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2nd Global Summit on Biomedical Engineering and Systems (GSBES2023)

25 May 2023 to 27 May 2023 Brussels, Belgium

Dear Colleagues, It is a great pleasure to announce that The Scientistt will host the 2nd Global Summit on Biomedical...

MENA Organization for Rare Diseases Anual Meeting 2023

3 Mar 2023 to 5 Mar 2023 Dubai, United Arab Emirates

MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...

In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals. More than 7,000 rare...

Rare Disease Day at Nationwide Children's Hospital

28 Feb 2023 Columbus, Ohio, United States

Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and...

1st International UAE Rare Disease Society Congress

25 Feb 2023 to 26 Feb 2023 Dubai, United Arab Emirates

On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...

SpectacuRARE Fest 2023

3 Dec 2022 to 11 Mar 2023 Virtual, Jabodetabek, Indonesia

SpectacuRARE Fest 2023 diselenggarakan oleh Indonesia CARE for RARE Diseases (IC4RD). Terdiri dari rangkaian acara virtual. Acara puncak akan dilaksanakan...

Are you ready to get involved in #RareDiseaseDay and help raise awareness for your community? We are here to help!...

We will have information stands from some of Ireland’s leading charities, including: Jack and Jill Foundation, Inclusion Ireland, Family Carers...

Palliative care is a common practice in patients with chronic, disabling diseases and end-of-life cases. In paediatrics, palliative care requires...

AHC WEBINAR

17 Sep 2022 Barcelona, Spain

AESHA, Cure AHC Chile and Hospital Sant Joan de Déu (Barcelona, ​​Spain) are organising the first informative webinar in Spanish...

Steps for Skye 2022

1 Aug 2022 to 31 Aug 2022 Ballarat, Australia

STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...

Mosa Conference

21 Jun 2022 to 22 Jun 2022 Maastricht, Netherlands

The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...

Annual Golf Outing

8 Jun 2022 Cleveland, United States

Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.

On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...

POLAND SYNDROME AWARENESS DAY PUB LUNCH

30 Apr 2022 Sydney, NSW, Australia

12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.

In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...

In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...

𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...

Théâtre-débat "Vivre avec ma maladie rare"

30 Mar 2022 La Roche sur Yon, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

LIGHTING UP THE MUNICIPAL LIBRARY OF KOZANI

28 Mar 2022 Kozani, Greece

“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.

Open seminar around the rare diseases

25 Mar 2022 to 26 Mar 2022 Sant Julià de Lòria, Andorra

The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...

Théâtre-débat "Vivre avec ma maladie rare"

23 Mar 2022 Saint-Nazaire, France

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Théâtre-débat "Vivre avec ma maladie rare"

17 Mar 2022 Le Mans, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...

RDD AOZORA REPUBLIC (YAMANASHI)

12 Mar 2022 Hokuto, Yamanashi, Japan

WEBINAR Patient Family Exchange Meeting

FEMEXER y ULAPA invitan

11 Mar 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Neues aus der ARVC-Forschung (News from ARVC research)

9 Mar 2022 Munich (Online), Germany

3 online lectures on ARVC research with following Q&A

Educational lecture for students

7 Mar 2022 Online, Serbia

Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...

Charity Basketball Match. Partit en benefici d'AMMA

6 Mar 2022 Andorra La Vella, Andorra

Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...

RareDIG Rare Disease Day 2022

6 Mar 2022 Montreal, Canada

More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....

IPASSI: what's new?

5 Mar 2022 Naples, Italy

A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...

Rare Disease Day Celebration

5 Mar 2022 Atlanta, United States

Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!

RDD CHIBA

5 Mar 2022 Chiba, Japan

WEBINAR Online Well Festa 2022 with RDD in Chiba

As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...

Tag der Seltenen Erkrankungen in Mainz

4 Mar 2022 Mainz, Germany

Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...

A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...

Selten sind viele

4 Mar 2022 to 5 Mar 2022 Freiburg im Breisgau, Germany

Online – Veranstaltung

Rare Disease Day - Lombardia

3 Mar 2022 Milano, Italy

L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...

IT, innovation and Rare Diseases webinar

3 Mar 2022 Buenos Aires, Argentina

Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...

H4B Boston Living Rooms of Rare

3 Mar 2022 Boston, United States

In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...

Semana de las Enfermedades Raras

2 Mar 2022 to 4 Mar 2022 La Paz, Bolivia

El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...

A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...

Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.

An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...

“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...

In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...

Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...

Lighting up Schloss Hainewalde – Germany

28 Feb 2022 Hainewalde, Germany

Illumination of Schloss Hainewalde in honour of Rare Disease Day in Germany

Lighting up Archi di Palazzo Catena

28 Feb 2022 Asti , Italy

Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.

Illumination of Casas Colgadas de Cuenca in honour of Rare Disease Day in Spain

Lighting up Palaia

28 Feb 2022 Pisa, Italy

Illumination of Palaia in honor of Rare Disease Day in Italy.

Lighting up Fremantle Prison

28 Feb 2022 Fremantle, Australia

Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.

Lighting up Festspielhaus St. Pölten

28 Feb 2022 to 5 Mar 2022 St Polten, Austria

Illumination of Festspielhaus St. Pölten in honor of Rare Disease Day in Austria.

“95” Rare Alliance Greece illuminates the Innovathens building of Technopolis City of Athens in honor of Rare Disease Day, Greece.

Lights on Rare Disease - Mantova

28 Feb 2022 Mantova, Italy

Lights on Rare Disease – Mantova will light up of rare disease colours

Illumination of ex Convento dei Domenicani Cavallino (Le) in honor of Rare Disease Day in Italy.

Lighting up Piazza Duomo palazzo di Città

28 Feb 2022 Catania, Italy

Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.

Lighting up Rotunda dos Golfinhos – Setúbal

28 Feb 2022 Setúbal, Portugal

Illumination of Rotunda dos Golfinhos – Setúbal in honor of Rare Disease Day in Portugal.

Light Up For Rare at Yocum Institute

28 Feb 2022 West Lawn, Pennsylvania, United States

Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.

Lighting up Box Hill's town hall - Australia

28 Feb 2022 Box Hill, Australia

Illumination of Box Hill’s town hall in honor of Rare Disease Day in Australia.

Illumination of Iglica Międzynarodowych Targów Poznańskich in honour of Rare Disease Day in Poland

La marcha paciente EPOF

28 Feb 2022 varias, Argentina

Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...

Lighting up FDA

28 Feb 2022 to 4 Mar 2022 Harrisburg, United States

Illumination of FDA in honor of Rare Disease Day in USA.

Illumination of Edifício dos Paços do Concelho – Guarda in honor of Rare Disease Day in Portugal.

Illumination of Ayuntamiento de Casares in honour of Rare Disease Day in Spain

ERN ReCONNET, the European Reference Network for Rare and Complex Connective Tissue Diseases, renews its appointment with the illumination of...

Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France

Illumination of Elementary school and Practical school in honour of Rare Disease Day in Czech Republic.

Light Up San Diego, CA County Administration Center

28 Feb 2022 San Diego, United States

San Diego County Administration Center, Landmark building, will #LightUpforRare. This lighting was organized by ADCY5.org to raise awareness for all...

Lighting up NoRo Center

28 Feb 2022 Zalău, Romania

Illumination of NoRo Center in honor of Rare Disease Day in Romania.

Rare Disease Day

28 Feb 2022 Cape Town, South Africa

The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...

Lighting up Wells Fargo Duke Energy Center

28 Feb 2022 North Carolina, United States

Illumination of Wells Fargo Duke Energy Center in honor of Rare Disease Day in USA.

Lighting up Castello di Lari

28 Feb 2022 Lari, Italy

Illumination of Castello di Lari in honor of Rare Disease Day in Italy.

Illumination of Edifício dos Paços do Concelho – Santarém in honor of Rare Disease Day in Portugal.

Lighting up TV Tower - Tbilisi, Georgia

28 Feb 2022 Tbilisi, Georgia

Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.

Dia Mundial das Doenças Raras

28 Feb 2022 Sintra | Agualva Mira Sintra, Portugal

A Junta de Freguesia de Agualva Mira Sintra no dia 28 de fevereiro irá assinalar o Dia das Doenças Raras...

Lighting up Greenbrier - United-States

28 Feb 2022 White Sulphur Springs, United States

Illumination of Greenbrier in honor of Rare Disease Day in the United-States.

Lighting up Ayuntamiento de La Carolina – Spain

28 Feb 2022 La Carolina, Spain

Illumination of Ayuntamiento de La Carolina in honour of Rare Disease Day in Spain

LIGHTING UP THE WHITE TOWER OF THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.

Lighting up Sede del Municipio di Fontaniva

28 Feb 2022 Fontaniva, Italy

Illumination of Sede del Municipio di Fontaniva in honor of Rare Disease Day in Italy.

Illumination of Torretta sede dell’Ufficio Territoriale in honor of Rare Disease Day in Italy.

A Rare Disease Day Celebration hosted by NORD

28 Feb 2022 Virtual, United States

NORD invites you to wear your favorite zebra print shirt or a striped scarf and meet online for a community...

Lighting up The Helmsley Building, 230 Park Ave NYC

28 Feb 2022 New York, United States

Illumination of The Helmsley Building, 230 Park Ave NYC in honor of Rare Disease Day in USA.

Lighting up Comune di Mestre

28 Feb 2022 Venezia, Italy

Illumination of Comune di Mestre in honor of Rare Disease Day in Italy.

Lighting up Fontana Piazza Umberto I

28 Feb 2022 Calascibetta , Italy

Illumination of Fontana Piazza Umberto I in honor of Rare Disease Day in Italy.

Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.

LIGHTING UP THE TOWN HALL OF FLORINA

28 Feb 2022 Florina, Greece

“95” Rare Alliance Greece illuminates the Town Hall of Florina in honor of Rare Disease Day.

Lighting up Torre dei Da Pendolasco

28 Feb 2022 Poggiridenti , Italy

Illumination of Torre dei Da Pendolasco in honor of Rare Disease Day in Italy.

¿Lo tenemos claro?

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Quienes trabajamos en México por las personas que viven con enfermedades raras debemos tener claro cuáles son nuestros derechos.

Lighting up Wells Fargo Tower - United-States

28 Feb 2022 Minneapolis, United States

Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.

Lighting up Medical University Carol Davila

28 Feb 2022 Bucharest, Romania

Illumination of Medical University Carol Davila Bucharest in honor of Rare Disease Day in Romania.

A Friendship Story

28 Feb 2022 Talamona, Italy

This lesson plan is a proposal that we address to the teachers of our schools. The goal is to help...

Illumination of Dipartimento di Medicina della Università Aldo Moro in honor of Rare Disease Day in Italy.

Avances en Neuropatías Inflamatorias

28 Feb 2022 Online, Spain

First Inflammatory Neuropathies’ Virtual Conference in Spanish.

Lighting up l'Ours Pompon – France

28 Feb 2022 Dijon, France

Illumination of l’Ours Pompon in honour of Rare Disease Day in France

Lights on Rare Disease - Trapani

28 Feb 2022 Trapani, Italy

Lights on Rare Disease – Trapani will light up of rare disease colours

Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...

Lighting up Sky Ribbon

28 Feb 2022 Perth , Australia

Illumination of Sky Ribbon in honor of Rare Disease Day in Australia.

Illumination of Ayuntamiento de Cádiz in honour of Rare Disease Day in Spain

Illumination of Zentrum für Seltene Erkrankungen am Uniklinik Freiburg in honour of Rare Disease Day in Germany

Illumination of Wolkenhain der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Lighting up Palazzo Comunale di Ponte Buggianese

28 Feb 2022 Ponte Buggianese, Italy

Illumination of Palazzo Comunale di Ponte Buggianese in honor of Rare Disease Day in Italy.

Lighting up Central Bank Boardwalk - Australia

28 Feb 2022 Queensland, Australia

Illumination of Central Bank Boardwalk in honor of Rare Disease Day in Australia.

Lighting up Rotonda all'inizio di Camporosso

28 Feb 2022 Bordighera , Italy

Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.

In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...

La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...

On this year’s International Day of Rare Diseases, the Lithuanian Association of Patients with Genetic Neuromuscular Diseases “Sraunia” invites to...

Lighting up Piazza Verdi

28 Feb 2022 Grottaglie , Italy

Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.

Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...

This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...

Lighting up Palazzo Nieddu del Rio

28 Feb 2022 Locri , Italy

Illumination of Palazzo Nieddu del Rio in honor of Rare Disease Day in Italy.

Lighting up Parlamento Vasco – Spain

28 Feb 2022 Gasteiz, Spain

Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain

Light up Event in Zimbabwe

28 Feb 2022 Harare, Zimbabwe

Rare Disease Day in Zimbabwe 2022! #LIGHTUPFORRARE

Lighting up Larnaca Medieval Castle

28 Feb 2022 Larnaca, Cyprus

Illumination of Larnaca Medieval Castle in honor of Rare Disease Day in Cyprus.

Dunya Nadir Hastaliklar Gunu, Nadir Hastaliklarda Tani Yolculugu temasi ile 28 Subat 2022 tarihinde cevrimici etkinlik olarak duzenlenecek.

Lighting up Pont de Recouvrance – France

28 Feb 2022 Brest, France

Illumination of Pont de Recouvrance in honour of Rare Disease Day in France

Lighting up Townsville

28 Feb 2022 Townsville , Australia

We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...

Illumination of Passaggio Joyce, detto “Ponte Curto” in honor of Rare Disease Day in Italy.

Lighting up Melbourne Cricket Ground - Australia

28 Feb 2022 Melbourne, Australia

Illumination of Melbourne Cricket Ground in honor of Rare Disease Day in Australia.

Lighting up Wait Chapel at Wake Forest University

28 Feb 2022 North Carolina, United States

Illumination of Wait Chapel at Wake Forest University  in honor of Rare Disease Day in USA.

Lighting up Uniklinikum Magdeburg – Germany

28 Feb 2022 Magdeburg, Germany

Illumination of Uniklinikum Magdeburg in honour of Rare Disease Day in Germany

Illumination of Novartis office in Nürnberg in honour of Rare Disease Day in Germany

LIGHTING UP THE ΜUNICIPAL THEATRE OF PEFKI

28 Feb 2022 Pefki, Athens, Greece

“95” Rare Alliance Greece illuminates Μunicipal theatre in honor of Rare Disease Day in Pefki, Greece.

Lighting up Neptune's Fountain - Poland

28 Feb 2022 Gdańsk, Poland

Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland     fot. redwedding.pl – Piotr Połoczański

Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.

Illumination of Palazzo Estense (Palazzo Comunale) – Varese in honor of Rare Disease Day in Italy.

Enfermedaes Raras en Endocrinologia

28 Feb 2022 Caracas, Venezuela

Será una reunión por zoom, cuyo objetivo es concientizar a médicos sobre la existencia de enfermedades raras e Endocrinologia, donde...

LIGHTING IT UP - GTC TOWER

28 Feb 2022 Nairobi, Kenya

Lighting up the tallest tower in East Africa, Kenyan style!!

Illumination of Palazzo del fanciullo – Matino in honor of Rare Disease Day in Italy.

Lighting up Municipio Concordia Sagittaria (Ve)

28 Feb 2022 Concordia Sagittaria, Italy

Illumination of Municipio Concordia Sagittaria (Ve) in honor of Rare Disease Day in Italy.

Lighting up Porta San Niccolò

28 Feb 2022 Firenze, Italy

Illumination of Porta San Niccolò in honor of Rare Disease Day in Italy.

Lighting up Municipio di Prato Sesia

28 Feb 2022 Sesia, Italy

Illumination of Municipio di Prato Sesia in honor of Rare Disease Day in Italy.

Lighting up Rocca Malatestiana

28 Feb 2022 Cesena, Italy

Illumination of Rocca Malatestiana in honor of Rare Disease Day in Italy.

Lighting up Ayuntamiento de Villatorres – Spain

28 Feb 2022 Villargordo, Spain

Illumination of Ayuntamiento de Villatorres in honour of Rare Disease Day in Spain

Lighting up Palazzo Comunale di Nociglia

28 Feb 2022 Lecce, Italy

Illumination of Palazzo Comunale di Nociglia in honor of Rare Disease Day in Italy.

Lighting up Il Campanone della Brianza

28 Feb 2022 Lecco, Italy

Illumination of Il Campanone della Brianza in honor of Rare Disease Day in Italy.

Lighting up Castel Sismondo

28 Feb 2022 Rimini, Italy

Illumination of Castel Sismondo in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Olgiate Molgora

28 Feb 2022 Olgiate Molgora, Italy

Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Trevignano Romano

28 Feb 2022 Trevignano Romano , Italy

Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.

Ospedale Incontra Filo Diretto con l'Ematologo

28 Feb 2022 Alessandria, Italy

In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Rare Disease Day at Royal Holloway

28 Feb 2022 Egham, United Kingdom

Welcome to Rare Disease Day 2022 at Royal Holloway. We hope you can attend. On Monday 28 February 2022, 10...

Lights on Rare Disease - Procida

28 Feb 2022 Procida, Italy

Lights on Rare Disease – Procida will light up of rare disease colours

“95” Rare Alliance Greece illuminates the Central Pedestrian Bridge of Trikala in honor of Rare Disease Day, Greece.

Lighting up palazzo comunale di Valderice

28 Feb 2022 Valderice, Italy

Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy

Lighting up Palazzo Comunale di Crotone

28 Feb 2022 Crotone, Italy

Illumination of Palazzo Comunale di Crotone in honor of Rare Disease Day in Italy.

Lighting up Frost Tower – United States

28 Feb 2022 San Antonio, United States

Illumination of the Frost Tower in honor of Rare Disease Day in the United States.

Lighting up Parc Phoenix – France

28 Feb 2022 Nice, France

Illumination of Parc Phoenix in honour of Rare Disease Day in France

Lighting up Batumi Stadium - Batumi, Georgia

28 Feb 2022 Batumi, Georgia

Illumination of Batumi Stadium in honor of Rare Disease Day in Georgia.

Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.

Lighting up Ayuntamiento de Huércal de Almería – Spain

28 Feb 2022 Huércal de Almería, Spain

Illumination of Ayuntamiento de Huércal de Almería in honour of Rare Disease Day in Spain

NADİR HASTALIKLAR FARKINDALIK GÜNÜ AKIM

28 Feb 2022 KAYSERİ, Turkey

Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...

Anglicare WA Lights Up and hosts a Rare Aware Light Projection Show

28 Feb 2022 Perth, Western Australia, Australia

Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...

Lighting up Comune di Rufina

28 Feb 2022 Florence, Italy

Illumination of Comune di Rufina in honor of Rare Disease Day in Italy.

Lighting up Archie Graham Community Centre

28 Feb 2022 Warrnambool , Australia

Illumination of Archie Graham Community Centre in honor of Rare Disease Day in Australia.

Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain

Illumination of the Optum Frontier Therapies Pharmacy Flint in honor of Rare Disease Day in the United-States.

Lighting up Kensington Town Hall

28 Feb 2022 Kensington VIC 3031, Australia

Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.

Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...

Nadir Hastalıklar Günü

28 Feb 2022 to 1 Mar 2022 Ankara, Turkey

Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...

Lighting up Palazzo Municipale di Livorno

28 Feb 2022 Livorno, Italy

Illumination of Palazzo Municipale di Livorno in honor of Rare Disease Day in Italy.

This year for Rare Disease Day 2022 we are calling on everyone to help the rare disease community be united...

Illumination of Puentes de la Alameda de Talavera in honour of Rare Disease Day in Spain

Lighting up Plac Litewski - Poland

28 Feb 2022 Lublin, Poland

Illumination of Plac Litewski in honour of Rare Disease Day in Poland

Lighting up Guppy Park

28 Feb 2022 Bunbury , Australia

Illumination of Guppy Park in honor of Rare Disease Day in Australia.

Lighting up Sede de Emuasa – Spain

28 Feb 2022 Murcia, Spain

Illumination of Sede de Emuasa in honour of Rare Disease Day in Spain

Lighting up Cascate Monumentali - Leuca

28 Feb 2022 Leuca , Italy

Illumination of Cascate Monumentali in honor of Rare Disease Day in Italy.

Lighting up Olivia Hall Gdańsk - Poland

28 Feb 2022 Gdańsk, Poland

Illumination of Olivia Hall Gdańsk in honour of Rare Disease Day in Poland     fot. redwedding.pl – Piotr Połoczański

“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...

We illuminated our school building with the colors of rare diseases

Lighting up Rouen's town hall – France

28 Feb 2022 Rouen, France

Illumination of Rouen’s town hall in honour of Rare Disease Day in France

4th Rare Disease Day Training Meeting will be held online with the attendance of Turkish Ministry of Health, academics, members...

Lighting up The Big Banana

28 Feb 2022 Newcastle, Australia

Illumination of The Big Banana Fun Park in honor of Rare Disease Day in Australia.

Lighting up Palazzo di Città di Augusta

28 Feb 2022 Augusta, Italy

Illumination of Palazzo di Città di Augusta in honor of Rare Disease Day in Italy.

Journée Internationale des Maladies Rares

28 Feb 2022 Amiens, France

L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...

Lighting up Municipio di Verbania

28 Feb 2022 Verbania, Italy

Illumination of Municipio di Verbania in honor of Rare Disease Day in Italy.

Lighting up the Czech Republic Pavilion EXPO 2020

28 Feb 2022 Dubai, United Arab Emirates

Illumination of Czech Republic Pavilion EXPO 2020 in honour of Rare Disease Day worldwide.

Lighting up Northbridge Tunnel

28 Feb 2022 Perth, Australia

Illumination of Northbridge Tunnel in honor of Rare Disease Day in Australia.

Rare disease day

28 Feb 2022 Beirut, Lebanon

We will light the national museum for the first time in lebanon

Lighting up The SUNY Plaza

28 Feb 2022 New York, United States

Illumination of The SUNY Plaza in honor of Rare Disease Day in USA.

Lighting up Fontana di Piazza Ordelaffi

28 Feb 2022 Cesena, Italy

Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.

La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...

Lighting up Palazzo del Podestà - Bologna

28 Feb 2022 Bologna, Italy

Illumination of Palazzo del Podestà – Bologna in honor of Rare Disease Day in Italy.

Lighting up Victoria Bridge

28 Feb 2022 South Brisbane , Australia

Illumination of Victoria Bridge in honor of Rare Disease Day in Australia.

Lighting up City Hall Oradea

28 Feb 2022 Oradea, Romania

Illumination of City Hall Oradea in honor of Rare Disease Day in Romania.

Lighting up Koombana Bay Foreshore

28 Feb 2022 Bunbury , Australia

Illumination of Koombana Bay Foreshore in honor of Rare Disease Day in Australia.

Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.

Marnaton swim open water

28 Feb 2022 to 27 May 2022 Barcelona, Spain

Birt Hogg Dubbe Syndrome patient, marathoner and now capable to an open water maratón swim.. nothing is impossible! Believe in...

En el mes de Febrero se llevó a cabo el evento virtual ‘Enfermedades Raras en Latino América: diálogo con expertos’...

Lights on Rare Disease - Cittadella (PD)

28 Feb 2022 Cittadella (PD), Italy

Lights on Rare Disease – Cittadella will light up of rare disease colours

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Lighting up Staatstheater Mainz – Germany

28 Feb 2022 Mainz, Germany

Illumination of Staatstheater Mainz in honour of Rare Disease Day in Germany

Soirée maladies rares à Angers

28 Feb 2022 Angers, France

La 15e édition de la Journée internationale des maladies rares aura lieu le lundi 28 février. Une nouvelle fois, la...

#YoTambienSoyRaro

28 Feb 2022 Madrid, Spain

Subir más de 2.000 escalones

Illuminazione del Municipio

28 Feb 2022 Rogolo, Italy

Illuminazione del Municipio

Illuminazione del Torrione di Spilamberto

28 Feb 2022 Spilamberto , Italy

Illuminazione del Torrione AST Associazione Sclerosi Tuberosa e Associazione Sindrome di Williams E.R. 

On February 28 in the Rooms Hotel Tbilisi the press conference dedicated to the Rare Disease Day has been held....

LIGHTING UP FOR RARE IN RWANDA

28 Feb 2022 Kigali, Rwanda

Illumination of  some building homes and offices with Rare disease day colours in honour of Rare Disease Day in Rwanda:...

The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...

Lighting up Adelaide Oval

28 Feb 2022 North Adelaida, Australia

Illumination of Adelaide Oval in honor of Rare Disease Day in Australia.

Lighting up Tour Tanguy – France

28 Feb 2022 Brest, France

Illumination of Tour Tanguy in honour of Rare Disease Day in France

Illumination of Ayuntamiento de Sevilla in honour of Rare Disease Day in Spain

Illumination of Saint Denis’ town hall in honour of Rare Disease Day in France

Lighting up Opera House Timișoara

28 Feb 2022 Timișoara , Romania

Illumination of Opera House Timișoara in honor of Rare Disease Day in Romania.

Building ilumination

28 Feb 2022 Andorra La Vella, Andorra

The most important museum of art of Andorra participates in the building illumination for rare disease day.

Lighting up Mooroopna Water Tower

28 Feb 2022 Melbourne, Australia

Illumination of Mooroopna Water Tower in honor of Rare Disease Day in Australia.

Lighting up Tête carrée – France

28 Feb 2022 Nice, France

Illumination of Tête carrée in honour of Rare Disease Day in France

Lighting up Emergency University Hospital

28 Feb 2022 Bucharest, Romania

Illumination of Emergency University Hospital Bucharest in honor of Rare Disease Day in Romania.

Lighting up City Hall

28 Feb 2022 Philadelphia, United States

Illumination of City Hall in honor of Rare Disease Day in USA.

“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...

TLK2

28 Feb 2022 Louisville, United States

Walk a lot

Lighting up Sopot's town hall - Poland

28 Feb 2022 Sopot, Poland

Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland

Lighting up Palazzo Comunale di Carmiano

28 Feb 2022 Carmiano , Italy

Illumination of Palazzo Comunale di Carmiano in honor of Rare Disease Day in Italy.

BioPartner, VICO & Ntrans, are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with...

Lights on Rare Disease - Locri

28 Feb 2022 Locri, Italy

Lights on Rare Disease – Locri will light up of rare disease colours

Lighting up Torre Civica

28 Feb 2022 Massignano , Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up Torre dell'acquedotto

28 Feb 2022 Milan, Italy

Illumination of Torre dell’acquedotto in honor of Rare Disease Day in Italy.

Lighting up Katharinenturm Magdeburg – Germany

28 Feb 2022 Magdeburg, Germany

Illumination of Katharinenturm Magdeburg in honour of Rare Disease Day in Germany

LightUp4RD

28 Feb 2022 Ireland, Ireland

Join the global initiative calling on everyone to help raise awareness of the rare disease community and unite all of...

Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.

Illumination of VNG AG Hauptsitz Leipzig in honour of Rare Disease Day in Germany

Illumination of Chiesa S.Maria Assunta palazzo comunale in honor of Rare Disease Day in Italy.

Lighting up Municipio schermo

28 Feb 2022 Piacenza , Italy

Illumination of Municipio schermo in honor of Rare Disease Day in Italy.

Illumination of Ayuntamiento de Totana in honour of Rare Disease Day in Spain

Lighting up Sede Comunale di Caggiano

28 Feb 2022 Caggiano, Italy

Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.

“95” Rare Alliance Greece illuminates Headquarters of the Regional Unit of Etoloakarnania in honor of Rare Disease Day in Mesologgi,...

Lighting up Ayuntamiento de Dos Hermanas – Spain

28 Feb 2022 Dos Hermanas, Spain

Illumination of Ayuntamiento de Dos Hermanas in honour of Rare Disease Day in Spain

Lights on Rare Disease - Pistoia

28 Feb 2022 Pistoia, Italy

Lights on Rare Disease – Pistoia will light up of rare disease colours

Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany

Un accordo di collaborazione tra Orphanet, Ospedale Pediatrico Bambino Gesù e OMaR e tante iniziative rivolte ai pazienti e alle...

Illumination of Fontana di Corso Vittorio Emanuele II in honor of Rare Disease Day in Italy.

PompAbility Film Premieres

28 Feb 2022 to 28 Mar 2022

Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....

Lighting up Willis Tower; Willis Towers Watson

28 Feb 2022 Chicago, United States

Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.

Share your colors

28 Feb 2022 Norwich, United States

We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.

Lighting up Trafalgar Bridge

28 Feb 2022 Perth, Australia

Illumination of Trafalgar Bridge in honor of Rare Disease Day in Australia.

Lighting up Granarone Cerveteri

28 Feb 2022 Rome, Italy

Illumination of Granarone Cerveteri in honor of Rare Disease Day in Italy.

Champion Changemakers: Rare Disease

28 Feb 2022 National, Australia

This Rare Disease Day (28 Feb 2022), join women from three countries creating change in the world of Rare Disease...

Lighting up Palazzo di Città di Potenza

28 Feb 2022 Potenza , Italy

Illumination of Palazzo di Città di Potenza in honor of Rare Disease Day in Italy.

Lighting up Kurilpa Bridge

28 Feb 2022 South Brisbane, Australia

Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.

Lighting up sede Municipio XII

28 Feb 2022 Roma, Italy

Illumination of sede Municipio XII in honor of Rare Disease Day in Italy.

Illumination of Dziedziniec Urzędu Miasta Poznania wraz z Placem Kolegiackim in honour of Rare Disease Day in Poland

LIGHT UP FOR RARE

28 Feb 2022 Castellamonte (Torino), Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...

Facciamo luce sulle malattie rare

28 Feb 2022 Pomigliano d’Arco , Italy

Illuminazione

Lighting up La Baule-Escoublac's town hall – France

28 Feb 2022 La Baule-Escoublac, France

Illumination of La Baule-Escoublac’s town hall in honour of Rare Disease Day in France

The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!

Lighting up Castelo de Bragança – Bragança

28 Feb 2022 Bragança, Portugal

Illumination of Castelo de Bragança – Bragança in honor of Rare Disease Day in Portugal.

Show Your Rainbow Stripes for Our Moon's Mission!

28 Feb 2022 COOLUM BEACH, Australia

In classrooms, offices and parks in Coolum and all over the world, dress in your brightest rainbow stripes on International...

Lighting up San Genesio

28 Feb 2022 Lecco, Italy

Illumination of San Genesio in honor of Rare Disease Day in Italy.

Lighting up Chiesa di San Sebastiano

28 Feb 2022 Pescara, Italy

Illumination of Chiesa di San Sebastiano in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Taranto

28 Feb 2022 Taranto, Italy

Illumination of Palazzo Municipale di Taranto in honor of Rare Disease Day in Italy.

Lighting up Arrol Crane at Jetty Road

28 Feb 2022 Bunbury Timber Jetty, Australia

Illumination of Arrol Crane at Jetty Road in honor of Rare Disease Day in Australia.

6th Rare Disease Day at "KASCH"

28 Feb 2022 Riyadh, Saudi Arabia

يوم توعوي، للعامة .. عن بعد موجه للجمهور، يهدف الى زيادة وعي المجتمع عن الأمراض النادرة وطريقة التعامل معها.. https://teams.microsoft.com/l/meetup-join/19%3ameeting_ZDg4OGIxYzMtNDJkMy00NDc0LWI4MzItYWExNzY2N2ZlMzNi%40thread.v2/0?context=%7b%22Tid%22%3a%22b84725a5-0373-4d77-9259-051685769bf2%22%2c%22Oid%22%3a%2209c630e6-d1c9-482e-91b3-60037840ef5d%22%7d

Lighting up Limassol Municipality Hall

28 Feb 2022 Limassol , Cyprus

Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.

Lighting up J L Tower

28 Feb 2022 Arkansas, United States

Illumination of J L Tower in honor of Rare Disease Day in USA.

Lighting up Mid Hudson Bridge

28 Feb 2022 Highland, United States

Illumination of Mid Hudson Bridge in honor of Rare Disease Day in USA.

Foro Enfermedades Raras GDL

28 Feb 2022 to 4 Mar 2022 Guadalajara, Mexico

Este foro busca ayudar a la visibilización de estas condiciones, proponer alternativas para mejorar el diagnóstico y manejo de las...

Lighting up Maschio Angioino - Napoli

28 Feb 2022 Napoli, Italy

Illumination of Maschio Angioino – Napoli in honor of Rare Disease Day in Italy.

Dr. Santiago March y los avance en medicina geómica

28 Feb 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...

Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.

Lighting up Empire State Building - United-States

28 Feb 2022 New York, United States

Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.

LIGHTING UP THE BUILDING "LOGGIA" IN HERAKLION

28 Feb 2022 Heraklion, Greece

“95” Rare Alliance Greece illuminates the building “Loggia” in honor of Rare Disease Day in Heraklion, Greece.

Lighting up Porta alla Croce

28 Feb 2022 Firenze, Italy

Illumination of Porta alla Croce in honor of Rare Disease Day in Italy.

RARE DISEASES RUN 2022

28 Feb 2022 to 6 Mar 2022 Krefeld, Germany

Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...

Lighting up Statua del Pescatore

28 Feb 2022 Lecce, Italy

Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.

Illumination of Museo de Arte Contemporáneo / Fundación Díaz Caneja de Palencia in honour of Rare Disease Day in Spain

Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...

Nano Rare Disease Day

28 Feb 2022 Barcelona, Spain

Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...

Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.

Illumination of Fuente de la Réplica del submarino de Isaac Peral de Cartagena in honour of Rare Disease Day in Spain

Lighting up Rumors on Main

28 Feb 2022 Colorado, United States

Illumination of Rumors on Main in honor of Rare Disease Day in USA.

Lighting up Diputación Foral de Álava – Spain

28 Feb 2022 Vitoria-Gasteiz, Spain

Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain

Lighting up the Collegium Carolinum

28 Feb 2022 Prag , Czech Republic

Illumination of Collegium Carolinum in honour of Rare Disease Day in Czech Republic.

Lighting up Monumento ai Caduti sul lavoro

28 Feb 2022 Rocchette, Italy

Illumination of Monumento ai Caduti sul lavoro in honor of Rare Disease Day in Italy.

Ciclo de conferencias: Una misma voz, un mismo espacio

28 Feb 2022 Ciudad de México, Mexico

Conversatorios con especialistas, personas que viven con enfermedades raras y personas cuidadoras.

Lighting up Kleisthaus Berlin – Germany

28 Feb 2022 Berlin, Germany

Illumination of Kleisthaus Berlin in honour of Rare Disease Day in Germany

Lighting up the Mining house in Sokolov

28 Feb 2022 Sokolov, Czech Republic

Illumination of Mining house in honour of Rare Disease Day in Czech Republic.

Lighting up Rocchetta

28 Feb 2022 Bologna, Italy

Illumination of Rocchetta in honor of Rare Disease Day in Italy.

Lighting up Monumento alla "Mamma Ciociara"

28 Feb 2022 Frosinone, Italy

Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.

En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...

Lighting up Monumento ai Caduti

28 Feb 2022 Novara, Italy

Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.

Illumination of Palazzo Municipale del Comune di Barano d’Ischia (NA) in honor of Rare Disease Day in Italy.

Illumination of Edificio de la Consejería de Salud in honour of Rare Disease Day in Spain

Lighting up Municipio di Pistoia

28 Feb 2022 Venice, Italy

Illumination of Municipio di Pistoia in honor of Rare Disease Day in Italy.

Lighting up Wasl Dome at Expo 2020 Dubai

28 Feb 2022 Dubai, United Arab Emirates

Lighting up the Wasl Dome which is the beating heart of Expo 2020 Dubai !

Lighting up Ospedale Pediatrico Meyer

28 Feb 2022 Florence, Italy

Illumination of Ospedale Pediatrico Meyer in honor of Rare Disease Day in Italy.

Illumination of Ayuntamiento de A Guarda in honour of Rare Disease Day in Spain

Lighting up AAMI Park

28 Feb 2022 Melbourne, Australia

Illumination of AAMI Park in honor of Rare Disease Day in Australia.

Lighting up Old Magistrates Court - Australia

28 Feb 2022 Queensland, Australia

Illumination of Old Magistrates Court in honor of Rare Disease Day in Australia.

Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain

RARE DISEASES AWARENESS IN RWANDA

28 Feb 2022 to 29 Mar 2022 Kigali, Rwanda

In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...

Lighting up Porta a Monte

28 Feb 2022 Frosinone, Italy

Illumination of Porta a Monte in honor of Rare Disease Day in Italy.

light up Roanoke Tower

28 Feb 2022 Roanoke, United States

https://roanoketower.com/tower-lights/ Light up of city building

Lighting up Reggia di Caserta

28 Feb 2022 Caserta, Italy

Illumination of Reggia di Caserta in honor of Rare Disease Day in Italy.

To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...

Lighting up Yagan Square

28 Feb 2022 Perth, Australia

Illumination of Yagan Square in honor of Rare Disease Day in Australia.

Illumination of Loggia del Palazzo della Ragione in honor of Rare Disease Day in Italy.

Illuminating buildings

28 Feb 2022 Bucharest, Timisoara, Romania

Medical Universities, City Halloween, Centers for Rare Diseases and other buildings will be illuminated for RDD, on the evening of...

Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.

Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...

Lighting up Monumento "La Mamma Ciociara"

28 Feb 2022 Frosinone, Italy

Illumination of Monumento “La Mamma Ciociara” in honor of Rare Disease Day in Italy.

ASU Clocktower Lights up for Rare

28 Feb 2022 Jonesboro, United States

The Arkansas State University clock tower will be lit up in honor of Rare Disease Day.

Lighting up Torre Mangana – Spain

28 Feb 2022 Cuenca, Spain

Illumination of Torre Mangana in honour of Rare Disease Day in Spain

Lighting up Presidential Palace

28 Feb 2022 Nicosia, Cyprus

Illumination of Presidential Palace in honor of Rare Disease Day in Cyprus.

In this conference we decided to talk about accessibility and what this means for rare patients, especially in these 2...

Lighting up Tokyo Tower

28 Feb 2022 Tokyo, Japan

Illumination of Tokyo Tower between 18.00-24.00 (Japan time) in honor of Rare Disease Day in Japan.

Lighting up Rotunda dos Peixes – Setúbal

28 Feb 2022 Setúbal, Portugal

Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.

Clock Tower Lighting

28 Feb 2022 Brampton, Canada

Brampton City Hall will be illuminating the Clock Tower on February 28th 2022 in Purple and Blue to recognize Rare...

The logo of the World Rare Disease Day will be projected on the Mikis Theodorakis Theater in Chania, by “95”...

LIGHTING UP THE ARCH OF HADRIAN

28 Feb 2022 Athens, Greece

“95” Rare Alliance Greece illuminates the monument of the Arch of Hadrian in honor of Rare Disease Day in Athens,...

Lighting up Diputación de Ciudad Real – Spain

28 Feb 2022 Ciudad Real, Spain

Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain

Conversatorio «Unificando criterios»

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

FEMEXER, la UNAM y el Museo de la Mujer se unen en un conversatorio fresco y desenfadado para tratar un...

On Monday, the sky lights up a little extra over Lilla Amundön when Ågrenska draws attention to the Rare Day....

Illumination of La Cappella di Piazza del Campo in honor of Rare Disease Day in Italy.

The event is a digital inauguration ceremony for Center for Rare Diseases West (Gothenburg) with invited guests like the Swedish...

Lighting up Chiesa degli Scolopi

28 Feb 2022 Alatri, Italy

Illumination of Chiesa degli Scolopi in honor of Rare Disease Day in Italy.

Lighting up Historical University – Germany

28 Feb 2022 Marburg, Germany

Illumination of Marburg´s Historical University in honour of Rare Disease Day in Germany

Illumination of St. Barbara Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany

Lighting up Palazzo comunale di Cellamare

28 Feb 2022 Cellamare, Italy

Illumination of Palazzo comunale di Cellamare in honor of Rare Disease Day in Italy.

Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...

Lighting up Grand Place – France

28 Feb 2022 Lille, France

Illumination of Grand Place in honour of Rare Disease Day in France

Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany

Illumination of Municipio di Montagna in Valtellina in honor of Rare Disease Day in Italy.

LIGHTING UP THE TOWN HALL OF VEROIA

28 Feb 2022 Veroia, Greece

“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.

Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...

Illumination of Dreifaltigkeitssäule Rathausplatz St. Pölten in honor of Rare Disease Day in Austria.

Lighting up Ulivo al centro di Falvaterra

28 Feb 2022 Falvaterra , Italy

Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.

Illumination of Palazzo della Gran Guardia – Verona in honor of Rare Disease Day in Italy.

A week campaign dedicated to Rare Liver Diseases. One disease will be presented each day with contributions from both the...

Illumination of Polo delle Arti e della Cultura in honor of Rare Disease Day in Italy.

Show us your Colours! FMDSA

28 Feb 2022 North Olmsted, Ohio, United States

While FMD is thought of as Underdiagnosed we are Rare until proven otherwise. Help us support Rare Disease Day on...

Lighting up Urząd Miejskie w Bytowie

28 Feb 2022 Bytów, Poland

llumination of the City Hall (Urząd Miejski) in Bytów in honour of Rare Disease Day in Poland. It will happen...

Lighting up Mole Antonelliana - Torino

28 Feb 2022 Torino, Italy

Illumination of Mole Antonelliana – Torino in honor of Rare Disease Day in Italy.

Lighting up Sir Albert Abbott Administration Building

28 Feb 2022 to 7 Mar 2022 Mackay Queensland, Australia

Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.

Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...

Light Up For Rare Philippines

28 Feb 2022 to 28 Mar 2022 Manila, Philippines

In coordination with the National Parks Development Committee, the Rizal Monument was illuminated in purple for Rare Disease Day as...

Rare Disease Day- Charity Concert

28 Feb 2022 to 6 Mar 2022 Onlilne Event, Worldwide

Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022  to Sunday 06.03.2022 at...

Lighting up Geelong Intersection Moorabool

28 Feb 2022 Geelong, Australia

Illumination of Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.

Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...

Lighting up Teatro Herberia di Rubiera

28 Feb 2022 Rubiera , Italy

Illumination of Teatro Herberia di Rubiera in honor of Rare Disease Day in Italy.

Light It Up For Rare!

28 Feb 2022 LaGrange, GA, United States

Join us in a gathering of supporters of patients with Rare Diseases around the Fountain at Lafayette Square, LaGrange GA!...

Rare Disease Day 2022

28 Feb 2022 Edmonton, Canada

Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives....

Rare Diseases: Not so Rare

28 Feb 2022 Tel Hashomer, Israel

In 2022, the eighth annual International Rare Disease Day online conference will take place at the Sheba Medical Center, with...

The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...

Lighting up Townsville Sign - Australia

28 Feb 2022 Townsville, Australia

Illumination of Townsville Sign in honor of Rare Disease Day in Australia.

"May I please be misunderstood" Art Exhibit

28 Feb 2022 Johannesburg , South Africa

An exhibition focused on using Art Therapy as a way of accepting or being affected by a rare disease. The...

Carry Hope 2022

28 Feb 2022

Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...

Lighting up Ayuntamiento de Reocin – Spain

28 Feb 2022 Puente San Miguel, Spain

Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain

Lighting up Cristo del Otero – Spain

28 Feb 2022 Palencia, Spain

Illumination of Cristo del Otero in honour of Rare Disease Day in Spain

NMD Pharma Lights Up INCUBA/Skejby

28 Feb 2022 Aarhus, Denmark

For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...

Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain

Lighting up Palazzo Cavarretta

28 Feb 2022 Trapani, Italy

Illumination of Palazzo Cavarretta – sede del Consiglio Comunale Città di Trapani in honor of Rare Disease Day in Italy.

Lighting up Ayuntamiento Gandía – Spain

28 Feb 2022 Gandia, Spain

Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain

El énfasis debe ser sobre las personas, no sobre las cifras

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...

Lighting up the Parliament House - Australia

28 Feb 2022 Adelaide , Australia

Illumination of the Parliament House in honor of Rare Disease Day in Australia.

Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain

Illumination of Edifício da Câmara Municipal – Calheta in honor of Rare Disease Day in Portugal.

RARE DISEASE DAY 2022 at IndoUSrare

28 Feb 2022 Herndon, United States

We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...

Lighting up the City Hall in Písek

28 Feb 2022 Písek, Czech Republic

Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.

9:30-13:30h Webinar with the participation of several entities. The event has three main sessions. Organização: Mirror Group Português do Programa...

LIGHTING UP “THE UMBRELLAS”, THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...

On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...

Lighting up Wharton Reef Lighthouse - Australia

28 Feb 2022 Palmer Street, Australia

Illumination of Wharton Reef Lighthouse in honor of Rare Disease Day in Australia.

Lighting up Story Bridge

28 Feb 2022 New Farm Queensland, Australia

Illumination of Story Bridge in honor of Rare Disease Day in Australia.

The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...

Lighting up Municipio di Gravellona Toce

28 Feb 2022 Gravellona Toce , Italy

Illumination of Municipio di Gravellona Toce in honor of Rare Disease Day in Italy.

Illumination of Cyprus Telecommunications Authority – Electra Building in honor of Rare Disease Day in Cyprus.

Lighting up Palazzo degli Elefanti

28 Feb 2022 Catania,, Italy

Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.

Advancing Treatments in Rare Neurological Diseases

28 Feb 2022 Cleveland, United States

The Oxford-Harrington Rare Disease Centre (OHC) invites you to recognize Rare Disease Day by attending its Rare Disease Day Webinar...

Lighting up Cascata Grande dei Liri

28 Feb 2022 Isola del Liri, Italy

Illumination of Cascata Grande dei Liri in honor of Rare Disease Day in Italy.

Iluminación en La Nucía #LightUpForRare

28 Feb 2022 La Nucía, Spain

Esta noche los edificios municipales de La Nucía se iluminan de “verde” por “Día Mundial de las Enfermedades Raras”, a...

Lighting up Malop Street

28 Feb 2022 Geelong, Australia

Illumination of Malop Street in honor of Rare Disease Day in Australia.

Illumination of Porta Padova, Porta XX Settembre, Porta Legnago e Porta Vicenza in honor of Rare Disease Day in Italy.

Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain

Illumination of Palais des ducs de Bourgogne in honour of Rare Disease Day in France

Lighting up Spodek - Poland

28 Feb 2022 Katowice, Poland

Illumination of Spodek in honour of Rare Disease Day in Poland

Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.

Rare Disease Day Flashmob in Timisoara

28 Feb 2022 Timisoara, Romania

A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.

Light up for rare - Gateshead Millennium Bridge

28 Feb 2022 Gateshead , United Kingdom

Gateshead Millennium Bridge will be joining other landmarks in lighting up in support of Rare Disease day .

Support for the Rare

28 Feb 2022 Demir Hisar, North Macedonia

During the classes we gave a support for the Rare through out different kind of activities like singing songs, playing...

LIGHTING UP THE ΒUILDING OF THE REGION OF CRETE

28 Feb 2022 Heraklion, Greece

“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...

Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France

Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um