EURORDIS is very pleased to announce that our Rare Disease Day 2016 Ambassador is Sean Hepburn Ferrer; the eldest son of the late actress and… Continue reading Rare Disease Day 2016 Ambassador
With less than 2 weeks until Rare Disease Day 2016, each one of us can show our solidarity as together we raise awareness for people living with… Continue reading Less than 2 weeks to go – 5 ways to get involved!
 On the 29 February, the rarest day of the year, patients around the world will ‘Join us in making the voice of rare diseases… Continue reading #RareDiseaseDay momentum is global and growing!
We are delighted to share with you the 2016 Rare Disease Day video which you can watch here! We invite you to share it on social… Continue reading Out now! The 2016 Rare Disease Day video!
Elisa is 18 years old and was born in Treviso, Italy where she lives with her parents Sergio and Catia. Elisa is living with Williams… Continue reading Meet Elisa!
Rare Disease Day 2016 is shaping up to be the biggest awareness-raising campaign for rare diseases yet! With just over one month to go, participants in hundreds… Continue reading Rare Disease Day Thunderclap campaign!
Yuliya is 13Â years old and is living with type 2Â spinal muscular atrophy (SMA). She lives in Kharkiv, Ukraine with her father Vitaliy, her mother Svitlana… Continue reading Meet Yuliya!
29 February 2016 is Rare Disease Day! Read more about this year’s Theme and Slogan Theme: Patient Voice Slogan: Join us in making the voice… Continue reading The Rare Disease Day 2016 theme and slogan: Patient Voice—Join us in making the voice of rare diseases heard
The countdown has started! The 2016 website www.rarediseaseday.org is up and running which means that now is the time to start planning and posting your… Continue reading The Rare Disease Day 2016 website has launched