On February 8 at 2PM (CET) the Rare Disease Day team is hosting a webinar on “Driving Awareness by amplifying young voices in the rare disease community”. The following expert guests will be present in this webinar:
- Nicola Miller, co-founder and editor-in-chief of Rare Revolution Magazine and driving force behind Rare Youth Revolution – a dynamic news platform dedicated to empowering the 200 million young rare voices and inspiring the next generation of youth advocates.
- Marta Augucēviča project expert from the Latvian Alliance for Rare Diseases – a national umbrella organisation of rare disease patient organisations in Latvia that engages in rare disease policy development, supports non-profits and represents interests internationally.
- Sofia Cruz Betanco – A young advocate and a Rare Disease Day Young Ambassador with Autoimmune Hepatitis and co-founder as well as CEO of the “Honduran Liver Health Foundation” – a non governmental organisation whose purpose is to promote liver health, donation and transplantation.
- Zainab Alani – A Rare Disease Day Young Ambassador and medical student battling generalised Myasthenia Gravis. She is current president and co-founder, alongside her sister, of “RAREAware Glasgow” – a society which raises awareness about rare diseases and their impacts amongst students and shows how they can drive positive change.
Register now to join us in this exciting and informative upcoming webinar by clicking the link here: https://us02web.zoom.us/webinar/register/WN_cuFqJLOZQnm90OLJTGcOwg#/registration
Amplify awareness and do your part to help create a better future for the rare disease community!