About the day
What is Rare Disease Day?
What is a Rare Disease?
2018 Theme
Events worldwide
Events worldwide
All countries
Get involved
Become a friend
All friends
Post your event
Tell your story
Share your photos!
Show your rare!
News
Shop
Translate
Donate
About the day
What is Rare Disease Day?
What is a Rare Disease?
Contact us
Media information
Overview of past Rare Disease Days
2019
2018
2017
Events worldwide
Get involved
Become a friend
All friends
Post your event
Download materials
Tell your story
Share your photos!
Show your rare!
News
Shop
days
to go
Partners
Share this
Share this video
Download materials
News
Reframe Rare for Rare Disease Day 2020
When the challenge of raising awareness for people affected by a rare disease still loomsOn Rare Disease Day we must re-double our effortsRe-think, re-envision, reimagineReframe what it means to be 'r...
30 Sep 2019
Read more
Thank you to all who took part in Rare Disease Day 2019
We have come a long way from the first Rare Disease Day which took place over a decade ago in 2008 when 18 countries took part. This year, Rare Disease Day was celebrated by patient groups, policy-mak...
14 Mar 2019
Read more
Read all news
Javascript must be enabled for the correct page display
X
Contact us
Your Name*
Your email*
Your message*
Send me a copy of this message
Tick to receive news from EURORDIS
.jpg){kind=small}
