Rare Disease Day Media Information

Rare Disease Day Media Information

Press Releases and Official Communication

Press Articles, Television and Radio

Know about a media story on Rare Disease Day 2020 ? Let us know at [email protected]

Rare Disease Day History

Each year Rare Disease Day has seen events take place all over the world. See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008: 2020, 2019, 2018, 2017, 2016, 2015, 2014, 2013, 2012, 2011, 2010, 2009, 2008. Read more 

Find out more about the 60 official partners of Rare Disease Day.

For media enquiries please contact Eva Bearryman, [email protected].

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The power of art – painting a brighter future for people living with a rare disease
The power of art – painting a brighter future for people living with a rare disease
Art events are powerful tools to raise awareness for people living with a rare disease. This year Rare Disease Day saw a wide variety of art events around the world engaging all members of the communi...
19 May 2020
World landmarks shining a light for Rare Disease Day – individual and local efforts send a global message!
World landmarks shining a light for Rare Disease Day – individual and local efforts send a global message!
A real highlight from Rare Disease Day this year was seeing the spectacular sight of buildings and monuments lighting up to raise awareness. From well-known landmarks such as the Colosseum and the wor...
09 Apr 2020
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