Join the Global Chain of Lights!

On 28 February 2022, the rare disease community is coming together for Rare Disease Day to spread hope and solidarity across the world with a global chain of lights.

Monuments, offices, schools and homes are being lit up in the Rare Disease Day colours (green, blue, purple and pink) to raise awareness for the 300 million people living with a rare disease and their families.

Everyone is invited to light or decorate their home with the Rare Disease Day colours at 7 PM your local time on Monday, 28 February 2022.

How to Get Involved?

There are lots of different ways that you can join the Global Chain of Lights!

  • Play the #LightUpForRare video on your computer or smart TV to fill your room with vibrant Rare Disease Day colours.
  • Get creative! Maybe you have some fairy lights stored in the attic or a colourful lampshade that you could use instead!
  • Head outside at 7 PM to watch a monument being lit up in your area! Find your nearest building illumination on our interactive map.

Don’t forget to use the hashtag #LightUpForRare when sharing your pictures online!

Take a look at illuminations happening near you on our interactive world map and upload your own illumination today!

Don’t know where to start? Read our #LightUpForRare toolkit!

Please share pictures of your Rare Disease Day 2022 illuminations with us at [email protected]