Rare Disease Day Media Information

Rare Disease Day Media Information

Press Releases and Official Communication

Press Articles, Television and Radio

Read about the media coverage of Rare Disease Day 2019. Know about a media story not posted here? Let us know at [email protected]

Rare Disease Day History

Each year Rare Disease Day has seen events take place all over the world. See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008: 2019, 2018, 2017, 2016, 2015, 2014, 2013, 2012, 2011, 2010, 2009, 2008. Read more 

Find out more about the official partners of Rare Disease Day.

For media enquiries please contact Eva Bearryman, [email protected].

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Reframe Rare for Rare Disease Day 2020
Reframe Rare for Rare Disease Day 2020
When the challenge of raising awareness for people affected by a rare disease still loomsOn Rare Disease Day we must re-double our effortsRe-think, re-envision, reimagineReframe what it means to be 'r...
30 Sep 2019
Thank you to all who took part in Rare Disease Day 2019
Thank you to all who took part in Rare Disease Day 2019
We have come a long way from the first Rare Disease Day which took place over a decade ago in 2008 when 18 countries took part. This year, Rare Disease Day was celebrated by patient groups, policy-mak...
14 Mar 2019
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