Media around the world are reporting on Rare Disease Day 2017, the patient-driven international movement.
Below you'll find articles, radio interviews and television excerpts showing local events and the public mobilisation to improve the lives of people living with a rare disease. The clippings are listed in alphabetical order by country.
Have you contacted your local media about Rare Disease Day 2017 on 28 February?
Australia
Canada
- Barrie Today, Raising a flag for rare diseases
- Open Parliament, Vaughan, Francesco Sorbara, Rare Disease Day
- SAT Press Releases, Vancouver, International Rare Disease Day and rare animal children's book launch
Europe
- Aniridia, Rare Disease Day 2017
- EPP Group, Maladies rares: l'UE et les Etats membres doivent continuer le combat
- European Commission, ERNs: 900 teams to connect across Europe to benefit patients
- Global Times, ERNs launched to tackle complex medical conditions
- Health Awareness, Compassionate Use: A necessity not a nicety
- Health Awareness, Knowledge is power: medical research on rare diseases
France
- AnDDI Rare, Journee Maladies Rares
- INSERM, Journee internationale des maladies rares
- Paris Match, Letizia plaide pour la recherche sur les maladies rares
Germany
- IBM, How can IBM Watson support doctors in the diagnosis of rare diseases
- SRF, Christina Fasser
- SRF, Radio interview with Christina Fasser
India
- The Times of India, Formulate rare disease policy
- Zee News, New Delhi, Rare Disease Day: Here's why quality research matters
Iran
- Press TV, Iran observes Rare Disease Day
Ireland
- Irish Medical Times, Conference for International Rare Disease Day
- The Irish Examiner, Working life, Linda McGrath, Medical Research Charities Group
Mexico
- Noticieros Televisa, Commemorating Rare Disease Day
New Zealand
- Scoop, Rare Disease Day 2017
Philippines
- Manila Bulletin, Rare diseases
Romania
- Radio NoRo, Interview with Yann Le Cam
South Africa
- News24, Johannesburg, 'Just keep swimming' says young woman with rare disease
- North Coast Courrier, Join the Jeans4Genes challenge
- Parent 24, Rare Disease Day: we need more research!
Switzerland
- IBM, How can IBM Watson support doctors in the diagnosis of rare diseases
- IP Watch, The problem with rare diseases
- Swiss Biotech, Therachon supports Rare Disease Day
United Kingdom
- Betsi Cadwaladr University Health Board, Two families raise awareness on Rare Disease Day
- BioMed Central, With research, possibilities are limitless- Rare Disease Day, 2017
- Gene Therapy - 10 years of Rare Disease Day
- News Medical Life Sciences, New London major research centre opened on Rare Disease Day
- News North Wales, Spotlight on plight of Kinmel Bay three year old
- Nottingham Post, Support group marks Rare Disease Day
- PLOS Blog, Optimism on Rare Disease Day
- Portadown Times, Rare Disease Day
United States
- PRLeap, Connecticut, Speak out for Rare Disease Day
- PR Newswire, NORD awards new research grants for rare disease research
- NORD, Nord and ABC News tweetchat
- Parade, General Hospital's Finola Hughes: Invincible Amanda Devane faces rare disease
- SILive, Staten Island, Little girl has big plans to educate others about rare diseases
- The Daily Times, Blount County, AMENSupport raise awareness of rare diseases
- The Mighty, Donald Trump acknowledges Rare Disease Day in joint address to Congress
- The Sun Prairie Star, Gathering recognizes rare diseases
Zimbabwe
- Zimbabwe Daily, Mushohwe calls for rare diseases research
If your event received media coverage, please send us a link or a copy of the television, radio or print article. We will post it here!
