Juvenile Dermatomyositis

The following story is not about me, it is about my 7 year old daughter. Her name is Ana. She was diagnosed at the age… Continue reading Juvenile Dermatomyositis

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Life is a Journey keep walking

Story of my life. I am Ncumisa Zimbini Beja 24 year who was born with a rare disease “Muffen`s Syndrome” Many things were different in… Continue reading Life is a Journey keep walking

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about my son

I’m from Palestine .am for a child 8 years old suffering from a rare disease is dysplasia Eladima and the child suffers from a number… Continue reading about my son

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Alle’s Story

On April 14, 2009 my wife and I had a baby girl named Alle Shea Collazo. Alle was born with Osteogenesis Imperfecta (OI) type 2.… Continue reading Alle’s Story

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Living with Hypermobile Syndrome

Living with hypermobility has made everyone think i’m creepy, as a kid, i thought it was normal to have those fingers that can bend backwards,… Continue reading Living with Hypermobile Syndrome

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Ma numesc Aurelia Cheles, din Bucuresti si vreau sa va povestesc cate ceva din viata mea. Am zis ca suntem o familie norocoasa, cu doi… Continue reading ZBURAND SPRE RAI!

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having Hydrocephalus

I was born 27 weeks Premature ( 3 weeks early) I had hyaline membrane disease (underdeveloped lungs) . they were matured by a research Drug… Continue reading having Hydrocephalus

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Starting over ………….. Again.

It started out with the heel on my right foot going numb. Then my back starting to hurt. The pain in my back starting to… Continue reading Starting over ………….. Again.

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mi hija es un milagro

Nuestra historia comenzo el dia 5 de agosto, dia en que nos dicen los medicos que florencia nuestra pequeña hija de tan solo 45 dias… Continue reading mi hija es un milagro

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