About the day
What is Rare Disease Day?
What is a Rare Disease?
2018 Theme
Events worldwide
Events worldwide
All countries
Get involved
Become a friend
All friends
Post your event
Tell your story
Share your photos!
News
Shop
Translate
Donate
About the day
What is Rare Disease Day?
What is a Rare Disease?
Contact us
Media information
Overview of past Rare Disease Days
2019
2018
2017
Events worldwide
Get involved
Become a friend
All friends
Post your event
Download materials
Tell your story
Share your photos!
News
Shop
days
to go
Partners
Share this
Download materials
News
Meet Lubin
Lubin, aged 12, is from Juvisy, France and is living with spinal muscular atrophy (SMA) which affects 1-9 in 100,000 people. Diagnostic Journey Around the age of one, Lubin’s parents noticed that ...
13 Feb 2020
Read more
Meet KP
Kin Ping is living with retinitis pigmentosa. He was diagnosed as a teen after 10 years of visiting dozens of ophthalmologists. Retinitis pigmentosa symptoms include difficulty seeing at night and th...
17 Jan 2020
Read more
Read all news
Javascript must be enabled for the correct page display
X
Contact us
Your Name*
Your email*
Your message*
Send me a copy of this message
Tick to receive news from EURORDIS
.jpg){kind=small}
