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RDD NMOSD

29 Apr 2023 Tokyo, Japan

– Rehabilitation + Eurhythmics – Lego Play Games

Rare Disease Day Conference and Cocktail Reception Delivering on Canada’s Rare Disease Investment Virtual option is available For more information:...

RDD Osaka Meisei Gakuen(OSAKA)

21 Mar 2023 Osaka, Japan

The 2nd RDD High School Summit

RDD medU-net

19 Mar 2023 Tokyo, Japan

Online Lecture + Panel Discussion

Diese beiden Anlässe verwandeln den EUROPARK Salzburg, am Samstag, 18. März 2023 in einen ganz besonderen Veranstaltungsort. Denn unter dem...

It will be our second chat, so we will be get to know each other, I hope a specialist will...

Saudi Rare Disease Summit

16 Mar 2023 to 17 Mar 2023 Riyadh, Saudi Arabia

There is clear evidence that the rare diseases are one of the biggest challenges in medical practice, with several gaps...

Pour la 3ème année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...

A l’occasion de la Journée Internationale des Maladies Rares, le groupe hospitalier AP-HP.Sorbonne Université (Hôpitaux Pitié-Salpêtrière, Saint-Antoine, Tenon, Trousseau, Rothschild,...

Conmemoración Día Mundial de Enfermedades Raras 2023 Aliados proyecto Colaborativo Ruta de Enfermedades Huérfanas Parque espíritu del Manglar. Playón Del...

Rare Disease Day in Lille

11 Mar 2023 to 11 Feb 2023 Lille, France

Pour la JIMR, PLEMaRa, avec le soutien des Filières Maladies Rares FIMATHO, FAI²R, MHEMO, du CHU de Lille et de...

RDD Aozora Republic(YAMANASHI)

11 Mar 2023 to 12 Mar 2023 Hokuto, Japan

– lecture – RDD Exhibition – Kids Doodle Party – Star gazing party – Planetarium

Expertos: pacientes, profesionales y cuidadores

11 Mar 2023 Medellín, Colombia

Expertos: pacientes, profesionales y cuidadores Mesa de enfermedades raras para Antioquia y red técnica por las enfermedades huérfanas de Antioquia,...

L'INTELLIGENZA EMOTIVA VA A TEATRO

10 Mar 2023 BOLOGNA, Italy

Un evento teatrale dedicato ai bambini con malattia rara, in particolare a quelli seguiti dal Centro Malattie Rare Pediatriche dell’Ospedale...

Aims for the day: – To examine Newcastle’s strengths and potential to address the challenges posed by Rare Disease –...

RDD Help card・Help mark・SDGs

8 Mar 2023 Tokyo, Japan

– Help Card/Help Mark Video Screening – Materials and Panel Exhibit

Rare Disease Day on 28 February — and the events surrounding it — offer many exciting opportunities to raise awareness...

Se lleva a cabo el 2do Foro de Enfermedades Raras en México “Mayor Visibilidad, Mayor Oportunidad de Vida” Organizado por...

Skate Under the Stars: A Rare Disease Celebration

7 Mar 2023 St. Louis, United States

Join us for a celebration of Rare Disease Day with an opportunity for Rare Disease Warriors to Skate Under the...

Reconocimiento a nuestros campeones

7 Mar 2023 Medellín, Colombia

Reconocimiento a nuestros campeones, Mesa de enfermedades raras para antioquia y red tecnica por las enfermedades huérfanas de Antioquia.

SIMPÓSIO DIA MUNDIAL DAS DOENÇAS RARAS

6 Mar 2023 to 7 Feb 2023 SÃO PAULO, Brazil

Encontro de pacientes, associações, gestores, profissionais da Saúde para debaterem temas importante dentro das demandas das doenças raras no Brasil...

Promoción Campaña #UnidosPorLasRaras

5 Mar 2023 Bogotá D.C, Colombia

Promoción Campaña #UnidosPorLasRaras en partido de fútbol Millonarios vs. Cali presencial

Promoción Campaña #UnidosPorLasRaras en paratido de futbol América vs. Junior en el Estadio Pacual Guerrero, Cali

Digital Stories Screening

5 Mar 2023 Vancouver, Canada

You’re invited to our Rare Disease Day celebration on March 5, 2023 from 2-3pm PST. This year, we are highlighting...

RDD Satsuma(Kagoshima)

5 Mar 2023 Kagoshima, Japan

Lecture Meeting

Aliados Proyecto Colaborativo Ruta de Enfermedades Huérfanas

El Grupo de Trabajo Derechos, Discapacidad y Enfermedades Raras de la Sociedad Interamericana de Psicología organiza, en el marco de...

Join us for KGI’s 16th Annual Rare Disease Day Virtual Event, our theme is Mental Health & Rare Disease! This...

14h00| SESSÃO DE ABERTURA Sérgio Faria residente da Direção da AAADMJ Dr. Clélio Meneses Secretario Regional da Saúde e Desporte...

#ShareYourColours Denim Walk

4 Mar 2023 Johannesburg, South Africa

We’re so excited to be celebrating Rare Disease Day 2023! Please join us for an early evening Denim Walk in...

My name is Leah Haynes and I am the co-founder of a Canadian-based registered charity called Endometriosis Events. Endometriosis Events...

RDD Oshigoto(Job Fit)

4 Mar 2023 Japan, Japan

– Online Lectures on Employment – Roundtable Discussions

Light up for Incontinentia Pigmenti

4 Mar 2023 Naples, Italy

Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world

Mesa Enfermedades Raras Para Antoquia

Semana de las Enfermedades Poco Frecuentes

4 Mar 2023 Santiago del Estero, Argentina

El Ministerio de Salud de Santiago del Estero, la Alianza Argentina de Pacientes (ALAPA), la Asociación Mucopolisacaridosis Argentina (AMA) y...

Rare Disease Day Tucson

4 Mar 2023 Tucson, United States

Provide advocacy, community, and support for those affected by a rare disease across Southern Arizona. FREE admission to the museum...

FriENDO Social

4 Mar 2023 Toronto , Canada

To kick off Endometriosis Awareness Month, join us on March 4th from 2pm-6pm for our FriENDO Social! The event will...

MENA Organization for Rare Diseases Anual Meeting 2023

3 Mar 2023 to 5 Mar 2023 Dubai, United Arab Emirates

MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...

Run with ATAC and friends

3 Mar 2023 Amsterdam, Netherlands

Meeting Point: Sloterpark around 4.45/ 5 pm where the IAMSTERDAM letters are. We take a picture together, and from there...

Patient Information Day for People living with Limb Girdle Muscular Dystrophy

3 Mar 2023 to 3 Feb 2023 Newcastle Upon Tyne , United Kingdom

“Patient Information Day for People living with Limb Girdle Muscular Dystrophy” is an Event organised by the John Walton Muscular...

le associazioni A.I.D. – Kartagener Onlus ed A.Ma.R.A.M. Aps, celebreranno la Giornata Mondiale delle Malattie Rare 2023 organizzando l’incontro dal...

Tag der Seltenen Erkrankungen

3 Mar 2023 Mainz, 55116, Germany

Unter der Schirmherrschaft von Herrn Sozialdezernent Dr. Eckert Lensch, der Landeshauptstadt Mainz wird in diesem Jahr zum 11. Mal der...

Conociendo más de las raras

2 Mar 2023 Medellín, Colombia

Mesa de Enfermedades raras para Antioquia y Red de Técnica por las Enfermedades Huérfanas de Antioquia

The Rare Diseases Day Event, which will be held on Thursday, March 2nd, 2023, will take place online between 16.00-17.30.

Rare Disease Day

2 Mar 2023 Minneapolis, United States

Diversity in the Rare Disease Community: Challenges for Newborn Screening and Early-life Genetic Testing Equity Thursday, March 2, 2023 9-10...

Rarediseaseday (arab rhizokids)

2 Mar 2023 الرياض, Saudi Arabia

We participated in the Rare Disease Day event with Treatment Plans Center and ,we shared some rhizokids children’s stories translated...

Rare Disease Day at the IA Capitol

2 Mar 2023 Des Moines, United States

In honor of those who have lost their battle with rare diseases like cystinosis and in honor of Rare Disease...

In this webinar, our panel of experts will examine how to navigate pricing and reimbursement challenges for rare disease technologies....

فعالية تضم استشارات مجانيه لعدة تخصصات ورشة نفسية للأمهات فعاليات ترفيهيه ومفاجأآت للاطفال

Dans le cadre des journées de sensibilisation, et à l’occasion de la Journée Internationale des Maladies Rares 2023, l’Association Espoir...

Closing conference RDD2023

1 Mar 2023 Bucharest, Romania

The final conference will bring together all the partners that organized events and awareness campaigns during February and will present...

RARE DISEASES NEWS 2023

1 Mar 2023 Kaunas, Lithuania

The aim of the conference is to introduce doctors, nurses, and geneticists to the latest developments in the diagnosis and...

Stand d'information Maladies Rares - Strasbourg

1 Mar 2023 Strasbourg, France

Mercredi 1er mars, la filière SENSGENE et ses partenaires tiendront un stand de sensibilisation aux maladies rares dans le centre...

WEBINAR | Mesa debate La investigación en EPOF: Un camino común para 8.000 patologías Moderadora • Dra. Jorgelina Stegmann |...

Illumination of Palacio Almudí in honour of Rare Disease Day in Spain

II ENCUENTRO REGIONAL DE ENFERMEDADES RARAS

28 Feb 2023 Huancayo, Junin, Peru

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL_NACIONAL_RAMIRO_PRIALÉ_PRIALÉ. Invita al II ENCUENTRO REGIONAL DE ENFERMEDADES...

II ENCUENTRO DE ENFERMEDADES RARAS

28 Feb 2023 Huancayo, Peru

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL NACIONAL RAMIRO PRIALÉ PRIALÉ . 🗓Fecha: 28...

I support Rare Disease Day

28 Feb 2023 Almaty, Kazakhstan

Students of the specialty “General Medicine” of the Higher School of Medicine tested the campaign with the goal of drawing...

Rare Disease Day

28 Feb 2023 London , United Kingdom

We were glad to have been invited to participate in the Rare Disease choir to record the song #ThisIsMe at...

Lighting up Koombana Bay Footbridge - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Koombana Bay Footbridge in honor of Rare Disease Day in Australia.

Helhetlige tjenester for gode liv

28 Feb 2023 to 28 Jan 2023 Oslo, Norway

Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...

Rare Disease Day

28 Feb 2023 Akron, United States

Join Akron Children’s Hospital’s Genetic Center for its inaugural Rare Disease Day event to raise awareness and support for patients...

Health professionals mobilize for rare diseases

28 Feb 2023 to 1 Mar 2023 Tunis, Tunisia

A white board will be set up at the entrance of the Pasteur Institute in Tunis next to the research...

Harvinaisten sairauksien päivän tapahtuma

28 Feb 2023 Verkossa ja etäkatsomoissa: Helsinki, Jyväskylä, Kokkola, Kuopio, Oulu, Pori, Riihimäki, Salo, Tampere, Finland

Tiistaina 28.2.2023 klo 17–19 järjestettävä tilaisuus on suunnattu harvinaista neurologista sairautta sairastaville ja heidän läheisilleen, mutta mukaan voivat tulla kaikki...

Global Workshop on Access to Rare Disease Diagnosis and Treatment | Rare Disease Day 2023 Reimbursement of drugs from pharmaceutical...

Rare Disease Day - Stellenbosch University

28 Feb 2023 Cape Town, South Africa

Rare Disease Day 2023 #Jeans4Genes – wear your favorite jeans and support our #RareBearFund by buying delicious cupcakes. There’s a...

Ruta de 5.6 quilòmetres, de 120 minuts, geolocalitzada en temps real amb un tècnic en activitat física per la commemoració...

As Rare Disease Day 2023 is approaching, on behalf of the Chinese Organization for Rare Disorders, it is my honor...

Rare Disease Day 2023

28 Feb 2023 Rose Hill, Mauritius

Lupus Alert is marking Rare Disease Day (Tuesday, February 28) with an appeal for people to donate their blood. Patients...

Rare disease day 2023

28 Feb 2023 Tbilisi, Georgia

Meeting with healthcare professionals, patients and parents organizations. The main objective is to raise awareness about rare diseases and support...

National Skills University Islamabad organized an event related to “Rare Disease Day 2023” in order to highlight the rare diseases...

Rare Disease Day 2023 - Sac Hoa

28 Feb 2023 Ho Chi Minh City, Vietnam

People living with rare diseases facing with lots of challenges and one of them is not understand what they will...

We are excited to announce a charitable exposition and event to raise awareness and support for individuals and families affected...

Lighting up Koombana Bay Foreshore - 2023 - Australia

28 Feb 2023 Western Australia, Australia

Illumination of the Koombana Bay Foreshore in honor of Rare Disease Day in Australia.

Listen live to the legend who started the #RARE Revolution with the US Orphan Drug Act of 1983 – Now...