Rare Disease Day Media Information

Rare Disease Day Media Information

Press Releases and Official Communication

Press Articles, Television and Radio

Read about the media coverage of Rare Disease Day 2019. Know about a media story not posted here? Let us know at [email protected]

Rare Disease Day History

Each year Rare Disease Day has seen events take place all over the world. See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008: 2019, 2018, 2017, 2016, 2015, 2014, 2013, 2012, 2011, 2010, 2009, 2008. Read more 

Find out more about the official partners of Rare Disease Day.

For media enquiries please contact Eva Bearryman, [email protected].

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News
100 days until Rare Disease Day 2020!
100 days until Rare Disease Day 2020!
The countdown has begun for the 13th edition of Rare Disease Day! Rare Disease Day will take place on 29 of February 2020, the rarest day of the year. The campaign is open to everyone to get involved ...
21 Nov 2019
Reframe Rare for Rare Disease Day 2020
Reframe Rare for Rare Disease Day 2020
When the challenge of raising awareness for people affected by a rare disease still loomsOn Rare Disease Day we must re-double our effortsRe-think, re-envision, reimagineReframe what it means to be 'r...
30 Sep 2019
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