2017 Rare Disease Day Media

Media around the world are reporting on Rare Disease Day 2017, the patient-driven international movement.

Below you'll find articles, radio interviews and television excerpts showing local events and the public mobilisation to improve the lives of people living with a rare disease. The clippings are listed in alphabetical order by country.

Have you contacted your local media about Rare Disease Day 2017 on 28 February?

Australia

• Cairns Post, Rare Disease Day gives family with Prader-Willi syndrome hope

Canada

• Barrie Today, Raising a flag for rare diseases
• Open Parliament, Vaughan, Francesco Sorbara, Rare Disease Day
• SAT Press Releases, Vancouver, International Rare Disease Day and rare animal children's book launch

Europe

• Aniridia, Rare Disease Day 2017
• EPP Group, Maladies rares: l'UE et les Etats membres doivent continuer le combat
• European Commission, ERNs: 900 teams to connect across Europe to benefit patients
• Global Times, ERNs launched to tackle complex medical conditions
• Health Awareness, Compassionate Use: A necessity not a nicety
• Health Awareness, Knowledge is power: medical research on rare diseases

France

• AnDDI Rare, Journee Maladies Rares
• INSERM, Journee internationale des maladies rares
• Paris Match, Letizia plaide pour la recherche sur les maladies rares

Germany 

• IBM, How can IBM Watson support doctors in the diagnosis of rare diseases
• SRF, Christina Fasser
• SRF, Radio interview with Christina Fasser

India

• The Times of India, Formulate rare disease policy
• Zee News, New Delhi, Rare Disease Day: Here's why quality research matters

Iran

• Press TV, Iran observes Rare Disease Day

Ireland

• Irish Medical Times, Conference for International Rare Disease Day
• The Irish Examiner, Working life, Linda McGrath, Medical Research Charities Group

Mexico

• Noticieros Televisa, Commemorating Rare Disease Day

New Zealand

• Scoop, Rare Disease Day 2017

Philippines

• Manila Bulletin, Rare diseases

Romania

• Radio NoRo, Interview with Yann Le Cam

South Africa

• News24, Johannesburg, 'Just keep swimming' says young woman with rare disease
• North Coast Courrier, Join the Jeans4Genes challenge
• Parent 24, Rare Disease Day: we need more research!

Switzerland

• IBM, How can IBM Watson support doctors in the diagnosis of rare diseases
• IP Watch, The problem with rare diseases
• Swiss Biotech, Therachon supports Rare Disease Day 

United Kingdom 

• Betsi Cadwaladr University Health Board, Two families raise awareness on Rare Disease Day
• BioMed Central, With research, possibilities are limitless- Rare Disease Day, 2017
• Gene Therapy - 10 years of Rare Disease Day
• News Medical Life Sciences, New London major research centre opened on Rare Disease Day
• News North Wales, Spotlight on plight of Kinmel Bay three year old
• Nottingham Post, Support group marks Rare Disease Day
• PLOS Blog, Optimism on Rare Disease Day
• Portadown Times, Rare Disease Day

United States

• PRLeap, Connecticut, Speak out for Rare Disease Day
• PR Newswire, NORD awards new research grants for rare disease research
• NORD, Nord and ABC News tweetchat
• Parade, General Hospital's Finola Hughes: Invincible Amanda Devane faces rare disease
• SILive, Staten Island, Little girl has big plans to educate others about rare diseases
• The Daily Times, Blount County, AMENSupport raise awareness of rare diseases
• The Mighty, Donald Trump acknowledges Rare Disease Day in joint address to Congress
• The Sun Prairie Star, Gathering recognizes rare diseases

Zimbabwe

• Zimbabwe Daily, Mushohwe calls for rare diseases research

If your event received media coverage, please send us a link or a copy of the television, radio or print article. We will post it here!