2021 Rare Disease Day Media

Media around the world are reporting on Rare Disease Day 2021, the patient-driven international movement. 

Below you will find articles, radio interviews and television excerpts showing local and online events and the public mobilisation to improve the lives of people living with a rare disease. The clippings are listed in alphabetical order by country. 

Have you contacted your local media about Rare Disease Day 2021 on 28 Februrary? 

Europe:

• Rare Disease Day 2021, Article by Executive Director of the European Medicines Agency Emer Cooke
• World Rare Disease Day, Statement by Commissioner Stella Kyriakides

Argentina: 

• La Capital, Piden que Santa Fe "se ilumine" por las enfermedades poco frecuentes

India :

• The New Indian express, Raring to go

Iceland: 

• Mercer island reporter, Islanders embrace families whose children have rare diseases

Ireland:

• Extra.ie, Ireland asked to raise a toastie for Rare Disease Day

Kazakhstan:

• QAZLIVE, 28 февраля – Международный день редких заболеваний

Mali: 

• JSTM, Dr Guida Landouré, neurologue: «80% des maladies rares sont d’origines génétiques»

Russia:

• RIA News, Международный день редких заболеваний

Spain: 

• Diario Valderrueda, En Ruta por las Enfermedades Raras inicia una campaña en febrero de visibilidad e investigación

Ukraine:

• naiu.org.ua, В Україні стартувала світлова ініціатива до Міжнародного дня рідкісних захворювань

United Kingdom:

• BBC, Rare Disease Day: The family who lost three children
• Media Planet, A Better Future for Rare Diseases
• Media Planet, The Future of Rare Diseases Starts Today

Uzbekistan:

• gazeta.uz, Дети-СМАйлики на грани жизни и смерти

Specialised press: 

• The EU patients' podcast, Rare Disease Day with Simona Bellagambi 
• AHUS news, aHUS Alliance Asking Patients Worldwide to Join Rare Disease Day Project
• Pulmonary fibrosis news, Pandemic Won’t Stop Rare Disease Day on Feb. 28
• Pulmonary hypertension news, Let's learn something new for Rare Disease Day 2021

If your event received media coverage, please send a link or copy of the television, radio or print article to [email protected] We will post it here!