News

30 Rare Disease Day news
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Only 100 Days to Rare Disease Day 2018 Preparations have already begun for the 11th edition of Rare Disease Day! Rare Disease Day 2018, which will take place on 28 February, will see thousands of peo...
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There is so much to be said in the fight to increase rare disease research that the theme for Rare Disease Day 2018 is research, continuing on from Rare Disease Day 2017!Rare disease research contribu...
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Today is #RareDiseaseDay 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than ever for rare diseases!  With the theme of research, and...
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Geoffray and his sister (who is 8 years older than he is) have suffered from poor sight since birth, without a precise diagnosis. Geoffray had to wait until the age of 13, in 1996, before meeting Dr H...
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Meet Océane, one of the stars in our Rare Disease Day 2017 video, who lives with pemphigus, a disease that affects the skin and mucous membranes. Océane found life as a child very complicated, she was...
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Meet Mathieu, who features in the Rare Disease Day 2017 video alongside his mother, Stéphanie. Mathieu, who is 10 years old, lives with congenital myasthenic syndrome, a group of genetic disorders tha...
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The Rare Disease Day 2017 official video is OUT NOW! Share this video on social media and with your friends and family to help spread the word about Rare Disease Day, 28 February 2017! Together we ca...
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EURORDIS is very pleased to announce that Sean Hepburn Ferrer, the eldest son of the late actress and dedicated philanthropist, Audrey Hepburn, is Rare Disease Day 2017 Ambassador. Sean Hepburn Ferrer...
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Available online, the official Rare Disease Day poster, is out now! Based on the theme of RESEARCH, the poster embraces the possibilities that research can bring, a bright and hopeful future. The visu...
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Research brings hope to people living with a rare disease The Rare Disease Day 2017 theme is research. The Rare Disease Day slogan is 'With research, possibilities are limitless'. Imagine going t...
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