Rare Disease Day 2016 is shaping up to be the biggest awareness-raising campaign for rare diseases yet! With just over one month to go, participants in hundreds… Continue reading Rare Disease Day Thunderclap campaign!

Yuliya is 13 years old and is living with type 2 spinal muscular atrophy (SMA). She lives in Kharkiv, Ukraine with her father Vitaliy, her mother Svitlana… Continue reading Meet Yuliya!

The countdown has started! The 2016 website www.rarediseaseday.org is up and running which means that now is the time to start planning and posting your… Continue reading The Rare Disease Day 2016 website has launched

On 25 November there was an exclusive Rare Disease Day social media webinar hosted by Robert Pleticha, RareConnect Project Manager at EURORDIS. Watch this event if… Continue reading Maximising Social Media around Rare Disease Day

Just 1 Day to Go until Rare Disease Day 2015! It’s not too late: Find out how you can still Get Involved! See how the… Continue reading Just 1 Day to Go! Preparing for Rare Disease Day Around the Globe

Bring People Living with a Rare Disease out of the Shadows and into the Spotlight: Watch and Share the Official Rare Disease Day 2015 Video!… Continue reading The Official Rare Disease Day 2015 Video is Out!

Raise and Join your Hands to show Solidarity with People Living with a Rare Disease! Whether you are with your family at home, 10 people in an… Continue reading Raise and Join your Hands for Rare Disease Day 2015!

Discover the Mobile Experience! With just one month to go until Rare Disease Day 2015, the mobile website allows for a fantastic Rare Disease Day… Continue reading Rare Disease Day News and Events on your Mobile Phone!