Aggressive Fibromatosis

I have aggressive Fibromatosis or Desmoid tumors. My left arm is riddled with tumors. I’ve had 14 surgeries, IV and oral chemotherapy, radiation all to… Continue reading Aggressive Fibromatosis

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Ragdoll Illness – Myasthenia Gravis

I was diagnosed with Myasthenia Gravis 27 years ago. It all started as I just left school when my left eye started to droop, then… Continue reading Ragdoll Illness – Myasthenia Gravis

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A Fitsurvivor

As a breast cancer survivor with a bleeding disorder, I know all too well how difficult a health challenge can be! I almost didn’t survive… Continue reading A Fitsurvivor

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Sindrome de Devic

Olá, meu nome é Denise tenho 28 anos e há um ano descobri que tenho sindrome de Devic. Esta é uma doença inflamatória autoimune na… Continue reading Sindrome de Devic

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ehlers danlos syndrome+autoimmune

i am 14 years old and i have ehlers danlos syndrome they are unsure what type i have because i have so many symptoms they… Continue reading ehlers danlos syndrome+autoimmune

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MSK-what a pain!!

Hi there, my name is Diane and I suffer from Medullary Sponge Kidney Disease. Both of my kidneys are like sponges and basically produce kidney… Continue reading MSK-what a pain!!

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Team Super Joey Fights Histio

In April of 2012, my son had been complaining for a few weeks about pain in his leg. It first appeared as a pulled muscle… Continue reading Team Super Joey Fights Histio

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Matthews Journey – Late Infantile Battens Disease

Matthews Journey with Late Infantile Battens Disease Im going to tell you a little about my journey and Battens disease. A little about my darling… Continue reading Matthews Journey – Late Infantile Battens Disease

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Internal Strangulation

At 38 years old I found I was having difficulty breathing. I thought it may be some new allergy and I was hoping it would… Continue reading Internal Strangulation

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