Get Involved

Rare Disease Day is open to everyone!
Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities—the more people involved the better!

As you'll find out, there are many ways to participate. Let's join our efforts to give hope to rare disease patients all over the world!

7 Ways to Participate in Rare Disease Day 2018

Become a Friend1. Become a Friend!

Are you part of an organisation that has in interest in rare diseases? Become a friend of Rare Disease Day to show your support and to join our 2018 campaign!
Read more

Become a Friend2. Post your event!

If you are an individual or patient organisation, please register your event by submitting the event form.
Read more

Join your hands3. Raise and Join Hands!

Raise and Join your Hands to show your solidarity with rare disease patients around the world!
Read more

Tell your story4. Tell your Story!

Tell your rare disease story by uploading a photo and/or video to our website.
Read more

Rare Disease Day5. Download our Communication Materials!

Download the Rare Disease Day logo, Information Pack, and other communication materials!
Read more

Rare Disease Day6. Join us on our Social Media!

Facebook, Twitter, YouTube, Flickr… Participate in the Rare Disease Day campaign via Social Media!
Read more

Organise an awareness-raising activity7. Organise an Awareness-Raising Activity

Public marches, informative lectures, meeting with local and national authorities… Since Rare Disease Day started in 2008 thousands of varied and exciting events have been organised to raise awareness for Rare Diseases.
Read more

Share this