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Mosa Conference

21 Jun 2022 to 22 Jun 2022 Maastricht, Netherlands

The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...

On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...

POLAND SYNDROME AWARENESS DAY PUB LUNCH

30 Apr 2022 Sydney, NSW, Australia

12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.

In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...

𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...

Théâtre-débat "Vivre avec ma maladie rare"

30 Mar 2022 La Roche sur Yon, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

LIGHTING UP THE MUNICIPAL LIBRARY OF KOZANI

28 Mar 2022 Kozani, Greece

“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.

Open seminar around the rare diseases

25 Mar 2022 to 26 Mar 2022 Sant Julià de Lòria, Andorra

The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...

Théâtre-débat "Vivre avec ma maladie rare"

23 Mar 2022 Saint-Nazaire, France

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Théâtre-débat "Vivre avec ma maladie rare"

17 Mar 2022 Le Mans, France

Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...

RDD AOZORA REPUBLIC (YAMANASHI)

12 Mar 2022 Hokuto, Yamanashi, Japan

WEBINAR Patient Family Exchange Meeting

FEMEXER y ULAPA invitan

11 Mar 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...

Neues aus der ARVC-Forschung (News from ARVC research)

9 Mar 2022 Munich (Online), Germany

3 online lectures on ARVC research with following Q&A

Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...

Educational lecture for students

7 Mar 2022 Online, Serbia

Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...

Charity Basketball Match. Partit en benefici d'AMMA

6 Mar 2022 Andorra La Vella, Andorra

Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...

RareDIG Rare Disease Day 2022

6 Mar 2022 Montreal, Canada

More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....

IPASSI: what's new?

5 Mar 2022 Naples, Italy

A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...

Rare Disease Day Celebration

5 Mar 2022 Atlanta, United States

Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!

RDD CHIBA

5 Mar 2022 Chiba, Japan

WEBINAR Online Well Festa 2022 with RDD in Chiba

As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...

US FDA Rare Disease Day Public Meeting 2022

4 Mar 2022 Online, United States

FDA will host a virtual public meeting on March 4, 2022 to join the global observance of Rare Disease Day....

A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...

Selten sind viele

4 Mar 2022 to 5 Mar 2022 Freiburg im Breisgau, Germany

Online – Veranstaltung

Tag der Seltenen Erkrankungen in Mainz

4 Mar 2022 Mainz, Germany

Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...

Rare Disease Day - Lombardia

3 Mar 2022 Milano, Italy

L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...

H4B Boston Living Rooms of Rare

3 Mar 2022 Boston, United States

In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...

IT, innovation and Rare Diseases webinar

3 Mar 2022 Buenos Aires, Argentina

Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...

Semana de las Enfermedades Raras

2 Mar 2022 to 4 Mar 2022 La Paz, Bolivia

El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...

“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...

Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...

An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...

Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.

A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...

In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...

Lighting Up for Rare - US Bank Stadium

28 Feb 2022 Minneapolis, United States

By partnering with US Bank Stadium in Minneapolis to Light Up For Rare for a 2nd year, the Yaya Foundation...

Lighting up Palazzo Comunale di Palaia

28 Feb 2022 Pisa, Italy

Illumination of Palazzo Comunale di Palaia in honor of Rare Disease Day in Italy.

Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...

Lighting up NoRo Center

28 Feb 2022 Zalău, Romania

Illumination of NoRo Center in honor of Rare Disease Day in Romania.

Lighting up Eastern Goldfields Community Centre

28 Feb 2022 Kalgoorlie, Australia

Illumination of Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.

Lighting up Catenary Lights

28 Feb 2022 Mullaloo, Australia

Illumination of Catenary Lights in honor of Rare Disease Day in Australia.

Lighting up Parque de la Flrorida – Spain

28 Feb 2022 Gasteiz, Spain

Illumination of Parque de la Flrorida in honour of Rare Disease Day in Spain

Lighting up Emigration Museum - Poland

28 Feb 2022 Gdynia, Poland

Illumination of Emigration Museum in honour of Rare Disease Day in Poland

Lights on Rare Disease - L'Aquila

28 Feb 2022 L'Aquila, Italy

Lights on Rare Disease – L’Aquila will light up of rare disease colours

Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain

We join forces for the children with Rare Diseases: “95” Rare Alliance Greece illuminates the Children’s Hospital “H Agia Sofia”...

Lighting up Archi di Palazzo Catena

28 Feb 2022 Asti , Italy

Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.

UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” illuminating of green the Mole Antonelliana. We are grateful to...

Illumination of Diputación de Jaén in honour of Rare Disease Day in Spain

Lighting up Laimer Würfel München – Germany

28 Feb 2022 München, Germany

Illumination of Laimer Würfel München in honour of Rare Disease Day in Germany

🙌🏻 𝐃𝐢́𝐚 𝐌𝐮𝐧𝐝𝐢𝐚𝐥 𝐝𝐞 𝐥𝐚𝐬 𝐄𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬 𝐑𝐚𝐫𝐚𝐬 💜💜💜👚 👚👚 Los invitamos al FORO: 𝐄𝐥 𝐚𝐛𝐨𝐫𝐝𝐚𝐣𝐞 𝐝𝐞 𝐥𝐚𝐬 𝐩𝐞𝐫𝐬𝐨𝐧𝐚𝐬 𝐜𝐨𝐧 𝐞𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬...

Lighting up Alamo Quarry Market - United States

28 Feb 2022 San Antonio, United States

Illumination of the Alamo Quarry Market smoke stacks in honor of Rare Disease Day in the United States.

Lighting up Maschio Angioino - Napoli

28 Feb 2022 Napoli, Italy

Illumination of Maschio Angioino – Napoli in honor of Rare Disease Day in Italy.

Lighting up Monumento alla "Mamma Ciociara"

28 Feb 2022 Frosinone, Italy

Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.

Illumination of Sport & Culture Centre of Pruszcz Gdański in honour of Rare Disease Day in Poland

Memorial a los que ya se fueron: los hijos de Olivia

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Con todo respeto y cariño, dedicamos este video a la amada memoria de Elizabeth, Valente y Emmanuel Martínez Pérez, los...

Dia Mundial das Doenças Raras

28 Feb 2022 Sintra | Agualva Mira Sintra, Portugal

A Junta de Freguesia de Agualva Mira Sintra no dia 28 de fevereiro irá assinalar o Dia das Doenças Raras...

Lighting up Governor Mario M. Cuomo Bridge

28 Feb 2022 New York, United States

Illumination of Governor Mario M. Cuomo Bridge in honor of Rare Disease Day in USA.

Illumination of Ayuntamiento de Baeza in honour of Rare Disease Day in Spain

Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.

Lighting up Bytów's town hall - Poland

28 Feb 2022 Bytów, Poland

Illumination of Bytów’s town hall in honour of Rare Disease Day in Poland

Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.

Lighting up Historical Arches

28 Feb 2022 North Carolina, United States

Illumination of Historical Arches in honor of Rare Disease Day in USA.

Lighting up Queensland Country Bank Stadium - Australia

28 Feb 2022 Railway Estate, Australia

Illumination of Queensland Country Bank Stadium in honor of Rare Disease Day in Australia.

Nadir Hastalıklar Günü

28 Feb 2022 to 1 Mar 2022 Ankara, Turkey

Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...

LIGHTING UP THE WHITE TOWER OF THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.

Lighting up Kensington Town Hall

28 Feb 2022 Kensington VIC 3031, Australia

Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.

Lighting up North Carolina Wells Fargo Bank and Bank of America

28 Feb 2022 North Carolina, United States

Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.

Lighting up Castello Aragonese

28 Feb 2022 Lecce, Italy

Illumination of Castello Aragonese in honor of Rare Disease Day in Italy.

Lighting up Chiesa Madre

28 Feb 2022 Aci Sant'Antonio , Italy

Illumination of Chiesa Madre in honor of Rare Disease Day in Italy.

Lighting up Istituto comprensivo

28 Feb 2022 Lecce, Italy

Illumination of Istituto comprensivo in honor of Rare Disease Day in Italy.

Illumination of Basse-Terre’s town hall in honour of Rare Disease Day in France

Lighting up Hauptbahnhof Dresden – Germany

28 Feb 2022 Dresden, Germany

Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany

Lighting up Museu do Traje – Viana do Castelo

28 Feb 2022 Viana do Castelo, Portugal

Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.

Illumination of Porta Padova, Porta XX Settembre, Porta Legnago e Porta Vicenza in honor of Rare Disease Day in Italy.

Lighting up Sir Albert Abbott Administration Building

28 Feb 2022 to 7 Mar 2022 Mackay Queensland, Australia

Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.

On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...

Lighting up FDA

28 Feb 2022 to 4 Mar 2022 Harrisburg, United States

Illumination of FDA in honor of Rare Disease Day in USA.

Lighting up Chiostro dei Minori Osservanti

28 Feb 2022 Messina, Italy

Illumination of Chiostro dei Minori Osservanti in honor of Rare Disease Day in Italy.

Lighting up Mount Street Bridge

28 Feb 2022 Bridgetown, Australia

Illumination of Mounts Street Bridge in honor of Rare Disease Day in Australia.

Building ilumination

28 Feb 2022 Andorra La Vella, Andorra

The most important museum of art of Andorra participates in the building illumination for rare disease day.

Lighting up Federation Square

28 Feb 2022 Melbourne, Australia

Illumination of Federation Square in honor of Rare Disease Day in Australia.

La marcha paciente EPOF

28 Feb 2022 varias, Argentina

Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...

Illumination of Palazzo del Municipio ( lato via Garibaldi) in honor of Rare Disease Day in Italy.

Illumination of Edifício dos Paços do Concelho – Angra do Heroísmo in honor of Rare Disease Day in Portugal.

Illumination of Casas Colgadas de Cuenca in honour of Rare Disease Day in Spain

Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland

LIGHTING UP THE TOWN HALL OF VEROIA

28 Feb 2022 Veroia, Greece

“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.

Carry Hope 2022

28 Feb 2022

Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...

Lighting up Pruszcz Gdański's town hall - Poland

28 Feb 2022 Pruszcz Gdański, Poland

Illumination of Pruszcz Gdański’s town hall in honour of Rare Disease Day in Poland   fot. Janina Wilkos-Gad

AST informa

28 Feb 2022 CASTELVETRANO, Italy

Il centro commerciale Belicittà, bene confiscato alla criminalità organizzata, ha messo a disposizione un desk informativo in galleria per far...

Rare Diseases Run

28 Feb 2022 to 6 Mar 2022 Berlin, Germany

MANY, STRONG, PROUD – ein Lauf zum „Tag der seltenen Erkrankungen“! Vom 28.2.-6.3 findet der Rare Diseases Run als virtueller...

LIGHTING UP THE OLD TOWN HALL OF MITILINI

28 Feb 2022 Mitilini, Greece

“95” Rare Alliance Greece illuminates the Οld Τown Ηall of Mitilini in honor of Rare Disease Day in Greece.

LIGHTING UP “THE UMBRELLAS”, THESSALONIKI

28 Feb 2022 Thessaloniki, Greece

“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...

Lighting up Townsville

28 Feb 2022 Townsville , Australia

We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...

To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...

Lighting up Palazzo Municipale Surbo (Le)

28 Feb 2022 Surbo , Italy

Illumination of Palazzo Municipale Surbo (Le) in honor of Rare Disease Day in Italy.

Lighting up Piazza Verdi

28 Feb 2022 Grottaglie , Italy

Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.

Lighting up Castelo de Leiria – Leiria

28 Feb 2022 Leiria, Portugal

Illumination of Castelo de Leiria in honor of Rare Disease Day in Portugal.

Lighting up Palazzo Municipale di Olgiate Molgora

28 Feb 2022 Olgiate Molgora, Italy

Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.

Lighting up Ars Electronica Center

28 Feb 2022 Linz, Austria

Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.

Lighting up Cristo del Otero – Spain

28 Feb 2022 Palencia, Spain

Illumination of Cristo del Otero in honour of Rare Disease Day in Spain

“95” Rare Alliance Greece illuminates the building of the region of Kozani, in honor of Rare Disease Day, Greece.

Light up event

28 Feb 2022 Harare, Zimbabwe

This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...

Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...

Rare disease day

28 Feb 2022 Beirut, Lebanon

We will light the national museum for the first time in lebanon

Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Lighting up Perth Bell Tower

28 Feb 2022 Perth, Australia

Illumination of Perth Bell Tower in honor of Rare Disease Day in Australia.

Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...

Rare disease day!

28 Feb 2022 Bucharest , Romania

February 28 is the day of awareness of rare diseases, and the Rebeca Faith-Hope-Love Association marks this day with this...

Frida our Mermaid Señorita

28 Feb 2022 Larchmont, United States

Reading of OEIS heritage

Lighting up Tour Bellanda – France

28 Feb 2022 Nice, France

Illumination of Tour Bellanda in honour of Rare Disease Day in France

Lighting up Malbork's town hall - Poland

28 Feb 2022 Malbork, Poland

Illumination of Malbork’s town hall in honour of Rare Disease Day in Poland

Lighting up Ayuntamiento de Talavera – Spain

28 Feb 2022 Talavera de la Reina, Spain

Illumination of Ayuntamiento de Talavera in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Lorca in honour of Rare Disease Day in Spain

HAY NOTICIAS QUE NO PUEDEN ESPERAR

28 Feb 2022 Montevideo, Uruguay

Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.

Lighting up Rotunda dos Golfinhos – Setúbal

28 Feb 2022 Setúbal, Portugal

Illumination of Rotunda dos Golfinhos – Setúbal in honor of Rare Disease Day in Portugal.

Lighting up TV Tower - Tbilisi, Georgia

28 Feb 2022 Tbilisi, Georgia

Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.

LIGHTING UP THE CLOCK TOWER

28 Feb 2022 TUNIS, Tunisia

Illumination of the clock tower in honour of the International Rare Disease Day and to celebrate the end of Rare...

Lighting up Ponte nel cielo Campo Tartano

28 Feb 2022 Tartano , Italy

Illumination of Ponte nel cielo Campo Tartano in honor of Rare Disease Day in Italy.

PompAbility Film Premieres

28 Feb 2022 to 28 Mar 2022

Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....

Illumination of Budynek Instytutu Biochemii i Biofizyki PAN w Warszawie in honour of Rare Disease Day in Poland

Lighting up Rocchetta

28 Feb 2022 Bologna, Italy

Illumination of Rocchetta in honor of Rare Disease Day in Italy.

Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.

Share your colors

28 Feb 2022 Norwich, United States

We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.

Lighting up Koombana Bay Footbridge

28 Feb 2022 Bunbury , Australia

Illumination of Koombana Bay Footbridge in honor of Rare Disease Day in Australia.

Lighting up Palazzo di Città di Fasano

28 Feb 2022 Bari, Italy

Illumination of Palazzo di Città di Fasano in honor of Rare Disease Day in Italy.

Lighting up Castel dell'Ovo

28 Feb 2022 Napoli, Italy

Illumination of Castel dell’Ovo in honor of Rare Disease Day in Italy.

The NGO called Cetatea Voluntarilor is the constant partner of Romanian National Alliance for Rare Diseases in organizing events to...

Illumination of Edifício dos Paços do Concelho – Portalegre in honor of Rare Disease Day in Portugal.

Lighting up Municipio di Portogruaro (Ve)

28 Feb 2022 Portogruaro, Italy

Illumination of Municipio di Portogruaro (Ve) in honor of Rare Disease Day in Italy.

Anglicare WA Lights Up and hosts a Rare Aware Light Projection Show

28 Feb 2022 Perth, Western Australia, Australia

Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...

Show your support for #RareDiseaseDay by lighting up your home, office, or school on 28 February! By coming together to...

Rare Disease Day Flashmob in Timisoara

28 Feb 2022 Timisoara, Romania

A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.

Lights on Rare Disease - Cuneo

28 Feb 2022 Cuneo, Italy

Lights on Rare Disease – Cuneo will light up of rare disease colours

NADİR HASTALIKLAR FARKINDALIK GÜNÜ AKIM

28 Feb 2022 KAYSERİ, Turkey

Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...

Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.

The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!

Lighting up Palazzo di Città di Salerno

28 Feb 2022 Salerno, Italy

Illumination of Palazzo di Città di Salerno in honor of Rare Disease Day in Italy.

Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...

Awareness & Management of Rare Diseases

28 Feb 2022 GUNTUR, India

Awareness & Management of Rare Diseara Webinar by Women’s Forum of IPGA AP

Rare Disease in Newcastle: Progress and Future Priorities

28 Feb 2022 Newcastle Upon Tyne, United Kingdom

An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...

Lights on Rare Disease - Firenze

28 Feb 2022 Firenze, Italy

Lights on Rare Disease – Firenze will light up of rare disease colours

Lighting up Place Stanislas – France

28 Feb 2022 Nancy, France

Illumination of Place Stanislas in honour of Rare Disease Day in France

Illumination of Chiesa Madre SS Pietro e Paolo – Galatina (LE) in honor of Rare Disease Day in Italy.

This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...

Illumination of Municipio di Fossalta di Portogruaro in honor of Rare Disease Day in Italy.

Illumination of “El Capitolio” (Capitol of Puerto Rico) – San Juan – in honor of Rare Disease Day in Puerto...

Lighting up palazzo comunale di Valverde

28 Feb 2022 Grammichele, Italy

Illumination of palazzo comunale di Valverde in honor of Rare Disease Day in Italy.

Lighting up Chiesa degli Scolopi

28 Feb 2022 Alatri, Italy

Illumination of Chiesa degli Scolopi in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Tricase

28 Feb 2022 Lecce, Italy

Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.

Un día en la vida de un paciente

28 Feb 2022 [En línea, desde cualquier parte de México], Mexico

Carlos David Peña Aragón, mejor conocido como Toto, nos platica qué representa vivir como persona con una enfermedad rara en...

Lights on Rare Disease - Potenza

28 Feb 2022 Potenza, Italy

Lights on Rare Disease – Potenza will light up of rare disease colours

Illumination of Vereinshaus Junge Linde in honour of Rare Disease Day in Germany

Rare Disease Day Awareness and Wellness Walk

28 Feb 2022 Shreveport, LA, United States

Awareness and wellness walk where ribbons will be handed out in the colors of rare disease day!

Lighting up The Drum Theatre

28 Feb 2022 Dandenong , Australia

Illumination of The Drum Theatre in honor of Rare Disease Day in Australia.

Ospedale Incontra Filo Diretto con l'Ematologo

28 Feb 2022 Alessandria, Italy

In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...

Lighting up Paranaple convention centre

28 Feb 2022 Devonport, Australia

Illumination of Paranaple convention centre in honor of Rare Disease Day in Australia.

Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...

Lighting up Stabilimento Tettuccio

28 Feb 2022 Pistoia, Italy

Illumination of Stabilimento Tettuccio in honor of Rare Disease Day in Italy.

Illumination of Cyprus Institute of Neurology and Genetics in honor of Rare Disease Day in Cyprus.

Lighting up Sopot's town hall - Poland

28 Feb 2022 Sopot, Poland

Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland

Illumination of Ayuntamiento de Marbella in honour of Rare Disease Day in Spain

NMOSD Your Way - Podcast Series Launch

28 Feb 2022 to 11 Mar 2022 Toronto, Canada

In time for #RareDiseaseDay, our host Lelainia and Founder and Executive Director of the Sumaira Foundation, Sumaira Ahmed, discuss what...

Lighting up Limassol Municipality Hall

28 Feb 2022 Limassol , Cyprus

Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.

Lighting up Castello Medievale

28 Feb 2022 Lecce, Italy

Illumination of Castello Medievale in honor of Rare Disease Day in Italy.

Lighting up Monumento ai caduti

28 Feb 2022 Frosinone, Italy

Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Barletta

28 Feb 2022 Barletta, Italy

Lights on Rare Disease – Barletta will light up of rare disease colours

Light up

28 Feb 2022 to 1 Mar 2022 Kruševac, Serbia

U 7 pm biće osvetljena Gradska kuća opštine Kruševac

Lighting up Wrocław - Poland

28 Feb 2022 Wrocław, Poland

Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...

Lighting up Schlosskirche Lutherstadt Wittenberg – Germany

28 Feb 2022 Lutherstadt Wittenberg, Germany

Illumination of Schlosskirche Lutherstadt Wittenberg in honour of Rare Disease Day in Germany

Lighting up Palazzo comunale di Cellamare

28 Feb 2022 Cellamare, Italy

Illumination of Palazzo comunale di Cellamare in honor of Rare Disease Day in Italy.

Lighting up Yagan Square

28 Feb 2022 Perth, Australia

Illumination of Yagan Square in honor of Rare Disease Day in Australia.

Lighting up Fontana di Piazza San Leonardo

28 Feb 2022 Treviso, Italy

Illumination of Fontana di Piazza San Leonardo in honor of Rare Disease Day in Italy.

Lighting up Ulivo al centro di Falvaterra

28 Feb 2022 Falvaterra , Italy

Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.

rare is precious

28 Feb 2022 to 6 Mar 2022 Muscat, Oman

Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...

Rare Diseases UAE-Israel Virtual Conference

28 Feb 2022 Abu-Dhabi, United Arab Emirates

On-line conference. Rare Diseases UAE-Israel Virtual Conference Program

DIA DE LAS ENFERMEDADES RARAS

28 Feb 2022 AGUASCALIENTES, Mexico

RARE DISEASE DAY

Lighting up the Theater in Litvínov

28 Feb 2022 Litvínov, Czech Republic

Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.

Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.

Lighting up Torre Civica

28 Feb 2022 Calascibetta, Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Enfermedaes Raras en Endocrinologia

28 Feb 2022 Caracas, Venezuela

Será una reunión por zoom, cuyo objetivo es concientizar a médicos sobre la existencia de enfermedades raras e Endocrinologia, donde...

Lighting up Piazza Duomo palazzo di Città

28 Feb 2022 Catania, Italy

Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale San Cassiano

28 Feb 2022 San Cassiano, Italy

Illumination of Palazzo Comunale San Cassiano in honor of Rare Disease Day in Italy.

#Челябинскредкий / Chelyabinsk light up for rare

28 Feb 2022 Челябинск, Russian Federation

Загорается для редких💥 Light up for rare 💥 Челябинск первый из российских городов присоединится к глобальной акции в поддержку людей...

Lighting up Torre Civica di Muscoline

28 Feb 2022 Chiesa, Italy

Illumination of Torre Civica di Muscoline in honor of Rare Disease Day in Italy.

Lighting up Neckarfront Tübingen – Germany

28 Feb 2022 Tübingen, Germany

Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany

Lighting up San Mames Estadio – Spain

28 Feb 2022 Bilbo, Spain

Illumination of San Mames Estadio in honour of Rare Disease Day in Spain

Lighting up Willis Tower; Willis Towers Watson

28 Feb 2022 Chicago, United States

Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.

“95” Rare Alliance Greece illuminates the monument in the Three Admirals’ Square in honor of Rare Disease Day in Pylos,...

Syndromes Without A Name (SWAN) Rare Disease Day Event

28 Feb 2022 Virtual event, Australia

Join SWAN Australia, Carer Gateway – Wellways Australia and Community Junction in raising awareness about rare diseases on Rare Disease...

Skin Story Art Contest

28 Feb 2022 to 31 Mar 2022

Art Contest – Send your drawings by March 31 – By post: Fondation René Touraine // Hôpital Necker – Enfants...

Lighting up Palazzo Santo Stefano

28 Feb 2022 Padova, Italy

Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.

Toronto CN Tower Illumination

28 Feb 2022 Toronto, Canada

Date: February 28, 2022 Cause: International Rare Disease Day Colour: Pink, blue and green The lighting begins at sunset, however...

Lighting up Bahnhof Mannheim – Germany

28 Feb 2022 Mannheim, Germany

Illumination of Bahnhof Mannheim in honour of Rare Disease Day in Germany

Un accordo di collaborazione tra Orphanet, Ospedale Pediatrico Bambino Gesù e OMaR e tante iniziative rivolte ai pazienti e alle...

Lighting up Porta del sole

28 Feb 2022 Palestrina , Italy

Illumination of Porta del sole in honor of Rare Disease Day in Italy.

Lighting up Municipio di pressana

28 Feb 2022 Pressana , Italy

Illumination of Municipio di pressana in honor of Rare Disease Day in Italy.

Lighting up Kurilpa Bridge

28 Feb 2022 South Brisbane, Australia

Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.

Illumination of Sede Municipale provvisoria del Comune (ex Capricho de Calise) in honor of Rare Disease Day in Italy.

Lighting up the Consortium Lounge - Australia

28 Feb 2022 Wollongong , Australia

Illumination of the Consortium Lounge in honor of Rare Disease Day in Australia.

Illumination of Municipality of San Michele al Tagliamento in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Corbetta

28 Feb 2022 Corbetta , Italy

Illumination of Palazzo Comunale di Corbetta in honor of Rare Disease Day in Italy.

Lighting up Opera Wrocławska

28 Feb 2022 Wrocław, Poland

Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.

Illumination of Ayuntamiento de Cuenca in honour of Rare Disease Day in Spain

Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.

Lighting up Porta a Monte

28 Feb 2022 Frosinone, Italy

Illumination of Porta a Monte in honor of Rare Disease Day in Italy.

Lighting up Palazzo Municipale di Rieti

28 Feb 2022 Rieti, Italy

Illumination of Palazzo Municipale di Rieti in honor of Rare Disease Day in Italy.

#LightUpForRare - Serbia

28 Feb 2022 Belgrade, Serbia

Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...

Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland       fot. redwedding.pl – Piotr Połoczański

Illuminazione della Torre dell’Orologio e la Fontana di Bellerofonte in onore della Giornata delle Malattie Rare

Join the GSNV in celebration of Rare Disease Day with a virtual journey to focus on “Global Themes, Local Action”....

Lighting up the Castle Hněvín in Most

28 Feb 2022 Most, Czech Republic

Illumination of Castle Hněvín in honour of Rare Disease Day in Czech Republic.

Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain

RARE DISEASES AWARENESS IN RWANDA

28 Feb 2022 to 29 Mar 2022 Kigali, Rwanda

In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...

Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...

Lighting up Little Fletcher Bridge- Australia

28 Feb 2022 Townsville, Australia

Illumination of Little Fletcher Bridge in honor of Rare Disease Day in Australia.

Illumination of Palazzo della Regione Friuli Venezia Giulia – Gorizia in honor of Rare Disease Day in Italy.

Lighting up Brant Street Pier - Canada

28 Feb 2022 Burlington, Canada

Illumination of Brant Street Pier in #RareDiseaseDay colours

Lighting up Monash Park Tree

28 Feb 2022 Shepparton, Australia

Illumination of Monash Park Tree in honor of Rare Disease Day in Australia.

Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.

Wydarzenie jest organizowane cyklicznie z okazji Dnia Chorób Rzadkich. Zapraszamy naukowców, lekarzy, diagnostów laboratoryjnych, pacjentów i inne osoby zainteresowane tematem.

Illumination of Burg und Kloster Oybin in honour of Rare Disease Day in Germany

Lighting up Porte de Bourgogne – France

28 Feb 2022 Bordeaux, France

Illumination of Porte de Bourgogne in honour of Rare Disease Day in France

Lighting up Wodonga Water Tower

28 Feb 2022 Wodonga, Australia

Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.

Lighting up Tančící dům - Ginger and Fred

28 Feb 2022 Prag , Czech Republic

Illumination of Tančící dům – Ginger and Fred in honour of Rare Disease Day in Czech Republic.

Illumination of Besucherzentrum der Berliner Gärten der Welt in honour of Rare Disease Day in Germany

Lighting up Trinity College - Ireland

28 Feb 2022 Dublin, Ireland

Illumination of the Trinity College in honor of Rare Disease Day in Ireland.

Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...

Lighting up Richmond Reserve

28 Feb 2022 Geelong , Australia

Illumination of Richmond Reserve in honor of Rare Disease Day in Australia.

Lighting up Biogen Tower München – Germany

28 Feb 2022 München, Germany

Illumination of Biogen Tower München in honour of Rare Disease Day in Germany

Lighting up Fremantle Prison

28 Feb 2022 Fremantle, Australia

Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.

Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.

Lighting up AA Fanum House

28 Feb 2022 Basingstoke, United Kingdom

The Automobile Association are lighting up their head office to represent Pontine Tegmental Cap Dysplasia and Lola who is a...

A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...

Lighting up Palazzo di città Baronissi

28 Feb 2022 Baonissi, Italy

Illumination of Palazzo di città Baronissi in honor of Rare Disease Day in Italy.

Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um...

Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...

Lights on Rare Disease - Reggio Emilia

28 Feb 2022 Reggio Emilia, Italy

Lights on Rare Disease – Fontana del Teatro Valli will light up of rare disease colours

Illumination of Edifício da Câmara Municipal – Castelo Branco in honor of Rare Disease Day in Portugal.

Illumination of Ayuntamiento de Huelva in honour of Rare Disease Day in Spain

2do Simposio Internacional del Día de las Enfermedades Raras

28 Feb 2022 Queretaro (Virtual), Mexico

La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...

#YoTambienSoyRaro

28 Feb 2022 Madrid, Spain

Subir más de 2.000 escalones

Lighting up Comune di carpi

28 Feb 2022 Modena, Italy

Illumination of Comune di carpi in honor of Rare Disease Day in Italy.

Illumination of Flinders Street Railway Station in honor of Rare Disease Day in Australia.

LIGHTING UP THE FOUNTAIN IN OMONOIA SQUARE

28 Feb 2022 Athens, Greece

“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.

Lighting up Palazzo Nieddu del Rio

28 Feb 2022 Locri , Italy

Illumination of Palazzo Nieddu del Rio in honor of Rare Disease Day in Italy.

Lighting up Municipio di Aci Sant'Antonio

28 Feb 2022 Aci Sant'Antonio , Italy

Illumination of Municipio di Aci Sant’Antonio in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Montagnana (PD)

28 Feb 2022 Montagnana (PD), Italy

Lights on Rare Disease – Montagnana will light up of rare disease colours

“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...

Illumination of Kopuła Stadionu Miejskiego in honour of Rare Disease Day in Poland

Light up for rare Egypt

28 Feb 2022 Elsheikh Zayed, Egypt

On the 28th of february at 7 pm cairo local time, sharing with the “global light up for rare” chain,...

Illumination of St. Elisabeth Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany

Iluminación en La Nucía #LightUpForRare

28 Feb 2022 La Nucía, Spain

Esta noche los edificios municipales de La Nucía se iluminan de “verde” por “Día Mundial de las Enfermedades Raras”, a...

Lighting up Rocca di Carmignano

28 Feb 2022 Carmignano, Italy

Illumination of Rocca di Carmignano in honor of Rare Disease Day in Italy.

“95” Rare Alliance Greece illuminates the stone clock in the municipality of Piraeus in honor of Rare Disease Day in...

Lighting up William Grundt Memorial Library

28 Feb 2022 Kalgoorlie, Australia

Illumination of William Grundt Memorial Library in honor of Rare Disease Day in Australia.

Lighting up Comune in Sant'Antonio Abate

28 Feb 2022 Sant'Antonio Abate, Italy

Illumination of Comune in Sant’Antonio Abate in honor of Rare Disease Day in Italy.

Journée Internationale des Maladies Rares

28 Feb 2022 Amiens, France

L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...

Lighting up Igreja de Santiago – Óbidos

28 Feb 2022 Leiria, Portugal

Illumination of Igreja de Santiago – Óbidos in honor of Rare Disease Day in Portugal.

Lighting up Ayuntamiento de Santa Cruz – Spain

28 Feb 2022 Santa Cruz de Tenerife, Spain

Illumination of Ayuntamiento de Santa Cruz in honour of Rare Disease Day in Spain

Lighting up Comune di Mondovì

28 Feb 2022 Mondovì , Italy

Illumination of Comune di Mondovì in honor of Rare Disease Day in Italy.

Illumination of Fontana del Nettuno di Piazza Duomo – Trento in honor of Rare Disease Day in Italy.

Lighting up Comune di Seveso

28 Feb 2022 Seveso, Italy

Illumination of Comune di Seveso in honor of Rare Disease Day in Italy.

La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...

Illumination of Vecchia Sede Comunale in honor of Rare Disease Day in Italy.

In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...

@amekaua_pyettro - Semana das Doenças Raras

28 Feb 2022 to 4 Mar 2022 Bom Conselho-PE, Brazil

It is an online event, on Instagram, in which posts will be published in order to raise awareness about living...

Rare Diseases in Khyber Pakhtunkhwa, Pakistan

28 Feb 2022 Peshawar , Pakistan

In 2021 we were able to perform whole exome sequencing of more one hundred index patients with Rare Disease in...

Light It Up For Rare!

28 Feb 2022 LaGrange, GA, United States

Join us in a gathering of supporters of patients with Rare Diseases around the Fountain at Lafayette Square, LaGrange GA!...

Lighting up Monumento ai Caduti

28 Feb 2022 Novara, Italy

Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.

light up Roanoke Tower

28 Feb 2022 Roanoke, United States

https://roanoketower.com/tower-lights/ Light up of city building

Lighting up Roldán - Argentina

28 Feb 2022 Roldán, Argentina

Illumination of Roldán in honour of Rare Disease Day in Argentina

Illumination of Acque del fiume della città di Ceprano in honor of Rare Disease Day in Italy.

Lighting up Cascate Monumentali - Leuca

28 Feb 2022 Leuca , Italy

Illumination of Cascate Monumentali in honor of Rare Disease Day in Italy.

Lighting up Wells Fargo Tower - United-States

28 Feb 2022 Minneapolis, United States

Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.

RARE DISEASE DAY 2022 at IndoUSrare

28 Feb 2022 Herndon, United States

We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...

Illumination of Dipartimento di Medicina della Università Aldo Moro in honor of Rare Disease Day in Italy.

Lighting up Palazzo Comunale di Grosseto

28 Feb 2022 Grosseto, Italy

Illumination of Palazzo Comunale di Grosseto in honor of Rare Disease Day in Italy.

Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain

Lighting up Municipio Teglio Veneto

28 Feb 2022 Venice, Italy

Illumination of Municipio Teglio Veneto in honor of Rare Disease Day in Italy.

Rare Disease in Newcastle: Progress and Future Priorities

28 Feb 2022 Newcastle upon Tyne, United Kingdom

A free, open-to-all online event to: • To showcase our new Newcastle Centre for Rare Disease Research, highlighting our mission...

Rare disease day illumination

28 Feb 2022 Adelaide , Australia

Parliament house will illuminate blue, green and purple for rare disease day.

Rare Diseases: A Global Priority for Equity [accessible online]

28 Feb 2022 Dubai, United Arab Emirates

Join the global Rare Disease Day event organised by the NGO Committee for Rare Diseases, the Ågrenska Foundation, RDI, and...

Lighting up Teatro Massimo - Palermo

28 Feb 2022 Palermo, Italy

Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.

Lighting up Monumento ai Caduti di Castiglione della Pescaia

28 Feb 2022 Castiglione della Pescaia, Italy

Illumination of Monumento ai Caduti di Castiglione della Pescaia in honor of Rare Disease Day in Italy.

The event is a digital inauguration ceremony for Center for Rare Diseases West (Gothenburg) with invited guests like the Swedish...

Illumination of Estátua D. José I – Terreiro do Paço in honor of Rare Disease Day in Portugal.

Oxford-Harrington Rare Disease Centre Webinar

28 Feb 2022 Virtual, United Kingdom

The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...

Illumination of Fuente de los Patos de Alhama de Murcia in honour of Rare Disease Day in Spain

Lighting up Torre del Castello

28 Feb 2022 Crotone, Italy

Illumination of Torre del Castello in honor of Rare Disease Day in Italy.

Illumination of Monumento dei caduti di Otranto in honor of Rare Disease Day in Italy.

SickKids Rare Disease Day 2022

28 Feb 2022 Toronto, Canada

The last day of February is recognized as Rare Disease Day. We at SickKids, are proud to join the many...

Lighting up Neptune's Fountain - Poland

28 Feb 2022 Gdańsk, Poland

Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland     fot. redwedding.pl – Piotr Połoczański

Lighting up Torre Civica

28 Feb 2022 Massignano , Italy

Illumination of Torre Civica in honor of Rare Disease Day in Italy.

Lighting up Statua del Pescatore

28 Feb 2022 Lecce, Italy

Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.

Lighting up Parlamento Vasco – Spain

28 Feb 2022 Gasteiz, Spain

Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain

Illumination of Mieczysław Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in Poland

Rare Disease Day

28 Feb 2022 Cape Town, South Africa

The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...

LIGHTING IT UP - GTC TOWER

28 Feb 2022 Nairobi, Kenya

Lighting up the tallest tower in East Africa, Kenyan style!!

Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.

Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.

RARE RUN BOLOGNA - II Virtual Edition

28 Feb 2022 BOLOGNA , Italy

Oggi GIORNATA MONDIALE DELLE MALATTIE RARE: partecipa alla RARE RUN BOLOGNA – Edizione Virtuale. Sostieni con noi tutti i bimbi...

Lighting up Minnesota Bridge Anthony Falls

28 Feb 2022 Minneapolis, United States

Illumination of Minnesota Bridge Anthony Falls in honor of Rare Disease Day in USA.

The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...

Lighting up Townsville Sign - Australia

28 Feb 2022 Townsville, Australia

Illumination of Townsville Sign in honor of Rare Disease Day in Australia.

NMD Pharma Lights Up INCUBA/Skejby

28 Feb 2022 Aarhus, Denmark

For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...

Lighting up Palazzo Comunale di Vico Equense

28 Feb 2022 Vico Equense , Italy

Illumination of Palazzo Comunale di Vico Equense in honor of Rare Disease Day in Italy.

Lighting up Scultura in ferro di Via Roma

28 Feb 2022 Grosseto, Italy

Illumination of Scultura in ferro di Via Roma in honor of Rare Disease Day in Italy.

Nano Rare Disease Day

28 Feb 2022 Barcelona, Spain

Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...

Lighting up palazzo comunale di Valderice

28 Feb 2022 Valderice, Italy

Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy

Illumination of Dreifaltigkeitssäule Rathausplatz St. Pölten in honor of Rare Disease Day in Austria.

Lighting up Zakim Bridge

28 Feb 2022 Boston, United States

Illumination of Zakim Bridge in honor of Rare Disease Day in USA.

Lighting up Theater Dessau – Germany

28 Feb 2022 Dessau-Roßlau, Germany

Illumination of Theater Dessau in honour of Rare Disease Day in Germany

Lighting up Arena di Verona

28 Feb 2022 Verona, Italy

Illumination of Arena di Verona in honor of Rare Disease Day in Italy.

Lighting up Newcastle Clock Tower

28 Feb 2022 Newcastle, Australia

Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.

Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.

"Sostengo" Giornata delle Malattie rare

28 Feb 2022 Montesarchio, Italy

Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci

Lighting up Wait Chapel at Wake Forest University

28 Feb 2022 North Carolina, United States

Illumination of Wait Chapel at Wake Forest University  in honor of Rare Disease Day in USA.

Illumination of Kienlesbergbrücke Ulm in honour of Rare Disease Day in Germany

On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most...

Lighting up Palazzo degli Elefanti

28 Feb 2022 Catania,, Italy

Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.

Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...

Lighting up Ayuntamiento Gandía – Spain

28 Feb 2022 Gandia, Spain

Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain

Dr. Santiago March y los avance en medicina geómica

28 Feb 2022 [En línea, desde cualquier parte de Latinoamérica], Mexico

Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...

Lighting up Marienkirche Neubrandenburg – Germany

28 Feb 2022 Neubrandenburg, Germany

Illumination of Marienkirche Neubrandenburg in honour of Rare Disease Day in Germany

Illumination of Edifício dos Paços do Concelho – Funchal in honor of Rare Disease Day in Portugal.

Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.

Shining a Light on Genetic Diagnosis

28 Feb 2022 Edinburgh, United Kingdom

Shining a Light on Genetic Diagnosis, Monday 28 February, 6-7.30pm Institute of Genetics and Cancer, the University of Edinburgh, in...

Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...

Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain

LIGHTING UP THE RIO - ANTIRRIO BRIDGE

28 Feb 2022 Antirrio, Greece

“95” Rare Alliance Greece illuminates the Rio – Antirrio Bridge in honor of Rare Disease Day in Greece.

Illumination of Edificio de la Consejería de Salud in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Vitoria in honour of Rare Disease Day in Spain

Lighting up La Rotonda

28 Feb 2022 Vincenza, Italy

Illumination of La Rotonda in honor of Rare Disease Day in Italy.

LIGHT UP FOR RARE

28 Feb 2022 Bergamo, Italy

UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” illuminating Porta San Giacomo. We are grateful to our branch...

Be Rare Spirit Day

28 Feb 2022 San Antonio, United States

Be Rare Spirit Day, which was planned, organized, and hosted by Abigail Villarreal will take place at Thomas Jefferson High...

Lighting up Ayuntamiento Jabalquito – Spain

28 Feb 2022 Jabalquinto, Spain

Illumination of Ayuntamiento Jabalquito in honour of Rare Disease Day in Spain

Lighting up Melbourne Cricket Ground - Australia

28 Feb 2022 Melbourne, Australia

Illumination of Melbourne Cricket Ground in honor of Rare Disease Day in Australia.

Illumination of TOkna w Sali Sesyjnej w Sukiennicach, Wrocław in honor of Rare Disease Day in Poland.

Lighting up l'Ours Pompon – France

28 Feb 2022 Dijon, France

Illumination of l’Ours Pompon in honour of Rare Disease Day in France

A Rare Disease Day Celebration hosted by NORD

28 Feb 2022 Virtual, United States

NORD invites you to wear your favorite zebra print shirt or a striped scarf and meet online for a community...

Lighting up Launceston Town Hall

28 Feb 2022 to 1 Mar 2022 Launceston Tasmania, Australia

Illumination of Launceston Town Hall in honor of Rare Disease Day in Australia.

Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France

Lighting up Torre comunale di Lacco Ameno

28 Feb 2022 Naples, Italy

Illumination of Torre comunale di Lacco Ameno in honor of Rare Disease Day in Italy.

Poster competition on Rare Disease

28 Feb 2022 Patiala, India

Students from different Departments of University participate in it

Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...

Lighting up Torre dei Da Pendolasco

28 Feb 2022 Poggiridenti , Italy

Illumination of Torre dei Da Pendolasco in honor of Rare Disease Day in Italy.

Lighting up Rotunda dos Peixes – Setúbal

28 Feb 2022 Setúbal, Portugal

Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.

Las EPOF de Santa Fe siempre dicen presente

28 Feb 2022 Santa Fe, Argentina

Iluminación en color violeta

Lighting up Reddacliff Place Steam sculptures

28 Feb 2022 Brisbane City, Australia

Illumination of Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.

Illumination of Monumento ai Caduti sul Lavoro – LECCO in honor of Rare Disease Day in Italy.

Lighting up Greenbrier - United-States

28 Feb 2022 White Sulphur Springs, United States

Illumination of Greenbrier in honor of Rare Disease Day in the United-States.

Illumination of Palazzo Comunale di Zagarolo in honor of Rare Disease Day in Italy.

Lighting up Porta al Prato

28 Feb 2022 Firenze, Italy

Illumination of Porta al Prato in honor of Rare Disease Day in Italy.

Illumination of Pałac Kultury i Nauki (PKiN) in honour of Rare Disease Day in Poland

Lighting up San Francisco’s City Hall

28 Feb 2022 San Francisco, United States

Illumination of San Francisco’s City Hall in honor of Rare Disease Day in USA.

Illumination of Zentrum für Seltene Erkrankungen am Uniklinik Freiburg in honour of Rare Disease Day in Germany

Lighting up Schloss Hainewalde – Germany

28 Feb 2022 Hainewalde, Germany

Illumination of Schloss Hainewalde in honour of Rare Disease Day in Germany

Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.

Lighting up Duomo Reggio Emilia

28 Feb 2022 Reggio Emilia, Italy

Illumination of Duomo Reggio Emilia in honor of Rare Disease Day in Italy.

Lighting up Palazzo del Podestà

28 Feb 2022 Bologna, Italy

Illumination of Palazzo del Podestà in honor of Rare Disease Day in Italy.

Hacettepe University Rare Disease Day

28 Feb 2022 Ankara, Turkey

Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...

Rare Disease Day- Charity Concert

28 Feb 2022 to 6 Mar 2022 Onlilne Event, Worldwide

Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022  to Sunday 06.03.2022 at...

Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France

Avances en Neuropatías Inflamatorias

28 Feb 2022 Online, Spain

First Inflammatory Neuropathies’ Virtual Conference in Spanish.

Lights on Rare Disease - Vercelli

28 Feb 2022 Vercelli, Italy

Lights on Rare Disease – Vercelli will light up of rare disease colours

Lighting up Templi del Parco Archeologico di Paestum

28 Feb 2022 Capaccio Paestum, Italy

Illumination of Templi del Parco Archeologico di Paestum in honor of Rare Disease Day in Italy.

Illumination of Polo delle Arti e della Cultura in honor of Rare Disease Day in Italy.

Lappia Talo lights up for rare

28 Feb 2022 Rovaniemi, Finland

Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will be illuminated in honour of...

Illumination of Electricity Authority of Cyprus – Larnaca Offices in honor of Rare Disease Day in Cyprus.

Rare Disease 2022 Let's Find a Cure

28 Feb 2022 Virtual, United States

On February 28, 2022 we will be highlight throughout the day individuals and organizations helping and seeking a cure to...

Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain

Illumination of City Hall Hradec Králové in honour of Rare Disease Day in Czech Republic.

Lighting up Clermont Auvergne Opéra - France

28 Feb 2022 Clermont-Ferrand, France

Illumination of Clermont Auvergne Opéra in honour of Rare Disease Day in France

Awareness & Management of Rare Diseases

28 Feb 2022 Guntur, India

Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...

The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...

Lighting up Palazzo Regione Sicilia

28 Feb 2022 Palermo, Italy

Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.

Lighting up Teatro Comunale di Carpi

28 Feb 2022 Carpi, Italy

Illumination of Teatro Comunale di Carpi in honor of Rare Disease Day in Italy.

Lights on Rare Disease - Rovigo

28 Feb 2022 Rovigo, Italy

Lights on Rare Disease – Rovigo will light up of rare disease colours

Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain