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¿Enfermedades raras? La realidad detrás de los datos...

22 Feb 2024 Guadalajara, Jalisco, Mexico

Café y tertulia científica con el Dr. Luis Figuera, quien es experto en enfermedades raras (ER). Platicaremos en un ambiente...

Pledge Your Support for Rare Diseases! Rare Disease Day is held annually on the last day of February, it is...

Los invitamos al III Foro Internacional de Enfermedades Raras Día:           28 febrero 2023 Hora: de  9:00 am...

In the run-up of Rare Disease Day, Chan Zuckerberg Initiative presents: No Ordinary Campaign at the Presidio Theatre in San...

To mark Rare Disease Day today, we are pleased to release the now 10th episode of our podcast series, “Rare Diseases and...

On February 28, at 4:00 p.m., we will hold a webinar “Rare diseases in the practice of family doctors: what...

"Rare Music 4 Rare Diseases" Concert

24 Feb 2023 Hesperange, Luxembourg

ALAN and the council of Hesperange invite to the concert “Rare Music 4 Rare Diseases”, on the 24th of February...

"RARO YO"

28 Feb 2023 Madrid, Spain

MONOLOGO EN STREMING “RARO YO”

"Sorrisi rari"

18 Feb 2023 Roma, Italy

In occasione del mese delle malattie rare, i volontari e le famiglie a contatto con la Sclerosi tuberosa hanno pensato...

"WALK4RARE" in KIGALI

18 Feb 2024 Kigali, Rwanda

18 February, 2024, it will be a car free day in Kigali-Rwanda, so we will take that opportunity to make...

“Che ruggito piccolo leone!”

28 Feb 2023 Rosà (Vi), Italy

Ogni anno scolastico, nella Scuola dell’infanzia “Gli Aquiloni” Istituto Comprensivo “A. G. Roncalli” Rosà (Vi) vengono proposte all’interno delle sezioni...

Delve into the complexities of apraxia of speech with a distinguished panel featuring Dr. Angela Morgan, Dr. Ruth Stoeckel, and...

«La Conversación»

16 Feb 2023 to 28 Feb 2023 En línea, Mexico

«La Conversación» es una serie de entrevistas a destacados científicos médicos dedicados con pasión a mejorar la calidad de vida...

«Tenemos todo el tiempo para escucharlos»

25 Feb 2023 En línea, Mexico

«Tenemos todo el tiempo para escucharlos» será un evento en el que, por primera vez en todo el mundo y...

L’Institut Imagine annonce son prochain #GénéTalks : le rendez-vous incontournable des passionnés de génétique   L’Institut Imagine, leader mondial dans...

Un changement de lettre dans le code génétique peut faire basculer une vie. Une mutation suffit à altérer un processus...

#LetsMove4NDM

28 Feb 2023 to 7 Mar 2023

The Lupin Neurosciences team worked with people living with NDM to develop the #LetsMove4NDM challenge to raise public awareness of...

#LightUpforRare Cavan Court House

28 Feb 2023 Cavan, Ireland

#LightUpforRare at 7:30pm

#partagetescouleurs

1 Feb 2023 to 28 Feb 2023

Nous lançons le challenge #partagetescouleurs, cela consiste pour la journée internationale des maladies rares de partager jusqu’au 28 février, –...

#RAREis One Webinar

29 Feb 2024

Join us on Rare Disease Day, Thursday, February 29 at 11:30 a.m. ET for the #RAREis One webinar to hear...

OVERVIEW On Rare Disease Day 2023, Rare Diseases International (RDI) invites you to “#SeeRare”, a virtual event showcasing the breadth...

#ShareYourColours Denim Walk

4 Mar 2023 Johannesburg, South Africa

We’re so excited to be celebrating Rare Disease Day 2023! Please join us for an early evening Denim Walk in...

#ShowYourMove4NDM

12 Feb 2024 to 29 Feb 2024

This February, Lupin Neurosciences, a division of Lupin Atlantis Holdings SA, embarks on a mission to raise awareness for Non-Dystrophic...

Evento finale della campagna di sensibilizzazione in cui ripercorreremo le iniziative del mese dedicato alle malattie rare e ci proietteremo...

Giovedì 1 febbraio dall’Auditorium del Ministero della Salute UNIAMO – Federazione Italiana Malattie Rare lancerà la campagna #UNIAMOleforze: più di...

1 CORRIDA INCLUSA DOS RAROS EM APARECIDA

3 Mar 2024 APARECIDA, Brazil

A 1ª Corrida Nacional Inclusiva dos Raros é uma iniciativa da Casa de Saúde Nossa Senhora dos Raros, da Associação...

Patients with rare diseases followed in our Medical Genetics Clinic and families will be invited to the event. There will...

10DAYS4RARE

19 Feb 2024 to 28 Feb 2024 Kigali, Rwanda

Rare diseases awareness in schools: “10days for rare (10DAYS4RARE)” Sharing lessons on rare diseases in schools: “Living with a rare...

Dans le cadre des journées de sensibilisation, et à l’occasion de la Journée Internationale des Maladies Rares 2023, l’Association Espoir...

11. KMSK Wissens-Forum Seltene Krankheiten

2 Mar 2024 6005 Luzern, Switzerland

ZUSAMMENSPIEL ZWISCHEN ELTERN, ÄRZTEN UND WEITEREN AKTEUREN Der Förderverein für Kinder mit seltenen Krankheiten feiert sein zehnjähriges Jubiläum und lädt...

11. KMSK Wissens-Forum Seltene Krankheiten

2 Mar 2024 6005 Luzern, Switzerland

Wissenstransfer Seltene Krankheiten: ❤️🐸 Der Förderverein für Kinder mit seltenen Krankheit feiert sein zehnjähriges Jubiläum und lädt am 2. 3.2024...

11th Annual Rare Disease Symposium

29 Feb 2024 to 1 Mar 2024 Birmingham, AL, United States

Register to attend the 11th Annual Rare Disease Symposium on Feb. 29 – March 1! This is a hybrid event,...

Konferenz und Stände von Patientenorganisationen.

Conférences avec présence de stands d’association de patients

Anualmente el mundo dedica el último día del mes de febrero para pensar en estas patologías. Colombia se une a...

17^ Giornata delle Malattie Rare 2024

27 Feb 2024 Milan, Italy

PREMESSA L’evento ha la finalità di celebrare la giornata delle malattie rare. Il convegno intende delinearsi come occasione per affrontare,...

17th RDD in Hungary

24 Feb 2024 to 9 Mar 2024 Sopron, Hungary

The National Association of People with Rare and Congenital Disorders (RIROSZ) has now organized World Rare Diseases Day for the...

O Evento irá reunir, pacientes, associações de paciente, gestores públicos, profissionais, familiares, amigos e parceiros que se somam em uma...

➡️ 1/15 000 enfant est touché par l’aplasie majeur de(s) l’oreille(s). ➡️ Environ 4 500 personnes en France, car on...

1st International UAE Rare Disease Society Congress

25 Feb 2023 to 26 Feb 2023 Dubai, United Arab Emirates

On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...

1st Student Conference on Rare Diseases

29 Feb 2024 Gdańsk, Poland

Falling once every four years, February 29 is the rarest day of the year. On that very day, in the...

Information and sensibilization to rare diseases in terms of public health and ethics.

2023 Rare Disease Day

28 Feb 2023 Boston, United States

Join MassBio as we mark the annual Rare Disease Day at the Statehouse by bringing attention to the groundbreaking, patient-focused...

From February 27 to March 5, 2023, the MATIO Foundation for the 22nd time organizes a social campaign under the...

28 days...a rare journey

1 Feb 2023 to 28 Feb 2023 https://www.facebook.com/groups/rarediseasemonthbymonadikaxamogela/, Cyprus

A post will be uploaded on a daily basis with statistical information about rare diseases and testimonies from our members,...

CEBRAS MÉXICO Y MUJER MÉXICO en conjunto con el Congreso Legislativo de Quintana Roo, la Comisión de Salud y Asistencia...

Se lleva a cabo el 2do Foro de Enfermedades Raras en México “Mayor Visibilidad, Mayor Oportunidad de Vida” Organizado por...

l’Alliance Algérienne contre les Maladies Rares organise en partenariat avec les laboratoires Pfizer une rencontre des groupes de patients des...

2nd European Congress of Neurology and Neuropsychiatry

19 Feb 2024 to 20 Feb 2024 London , United Kingdom

We are delighted to welcome you to the 2nd European Congress of Neurology and Neuropsychiatry which will take place on...

2nd International UAE Rare Disease Society Congress

29 Feb 2024 to 2 Mar 2024 Abu Dhabi, United Arab Emirates

Our inaugural congress witnessed groundbreaking discussions, profound insights, and remarkable advancements in the understanding and management of rare diseases. Building...

2nd Saudi Rare Disease Summit

16 Feb 2024 to 17 Feb 2024 Riyadh, Saudi Arabia

The Saudi Rare Disease Summit is a unique platform that explore the area of rare diseases and fosters collaboration among...

Jornada nacional e internacional de enfermedades huérfanas/raras, para esta ocasión con el protagonismo de quienes tienen una relación directa con...

3er SIMPOSIO ACTUALIZACION DE ENFERMEDADES RARAS EN VENEZUELA 2024

1 Mar 2024 Valencia Edo Carabobo Venezuela, Venezuela

Dirigido a profesionales de la salud, estudiantes, pacientes, cuidadores y publico en general.

La Red Mexicana de Enfermedades Raras (ReMexER) y el Laboratorio Internacional de Investigación sobre el Genoma Humano se unen a...

3rd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter

28 Feb 2023 to 1 Mar 2023 Athens, Greece

3rd International Conference on Rare Diseases: Greek Chapter ‘’Leveraging the momentum for a comprehensive rare disease strategy’’ In the context...

The Red Mexicana de Enfermedades Raras (ReMexER), the International Laboratory for Human Genome Research (LIIGH, UNAM) and the Colaborativa para...

5th Annual Rare Disease Day Event

24 Feb 2024 Grand Rapids, MI 49546, United States

Calvin University, Corewell Health/Helen DeVos Children’s Hospital, MSU College of Human Medicine and Van Andel Institute will host its 5th...

8th Annual Rare Disease Day virtual race

1 Feb 2023 to 28 Feb 2023

Join us for our 8th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...

Patients with Rare Diseses could send happy photos about themseves and were judged by representatives of media for prizes. The...

Join us for an insightful discussion with Dr. Cora Taylor as she shares valuable insights into behavioral interventions tailored for...

Get ready for a deep dive into understanding the roles of genetic counselors, genetic testing, and the array of resources...

A-T CHILDREN'S PROJECT CANADA

29 Feb 2024 FORT MACLEOD, Canada

A-T RUN

Il Comune di Arenzano illuminerà la torre dell’orologio di Palazzo Sant’Antonio

Accendiamo le luci sulle malattie rare

29 Feb 2024 Il Comune di Arenzano, Italy

Arenzano, anche quest’anno, ha aderito al RareDiseaseDay, la giornata mondiale dedicata alle malattie rare che sarà celebrata in tutto il...

Anche quest’anno il Comune di Arenzano aderirà alla giornata denominata “Accendiamo le luci sulle malattie rare” in data 29/02/2024 illluminando...

Palazzo Sant’Antonio

Illuminazione delle mura del Castello dei Conti di Acerra con i colori della Giornata delle malattie rare 2024

Illuminazione delle mura del Castello Dei Conti con i colori della Giornata delle malattie rare 2024, a cura del Comune...

We are excited to invite you to Rare Disease Day 2023 in Calgary on February 26, 2023! If you are...

Desde la Alianza de Familias afectadas por el Síndrome de Wolfram (AFASW) nos sumamos a la conmemoración del Día Mundial...

Scientific Congress with Dissemination and Dissemination of Scientific Research Results for EEC Syndrome. Study of an eye drops for the...

Facilitar el acceso a los recursos especializados; aplicar la cobertura de los tratamientos (más allá de los medicamentos); es una...

le associazioni A.I.D. – Kartagener Onlus ed A.Ma.R.A.M. Aps, celebreranno la Giornata Mondiale delle Malattie Rare 2023 organizzando l’incontro dal...

Ågrenska lyser upp för det sällsynta

28 Feb 2023 Hovås, Sweden

På måndag lyser himlen upp lite extra över Lilla Amundön när Ågrenska uppmärksammar Sällsynta dagen. Ågrenska gör då gemensam sak...

Ågrenska lyser upp för det sällsynta!

29 Feb 2024 Göteborg, Sweden

Ågrenska arrangerar ett festligt Sällsynta dagen-disco för de familjer som deltar i vår familjevistelse den veckan. Dessutom kommer vårt karakteristiska...

Alamo Quarry Market Lights Up for Rare Disease Day

28 Feb 2023 San Antonio, United States

The Alamo Quarry Market is participating in the #LightUpForRareCampaign and will illuminate the smoke stacks for Rare Disease Day

ALD Makes Me Blue

1 Feb 2023

ALD Makes Me Blue is a collaborative fundraising coalition among international ALD organizations. It is the “Brain Child” of a...

All You Need is Love

11 Feb 2024 Montreal, Canada

We are thrilled to invite you and your family to our special Valentine’s event, « All You Need is Love », hosted...

Amleto è mio fratello

29 Feb 2024 Viterbo, Italy

Proiezione del film “Amleto è mio fratello” di Framcesco Giuffrè, fra gli attori un socio di Associazione Italiana Sindorme X...

Rare Diseases Awareness Day activities were held at Ankara University Rare Diseases Application and Research Center with the participation of...

Anniversary Event in support of Rare Disease Day

29 Feb 2024 Naperville, United States

Join us for an evening celebrating Ellce Home’s 3rd year in our downtown Naperville showroom in which we will feature...

Annual RD Community Potluck

25 Feb 2024 Georgetown, Penang, Malaysia

A gathering of individuals and families from the rare disease community in the northern region of Malaysia ie Perak, Pulau...

Aperi-CIDP

23 Feb 2024 Milano, Italy

23 febbraio 2024, 17:00 CET Conosciamoci! Raccontiamoci! Un incontro per pazienti CIDP e GBS in collegamento Zoom con il Prof....

Arrío de la Bandera Nacional - 2024 - Argentina

29 Feb 2024 Buenos Aires, Argentina

Arrío de la Bandera Nacional en el Día Mundial de las Enfermedades Poco Frecuentes.

Art contest 2023

28 Feb 2023 to 30 May 2023 Paris, France

Our international art contest is organized by the Rare disease network of the René Touraine foundation. It is an opportunity...

ART4RARE 2023 - Annual Art Contest

1 Dec 2022 to 28 Feb 2023 Herndon, Worldwide

IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2023. This year’s theme...

The event puts together patients, specialists and journalists to raise awareness on rare diseases, diagnostic, access and prevention for next...

ASBBI - Guide dogs & Lifeguard dogs.

25 Feb 2024 CARNATE (Mb) - ITALY., Italy

The ACSN is dedicated to the training of lifeguard dogs and their handlers. Also there will be a demonstration of...

Ask the Doctor About Lymphoma is a two-hour program that combines a presentation by a medical doctor with an extensive...

Presentazione dei progetti delle associazioni di pazienti che si occupano di malattie rare

Ausstellung "Selten Allein"

13 Feb 2023 to 12 Mar 2023 Erfurt, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

21 Feb 2023 to 12 Mar 2023 Dresden, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

21 Feb 2023 to 12 Mar 2023 Mainz, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

22 Feb 2023 to 12 Mar 2023 Berlin, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Ausstellung "Selten Allein"

24 Feb 2023 to 12 Mar 2023 Mannheim, Germany

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Awareness day of pediatric rare diseases

28 Feb 2023 Triploi, Libya

Let us be together, empowering rare patients and their families to be rare, strong, and proud.

Awareness For RARE DISEASE DAY

28 Feb 2023 Buena park, United States

We are gathering at Southwest Mountain States Carpenters Union Local 714 support of Raising Awareness for Rare Diseases.

Be part of the Rare Day Film

29 Feb 2024 to 17 Mar 2024 Manchester, United Kingdom

On International Rare Disease Day 2024 we are asking people around the world to capture a simple clip of something...

Rare diseases are gaining traction as a pressing health priority worldwide. We have now seen the first-ever UN Resolution on...

Bike 4 Rare Disease Day 2024

17 Feb 2024 Ferrara , Italy

🇮🇹 #BIKE4RAREDISEASEDAY 2024: Ferrara-San Luca 😎 Torna la social ride dedicata alla Giornata delle Malattie Rare, che si celebra ogni...

Bike4RareDiseaseDay

26 Feb 2023 Ferrara , Italy

In occasione della Giornata delle Malattie Rare (che si celebra l’ultimo giorno di febbraio) domenica 26 febbraio si terrà il...

Bloco do Xulé Xêroso

24 Feb 2024 Uberlândia, Brazil

Bloco do Xulé Xêroso é um evento de conscientização sobre as doenças raras que se aproveita de outra data bem...

BOKS vzw laat EDELWEISS klinken

28 Feb 2023 BEVEREN-WAAS, Belgium

Klankjorum zingt het liedje EDELWEISS. Hiervan is een filmpje gemaakt om de boodschap van zeldzame ziektendag te verspreiden via social...

UNA PRESA IN CARICO PIU’ EQUA ED OLISTICA DI UNA PERSONA CON MALATTIA RARA: IL TAVOLO RETE METROPOLITANA MALATTIE RARE,...

Brno celebrates Rare Disease Day 2024

22 Feb 2024 Brno, Czech Republic

Seminar for health professionals, university and high school students, patients with rare diseases, caregivers and the public. Free admission. Limited...

Broadcast of the RDD radio spot – Antena 3 radio for Rare Disease Day in Portugal.

Broadcast of the RDD radio spot – Radio RFM for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – Canal Q for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – Porto Canal for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – RTP2, RTP Memória and RTP3 – Portuguese national TV channels for Rare Disease Day in...

Broadcast of the RDD TV spot – Sporting TV for Rare Disease Day in Portugal.

Broadcast of the RDD video – Brandstore advertising screens for Rare Disease Day in Portugal.

Broadcast of the RDD video – Centro Hospitalar do Porto, Porto for Rare Disease Day in Portugal.

Broadcast of the RDD video – Centro Hospitalar Universitário de Lisboa Central for Rare Disease Day in Portugal.

Broadcast of the RDD video – Hospital da Luz, Lisbon for Rare Disease Day in Portugal.

Broadcast of the RDD video – Serviços Sociais da Câmara Municipal Lisboa, Lisbon for Rare Disease Day in Portugal.

Broadcast of the RDD video / Posters – Carris buses, Lisbon for Rare Disease Day in Portugal.

Building Illumination

29 Feb 2024 All cities, Cyprus

Cyprus Alliance for Rare Disorders and the National Commitee for Rare Diseases co-organise the illumination of various buildins. Kick-off event...

An educational program to learn more about a treatment in Cold Agglutinin Disease (CAD). Hear from a patient speaker living...

Cake Decorating Championship 2023.

28 Feb 2023 Budapest, Hungary

This is a cake decorating championship in cooperation with Roche Hungária Kft. The main topic is: Show your Colours. The...

Caminata por las enfermedades raras

24 Feb 2024 San Luis Potosí , Mexico

Realizar una caminata para llevar el mensaje a más personas

CAMMINO DI PREGHIERA CON SOPHIE "ESSERE UMANI"

26 Feb 2024 San Martino Valle Caudina(AV), Italy

I bambini del catechismo cantano a sostegno delle malattie rare. Illuminazione monumento

ORE 17.15 NEI PRESSI DELLA MADONNINA FIACCOLATA, SANTA MESSA, VOLO DEI PALLONCINI E SUCCESSIVA ILLUMINAZIONE CHIESA

Papa Francesco riceve in udienza privata una delegazione di UNIAMO – Federazione Italiana Malattie Rare Presenti oggi in Vaticano 100...

“Una luz por las raras” es el nombre con el cual la organización del Día Mundial de Enfermedades Raras 2023...

El municipio de #Calarcá se une a la campaña mundial #UnaLuzPorLasRaras iluminando el Edificio de las Empresas Públicas de Calarcá...

El Puerto de Buenaventura se suma a la conmemoración del Día Mundial de Enfermedades Raras. Uno de sus íconos arquitectónicos,...

Campaña por el Día Mundial de las Enfermedades Raras

25 Feb 2023 Carmen de La Legua Reynoso, Lima, Peru

Campaña de Difusión, actividades recreativas y encuentro personas con enfermedades raras y sus familias. Promovido por Asociación Peruana de Pacientes...

CamRARE's Rare-i-Tea Party

3 Mar 2024 Cambridge, United Kingdom

Cambridge Rare Disease Network (CamRARE) invite you to join our community to celebrate Rare Disease Day 2024 at the wonderful...

CareForRare support group webinar

22 Feb 2023 manama, Bahrain

Dear All We would like to invite you to join us and attend the “CareForRare Support Group” webinar on 22nd...

Our first event in our five-part series launches in honor of Rare Disease Day on February 19. This event will...

CAROVANA DELLA RICERCA II EDIZIONE

2 Mar 2024 BERGAMO, Italy

Sabato 2 marzo, in occasione della Celebrazione della Giornata Mondiale delle Malattie Rare (29 febbraio 2024), la Fondazione A.R.M.R ha...

Carry Hope 2023 7.7KM Walk-A-Jog Challenge

26 Feb 2023 Sports Hub, 100PLUS Promenade , Singapore

We will be flagging off the campaign with the clocking of the 7.7KM run, or a choice of a 4KM...

Carry Hope 2024

7 Jan 2024 to 25 Feb 2024 Singapore, Singapore

Carry Hope is the annual rare disease awareness and fundraising campaign of the Rare Disorders Society (Singapore), or RDSS, in...

Casa dos Raros - Portas Abertas

29 Feb 2024 Porto Alegre, Rio Grande do Sul, Brazil

The House of Rares (Casa Dos Raros) will be opening its doors to welcome the rare disease community, families, professionals,...

Celebrating Rare Disease Day 2024

29 Feb 2024 GEORGETOWN, Malaysia

A colouring competition will be held from 1 Jan to 20 Feb 2024 for all ages. This is follow by...

Celebration of Rare Disease Day

29 Feb 2024 Prague, Czech Republic

Celebration for people with RDs on this special day. We will celebrate by attending to a theatre play on the...

Charla científica "Terapia Génica "

28 Feb 2023 Montevideo , Uruguay

Charla científica que se trasmite por el canal https://youtube.com/@fundacionfupieruy Para informar de manera responsable sobre los últimos avances de la...

Charla con experiencias de familias atravesadas por una EPOF

29 Feb 2024 Tandil, Provincia de Buenos Aires, Argentina

Se acerca el gran día ! El 29 de Febrero es el Dia Mundial de las Enfermedades Poco Frecuentes (...

Es un evento dirigido a pacientes y familiares de personas con enfermedades raras; que busca motivar a la población a...

Charla enfermedades raras

27 Feb 2024 Quito, Ecuador

Charla de la Dra. Mattos sobre las enfermedades raras. Escúchanos a través de nuestra radio online https://colegiomedicodepichincha.org/radio/

Charla introductoria sobre las enfermedades raras

Charla Virtual ” PREPARANDO LA PIEL PARA EL MAÑANA ” en pacientes con Malformación Anorrectal y Hirschsprung. Desde @amar.asociacion_padres, queremos...

Rarus Health SPA y FECHER organizará un seminario web especial para pacientes, cuidadores y especialistas de salud. En palabras sencillas,...

Join Congenital Hyperinsulinism International as we gather to share stories and experiences of patients and families with congenital hyperinsulinism worldwide....

Children's Hospital & Medical Center - Omaha, NE

28 Feb 2023 Omaha, United States

The hospital is lighting up for Rare Disease Day 2023!

Choroby rzadkie wcale nie są rzadkie! Zmagają się z nimi miliony ludzi w Polsce i na całym świecie. Dlatego 28...

Cincinnati Children's Hospital Medical Center Supports and Celebrates Rare!

27 Feb 2024 to 29 Feb 2024 Cincinnati, United States

Share Your Colors and Show Your Stripes on Rare Disease Day! A collaborative group of divisions within Cincinnati Children’s Hospital...

Ciné-débat

28 Feb 2023 7700 Mouscron, Belgium

Le 28 Février prochain, journée mondiale des maladies rares, notre association organisera dès 19:30 au Cinéma For&ver un ciné-débat ayant...

Closing conference RDD2023

1 Mar 2023 Bucharest, Romania

The final conference will bring together all the partners that organized events and awareness campaigns during February and will present...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffin-Lowry Syndrome Star of the Day

1 Feb 2023 to 28 Feb 2023

Coffin-Lowry Syndrome Association, Romania is organizing a social media campaign to raise awareness on this rare disease. Each day of...

Cold Dip in aid of Rare Ireland

24 Feb 2024 Clare, Ireland

Cold Water Dip in aid of Rare Ireland. Rare Ireland (RI) is a parent run charity, supporting families living with...

Colloque Scientifique Maladies Rares - Strasbourg

28 Feb 2023 Strasbourg, France

Dans le cadre de la Journée Internationale des Maladies Rares, la Fondation Maladies Rares, la plateforme d’expertise Maladies Rares « Est Rare », et leurs partenaires, dont SENSGENE,...

Colorado Rare Disease Day Celebration

29 Feb 2024 Denver, United States

Colorado, join us on the east steps of the Capitol at 1:30PM on February 29th for a picture at 2:00PM...

colourUp4RARE

26 Feb 2024 to 3 Mar 2024

This campaign is aimed at the public and is a joint action by the pharmaceutical and health companies Alexion, Chiesi,...

colourUp4RARE Live-Event

28 Feb 2023 80331 München, Germany

For Rare Disease Day 2023, Alexion Germany in partnership with CBT, MSD_Deutschland, Novartis-Deutschland, Takeda, UCB and supported by Ravensburger will...

colourUp4RARE public event

29 Feb 2024 Munich, Germany

Public live event in Munich’s city centre in the shopping hotspot Hofstatt on 29 February 2024, starting at 01:00 pm,...

💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ 28 FEBBRAIO – GIORNATA DELLE MALATTIE RARE 💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ Abbiamo pensato ad una puntata speciale per tutti voi: 👩‍⚕️COME SI...

Community campaign

1 Feb 2024 to 29 Feb 2024 Zalau and all the country, Romania

PLWRD and their organizations will organize awareness events in schools, art exhibitions, will illuminate buildings, houses etc.

Concorso "Parla di CMT"

1 Feb 2023 to 28 Feb 2023

Per celebrare la Giornata delle malattie rare 2023, ACMT-Rete, associazione di pazienti affetti da Charcot-Marie-Tooth, promuove il concorso «Parla di...

Los alumnos de la materia de Genética y Medicina Genómica participarán en nuestro concurso de redes sociales en señal de...

Panel discussions and clinical presentations for patients and healthcare professionals. The aim is to lead information sessions and fruitful discussions...

La conferencia correrá a cargo de la doctora Berta de la Cerda Haynes y el doctor Álvaro Plaza Reyes, investigadores...

Conferinta nationala Ziua bolilor rare 2023, Timisoara

24 Feb 2023 to 28 Feb 2023 Timisoara, Romania

Iluminarea cladirilor, expozitii de fotografie, de pictura, Conferinta nationala Ziua bolilor rare 2023, Timisoara

Join us on Zoom for a Rare Disease Day Gathering with members and friends of the hyperinsulinism community on Thursday,...

Aliados Proyecto Colaborativo Ruta de Enfermedades Huérfanas

Conmemoración Día Mundial de Enfermedades Raras 2023 Aliados proyecto Colaborativo Ruta de Enfermedades Huérfanas Parque espíritu del Manglar. Playón Del...

Conmemoración Día Mundial de Enfermedades Raras 2023 ACPEIM y Universitario San Ignacio

Conmemoración Día Mundial de Enfermedades Raras 2023

Mesa técnica de enfermedades huérfanas de Cali, CIAFER, FECOER, organizaciones sociales del Valle del Cauca y Aliados Proyecto Colaborativo Ruta...

Conmemoración Día Mundial de Enfermedades Raras 2023

Conmemoración Día Mundial de Enfermedades Raras 2023

Iniciativa Pensemos en Cebras México, Fundación Mujer México, Angelman México. 👉Sumando esfuerzos con el Gobierno del Estado de México, la...

Connecting Hands, Connecting Rare

29 Feb 2024 Calgary, Canada

We are excited to invite you to our Rare Disease Day event in Calgary on February 29, 2024! Our theme...

El 28 de febrero se celebra el Día Mundial de las Enfermedades Raras y para conmemorar este día y darle...

Conociendo más de las raras

2 Mar 2023 Medellín, Colombia

Mesa de Enfermedades raras para Antioquia y Red de Técnica por las Enfermedades Huérfanas de Antioquia

convegno descriviAMO la rarità

23 Feb 2024 montesarchio , Italy

Momento d’incontro con le famiglie rare e il mndo delle istituzioni

Conversatorio por la conmemoración del Día Mundial de Enfermedades Raras

Cores Raras

18 Feb 2023 to 28 Feb 2023 São Paulo, Brazil

Potencialidades Raras Somos um grupo de 10 mulheres raras com potencialidades diversas entre nós. Nos unimos para mostrar ao mundo...

16 years ago we were starting a journey with an unforeseen destination, entering with small steps into a world full...

Danzando per arrivare….come un palloncino al cielo. Scuola di danza Giselle diretta da Gioia Concetta ore 18:30 ILLUMINAZIONE FONTANA DI...

Dare. Love. Share: Raising Rare Disease Awareness Towards Equity in Healthcare

28 Feb 2023 to 25 Mar 2023 Dasmariñas City, Cavite, Philippines

Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...

Dare. Love. Share: Raising Rare Disease Awareness Towards Equity in Healthcare

28 Feb 2023 to 25 Mar 2023 Dasmariñas City, Cavite, Philippines

Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...

Declaración institucional de AFASW

29 Feb 2024 Gandía (Valencia), Spain

A las 12:00h. a los pies del Ayuntamiento de Gandía (Valencia), se procederá a la lectura del manifiesto del Día...

declaratoria de los derechos de las personas con enfermedades raras

22 Feb 2024 Zapopan Jalisco, Mexico, Mexico

evento a lapoblacion abierta con feria de la salud y evento musical participacion de autoridades de salud municipales y declaratoria...

Derby Theatre lit up for Rare Disease Day

29 Feb 2024 Derby, United Kingdom

Derby Theatre will be illuminated from 7pm to recognise Rare Disease Day. Students of the BSc Sound, Light, and Live...

Si affronteranno argomenti molto cari ai malati rari ovvero il diritto alla genitorialità, come diventare genitori e il sostegno psicologico...

DIA DAS DOENÇAS RARAS - Sociedade Brasileira de Pediatria

28 Feb 2023 to 4 Mar 2023 Curitiba, Brazil

DIA 28/2 LIVE PARA PUBLICO GERAL SOBRE OS DIREITOS DAS CRIANÇAS COM DOENÇAS RARAS DIA 4/3 LIVE PARA MÉDICOS SOBRE...

14h00| SESSÃO DE ABERTURA Sérgio Faria residente da Direção da AAADMJ Dr. Clélio Meneses Secretario Regional da Saúde e Desporte...

Día de las Enfermedades Pocos Frecuentes

29 Feb 2024 to 1 Mar 2024 María Teresa , Argentina

En una nueva jornada de concientización, la Comuna de María Teresa conmemoró el Día de las Enfermedades Pocos Frecuentes iluminando...

ACTIVIDAD DE EDUCACION Y SENSIBILIZACION SOBRE ENFERMEDADES RARAS Y ANOMALIAS CONGENITAS

Dia Mundial das Doenças Raras

29 Feb 2024 Cuiabá, Brazil

Evento para discutir e expor a realidade das Doenças Raras no Brasil e, especialmente, no estado de Mato Grosso

Día Mundial de las Enfermedades Poco Frecuentes

29 Feb 2024 to 1 Mar 2024 Rosario, Argentina

“Mostrar tus colores” es la iniciativa de Rare Disease Day, en la cual nos sumamos una vez más. Este movimiento...

Foro Legislativo en conmemoración del Día Mundial de las Enfermedades Raras 2024 “No dejar a Nadie Atrás” y Evento de...

Plática para medicos y pacientes en conmemoración de las enfermedades raras.

Día Mundial de las EPOF - Argentina

28 Feb 2023 Ciudad de Buenos Aires, Argentina

Junto a las organizaciones que son parte de ALAPA organizamos un evento para difundir y concientizar sobre las Enfermedades Poco...

Die Seltenen Im Blick Haben

2 Mar 2024 Bielefeld, Germany

In Bielefeld laden seit 2009 alljährlich Selbsthilfegruppen unterstützt von Der Paritätische NRW – Selbsthilfe-Kontaktstelle Bielefeld und der Heimat Krankenkasse zu...

Digital Exposition A Rare look

29 Feb 2024 to 31 Jul 2024 Porto, Portugal

The exhibition aims to provide an in-depth view of the vulnerability and strengths of patients affected by various neurodegenerative and...

Digital Stories Screening

5 Mar 2023 Vancouver, Canada

You’re invited to our Rare Disease Day celebration on March 5, 2023 from 2-3pm PST. This year, we are highlighting...

Do something rare with your hair

7 Feb 2023 to 28 Feb 2023 Western Australia, Australia

Sign up, get sponsored and rock bad hair for a good cause on Feb 28 and you’ll make an incredible...

Donate to Win Luxury Prizes! US & UK

28 Feb 2023 to 31 Mar 2023 Online, United States

In honor of Rare Disease Awareness month, The Children’s Rare Disorders Fund has launched its first annual Donate to Win...

Donate,Recycle,Make happy

1 Feb 2023 to 14 Feb 2023 Prilep, North Macedonia

We’re counting down 90 days to RDD! 💜💚💙 #Donations #Humanitarianevents In anticipation of February 28 2023-International Day of Rare Diseases...

Dream playground - dream life for every child"

23 Feb 2024 to 2 Mar 2024 Prilep, North Macedonia

💜💙💚🩷🩵 “Playground of dreams – life of dreams for every child” is an event organized by ZLRBP “My Rare World”...

A panel discussion on drug development and clinical trials in rare diseases

Duke Student-led Rare Cancer Coalition

28 Feb 2023 Durham, United States

Undergraduate students from Duke University and North Carolina Central University will share information about rare cancers and encourage participation in...

E-Séminaire national des maladies rares

28 Feb 2023 Alger, Algeria

L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organise conjointement un E-Séminaire national des maladies rares...

E-Séminaire national des maladies rares

28 Feb 2023 Alger, Algeria

L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organisent conjointement un E-Séminaire national des maladies rares...

Conferencia: El genetista como parte del equipo multidisciplinario : impacto en el abordaje de las enfermedades raras en pediatría

El martes 28 de Febrero a las 16 hs se realizara un evento con el objetivo de compartir los avances...

El ROL DE LOS PACIENTES EN EL DESARROLLO DE NUEVAS TERAPIAD

29 Feb 2024 Montevideo online, Uruguay

Charla a cargo de Iliara Borges , Co fundadora de FUPIER y Claudia Rodríguez Verde, Co fundadora de Raras Cro....

Emotional Support for Coping with Uncertainty on your MMN Journey. Coping with Uncertainty Hosted by Foundation Health Navigator, Amy Stein...

Encendido conmemorativo del día de las enfermedades raras

28 Feb 2023 Atizapán de Zaragoza, Mexico

Diego de 13 años de edad portador de 17 mutaciones genéticas, tendrá el honor de realizar el encendido conmemorativo en...

Encendido de la Facultad de Medicina UANL

29 Feb 2024 Monterrey, Mexico

Encendido de la Facultad de medicina UANL 6:30 pm Frontispicio de la Facultad

Encontro do GAHP Blumenau

17 Feb 2024 Blumenau - Santa Catarina, Brazil

Encontro do GAHP – Grupo de Apoio as Famílias com Hipertensão Pulmonar realizado pela ABRAF – Associação Brasileira de HP...

O ICVS e a Escola de Medicina – Universidade do Minho uniram-se à Ponto Braguez para realizar uma caminhada solidária/visita...

Encontros raros: cientistas por um dia

24 Feb 2023 Braga, Portugal

Convidamos os pacientes com doenças raras, as suas famílias e cuidadores a visitarem-nos no dia 24 de fevereiro (sexta-feira), no...

My name is Leah Haynes and I am the co-founder of a Canadian-based registered charity called Endometriosis Events. Endometriosis Events...

Instagram Live de difusión de información sobre enfermedades raras.

Entrevista a FEMEXER por Canal Once TV

28 Feb 2023 En línea, Mexico

Entrevista televisiva para hablar del Día de las Enfermedades Raras.

Entrevista a FEMEXER por El Universal

28 Feb 2023 En línea, Mexico

Entrevista con un medio de comunicación para hablar de las enfermedades raras.

Entrevista a FEMEXER por Noticieros Televisa

28 Feb 2023 En línea, Mexico

Entrevista de un reportero de la cadena de televisión Televisa para hablar de las enfermedades raras.

Entrevista con Joaquín Farga

27 Feb 2023 En línea, Mexico

Entrevista al Dr. Joaquín Carrillo Farga, director del Instituto Nacional de Hematopatología en México. Es el médico que más sabe...

Entrevista con Santiago March

27 Feb 2023 En línea, Mexico

Entrevista al Dr. Santiago March Mifsut, coordinador del consejo de Nuevas Tecnologías, en la Fundación Mexicana para la Salud (Funsalud).

In Graz arbeiten die Kinderklinik und das Genetikinstitut eng zusammen, um Patient*innen mit seltenen Erkrankungen eine Diagnostik am neuesten Stand...

En el marco de la “I Campaña Informativa sobre Enfermedades Raras en Honduras”, la Fundación Hondureña para la Salud Hepática (FUNHEPA), Fundacion...

L’ISTITUTO COMPRENSIVO “RADICE-ALIGHIERI” CATONA RC _SCUOLA SECONDARIA DI PRIMO GRADO partecipa alla sensibilizzazione della Giornata delle Malattie Rare 2024, con:...

We are thrilled to announce the eagerly awaited second edition of the Europe Rare Disease Summit, set to take place...

EURORDIS Black Pearl Awards 2023

21 Feb 2023 Brussels & Online, Belgium

The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...

Evento Bari Campagna RDD 2023

20 Feb 2023 Bari, Italy

Anche Bari viaggia con il colori del #RareDiseaseDay Questa mattina il taglio del nastro nel capoluogo pugliese Grazie al Sottosegretario...

Cebras México-Mujer México-XLH México, participarán en el evento protocolario organizado en conjunto con la Comisión de Salud de la Cámara...

Evento conmemorativo de Iluminación en el Senado de la República 2023

27 Feb 2023 to 28 Feb 2023 Ciudad de México, Mexico

Se lleva a cabo el evento conmemorativo de Iluminación en el Senado de la República 2023. En conjunto con la...

In diretta streaming il 1 febbraio dalle ore 10.30 l’evento Uniamo Federazione Italiana Malattie Rare onlus di presentazione della campagna...

Evento Firenze Campagna RDD 2023

6 Feb 2023 Firenze, Italy

Conferenza Stampa di lancio del tram Sirio della tranvia #uniamoleforze #rarediseaseday. Grazie ab Eugenio Giani , Simone Bezzini Serena Spinelli...

Evento Genova Campagna RDD 2023

16 Feb 2023 Genova, Italy

#UNIAMOLEFORZE – RARE DISEASE DAY – CITTA’ DI GENOVA Comune di Genova – Salone di Rappresentanza Palazzo Doria-Tursi – Via Garibaldi, 9...

La Conferenza Stampa ha inaugurato la campagna #UNIAMOleforze sul circuito Mupi, che avrà luogo nella città di Napoli dal 15...

La campagna di sensibilizzazione #uniamoleforze dedicata alle malattie rare, lanciata nel mese di febbraio che culmina con la giornata dedicata...

Events of LBioMiT for RDD - Coimbra,Portugal & Online

4 Feb 2023 to 28 Feb 2023 Coimbra, Portugal

Daily posts on facebook (LBioMiT). All of February and early March. Eyes on You: LHON – avarias na fábrica de...

We will share our colours and have a afternoon coffee break sharing information about rare diseases and some of our...

Exchange of views to mark the Rare Disease Day

29 Feb 2024 Strasbourg, France

On the 29th of February, to mark the Rare Disease Day, SANT committee will hold an exchange of views with...

Exhibition

28 Feb 2023 to 30 May 2023

The rené touraine foundation and its rare disease network are organizing their art contest. Each year, all the drawings of...

Expertos: pacientes, profesionales y cuidadores

11 Mar 2023 Medellín, Colombia

Expertos: pacientes, profesionales y cuidadores Mesa de enfermedades raras para Antioquia y red técnica por las enfermedades huérfanas de Antioquia,...

EXPOSIÇÃO FOTOGRÁFICA NO METRÔ DE SÃO PAULO

2 Feb 2023 to 1 Mar 2023 SÃO PAULO, Brazil

Quem vê cara, não vê dor! Na exposição fotográfica que está no metrô de SP neste mês você vai conhecer...

Exposition Les reflets du handicap invisible

29 Feb 2024 to 15 Apr 2024 Bordeaux, France

C’est une exposition pour mettre en lumière le quotidien de ceux qui vivent avec un handicap invisible. Elle se compose...

Facciamo luce sulle malattie rare

28 Feb 2023 Aquileia , Italy

Evento di sensibilizzazione in occasione della Giornata Mondiale delle Malattie Rare presso il Comune di Aquileia, Friuli Venezia Giulia 💙💚🩷💜...

Fællesarrangement - Sjældne-dagen 2024

29 Feb 2024 København, Denmark

Sjældne Diagnoser afholder fællesarrangement d. 29/2-24 kl. 17-18. På programmet er: Velkomst v. Birthe Byskov Holm Premiere på Sjældne-sang Overrækkelse...

Faith Over Fwat

17 Feb 2023 Grand Rapids , United States

Desmoid Tumor awareness event at both the girls and boy’s basketball games.

Mesa Enfermedades Raras Para Antoquia

FDA's Rare Disease Day 2023

27 Feb 2023 Virtual Only, United States

We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open...

FIESTA INFANTIL POR EL SÍNDROME DE DRAVET

28 Feb 2024 SEVILLA, Spain

En este evento podrás disfrutar de muchas actividades para toda la familia, como talleres, manualidades 🎨, pintacaras 🎭, música 🎶,...

Fighting H.A.R.D. Foundation's Run HARD for Rare Kids

21 Feb 2023 to 28 Feb 2023 Virtual, United States

Fighting H.A.R.D. Foundation’s Run HARD for Rare Kids was started in 2021 as a way to safely raise funds and...

Indo US Organization for Rare Diseases (IndoUSrare) is honored to announce the force behind the US Orphan Drug Act, Dr....

Foro Enfermedades Raras en México 2024 ¡No Dejar a Nadie Atrás!

1 Feb 2024 Ciudad de México CDMX, Mexico

Iniciativa Pensemos en Cebras México, Mujer México y el Hospital General de México “Dr. Eduardo Liceaga” Invitan al: Foro Enfermedades...

Foro Nacional de Enfermedades Raras: Panorama Actual en México Hacia un Abordaje Integral

27 Feb 2023 Ciudad de México Cámara de Diputados H. Congreso de la Unión, Mexico

Cebras México, XLH México y Otros Raquitismos y Mujer México organizan el : Foro Nacional de Enfermedades Raras: Panorama Actual...

Iniciativa Pensemos en Cebras México, XLH y otros Raquitismos México y Mujer México Organizan e Invitan a seguir la transmisión...

Forum des associations maladies rares

28 Feb 2024 Clermon-Ferrand, France

Le CHU de Clermont-Ferrand accueillera une vingtaine d’associations de patients atteints de maladies rares dans le hall de l’hôpital Estaing.

FORUM: Rare Disease Day "Eatquake Special"

28 Feb 2023 Online, Turkey

As Turkish Association of Public Health Specilists Rare Diseases Working Group, we organize a forum with the “Earthquake Special” agenda...

In honor of Rare Disease Day 2024, Jerry Vockley MD, PhD, will discuss a new era in therapies for rare...

FriENDO Social

4 Mar 2023 Toronto , Canada

To kick off Endometriosis Awareness Month, join us on March 4th from 2pm-6pm for our FriENDO Social! The event will...

Frost Tower Lights Up for Rare

28 Feb 2023 San Antonio , United States

The Frost Tower will participate in the #LightUpForRareCampaign in support of Rare Disease Day.

Ein Networking-Tag von und für Menschen mit seltenen Erkrankungen, und deren Angehörige unter dem Motto ‚Gemeinsam weniger selten‘. Auf dieser...

GeneRare: we know Genetic and Rare Disease

1 Mar 2024 Caltanissetta, Italy

Il progetto “GeneRare: we know genetic and rare diseases” ha lo scopo di promuovere la conoscenza sulla genetica e sensibilizzare...

Genetics Matters

25 Feb 2024 Newcastle upon Tyne, United Kingdom

Genetics Matters, one of the FMS flagship public engagement events, is an annual event organised as part of the International...

Genetics Matters

26 Feb 2023 Newcastle upon Tyne, United Kingdom

“Genetics Matters” is an annual event organised by Newcastle University to mark the International Rare Disease Day. Currently in its...

Thurs 23 Feb – Genetics Unzipped Podcast: “The diagnostic odyssey: a journey into genetic testing” prior to Rare Disease Day...

The event dedicated to the Rare Disease Day will be held on Feb. 28, 2023 at 5.30 p.m. in the...

Brevi relazioni sulle malattie rare e le disabilità in generale e presentazione del progetto “Un cielo per tutti”

Evento sulle Malattie Rare, rivolto principalmente agli studenti con età compresa tra i 16 e i 19 anni. L’obiettivo è...

We have a number of buildings and landmarks lighting up in a chain of light around the country. The chain...

📣Calling all pediatric #patients, join our Empowerment Day on Saturday, February 17, 2023 at 12pm ET! This 2 hour virtual...

As Rare Disease Day 2023 is approaching, on behalf of the Chinese Organization for Rare Disorders, it is my honor...

Global Workshop on Access to Rare Disease Diagnosis and Treatment | Rare Disease Day 2023 Reimbursement of drugs from pharmaceutical...

Haiti Cholera Research Funding Foundation Inc USA HCRFF

27 Feb 2023 to 28 Feb 2023 LAKE WORTH FL, United States

We are inviting you to join our virtual campaign on the 27th & 28th of February 2023 9:00-9:30am Twitter Chat...

Hamilton Sign lighting up for Rare Disease Day

29 Feb 2024 Hamilton, Canada

Hamilton Sign: Displaying blue, pink, and green on February 29.

Harvinaisten sairauksien päivän tapahtuma

28 Feb 2023 Verkossa ja etäkatsomoissa: Helsinki, Jyväskylä, Kokkola, Kuopio, Oulu, Pori, Riihimäki, Salo, Tampere, Finland

Tiistaina 28.2.2023 klo 17–19 järjestettävä tilaisuus on suunnattu harvinaista neurologista sairautta sairastaville ja heidän läheisilleen, mutta mukaan voivat tulla kaikki...

Hãy đi cùng nhau

15 Feb 2024 to 29 Feb 2024 Ho Chi Minh City, Vietnam

HÃY ĐI CÙNG NHAU – và cùng chúng tớ. ️💝 Ai đó đã từng nói: “…Sẽ có một lúc nào...

Health professionals mobilize for rare diseases

28 Feb 2023 to 1 Mar 2023 Tunis, Tunisia

A white board will be set up at the entrance of the Pasteur Institute in Tunis next to the research...

Helhetlige tjenester for gode liv

28 Feb 2023 to 28 Jan 2023 Oslo, Norway

Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...

RDM’s Conference titled “How can the Educator Become an Advocate on Rare Diseases’, is going to be held under the...

As the action for the World Rare Disease Day 2024, CRYOPDP will broadcast a podcast program to educate and promote...

In this month of rare diseases, our Association is promoting a sequence of thematic lives on the pathologies that are...

To mark Rare Disease Day, a scientific conference for students willing to present medical cases will be held.

I support Rare Disease Day

28 Feb 2023 Almaty, Kazakhstan

Students of the specialty “General Medicine” of the Higher School of Medicine tested the campaign with the goal of drawing...

I tumori rari: sfide ed opportunità

23 Feb 2023 Bari, Italy

Rare cancers are a mixed group of more than 200 kinds of neoplasia, and globally considered they are about 20%...

Iconic Trent Building to illuminate for Rare Disease Day 2023

24 Feb 2023 to 28 Feb 2023 Nottingham, United Kingdom

To help raise awareness of the day, the Trent Building on University Park Campus will join a host of other...

II ENCUENTRO DE ENFERMEDADES RARAS

28 Feb 2023 Huancayo, Peru

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL NACIONAL RAMIRO PRIALÉ PRIALÉ . 🗓Fecha: 28...

II ENCUENTRO REGIONAL DE ENFERMEDADES RARAS

28 Feb 2023 Huancayo, Junin, Peru

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL_NACIONAL_RAMIRO_PRIALÉ_PRIALÉ. Invita al II ENCUENTRO REGIONAL DE ENFERMEDADES...

II SIMPOSIO NACIONAL DE ENFERMEDADES RARAS

1 Mar 2024 Cartagena, Colombia

El Día de las Enfermedades Raras es el movimiento coordinado a nivel mundial sobre enfermedades raras. Este evento pretende socializar...

III Charitable Drawing Contest

10 Jan 2023 to 20 Feb 2023

Third edition of the charitable drawing contest organised by CONGEN to raise awareness about rare diseases. The 12 selected drawings...

III CONCURSO DE DIBUJO SOLIDARIO #XLASENFERMEDADESRARAS

11 Jan 2023 to 28 Feb 2023 Granada, Spain

III ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...

III Run for Mito

24 Feb 2023 to 28 Feb 2023 Madrid, Spain

Tercera edición de la carrera más solidaria con las enfermedades mitocondriales en España- del 24 al 28 de febrero y...

Ruta de 5.6 quilòmetres, de 120 minuts, geolocalitzada en temps real amb un tècnic en activitat física per la commemoració...

S’il·lumina el Monument a la Dona treballadora el Dia Mundial de les Malalties Minoritàries.

S’il·lumina per les malalties minoritàries a la posta de sol.

illumination

26 Feb 2024 to 29 Feb 2024 SAINT-NOLFF, France

Illumination de la mairie en violet

Illumination de l'Hôtel de ville d'Amiens

29 Feb 2024 AMIENS, France

L’équipe du Centre de Référence des Maladies Rares du CHU Amiens-Picardie propose l’Illumination de l’Hôtel de ville d’Amiens aux couleurs...

Illumination des batiments Lillois

29 Feb 2024 Lille, France

Rejoignez-nous le 29 février pour une soirée unique à Lille, où la solidarité s’illuminera à travers la “Global Chain of...

Illumination du Centre Administratif de Mouscron

20 Feb 2023 to 3 Mar 2023 Mouscron , Belgium

A l’occasion de la journée mondiale des maladies rares, le centre administratif de Mouscron (CAM) sera illuminé aux couleurs des...

Illumination of Marshal’s Office of Pomorskie Region in Gdańsk in honour of Rare Disease Day in Poland. — fot. Grzegorz...

Illumination of Telstra Tower

29 Feb 2024 Canberra, Australia

Telstra Tower will light up in the Rare Disease Day colours for the day/night of 29th February 2024.

ILLUMINATION OF THE CN TOWER

29 Feb 2024 TORONTO , Canada

Illumination of the CN TOWER in the Rare Disease Day colors.

Illumination of the building

Illumination of the Palace of Culture and Science

29 Feb 2024 to 29 Feb 0024 Warsaw, Poland

Illumination of the Palace of Culture and Science

Illumination of the Town Hall of Dzierżoniów in honour of Rare Diseases Day

Illuminazione torre dell’orologio di Palazzo Sant’Antonio

Illuminiamo le malattie rare

28 Feb 2024 Segrate (MI), Italy

Il Comune di Segrate, in provincia di Milano, si unisce alla Global Chain of Lights, illuminando il Centro Verdi, così...

Illuminiamo le malattie rare

28 Feb 2024 to 29 Feb 2024 Aquileia (UD), Italy

Il Comune di Aquileia, in provincia di Udine, si unisce alla Global Chain of Lights, illuminandosi con i colori della...

Ilumina

29 Feb 2024 Montevideo, Uruguay

Iluminamos los edificio más representativos de nuestro País para generar conciencia en el Día Mundial de las Enfermedades Raras

Iluminação do Cristo Redentor pela ABRANHI Das 7 maravilhas do mundo moderno, o Cristo Redentor é a mais nova e...

Se lleva a cabo la 2da Conmemoración del Día Mundial, Nacional y Estatal de las Enfermedades Raras en el Estado...

Iniciativa Pensemos en Cebras México-XLH México y otros Raquitismos- Mujer México y comunidad de pacientes. Conmemoramos el Día Mundial y...

Iluminación de monumentos CDMX

28 Feb 2024 to 29 Feb 2024 CDMX, Mexico

La Ciudad de México ilumina sus monumentos en apoyo a las personas que viven con una enfermedad rara.

Iluminación de monumentos CDMX

28 Feb 2024 to 29 Feb 2024 Ciudad de México, Mexico

La Secretaría de Obras y Servicios Urbanos se une al Día Mundial de las Enfermedades Raras iluminando de color azul,...

Iluminación del Congreso Legislativo del Estado de Guanajuato

28 Feb 2023 Estado de Guanajuato, México, Mexico

Mujer México-Cebras México Promovió la iluminación del color de las enfermedades raras en el Estado de Guanajuato. Con la finalidad...

Iluminación Senado de México 27-28 febrero 2022

27 Feb 2023 to 28 Feb 2023 Ciudad de México, Mexico

Cebras México-XLH México y otros Raquitismos-Mujer México Conmemoran en el evento de Iluminación en conjunto con la Comunidad de Pacientes...

En el marco del día mundial de las enfermedades raras,Esperantra del Centro asociación de pacientes organiza este año el iluminado...

Se llevará a cabo la conmemoración en el marco del Día Mundial y Nacional de las Enfermedades Raras 2024 Iluminación...

Iluminacja Iglicy Międzynarodowych Targów Poznańskich z okazji Dnia Chorób Rzadkich

Iluminarea a 5 cladiri importante din Timisoara

24 Feb 2023 to 28 Feb 2023 Timisoara, Romania

Capilala culturala eutrpeana si capitala europeana a bolilor rare 2023itatea de medicina si Farmacie, Universitatea politehnica si Spitalul de copii...

FIACCOLATA COLORATA E RUMOROSA ANIMATA DAI BAMBINI E DAI RAGAZZI DELL’ORATORIO PARROCCHIALE MOMENTO DI SENSIBILIZZAZIONE E TESTIMONIANZE VOLO DI PALLONCINI

Inclusión Escolar en Enfermedad de Hirschsprung y Malformación Anorrectal

1 Mar 2024 Ciudad Autónoma de Buenos Aires, Argentina

Reunión para familias de toda Latinoamérica. El objetivo es brindar herramientas y material para optimizar la inclusión escolar y adaptaciones...

Incontriamoci - un sorriso ed una foto

26 Feb 2023 to 28 Feb 2023 CATANIA, Italy

Appuntamento sotto l’albero dei Rari di Chiari e Siringomielia per un sorriso ed una foto

A Catania il 3 Marzo 2024, ci incontreremo dalle ore 10 alle ore 12,00 all’ Albero dei Rari Aismac in...

Information Stand and Quiz

29 Feb 2024 Tours, France

La Plateforme d’Expertise Maladies Rares Centre-Val de Loire, les professionnels du CHRU de Tours, l’AFM-Téléthon et l’Equipe Relais Handicaps Rares...

Do you or your partner have a Rare Disease? Join the Instagram Live where Jennifer and Tamaha 🇲🇽, and Alfons...

International Congress on Rare Diseases and Orphan Drugs

29 Feb 2024 to 1 Mar 2024 Athens, Greece

About the Conference Under the theme “Navigating the Uncharted: Advancements, Collaborations, and Hope in Rare Diseases”, the International Congress on...

One-day hybrid (in person + online) conference in the form of panel discussion “DOUBLE WAR: Ukraine`s European vector in providing...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

With of budget of €5.3 billion, the EU4 Health program 2021-2027 represents an unparalleled EU financial support in the health...

On this day we celebrate the lives of all of those affected by the ultra-rare WWOX-related diseases and honor those...

An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent figures in...

Event Description: An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent...

Invincible été · Film de Stéphanie Pillonca

29 Feb 2024 Sion, Switzerland

Pour célébrer la Journée internationale des maladies rares, MaRaVal vous invite à la projection du film Invincible été, avec Olivier...

Hybrid Conference in Lisbon and online in honour of Rare Disease Day in Portugal.

“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w IV Dniu Chorób Rzadkich na...

El objetivo del Foro es identificar en que medida los actores que participan en el acceso a tecnologías sanitarias, pueden...

IX MARCIA DEI MALATI RARI

10 Feb 2024 Milano, Italy

La Marcia dei Malati Rari è uno degli appuntamenti più attesi dalla comunità delle persone con malattia rara, oltre 2...

The last week of February is a rare diseases’ awareness week and the time when we can show our solidarity...

Why jazz? Jazz has a positive effect on the body and soul, including those affected by rare diseases. Moreover, jazz...

Joint TDI/NIRDP event: RDD 2023 at Stormont

28 Feb 2023 nationwide, Ireland

Join us at the annual North-South Rare Disease Day virtual celebration on Tuesday 28th February from 1.30 pm to 3...

Jornada de Concientización de las EPOF

29 Feb 2024 Cafayate, Argentina

Stand para visibilización, folletería, micrófono abierto, información sobre leyes de las EPOF, experiencias con las EPOF.

Jornada de Enfermedades Raras UNAM

28 Feb 2023 Mexico City, Mexico

La Facultad de Medicina de la UNAM a través de La Unidad de Enfermedades Raras de la División de Investigación,...

Con el objetivo de visibilizar la necesidad del fortalecimiento de las competencias profesionales acerca de la sospecha y manejo de...

Únete a nosotros en una jornada extraordinaria donde la investigación y los tratamientos para las Enfermedades Hereditarias de la Retina...

Journée des maladies rares

26 Feb 2024 to 4 Mar 2024 Saint-Nolff, France

La mairie a été colorée en violet durant une semaine

Journée Internationale des Maladies Rares

28 Feb 2023 AMIENS, France

Dans le cadre de la Journée Internationale des Maladies Rares, l’équipe du Centre de Référence des Maladies Rares du CHU...

Journée Internationale des Maladies Rares

29 Feb 2024 Montpellier, France

Chaque année, le dernier jour de février a lieu la Journée Internationale des Maladies Rares (JIMR). Cette journée, célébrée dans...

Journée internationale des maladies rares - Toulouse

28 Feb 2023 Toulouse-purpan, France

À l’occasion de la 16ème édition de la Journée Internationale des Maladies Rares (JIMR 2023), les associations de personnes concernées...

La plateforme d’expertise maladies rares du Grand Paris Est ESMARA se mobilise pour la Journée Internationale Maladies Rares 2024 à...

Chaque année, la Journée Internationale des Maladies Rares (JIMR) se tient le dernier jour de février. À cette occasion, des...

Journée maladies rares

16 Feb 2024 Marseille, France

Le 16 février a eu lieu la Journée des Maladies Rares organisée par l’institut MarMaRa, l’Alliance Maladies Rares ainsi que...

Journée Maladies Rares

29 Feb 2024 Nancy, France

Journée Maladies Rares – 29 février 2024 Grands Salons de l’Hôtel de Ville (entrée place Stanislas) 08h30 – 17h00 Gratuit...

JOURNEE MONDIALE DES MALADIES

28 Feb 2024 DAKAR - GUEDIAWAYE, Senegal

RANDONNEE PEDESTRE ORGANISEE PAR LE GROUPE DE PRESSE AFRIKSANTE ET L’ASSOCIATION HUMANITAIRE DE LUTTE CONTRE LES MALADIES EN PARTENARIAT AVEC...

La Plateforme d’Expertise Maladies Rares vous propose une journée thématique sur l’implication et l’engagement des patients dans le soin, la...

Journée Scientifique Maladies Rares

5 Mar 2024 Clermont-Ferrand, France

Journée dédiée aux centres maladies rares du CHU de Clermont-Ferrand, et cette année, centrée sur les résultats de la labellisation...

Juntos somos mais fortes

28 Feb 2023 Online, Portugal

Horário: 14:00 – 18:00 Organização: Mirror Group Português do Programa Europeu Conjunto para as Doenças Raras (NMG – EJP RD)...

Join us for KGI’s 16th Annual Rare Disease Day Virtual Event, our theme is Mental Health & Rare Disease! This...

Creata per affrontare le sfide che le persone affette da malattie rare devono affrontare quotidianamente intende ricordare a tutti che...

Kiwanis e SteradioDj per i bambini

27 Feb 2023 Palermo, Italy

Le malattie rare sono una piaga che colpisce milioni di bambini in tutto il mondo. Spesso, però, il numero di...

Knowing Keratoconus

20 Feb 2023 to 28 Feb 2023 Rome, Italy

Video to promote Keratoconus Knowledge

L'expo : rendons visibles les r'artistes

28 Feb 2024 BREST, France

Nous organisons une exposition de créations produites par des patients ayant une maladie rare. Ce rendez-vous aura lieu le 28...

L'INTELLIGENZA EMOTIVA VA A TEATRO

10 Mar 2023 BOLOGNA, Italy

Un evento teatrale dedicato ai bambini con malattia rara, in particolare a quelli seguiti dal Centro Malattie Rare Pediatriche dell’Ospedale...

L'odyssée artistique des enfants

28 Feb 2023 Paris, France

AnDDI-Rares a visité 12 hôpitaux de France avec son projet d’ateliers artistiques dédiés aux enfants Pendant trois mois, des artistes...

La Carovana della Ricerca

2 Mar 2024 Bergamo, Italy

L’evento prevede una carovana formata dalle auto dei volontari delle associazioni delle malattie rare di Bergamo e Provincia per sensibilizzare...

evento dirigido a medicos en formación de la escuela de medicina de la Universidad Autonoma de Guadalajara

WEBINAR | Mesa debate La investigación en EPOF: Un camino común para 8.000 patologías Moderadora • Dra. Jorgelina Stegmann |...

Intervención comunitaria que tendrá lugar en Benavides de Órbigo, el día 21 de febrero de 2023, con motivo de la...

La Voz de los Pacientes ¡No Dejar a Nadie Atrás! 2024

29 Feb 2024 Ciudad de México CDMX, Mexico

Iniciativa Pensemos en Cebras México y Fundación Mujer México como cada año participan activamente en la conmemoración del Día Mundial...

LABORATORIO_RAREDISEASEDAY 2023 OCCORRENTE:  T-SHIRT BIANCA  COLORI ACRILICI (AZZURRO, VIOLA, VERDE E FUCSIA)  PENNELLI  UNIPOSCA (per scrivere...

LAM - Fato ou Fake?

28 Feb 2024 São Paulo, Brazil

Dr. Bruno Guedes Baldi, pulmonologist from the Brazilian LAM Clinic, talks to Maria Clara Castellões, vice-president of Alambra, the Brazilian...

Landmark light up

28 Feb 2023 Edmonton , Canada

Edmonton’s high level bridge will be lit up for rare disease day

Langka(h) Kecil 2023: The Unplanned Journey

27 Feb 2023 Malang , Indonesia

MORE COMMUNITY IS A COMMUNITY FOR MOTHERS OF CHILDREN WITH RARE DISEASES AND CHILDREN WITH SPECIAL NEEDS CENTERED IN MALANG...

In order to take part in Rare Disease Day 2024, MORE Community will hold an event entitled Langka(h) Kecil 2024:...

Lanzamiento del libro “Un milagro llamad Emmanuel” Autora: Leonisa Castillo Centeno. Líder de 11Q Latinoamerica

On World Rare Disease Day, the Department of Pathology and Laboratory Medicine is launching a Newborn Screening Program for Selected...

LE MALATTIE RARE A SCUOLA: DALL’IMPATTO ALL’INCLUSIONE

28 Feb 2024 SAN DONA' DI PIAVE, Italy

EVENTO RIVOLTO AI DOCENTI ED AL PERSONALE SANITARIO dell’area Veneto Orientale per sensibilizzare sul tema delle Malattie Rare e dell’importanza...

Le scarpe di Alice

1 Mar 2024 Gussago (BS€, Italy

Un concerto inaugurale “Le scarpe di Alice” della mostra “La donna di Sera”: filo conduttore il coraggio e la fragilità...

Leiden Bio Science Park Rare Disease Day Awareness Event

29 Feb 2024 Leiden and Oegstgeest, Netherlands

BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...

Leiden Bio Science Park Rare Disease Day Awareness Event

28 Feb 2023 Leiden and Oegstgeest, Netherlands

BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...

Lekarz-Pacjent-Naukowiec

28 Feb 2024 Poznań, Poland

28 lutego 2024 roku, z okazji Międzynarodowego Dnia Chorób Rzadkich, Fundacja ICHB PAN we współpracy z Instytutem Chemii Bioorganicznej PAN...

Less Rare: demystifying rare diseases

29 Feb 2024 Coimbra, Portugal

Less Rare: demystifying rare diseases is the event organized by CNC-UC to mark World Rare Disease Day, on February 29,...

Let's be a model of good practice

6 Feb 2023 to 10 Feb 2023 Ohrid, North Macedonia

With the symbolic painting of hands and posters the teachers and the students sent a message for unreserved support and...

Lève le voile

23 Feb 2023 Mouscron, Belgium

Dans le cadre de la journée des maladies rares et/ou graves, l’asbl Chiara, Vie, Don d’organes et Solidarité organise en...

Libation for Lukie

2 Mar 2024 Somerville , United States

A year ago, Baby Lukie was diagnosed with a very rare disease called ZTTK, discovered only in 2016. There are...

Life Illuminated, People First

25 Feb 2023 to 3 Mar 2023 Beijing, China

As China has a large population, the patients with rare diseases in China are not rare. Chinese government and passionate...

Light for rare

28 Feb 2023 Banja Luka, Bosnia and Herzegovina

Banja Luka illuminated the cultural building “Banski dvor” in the city center for the third year in a row.

LIGHT National auditorium

28 Feb 2023 Ordino, Andorra

Lighting the building and a conference about Rare diseases

Light Up

29 Feb 2024 to 1 Mar 2024 Pisa, Italy

Light up the Pisa Tower

Light up for Incontinentia Pigmenti

4 Mar 2023 Naples, Italy

Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world

Light up For Rare

28 Feb 2023 Wolfeboro , United States

Rare Disease Day Municipal Proclamation 2023 Light Up Wolfeboro Town Hall for Rare Disease Day

Light Up For Rare

29 Feb 2024 ProDi – Zentrum für Proteindiagnostik, Ruhr-Universität Bochum, Germany

Awareness event with illumination of a research building, information stands, discussion rounds and guided laboratory tours.

Light up for Rare

29 Feb 2024 to 1 Mar 2024 Winnipeg Manitoba, Canada

Winnipeg will be lighting up their Winnipeg Sign and the Esplanade Riel Bridge on Rare Disease Day (At the Forks...

Light Up For Rare

28 Feb 2023 44801 Bochum, Germany

Informationsveranstaltung zu Seltenen Erkrankungen und Beleuchtung des Gebäudes

Light Up for Rare

28 Feb 2023 Nationwide, Ireland

Everyone can participate! Show solidarity with the rare disease community and light up for Rare Disease Day at 7pm on...

Light up for Rare

29 Feb 2024 Charlottetown , Canada

The city hall tower will be lit up for Rare Disease day for the first time ever.

Light Up For Rare

29 Feb 2024 Cleveland , United States

The top of the iconic Terminal Tower in downtown Cleveland will be lit in the colors of Rare Disease Day.

Light up for Rare - County Administration - United-States

28 Feb 2023 San Diego, United States

The County Administration has agreed to Light up the building on/for Rare Disease Day

Light up for Rare - Northern Ireland Rare Disease Partnership

29 Feb 2024 Northern Ireland , United Kingdom

Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...

Light up for Rare - Northern Ireland Rare Disease Partnership

29 Feb 2024 Northern Ireland Armagh, United Kingdom

In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...

Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...

Illumination event: Buildings on campus of the University Hospital Essen are illuminated with different colors to symbolize the diversity of...

Light Up For Rare Campaign

29 Feb 2024 San Antonio, United States

The Frost Tower is participating in the Light Up For Rare Campaign and its iconic exterior lighting will illuminate in...