On Rare Disease Day 28.02.2022 1:00 PM EST Documentary Short Film Premier A Mother & Son Journey of Healing created...
Illumination of Sede del Municipio di Fontaniva in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Nociglia in honor of Rare Disease Day in Italy.
Illumination of Albany Grain Terminal Silo in honor of Rare Disease Day in Australia.
Illumination of Spodek in honour of Rare Disease Day in Poland
Join our Hybrid Event on the 28th of February in commemorating #RareDiseaseDay2022 by helping us raise awareness about rare diseases...
Illumination of Fontana del Teatro Valli in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the building “Loggia” in honor of Rare Disease Day in Heraklion, Greece.
Illumination of Dziedziniec Urzędu Miasta Poznania wraz z Placem Kolegiackim in honour of Rare Disease Day in Poland
Illumination of Amiens’ town hall in honour of Rare Disease Day in France
Welcome to Rare Disease Day 2022 at Royal Holloway. We hope you can attend. On Monday 28 February 2022, 10...
Illumination of Municipio di Pistoia in honor of Rare Disease Day in Italy.
Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...
In the year 2021-2022, Rare Disease Genetics and Genomics Research at Centre for Omic Sciences, Islamia College Peshawar has successfully...
Illumination of Ayuntamiento de Dos Hermanas in honour of Rare Disease Day in Spain
Lights on Rare Disease – Rimini will light up of rare disease colours
Illumination of Igreja de Santiago – Óbidos in honor of Rare Disease Day in Portugal.
Join the global initiative calling on everyone to help raise awareness of the rare disease community and unite all of...
Illumination of Emergency University Hospital Bucharest in honor of Rare Disease Day in Romania.
Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.
Illumination of Schlosskirche Lutherstadt Wittenberg in honour of Rare Disease Day in Germany
Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...
Illumination of Palazzo Cavarretta – sede del Consiglio Comunale Città di Trapani in honor of Rare Disease Day in Italy.
Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.
Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...
Lights on Rare Disease – Cittadella will light up of rare disease colours
Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany
Illumination of Broadmeadows Town Hall in honor of Rare Disease Day in Australia.
With the help of Beck-Fahrner syndrome families, six Minnesota landmarks will be joining the global chain of lights by illuminating...
Illumination of Maschio Angioino – Napoli in honor of Rare Disease Day in Italy.
Illumination of Torre Mangana in honour of Rare Disease Day in Spain
Das Forum ist eine virtuelle Informationsveranstaltung insbesondere adressiert an Patienten. Die Referenten sind sowohl Ärzte wie auch Betroffene, die aus...
Illumination of Puentes de la Alameda de Talavera in honour of Rare Disease Day in Spain
Illumination of Edifício da Câmara Municipal – Castelo Branco in honor of Rare Disease Day in Portugal.
Illumination of Castello di Lari in honor of Rare Disease Day in Italy.
In coordination with the National Parks Development Committee, the Rizal Monument was illuminated in purple for Rare Disease Day as...
Illumination of Schloss Hainewalde in honour of Rare Disease Day in Germany
Illumination of Palazzo Comunale di Ponte Buggianese in honor of Rare Disease Day in Italy.
Illumination of Malop Street in honor of Rare Disease Day in Australia.
Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.
Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain
In 2022, the eighth annual International Rare Disease Day online conference will take place at the Sheba Medical Center, with...
Lights on Rare Disease – Procida will light up of rare disease colours
Illuminations for Rare Disease Day 2022 in Poland: City Hall | Bytów Neptune’s Fountain | Gdańsk Olivia Hall |...
Illumination of Rouen’s town hall in honour of Rare Disease Day in France
Illumination of Northbridge Tunnel in honor of Rare Disease Day in Australia.
Illumination of Plac Litewski in honour of Rare Disease Day in Poland
Illumination of Ministry of Health in honor of Rare Disease Day in Cyprus.
Illumination of Zentrum für Seltene Erkrankungen am Uniklinik Freiburg in honour of Rare Disease Day in Germany
“95” Rare Alliance Greece illuminates the Town Hall of Florina in honor of Rare Disease Day.
En el mes de Febrero se llevó a cabo el evento virtual ‘Enfermedades Raras en Latino América: diálogo con expertos’...
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
We will light the national museum for the first time in lebanon
Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...
Subir más de 2.000 escalones
Lights on Rare Disease – Mantova will light up of rare disease colours
Illumination of VNG AG Hauptsitz Leipzig in honour of Rare Disease Day in Germany
San Diego County Administration Center, Landmark building, will #LightUpforRare. This lighting was organized by ADCY5.org to raise awareness for all...
Illumination of Casas Colgadas de Cuenca in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...
Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.
Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...
An online chat/video sharing information about POMC and how it effects our life
Mes Raro consists in two main activities: Mesas Raras Live and Arte Raro, the first one will be a series...
Illumination of Palazzo di Città di Potenza in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Locri will light up of rare disease colours
RDD street campaign
Illumination of Uniklinikum Magdeburg in honour of Rare Disease Day in Germany
Illumination of Loggia del Palazzo della Ragione in honor of Rare Disease Day in Italy.
Illumination of Palazzo comunale Nuoro in honor of Rare Disease Day in Italy.
Illumination of Iglica Międzynarodowych Targów Poznańskich in honour of Rare Disease Day in Poland
The most important museum of art of Andorra participates in the building illumination for rare disease day.
Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...
Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.
We will be placing colorful Pinwheels in the lawn of the capital to signify patients who live in or have...
Illumination of Palazzo Municipale del Comune di Barano d’Ischia (NA) in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho – Guarda in honor of Rare Disease Day in Portugal.
Wear jeans and learn more about Rare Disease Day to raise awareness for the many rare diseases in our area.
Illumination of the University Health Robert B. Green Campus in honor of Rare Disease Day in the United States.
Illuminazione del Municipio
Illumination of The SUNY Plaza in honor of Rare Disease Day in USA.
Illumination of TOkna w Sali Sesyjnej w Sukiennicach, Wrocław in honor of Rare Disease Day in Poland.
Illumination of Collegium Carolinum in honour of Rare Disease Day in Czech Republic.
🙌🏻 𝐃𝐢́𝐚 𝐌𝐮𝐧𝐝𝐢𝐚𝐥 𝐝𝐞 𝐥𝐚𝐬 𝐄𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬 𝐑𝐚𝐫𝐚𝐬 💜💜💜👚 👚👚 Los invitamos al FORO: 𝐄𝐥 𝐚𝐛𝐨𝐫𝐝𝐚𝐣𝐞 𝐝𝐞 𝐥𝐚𝐬 𝐩𝐞𝐫𝐬𝐨𝐧𝐚𝐬 𝐜𝐨𝐧 𝐞𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬...
Illumination of Presidential Palace in honor of Rare Disease Day in Cyprus.
“95” Rare Alliance Greece illuminates the Central Pedestrian Bridge of Trikala in honor of Rare Disease Day, Greece.
Lights on Rare Disease – L’Aquila will light up of rare disease colours
Illumination of St. Elisabeth Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain
Students from different Departments of University participate in it
“95” Rare Alliance Greece illuminates the Innovathens building of Technopolis City of Athens in honor of Rare Disease Day, Greece.
Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain
Rare disease awareness event
Illumination of FDA in honor of Rare Disease Day in USA.
Lights on Rare Disease – Municipality of Ferrara, in cooperation with Teatro Comunale di Ferrara, will light up of rare...
Illumination of Palazzo del fanciullo – Matino in honor of Rare Disease Day in Italy.
Illumination of Casa Comunale – Roccamena (Pa) in honor of Rare Disease Day in Italy.
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
Illumination of the Dr. von Hauner Children’s Hospital in honour of Rare Disease Day in Germany
Illumination of Municipio di Gravellona Toce in honor of Rare Disease Day in Italy.
In Aguascalientes, Mexico, the geneticist doctor of our son Juan Diego, who has Phelan Mcdermid syndrome, managed to light up...
Illumination of Yagan Square in honor of Rare Disease Day in Australia.
Illumination of Mid Hudson Bridge in honor of Rare Disease Day in USA.
Illumination of Central Bank Boardwalk in honor of Rare Disease Day in Australia.
Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.
Illumination of Comune di Rufina in honor of Rare Disease Day in Italy.
Illumination of Torre dei Da Pendolasco in honor of Rare Disease Day in Italy.
Illumination of Trafalgar Bridge in honor of Rare Disease Day in Australia.
Illumination of Laimer Würfel München in honour of Rare Disease Day in Germany
Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.
Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.
Rare Disease Day in Zimbabwe 2022! #LIGHTUPFORRARE
Illumination of Palazzo comunale di Cellamare in honor of Rare Disease Day in Italy.
Illumination of Craneosaurs of Żegluga Szczecińska & Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in...
Un accordo di collaborazione tra Orphanet, Ospedale Pediatrico Bambino Gesù e OMaR e tante iniziative rivolte ai pazienti e alle...
DGIESP / VIRTUAL4 le está invitando a una reunión de Zoom programada. Tema: VIRTUAL 4 DNOT IV Seminario Internacional por...
Illumination of Biogen Tower München in honour of Rare Disease Day in Germany
On the 28th of february at 7 pm cairo local time, sharing with the “global light up for rare” chain,...
Illumination of Vecchia Sede Comunale in honor of Rare Disease Day in Italy.
Illumination of Municipio di Montagna in Valtellina in honor of Rare Disease Day in Italy.
Illumination of Passaggio Joyce, detto “Ponte Curto” in honor of Rare Disease Day in Italy.
Illumination of Torretta sede dell’Ufficio Territoriale in honor of Rare Disease Day in Italy.
Illumination of City Hall in honor of Rare Disease Day in USA.
Illumination of Rotunda dos Golfinhos – Setúbal in honor of Rare Disease Day in Portugal.
Illumination of Council House in honor of Rare Disease Day in Australia.
Illumination of Reggia di Caserta in honor of Rare Disease Day in Italy.
Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.
Illumination of Queensland Country Bank Stadium in honor of Rare Disease Day in Australia.
Illumination of ex Convento dei Domenicani Cavallino (Le) in honor of Rare Disease Day in Italy.
Illumination of George Roberts Bridge in honor of Rare Disease Day in Australia.
Illumination of Torre civica in honor of Rare Disease Day in Italy.
Illumination of Teatro Valli in honor of Rare Disease Day in Italy.
Lights on Rare Disease – Montagnana will light up of rare disease colours
Illumination of Istituto comprensivo in honor of Rare Disease Day in Italy.
We are opening our cafe for the very first time and asking our customers to get out their animal prints...
Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Marbella in honour of Rare Disease Day in Spain
Illumination of Palazzo Comunale di Corbetta in honor of Rare Disease Day in Italy.
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Bytów’s town hall in honour of Rare Disease Day in Poland