Get Involved

Rare Disease Day is open to everyone!
Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities—the more people involved the better!

As you'll find out, there are many ways to participate. Let's join our efforts to give hope to rare disease patients all over the world!

7 Ways to Participate in Rare Disease Day 2019

Become a Friend1. Become a Friend!

Are you part of an organisation that has in interest in rare diseases? Become a friend of Rare Disease Day to show your support and to join our 2019 campaign!
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Become a Friend2. Post your event!

If you are an individual or patient organisation, please register your event by submitting the event form.
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3. Show your Rare!

Take part in an interactive face paint social media campaign to raise awareness of rare diseases and show your support for the rare disease community! Show your rare. Show you care. 
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Tell your story4. Tell your Story!

Tell your rare disease story by uploading a photo and/or video to our website.
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Rare Disease Day5. Download our Communication Materials!

Download the Rare Disease Day logo, Information Pack, and other communication materials!
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Rare Disease Day6. Join us on our Social Media!

Facebook, Twitter, YouTube, Flickr… Participate in the Rare Disease Day campaign via Social Media!
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Join your hands7. Share your photos!

Did you take a photo of you and your friends, family and colleagues showing your rare or raising and joining hands for Rare Disease Day? Share your photos here!

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